Holistic Therapy: Lupus (Systemic Lupus Erythematosus)

Electromagnetic Frequencies, Cold Weather

Posted by rhonda (tallahassee, usa) on 07/31/2007

... Also, for Lupus people, they tend to be sensitive to electromagnetic frequencies. I have personally found that simply not putting a cell phone or a cordless telephone up to my head greatly improved my autoimmune symptoms than just with diet alone. It turns out, electromagnetic frequencies also block melatonin synthesis.

Finally, if you have lupus and Raynaud's and live somewhere where it is cold, the Raynaud's is closely linked to low thyroid function on exposure to cold weather. Raynaud's has been cured by treated the thyroid. City tapwater has caused most of the lupus symptoms for me...its the pipes and the water that flows through them.

Replied by Steve
(Lowell, Ma.)
01/10/2012

The floride used to kill bacteria is actually harming you. Good Luck


Faith-Based Healing

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Posted by Colleen (Williamsburg, Va) on 01/25/2010
4 out of 5 stars

My husband was diagnosed with lupus. He is 62, white male and has fought lupus for 6 years. Please, I beg you, bear with me when I tell you our story. We were on a healing team in church at the time. This is what we experienced. Lupus is a destructive spirit. It takes the form of a wolf. Usually during prayer it will come out. During these times my husband has no pain anywhere and feels light. He has seen it on a few occasions and once when I was praying for him it growled at me. Once when I was reading scripture aloud it left him for about 6 hours. If you want to understand more of this please read a book called Deliverance From Evil Spirits by Francis McNutt.

Although we have been successful in getting it our we have not been successful in keeping it out. We have had success in stopping damage to the body. He suffers only from a burning face and has no joint pain and all blood work is normal.

Several people have had complete cures from Christian healing ministries. Here is my suggestion. Play CD's that read scripture aloud. Go to a Jesus based healing service and be prayed for. Lay your hands on yourself, say the Lord's prayer and ask for healing. Playing praise music may help too. I know to many of you this will seem like quackery but we have lived with this and seen alot. We also believe and use naturopathic medicine so I think this site is great. Because of the pain of this disease I know many readers would be open to trying this and since in some cases it will go away for good, I had to share.

God bless all of you. Colleen

Replied by Sylvia
(San Antonio, Texas)
08/10/2011

Hi! God bless you for your testimony. I have been praying for my daughter, bcause I know that a disease ( Lupus) that has a name is a demon that needs to be cast out. Prayer & fasting is essential also. My daughters' name is April& myself, herself & my husband have been praying & binding it, in the name of Jesus. The name of Jesus that is above all names, in heaven & in earth. I need prayer partners that would agree & pray w/us for the deliverence & healing of my daughter. God bless you! I am sending email address. And , I am trying to learn how to use emailing.

Replied by Ifedontenplarblood
(Detroit, Michigan)
12/14/2011

I pray to stop the poisoning.

Replied by D Smith
(Inland Empire California)
10/11/2013

Please send updates


General Feedback

Posted by Linda (Albuquerque, Nm) on 05/23/2011

I have lupus taking prednisone and hydyoxychloroquine and tyroy and more I think I need blood work for zinc I take poligrip have being for 9 years I had lupus for 14 years was doing good till I got with the poligrip 9 years ago. linda


General Feedback
Posted by Debbie (Jax, Florida) on 10/25/2010

Hello,
I recently found out I have Lupus. I am being treated by an Integrative Medicine Dr. His goal is to boost my immune system & make sure my liver is detoxing properly. I have recently started having pain in my thumb joints. I am also seeing an acupunturist. I'm wondering if anyone else that has Lupus has had success in keeping it from progressing ? I have heard that an Herbalist could also help. I'm 54 yrs old & fairly active, my goal is to maintain my current lifestyle. I prefer to avoid the pharmaceuticals. I'm open to any ideas or suggestions. Thanks, Deb

Replied by Bridget
(Davie, Fl)
03/04/2013

How is the acupuncture, I hear it is helpful?


General Feedback
Posted by Kellie (Milaca, MN) on 12/26/2008

Thank you for all the info on lupus,my daughter (teenager) was just diagnosed with lupus. Her antinuclear antibody level was 4.3+. Her alkline phosphate levels show bone breakdown,she has macrocystic anemia and liver abnormalities. She will soon be going to see a rhuemotologist. I am against presription drugs as I feel they only mask the symptoms. I will now start her on a gluten free diet, try the baking soda and protein supplements. She has had lots of pain throughout the years, head aches daily, and fatigue and aches and pains,nausea etc... I pray that this info you have provided will help with some of her health ailments. I am very into natural cures and believe that is the best route to go. Thanks again.

Replied by Ted
(Bangkok, Thailand)
12/29/2008
383 posts

Dear Kellie:

The best remedy that I am aware against the lupus after a lot of trial and error is the simple baking soda and borax remedy. That's the major starting point. A baking soda remedy assuming a teen of 15 years old, for example is still 1/2 tablespoon twice a day or sometimes they take 1 tablespoon of baking soda dissolved in a glass of water. The alkalization is the primary approach in reducing the reactivity of the body's immune system. A significant improvement is also seen with the supplements of borax, the dose is still 1/4 teaspoon per liter of water for a male, but a smaller dose of 1/8 for a female. For some reason woman requires half the dose of men. It's taken usually for baking soda, 5 or 6 days out of a week and for borax it's taken 4 or 5 days out of a week. These two I found significant improvement, but not all will go away. As a result, certain bacterial colonies, and perhaps fungus still exists and an addition of both xylitol and a more interesting erythritol supplements is taken to reduce the lupus. This is also significant too. Certain leptin rich foods seems to worsen the lupus and hence, lentils, and beans are reduced. The most significant factor in causing the lupus is the beef, steaks, meats and oily products. Increasing vegetarian diets helps. In most cases I have seen, medications are reduced to a fraction of what they were originally taken such as 1/8 or 1/16 of the original dose. But the reason why they didn't completely discontinue was the lack of availablity of xylitol, erythritol or mannose in that certain location, thus limiting the cure. What the erythritol and xylitol and other polyol sugar does (provided that the body is already properly alkalized FIRST for a couple of weeks 2 or 3 weeks-, along with borax), then the dose for xylitol might be 1/2 teaspoon 3 or 4 times a day. The downside of xylitol is its limited ability to get into the bloodstream, however, I have seen improvement of the body's vital organs (such as kidneys in lupus) through observing the reduction of swelling,from the use of erythritol, but a much more limited extent the xylitol in reduction of lupus. The benefits of erythritol is it prevents mycoplasma from attachment to healthy cells that cause a so called antibody response from attacking the body's own organs. The erythritol has a major benefit over other polyol sugar because of it's ability to go into the bloodstream much more and it's high bioavailability, while most polyol sugar has limited absorption. Hence it makes erythritol more effective approach in lupus, provided that the body is already properly alkalized and some borax remedy has already been applied.

The reason why I am keeping it as simple as possible is to reduce the rheumatic pain, and pain is a big issue in lupus and hence borax, baking soda, and erythritol is the updated version of remedy as being the most important ones to start in the use against lupus. I am sure other things also help reduce this that is worth trying, in particular is the magnesium supplements 250-500 mg./day in form of magnesium citrate, WITHOUT calcium. The other thing is vitamin B complex, that can be taken twice or three times a week. Zinc is used, but very limited extent, such as once or twice a month, which increases the body's immune system, along with some ocassional iodine from kelp.

One other MAJOR approach besides borax, baking soda and erythritol that many people with lupus seems to have problems is the heavy metals. Therefore the fourth element to add after those three were instituted for 4 weeks is the chlorella and spirulina supplements. Most people with heavy metal exposure is one other thing that seems to cause lupus.

I am sure I haven't quite completely cured the lupus, but people who did use the remedy were already happy that just taking that seems to give them a normal life. There are others that may help but those mentioned here should resolve most of the problems, including the bone pain. As a final note, the Global Cooling of 2008 and 2009 is likely to cause worsening of lupus because of lack of sun exposure. Sometimes an ocassional 20,000 i.u. vitamin D3 or vitamin D2 also helps increase the body's immune system also, but I believe it's taken together with magnesium and boron (borax) to maintain a balance of magnesium/calcium. Vitamin D tends to increase blood calcium and hence, magnesium is also taken to help maintain the balance of magnesium/calcium.

Ted"


12/29/2008: Ted writes again, "Dear Kellie: Erythritol dose may be taken at a larger dose then xylitol since it doesn't have a laxative effect. Hence 1/2 - 2 teaspoon dissolve in a 1/2 glass of water taken a couple of times a day is also possible and may reduce pain. I tend to always start on the low end before going onto the larger dose and 1/2 teaspoon is taken a couple of times a day is a good starting dose for most people whose body weight is between 100-120 pounds. So an initial dose may also decided too. I believe a larger dose will significantly reduce the bone pain because of its effect in preventing a mycoplasma from attaching to the bones that eats the bones away, causing a pain.

The other fungus, that generates mycotoxin, that may cause other symptoms such as aflatoxin, is lessened or neutralized with a BHT 1500 mg supplement for adult dose, so a younger person half the weight may take between 500-750 mg based on weight.

I hope this information helps. Lupus is a rarity in Thailand, but those who do have it, dies pretty quick because of poor understanding of lupus, at least where I live anyway.

Ted

Replied by Joseph
(Waterbury, Ct.)
11/20/2012

Hi, my dog was very week and I took him to the vet who diagnosed him with liver problems. He had blood in his urine. She gave me a preporation which contained milk thistle. Within 24 hours he was completely healed. l have heard that milk thistle is excelllent for humans who have liver problems.

Replied by Tracy
(Philadelphia Pa)
07/28/2017

Yes, milk thistle is great for the liver but a word of caution... those who are treating for Hep C, its use is contraindicated...it might interfere with new drug Tx.


General Feedback
Posted by Bret (Phoenix, Arizona) on 05/30/2008

Follow up on Viral Theory Of Autoimmune: Reading all of these postings can be tiresome. Nobody can possibly take all the substances and institute all the diets recommended by alternative do-gooders. We as a whole do not understand how and why these therapies appear to work. Unless we use an anaerobic disease model. Suddenly, everything seems so logical and simple.

The problem with all of these therapies is that Lupus, all by itself, can go into remission. In fact it almost always has dormancy phases. How do we know in our hearts that our alternative regime is why "our Lupus got better." Time, in this instance, will be our friend. Over time we will see for sure if our alternative protocols are effectively battling this bizarre disease.

One thing that is for certain. Lupus is not a case of our bodies attacking ourselves and then suddenly stopping. Besides being inconsistent with all laws of biology, independant laboratory studies have confirmed that in more than one autoimmune disease, the immune markers and antibodies that are over produced are exactly identicle to those found in severe viral infection. Beta Interferon, antibody proteins, other cytokines are no different in severe viral infections as autoimmune. Ok! Why? Why should we overlook the obvious link here?

Then, when seeing that Tulane has in fact isolated a Type A retrovirus in several autoimmune diseases we should should really move past this now outdated notion that our bodies are committing suicide. This leads us back to the anaerobic disease model. Viruses hate oxygen! Almost every alternative protocol in this forum actually boosts the immune system and exploits the respiratory mechanism of anaerbic organisms.

Sarcoidosis, is not a virus, was/is called autoimmune and has been proven to be cause by a rare bacterium. (Anaerobic). Ask yourself why an infection can be mistaken for an autoimmune? Answer,...Autoimmunes are infections.

Black strap molasses is very high in potassium. Potassium readily will enter cells and alter the Ph. Higher ph is in fact anti viral. Black strap Molasses also contains iron, improving our hemoglobin production, increasing oxygen delivery. Apple cider vinegar contains very concentrated and potent polyphenols. Apple skin extract itself is high in these compounds but the fermentation process actually produces even more of these molecules. These complex molecules have many oxygen donor sites. I have made these chemical structures available to the public on a research website.

Gluten is poorly digested by many of us. Most people with autoimmune disease and cancer have higher levels of anti-gluten antibodies, meaning they are allergic to gluten. Chronic allergic stress has proven to lower immune system, lower oxygen levels in cells, cause general tissue inflamation in the gut, etc. Heck, any viral infection will get worse if the patient undergoes stressors.

Eliminating gluten is a good thing but understanding why is crucial so we can maximize our regimes. Just remember this. Viruses hate oxygen and our immune systems must keep viruses dormant so any protocol that decreases toxicities and increases Oxygen perfusion will theoretically improve symptoms of autoimmune disease.

Finally, Coq10 is molecule that grabs oxygen from cell cytoplams and pulls it into the mitochondria to make ATP. Burning glucose with oxygen is so important in this regard as anaerobic respiration produces acid and lowers Oxygen levels. Any oxygen therapy can be enhanced by taking this enzyme. After all, what good is high O2 fuel if there is no fuel pump to utilize the fuel?
Always take Coq10 with any alternative protocol.

Replied by Joyce
(Joelton, Tn)
510 posts

Hello Bret,

We certainly agree on one thing: "Logical thinking is a good thing".

After reading your discourse on the causes of lupus, I recalled reading that some doctor trying to solve the cause of Gulf War Syndrome, realized that many of the symptoms of GWS were the same as systemic lupus and started looking for causes. Somehow she knew that squalene had been used as a stabilizer in the anthrax vaccine given to the veterans before being deployed to the GW. She then proceeded to pull saved blood specimens from a lot of these vets and testing them, finding that everyone of them had squalene antibodies. So I went looking for facts on the GWS. Mostly what I found is that a lot of experts still aren't in agreement as to what causes it! I did find a statement that the sickest veterans were the ones with the highest levels of squalene antibodies. Logical thinking tells me that squalene must be involved in causing the symptoms of GWS. Common sense, as well as logical thinking, tells me that a lot of other things these veterans were exposed to (gases, pesticides, aspartame in diet colas ( they drank that were probably in plastic bottles and probably overheated in the hot areas of the Gulf War) , depleted uranium, excessive smoke from oil fires, etc. did not contribute to good health or wellness. I am sure that the added stress of being in a war did not add to their feeling of security and contributed greatly to increasing their stress levels - I know it would have mine!

Drinking water from a plastic bottle that has been left in a car all day is now connected to some cancers. Logical thinking tells me that if being left in the drinkers car all day in the sun makes it dangerous to drink, being delivered in a metal-bed truck in the hot sun probably made it too dangerous to drink before they even purchased the bottled water at the store. If you add carbonated beverage, with aspartame sweetener, look how many other detrimental things you have added to the possibilities of interfering with one's health and well-being.

Moving on to your statement: "Most people with autoimmune disease and cancer have higher levels of antigluten antibodies, meaning they are allergic to gluten". When I went on a high protein-low carbohydrate diet, to lose weight, I not only lost weight, but about the second week of eating this diet it suddenly occurred to me that I hadn't had the heartburn, indigestion, and nausea that was usually my constant unwanted companion. Knowing that I did have allelrgies to some things, I realized that it had to be something that I was eating or drinking daily that was creating my gastric problems. The first two things that I thought it might be was milk and bread. After losing 22 pounds in six weeks, I returned to my usual eating except for milk and bread, thinking I was probably allergic to wheat. But then it occurred to me that it might not be the wheat itself. So I went to whole grain bread and had no problems with it. But when I tried bleached flour bread, the heartburn, bloating, flatulence returned big time within l5 minutes after eating it. Aha! Logical thinking is a good thing - I surmised it was not the wheat I was allergic to, but something used in the bleaching process that was causing the problem. I find that is still true some 35 years later. I also found that I could drink my coffee black without problems, add milk to it and I got indigestion - big time!

Years later, researching PUD for a term paper, I learned that PUD first became a problem in the upper socio-economic group, later moving into the middle socio-economic group, and finally on down to the lower socio-economic group. Remembering my own problem with bleached flour products, I researched when they started bleaching flour. I don't remember the exact years now, but adding the two searches together, PUD became a problem ll-15 years after they first started bleaching flour and that it was so expensive that they were the only group who could afford it. It followed (by the same time frame) in the middle group, when it became cheap that they could afford it. When somebody in Minnesota came up with a bleaching process that made it cheap enough for the lower group to afford it, PUD moved into this group following the same time frame.

Now orthodox medicine tells us that PUD is caused by H. campylobacter and treat it with antibiotics that you must see an MD to get. I have never been diagnosed or treated for this organism, but I have never had the ulcer pain that I used to get 3 or 4 times each year, plus I am not bothered by the daily problems I had before the ulcer pain got so bad. Is it caused by H. campylobacter or is it caused by chronic alllergy or intolerance to something in the bleaching process. Since I am rid of the problem, without treatment, it may be that it creates a gastrointestinal condition that harbors the supposed organism and causes the ulcer. I don't really care which it is, because I know that as long as I avoid bleached flour I don't have the problem.

My common sense, and maybe, a little logical thinking tells me that eventually we will all come to realize that many of the additives in our drinking water (sodium fluoride & chlorine)), and in our food & drink(monosodium glutamate and aspartame), and other toxins in our environment, all stress our immune systems, and when our immune systems are busy trying to protect itself and our bodies from harm, some opportunistic organisms, whether molds, viruses, bacteria, sneak in and try to take over.

It is known that systemic lupus can be caused by antibiotics & I think it is still considered a woman's disease because the birth control pills have been blamed for a number of cases. It is very possible that the stressors just create the situation that lets the opportunistic organisms move in and cause distress in the form of disease. Trying to use logical thinking on that is kind of like trying to solve: which came first, the chicken or the egg? I leave that to you solvle - I just appreciate having both the chickens and the eggs they produce.

Replied by Ted
(Bangkok, Thailand)
06/03/2008
383 posts

Dear Bret:

My own experience in dealing with lupus after taking certain supplements, pus reduces within matter of hours, condition is noticeably reduced within a week. However, most of the lupus I encountered were in line mostly with the mycoplasma or fungus like organism as being the prime cause because they more responsive to anti-fungal remedies as opposed to anti-viral remedies.

For instance anti-viral remedies, such as zinc and magnesium wasn't so responsive as the antifungal remedies used in borax, chromium, and alkalization. Both antiviral and antifungal remedies were responsive with alkaline remedy.

This means the best remedies I have found so far that worked the best is baking soda, sodium carbonate, and borax in general, while zinc and magnesium were somewhat less responsive. The remedies I mentioned were laid out in details as mentioned.

As to apple cider vinegar, containing polyphenols, etc. alkalization involves alkalizing both extracellular fluids and intracellular fluids. Therefore, sodium bicarbonate and sodium carbonate will resolve the extracellular fluids and intracellular fluids are potassium bicarbonate. The pH in monitoring lupus help is the urinary pH for extracellular fluids and salivary pH for intracellular fluids.

Therefore the theory on the basis of responsiveness to remedy were more in line with fungus, nanoinsects, and mycoplasma more so than virus. The only viral cause I have found were very much due to Morgellon's disease, chronic fatigue syndrome, astenia, and Epstein Barr Virus.

In which case most virus conditions are more responsive to zinc, magnesium, vitamin B complex, but also to alkalizing.

It's difficult to cover all possible cases for different conditions, but for lupus it appears to be one of mycoplasma and fungus like organism.

Replied by Bret
(Phoenix, Arizona)
06/12/2008

Whether we disagree with Tulane Medical School or not, whether we think Lupus is a mycobacterium or virus, whether we ignore that retro-viral antibodies are found in almost every Lupus patient tested, we agree on one thing: Diseases that hate oxygen should be treated with higher oxygen. Higher Ph helps achieve this goal,(Warburg/Koch.)


General Feedback
Posted by Bret (Phoenix, Arizona) on 05/05/2008

Tulane Medical School has recently isolated Type A retro virus in people who have Lupus, Jouvenile R.Arthritis, Graves disease. This is the first time Type A retrovirus has been found in humans. Lupus apparently is not caused by auto-antigen or nucleic acid deficiency. But we really didn't need Tulane Medical School to prove this, Just look at the disease patterns. The disease patterns truly match those patterns of viral infections. Dormancy vs Active cycles, non-specific tissue inflamation that starts with pockets of tissue not entire system of tissues. Spreading to adjacent tissues and organs. Most alternative treatments being used today can be found on this site and others. For Lupus they either contain alkaline substances which inhibbit viral replication,or polyphenols which donate oxygen to the cell, (after losing H+ ions,)or chlorophyll which potentiates oxygen, or quinones which are strong industrial oxidizers. DMSO is another oxygen donor exploiting sulfate molecule's oxygen binding properties. Just examine these structures they all have one thing in common,...oxygen. The truth is anything that increases alkalinity also increases oxygen perfusion into cells as oxygen carries negative polarity and will be attracted to a more alkaline cellular environments. (Otto Warburg Nobel Prize) You can't change the ph of blood, but you can change the ph inside of cells. The very latest in research proving Lupus is caused by a virus can be found at: AmericanCancerAdvocates.com, a research site. Sincerely Bret Peirce


Green Bananas

Posted by Dennis (Dillingham, Alaska) on 08/07/2008

Ok I know this is not about lupus but in a way it is , iv always been interested in it .that is my sister died from it and I did a lot of research on it. I thought until I read here about it on this site. I hope this will help you what I have found out. I'm in the Philippines now . Iv been eating green bananas don't laugh, nobody here eats green bananas until I got here. its about Resistant Starch and green bananas are the best. Good bacteria eat it, then the bad bacteria and viruses are killed and pushed out. A lot of diseases come from our stomach. Well Marcia's brother Mitchie has diabetes type 2 for over a year. For the past 4 weeks his blood sugar remains normal with out medication and he does not eat a diabetic life style. he even drinks alcohol and his blood sugar remains normal. Yes he is eating green bananas. Now there's a guy next store that had his big toe amputated and the doctor wants to amputee his foot but he said no. it could not heal an open sore on his foot yes he is a diabetic 1 he takes shots. He could not work bed ridden So I got him on green bananas and his sore is healing and now is walking around and working. I have him using silver water for his foot too. Now that is something I think do some research on your own on the digestion system and especially on Resistant Starch.

Replied by Gerry
(Fort Lauderdale, Florida)
05/10/2009

When you say green bananas, is it the green raw banana or those big ripe green bananas? Thanks

EC: Good question - plantains (larger than bananas) or unripened bananas?!

Looks like Plantain is not typically grown the Phillipines (http://en.wikipedia.org/wiki/Plantains) so we're guessing its got to be a green banana.

Replied by Dawnette
(Bermuda)
08/03/2017

The green bananas are regular bananas boiled and eaten like potatoes before they begin to ripen.


Holistic Approach

Posted by Gloria (Spart., S.c.) on 10/09/2012

Natural medicine for lupus. I have a friend who was diagnosed with lupus 36 yrs ago developed kidney cancer and given 6 months to live. He went to natural, herbal medicine and here 36 yrs later still dealing w/ certain symtoms but still at 73 working and living faily normal life cancer gone. I do believe in holistic medicine. I know of more cases of lupus w/ same result.

Replied by Debra
(Middletown, Usa)
04/24/2013

Instead of Plaquenil, what did she do?


Hydrogen Peroxide

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Posted by Kokil (Roslyn Heights, NY) on 07/15/2013
5 out of 5 stars

Hi, I cured myself of Lupus within months by taking 25 drops hydrogen peroxide (food grade 35%) in 8oz water 3 times a day as well as this cured my vasculitis on my legs! I also combined this treatment with a purely homemade vegan diet (the RAVE diet) as well as green smoothies every day! Of course supplements helped as well, but I really feel the hydrogen peroxide cured me, as I was disparing 6 months ago with a lot of pain/swelling and fatigue and very high C-reactive protein levels in my blood.

Hope this helps others...

Kokila

Replied by Ellen
(White Plains, Ny)
07/13/2015

Hello...I tried the HP 35% food grade once and after the 2nd day...(only 3 drops) I was light headed and dizzy. I would like to try this again. Would you be so kind and advise where you bought your HP 35% FG, as I am sure it is a reputable site.

Thank you and Best of health to you!


Hydroxychloroquine

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Posted by Dolly (Los Angeles, Ca) on 08/03/2020
5 out of 5 stars

I take Hydroxycloroquine once a day. It has stopped my Lupus from worsening. I also use Tylenol Arthritis as needed for pain.


Intravenous Immunoglobulin (IVIg)

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Posted by Susan (Ca) on 11/25/2015
5 out of 5 stars

I've had SLE since I was 18 but at that time there wasn't much information and it was still in the beginning stages researching symptoms, I know now but didn't know at the time, LUPUS can have a false positive syphilis test and I was treated for it at that time. I was going to HARBOR GENERAL UCLA IN CARSON CALIF.

I had the butterfly patch, I also had hair falling out where my hair was parted, a patch on the back of my arm round that looked like my butterfly a cross my nose and under my eyes and another one on the back of my calf that was the same size as the one on my arm.

I also had severe pain in my joints and getting out of bed was extremely difficult as my day progress movement became easier.. I was spilling protein in my urine around +2'.

My doctor told me I wouldn't be able to take birth control any more so 2 months after taking me off of them I became pregnant 2 months later. While I was pregnant, my doctor explained to me that having my baby was very risky, I felt wonderful pregnant and if I had it my way I wanted to be pregnant forever... I had complications during my 6th month and was in the hospital for a week. I had my baby 2 days before my due date and she and I were healthy.

Right after giving birth the put me on prednisone and several other medications. I've been in and out of the hospital several times. I also was on dialysis for 6 1/2 yrs then I received a kidney from my sister. During the work up, they cross match you with the donor, then after they're done working up the smoothest cross match both of you again and I didn't match. They asked if I would like to be in a study called IVIg STUDY (Intravenous Immunoglobulin). I agreed. YOU get 4 treatments and you know after the first one if it's working,

I was blessed and it worked. The last treatment is done when the transplant itself is being performed. It's been 15 yrs, 4/11/00 and my kidney, function is still working and my labs are well as expected.

I have developed other problems through the years, DVT GERD, COPD, HYPERTENSION, CHRONIC PAIN IN MY LOWER EXTREMITIES. There are more pills I take, just more then I want to explain.

If you would like to ask questions feel free to ask. I did clot almost every other treatment on dialysis. I take roughly 30 pills a day now.

Replied by Anna
(Burbank, Ca)
01/08/2016

I was diagnosed with Graves disease 18 years ago. My thyroid was removed with radioactive iodine treatment. I was put on synthroid and have been on it since. Was never 100 per cent healthy again. Recently started getting sick. I was diagnosed with Lupus yesterday. After spending hours reading on this wonderful site, I feel I have hope. Thank you to everyone!


Jacquelyn's Lupus Remedies

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Posted by Jacquelyn (Ocala, Florida) on 03/01/2009
4 out of 5 stars

Just in response to Ted's info on Lupus (Ted if you're reading this I hope you'll add any new info you have) I am in serious stages of Systemic Lupus (most all organs involved) along with Gulf War Illness. I work hard to use as many natural things as I can to help my condition and have used some of Ted's suggestions. Here's my two-cents worth: (1)-in reference to SUGARS-definitely stay away from as much as possible. People with Lupus are very Sugar sensitive and I think it damages Lupus sufferers greatly. GO ORGANIC WITH AS MUCH AS POSSIBLE IN ALL AREAS of your food because chemicals, hormones, pesticides...are deadly for us. With SUGARs-go with "BROWN RICE SYRUP or XYLITOL or fructose or glycerin" in SMALL, tiny amounts only once a day or less...but NOT WHITE SUGAR or sadly even honey and all natural jams and syrups cause great problems too. NO CHEMICAL SWEETNERS either (2)-GRAINS--GO ORGANIC and yes stay away from the high GLUTEN grains. I do best with MILLET which is a protein and not a grain. STAY AWAY FROM YEAST AS MUCH AS POSSIBLE---go with yeast free breads (try Millet Zuchini Bread from the Deland Bakery in Deland Florida--they ship to alot of Health Food stores--most of their breads are yeast free and Millet. (3) THYROID--I found with myself and others that Lupus sufferers have very inflammed Thyroids and terribly malfunctioning ADRENAL glands. For my Thyroid I take Armour Thyroid a natural Thyroid gland extract (presciption) and IODINE drops--I take about 7 drops of Iodine a day in a glass of water. For my Adrenal glands I have yet to find anything that helps except SALT--use SEA SALT WHEN YOU FEEL WEAK---also LOTS OF SLEEP and NO STRESS...that is the only thing that helps so far...I hope for a better answer but NO STEROIDS especially if you are in more advanced stages like myself and have bone and muscle wasting from the Raynauds--dont take steroids it will worsen. I do take 7-Keto DHEA but it only helps a little. Many Lupus sufferers have been through alot of abuse--like family or spousal abuse---GET AWAY FROM IT ALL if you have to. If the people around you dont understand and help you to lead a stress-free life, you have to get away from them to save your life (Sad to say but so true and necessary--find supportive friends or counselors that will let you talk--People with Lupus tend to be the ones to help everyone else and hold their problems inside. You cant live that way and value your life enough to find good, stable-minded friends) (4)In reference to ORGANIC FOODS--I find concerning DAIRY and MEATS that if I go ORGANIC it solves the problem. Regular foods are so high in pesticides and hormones and chemicals--that is what is causing the problem NOT THE FOOD ITSELF. I eat ORGANIC DAIRY like organic milk, cheese, goat cheese, plain yogurt and butter. The PROTEINS AND CALCIUM are CRUCIAL for helping Lupus. YOU NEED PROTEIN AND CALCIUM. Same with your MEATS--go ORGANIC--you NEED THE PROTEIN and healthy FATS--they are all CRUCIAL. I know Organic is more expensive but the prices are getting better all the time...your body is worth it. At many Health Food Markets they have many items you can buy in BULK and the SAVINGS there will offset the higher costs of dairy, meats and produce (fruits and veg). BUT I do recommend LESSENING the GRAINS--I stay mostly with Millet and a little Brown Rice and Spelt is OK--you just have to try them and see what works best for you...but go with no/low gluten and yeast free and organic if possible. (5) I've tried balancing my PH like Ted recommends and it is hard to stay with that to get results but I do think it is important I just havent figured out the best way to stay with it (6) And YES--go through a TOXIC METAL cleanse--I've tried many including I.V. EDTA and it only helped a little. I'm presently doing "METAL SHIELD" sold by SWANSON vitamins and am hopeing for good results there but dont know yet. (7) Find a doctor or naturopath that can work with BALANCING YOUR HORMONE LEVELS and can get a Hair Follicle test done to see embalances---then look for natural ways to balance (8) My only other suggestion is to GO THROUGH LIFE VERY SLOWLY !! DONT RUSH AT ANYTHING YOU DO and if others dont understand it, they will have to learn to. The Immune System revs up with fast movement and your Immune System is already attacking you own body--FAST MOVEMENT like working, walking, speaking, and exercising fast make you worse and it attacks the body worse and raises your fever. Yes have some movement through out your day but go through it slowly like kind of slow motion...even allow yourself to THINK slowly. People with Lupus have probably gone through life at a very FAST PACE and always used to accomplishing ALOT in life...your body is worn out--let it rest and move slowly --YOU MUST GET RECUPERATIVE SLEEP AND REST>. (9) TMJ and neck and back problems can be an issue. If you have a TMJ problem-find a dentist to make you what is called an "ANTERIOR ORTHOTIC SPLINT" where at night when you sleep, you only touch the anterior teeth to balance your jaw like a FULCRUM. That is all with that --I wouldnt do anything else they suggest because these dentist can make the problem worse !! LASTLY -- the only medicines I recommend are to help you sleep better, natural Thyroid medicine and maybe Lasix for body swelling although there are natural diuretics too. Nothing else has helped me. If you sleep fine without an aid then go without those, but sleep is important. GOD BLESS and I hope this helps someone--jacquelyn (Hi to Ted if you're out there)"


03/01/2009: Jacquelyn from Ocala, Florida writes, "Also for Lupus sufferers, I forgot to mention--IF YOU SUFFER WITH YOUR "BOWELS" NOT WORKING...try a little teaspoon of PSYLLIUM and 1/2 MAGNESIUM CITRITE tablet of 200mg in the morning with fruit in a blender...then at your evening take 1/2 to whole MAGNESIUM tablet with your evening MEAL. NOTHING else has ever worked for me. It's important to keep your bowels moving daily. If the magnesium makes your bowels to liquid then just cut back a little on dose but dont stop taking or increase if not moving well. Also dont be hesitant about using suppositories and saline enemas--do what is necessary to keep your bowels moving. God bless, Jacquelyn"


03/01/2009: Jacquelyn from Ocala, Florida writes, "More on Lupus---(I keep thinking of things to suggest) Eat alot of RAW ORGANIC VEGETABLES especially anthing Green EXCEPT Lettuces and Green Peppers or difficult to digest vegetables. RAW ASPARAGUSS and RAW CELERY help to rid the body of excess fluids. I just put them in the blender with water and drink it down no matter how it tastes. Green LEAFY vegetables have lots of digestive enzymes...like Spinach, Dandelion, Or mixed Baby Greens...I also throw in Zucchini...anything GREEN except the lettuces and I've read where Kale inhibits Iodine from absorbing into your Thyroid so I dont generally use that one. BUT RAW and ORGANIC IS SO IMPORTANT to get daily. Not too much of the Starchy ones like potatoes and carrots or beats--just limit them. VERY VERY VERY IMPORTANT__STAY AWAY FROM COOKED TOMATOES AND TOMATO SAUCES especially combined with white flour pastas...and no raw onions, no raw peppers...The body just cant digest well. Cooked Tomatoes and white pasta are LETHAL --I dont know why, they just are...can cause lots of joint swelling and inflammation. No alfalfa sprouts either. Hope this helps--Jacquelyn

Replied by Parhat
(Bangkok, Thailand)
03/16/2009

Yes, most suggestions sound reasonable. However, two major remedies deserved mentioned, one is a baking soda with malic acid, which is reacted to be malate, such as 500 mg of malic acid with baking soda, say 1000 mg, will help chronic fatigue to some extent, but magnesium is needed too, such as 500 mg to 1000 mg of magnesium chloride. Generally an inflammed thyroid in a lupus is a fungus condition responsible. I have been lately experimenting with a newer remedy to rid of that inflammed which can be applied two ways to reduce the inflammation. A 10% solution of ammonium chloride applied to the throat areas perhaps mixed with a little 5% of milk of magnesia, or a stronger 10% solution of ammonium bicarbonate. It should be noted that a lupus may not observe themselve but I can see improvement when baking soda and borax was supplement over the course of a week, unknown to them since its positive effect while not immediate were very clear. Hence baking soda and borax still remains the major remedy. The other issue is the weakness and lack of energy can be restored mostly with 5-10 drops of 3% H2O2. Steaks and overcooked meat even organic were problematic still. However, most foods, if organic can't be found can be neutralized by 90% by soaking in a weak solution of hydrogen peroxide, such as 0.5% H2O2 soaking for roughly 5 minutes. The meat may pale in a few case from the peroxide, but it does neutralize insecticides and antibiotics. As well as hydrogen peroxide usually 5-10 drops will have an effect in lifting the energy for 2-3 hours, and hence is taken every 2-3 hours. Too much hydrogen peroxide taken too long may deplete vitamin C, and caused headaches and vitamin C sodium ascorbate is often taken at 1000 mg a day, to balance off this.

Nearly every lupus sufferers I have found were all exposed to heavy metals of some kind, either mercury amalgam, vaccines mercury from Gulf War Syndrome vaccines used, from heavy metals in faulty showers, old faucets, old metal water filter and even one person was working in metal working and another was a metal inspector, or another lived near ships where water has high heavy metals. Hence chlorella and spirulina helps and forms the foundation for lupus.

The newer remedy against this fungus lupus, is the ammonium chloride. Is applied to throat area at 10% solution to reduce inflammation. In my opinion a low dose ammonium chloride such as 1/16 teaspoon or 1/10 teaspoon ammonium chloride dissolved in 1 glass of water is drank at only 1/3 of that and then later at 1/3 and finally in evening at 1/3 or whatever left over. This is a fairly low dose to killing off the fungus. The ammonium chloride is a diuretic, clears fungus from the system, and may cause warming initially as the body detox and should clear up some of the skin problem. In any event application on the thryoid externally is one way to do it, although a mild approach will reduce inflammation s thyroid can produce normally without excess reliance on hormone replacelement. In excess the body become to dependent and cause a thyroid shutdown, which can last for days in some cases, even a natural Amour thyroid.

Another remedy that seems to digest certain kinds of lupus is the bloodroot tincture. The remedy is 2-6 drops of bloodroot tincture in ethanol (not methanol) dissolved in 1/2 glass of water three times a day. The bloodroot tincture will digest certain lupus that caused inflammation and most notably reduce up to 90% of pain in a couple of cases I encountered.

If there is anything I like to add, I would just say the important remedy is always borax, hydrogen peroxide, bloodroot tincture, baking soda, potassium citrate (as used in alkalizing remedies) chlorella and spirulina and magnesium. Iodine drops helps thyroid functions, as in lugols solution for example. The newest remedy I am updating here is the ammonium chloride or ammonium bicarbonate to reduce glandular inflammation so that once inflammation isn't there, the glandular functions can work, especially when taken at very small amount internally can turn on many glandular functions as is borax. In fact the antifungal that neutralize fungus are the borax and ammonium chloride. Hydrogen peroxide helps, but it's effect are short term lasting a couple of hours on energy. It clears the blood for all three - namely borax, ammonium chloride and hydrogen peroxide, not taken at the same time, of course. The hydrogen peroxide drops is taken separately. The ammonium is divided in three dose, and borax is in dirnking water. But a borax and hydrogen peroxide can be combined in practice. For example, in one liter of water 30 drops of 3% H2O2 (some like 20 drops) plus 1/8 teaspoon of borax (or 1/4 depending on the size and the results).

A xylitol is an interesting one that deserves mentioned in itself. If the body is properly alkalize the xylitol will prevent further infection, but if taken alone leads to pain, if not propearly alkalized. It helps reduce infection by preventing attachment. So it's a two edge sword. I used them for urinary tract infection.

Sea salt is an important remedy in lupus and the dose is between 1/8 to 1/2 teaspoon per glass. Preferable dose is likely to be closer to 1/8 to 1/4 teaspoon per day. The dose can also be mixed in the borax/hydrogen peroxide in the drinking water also. So we can call this borax/hydrogen peroxide/sea salt in one liter of drinking water solution.

Diet control are important to avoid a flare up, especially white sugar, honey, white flour and overcooked meats, and steaks. Fish and vegetables are generally safer and yes, millet and brown rice are generally the best grains, but taken not too much.

A supporting remedy not mentioned but support liver function is granulated lecithin taken at one tablespoon a day which reduces liver congestion and also help reduce blood sugar. Drinking plenty of water during meals prevent blood sugar spikes that normally result in inflammation during lunch that occurs around afternoon. Thus if liquids were driank before during and after meal, the inflammation would redusce as liquies would reduce the blood sugar spikes that caused the inflammation and weakness that occured after meals.

A good pH balance needs potassium also, not just baking soda and muscle pain may be most helpful with the magnesium.

Ted

Replied by Mara
(Canada)
01/15/2016

Please help. I just purchased bloodroot tincture and the bottle says external use only. I am afraid to ingest it. Are they forced to say that on the bottle?

Has anyone had good results with its use? Thank you for any help you can offer.


LDN Plus Immune Supplements

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Posted by Candybeagle (Ohio) on 01/12/2018
4 out of 5 stars

I have lupus/scleroderma. I went on low dose Naltrexone about a year ago. I find I have very good results with this. Plus I take a lot of supplements. My disease I feel has not progressed as others have. I decided after my forth Rheum. that I was NOT going to go the synthetic drug route. All of which do destruction to organs and the immune system. I found that immune modulating supplements really help.

Borax, ACV, Colostrum, D3, Taurine, Selenium, magnesium, Vit C, Lecithin, Ubiquinol, fermented fish oil, B complex, inhaled peroxide, etc...have all helped me to make this disease bearable.

When ever you go DRs and they say...there is no cure for this...I start asking myself...then why should I take the drugs? At the risk of damaging other parts of my body. My alternative med. Dr.said, You can take the drugs but it will kill you faster than the disease. He was right. I had to have some Depomedrol in my ear for hearing loss, I developed all sorts of side effects. That was enough for me. I found that using the information from this website and other natural forums have proven invaluable to me. Am I cured...no but is my quality of life good...yes and I have had this for 7 years. I feel blessed to have found this site and recommend to my other AI sufferers also. WE who have these diseases know from experience what is helping and by sharing can possibly help others. God Bless all of you who contribute to this site. It's an invaluable resource.


Lupus Caused by Medication

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Posted by Janet (UK) on 06/13/2006
5 out of 5 stars

I would like to say that I totally agree with Ted's solution to this disease. Only thing is, I believe lupus is caused by the medication that they give you in the first place. Let's face it, the drugs they give out have been tested on animals. We do not have the same metabolism as these creatures that they test on. You cannot compare a rat's immune system to an adult's. We all know that these venom can eat from contaminated substances. "We can't," not without some awful result. A rat's immune system is probably over a thousand times stronger than any human being. So how can they compare drugs and these levels. I have lupus and I do not take anything anymore. I have been taking Pharmerton vitamins. And also been adviced on getting Hempseed oil, Pumpkinseed oil and Hemp Tea. It detoxes the body. I stopped taking the medication 4 months ago. I was getting so ill, and taking so many pills, loss of memory, all the things that go with rheumatoid. Then I realised that if I did not stop taking these drugs, I would definately die. I have not felt this good for two years. I won't even let them take a blood test. they are not sticking another needle in me. Taking blood from the system on a regular basis, cannot possibly to the human body any favours, especially if one is poorly, the last thing we should do to a sick person is to take a lot of blood. One drop of blood can tell so much. When are we going to learn. All lupus is caused by anti-inflammateries. etc., Your immune system lets them take over their work, so the immune system forgets how to protect, because something else has done it for it. I could go on forever. I will be writing and letting everyone know the true awful experience of the last 12 years of so called trusting NHS. So Ted, good on you my dear friend. I am spreading the word.

Replied by Ted
(Bangkok, Thailand)
383 posts

Yes lupus can also be caused by all the dangerous medication we take. I agree, I nearly died because of it.

If medication is the cause, detoxification will work for you. One extra bit of information about detoxification is that my list of detox medicine I use is short, but effective. Here is my own list of things that if I would detox I would take:

Detoxification of harmful chemicals, I would use: MSM (allow removal of toxic chemical out of cells), disodium EDTA (removes heavy metal), sodium thiosulfate (detox chlorine), indole 3 carbinol (detoxes Dioxin TCDD and pseudoestrogen), borax (removes fluoride), citric acid+baking soda (removes free radical metals and reduce inflammation, while maintains stable pH), and creatine monohydrate (removes formaldehyde). Intestinal detoxification, no need to mention here, other websites has good info. Usually a simple way to induce a major loose stool is baking soda + sea salt at one half teaspoon each. Do not go anywhere for the next 3 hours! If dose is too low, just double it. To restore liver function, just tumeric or curcumin and milk thristle. To restore immune function & support, just try seaweed, kelp as a good iodine source, and take echinacea to increase body immune system. Taking some secretogens to increase human growth hormones such as L-glutamine (2 grams) or possibly niacin + aspirin (taken 30 minutes before to prevent flushing) and L-glycine will help restore and rebuild cellular functions. And since most of people who has been sick for a long time, adrenal exhaustion is quite common. Taking licorice extract and DHEA, all components of adrenal glands will really help. Just my own short list of supplements that will detoxify. You mentioned the use of Hempseed oil, Pumpkinseed oil and Hemp Tea. Those you mentioned are good, but in some countries, hemp is illegal. I would like to get it myself, but it is illegal here also.



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