... Also, for Lupus people, they tend to be sensitive to electromagnetic frequencies. I have personally found that simply not putting a cell phone or a cordless telephone up to my head greatly improved my autoimmune symptoms than just with diet alone. It turns out, electromagnetic frequencies also block melatonin synthesis.
Finally, if you have lupus and Raynaud's and live somewhere where it is cold, the Raynaud's is closely linked to low thyroid function on exposure to cold weather. Raynaud's has been cured by treated the thyroid. City tapwater has caused most of the lupus symptoms for me...its the pipes and the water that flows through them.
My husband was diagnosed with lupus. He is 62, white male and has fought lupus for 6 years. Please, I beg you, bear with me when I tell you our story. We were on a healing team in church at the time. This is what we experienced. Lupus is a destructive spirit. It takes the form of a wolf. Usually during prayer it will come out. During these times my husband has no pain anywhere and feels light. He has seen it on a few occasions and once when I was praying for him it growled at me. Once when I was reading scripture aloud it left him for about 6 hours. If you want to understand more of this please read a book called Deliverance From Evil Spirits by Francis McNutt.
Although we have been successful in getting it our we have not been successful in keeping it out. We have had success in stopping damage to the body. He suffers only from a burning face and has no joint pain and all blood work is normal.
Several people have had complete cures from Christian healing ministries. Here is my suggestion. Play CD's that read scripture aloud. Go to a Jesus based healing service and be prayed for. Lay your hands on yourself, say the Lord's prayer and ask for healing. Playing praise music may help too. I know to many of you this will seem like quackery but we have lived with this and seen alot. We also believe and use naturopathic medicine so I think this site is great. Because of the pain of this disease I know many readers would be open to trying this and since in some cases it will go away for good, I had to share.
God bless all of you. Colleen
(San Antonio, Texas)
(Inland Empire California)
I have lupus taking prednisone and hydyoxychloroquine and tyroy and more I think I need blood work for zinc I take poligrip have being for 9 years I had lupus for 14 years was doing good till I got with the poligrip 9 years ago. linda
I recently found out I have Lupus. I am being treated by an Integrative Medicine Dr. His goal is to boost my immune system & make sure my liver is detoxing properly. I have recently started having pain in my thumb joints. I am also seeing an acupunturist. I'm wondering if anyone else that has Lupus has had success in keeping it from progressing ? I have heard that an Herbalist could also help. I'm 54 yrs old & fairly active, my goal is to maintain my current lifestyle. I prefer to avoid the pharmaceuticals. I'm open to any ideas or suggestions. Thanks, Deb
Thank you for all the info on lupus,my daughter (teenager) was just diagnosed with lupus. Her antinuclear antibody level was 4.3+. Her alkline phosphate levels show bone breakdown,she has macrocystic anemia and liver abnormalities. She will soon be going to see a rhuemotologist. I am against presription drugs as I feel they only mask the symptoms. I will now start her on a gluten free diet, try the baking soda and protein supplements. She has had lots of pain throughout the years, head aches daily, and fatigue and aches and pains,nausea etc... I pray that this info you have provided will help with some of her health ailments. I am very into natural cures and believe that is the best route to go. Thanks again.
Follow up on Viral Theory Of Autoimmune: Reading all of these postings can be tiresome. Nobody can possibly take all the substances and institute all the diets recommended by alternative do-gooders. We as a whole do not understand how and why these therapies appear to work. Unless we use an anaerobic disease model. Suddenly, everything seems so logical and simple.
The problem with all of these therapies is that Lupus, all by itself, can go into remission. In fact it almost always has dormancy phases. How do we know in our hearts that our alternative regime is why "our Lupus got better." Time, in this instance, will be our friend. Over time we will see for sure if our alternative protocols are effectively battling this bizarre disease.
One thing that is for certain. Lupus is not a case of our bodies attacking ourselves and then suddenly stopping. Besides being inconsistent with all laws of biology, independant laboratory studies have confirmed that in more than one autoimmune disease, the immune markers and antibodies that are over produced are exactly identicle to those found in severe viral infection. Beta Interferon, antibody proteins, other cytokines are no different in severe viral infections as autoimmune. Ok! Why? Why should we overlook the obvious link here?
Then, when seeing that Tulane has in fact isolated a Type A retrovirus in several autoimmune diseases we should should really move past this now outdated notion that our bodies are committing suicide. This leads us back to the anaerobic disease model. Viruses hate oxygen! Almost every alternative protocol in this forum actually boosts the immune system and exploits the respiratory mechanism of anaerbic organisms.
Sarcoidosis, is not a virus, was/is called autoimmune and has been proven to be cause by a rare bacterium. (Anaerobic). Ask yourself why an infection can be mistaken for an autoimmune? Answer,...Autoimmunes are infections.
Black strap molasses is very high in potassium. Potassium readily will enter cells and alter the Ph. Higher ph is in fact anti viral. Black strap Molasses also contains iron, improving our hemoglobin production, increasing oxygen delivery. Apple cider vinegar contains very concentrated and potent polyphenols. Apple skin extract itself is high in these compounds but the fermentation process actually produces even more of these molecules. These complex molecules have many oxygen donor sites. I have made these chemical structures available to the public on a research website.
Gluten is poorly digested by many of us. Most people with autoimmune disease and cancer have higher levels of anti-gluten antibodies, meaning they are allergic to gluten. Chronic allergic stress has proven to lower immune system, lower oxygen levels in cells, cause general tissue inflamation in the gut, etc. Heck, any viral infection will get worse if the patient undergoes stressors.
Eliminating gluten is a good thing but understanding why is crucial so we can maximize our regimes. Just remember this. Viruses hate oxygen and our immune systems must keep viruses dormant so any protocol that decreases toxicities and increases Oxygen perfusion will theoretically improve symptoms of autoimmune disease.
Finally, Coq10 is molecule that grabs oxygen from cell cytoplams and pulls it into the mitochondria to make ATP. Burning glucose with oxygen is so important in this regard as anaerobic respiration produces acid and lowers Oxygen levels. Any oxygen therapy can be enhanced by taking this enzyme. After all, what good is high O2 fuel if there is no fuel pump to utilize the fuel?
Always take Coq10 with any alternative protocol.
Tulane Medical School has recently isolated Type A retro virus in people who have Lupus, Jouvenile R.Arthritis, Graves disease. This is the first time Type A retrovirus has been found in humans. Lupus apparently is not caused by auto-antigen or nucleic acid deficiency. But we really didn't need Tulane Medical School to prove this, Just look at the disease patterns. The disease patterns truly match those patterns of viral infections. Dormancy vs Active cycles, non-specific tissue inflamation that starts with pockets of tissue not entire system of tissues. Spreading to adjacent tissues and organs. Most alternative treatments being used today can be found on this site and others. For Lupus they either contain alkaline substances which inhibbit viral replication,or polyphenols which donate oxygen to the cell, (after losing H+ ions,)or chlorophyll which potentiates oxygen, or quinones which are strong industrial oxidizers. DMSO is another oxygen donor exploiting sulfate molecule's oxygen binding properties. Just examine these structures they all have one thing in common,...oxygen. The truth is anything that increases alkalinity also increases oxygen perfusion into cells as oxygen carries negative polarity and will be attracted to a more alkaline cellular environments. (Otto Warburg Nobel Prize) You can't change the ph of blood, but you can change the ph inside of cells. The very latest in research proving Lupus is caused by a virus can be found at: AmericanCancerAdvocates.com, a research site. Sincerely Bret Peirce
Ok I know this is not about lupus but in a way it is , iv always been interested in it .that is my sister died from it and I did a lot of research on it. I thought until I read here about it on this site. I hope this will help you what I have found out. I'm in the Philippines now . Iv been eating green bananas don't laugh, nobody here eats green bananas until I got here. its about Resistant Starch and green bananas are the best. Good bacteria eat it, then the bad bacteria and viruses are killed and pushed out. A lot of diseases come from our stomach. Well Marcia's brother Mitchie has diabetes type 2 for over a year. For the past 4 weeks his blood sugar remains normal with out medication and he does not eat a diabetic life style. he even drinks alcohol and his blood sugar remains normal. Yes he is eating green bananas. Now there's a guy next store that had his big toe amputated and the doctor wants to amputee his foot but he said no. it could not heal an open sore on his foot yes he is a diabetic 1 he takes shots. He could not work bed ridden So I got him on green bananas and his sore is healing and now is walking around and working. I have him using silver water for his foot too. Now that is something I think do some research on your own on the digestion system and especially on Resistant Starch.
(Fort Lauderdale, Florida)
Natural medicine for lupus. I have a friend who was diagnosed with lupus 36 yrs ago developed kidney cancer and given 6 months to live. He went to natural, herbal medicine and here 36 yrs later still dealing w/ certain symtoms but still at 73 working and living faily normal life cancer gone. I do believe in holistic medicine. I know of more cases of lupus w/ same result.
Hi, I cured myself of Lupus within months by taking 25 drops hydrogen peroxide (food grade 35%) in 8oz water 3 times a day as well as this cured my vasculitis on my legs! I also combined this treatment with a purely homemade vegan diet (the RAVE diet) as well as green smoothies every day! Of course supplements helped as well, but I really feel the hydrogen peroxide cured me, as I was disparing 6 months ago with a lot of pain/swelling and fatigue and very high C-reactive protein levels in my blood.
Hope this helps others...
(White Plains, Ny)
I take Hydroxycloroquine once a day. It has stopped my Lupus from worsening. I also use Tylenol Arthritis as needed for pain.
I've had SLE since I was 18 but at that time there wasn't much information and it was still in the beginning stages researching symptoms, I know now but didn't know at the time, LUPUS can have a false positive syphilis test and I was treated for it at that time. I was going to HARBOR GENERAL UCLA IN CARSON CALIF.
I had the butterfly patch, I also had hair falling out where my hair was parted, a patch on the back of my arm round that looked like my butterfly a cross my nose and under my eyes and another one on the back of my calf that was the same size as the one on my arm.
I also had severe pain in my joints and getting out of bed was extremely difficult as my day progress movement became easier.. I was spilling protein in my urine around +2'.
My doctor told me I wouldn't be able to take birth control any more so 2 months after taking me off of them I became pregnant 2 months later. While I was pregnant, my doctor explained to me that having my baby was very risky, I felt wonderful pregnant and if I had it my way I wanted to be pregnant forever... I had complications during my 6th month and was in the hospital for a week. I had my baby 2 days before my due date and she and I were healthy.
Right after giving birth the put me on prednisone and several other medications. I've been in and out of the hospital several times. I also was on dialysis for 6 1/2 yrs then I received a kidney from my sister. During the work up, they cross match you with the donor, then after they're done working up the smoothest cross match both of you again and I didn't match. They asked if I would like to be in a study called IVIg STUDY (Intravenous Immunoglobulin). I agreed. YOU get 4 treatments and you know after the first one if it's working,
I was blessed and it worked. The last treatment is done when the transplant itself is being performed. It's been 15 yrs, 4/11/00 and my kidney, function is still working and my labs are well as expected.
I have developed other problems through the years, DVT GERD, COPD, HYPERTENSION, CHRONIC PAIN IN MY LOWER EXTREMITIES. There are more pills I take, just more then I want to explain.
If you would like to ask questions feel free to ask. I did clot almost every other treatment on dialysis. I take roughly 30 pills a day now.
Just in response to Ted's info on Lupus (Ted if you're reading this I hope you'll add any new info you have) I am in serious stages of Systemic Lupus (most all organs involved) along with Gulf War Illness. I work hard to use as many natural things as I can to help my condition and have used some of Ted's suggestions. Here's my two-cents worth: (1)-in reference to SUGARS-definitely stay away from as much as possible. People with Lupus are very Sugar sensitive and I think it damages Lupus sufferers greatly. GO ORGANIC WITH AS MUCH AS POSSIBLE IN ALL AREAS of your food because chemicals, hormones, pesticides...are deadly for us. With SUGARs-go with "BROWN RICE SYRUP or XYLITOL or fructose or glycerin" in SMALL, tiny amounts only once a day or less...but NOT WHITE SUGAR or sadly even honey and all natural jams and syrups cause great problems too. NO CHEMICAL SWEETNERS either (2)-GRAINS--GO ORGANIC and yes stay away from the high GLUTEN grains. I do best with MILLET which is a protein and not a grain. STAY AWAY FROM YEAST AS MUCH AS POSSIBLE---go with yeast free breads (try Millet Zuchini Bread from the Deland Bakery in Deland Florida--they ship to alot of Health Food stores--most of their breads are yeast free and Millet. (3) THYROID--I found with myself and others that Lupus sufferers have very inflammed Thyroids and terribly malfunctioning ADRENAL glands. For my Thyroid I take Armour Thyroid a natural Thyroid gland extract (presciption) and IODINE drops--I take about 7 drops of Iodine a day in a glass of water. For my Adrenal glands I have yet to find anything that helps except SALT--use SEA SALT WHEN YOU FEEL WEAK---also LOTS OF SLEEP and NO STRESS...that is the only thing that helps so far...I hope for a better answer but NO STEROIDS especially if you are in more advanced stages like myself and have bone and muscle wasting from the Raynauds--dont take steroids it will worsen. I do take 7-Keto DHEA but it only helps a little. Many Lupus sufferers have been through alot of abuse--like family or spousal abuse---GET AWAY FROM IT ALL if you have to. If the people around you dont understand and help you to lead a stress-free life, you have to get away from them to save your life (Sad to say but so true and necessary--find supportive friends or counselors that will let you talk--People with Lupus tend to be the ones to help everyone else and hold their problems inside. You cant live that way and value your life enough to find good, stable-minded friends) (4)In reference to ORGANIC FOODS--I find concerning DAIRY and MEATS that if I go ORGANIC it solves the problem. Regular foods are so high in pesticides and hormones and chemicals--that is what is causing the problem NOT THE FOOD ITSELF. I eat ORGANIC DAIRY like organic milk, cheese, goat cheese, plain yogurt and butter. The PROTEINS AND CALCIUM are CRUCIAL for helping Lupus. YOU NEED PROTEIN AND CALCIUM. Same with your MEATS--go ORGANIC--you NEED THE PROTEIN and healthy FATS--they are all CRUCIAL. I know Organic is more expensive but the prices are getting better all the time...your body is worth it. At many Health Food Markets they have many items you can buy in BULK and the SAVINGS there will offset the higher costs of dairy, meats and produce (fruits and veg). BUT I do recommend LESSENING the GRAINS--I stay mostly with Millet and a little Brown Rice and Spelt is OK--you just have to try them and see what works best for you...but go with no/low gluten and yeast free and organic if possible. (5) I've tried balancing my PH like Ted recommends and it is hard to stay with that to get results but I do think it is important I just havent figured out the best way to stay with it (6) And YES--go through a TOXIC METAL cleanse--I've tried many including I.V. EDTA and it only helped a little. I'm presently doing "METAL SHIELD" sold by SWANSON vitamins and am hopeing for good results there but dont know yet. (7) Find a doctor or naturopath that can work with BALANCING YOUR HORMONE LEVELS and can get a Hair Follicle test done to see embalances---then look for natural ways to balance (8) My only other suggestion is to GO THROUGH LIFE VERY SLOWLY !! DONT RUSH AT ANYTHING YOU DO and if others dont understand it, they will have to learn to. The Immune System revs up with fast movement and your Immune System is already attacking you own body--FAST MOVEMENT like working, walking, speaking, and exercising fast make you worse and it attacks the body worse and raises your fever. Yes have some movement through out your day but go through it slowly like kind of slow motion...even allow yourself to THINK slowly. People with Lupus have probably gone through life at a very FAST PACE and always used to accomplishing ALOT in life...your body is worn out--let it rest and move slowly --YOU MUST GET RECUPERATIVE SLEEP AND REST>. (9) TMJ and neck and back problems can be an issue. If you have a TMJ problem-find a dentist to make you what is called an "ANTERIOR ORTHOTIC SPLINT" where at night when you sleep, you only touch the anterior teeth to balance your jaw like a FULCRUM. That is all with that --I wouldnt do anything else they suggest because these dentist can make the problem worse !! LASTLY -- the only medicines I recommend are to help you sleep better, natural Thyroid medicine and maybe Lasix for body swelling although there are natural diuretics too. Nothing else has helped me. If you sleep fine without an aid then go without those, but sleep is important. GOD BLESS and I hope this helps someone--jacquelyn (Hi to Ted if you're out there)"
03/01/2009: Jacquelyn from Ocala, Florida writes, "Also for Lupus sufferers, I forgot to mention--IF YOU SUFFER WITH YOUR "BOWELS" NOT WORKING...try a little teaspoon of PSYLLIUM and 1/2 MAGNESIUM CITRITE tablet of 200mg in the morning with fruit in a blender...then at your evening take 1/2 to whole MAGNESIUM tablet with your evening MEAL. NOTHING else has ever worked for me. It's important to keep your bowels moving daily. If the magnesium makes your bowels to liquid then just cut back a little on dose but dont stop taking or increase if not moving well. Also dont be hesitant about using suppositories and saline enemas--do what is necessary to keep your bowels moving. God bless, Jacquelyn"
03/01/2009: Jacquelyn from Ocala, Florida writes, "More on Lupus---(I keep thinking of things to suggest) Eat alot of RAW ORGANIC VEGETABLES especially anthing Green EXCEPT Lettuces and Green Peppers or difficult to digest vegetables. RAW ASPARAGUSS and RAW CELERY help to rid the body of excess fluids. I just put them in the blender with water and drink it down no matter how it tastes. Green LEAFY vegetables have lots of digestive enzymes...like Spinach, Dandelion, Or mixed Baby Greens...I also throw in Zucchini...anything GREEN except the lettuces and I've read where Kale inhibits Iodine from absorbing into your Thyroid so I dont generally use that one. BUT RAW and ORGANIC IS SO IMPORTANT to get daily. Not too much of the Starchy ones like potatoes and carrots or beats--just limit them. VERY VERY VERY IMPORTANT__STAY AWAY FROM COOKED TOMATOES AND TOMATO SAUCES especially combined with white flour pastas...and no raw onions, no raw peppers...The body just cant digest well. Cooked Tomatoes and white pasta are LETHAL --I dont know why, they just are...can cause lots of joint swelling and inflammation. No alfalfa sprouts either. Hope this helps--Jacquelyn
I have lupus/scleroderma. I went on low dose Naltrexone about a year ago. I find I have very good results with this. Plus I take a lot of supplements. My disease I feel has not progressed as others have. I decided after my forth Rheum. that I was NOT going to go the synthetic drug route. All of which do destruction to organs and the immune system. I found that immune modulating supplements really help.
Borax, ACV, Colostrum, D3, Taurine, Selenium, magnesium, Vit C, Lecithin, Ubiquinol, fermented fish oil, B complex, inhaled peroxide, etc...have all helped me to make this disease bearable.
When ever you go DRs and they say...there is no cure for this...I start asking myself...then why should I take the drugs? At the risk of damaging other parts of my body. My alternative med. Dr.said, You can take the drugs but it will kill you faster than the disease. He was right. I had to have some Depomedrol in my ear for hearing loss, I developed all sorts of side effects. That was enough for me. I found that using the information from this website and other natural forums have proven invaluable to me. Am I cured...no but is my quality of life good...yes and I have had this for 7 years. I feel blessed to have found this site and recommend to my other AI sufferers also. WE who have these diseases know from experience what is helping and by sharing can possibly help others. God Bless all of you who contribute to this site. It's an invaluable resource.
I would like to say that I totally agree with Ted's solution to this disease. Only thing is, I believe lupus is caused by the medication that they give you in the first place. Let's face it, the drugs they give out have been tested on animals. We do not have the same metabolism as these creatures that they test on. You cannot compare a rat's immune system to an adult's. We all know that these venom can eat from contaminated substances. "We can't," not without some awful result. A rat's immune system is probably over a thousand times stronger than any human being. So how can they compare drugs and these levels. I have lupus and I do not take anything anymore. I have been taking Pharmerton vitamins. And also been adviced on getting Hempseed oil, Pumpkinseed oil and Hemp Tea. It detoxes the body. I stopped taking the medication 4 months ago. I was getting so ill, and taking so many pills, loss of memory, all the things that go with rheumatoid. Then I realised that if I did not stop taking these drugs, I would definately die. I have not felt this good for two years. I won't even let them take a blood test. they are not sticking another needle in me. Taking blood from the system on a regular basis, cannot possibly to the human body any favours, especially if one is poorly, the last thing we should do to a sick person is to take a lot of blood. One drop of blood can tell so much. When are we going to learn. All lupus is caused by anti-inflammateries. etc., Your immune system lets them take over their work, so the immune system forgets how to protect, because something else has done it for it. I could go on forever. I will be writing and letting everyone know the true awful experience of the last 12 years of so called trusting NHS. So Ted, good on you my dear friend. I am spreading the word.