Hi. I'm new to Earth Clinic and think it's a great way to find information on Chronic Fatigue and other diseases.
I'm a 55 year old woman, with Fibromyalgia, Chronic Fatigue Syndrome; also multiple injuries (3 ruptures discs; ) history of endometriosis, etc. My medical history was long and extensive-including 8 surgeries; a visit to Mayo clinic, etc.
Eventually, I added an FMS specialist to my pain management physician, and PT. Interestingly enough, he found the cause of my CFS, FMS, etc. I have a genetic disease, Ehler's Danlos Disease, type III. This explained all my diagnoses. Then my rheumatologist suggested a clinical trial of Famciclovir 250 mg., three times a day.
By the way, my history includes Epstein Barr disease, several years before my symptoms started. The Famciclovir is supposed to bolster the immune system.
I was quite skeptical, but tried it. Three years late, I'm taking mostly Advil, instead of daily Rx pain meds. I use those only occasionally, now. Supplements helping include: Magnesium Malate; D3; and D-Ribose.
I am able to exercise now-without hat automatically throwing me into a flare. I haven't had a real flare in three years. Sleep better, less brain fog, also.
So, my comfort level is much better, and disability less. There is no genetic cure for EDS III at this time, but the : clinical trial; Advil (joint and back pain, ) and neuropathy meds. (Lyrics;) plus gentle PT have helped. My family has been supportive, as well as friends as church.
Overall, I'm much better compared to ten years ago. My FMS Rheumatologist (and the research) tell me that my disease is sometimes the cause of FMS and or CFS. Having the correct diagnosis is critical in determining treatment.
General information about EDSIII is available online. A Rheumatologist who specializes in FMS can make the diagnosis. He/she can then determine treatment, if you have it.
So, if there is a question that EDSIII might be the primary cause of CFS or FMS, I would strongly recommend seeing one. My life has improved a lot since I started seeing the rheumatologist, and continues to improve.
I had muscle cramps leading to pain and headaches for years. Recently my doctor prescribed tyroxine. Ever since my muscle cramps are 98% gone. I had some cramps every 30-40 days only. They were less severe and went away easily with advil.
EC: Thyroxine is a medication used for the treatment of hypothyroidism (under active thyroid gland). It is used as replacement therapy in people having a lower thyroid function than normal.
in a september 2009 doctor oriented writing a doctor has announced the discovery of the cause of the disease which is the effect of gravity upon an unstable pelvic girdle. This discovery is based upon the medical examination of hundreds of patients documented with the disorder. The cure involves natural therapies, prolotherpy, and advanced methods of physical therapy, ionotophoresis, and a revolutionary sleep system that relieves pelvic subluxation while the person is reclined. The cause is mechanical injury to the low back, often from mundane injuries and pelvic ligamentous laxity secondary to multiple pregnancies. Reported by Dr. Badgley.
EC: This post is a little confusing, but we've figured out from the screen name that the doctor is referring to the cause of fibromyalgia. Sending it to Jason Uttley for response.
I've been reading the posts on fibromylgia and although I've suspected for some time that I have one, these postings have helped me realized perhaps I really have fibromylgia: my symptons are fatigue, achy muscles , excessive thirst, nausea. Ive been experiencing these for years and they seem to get worse over time. recently I've been to the doctor but test results indicate I'm fine (although I'm not).
Anyway, the posts here are helpful. I've one more thing to add though. Recently I tried visualization and imagery - imagining a bright white light over your body, esp. on areas where they ache - the results were quite good. Not 100 % cured but there was a considerable, or for me, great improvement. I also am doing some detoxification and reflexology for this and started to change a few things about my diet.
Here's some more info about visualization:
Hope this helps.
I read the information on your site about fibromyalgia and flouride poisoning but I didn't find any on the link between Vit. D deficiency and fibro. I just want to be sure that those suffering from this illness are aware of the belief that fibro. is considered by some to be an adult form of rickets. It manifests itself with signs of so many symptoms because if the body is deficient in Vit. D then it will become deficient in all of the minerals the body needs because without the vit. D in the colon minerals cannot be utilized and absorbed by the body. There is no substitute for the natural vit. D produced by the body by being exposed to natural sunlight....especially women are deficient because all of their makeup and body lotions block the UV rays of the sun. If you are suffering from fibromyalgia, please research the link between fibro. and vit. D deficiency.
My wife suffers Fibro and has found that mega doses of Vitamin D help her get sleep witch then lessens the pain and other fibro problems. I note when I get a sunburn I get sleepy for the next couple of days. Bob
(Salyersville, Ky, USA)
(Adelaide, South Australia, Australia)
A physician in Florida, Dr. Daniel Dantini, has an excellent protocol for fibromyalgia. He tests for latent viruses as well as food allergies. Treatment involves antivirals and diet changes. I found it very effective. His pioneering work despite criticism from the medical establishment should be noted. I believe he has important data on the link between fluoride and the resulting symptoms. Fluoride may impair the immune system, causing the latent viruses he is detecting to re-emerge. His IgG test for food allergies may even be diagnosing the body's immune reaction to the fluoride in fertilizers in those foods. Most patients do not tolerate soy and wheat, commonly fertilized with fluoride. Please include his important work on this site.
(Los Angeles, Calif Usa)
(Buckhannon, Wv, Usa)
(Wellington, New Zealand)
I suffered with fibromyalgia back in the beginning when doctors said there was no such thing as fibromyalgia. Or they never heard of it. I had the worst case the doctors in my state ever saw. It crippled me within days of my first attack. It took me a year to learn how to walk again. It took me 8 long and painful years to find my own natural cure. It works on about 1/2 of the people that try it. I used Protein Whey I drank 1 scoop in a bottle of water. Once a day. It will take 2 weeks before it works. At least it did for me. I had to build it up in my system.
Fibromyalgia is a muscular problem and Protein Whey repairs muscles. A friend of mine told me to try it. I was totally shocked that it worked. I no longer felt the rain coming for the first time in 8 years. I no longer had any pain. After drinking it for 2 years they changed the product I was drinking. My pain returned. I called them in tears asking for more of the old supply, which they didn't have. I begged the lady to tell me the changes. She couldn't help but feel sorry for me and she sent me a list of all the changes so I could calculate what I needed to create the same thing I was drinking. After two weeks I figured out what I needed to do. I had to ADD more Amino Acids...
Once I did that my pain went away again permanently. So I was able to ween myself down to drinking it once every two weeks to keep the pain away. But that took a year to get to that point. I hope this helps you and anyone else reading this searching for relief.