Idiopathic Pulmonary Fibrosis: My husband was on Esbriet and had horrible side effects. Couldn't even be in light let alone sun light. Turned his skin reddish purple with horrible itching. Now on Ofev with side effect of diarrhea. I am also giving him 2 tbs of organic cider vinegar in water once a day. Seems to help with the cough and very safe.
Also started him on NAC twice a day. Just started NAC so no improvement yet.
After reading your informtion on different herbal and remedies for Pulmonary Fibrosis, I am willing to share our information to try and help others.
My partner was diagnosed with Idiopathic Pulmonary Fibrosis. Or UPF..The radiologists are not sure which type it is on the catscan and would like him to have a lung biopsy. Which at this time, he is not willing to do. Last November after seeing an M.D., they told him he had Pneumonia (which now the pulmonary doctors say he "never had", but has IPF.. And this November will be a year. 2009
He is taking 2 Chinese herbs, Clear Air (Perilla Fruit) AND Cordyceps PS (Dong Chong Xia Cao) One in the morning and one at night. Also NAC (N-A CETYL-CYSTEINE) 600 MG. one in morn. and one at night.
He perceives that this has improved his breathing, as before he was only able to climb 3 flights of stairs and now can do at least 5 flights of stairs. And the oxygen levels have improved, according to doctors tests.
After reading the testimonils of others on this site and Ted's info, we're interested in pursueing other remidies as well.
Positive thinking is everyones focus. Never giving up!
My husband was diagnosed with UIP (Usual Interstitial Pneumonia) in February 2015. Before that for about 2 years he was losing weight and becoming forgetful. After many doctors visits during nothing could be found wrong with him we ended up with this diagnosis. He went onto medication for 1 month and became so ill that within 2 weeks he could not even write. This is a man who previously weighed 82 kg's down to 69 kg's but still very active. My husband made the decision that he was not going to use this medication ever again as it made him so ill. He got this illness due to dust in his workplace.
I started looking for natural remedies and found the Food Grade Hydrogen Peroxide information. I bought it at 35% volume. (This can turn your skin white and lightly irritated - wash with lots of water - but rather use gloves). I diluted the 35% down to 3 % with distilled water and bought nasal spray containers (threw out the medication and washed the bottles and sprays well). Then I started him with the sprays up to 10 times a day and within 3 days his coughing was nearly gone and his chest better.
Then I started him drinking the 35% at 1 drop 3 times a day in a glass of distilled water and worked up to 15 drops 3 times a day but he started feeling nauseous and we went down to 12 drops again. I would also put 5 ml of the 35% into a humidifier (fill it with water) and put it close to his side of the bed during the night. All of this was good but I wanted more. I also started feeding him 3 meals a day with lots of nice things to entice him to eat more and gave him two protein and bulk shakes a day. Then I started looking for a medical doctor who works with Hydrogen Peroxide and believe it or not I found her. She is excellent. She was very impressed that my husband was already using Food Grade Hydrogen Peroxide and she gave him a very good physical but then did something that I have never seen any medical doctor do before. She took a drop of his blood (through his finger like a diabetic would do to measure his sugar) - put it under a microscope and showed us that his wonderful body had started producing a lot of red blood cells which could grab every drop of oxygen that came in to transport it where needed BUT unfortunately the red blood cells were sticking to each other and this could cause either blood cloths or strokes - so she immediately put him on a protocol which included magnesium and b vitamins and 2% FGHP intravenously. My husband started picking up weight and he has painted the house outside, the roof and works hard in the garden. His breathing is fast 22 breaths per minute (I timed him with a stopwatch during the night while he was sleeping a couple of times). (Ha ha I bet you think that I am mad but I am not just anxiety filled stressed and very very concerned about this wonderful man who I have been married to for nearly 40 years). Unfortunately they have now told us that he has honeycombing of the lungs which is fatal and they (the doctors) see this as end stage. My husband is still working in the garden - very hard - putting in sprayers and sawing off tree limbs very high in the trees etc.
Our wonderful doctor has told us that she cannot cure him but that we will handle everything as it happens. In the meantime he picked up weight to 74.7 kg (during a holiday while he was not working so hard and eating very well as I was around him the whole day with food and shakes). He does drink serrapeptase and vit c and alkanizer and MSM powder and as soon as the serrapeptase is up we will start with quercetin bromelain. In the meantime we have had a discussion where my husband chooses quality of life over quantity and instead of crying (although I am very stressed) we enjoy every day that we have.
I hope that this gives some of you with pulmonary fibrosis new hope and or at least something to follow-up on. I myself have a problem with my chest feeling very tight at times and the 3% spray really really helps. God bless you all. If there is anyone that can give me the name of the gout medication to use I will also let my husband give it a try or if anyone knows of anything that will stop or even turn around the honeycombing it will be very much appreciated.
(Gauteng - South Africa)
(Windsor, Ontario, Canada)
(El Paso, Tx)
(El Cajon, California)
Food Grade Hydrogen Peroxide
Pulmonary Fibrosis. For the past 11 days I have been taken 35% up to 75 drops daily. My lungs are in the process of being cured. my ears are begining to open once again. My chest is beginning to feel almost in order once again. Amen! I have additional energy, breathing is coming back in short spans, yet it is coming back... The Doctors reports as of 2 weeks back is Cancer in the Lung... Yet, I mentioned the product to him, and he made another apointment for the 31st of this month. I will let you know.
(Dallas, Tx 75243)
(Las Vegas, Nv)
(Ft.lauderdale, Florida. Usa)
(Homosassa, Fl. Usa)
What do you know about vilac plus and where can it be purchased. Does it work for pulmonary fibrosis?
(Houston, Tx, Us)
In the herbs dept for Lung Fibrosis is Hawthorn, Mullein, Gotu Kola, Comfrey or Allantoin, Schizzandra, and Astragalus.
I suffered from tuberculosis in the lungs. Was not detected in my spit but in the fluid taken out by biopsies... It was in 2007. I finished the course of antibiotics. Completely cured.. In 2009 I had a baby. No repeats even in hormonal change... I have scar in my lungs.. Is there anything that can make it disappear? I read about hydrogen peroxide... But I don't know how to consume it.. What dose? Please. Help me cause I am travelling to the Gulf for employment.
I was diagnosed with IPF 2 1/2 years ago. My very experienced pulmonologist said I would be lucky to make it 5 years. I am a chiropractor and the pulmonologist said it probably started from 40 yrs exposure to xray developing chemical. I'm not convinced of that, but I know I have IPF. I am in a unique position as that I utilize a Class IV laser in my office. I began using it on myself as soon as I was diagnosed. I returned to the pulmonologist a month ago after my third CT scan. There has been no additional fibrous tissue in the lungs in the 2 12 years since starting laser therapy, and my pulmonary function tests have actually improved each time, having had 3 total. My doctor said he has never seen this before in his entire career, where the IPF became static and function improved. I refused prednisone, Esbriet, etc. though I do use an inhaler on occasion.
The laser reduces inflammation with a photochemical process. When treating musculoskeletal problems it heals tissue faster and with less scar tissue. It could be that it is keeping more scarring from taking place, but it is not actually removing it. I still have a cough, but much less frequent and severe. I'm still working and playing hard though looking at retirement fairly soon. I'm 64. The dose with the laser I use is 10 watts, 4 minutes on the front of the chest and 4 on the back for a total of 4800 joules. I started with twice a week for the first month and then went to one treatment per week. I know this is working for me and I feel like I got my future back. If I don't get worse than I am, I can live very healthy for a very long time. My goal is 20 more years. If this post helps anyone else with this horrible disease I will be thrilled. It's wonderful to have hope. Dr Hall
(Toronto, On Canada)
(Las Vegas, Nv)
(New Orleans, Louisiana)
(Maple Ridge, Bc)
(Vishakapatnam - India)
I didn't mention it in the new COPD post on EC, but while melatonin is useful for COPD, it is also useful for Idiopathic Pulmonary Fibrosis (IPF)! Here is a link to the new COPD article :
Here are links to studies of melatonin and IPF :
Melatonin is not a one trick pony and has shown efficacy in multiple health issues, yet doctors seem to mainly prescribe it as a sleep aid! If melatonin could become a patented prescription drug, it would be a blockbuster drug for what ever drug company held such a patent!
There have been quite a few posts on EC about people looking for help for IPF, but I have not seen any posts discussing melatonin and IPF.
Here are some fairly recent studies suggesting that melatonin may offer some help in this area. Melatonin has a very good safety profile and is naturally produced by the human body suggesting a lower potential for adverse reactions. Melatonin is also readily available here in the states and is fairly inexpensive.
Given the severe nature of IPF, it may be beneficial to look at as many options as possible and determine their relevance for your particular situation!
Hello. I am wondering if anyone might know of anything to help my grandfather whom is 77 years old and suffers from Pulmonary Arterial Hypertension as well as from Idiopathic Pulmonary Fibrosis. For the IPF, we have been doing the Hydrogen Peroxide inhalation method, along with colloidal silver, several different supplements, (such as seaweed, vitamin C, collagen, etc. to name a few) along with his prescription medications that are prescribed to him by his lung doctor, and of course he is also following these treatments with a healthy organic food diet along with exercise. Seems to be working well for him as far as treating the IPF.
My reason for this post is to ask if anyone is aware of anything we could be doing to treat the PAH....As it seems to be the more threatening or problematic of the two diseases. His heart doctor has suggested he use Sildenafil, however it's been about a year now that we've been waiting on the doctors and insurance to get everything approved for him so that he can finally get this medication, and still don't have the authorization yet. PLEASE HELP!! My grandfather is a wonderful man and we need help to fight this. We are about four years post diagnosis and times ticking. I have faith that someone somewhere might know something, anything, that can help with fighting and treating this PAH.
Thank you. God bless.
My response to all the people whose loved ones are having lung issues.
Listed below are some remedies,
Exposure to sunlight.Body Massage.Yoga.Meditation.Castor oil packs.
Turmeric taken with oil and pepper.
Aloe Vera.Pineapple.Cod Liver Oil, Fenugreek, Tulsi, Figs, Liccorice, Onions.Garlic,
Ginger.Black Pepper.Ginseng.Ajwain seeds.Star Anise.
Quercetin-is a flavanoid found in fruits and vegetables.Quercetin supplements can be purchased online.
Nigella Sativa(Kalonji or Black seeds).
Honey.Vitamin C.Vitamin A.Zinc.
6-8 glasses of spring water.
NAC- this is a supplement. it helps to produce Glutathione, a master antioxidant in the body..It can be purchased online from Amazon or IHerb.
Hi, My mother - 70 years of age has been diagnosed with IPF (pulmonary fibrosis) - I saw 2 type of cures on your website.
a) Aloe Vera and Apple Cider Vinegar
b) Hydrogen peroxide.
Can these be done simultaneously? Secondly, do they have any side effects?
(Kirishi, Leningrad, Russia)
My wife was recently diagnosed with IPF. We are currently doing a series of Hydrogen peroxide IVs and Taking Serrapeptase,MSC and COQ10. She is also on nightly Oxygen. I am concerned that the oxygen may become habitual and may even be a detriment. We are hoping for a cure or at least a stop in progression. What do you recomend? Thanks Jack.
IPF: After a triple coronary bypass about 2011 about 3 months later I noticed a continuing discomfort around my upper left side of my chest. A referral by my cardiologist to a pulmonary specialist discovered my IPF. He prescribed an albuterol compound for my nebulizer and to sleep all night with oxygen. By my second lung function text it showed a rapid deterioration in my ability to process ambient air. The Dr. arranged for me to receive a new medication called Esbriet (54 mg daily)with little results.
I located a holistic doctor who is a board certified doctor of internal medicine with 29 years of experience caring for mostly refinery workers which fit my life profile perfectly. She put me on 1800 mg of Nac daily and later Nac liquid for my nebulizer. My last lung function test after about 3 months on this protocol showed about 7% improvement across the board, which pleased her greatly. She recommended that I consider 35% food grade hydrogen peroxide intravenously 2 times a week for the next 10 weeks. I have located someone who will do this and I will begin this treatment as soon as I save up the money. I'l let ya'll know what happens. I'll see what my JESUS wants, (amen)