... Also, for Lupus people, they tend to be sensitive to electromagnetic frequencies. I have personally found that simply not putting a cell phone or a cordless telephone up to my head greatly improved my autoimmune symptoms than just with diet alone. It turns out, that electromagnetic frequencies also block melatonin synthesis.
Finally, if you have lupus and Raynaud's and live somewhere where it is cold, Raynaud's is closely linked to low thyroid function on exposure to cold weather. Raynaud's has been cured by treating the thyroid. City tapwater has caused most of the lupus symptoms for me...its the pipes and the water that flows through them.
Tulane Medical School has recently isolated Type A retro virus in people who have Lupus, Jouvenile R.Arthritis, Graves disease. This is the first time Type A retrovirus has been found in humans. Lupus apparently is not caused by auto-antigen or nucleic acid deficiency. But we really didn't need Tulane Medical School to prove this, Just look at the disease patterns. The disease patterns truly match those patterns of viral infections. Dormancy vs Active cycles, non-specific tissue inflamation that starts with pockets of tissue not entire system of tissues. Spreading to adjacent tissues and organs. Most alternative treatments being used today can be found on this site and others. For Lupus they either contain alkaline substances which inhibbit viral replication,or polyphenols which donate oxygen to the cell, (after losing H+ ions,)or chlorophyll which potentiates oxygen, or quinones which are strong industrial oxidizers. DMSO is another oxygen donor exploiting sulfate molecule's oxygen binding properties. Just examine these structures they all have one thing in common,...oxygen. The truth is anything that increases alkalinity also increases oxygen perfusion into cells as oxygen carries negative polarity and will be attracted to a more alkaline cellular environments. (Otto Warburg Nobel Prize) You can't change the ph of blood, but you can change the ph inside of cells. The very latest in research proving Lupus is caused by a virus can be found at: AmericanCancerAdvocates.com, a research site. Sincerely Bret Peirce
Natural medicine for lupus. I have a friend who was diagnosed with lupus 36 yrs ago developed kidney cancer and given 6 months to live. He went to natural, herbal medicine and here 36 yrs later still dealing w/ certain symtoms but still at 73 working and living faily normal life cancer gone. I do believe in holistic medicine. I know of more cases of lupus w/ same result.
Hi, I cured myself of Lupus within months by taking 25 drops hydrogen peroxide (food grade 35%) in 8oz water 3 times a day as well as this cured my vasculitis on my legs! I also combined this treatment with a purely homemade vegan diet (the RAVE diet) as well as green smoothies every day! Of course supplements helped as well, but I really feel the hydrogen peroxide cured me, as I was disparing 6 months ago with a lot of pain/swelling and fatigue and very high C-reactive protein levels in my blood.
Hope this helps others...
(White Plains, Ny)
I take Hydroxycloroquine once a day. It has stopped my Lupus from worsening. I also use Tylenol Arthritis as needed for pain.
I've had SLE since I was 18 but at that time there wasn't much information and it was still in the beginning stages researching symptoms, I know now but didn't know at the time, LUPUS can have a false positive syphilis test and I was treated for it at that time. I was going to HARBOR GENERAL UCLA IN CARSON CALIF.
I had the butterfly patch, I also had hair falling out where my hair was parted, a patch on the back of my arm round that looked like my butterfly a cross my nose and under my eyes and another one on the back of my calf that was the same size as the one on my arm.
I also had severe pain in my joints and getting out of bed was extremely difficult as my day progress movement became easier.. I was spilling protein in my urine around +2'.
My doctor told me I wouldn't be able to take birth control any more so 2 months after taking me off of them I became pregnant 2 months later. While I was pregnant, my doctor explained to me that having my baby was very risky, I felt wonderful pregnant and if I had it my way I wanted to be pregnant forever... I had complications during my 6th month and was in the hospital for a week. I had my baby 2 days before my due date and she and I were healthy.
Right after giving birth the put me on prednisone and several other medications. I've been in and out of the hospital several times. I also was on dialysis for 6 1/2 yrs then I received a kidney from my sister. During the work up, they cross match you with the donor, then after they're done working up the smoothest cross match both of you again and I didn't match. They asked if I would like to be in a study called IVIg STUDY (Intravenous Immunoglobulin). I agreed. YOU get 4 treatments and you know after the first one if it's working,
I was blessed and it worked. The last treatment is done when the transplant itself is being performed. It's been 15 yrs, 4/11/00 and my kidney, function is still working and my labs are well as expected.
I have developed other problems through the years, DVT GERD, COPD, HYPERTENSION, CHRONIC PAIN IN MY LOWER EXTREMITIES. There are more pills I take, just more then I want to explain.
If you would like to ask questions feel free to ask. I did clot almost every other treatment on dialysis. I take roughly 30 pills a day now.
Just in response to Ted's info on Lupus (Ted if you're reading this I hope you'll add any new info you have) I am in serious stages of Systemic Lupus (most all organs involved) along with Gulf War Illness. I work hard to use as many natural things as I can to help my condition and have used some of Ted's suggestions. Here's my two-cents worth: (1)-in reference to SUGARS-definitely stay away from as much as possible. People with Lupus are very Sugar sensitive and I think it damages Lupus sufferers greatly. GO ORGANIC WITH AS MUCH AS POSSIBLE IN ALL AREAS of your food because chemicals, hormones, pesticides...are deadly for us. With SUGARs-go with "BROWN RICE SYRUP or XYLITOL or fructose or glycerin" in SMALL, tiny amounts only once a day or less...but NOT WHITE SUGAR or sadly even honey and all natural jams and syrups cause great problems too. NO CHEMICAL SWEETNERS either (2)-GRAINS--GO ORGANIC and yes stay away from the high GLUTEN grains. I do best with MILLET which is a protein and not a grain. STAY AWAY FROM YEAST AS MUCH AS POSSIBLE---go with yeast free breads (try Millet Zuchini Bread from the Deland Bakery in Deland Florida--they ship to alot of Health Food stores--most of their breads are yeast free and Millet. (3) THYROID--I found with myself and others that Lupus sufferers have very inflammed Thyroids and terribly malfunctioning ADRENAL glands. For my Thyroid I take Armour Thyroid a natural Thyroid gland extract (presciption) and IODINE drops--I take about 7 drops of Iodine a day in a glass of water. For my Adrenal glands I have yet to find anything that helps except SALT--use SEA SALT WHEN YOU FEEL WEAK---also LOTS OF SLEEP and NO STRESS...that is the only thing that helps so far...I hope for a better answer but NO STEROIDS especially if you are in more advanced stages like myself and have bone and muscle wasting from the Raynauds--dont take steroids it will worsen. I do take 7-Keto DHEA but it only helps a little. Many Lupus sufferers have been through alot of abuse--like family or spousal abuse---GET AWAY FROM IT ALL if you have to. If the people around you dont understand and help you to lead a stress-free life, you have to get away from them to save your life (Sad to say but so true and necessary--find supportive friends or counselors that will let you talk--People with Lupus tend to be the ones to help everyone else and hold their problems inside. You cant live that way and value your life enough to find good, stable-minded friends) (4)In reference to ORGANIC FOODS--I find concerning DAIRY and MEATS that if I go ORGANIC it solves the problem. Regular foods are so high in pesticides and hormones and chemicals--that is what is causing the problem NOT THE FOOD ITSELF. I eat ORGANIC DAIRY like organic milk, cheese, goat cheese, plain yogurt and butter. The PROTEINS AND CALCIUM are CRUCIAL for helping Lupus. YOU NEED PROTEIN AND CALCIUM. Same with your MEATS--go ORGANIC--you NEED THE PROTEIN and healthy FATS--they are all CRUCIAL. I know Organic is more expensive but the prices are getting better all the time...your body is worth it. At many Health Food Markets they have many items you can buy in BULK and the SAVINGS there will offset the higher costs of dairy, meats and produce (fruits and veg). BUT I do recommend LESSENING the GRAINS--I stay mostly with Millet and a little Brown Rice and Spelt is OK--you just have to try them and see what works best for you...but go with no/low gluten and yeast free and organic if possible. (5) I've tried balancing my PH like Ted recommends and it is hard to stay with that to get results but I do think it is important I just havent figured out the best way to stay with it (6) And YES--go through a TOXIC METAL cleanse--I've tried many including I.V. EDTA and it only helped a little. I'm presently doing "METAL SHIELD" sold by SWANSON vitamins and am hopeing for good results there but dont know yet. (7) Find a doctor or naturopath that can work with BALANCING YOUR HORMONE LEVELS and can get a Hair Follicle test done to see embalances---then look for natural ways to balance (8) My only other suggestion is to GO THROUGH LIFE VERY SLOWLY !! DONT RUSH AT ANYTHING YOU DO and if others dont understand it, they will have to learn to. The Immune System revs up with fast movement and your Immune System is already attacking you own body--FAST MOVEMENT like working, walking, speaking, and exercising fast make you worse and it attacks the body worse and raises your fever. Yes have some movement through out your day but go through it slowly like kind of slow motion...even allow yourself to THINK slowly. People with Lupus have probably gone through life at a very FAST PACE and always used to accomplishing ALOT in life...your body is worn out--let it rest and move slowly --YOU MUST GET RECUPERATIVE SLEEP AND REST>. (9) TMJ and neck and back problems can be an issue. If you have a TMJ problem-find a dentist to make you what is called an "ANTERIOR ORTHOTIC SPLINT" where at night when you sleep, you only touch the anterior teeth to balance your jaw like a FULCRUM. That is all with that --I wouldnt do anything else they suggest because these dentist can make the problem worse !! LASTLY -- the only medicines I recommend are to help you sleep better, natural Thyroid medicine and maybe Lasix for body swelling although there are natural diuretics too. Nothing else has helped me. If you sleep fine without an aid then go without those, but sleep is important. GOD BLESS and I hope this helps someone--jacquelyn (Hi to Ted if you're out there)"
03/01/2009: Jacquelyn from Ocala, Florida writes, "Also for Lupus sufferers, I forgot to mention--IF YOU SUFFER WITH YOUR "BOWELS" NOT WORKING...try a little teaspoon of PSYLLIUM and 1/2 MAGNESIUM CITRITE tablet of 200mg in the morning with fruit in a blender...then at your evening take 1/2 to whole MAGNESIUM tablet with your evening MEAL. NOTHING else has ever worked for me. It's important to keep your bowels moving daily. If the magnesium makes your bowels to liquid then just cut back a little on dose but dont stop taking or increase if not moving well. Also dont be hesitant about using suppositories and saline enemas--do what is necessary to keep your bowels moving. God bless, Jacquelyn"
03/01/2009: Jacquelyn from Ocala, Florida writes, "More on Lupus---(I keep thinking of things to suggest) Eat alot of RAW ORGANIC VEGETABLES especially anthing Green EXCEPT Lettuces and Green Peppers or difficult to digest vegetables. RAW ASPARAGUSS and RAW CELERY help to rid the body of excess fluids. I just put them in the blender with water and drink it down no matter how it tastes. Green LEAFY vegetables have lots of digestive enzymes...like Spinach, Dandelion, Or mixed Baby Greens...I also throw in Zucchini...anything GREEN except the lettuces and I've read where Kale inhibits Iodine from absorbing into your Thyroid so I dont generally use that one. BUT RAW and ORGANIC IS SO IMPORTANT to get daily. Not too much of the Starchy ones like potatoes and carrots or beats--just limit them. VERY VERY VERY IMPORTANT__STAY AWAY FROM COOKED TOMATOES AND TOMATO SAUCES especially combined with white flour pastas...and no raw onions, no raw peppers...The body just cant digest well. Cooked Tomatoes and white pasta are LETHAL --I dont know why, they just are...can cause lots of joint swelling and inflammation. No alfalfa sprouts either. Hope this helps--Jacquelyn
I have lupus/scleroderma. I went on low dose Naltrexone about a year ago. I find I have very good results with this. Plus I take a lot of supplements. My disease I feel has not progressed as others have. I decided after my forth Rheum. that I was NOT going to go the synthetic drug route. All of which do destruction to organs and the immune system. I found that immune modulating supplements really help.
Borax, ACV, Colostrum, D3, Taurine, Selenium, magnesium, Vit C, Lecithin, Ubiquinol, fermented fish oil, B complex, inhaled peroxide, etc...have all helped me to make this disease bearable.
When ever you go DRs and they say...there is no cure for this...I start asking myself...then why should I take the drugs? At the risk of damaging other parts of my body. My alternative med. Dr.said, You can take the drugs but it will kill you faster than the disease. He was right. I had to have some Depomedrol in my ear for hearing loss, I developed all sorts of side effects. That was enough for me. I found that using the information from this website and other natural forums have proven invaluable to me. Am I cured...no but is my quality of life good...yes and I have had this for 7 years. I feel blessed to have found this site and recommend to my other AI sufferers also. WE who have these diseases know from experience what is helping and by sharing can possibly help others. God Bless all of you who contribute to this site. It's an invaluable resource.
I would like to say that I totally agree with Ted's solution to this disease. Only thing is, I believe lupus is caused by the medication that they give you in the first place. Let's face it, the drugs they give out have been tested on animals. We do not have the same metabolism as these creatures that they test on. You cannot compare a rat's immune system to an adult's. We all know that these venom can eat from contaminated substances. "We can't," not without some awful result. A rat's immune system is probably over a thousand times stronger than any human being. So how can they compare drugs and these levels. I have lupus and I do not take anything anymore. I have been taking Pharmerton vitamins. And also been adviced on getting Hempseed oil, Pumpkinseed oil and Hemp Tea. It detoxes the body. I stopped taking the medication 4 months ago. I was getting so ill, and taking so many pills, loss of memory, all the things that go with rheumatoid. Then I realised that if I did not stop taking these drugs, I would definately die. I have not felt this good for two years. I won't even let them take a blood test. they are not sticking another needle in me. Taking blood from the system on a regular basis, cannot possibly to the human body any favours, especially if one is poorly, the last thing we should do to a sick person is to take a lot of blood. One drop of blood can tell so much. When are we going to learn. All lupus is caused by anti-inflammateries. etc., Your immune system lets them take over their work, so the immune system forgets how to protect, because something else has done it for it. I could go on forever. I will be writing and letting everyone know the true awful experience of the last 12 years of so called trusting NHS. So Ted, good on you my dear friend. I am spreading the word.
I was diagnosed in 2007 with severe Lupus Nephritis which was causing renal failure. I was put on cytoxin treatment and everthing was going great until my recent flare here in march. I'm back on prednizone which helps but my kidney function is starting to go again. Any advice would help greatly. I'm kind of afraid of taking too many things different because I have so many filter in my kidneys completely scarred over. Please post some thought on this subject. Or someone who has this type of Lupus.
(Quezon City, Philippines)
(Tustin, Ca. Usa)
Fungal infections are sometimes associated with Lupus. There is a case from 100 years ago of Lupus being cured with iodine.
Treatment of Lupus with Sodium Iodide:
Mega-Iodine Supplementation info:
http://www.vrp.com/articles.aspx?page=LIST&ProdID=1781&qid=&zTYPE=2 (Gets rid of Bromine, Mercury, Lead, Aluminum) (kills fungus as well)
Aspergillus Mastoiditis in a Patient with Systemic Lupus Erythematosus: A Case Report http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1150873
Aspergillus can be a devastating fungus if it gets a foothold in humans. Ergot is a particularly nasty mycotoxin.
Note: I don't have Lupus or know of anybody being cured, like this one case study from 100 years ago. I would suggest taking Ted's advice, first. However, an Iodine supplement like Lugols or Iodoral may not be a bad additional supplement.
I was diagnosed w/SLE at 12. I'm 43 now and 20+ years on hemodialysis. No kidney function,transplant didn't work,EVER. Chems A+. Still have some sort of autoimmune disease. unknown. Going gluten free,etc. I think diet, environment, bad DNA caused my lupus. They plugged me full of prednisone, which caused ESRD--dialysis. Now I'm stuck because my kidneys don't exist, and I'm trying to fight off another autoimmune. Ted, you're a genius. I hate American Medicine and their 'pimps'. ADVICE: Get lupus before it gets your organs--dialysis, transplant,death.
Hello, I had suffered with Lupus for two years before dietary changes improved my condition immensely.
First, you must stop drinking alcohol and smoking. It hinders all other things you are doing to improve your health.
Next, change your diet. Start including salmon, fruits, vegetables and green leafy salads. Drink lots of water. And finally add these supplements: vitamin E-100 IUs, Panothenic Acid -500 mgs and Manganese- 50mgs. Take these daily. I also took a strong multi-vitamin called "Stress tabs."
Although I can't get a doctor to say I am "cured." I have gotten them to use the words: "in remission."
My medical doctor said there is now research that vitamin E negatively affects the heart but temporarily it should be fine. (right?)
My Lupus disease was severe with rheumatoid arthritis, hair loss, blood clotting and severe fatigue. Now, you would never know I was ever sick. I am healthier than most women I know my age and younger.
Thank you for this website...you have changed my life for the better.
(Fort Wayne, Indiana)
(Vass, North Carolina)
(Las Vegas, Nv Usa)
Ted, I recently read an post on here answering a question about Miracle Mineral Supplement, & as I have thought of trying it to help get rid of my candida, I read it. I noticed you mentioned it has been used to treat malaria, as my Plaquenils also are. I have been on Plaquenil for a few years to treat the lupus I have.
Is there a danger if I take the MMS while I am on Plaquenil?
I am trying to remedy my Lupus by being on a candida diet, (since I have found this site) & I am doing the Borax thing along with the baking soda also. I have bought some probiotics, liquid, from the health food store, but noticed there is sugar in it, I am holding off on taking it.
I suffer SLE & DLE Fibromyalgia and have a congested heart (regurgitating valves) for 6 years I am also Hispanic, NOT from Mexico, in my family there is no history what so ever of any immune diseases, the food we ate as children and the nutritional value was very high and healthy. I have taken all medicine there is or will be out to treat the decease, compounds, combined, cocktails nothing worked, I felt like a guinea pig, was 111 Lbs.when I started taking the meds, gained 70 Lbs. in less than 3 months with the steroids, which put more than I could handle anl along with the pain, was horrible. I was told about Organic Sulfer (Pure MSM) not combined with anything else in pill form but I had to take to many it was 45 pills a day, and still did not have relief, then someone else told me to take it in powder form, to take it untill the pain was gone, to start with one teaspoon, and increase the dosage untill my stomack felt warm and I felt as if I was going to get the runs, but not quite get them. So I did, got the powder form MSM (organic sulfer) not to be confused with "Sulfa" very diferent one from the other; I take 3 tablespoons in 2 ounces of warm water (to disolve faster) it's bitter, and I mean it, but when you have experienced the type of pain associated with Lupus you are willing to take almost anything, then I chase it with fresh squeezed orange juice vitamin "C" helps your body absorb it better and helps get read of the bitterness in your mouth after ingestion; my goodness that was the PANACEA of all inflamation in and out of my body. Doctors do not recomend it and will sometimes tell you that it does not work because they make no profit from it. Simple fact. This powder is totaly organic, no additives, no drugs of any kind I am not adverticing MSM, I don't sell it, I am just passing the information along; I doi the same way it was passed on to me, I can only tell you what it has done for me and the people I have shared it with. I even tell them not to buy it, I give them the powder to try, if they see the effect they need, then they can buy it, it's not expensive (compared to the meds Dr.s prescribe) I can move again, I am not cured, this powder makes my life livable and bearable, not simptom free, or decease free, but it allows me to leave and enjoy a bit of a better quality of life.