Dietary Changes
★★★★★
(Tallahassee, Florida, Usa)
08/11/2010
BINGO! FMS/CFS suffer here... I can't take narcotic pain meds, so I've been doing a lot of research on natural ways to cope and improve the symptoms. Regarding dietary changes, I have been watching some documentaries regarding the effects of chemicals in our food chain. They support what I've been suspicious of for some time. I'm also learning from posts like yours about other toxic chemicals like aluminum, plastics, and fluoride. As a result of finding this site, I am on my 5th. Day of using ACV, eliminating all artificial sweeteners and most sugar out of my diet as well as MSG. I'm drinking distilled water and eating more healthfully. My question is... I have a filtered water pitcher and didn't know if this is a safe alternative to tap water, so I'm drinking distilled water until I find out for sure. While at the store yesterday, I read the box from a filter for my pitcher and it said it delivers a safe level of fluoride for health. I bought the filter, but won't use it until I find out if it's safe. Does anyone have any thoughts on this?
Thank you! Cindy
(Toronto, Ont, Canada)
08/12/2010
Cindy, I have been using only distilled water for drinking( with the only exceptions being occasional fruit or vegetable juices) over 15 years now. In my opinion there are way too many differemt substances that are in the ground water of our planet to ever think that filtering will remove them. Only the distillation process completely eliminates a vast number of them. Again, in my opinion filtering is a cosmetic treatment and is promoted mainly based on taste, appearance and a few pollutants only. There are some that suggest distilled water will leach out minerals from your body but again I feel that it is great if distilled water leaches out materials then it could also possibly leach out other sourced toxins from the body. For those that don't feel they already ingest enough good and necessary amounts of minerals they can add a small quantity of sea salt to the containers of distilled water to provide safe trace minerals. Regards
(Michelbach-le-bas, Alsace, France)
08/12/2010
From the information I have read, no level of fluoride is safe for the health. As far as I know, fluoridation has been forbidden for many years here in Europe. Still, my daughters, born in Holland after that were prescribed fluoride tablets by their pediatrician for many years. Nowadays I avoid anything which contains fluoride, especially toothpaste but even the floss contains fluoride and salt at well. One has to read all the labels! Water here in France seems to be quite bad (and expensive too! ) so we have a Brita filter on the tap but when we buy our own house we want to have a well and maybe have a system to filtrate it and use only that water.
(Somewhere, Nevada)
06/21/2011
Fluoride is found naturally in the water in many places in the world. I know a family of 5 children who were all conceived and grew to adulthood in an area where there is a lot of fluoride in the water. They all had wonderful teeth and bones, no cavities. Three of them lived into their 90s, one over 100, and the fifth one to age 79 even tho having suffered rheumatic fever in her teens. People were having fibro, although not called that, long before fluoride was added to drinking water. I think we need to look elsewhere for our problems.
(Calgary, Alberta)
12/31/2012
As far as I have heard no "filter" can take out Fluoride. Thus if somebody says their filter "delivers a safe level of fluoride" then they are probably just playing with words, meaning they just delivering, unfiltered, straight through to you, the fluoride that is in the water, which they consider to be safe, with "safe" as determined by government regulations and specifications (if there are any). (small comfort.)
The only way to get fluoride-free wate is distillation and reverse-osmosis. If you want to get fluoride out of your water then you should investigate a reverse-osmosis or distillation system, and leave filters to those who blindly accept pat vague phrases.
Even the health stores do this word play game. For example I recently went to get fish oil and found they all were flavored, apple, orange, etc. I read the ingredient list to find some mysterious ingredient called "natural flavor. " Now what is that? Why all the mystery? If it is apple flavor in apple fish oil then what not say "apple peel" or "apple juice" or so on. Why some vague words like "natural flavor?" Obviously to hide what is in it. MSG is "natural" and so is fluoride. So "natural" is a meaningless word. Why are health food companies playing such word games? Why are health food stores accepting products that play such word games. I refused to buy it, saying I don't want additives in my fish oil and the person at the health store even swore left and right that it was not an additive! As if fish come with apples stuck in their mouths. It looks to me like something was added, and that makes it an add-itive. Just because it is a health food store, or a water filter company, doesn't mean you should blindly trust them. It doesn't mean they care about your health. Ask for things in writing. And reject vague words and double-talk.
So don't be blindsided by water filter companies and their word games. Ask to see proof if they claim it takes out fluoride, or any other thing. Look for the word "removes" or "takes out" and not just vague words like "delivers a safe level."
(Calgary, Alberta)
12/31/2012
It's always good to keep an open mind and "look elsewhere".... As long as you still look at Fluoride. Saying you know someone who lived to 90 and drank fluoride is not scientific. I know people who lived to 90 and smoked cigaretters all their lives. On that evidence would you care for a smoke? And my brother had one bad Ford and thinks "all" fords are rotten cars. That is not scientific.
One example proves nothing. Especially since we don't know why they might have overcome fluoride, resisted carcinogenic fumes or why a machine produced a lemon car. Statistically there will always be exceptions. But most people go with averages and general trends. Living by expecting you will always be one of the exceptions is a dangerous way to live.
(Mississippi, US)
12/31/2014
I agree that FLORIDE is a problem with our health, and I do have fibromyalgia.
I drink spring water.
I have noticed that the only things people are talking about is drinking water, but you get much more fluoride in your body when you bathe than you do from drinking. Especially if you are like me and love a long hot soak to ease your painful muscles. Also, when you brush your teeth you need a bottle of water so you won't use the city water with fluoride. Same applies to cooking. I hope people are still following this thread.
(Indiana)
08/03/2016
The problem with flouride is that the ratio too much / not enough is small. To paraphrase from J. D. Wallach's books Rare Earths and Let's Play Doctor, In 1972 Schwartz proved that flouride was an essential mineral. 1.5 mg/day is needed but the average dayly intake by Americans is 4.4 mg. Skeletal reserves in an addult man reach 2.6 grams.
Dietary Changes, Acupressure
1) I detoxed my life style (as much as I can):I eat only organic, No GMO foods, no preservative filled foods , no refined sugars, no artificial sweeteners, no harsh chemical cleaning products, no table salt, no nonstick cook pans, no florinated or chlorinated water, I take only organic hemeopathic and herbal medicines and (this is a biggy) I get lots of vitimin D from sunlight.
2) I use self applied acupressure EFT(Emotional Freedom Techniques) and MTT (Meridian Tapping Techniques)every day to clear the stress and anxiety from my mind and body.
I must tell you it has been effective for me and my family as well. I used MTT to ease my baby's teething pain and it worked great. I was so pleased with my results that I taught EFT to everyone who would listen to me.t is quick to learn, easy to apply and works fast.
There are tons of places on the internet where you can learn more about EFT & MTT, the manuals are free. Simply look up MTT & EFT.
LUV D
DMSO
★★★★★
I started taking 1/2 tsp of DMSO every night. It's the fourth day now and most of my stiffness and sore joints have disappeared. I started taking 1 oregano capsule every day, too, plus a capsule of garlic in the afternoon. But I have done those before with no results. The DMSO is amazing. I was getting so stiff I couldn't bend at the knee. My bursistis in my left arm is improving, too.
DMSO
★★★★★
A few months ago someone told me about this site, so I started reading as much as possible in an attempt to figure out what was wrong with me. It seemed that every time I read something that sparked my interest you wrote it. About 3 years ago I became very sick crippled in bed with pain in my hole body. It felt like electrical shocks traveling threw my veins. I also experienced what I will call hot spots mainly in my left arm which I was not able to move with out pain for many months. I went threw test after test to be told all where normal. Finally I was told by an infectious disease doctor that I had undiagnosed lymes and probably had it for many years. I was given antibiotics and began to feel a little better. I have had many tick bites since I love the woods. My primary Doctor told me there was nothing wrong with me and suggested I get psychiatric help but at the same time he sent me to another Doctor and after a 2 minute examination he told me I had Fibromyalga. At that point I lost all faith in medical doctors. I spent many years learning to deal with the pain and just adjusted to the fact that if I was able to function for a day the next 2 days I would be bed ridden. Each day I had to force myself out of bed it was an effort just to get to the bathroom. There is a lot more to my story but I will get to the point. I finally decided to try DMSO and with in 5 days of taking a half of teaspoon I have no pain and the energy of a 3 year old child. I still have the numbness in my left index finger and thumb and tickling up my arm. But to be pain free after all these years is a miracle! If you have time to write back I can give you more details of other doctors findings concerning my spine and hips. I am afraid to continue with the DMSO for I don't know if it will cause other problems. Please write back with your advise.
Thank You!
Dear Sandy: Two things that are effective against pain is DMSO and MSM. It takes about a week to noticeably reduce pain and most effective after 2 weeks and maintaining that dose helps. Magnesium (no calcium) and hyaluronate should deal with other pain. Any additional information is welcomed. Ted
(Canada)
10/11/2014
Been taking DMSO 1/2 tsp in water at night, 5 drops lugols iodine in water in the morning and 1/4 tsp of borax in a liter of water throughout the day. I really noticed my energy level Go up and I could think better....Kind of like the brain fog has lifted. My joints and muscle stiffness has improved. I still have a hard time sleeping comfortably as it has improved just a little.
(Fl)
10/12/2014
Eliminate Tap Water
★★★★☆
Emu Oil, Cherries
★★★★☆
Thanks,
Regards,
Delphie
(Howell, Mi)
05/03/2011
Epipharyngeal Abrasive Therapy
★★★★★
I just happen to notice an article put out by the National Library of Medicine. Now what the NLM does is put out articles from all over the world about new treatments and studies that are being done and thank God that they do, otherwise we would never know about them at all. Big Pharma has complete control over everything being done here in America so we have no idea of what's being done anywhere else. NLM doesn't endorse or approve of any of the studies or treatments, they just report them.
This treatment/study was done in Toyoko, Japan at one of their Fibromyalgia Clinics
The treatment is called Epipharyngeal Abrasive Therapy or EAT
The title of the article is called "A Case Report of Chronic Epipharyngitis with Chronic Fatigue Treated with Epipharyngeal Abrasive Therapy (EAT)
CASE PRESENTATION
A 42y/o woman with chronic fatigue of unknown origin, which began to interfere with her daily life and employment about six months ago, visited an outpatient clinic specializing in ME/CFS aka fibromyalgia in Tokyo in February 2015, with chronic fatigue as the main complaint. At the time of her visit, she faced difficulty going out and spent more than 50% of the day lying in bed at home. She was diagnosed with ME/CFS aka fibromyalgia according to the diagnostic criteria for CFS by the Japan Agency for Medical Research and Development (AMED).
To make a long story much shorter they first treated her with nutritional therapy thinking this could be a gut biodome problem. They used high concentration of Vit C intravenously, DHEA, oral Magnesium supplements with no improvement. So they knew the treatment wouldn't be in the gut.
The patient then underwent an nasal endoscopy using band-limited light endoscopy system which revealed redness and swelling of the epipharyngeal mucosa from the posterior wall of the nasopharynx to the canal and lateral walls, this is the area where viruses hide and replicate esp Epstein Barr.
Epstein Barr Virus is responsible for many very serious health conditions and cancers and every fibromyalgia patient has tested positive for this virus unless their fibromyalgia has been due to trauma.
The patient was treated with a 6 inch Q tip soaked in 1% Zinc Chloride using EAT, each nostril. She came to the clinic 2x/weekly for 6 months before returning to work. EAT was done on her 54 times. During the past seven years since her treatment when she starts to feel unwell, she returns to the clinic for another 52 EATS.
I was able to find the Zinc Chloride an Amazon under "Zinc Complex" and it's the only one that has zinc sulfate, Chloride, and magnesium in it, all three is what's needed.
I tried it for the first time last night not expecting too much at all. Problem was I did it at midnight not realizing I would be blowing my nose until 3am so treat yourself earlier. I woke up and felt different. When you wake up in the morning your brain wakes up your body. Anyone with fibromyalgia your brain goes in overdrive immediately and your muscles go into microspasms, I didn't feel that for the first time in 7 years and I didn't feel the fatigue that I usually feel. I'm getting more done today and that's worth mentioning.
Now if you decide to do EAT please do not look up the vid on youtube under "Neal". He's doing it wrong and damaging his nasal tissues, PLEASE don't follow his example, I nearly fell out of my chair. As a retired healthcare provider I CANNOT recommend his vid. There are other vids that show you how to do it. You have to hyperextend your neck approx 45 degrees and insert the swab all the way to the back. Then move the swab gently against the back surfaces rolling the swab so the zinc chloride gets distributed well. Do both sides and wait, don't panic but you will feel different and your nose will start to run. In the medical field we call that rhinorhea.
I hope this helps anyone with this dreaded condition, there is hope but remember it's not a cure but excellent treatment.
(America)
04/29/2025
Interesting. But couldn't you just use the zinc liquid as nasal spray? Could you give the name of the product, instead of saying zinc complex on amazon? Thank you.
No. Evidently nasal spray doesn't reach that area where viruses replicate and live, the medical community has known that for a long time. This is a much better technique. As for the name, I gave you what it's called on Amazon. It comes in a white bottle with a dropper, it simply says "Zinc Complex" on the front.
It seems EC has put the one up that I use. I didn't want to EC to think I've endorsed a product but this is the product, thank you EC.
I've done my second treatment and I had a horrific Herx Rxn. I drank ginger tea with ACV and honey then binge watched Blue Bloods. In about 3 hrs I was feeling good. I call that my magic tea esp when I have a fibro flare up.
I've done my third treatment with NO Herx Rxn but I did have sneezing. Other than that I woke up feeling much better. I feel like I'm getting my body back under my control. I realize this is treatment and I'll probably have to do this for the rest of my life, but it's worth it. My thanks go out to the woman who was the case study in 2015, this will change lives for the better. Another thanks to Japan for releasing this valuable info, keep up the great work.
I did my fourth treatment and it was the same as the third but when I did my fifth treatment today I had no sneezing and started feeling really good within a half hour...
Fluoride Connection
India has been living with the effects of fluorosis for years. We can learn important lessons from them. India has high levels of fluoride in the water and soil, and they have the exact opposite image of fluoride than those in the US. They are currently working to defluorinate their water supply and they are asking US toothpaste companies to leave. They report that "donor" countries have been encouraging fluoridation there. Physicians in India would diagnose fibromyalgia with a different name: a non-skeletal phase of fluorosis, where fluoride affects the soft tissues of the body. Too arrogant to learn from our world friends, we invented our own diagnosis. Patients in India who present to a physician with GI disturbance, muscle pain, headaches, fatigue and cognitive decline are immediately recognized as having fluorosis.
The US not only helped to create the fibromyalgia/chronic fatigue problem here with the fluorination of drugs, we've missed the diagnosis for 50 years.
A noted fluoride toxicologist in India recommends a blood test called SA/GAG that offers a definitive diagnosis. I am trying to see if that is available in the US through some physicians I know.
Most importantly, we can learn from the effective treatments used in India today. Removal of fluoride from the diet, supplementation with calcium, magnesium and vitamin C. This simple treatment appears to be working and their physicians say fluorosis is reversible if caught early. How many of us wish we had known this sooner!
After 50 years of studying what happens when you drink a toxin, it makes more sense to simply keep the toxin out of your body.
(Kenedy, Texas)
09/14/2008
I really appreciate this information. I suffer with Chronic Fatique and will definitely be sharing this info with family and friends that also suffer from it. It is hard to get others to believe that flouride is a dangerous toxin, because it is so drilled into us through commercials and from our dentist that it is necessary for us to use it to prevent cavities. Many have the opinion that if the FDA says it's safe for us, then we should not worry. I stopped using flouride about a year ago, and am wondering after using it for 30 plus years, how long it takes to get the effects of it to go away. I am supplementing with calcium, magnesium and vitamin C and have seen some improvement, but there are days that I have no energy whatsover.
Thank you again for posting this information.
(Austin, Texas)
12/31/2010
I cut out fluoride a long time ago, and I've been taking magnesium, calcium, and vitamin C for years before and after my fibromyalgia diagnosis. I don't think there's a connection for me, unless I just need to detox from the fluoride. I'm confused about this fluoride connection since mostly women have fibromyalgia and everyone drinks tap water with fluoride.
(London, Uk)
03/28/2011
Ellen, from what I've read on this site alone, flouride will stay in the system unless you do something to get rid of it, its not enough to stop the intake. Also, I read there is a link to women taking a lot of flouride based antibiotics for urinary tract infection, which I guess they're more prone to. It's also been suggested that more men than once thought suffer with it as it becomes more widely known and diagnosed. Perhaps its not as straightforward as we'd like, there may be other triggers or factors as well perhaps...?
(Denton, Tx)
04/26/2011
For me, the issue is definitely not with fluoride. I have been detoxing fluoride for months and the only thing that has helped me is anti-viral therapy, which makes sense as my fibromyalgia developed after a bout of the swine flu.
Fibromyalgia is not a new disease. In fact Charles Darwin had fibromyalgia and chronic fatigue syndrome. It was described as what Job had in the bible and there are ancient Greek /Roman accounts of fibromyalgia as well. It was only recently given its most modern name. It did not appear upon the advent of fluoride in municipal water supplies and antibiotics. For some, it could be the cause, but unfortunately there is no magic bullet cause and cure and we all have to figure out what works best for us and what our individual issues are. Mine were viral and metal toxicity issues as well as yeast.
(Melbourne, Australia)
04/27/2011
Ellen, I developed fms, cfs, mcs which has led to osteoperosis, blocked arteries etc etc its a real mess after glandular fever, barvon forest, ross river virus. What have you been doing to kill the virus? Ive done everything on here - garlic, colloidal silver, etc etc and yes, some antibiotics just to ruin my gut some more. Have you heard of Marshalls protocol - is that what you are suggesting?
(Denton, Tx)
05/14/2011
★★★★☆
Robyn, I have been taking a multi-pronged approach of destroying biofilms that pathogens hide in with enzymes, boosting the immune system with IP6 inositol, AHCC, vitamins D, E, A, B's, zinc, E, taking thieves oil internally & applying externally, detoxing metals with sodium thiosulfate & DMSA, etc. I'm not 100% but I think I'm making a slow but sure recovery. I used to be so bad that I thought I was dying and now I can go hiking. I also drink borax as suggested on the site, and ACV baking soda. I'm not sure if the ACV baking soda does anything. (please email me at s. Genteel85(at)gmail.com if you have any questions)
(Melbourne, Australia)
02/07/2012
I can't believe I've been combing this site for 2 years and never looked on this page. I've done all you are recommending except the dmsa. I've had edta IV and orally and every other detox - except ala - have it to take the way Bill recommends but Andy cutler takes it quite differently. Some say it's dangerous. Is anyone of the belief that this is a brain injury? Is anyone using Gupta successfully? It hasn't helped me which makes me think my fms must be something else.
I realize this post was done in 2008 and since then a lot of what is written has been proven wrong. We do know that fibromyalgia is autoimmune and you have to have the genetic defect for it. If it was caused by Fluoride, most people would have it here in America since our water has Fluoride added to it. We do know if not caused by trauma it's caused from a virus. There's also a lab test for it called the FM/a test. I doubt it's covered by ins which means this one test can cost probably over $500+. Most healthcare providers just do the "trigger point" test. We've come a long way since the 17yrs this has been posted. Many sufferers are turning onto tDCS and other therapies instead of Rx which has not only high costs but also many side effects. Nearly every person who has fibromyalgia has also tested positive for the Epstein Barr Virus. I continue to do E.A.T. with positive results.
Gaba
★★★★★
In June 2012, I realize now that even if I do not take Gaba every day my pain does not come back anymore.
Also I am taking a full spectrum Vitamins with Iron, vitamin D, Calcium with C.
I take ___ protein [supplements] with BCAA's (for Lunch 3 times a week), Taurine 500 mg and Magnesium everyday in the evening with a snack, Melatonin 4 mg before I go to bed
I drink a tomato juice with 3 tsp of Apple cider vinegar 3 to 4 time a week....
I have a very healthy diet a lot of green smoothies (avocado spinach, Mango or green apple... and Protein powder but not to much fruits too much sugar...
I feel great today and I think that 2 years of Gaba cure me from all that pain..... I do exercise one hour every day...
if someone else took very high dose of Gaba please share your experience I would like to know.
GAPS Diet
★★★★★
I slowly developed some of the symptoms of fibromyalgia (IBS, dermatitis, allodynia, aneamia, low immunity, PMS and irregular, painful menses, etc. ) throughout my childhood until I became very ill at the age of 16, also developing chronic muscular and joint pain, extreme fatigue, brain fog, weakness and a host of other symptoms. I now believe the onset was gradual due to a slowly worsening condition of my gut, partially thanks to the frequent use of antibiotics (as I was often very sick as a child) without probiotics (my parents gave me Yakult to drink for probiotics, unaware of the fact that I was lactose-intolerant and never drank the stuff because it made me feel sick).
Over the next 2 years, I slowly began figuring out which treatments help me to manage the condition: occupational therapy, physiotherapy, not eating foods I was intolerant to, using the right skincare products, gentle exercise and mindfulness meditation. I highly recommend all these treatments. I experimented with fluoride toothpaste and fluoride-free toothpaste for a few months and decided that fluoride definitely brought on intense flare-ups. I now use organic toothpaste, which is expensive but worth it. A cheaper alternative is one of the Sensodyne toothpastes - the one which uses strontium chloride instead of fluoride. I noticed no negative effects from using that. I grew up drinking rain water but whenever I drink tap water I have to filter it or it makes me sick. As far as skincare products go, I recommend MooGoo or ecopure.
BUT in the last couple months, I have discovered the most helpful remedy yet: the Leaky Gut Cure Program by Karen Brimeyer. She proposes that leaky gut can cause fibromyalgia, and that by following her program leaky gut can be healed. (This is a similar theory and treatment to GAPS, but it is a lot cheaper to buy Karen's program than to follow the GAPS program. )The program involves eating certain foods, avoiding certain foods, reducing toxins in your household products and clothing, and following healthy lifestyle practices, such as observing appropriate sleep hygiene and many other things. It also involves supporting your adrenal glands, ridding your body of pathogens and healing the lining of the gut through supplementation. I had read and tried many other similar programs in naturopath books, which only seemed to make me sicker. But this program makes me feel better, not worse, and I can assure you that it is perfectly nutritionally balanced. My pain has decreased (I no longer take pain medications), I can think more clearly, I am sleeping much more soundly and feel refreshed when I awake (rather than stiff, sore and exhausted), I have been feeling a lot more energetic and people are saying that I look really well. And I tell them that it is because I feel really well! I have never felt so alive in all my life!
I cannot give exact details of the program here due to copyright issues, but I will tell you that Karen Brimeyer's program is surprisingly cheap and can be found at www.leakygutcure.com. Anyone with fibromyalgia, chronic fatigue or IBS should google GAPS to see if they think that they suffer from it - and if they think it likely that they do, they should try the leaky gut cure for at least a week. Even if it can not cure everyone with FMS, I am sure that it can help many people with it - so it is definitely worth a try!
I now feel confident that I am healthy enough to continue with my university degree and work a part-time job too!
I hope that at least one person reads my post, tries the leaky gut cure and becomes healthy and energetic!
(Canada)
12/17/2014
★☆☆☆☆
WARNING!
I checked out this Karen Brimeyers program, and it is a scam from what I can tell. The person writing it doesn't even use proper grammar!
General Feedback
My massage therapist suggested I drink alkaline water so what I've read here seems to jive with that and now it all makes more sense. I'm concerned about trying the ACV because I have barrett's esophagus and am supposed to avoid acids... Then I read to add baking soda to change it from an acid to a salt... you all should be chemists.
This site is very interesting. I'm glad I ran across it while doing research for my stepmom who was just diagnosed with lung cancer.
Thanks for all the great info!
General Feedback
I could go on forever but I'll stop now. God bless all of us. I hope this is it because I can't bear to think of any more, especially children going through life with all this pain and sadness. Thank you for earthclinic. Thank God for compassionate human beings.
(Somewhere, USA)
10/07/2012
(Oakville, Canada)
10/07/2012
Hi Mary Margaret, sorry about your condition. Have you ever tried Tamarind Juice and Wheat Grass Juice. Tamarind Juice will remove the flouride poison and wheat grass juice will produce pure blood and this pure blood will rejuvenate the tissues and organs. replenish your bones. You have nothing to loose, just a simple Tamarind Juice at least to remove the poison.
Wheat grass juice is tough to make as we are heading to winter. But you can buy from dynamic greens, their quality is good. I used their wheat grass juice and it is nice.
Here are the foods and conditions to avoid strictly.
- No Flouridated Toothpaste
- No Flouridated Bottled Water
- No Microwave Cooking
- If possible you can change your place for 1 month where toxicated surroundings are less.
Here is my tamarind juice recipe link: https://www.earthclinic.com/cures/fluoride2.html#TAMARIND
You can continuously take it for 4 weeks daily then give a gap of 1 week and again continue for 2 weeks or So. There after weekly 3 times. Be informed, don't take more than 2 glass tamarind juice daily and don't take continuously for 2 months. I take Once in a week, to remove flouride poison as my city water is flouridated.
Try it, this may do wonders. Who knows sometimes a lifelond Chronic Disease can be cure by a Dollar value of food. Nature has its invincible power.
Good Luck
General Feedback
Hi EC,
I was looking at some of the results of your older questionnaires and you had included a question about long-standing viruses. It seems to be missing from current questionnaire.
I have autoimmune, sjogrens, Raynauds and arthristis issues which are worsening. I am also battling shingles and herpes. Many of the older questionaire replies mentioned shingles, epstein Barr, Mono etc. which I think could be a leading cause. Please correct your current questionnaire to include the virus question, or ask about chickenpox and herpes. I think it could be useful info. Thanks, Dot (Sydney)
EC: Thanks for the suggestion, Dot. Can't remember the exact reason why, but we removed that particular question from the fibro questionnaire a couple of years ago. I agree with you, however, and have asked the programmer to add it back into the form.
Deirdre
(Loveland, Oh)
10/31/2011
I was diagnosed with fibro 11 yrs ago, after a year and a half journey thru the medical system (4 doctors later) before I received a final diagnosis. I tried everything and researched the subject extensively when able.
This last year, I have been occassionally researching high dose vit D3 therapy. After moving from NM to OH recently, the change in climates affected me so adversely, I decided to try D3.
In looking back at my medical history, I suffered from SADS growing up and felt I was a good candidate for such therapy, if there was anything to it.
I have to say, having tried everything available on the market over the years, high dose D3 has had a remarkable improvement for me in numerous ways.
1. Better quality and uninterupted sleep cycles.
2. Dramatic reduction in pain
3. Energy is improving
4. Cognitive skills are improving.
(This has only been 2 weeks therapy for me)
I just started ACV and am working on upping my magnesium intake, since many people with fibro report improvement with mag. I will be trying magnesium chloride and mag lactate (for muscle cramps) since my research shows they are the most absorbable forms.
I am taking 70, 000 IUs of D3, 3x's a week, mind you I do this without doctor supervision, however don't let my disillusionment with the medical profession disuade anyone from seeking physicians that are knowledgable in high dose D3 therapy. The research I have read recommends 50, 000 IUs to as much as a 100, 000. 50, 000 IUs had no affect on me. Timing schedules also varied but seems to be consistant in terms of longation of a 6 month time frame due to the fact that D3 can be toxic to some in high doses and some people cannot tolerate high dose D3 either due to gastro intestinal discomfort or diaharrea.
I would be interested to know if anyone else has tried D3 and what results they have had.
(Feltham, Middlesex)
02/18/2012
Why do people keep posting remedies on here without giving product information, doses and quantities? Like one chap mentions acetyl l-carnitine with alpha lipoic acid??? Great so what are the doses, what product etc etc. Without these vital details it is completely pointless information.
(Cambridge, Ma)
02/18/2012
I could not agree more!
I love this site and visit it every day, but am (very) often left frustrated with the non-specific information provided by many posters.
As you pointed out, it does none of us any good for people to post about something (or a combination of 'somethings') that helped them when they don't also include what amounts they took, how often they took it, etc.
It would be great if EC could create spaces for this info on the feedback form. Perhaps underneath the subject line, they could include "Quantity Taken (i. E. 2 tsp. )", "How Often? (i. E. Once per day, 3x per day?)
It would be *so* helpful.
(Melbourne, Australia)
02/18/2012
I don't think you are taking the site for what it is.. Just normal people try to help others with remedies. Even if dosages were given in all cases that would not necessarily help you. For instance you know nothing about the person posting the remedy - what they weigh, what their lifestyle is, what else they are taking that may act in synergy with something else. You just have to take in the information and work it around yourself if you want to, as best you can.
Most supplements recommended have the dosage recommended on the bottle so take that dosage first.
All in all you have to research, research, research.
(Cambridge, Ma)
02/18/2012
Debbie - I absolutely do understand that this site is about people helping others. Actually, it was IN that realm that I made the suggestion of including pertinent information to posts, rather than things like, "Coconut oil helped me lose weight" or "Banana peel got rid of my plantar's wart. " That doesn't "help" anyone without more information.
I wasn't referring to supplements where the dosages are on the labeling. That's a no-brainer.
I was referring to things like the examples I gave above, where how much coconut oil and how often it was taken would be very helpful for readers, or how often the banana peel was used in treating the plantar's wart, etc. That very pertinent info would at least give readers a place to start.
(Zug, Switzerland)
02/19/2012
I agree with Kelly. If the person advising a protocol, natural beauty product or whatever gives as much information as possible about what worked for them it stops us from coming back over and over again for details and it helps us as a starting point! I agree with Debbie that we are all different but following what says on the bottle of the supplements more often than not helps no one as the dosages are usually completely wrong! And often, if we are talking about own concotions we won't have any idea about what to do! Maybe I am also guilty of not being specific enough, I don't know but I will sure pay more attention to that! Things like how many times a day, with water or without, with the meals or without, how much of each ingredient, anything that might help other mimic whatever we did!
(Brisbane, Qld, Australia)
02/19/2012
Yes. If you are posting post the specifics please.
(Perth, Western Australia, Australia)
02/20/2012
(Washington)
02/14/2022
General Feedback
(Denver, Colorado)
10/20/2010
Dear Veronica, My heart goes out to you after reading your post and I can only imagine the battle your fighting. Please don't give up. Scour this web site and implement the health tips as much as possible, and also, know that just as God gave us a wealth of natural cures, He also wants to see you healed. He is good all the time. Seek him like you seek the cures for your afflictions and both will be found. I am praying for your healing.
(Nashville, Tn)
12/12/2010
This is for Roni in Weslaco, TX. Try following a GLUTEN-FREE, CASEIN-FREE diet. I know it sounds impossible, but there are many good food substitutions out there. I'm still working on trying to go casein-free (I'm a dairy food junkie). I was diagnosed in 2000 with type 2 diabetes, and in March 2008 with Systemic Lupus and Rheumatoid Arthritis. In Sept 2008 I gradually came off Plaquenil, Methotrexate, and Prednisone (I'm NOT making any suggestions here regarding meds... Just telling what I did that personally worked for me).
In April of 2009 I began a gluten free diet (I weighed around 260 at the time). At my heaviest, about five years ago, I weighed 313 lbs. Right now, I have stayed around 165 lbs for about a year by sticking to a gluten free diet, walking, and doing some resistance training. Supposedly, a casein free diet can cure rheumatoid arthritis (from what I've read online). Here is one link I found interesting: http://www.notmilk.com/forum/798.html Returned to the rheumatologist a few months ago and my joints are none the worse than they were two years ago(I think the gluten free diet is to thank for that). Good luck to you, Roni.
(Hailey, Id, Usa)
12/13/2010
I have to say to look at the oil pulling. I also was in agony a couple weeks ago from sugar, flour and yeast, but I quit that and immediately the pains stopped. In what I read of oil pulling, however, I would love to share that you might find some help in there. I prefer the sesame oil and look forward to it each day, sometimes twice a day. I can go for 15 minutes now, working up to that from 10 for the past 11 days.
(Lakeland, Fl Usa)
02/07/2011
Coumadin is rat poison.
"According to the Institute of Traditional Medicine website, warfarin has been used as a rodenticide since shortly after World War II. Karl Paul Link at the Wisconsin Alumni Research Foundation (WARF), associated with the University of Wisconsin, discovered coumarin, a substance that prevents blood from clotting, which is the basis for both the thinner marketed under the name Coumadin and warfarin. "
Read more: Rat Poison & Coumadin | eHow.com http://www.ehow.com/about_6524045_rat-poison-coumadin.html#ixzz1DIiF1sgH
Coumadin almost killed my father. He now hemoradges easily and his heart is enlarged. After he was on it a couple of months, he felt sick all the time and bled easily. He asked his doctor about the percentaged and discovered he had a greater chance of hemorrhaging to death on Coumadin then of dying of a stroke without it, so he removed himself. About the same time, he began to produce huge amounts of red blood cells which made his blood very thick. His heart then enlarged because of the thick blood, and he had to have blood removed two or three times a month. I associate the enlarged heart to imbalances created in the bone marrow by the coumadin, but as I said, I am no doctor and there is no proof to substantiate this assumption.
That was about 12 years ago. My father continues to have a gammet of health problems, but he has taken fish oil to thin his blood for a number of years. I take 1000 mg 2 times a day to keep my blood pressure and colestorol down. I am almost 60 and obese, but the doctors are always amazed at my blood reports.
General Feedback
Helpful news from my doctors office yesterday. I was given info on a retrovirus XMRV showing up in the blood work of those who suffer from CFS and Fibromyalgia. (see link below) The article did not state Fibromyalgia but many who have Fibromyaglia have CFS. My doctor told me in approx. 2 months the blood test should be ready for use. This can be helpful for many who has tried everything with limiting results.
I have a request for help from our posting gurus to help with natural remedies for muting virus. I know BHT has been mention as one. But how much and how often, and are there other remedies?