Acupuncture
I have been experiencing hand tremors in one hand for a couple of years. My handwriting was terrible as a result of these tremors. So I made a list of my little aches and pains and went to an acupuncturist as an experiment. I knew this wasn't parkinson's, but when I returned home, my tremor was gone. I did a little research today to find some interesting articles. It attacks parkinson's in several ways, so I suggest anyone with the disease do a little research.
(Chicago, Il)
10/05/2014
Hi Ladyliza (Los Angeles, CA), I am 45 year old male. I just started having a constant twitch in my left pinky finger. I am right handed. I am panicked about the possibility of PD or ALS. I wen to chiropractor a few days ago and it "could" be nerve issues. I am not convinced of the nerve answer since, the pinky has been twitching at rest consistently throughout the entire day and night. I do notice when I do an activity, I don't notice the twitching as much, but I am not sure if that is just due to me not paying attention. I was wondering if you or people with PD or ALS have had the pinky twitch like I described. I am healthy and a realist, so I wish I could accept the nerve thing, but reading about Michael J Fox article about his left pinky twitching and then he got PD, has me very nervous. I am very active and have 2 young children, so any feedback on what I should do prior to going to the Dr would be appreciated. Thank you, Andy
Acupuncture, Detox Herbal Remedies
I'm treating my Parkinson's disease with herbals, exercise, & have chosen TCM ACUPUNCTURE (Traditional Chinese Medicine) over traditional DBS;
After 4 treatments, I can now FAST WALK a block without the walker.
I also added Calcium Edonite Clay to detox from a plant-sourced Vit C which contains "ESSENTIAL TRACE ELEMENTS"--unlike my usual fastidiousness in Research, I 'paid no mind' to what the TRACE ELEMENTS are! I progressed rapidly with ~ 4 months use: TRACE MINERAL ELEMENTS, aka: UDOMS ARE DEADLY FOR P.D. PATIENTS!! ANCIENT HEAVY METALS washed up from the sea!!! Just what P.D. does NOT WANT! Within 3 days of detox (metals, pollutants, herbicides & Pesticides, fluoride from tap water treatment, etc).
Note: I called the Nat'l Parkinsons Foundation: rep said she had never heard of any detox!!
(Mount Vernon NY)
06/25/2022
Jason,
If you haven't already, you might consider looking into vitamin B1/Thiamine at high dose. It doesn't work for every PwP, but it is helpful for the majority, but it can be difficult to pinpoint the correct dose. It can be a process of trial and error.
I can make another recommendation or two, but you didn't give much info in terms of her symptoms. It would be helpful to know that information. Btw, she is quite young to be diagnosed with PD as the most predictive factor for PD is age. What method did her neurologist use to diagnose her?
At just 3 pills of levodopa per day, I am going to guess that her symptoms are very mild at this point.
Art
(Florida)
07/21/2022
Why not try mucuna pruriens & amino acids. Acupuncture. And have a “functional medicine”doctor do testing like the doctors don't test.stool samples. 6(they send the labs away ) ususalluY you have to pay out of pocket. Maybe do an oxygen breath test. Hyperbaric oxygen chamber.
AEP
Just a plug for my favorite help regarding Parkinson's Disease. I have found in at least three cases I know of personally, that the use of AEP has slowed or stopped the progress of the disease. Please take a look at the on line article by googling, "Nutrition Review... Calcium AEP Membrane Integrity Factor" which talks of the many benefits of AEP. Lately AEP has also been shown to help PD. AEP can be found on line but I rarely can find it in health food stores. I first saw the benefits from reading Dr. Adkins' book, Vita Nutrients. He used it in IV form with his MS patients. I get mine from Wellness Resources.
(Arcadia, Ca)
09/21/2020
(CT)
09/22/2020
Hi Mary,
Found this for you: AEP is Calcium AEP (Cal 2-AEP), a unique type of calcium that helps nourish nerves and cell membranes.*
Here's one product on Amazon.
https://www.amazon.com/Calcium-Nerves-Membranes-Capsule-Capsules/dp/B003VLENHQ
(Arcadia, CA)
02/05/2023
(Joelton, Tn)
05/06/2019
Hi Karen,
Go look up Kombucha mushroom, which isn't a mushroom (more akin to the mother in apple cider vinegar).
Dr. Josh Axe (chiropracter) has a good article on his site. First heard of this one as a tea to take for cancer - actually you are fermenting your regular tea, which produces the probiotics (good guys in your gut). If you can't find someone locally with mushrooms to give away, you can go on line and order one. Another article you might want to read is an article on Dr. Bradstreet, Dr. Ncholas Gonzales & another whose name I do not remember.
These 3 doctors are no longer with us as all 3 were collaborating on a study. Finding that their autistic and their cancer patients all had a foreign substance in their blood called nagalase. First heard of nagalase in Ty Bollinger's Quest for Cures for cancer,.
A female doctor in another country was telling Ty they had found all their cancer patients had nagalase in their blood and they were treating them with probiotics called Bravo and it was working and they knew it was because the nagalase level was dropping. Apparently they found how the nagalase disabled the immune system before these 3 doctors started their research because they were treating their autism & cancer patients with GcMaf, a messenger that one part of our immune systems transmits to another area of the immunne system to trigber the production of macrophages or large white blood cells that are also called the pac men of our immune system because they gobble up the invading pathogens which make us sick. Not sure what the G is for but suspect it is Globulin & and c denoted the type of globulin, The Maf is macrophage activating factor.
There was one one lab on our planet testing for nagalase and only one source of GcMaf which were both located close together, but not in the USA or South America. These 3 doctors were seeing 100% cures of various kinds of cancer and 85% cure with improvement in the other 15% of their autistic patients, before they got raided by the FDA, who confiscated all their information, their data on their research & all their charts.
Dr. Bradstreet suddenly disappeared the day his clinic was raided. His body was found floating in a river 3 days later with a bullet wound to the chest & declared a suicide with no investigation whatever. His family, friends & peers said no way did he commit suicide & IMO no way did this man who had become outspoken against vaccines when his own 4 year old son developed autism. No way would this man have killed himself when he knew something was helping his son and there was any chance of getting more of it. No way could he have known that their equivalent of our FDA had raided the only lab testing for nagalase and the only source of GcMaf had also been raided and destroyed about the same time these 3 doctors' clinics were raided & destroyed,
Benserazide for Medication Rashes
My mother was prescribed too much Carbidopa / Levodopa a.k.a. Sinemet at the outset of her Parkinson's diagnosis and she developed an allergic reaction to it that resulted in terrible rashes with debilitating itchy hives all over her body.
After many efforts to find solutions, my sister solved the allergy by having her take Benserazide / Levodopa a.k.a. Madopar [sold in Europe], which cleared up the rashes while preserving the long-term benefits of a parkinson's medication.
Sometimes a slightly different take on a conventional approach can make a huge difference.
Cholesterol
I have been hearing a lot lately about cholesterol lowering drugs, and the link to alzhiemers . Don't you think, it could also be a factor in Parkinsons disease??? The brain is mostly cholesterol anyway. Not sure, but in 80-90% range. I would bet a lot of Parkinsons patients take these drugs. Just a theory. God Bless all who are looking for answers and Help. He has never failed to help me.
(Texas)
12/17/2018
Hello Max58j. I am beginning to show signs of PD more and more at age 62. I have never had high cholesterol, but my grandmother and mother both had PD. They also did not have high cholesterol. I always thought there was a genetic link, but after reading on here, it was a vitamin/supplement that we needed (perhaps).
CoQ10
I'd urge everyone to look into CoQ10. This research study gave 1200mg of CoQ10 per day to those with early Parkinson's and showed evidence of slowing functional decline: https://www.ncbi.nlm.nih.gov/pubmed/12374491
Drug Free
If you've never heard of Howard Shifke and his site Fighting Parkinson's Drug Free, I recommend you visit it.
Hydrogen Peroxide
I have recently been diagnosed with Parkinson's. Has anyone used the HP therapy successfully with PD. Another site claims success with it, but before jumping in I wanted to hear from someone that had used or is using it successfully.
Thanks
(Brantford, Ontario)
12/30/2011
fg hydrogen peroxide to 3% have done too many good to me. i been using it for the last 16 months. i have cured edema, bronchitis, skin cancer, curb niel, easy breathing. all that happened by hydrogen peroxide.
now the way how to use it soak a cotton swab in %3 hydrogen peroxide and smell it with breath 6 times. 4 times a day. by the same cotton swab clean your ear. for skin cancer soak the wound 10 to 12 times a day.
Magnetic Field Therapy
Hello, Does anyone have any experience with magnetic field therapy and Parkinson's disease?
Thanks,
Abigail
(Denver, Co, Usa)
05/10/2010
There currently is a research study underway at a private facility here in Denver to attempt to determine the effectiveness or magnetic therapy.The participant goes in for approximately 1 hour per day, 3 days per week, if I recall correctly.
(Amsterdam, Nh)
07/09/2012
We have had this experience with Parkinson and Multiwave oscillation. Very diappointing because the symptoms became rapidly worse after treatments! I think the patient I work with might have responded much better if he would detox from the many years of chemical drugs in his body before treatment. The oscillation might stir up too many toxins. We are now on the way to start up a very slow delicate detox process. Magnesium therapy seems to help some. We are studying vitamin D3 as a possibility. I would love to hear from others on this subject!
Malassezia Yeast
I believe Malassezia yeast may be the actual/most common cause of Parkinson's, in combination with environmental & virulence factors that favor its growth and aggressiveness. If so, this has definite implications for prevention & treatment.
Consider the following points:
(a) Malassezia is an unusual yeast in that it is lipophilic (meaning it feeds on lipids rather than sugars/starches like candida). AND it seeks melanin & infects melanocytes. The dopaminergic neurons in the brain -- the area affected by PD -- contains high levels of neuromelanin. Neuromelanin in turn has an affinity for lipids and for iron, both of which favor the growth of this yeast. Note: because it feeds on lipids rather than sugars, it will NOT grow in the usual fungal cultures performed in hospitals (they use sugar/starches in the medium, no lipids). So it is "under the radar" in the sense that there seems to be little testing ever done for it.
(b) Malassezia is known to infect melanocytes in the skin... and I suspect it is involved in causing skin cancer. If so, this would explain the higher rate of skin cancer found in Parkinson's. Also, because it is in the skin (IN, not only "on"), it could hypothetically be pushed into the bloodstream or spinal fluid by medical procedures like injections or spinal taps.
(c) L-DOPA is a precursor to MELANIN, so it makes sense that Malassezia might take it up ... thereby reducing the amount available for normal brain functioning. Low L-DOPA is a key feature of PD.
(d) Acetaldehyde -- produced by yeast -- converts dopamine into a neurotoxin called salsalinol ... which may cause the eventual aptosis of dopaminergic neurons. It also promotes increased iron content and the release of iron, both of which would favor fungal growth.
(e) Malassezia is extremely common and extremely slow-growing. It may be that people have it for decades or a lifetime. I speculate that risk factors for developing PD might include: prolonged use of antibiotics (esp. intravenous) or steroids/immunosuppressants, depleted flora from any other source including packaged foods which contain additives or may be irradiated to remove flora, accumulative lifetime exposure to UV radiation, including sunlight, medical procedures like CT scans et al; eating a lot of oleic acid (vegetable oils including olive oil are the primary culprit here, but also animal fats), high cholesterol/triglycerides, PRN lipid therapy, taking Vit D or iron, use of certain psych meds like antipsychotics that increase lipids. Meds that cause photosensitivity (= less resistance to UV radiation) might be another area of concern.
If my hypothesis is correct, there are definite implications for prevention steps and maybe also treatment. Some possibilities that come to mind are increasing dietary sulfur (antifungal), increasing "good" flora, avoidance of risk factors including dietary veg. oil/animal fat, etc. Based on my reading, buckwheat also contains an antifungal compound. Whether such steps would have an effect, I don't know. More research is clearly needed.
(Northeast, US)
12/10/2014
Just wanted to add: if there are other yeasts that have similar characteristics (melanin-seeking, slow growing, lipophilic), they could also be potential causes. It may not be exclusively Malassezia that can cause Parkinson's.
Some ways that Malassezia or other fungi could potentially get into the brain are:
- medical procedures/treatments, such as surgery w/ anesthesia, CT scans of the head (radiation can affect the blood brain barrier temporarily), use of IV drugs (legal or illegal) esp. IV antibiotics or IV lipids;
- spinal tap: if Malassezia is present in (not just on) the skin, a tap could theoretically push yeast into the CSF;
- presence of other infections known to have the ability to cross the blood brain barrier, such as Lyme disease
Melatonin
For those who may remember, I have previously reported the benefits of high dose vitamin B-1 /Thiamine HCL for Parkinson's disease.
Now I would like to talk about one of my favorite supplements, melatonin, that a recent randomized, double-blind, placebo-controlled study showed was beneficial for PD patients after just 12 weeks of supplementing only 10 milligrams per night! Yes, finally, a quality human study confirming that melatonin is beneficial for people with PD.
This study showed multiple benefits in patients that include the following. Using standard testing, melatonin showed improvement in anxiety, depression, total antioxidant capacity, increased glutathione, and improved UPDRS Part 1 test results! Melatonin also significantly lowered the inflammatory marker, hs-CRP, or high sensitivity C-Reactive Protein and inflammatory TNF-a while lowering LDL cholesterol and improving insulin resistance! Some of these improvements are suggestive of the idea that a more extensive study and or higher dosing may produce even better results because many of these improvements imply a reduction in total oxidative stress and oxidative stress is one of the most damaging factors in PD that destroys dopaminergic neurons and other cells in the substantia nigra of the brain.
To say I am excited that this study would be an understatement! Studies showing benefits like these in humans with PD from a single supplement are almost non-existent. Hopefully, they will follow through on this study with similar studies using pharmacological dosing of melatonin and more extended length studies.
While this study is very good and confirmed that melatonin can be beneficial in people with PD, it leaves many unanswered questions such as what would have happened if the study had been 24 weeks long instead of 12 as 12 weeks is very short for a study like this? Would the benefits range increase, would the benefits stay the same or increase the level of improvement seen? What would have happened at higher dosing?
Remember that Dr. Shallenberger is using dosing that is as much as 36 times higher than what was used in this study in some of his patients, and he gives all of his patients 180 mg of melatonin per night in the form of three 60 mg capsules in the evening. He considers this a preventative dose.
Overall, I feel this study has opened a door that has been closed for too long, and hopefully, there will be follow up studies to answer these questions! Here is a link to that very recent study abstract :
https://pubmed.ncbi.nlm.nih.gov/32417629/
Art
(Boise)
07/07/2020
Hi Art, thanks for sharing such amazing, wonderful and valuable knowledge about supplementing with melatonin.
A bit off topic ... but are you aware of melatonin increasing the bodies need for other nutrients such as vitamin D, etc? Thank you!
Msfmomma,
Melatonin is lowered by high dose vitamin D, but raising the melatonin level in conjunction with the vitamin D level is synergistic in terms of fighting certain virus and disease such as Covid-19 and PD. Vitamin D has shown benefit for PD in multiple studies and can act as an antioxidant also, though not nearly as potently as melatonin which can neutralize up to 10 oxygen radicals compared to other antioxidants that can reduce only one oxygen radical.
In PD, melatonin is elevated in the blood as the body's attempt to raise its total antioxidant capacity which is depleted by PD and melatonin is capable of doing that if there is enough of it, but the body is only able to raise melatonin so high and consequently the bodies own antioxidant system is not able to completely come back into the normal range as reflected in studies which show that glutathione is lower or insufficient in PD patients.
The study link in the original post shows that just 10 mg of melatonin every night is able to raise glutathione levels up as well as the total antioxidant capacity. This is a very important activity in PD as oxygen radicals and peroxynitrite are at elevated levels and both destroy dopaminergic neurons and other brain cells in the substantia nigra specifically and the brain in general.
Melatonin is a potent scavenger of peroxynitrite and oxygen radicals and an inhibitor of NADPH Oxidase which is a promoter of peroxynitrite. What this all shows is that oxidative stress, peroxynitrite and other oxidants including H202are doing a considerable amount of cellular damage and melatonin is able to ameliorate some of this damage with just 10 mg/night. At a minimum the available literature suggests that melatonin may slow disease progression as well as ameliorate some of the many symptoms of PD through its multitude of protective actions in the body including acting in a potent antiinflammatory capacity and again this is important because the excessive oxidant activity which raises inflammatory markers and levels in patients with PD.
Melatonin has also shown synergy with other antioxidants such as vitamin C, D and E and supplements such as NAC, ALA and Quercetin to name a few.
Melatonin is a unique and amazing molecule that is the most potent antioxidant in the human body!
Art
(Thousand Islands)
10/15/2020
So grateful to read ideas on treating/avoiding Parkinsons! My mother had it and it is something I'll never forget! My question on melatonin is, I take one 2.5mg gummy per night, if I take anymore, I have an opposite effect and end up wide awake! I really want to increase my dosage but am afraid of the awful effect! Any ideas?
Methylene Blue
To Whom It May Concern,
I have a mother who is in her early 70's and has been diagnosed with Parkinson's. She fell ill with a h-pylori infection and almost died. The ER doctor put her on some strong anti biotics and she is recovering from the pylori but when we took her in she was shuffling badly, slight arm tremors and a mask like face. I've tried to get her to eat better, avoiding foods with lots of sugar, pesticides etc but she's used to her diet and is struggling. Regardless of this she has still shown signs of improvement but is complaining of weakness, stiffness and a feeling that she can't move at times when she wants to. I have read through the threads on this site about the Methylene Blue. I cannot understand the dilution. I have no way to since I am dyslexic with numbers. I have personally been taking the MB 1% diluted by taking one tspn full of MB and diluting it with 9 tspns of water. I take 5 -7 drops in the morning in 6 ounces of water with a 1/4 tspn of vit c powder and a 1/2 tspn of baking soda, sometimes a full tspn.
My questions are:
1. am I even close to the correct dilution and please don't tell me in equations because I can't understand them. What I do understand is what I've described, one teaspoon MB and 9 teaspoons of water.
2. I need to have specific information on how to give the MB to my mother and in which combination, taurine/potassium (which I don't think that she can have because of her high blood pressure)/baking soda? etc. As soon as possible please?
She weighs approximately 140 lbs, she's 5ft 2 inches tall. She's on medications, metoprolol and aspirin. I have spoken with a pharmacist who has said that there are no contraindications with her meds and the MB.
Please, she's feeling the effects and I know she's very frightened, the docs seem to think that the PD was set off by a mild stroke that she had just after my dad died almost 3 years ago. He died of institutionalized pnuemonia/parkinsons. She is not taking any parkinson's medication at this time.
I know that you all get a lot of emails asking for advice so I am not asking to be "special" I am just asking for clear concise and reliable answers as soon as you are able to. Thank you for your time and experience. I look forward to hearing from you soon.
Best regards,Yaocihuatl
(Nh, Usa)
08/15/2016
Sear Yaocihuatl,
May we suggest you read two articles https://betweentwopines.wordpress.com/2012/05/21/magnesium-chloride/ If the URL does not transmit, please look up"Father Jose Chorr magnesium chloride two pines". Also http://www.naturesapproved.com/PDFDocs/k/KXKLL0RMMTL59MR3VAJ033PEXR47DKP6.PDF If the URL does not transmit, please look up "Health from the Ocean Deep Acres USA". We recommend your mother use liquid sea minerals, such as Aussie Trace Minerals http://seamineral.com/ (order in your state, Colo.; also available from other web sites); rather than the powder that Father Chorr used. The powder in the U.S. at least, appears to be sourced from the Great Salt Lake, which apparently may contain heavy metals.
Let your mother drink 1 teaspoon liquid sea minerals in a glass of water twice a day, beginning with once a day, as Father Chorr suggested, and increasing after a few days. If the stools are too loose, decrease to 1/2 tsp. once a day and increase more gradually.
Let your mother avoid eating meat; the most success with Parkinson's is with the vegetarian (no eggs) or vegan diet. Just be sure to include at least 2 tablespoons freshly ground flax seed every day in the diet for Omega 3 essential fatty acids, and drink extra water. We wish you and mother all success.
Methylene Blue and Vitamin C
I got some methylene BLUE (we're talking blue) from a pet store--the only place I could find it. It says not for medicinal, human or animal use--but I took a couple drops anyway because they always say that stuff. Is there a different kind I should have gotten? Ted said it was the stuff for fish tanks so that's what I got. I thought I should maybe check before I took any more. If someone could email me directly I would appreciate it. I don't think it would take much of the stuff before you could give the Blue Men a run for their money--or at least a Smurf. If it matters, I forgot to mention I got it for Parkinson's.
(Fort Worth, Texas)
05/15/2009
Dear Shel,
The methylene blue I used was from a fish aquarium store. It is usually 1% concentration. Ted encourages a dilution to 0.1%. When I first gave it to my father with the amazing results, I gave it with sodium ascorbate. It really worked to increase his energy and initiation of action. He is still taking it and it still helps. Other supplements have also helped him a great deal, like transdermal magnesium oil. This stuff has changed his life very much for the better. It has helped a great deal in reducing stiffness. What has harmed my father is bulk magnesium citrate powder from ____.com. I ordered many bulk supplements from ___ ___. I was told to give to my father "the more the better" of magnesium citrate. I did. But what I have learned, nearly too late, is that the white powder that was labeled magnesium citrate does not have the solubility characteristics and other typical characteristics of magnesium citrate at all. It has the characteristics of possibly calcium carbonate. I can pay $300.00 to have it tested at an analytical lab, but I am not able to pay for that at this time. I will do it later. The main thing is that be sure to learn from my mistake. It caused a stroke in my father. The lesson is to buy from a reputable bulk supplement suppler who actually tests the supplements that come from China. Also I think it would be prudent for us to learn to test our own purchases even if crudely by checking for the known properties of each substance, like ph and solubility. ____, the owner of ___ ____, told me that neither he nor his supplier out of Georgia test the bulk supplements they receive from China and then sell to us.
So keep up the methylene blue because it may be very helpful to you. Ted told me that it also may build up in the body's system somewhat over time. So you will need to work with the dose and be sure to take it with sodium ascorbate. It seems to be something needed together with the methylene blue. Also if you add the methylene blue to sodium ascorbate in water, the blue color disappears.
I hope this is helpful to you. I'll pass on some words given to me by a young lady who observed me working with my father. Don't give up. Never give up.
Jane
(Pleasanton, Ca 94566 U S A)
01/25/2010
Also if you add the methylene blue to sodium ascorbate in water, the blue color disappears. How much of this do you mix???
(San Fernando, La Union, Philippines)
01/26/2010
Hi John...I have been using Methylene Blue(MB) plus Vit C for a while now.
I bought the 1% MB at a hardware shop in the aquatics section. Then I converted the 1% MB to 0.1% MB by adding 1 X part by volume of MB to a dropper bottle, then I added 9 parts by volume of water as well. I just use a simple bottle cap for this -- where 1 part by volume equals one cap full. This will give you 0.1% MB. I put this mixture into a suitable bottle with a dropper top.
When I need it, I take one full glass of water with 2 grms Ascorbic Acid completely crushed and dissolved in it and add just one or two drops of the 0.1% MB to it. I take this twice a day if I need the energy or if I feel a cold or flu coming one. Gives you alot of energy and significantly boosts the immune system.
(Anchorage, Alaska)
03/28/2010
Hi Jane, I am interested in making my own transdermal magnesium for head tremors. I have actually tested positive for Lyme disease and Lyme apparently consumes the Magnesium in the body. Have you considered having your dad tested for the presence of Borrelia Burgdorferi. Lyme can cause Parkinson's symptoms. I in fact believe that Michael J Fox, may be Lyme positive. He was apparently bitten by a tick and was put on a 6 week course of antibiotic therapy. He then later on developed Parkinsons. Most of us in the Lyme community know that Lyme is rarely eradicated with a 6 week course of Antibiotics. I also know that heavy metal poisoning seems to go hand in hand with a lot of these neurological symptoms. Therefore I am concerned about the claim by Ancient minerals that many of the bulk pharmaceutical grade Magnesium Chloride has lead and mercury. I have ordered some Magnesium for fish tanks off of Ebay and bought a test kit for home use and will test it for lead content. I also wrote the supplier to find out if they have a chemical analysis of the product. If it is shipped from China, I am doubting that it will. I also contacted an independent lab to find out how much testing for Mercury content would cost as I have not been able to find a home test kit for Mercury. I am hopeful that the transdermal Magnesium will be a big help. I can't afford to pay the prices that some of the companies that market the Mag Oil charges.
Thanks,
Susan
Methylene Blue and Vitamin C
Methylene blue can be purchased in two forms: pre-mixed with other elements or in a 'pure' state. ... What form is referred to by 1.0% and 9.1%? ... When adding 100 cc of methylene blue to 900 cc of water, what form of methylene blue is used - the pre-mixed or the 'pure'? ... How much Vit C is taken together with methylene blue? ... I'm asking because I would like to try methylene blue and vitamin C for my Parkinson's. ... I am 78 years old, diagnosed as having Parkinson's in 1998.
(Charlotte North Carolina)
08/15/2016
Methylene Blue and Vitamin C
Hi Ted,
I am amazed that after one and a half days of taking methylene blue with vitamin c my 85 year old dad, who has Parkinson's, initiated transfer to his wheelchair and needed much less assistance than yesterday. Yesterday he was not weight bearing much. This morning I did not pick him up to get in his chair, just guided him. I broke out into laughter of happiness!
Thank you a million for the information you provide on earthclinic. I love seeing the results!
Jane
Dear Jane:
The methylene blue works, however, continual use of low dose is very helpful. However if it is discontinued, at least in the beginning may weaken the energy level, but further dose will allow the person to recover. Methylene blue is considered a super antioxidant for the mitochrondria. The best that I have seen so far. The brain is the highest metabolic rate in the body and hence is helpful with methylene blue since it increases energy level to normal levels through mitochrondria support. Taurine supplements and some potassium bicarbonate with baking soda are also helpful and supportive to this remedy too.
It's often best used as dose I have mentioned. I liked it so much I have since added methylene blue to my Emergency Aid kit as posted previously, although it remains I still needed some tweaking. Low levels of brain metabolism is what I believe to be causing the Parkinson's disease, and I have found the methylene blue to be helpful.
Thank you for the feedback!
Ted
(USA)
01/09/2009
Hi Ted! I just accidently sent my last message before I was ready. I have so much to learn! I have not yet seen your Emergency Aid kit. How much Taurine supplements should I give? I have baking soda and I'm not exactly sure if I have potassium bicarbonate. I have potassium supplements. Is potassium bicarbonate a household product?
Thank you! Thank you! For your help.
Dear Jane:
A taurine supplements dose averages about 1000 mg taken twice a day, with plenty of water, such as 1/2 glass of water. The taurine has a protective effect on the brain. As to alkalization, usually the preferred remedy.
As to your questions of potassium bicarbonate or potassium citrate or tripotassium citrate. These aren't usually available in most household items, but maybe available or found in electrolyte drinks formulation or found in certain potassium supplements found. When taking potassium, a baking soda is always taken. The dose for potassium is small, usually 1/8 or 1/4 teaspoon once a day while a baking soda may require just 1/2 teaspoon and a low dose to help stabilize the pH. Over the long term, usually about a week, an alkaline blood leads for the brain to recover faster too. Often it's the acidity of the brain that cause some degeneration of the brain and alkalinity provides protection. The rationale is a simple one: brain is a highly metabolic organ and hence is most acidic and needs something to reduce the excess acidity coming from carbon dioxide when the brain cells metabolise. This is a mild remedy.
A carnosine 500 mg x 2 is also seen to be helpful too, but aspartame and all artificial sugar must be avoided as those are most damaging to the brain. There are some unbelievers who think aspartame is safe, to which I always suggest to check for presence of blood methanol and formaldehyde after ingestion and it's always present in order to settle the aspartame controversy. Aspartame are also found in chewing gums and is also not helpful.
Ted
(Belfast, Northern Ireland)
02/09/2009
Hi Jane, can you tell me how your father is getting on with the methylene blue? Is it proving helpful. A relative of mine has just been diagnosed with Parkinson's. As yet they only have tremors in the hands and I would love to get something that prevents it getting any worse, or at least slows down its progression. Any updates would be appreciated. Thanks, Mary.
(Fort Worth, Texas)
02/15/2009
Dear Mary from Northern Ireland,Yes my father is getting along well and the Parkinson's symptoms are definitely diminished since taking the methelyne blue regularly. I am very encouraged about this and I have specific reason to suspect that the Parkinson's is at least partially fungal related in my father. He is also taking the alkaline drink with sodium carbonate, bicarbonate of soda, potassium citrate, taurine, carnosine. The alkaline drink two and sometimes three times a day is noticeably helpful as well. He has sleep apnea which is problematic at times. The alkaline drink seems to help with this some as does sleeping on his side and not on his back. I would hate to be without any of these things because I have noticed increased mental focus for my dad and increased energy. At first I believe he was taking too much methylene blue, a drop of 1% solution three times daily. He is now taking a drop or two of 0.1% two to three times daily depending on our schedules. The higher concentration may have temporarily caused a tremor that wasn't there before. His symptoms did not initiate with the tremor, but with the mask like face and a shuffling gate. Now his face is like his old self with his smile and usual expressions. He has his sense of humor and his personality again. Also I believe that magnesium is helping him very much too.Not magnesium aspartate! Also I have since learned that our eating food with msg may have correlated with a little setback he had. So now we are much more careful to avoid all msg and excitotoxins that are sometimes in mineral supplements. He takes carbidopa/levidopa three times daily as well.
EC: Thank you for the update, Jane!
(South Bend, IN)
02/17/2009
Jane, You should have your father's vitamin D level checked too:
Low Vitamin D Level Tied to Parkinson's Study: Vitamin D Insufficiency Often Accompanies Parkinson's Disease
By Miranda Hitti
http://www.webmd.com/parkinsons-disease/news/20081013/low-vitamin-d-level-tied-to-parkinsons
WebMD Health NewsReviewed by Louise Chang, MDOct. 13, 2008 -- Parkinson's disease patients may be particularly likely to have low blood levels of vitamin D.
Researchers report that news in the Archives of Neurology.
They studied 100 Parkinson's disease patients, 100 Alzheimer's disease patients, and 100 healthy adults of the same age as the Parkinson's and Alzheimer's patients.
Participants provided blood samples, which showed vitamin D insufficiency in 55% of the Parkinson's disease patients, compared to 41% of the Alzheimer's patients and 36% of the healthy participants.
Vitamin D deficiency, in which people have even less vitamin D than people who have vitamin D insufficiency, was also more common among the Parkinson's patients (23%), compared to the Alzheimer's patients (16%) and the healthy participants (10%).
The findings held regardless of people's age, gender, and presence or absence of an Alzheimer's-related mutation in the APOE gene.
The study was a snapshot in time -- it doesn't prove that low levels of vitamin D cause Parkinson's disease or that taking vitamin D would help prevent Parkinson's.
But those possibilities should be studied, note the researchers, who included Emory University's Marian Evatt, MD, MS.
(RSM, CA, USA)
06/15/2009
Parkinson's and fungus: I was reading with great interest the posts regarding Methylene Blue. I'll give it a go. However more of interest was the talk of fungus. Oddly enough, right after getting toenail fungus came Parkinson's. I have always felt that there was a connection. My opinion is that because Parkinson's is usually diagnosed in aged patients, toenail fungus was viewed as a common old age condition and never considered as a possible connection to the Parkinson's. So, if the fungus or it's byproducts are involved, that would explain why an anti-fungus med would have an effect. I'd sure like to hear more about this.
(Fort Worth, Texas)
06/15/2009
Hi Deirdre and EC!
The below link regarding Alzheimer's is interesting and there is a Parkinson's link included in the info. The fungal theory is a part of this and so much more. My Dad's Parkinson's symptoms became most evident after my mother flooded the bathtub a few times, years ago, and they dried out the carpet more than once. So I think fungus is a huge aspect of our problems here. Also as Ted says and as the article suggests, the mycotoxins are the byproduct of the fungus and may be more problem causing than the fungus itself. Apparently the mycotoxins are implicated in cancer and many neurodegenerative diseases. I think there are a multitude of factors but most are interrelated. Now that I have learned a few things about this I feel like I don't know anything at all. Its very humbling to me to try to find remedies and test what works and what doesn't. Also there seems to be so much misinformation to sift through and then try to learn what works for us as individuals.
I have tried a bit of heavy metal chelation on myself only to cause tinnitus that I can hardly get rid of. Like Sherlock Holmes I'm trying different things, observing and looking for a clue to the remedy for me as well as for my parents individually. Its scary because now I know I have so many neurotoxins, based on the tinnitus that began after chelating, and I just don't have the best plan right now to rid of it. I have tried a lot of supplements to stop it.
(Knoxville, TN)
06/20/2009
Jane, How is your dad doing with the MB? May I ask some basic questions? How old is he? How old was he when his first symptoms appeared? What dosing and schedule does he follow with the MB?
(Fort Worth, Texas)
06/22/2009
Hello Rick,
Just a quick answer to a few of your questions and comments. My Dad is 85. He began having symptoms at approximately 79 or so. He probably had symptoms earlier than that, but I did not see him all that often during that time and also the Parkinson's symptoms began insidiously.
We are not so perfect with the MB dosing. I try to give at least three doses per day. I also try to make sure he has sodium ascorbate to go along with it for at least two of the doses. I would like to be more consistent giving more frequent low doses of the MB and we are working on that.
Since my father had a stroke in November of 2008 and the early Spring of 2009, this has been a big setback. The stroke this Spring was the worst. He still has a great deal of recovery to accomplish, but he continues to improve. He is very mentally alert and aware of everything going on. He can still give advice and communicate well. He cannot walk. He needs assistance eating but he often is independent in eating. These problems are a result of the stroke. We have been eliminating and reducing offending foods and supplements as we observe problems. I am near certain that my father will not have another stroke. One of the biggest helps for him is magnesium oil applied all over his body. This has helped him very much and I learned a lesson about neglecting the magnesium oil. He will get stiff and harder to transfer when without the magnesium oil (I make ours from magnesium chloride flakes sold to saltwater fish aquarium hobbyists).
My father is not taking any prescription medicines to speak of now. We stopped the carbidopa/levodopa because he began to have mild hallucinations and we stopped it. He has only improved since stopping that medicine.
(Toronto, Ontario)
06/27/2009
Jane,Is there a reason why sodium ascorbate should be taken with the meth blue? Would another form of vitamin C not be better when stroke is a possibility? And could you describe the alkaline drink your father is taking-- exact amounts etc?
Thanks,
Abigail"
(Fort Worth, Texas)
06/28/2009
Dear A from Toronto,
I learned from Ted that the sodium ascorbate is in a form more appropriate for the body since ascorbic acid would be a lower ph and our body is more optimal at a ph of about 7. Actually you could probably get a better answer from Ted because I am just learning about these things.
I have seen a published drug study regarding using the vitamin c with methylene blue. I believe it was in regard to treating malaria. At any rate it appears that vitamin c is needed. At least there should be vitamin c circulating in the body when taking methylene blue. I don't think its necessary to take vitamin c every time one takes methylene blue.
As to the stroke issue, I just don't know much about that. What I have read is that it is the chlorides that are so harmful. You know, table salt. So a good sea salt is something that you may want to get and avoid the table salt that is refined and not natural. Sodium chloride is in the processed foods as well. Apparently sea salt, like Celtic sea salt, is very good for us and even fights infections. It also increases thirst and so then we drink more water which is good for us.
Another comment about stroke. I have learned that excess calcium circulating is one sure cause of stroke. The misinformation about taking calcium is not been helpful to us at all. Also I gave my father mega doses of a magnesium citrate product that we since learned was not even magnesium at all or at least had a large component of calcium in it. We have now learned to make magnesium oil with the magnesium flakes sold to salt water fish hobbyists. I rub it on my Dad's skin and it goes through the skin into the body and relaxes his muscles and also helps to put the calcium in its place and out of the blood stream which greatly reduces his chance of having another stroke.
The alkaline drink is something we take about once per day, sometimes twice and now sometimes not at all. Everyone's needs are different and sometimes I am not that compliant. I guess its because my Dad is getting better and so now I'm not that scared. The alkaline drink we take is in a small cup with a small amount of water. We follow this drink with a glass of water. It is 1/8 tsp of sodium carbonate dissolved, then add 1/8 tsp baking soda dissolved, then add 1/8 to 1/4 tsp potassium citrate dissolved. So that's it. I still recommend inquiring of Ted because I learned this from him. The basic thing is to check urine ph and I believe it is supposed to be a 7. You may find other posts to verify all of this. It will not be in the methylene blue thread though.
Another way to alkalinize is to drink lemon water. Just don't use chlorinated water.
I hope this helps.
Jane
Hi Jane,
You have mentioned that you make your own magnesium oil from magnesium chloride. I would like to know as to how do you make and how do you use it for stiff joints/muscles.
Thanks
Baldev
(Fort Worth, Texas)
06/28/2009
Dear Baldev,
When I learned about transdermal magnesium I went out and found a salt water aquarium hobby store and looked around. I had a conversation with the owner and asked him about the magnesium and all the supplements added to the aquariums. Apparently these hobbyists are very knowledgeable about the chemicals added to the aquariums because the fish and corals are expensive and one wrong move could kill them all. Anyway I asked the man for a sample of magnesium flakes and he gave it to me. I went home and made a solution by boiling some filtered water and made a 50% solution. I rubbed it into the skin and so that's how I got started. Now I have ordered my own magnesium flakes. The shipping is expensive and so it makes the end product more expensive than I would like. Since I believe it has saved my father's life after the accidental mega doses of calcium I cannot complain though.
I am now making a solution closer to 60-65%. We have very fair skin here. Sometimes it stings a little if we have a cut or something. But its worth it. You can make the solution weak or strong. At about 70% solution I've noticed that some of the magnesium falls out of solution and so I think 70% is a bit over maximum
Our family had some purchased natural magnesium oil already before I made my own. At first I just didn't know how to use it or that I needed to put a whole lot on my father at first. I wanted to make my own for some reason. What I have learned since is that you can use too much. So you have to watch yourself. After my Dad was saturated, then we backed down a bit. The signs of too much for my Dad were that he had a few pre atrial contractions. He had never had heart arrhythmia before. So all we had to do was back off a bit and now he is doing so great the doctors are very surprised. He always has a beautiful normal sinus rhythm and his heart rate and blood pressure are just perfect. Now we need to get his brain completely healed.
Another thing that I read, I think Ted said this, that the magnesium oil from the ocean has calcium in it. I had not thought of that before. I intend to stay away from calcium the best I can since I believe that too much of it caused my Dad's stroke and contributed to his stiffness. I think calcium is in the water here too as we have hard water and when I boil it there is a white powdery film on the bottom of the tea kettle.
I am thankful to a man named George Eby who set me straight regarding the magnesium supplement that I was giving my Dad. I emailed George after reading his website and he didn't really have time to reply at the time, but he did give me a strong warning to stop the magnesium because I told him it wasn't soluble in water. He told me that it was not magnesium citrate or it would be soluble. I am extremely grateful to that man. He has an interesting website too and discussed a great deal regarding how he cured himself of depression using magnesium. Also he recommended a book by Mark Sircus called Transdermal Magnesium which I bought and its very good.
I hope this helps you.
Jane
EC: Thanks Jane -- great instructions!
Amazon.com has the book for $12.89, but not many in stock unless you buy it used for close to the same price! Transdermal Magnesium Therapy
(Manganui, Northland, New Zealand)
05/01/2011
If its starting to look like the trigger for Parkinsons is a fungus, and Methylene blue use kills the fungus over time.. Wouldnt a high dose of B vitamins be required to build the brain cells back up again after the initial onset has been stopped?.. I mean, just using the Methylene blue might stop anymore progression of the disease.. But you are still left with the subsequent debilitations... I know from past nursing experience that the brain will respond quite quickly but still need the right nutrients as in the case of dementia patient. The Dementia was quite advanced (third stage of syphlis).. It totally mimicked Alzhiemers and was picked up with a wasermans test.... But was completly cured after a course of antibiotics and B complex injections. The patient left the geriatric ward smiling and thanking everybody, he picked it up in Palastine during the second world war.. Makes you wonder how many more might have missed the correct test?
(Boston, Ma)
08/28/2016
(Ca)
10/23/2017
Ted,
Can you please respond to the long term effect on patients taking Methylene Blue, H202 and Vit C. Whats the optimal dosage . My mom has PD and she got depressed last yr after my uncle died and also had a bad fall which affected her C2. She is completely bed bound ad the biggest issue we have is daytime sleepiness.
Just started giving her good vit. Starting on a vit formula with calcium /vit D for nite - hoping it will improve the quality of sleep.
Also giving her NAC- she is still on part tube feed.
PLEASE HELP with the dosage. I remember I gave this to my mom years ago, during the intial years. Then they moved away from here and somehow it go stopped completely.
