I had fibromyalgia for several years I did 2 things that seem to have cleared most of my symptoms.
1) I detoxed my life style (as much as I can):I eat only organic, No GMO foods, no preservative filled foods , no refined sugars, no artificial sweeteners, no harsh chemical cleaning products, no table salt, no nonstick cook pans, no florinated or chlorinated water, I take only organic hemeopathic and herbal medicines and (this is a biggy) I get lots of vitimin D from sunlight.
2) I use self applied acupressure EFT(Emotional Freedom Techniques) and MTT (Meridian Tapping Techniques)every day to clear the stress and anxiety from my mind and body.
I must tell you it has been effective for me and my family as well. I used MTT to ease my baby's teething pain and it worked great. I was so pleased with my results that I taught EFT to everyone who would listen to me.t is quick to learn, easy to apply and works fast.
There are tons of places on the internet where you can learn more about EFT & MTT, the manuals are free. Simply look up MTT & EFT.
DMSO for Fibromyalgia
I started taking 1/2 tsp of DMSO every night. It's the fourth day now and most of my stiffness and sore joints have disappeared. I started taking 1 oregano capsule every day, too, plus a capsule of garlic in the afternoon. But I have done those before with no results. The DMSO is amazing. I was getting so stiff I couldn't bend at the knee. My bursistis in my left arm is improving, too.
A few months ago someone told me about this site, so I started reading as much as possible in an attempt to figure out what was wrong with me. It seemed that every time I read something that sparked my interest you wrote it. About 3 years ago I became very sick crippled in bed with pain in my hole body. It felt like electrical shocks traveling threw my veins. I also experienced what I will call hot spots mainly in my left arm which I was not able to move with out pain for many months. I went threw test after test to be told all where normal. Finally I was told by an infectious disease doctor that I had undiagnosed lymes and probably had it for many years. I was given antibiotics and began to feel a little better. I have had many tick bites since I love the woods. My primary Doctor told me there was nothing wrong with me and suggested I get psychiatric help but at the same time he sent me to another Doctor and after a 2 minute examination he told me I had Fibromyalga. At that point I lost all faith in medical doctors. I spent many years learning to deal with the pain and just adjusted to the fact that if I was able to function for a day the next 2 days I would be bed ridden. Each day I had to force myself out of bed it was an effort just to get to the bathroom. There is a lot more to my story but I will get to the point. I finally decided to try DMSO and with in 5 days of taking a half of teaspoon I have no pain and the energy of a 3 year old child. I still have the numbness in my left index finger and thumb and tickling up my arm. But to be pain free after all these years is a miracle! If you have time to write back I can give you more details of other doctors findings concerning my spine and hips. I am afraid to continue with the DMSO for I don't know if it will cause other problems. Please write back with your advise.
(Mineral Wells, Tx. Usa)
I've been trying to find causes and links to my fibro for years. One thing I did discover was that when I drank tap water, my symptoms (pain) got much worse (I stopped drinking it - symptoms have gradually improved). Also taking certain drugs heightened symptoms. I will look into this further. Thanks!
Emu Oil is wonderful for sore muscles especially rib pain that i get with Fibromyalgia. Eating Cherries is also excellent for pain in joints associated with this condition. They really do help a lot as its been trial and error.
Most patients with fibromyalgia/CFS report that it began after surgery or after a car accident. Many of the anesthesias used in surgery, including epidurals for childbirth, are fluorinated. The sudden entry of a high level of fluoride is likely what starts the condition. Anti-inflammatories are another commonly fluorinated set of drugs drug, and car accident victims are likely reacting to their medication when they develop fibromyalgia. Prozac, Paxil, Lipitor and many other drugs are fluorinated. The name of the drug does NOT always have "fl" in it.
India has been living with the effects of fluorosis for years. We can learn important lessons from them. India has high levels of fluoride in the water and soil, and they have the exact opposite image of fluoride than those in the US. They are currently working to defluorinate their water supply and they are asking US toothpaste companies to leave. They report that "donor" countries have been encouraging fluoridation there. Physicians in India would diagnose fibromyalgia with a different name: a non-skeletal phase of fluorosis, where fluoride affects the soft tissues of the body. Too arrogant to learn from our world friends, we invented our own diagnosis. Patients in India who present to a physician with GI disturbance, muscle pain, headaches, fatigue and cognitive decline are immediately recognized as having fluorosis.
The US not only helped to create the fibromyalgia/chronic fatigue problem here with the fluorination of drugs, we've missed the diagnosis for 50 years.
A noted fluoride toxicologist in India recommends a blood test called SA/GAG that offers a definitive diagnosis. I am trying to see if that is available in the US through some physicians I know.
Most importantly, we can learn from the effective treatments used in India today. Removal of fluoride from the diet, supplementation with calcium, magnesium and vitamin C. This simple treatment appears to be working and their physicians say fluorosis is reversible if caught early. How many of us wish we had known this sooner!
After 50 years of studying what happens when you drink a toxin, it makes more sense to simply keep the toxin out of your body.
Hi, I was diagnosed with Fibromyalgia in 1999 and in 2010 I start taking gamma-Aminobutyric acid (Gaba) 500mg with B6, I did start slowly but I increase the dose to 1000mg then 1500mg and 2000 mg per day. I also took Ashwagandha for 3 months then I stop Ashwagandha but not the Gaba,
In June 2012, I realize now that even if I do not take Gaba every day my pain does not come back anymore.
Also I am taking a full spectrum Vitamins with Iron, vitamin D, Calcium with C.
I take ___ protein [supplements] with BCAA's (for Lunch 3 times a week), Taurine 500 mg and Magnesium everyday in the evening with a snack, Melatonin 4 mg before I go to bed
I drink a tomato juice with 3 tsp of Apple cider vinegar 3 to 4 time a week....
I have a very healthy diet a lot of green smoothies (avocado spinach, Mango or green apple... and Protein powder but not to much fruits too much sugar...
I feel great today and I think that 2 years of Gaba cure me from all that pain..... I do exercise one hour every day...
if someone else took very high dose of Gaba please share your experience I would like to know.
I want to tell you my story of how I developed FMS, and what has and has not helped me with my fibromyalgia.
I slowly developed some of the symptoms of fibromyalgia (IBS, dermatitis, allodynia, aneamia, low immunity, PMS and irregular, painful menses, etc. ) throughout my childhood until I became very ill at the age of 16, also developing chronic muscular and joint pain, extreme fatigue, brain fog, weakness and a host of other symptoms. I now believe the onset was gradual due to a slowly worsening condition of my gut, partially thanks to the frequent use of antibiotics (as I was often very sick as a child) without probiotics (my parents gave me Yakult to drink for probiotics, unaware of the fact that I was lactose-intolerant and never drank the stuff because it made me feel sick).
Over the next 2 years, I slowly began figuring out which treatments help me to manage the condition: occupational therapy, physiotherapy, not eating foods I was intolerant to, using the right skincare products, gentle exercise and mindfulness meditation. I highly recommend all these treatments. I experimented with fluoride toothpaste and fluoride-free toothpaste for a few months and decided that fluoride definitely brought on intense flare-ups. I now use organic toothpaste, which is expensive but worth it. A cheaper alternative is one of the Sensodyne toothpastes - the one which uses strontium chloride instead of fluoride. I noticed no negative effects from using that. I grew up drinking rain water but whenever I drink tap water I have to filter it or it makes me sick. As far as skincare products go, I recommend MooGoo or ecopure.
BUT in the last couple months, I have discovered the most helpful remedy yet: the Leaky Gut Cure Program by Karen Brimeyer. She proposes that leaky gut can cause fibromyalgia, and that by following her program leaky gut can be healed. (This is a similar theory and treatment to GAPS, but it is a lot cheaper to buy Karen's program than to follow the GAPS program. )The program involves eating certain foods, avoiding certain foods, reducing toxins in your household products and clothing, and following healthy lifestyle practices, such as observing appropriate sleep hygiene and many other things. It also involves supporting your adrenal glands, ridding your body of pathogens and healing the lining of the gut through supplementation. I had read and tried many other similar programs in naturopath books, which only seemed to make me sicker. But this program makes me feel better, not worse, and I can assure you that it is perfectly nutritionally balanced. My pain has decreased (I no longer take pain medications), I can think more clearly, I am sleeping much more soundly and feel refreshed when I awake (rather than stiff, sore and exhausted), I have been feeling a lot more energetic and people are saying that I look really well. And I tell them that it is because I feel really well! I have never felt so alive in all my life!
I cannot give exact details of the program here due to copyright issues, but I will tell you that Karen Brimeyer's program is surprisingly cheap and can be found at www.leakygutcure.com. Anyone with fibromyalgia, chronic fatigue or IBS should google GAPS to see if they think that they suffer from it - and if they think it likely that they do, they should try the leaky gut cure for at least a week. Even if it can not cure everyone with FMS, I am sure that it can help many people with it - so it is definitely worth a try!
I now feel confident that I am healthy enough to continue with my university degree and work a part-time job too!
I hope that at least one person reads my post, tries the leaky gut cure and becomes healthy and energetic!
After reading through all these posts and hearing about the increase of FMS [Fibromyalgia Syndrome] in women and flouride being in many meds, I'm wondering if more women are suffering from FMS because they take/took birth control for many years. I took it for about 15 years. I thought I'd just throw that out there.
My massage therapist suggested I drink alkaline water so what I've read here seems to jive with that and now it all makes more sense. I'm concerned about trying the ACV because I have barrett's esophagus and am supposed to avoid acids... Then I read to add baking soda to change it from an acid to a salt... you all should be chemists.
This site is very interesting. I'm glad I ran across it while doing research for my stepmom who was just diagnosed with lung cancer.
Thanks for all the great info!
Hi. Fibromyalgia for17 years. Single mom with four children. I divorced my abusive husband and have raised my kids alone for over 18 years. When my youngest child was 2 yrs. old I had a hysterectomy. 4-6 months later I was critically ill. I am writing this post after two months of reading every post and tons of questionaires. I am an educated woman and after 6 years of pure hell with doctors, dentists, rheumatologists, counselors, Chiropracters and Psychiatrists I realized that the only way I would ever be well is if I figured it out on my own. I also have 6 sisters with Fibro and they too have been looking for answers for many many years. I am not simply thankful for earthclinic. No, what I am is ecstatic, sad, joyful, relieved and so very hopeful that I am consistently on the verge of tears. My symptoms have tortured me but with four children and little money and just as little emotional support I have been victorious thus far. Because I realize now that I have done the best that I could. I spent years feeling guilty. I thought I was weak. Doctors convinced me that it was Psychosomatic. The horror of Fibro is that others cannot understand. It's too much and too erratic. It doesn't make sense even to me so how would someone without Fibro be able to understand. Thank you, all of you. I am not guilty anymore because all of you have reassured me that I am not alone. I have been hopeful about cures before. In fact my family and even my children find my excitement boring and irritating most times. Most people think I'm nuts because I cant stop looking for answers. The reason: NO ONE realizes how horribly sick I am. I don't really LOOK sick. I laugh. I can walk. I'm not in a wheelchair. I work. I clean. Most people think I'm a Hypochondriac. When I can't function and stay in bed I can't say, it's my Fibromyalgia. I used to say that and felt humiliated by the looks I received. This illness is known as a "Pain Syndrome" what a crock! Chronic Fatigue is known as "being tired all the time". I have said for a long time to the few who would listen, Something has poisoned me. Every single piece of my body, including my brain is in pain. Headaches for days in a row that create nausea and numb my brain. Hands that hurt holding a pen. Eyes burning like they are on fire. Blurry vision. Foot pain that brings tears to my eyes when I walk 1 block. Ears and head itching and aching like something is crawling inside. My neck is so painful ALL the time. I eat well. I am a positive thinker. I have a fulfilling job. I have no car so I walk and ride the bus everywhere. I love life. I love nature. I have educated myself on health and wellness for years. The point that I am making? Fibromyalgia CANNOT be healed as easily or quickly as some have posted. I have had times in the past where healthy living made me feel much better. I am sold on the Flouride connection because I SHOULD be healthy. Something is poisoning me. I have spent 3 weeks researching any and all information on Flouride. I have read the pros and the cons of water fluoridation. The history of Flouride. The case studies of Skeletal Flourosis and even researched the research. I have spent 2 weeks on Teds Borax etc. regimen and I am horribly horribly sick from head to toe. I don't care how long this takes but I won't quit until I am well. For those of you who get better in two days man are you lucky. For those like me Suffer through it. Don't give up. Maybe some of us are more poisoned than others.
I could go on forever but I'll stop now. God bless all of us. I hope this is it because I can't bear to think of any more, especially children going through life with all this pain and sadness. Thank you for earthclinic. Thank God for compassionate human beings.
Fibromyalgia Questionnaire & Results
I was looking at some of the results of your older questionnaires and you had included a question about long-standing viruses. It seems to be missing from current questionnaire.
I have autoimmune, sjogrens, Raynauds and arthristis issues which are worsening. I am also battling shingles and herpes. Many of the older questionaire replies mentioned shingles, epstein Barr, Mono etc. which I think could be a leading cause. Please correct your current questionnaire to include the virus question, or ask about chickenpox and herpes. I think it could be useful info. Thanks, Dot (Sydney)
EC: Thanks for the suggestion, Dot. Can't remember the exact reason why, but we removed that particular question from the fibro questionnaire a couple of years ago. I agree with you, however, and have asked the programmer to add it back into the form.
(Brisbane, Qld, Australia)
(Perth, Western Australia, Australia)
Hello, this is the first time I see this web page, my name is veronica I'm 33 I have SLE lupus, irregular heart beats, rheumatoid arthritis, fibromyalgia as well, I'm on 200mg of plaquinil a day, 20mg qd of prednisone, 90mg of cymbalta, 400mg of lyrica, 16mg of dilodid, 10mg of coumadin..... I want off of all these meds I'm a single mother of 2 I want to see them grow... I'm unable to lose any weight Ive gained alot of weight I weigh 314 lbs, I'm dying here plz help................. Roni
(Hailey, Id, Usa)
(Lakeland, Fl Usa)
Resistant Chronic Fatigue/Fibromyalgia
Helpful news from my doctors office yesterday. I was given info on a retrovirus XMRV showing up in the blood work of those who suffer from CFS and Fibromyalgia. (see link below) The article did not state Fibromyalgia but many who have Fibromyaglia have CFS. My doctor told me in approx. 2 months the blood test should be ready for use. This can be helpful for many who has tried everything with limiting results.
I have a request for help from our posting gurus to help with natural remedies for muting virus. I know BHT has been mention as one. But how much and how often, and are there other remedies?
While researching info for rash I stumbled on the Fibromyalgia questionairre. I haven't been diagnosed with Fibromyalgia but suspect I may have this condition. In November 2007 I had a benign lump removed
from the right breast. At the time I was working an office job 8-5 and packing/cleaning a home in the evenings. I took 2 or 3 days break from the packing after the procedure then back to work. I began to have lower back pain radiating into my legs and attributed it to the increased physical activity and not resting enough. Over the next 5 months I was involved in moving my belongings from the Midwest to Florida and working on the house in Florida, it was very physically demanding. I had surgery for a complete tear in my right rotator cuff, a year later surgery for carpal tunnel in right hand. About 3 months after the rotator surgery I began to experience flu-like pain all over my body and was prescribed a well known medicine for arthritis. It helped but had to be increased eventually. Within a few months the carpal tunnel surfaced and I was prescribed a drug that is most commonly prescribed for Fibromyalgia. The commercials for this drug got my attention, as they address other symptoms I've experienced. It could be a coincidence but the symptoms seemed to start after I had the lump procedure and worsened after the rotator surgery. If I miss taking the arthritis med it's like I have the flu, actually worse, the slightest touch of my skin is excruciating. I want to wean from the second drug because I think it's causing weight gain. I received a lumbar injection yesterday and the Dr. wants me to continue that drug for an undetermined time.
The profiles from the Fibromyalgia questionnaire got my attention with the question about recent surgery. Does there seem to be a connection between surgery and onset of Fibromyalgia? Also I was in the military for eight years, 2 overseas and I can't donate blood due to possible exposure to mad cow disease. I'm 49, I've always been strong and healthy, the last 3 years have taken their toll physically and mentally. I'm a fighter and beginning to feel like a hypochondriac, any advice you can give is welcome.
EC: Fldrifter is referring to our questionnaire on this page: https://www.earthclinic.com/cures/fibromyalgia_studies.html
Jason Uttley's article was very insightful. Thank you from a fibromyalgia sufferer.