Holistic Therapy: Lupus (Systemic Lupus Erythematosus)

Multiple Remedies  

Posted by Peggy (Cresskill, NJ) on 09/19/2012

Hello all~~~ First let me say, I am glad to have stumbled on you all. Other patients, contributors, I have never soaked up so much information in all my life. Even with a strong medical background, instant connections were swirling around so quickly - I didn't know what I wanted to do first! The last twelve years has been a struggle living with SLE. My lungs & bones are affected, chronic pain due to bone degeneration, herniations, and compression fractures has left me but a sliver of the person I used to be. At 38, with three small children, my life seemed to be so far away. I knew the treatment was killing me. Treatment for my complications always involved high dose steroids, then chemotherapy, then supposedly a Lifetime of Immunosuppressive drugs..... If for nothing else, don't tell me I can't do something, or there isn't anything else you can do for me. Funny, that's exactly when Professionals start to blame symptoms on depression!

I found the closest, most trusted homeopath I could get to - now disabled & in a wheelchair due to pain. She was my first angel & I started on the road less traveled. I still don't believe that if anyone else had heard this prognosis they wouldn't have looked elsewhere for help. My journey began with alkalinizing & purifying all water, a liver detox and immune support. This truly was the only time I had feelings of what I used to be. I was capable of so little, I'm not sure how I got through with so little home support. Now, friends & family jumped on the "crazy" bandwagon. As they kept themselves busy, I improved. With the support of a pain interventionist, I can now walk 50 feet with a cane, food shop holding on to the cart & cook 5 nights/wk, the decent food my family needs too.

This year I found a second angel to build on the routine, I wanted to feel better & knew I could with support. Then I found you, found the first true hope & healing in all these years.... Now, if I can organize this plan, I will be very busy. I continue ph Balance, through clean, ionized water mixed with baking soda & ACV, candida support, dairy free probiotics & enzymes with meals, immune modulation with colostrum & peptides, neurological support with B vitamins & Antioxidants & free radical scavengers. I continue liver support & use DMSO for pain & inflammation. I have seen a glimpse of how good I will feel, as I have also had to move slowly due to Herxheimer reaction. I read as much as I can & see that many recommend following a celiac diet & new suggestions for vitamins & amino acids for energy & acupuncture for ongoing pain. I really needed to thank all of you for taking the time to post & care. I have never felt this level of hope. I know I have a long way to go, positivity seems to make all the difference. I only hope as I improve I can inspire someone as you all did for me & continue to pay it Forward... Thanks again~~~~~~~

Replied by Rsw
Uniontown, Oh

Dr. Gluck (a Harvard educated expert on LDN) had two aunts with lupus. He asked them if they wanted to try Low dose naltrexone. They did, and in a month they were both doing well. Lupus is an autoimmune disease that responds very well to LDN, a harmless, no side effect FDA approved drug. See www.ldninfo.org or read Julia Schopick's best seller, "Honest Medicine. ". Be well.

Salt Therapy  

Posted by Neal (Asheville, North Carolina Usa) on 02/20/2013

Hello Ted, I was wondering if you had any information about using salt therapy in the treatment of Lupus? By salt therapy I am referring to a manufactured salt micro climate similar to what is found in a salt mine. I have 'built' a micro climate of Himalayan and Polish salt from approximately 20 tons of salt mined from approximately 1-2 miles underground from salt that is about 200 million years old. This 'cave' is a controlled environment kept at between 67-72 degrees fahrenheit and 50-60% humidity. This mimics the conditions in a salt mine.

This type of treatment has been shown to be beneficial for respiratory problems (asthma, bronchitis, allergies), dermatologic problems (eczema, psoriasis, acne), hypertension, stomach disorders, stress, and some autoimmune diseases, but have not found specific guidelines for Lupus.

Could you let me know of any findings you have that might support this treatment for sufferers of Lupus. Thank you, Neal from Sola

Replied by Keri
West Virginia

Did the salt cave therapy ever help?


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Posted by Gricel (Dallas, Tx) on 01/11/2016
5 out of 5 stars

I have lupus, with kidney related problems, I was on dialysis for 6 months and taking steroids before I started my road to recovery with natural remedies, my DNA us still positive but overall I feel good most of the time, I have taken many products over the years, but the ones that have worked the most are a multi vitamin with minerals.

I am a woman so I feel that hormones play a role in my lupus as well, so I also take DNA 50mg a day in combination with dong quai, damiana, and maca, I use half the dose as directed by the bottle.

For the inflammation I use fish oil, 2,000 mg per day or more sometimes, and for kidney I use kidney support from Tibetan Herbal Balance.

Even though my lupus is still active I don't have to take all the crap from the doctors, hope this helps other people

Posted by Deborah (New York, NY) on 04/01/2012
5 out of 5 stars

Last year I was diagnosed with cutaneous lupus. I have two large skin patches one on my arm and one on my left butt cheek. These are itchy and feel bruised and have also atrophied to leave a concave indentation in my flesh. I am told that this is because the inflammation is in my subcutanaeous fat. I'd like to say I have found a cure for these but I have not - yet. HOWEVER. I began to have accompanying joint pain - terrible nipping pains and feeling constantly like I had been in a car accident - an all over feeling off stiffness and bad bruising. It was debilitating and depressing. Through exhaustive research, trial and error I have found two supplements that are working for me and have decreased the pain SIGNIFICANTLY. One is CM - cetyl myristoleate. I would advise Googling it and doing your own research but I could find no down side. The other is Perna - green lipped mussel extract - a fairly high dose. I began taking these two things together and initially my symptoms worsened but suddenly and quite dramatically the pain lifted. I do think these are worth a try for anyone suffering from chronic joint pain. They certainly changed my life.

One more note on the lupus. I have recently been seeing a new and very good naturopath. Through stool testing for parasites we discovered that I have a very high level of the parasite blastocystis hominis. Also of candida. I knew about the candida and that it was probably part of the lupus causing package but the parasite is a new and interesting development. I will be treating both of these things appropriately with herbs and continued healthy diet (I am completely gluten, caffeine, dairy, soy, alcohol, sugar, nightshade and red meat free; I am a great cook and its really not as hard as it sounds) and will be very curious to see the health benefits of getting rid of these critters. My naturopath feels that they could very likely be a major contributing factor to the jangling of my nervous/immune system that caused the lupus. I will report back with results and would love to hear if anyone else has discovered a parasite/lupus link. If I can help or support anyone else in their healing journey please let me know. Thanks and good health to all.

Replied by Chris
San Luis Obispo, Ca

I would live to try something homeopathic, but my body us so reactive right now. My Dr.Is not supportive of supplements. This site actually made me more scared. Reading people with Lupus die 10 years after diagnosis? I have never read that. The lists of suppliments and ideas are great but where do you begin? It so overwhelming!

Replied by Rsw

Hi Chris,

The first thing I would try for Lupus is LDN (low dose naltrexone). It will help moderate your immune system, not kill your immune system like many of the current medical options do. It has been known to be effective for Lupus. It can be taken with any other drug EXCEPT opiate based drugs, because they both compete for the same receptor sites, and LDN will always win, potentially throwing an opiate drug user into a dangerous withdrawal. It is a FDA approved drug at 50mg/day for addicts, but has been found to be very effective for a wide range of autoimmune, and other diseases at 1- 4.5mg/ day by a Harvard educated physician. It is out of patent and very inexpensive. You can read the official LDN site here:


That site will enable you to sign up for a Yahoo LDN Group with over 12,000 members who use LDN for various reasons, many with MS. They are very helpful and willing to answer any questions you may have. It is a non-toxic, non-addictive, no side effects drug that can be taken any time of day, so if sleep issues are a problem, it can be taken in the morning. I hope you will check it out. I have taken it myself for six years. You can also read about it in Julia Shoepick's best seller, "Honest Medicine." Best wishes.

Replied by Margie
Harrison, Arkansas

Wondering how the parasite results went?

Replied by Desma
Knoxville, Tn

Hi Deborah,

Curious to see how the blastocystis hominis treatment worked for you. I am also trying this.

Posted by Ineke Leer (Walker, MN) on 04/10/2009

Hi: My name is Ineke, I found out I had Lupus 4 weeks ago. I am on predisone and hydroxychoroquine. What a combo.....The predisone only works if taken in doses of 30 mg a day or higher. Its not the drug for me to be on. Can't sleep through the night and it makes me very edgy. Anyway I started taking Olive Leaf extract 2 capsules twice daily, msm 2000 mg twice daily, probiotic enzyme two tablets a day, purce bovine colostrum from first milking, and I had adjusted my diet, I do notice that sugar.....bad......refined carbs, bad.....so far it hasn't made a difference, buts its only been 5 days since I started the natural supplements,, but, I am hopeful for results.

Any advise is welcomed.

Replied by Theola Williams
Gainesville, Florida

Stay Motivated and try not to stress!!! MESSAGE TO ALL!!!

Posted by Ineke Leer (Walker, MN) on 04/10/2009

Hi: My name is Ineke, I found out I had Lupus 4 weeks ago. I am on predisone and hydroxychoroquine. What a combo.....The predisone only works if taken in doses of 30 mg a day or higher. Its not the drug for me to be on. Can't sleep through the night and it makes me very edgy. Anyway I started taking Olive Leaf extract 2 capsules twice daily, msm 2000 mg twice daily, probiotic enzyme two tablets a day, purce bovine colostrum from first milking, and I had adjusted my diet, I do notice that sugar.....bad......refined carbs, bad.....so far it hasn't made a difference, buts its only been 5 days since I started the natural supplements,, but, I am hopeful for results.

Any advise is welcomed.

Replied by Mona
Ny, Us

I caught an infection from trying on pants in a store that someone had before and now I have the disease. I find that if you try homeopathy, there was clearly no other choice after trying traditional medicine. I also find that with homeopathic medicine, nothing happens at first until 6mo-1 yr. later and then it finally works. Problem is with that though, if you don't know what you're doing and you're just testing alternative therapies, you can waste a long time on the wrong alternative medicine.

Replied by Theola Williams
Gainesville, Florida
5 out of 5 stars

My name is Theola, from Gainesville, FL. I have been dx with Lupus for two years, and it has been a real long journey. I have been drinking hot sage tea which helps with my inflamation and joint pain. I hate taking steroids bc it makes me eat like a run away slave and gain weight. I'm starting to take more vitamins, and its really helping. Im thanking god im still here. Bless all!!!

Replied by Marie
Houston, Tx

Can someone please help me? I have been dealing with a skin burning problem for over 10 years when exposed to UV computer screens, TVs, lighting in stores, regular light, and sun. It's feels like a burn/inflammation. I think it might be connected to lupus as I had the rash 10 years ago. The rash never came back but the burning is relentless. I've tried fish oil, turmeric, acv, eating only veggies, vit e (which helps a little), cinnamon, and so so many other things to no avail. I work at a computer for 8 hours so I can't escape the burn. My whole life revolves around avoiding any kind of light, cooking in the dark, going blind b/c I have to turn down my computer screen so dark so I don't burn. Has anyone heard of this? Is there a cure? I'll try anything!

Replied by Rush

you haven't been around any giant hogweed have you? Contact can make your skin still sensitive and burn in light even years later


Replied by Mmsg
Somewhere, Europe

have you tried evo (coconut oil)?

Replied by William

If it were me, I would try tomato paste mixed with olive oil. Google that and see what you think.

Replied by Constance

Look into Electromagnetic Frequency poisoning.....happens with smart meters on your house and other electronics......computer routers, smart cell phones, digital home phones, etc.

Replied by Brian

Sounds like porphyria.

Ted's Remedies  

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Posted by Altaf (Mumbai, India) on 08/17/2013

Ted: my sister aged 32 yrs was diagnosed of systemic lupus erythromatosis (SLE) in 2007 and has been on med: steroid (Prednisolone), non-steroid (methotrexate and hydroxychloroquine), warfarin (Acitrome), metaxcel (for endocarditis) and much more with some improvement in the past 6 years. Recently I came across this website with natural remedies which I got interested to try for my sister. I have recently (13/08/2013) started her with baking soda (Na-bi-carbonate) (1/2 tea spoon in half glass of filtered water) in the morning on empty stomach and before bedtime (at least 2hrs after dinner). Today (17/08/2013) morning (it was baking soda off day) when she took 2 teaspoons of sea salt with one glass of water on empty stomach (as suggested by you in one of your article on 'want to know top 10 lupus supplements') which I thought worth trying. But she could hold this in her stomach for an hour before she vomitted and soon followed by diarrhoea. Is this expected and okay? I plan to start her on borax (1/8th tea spoon in one liter of water throughout the day) from next week (26/08/2013) so that she can have enough pH buffering from baking soda. I would appreciate your comment on the sea salt issue and any suggestions or changes to help us implement these remedies correctly and efficiently. Thanks. God bless!

Replied by Rsw
Uniontown, Oh

Altaf, Here is a database for users of Low Dose Naltrexone and Lupus: http://www.ldndatabase.com/Lupus.html

If you google LDN and lupus you will see other experiences of people with lupus successfully using FDA approved, low cost, no side effects LDN. And the best part, for you, is that it can be bought without a prescription at any pharmacy in India. (Trade names Revia, Naltima, etc.) If you get 50 mg. Tablets, simply dissolve one tablet in 50 ml. distilled water. Buy a children's syringe and withdraw from 3 to 4 ml of the solution and take it once every 24 hours, usually before bed. (No more often than this.) So easy. Store the rest of the solution in the refrigerator. Best wishes for improved health for your sister. For others reading this, look at www.ldninfo.org to see how it successfully treats a host of autoimmune diseases, including MS, Crohn's disease, UC, and many more. Published clinical trial are shown for Crohn's, AIDS and ongoing for MS and Fibro.

Replied by Altaf
Mumbai, India

Hi: Any suggestion on whether should she stop her steroid and non-steroid meds before starting LDN OR can she start LDN and continue using her other meds and gradually get off them after seeing the response of LDN (since her regular meds are in the morning and this LDN would be at bedtime, amply spaced out) OR should she first gradually pull off all her other meds (possibly cleared from system) and then start LDN? Thanks again!

Replied by Altaf
Mumbai, India

Thank you so much for this precious piece of information! I read the links tha info on LDN its simply amazing and I am surprised why docs do not metion about it. I will buy them and start from today itself and keep updating at earthclinic. God bless!!

Replied by Rsw
Uniontown, Oh

Hi Altaf, LDN can be taken with steroids and any other medication EXCEPT opiate based drugs. LDN and opiates both compete for the same receptors, and LDN will always win. This could put someone who is taking opiates into a serious and dangerous withdrawal. So, any medication is OK with LDN EXCEPT opiates. You can also join the Yahoo LDN Group that is mentioned at the www.ldninfo.org site, and the other members (over 10,000 people) are always willing to answer any questions you may have. Please let us know how your sister is doing. Best wishes!

Replied by Noma
Johannesburg, South Africa

Hello everyone ; I was diagnosed with Systemic lupus erythematosus (SLE) in 2012; and I had difficulty accepting the diagnosis as I have always been a health freak. My 2 weaknesses were dairy products and chocolates. I was diagnosed by my GP, then went to a homeopath who confirmed the diagnosis a year later. I then discovered that there are ways to manage this sickness, of which one is to go the natural way.

I am a good cook, but sometimes I find it challenging to stay away from red meat, since I am also in the food industry. My problem is I do not pass any stools, I can go on for more than a month without going to the loo. My diet is mostly veggies, fruits, grains and beans, chicken and fish. I dont get constipated but my question is where is this food that I eat going to? I have a huge appetite, but its like there is a worm inside me that is moving up and down, and the sad part is I can feel it moving, is this normal for lupus patients? I feel like its eating me up inside especially since I am always heating up in my waist area and in my kidneys.

I am taking my meds and supplements, but I prefer the natural way. If and when I do go to the loo, there is there is practically nothing that reflects the amount of food that I eat all this time. I take a lot of detoxifying herbs, but I just urinate a lot but no stools. Any advice would be welcomed as I am always having a pain and heaviness)) in my groin especially the right side. Thanking you all in advance.

Replied by Timh

Noma: Parasite infestations almost always cause both digestive & immune disorders as a consequence. Here is a link to the E.C. page for this condition. http://www.earthclinic.com/cures/parasites.html

Roundworm & Tapeworms are the worst, although the Flukes can kill the host over time. Try all the herbal wormers first and if you're not feeling any better after a few weeks or couple of months, you will need pharmaceutical grade meds to eradicate the devils. CureZone has extensive post on this condition.

Posted by Wormgirl1 (Lowell, Ma Usa) on 07/04/2011

I read this post with interest and noticed that although it has received a lot of positive comments, only one person has given a "case report" of efficacy. That's too bad. I wish people would follow through and post their follow-up.

Ted, I also notice you commented on a low incidence of lupus in your native Thailand. I believe this might be because people in S.E. Asia are colonized with helminthic parasites, which are showing a lot of promise as therapies for several autoimmune problems in the developed world, including asthma, allergies, MS, and inflammatory bowel diseases. Parasites get a bad rap, but they may "train" the immune system not to overreact to harmless substances. Antibiotics kill off "good" bacteria, but we also lack parasites, which in low numbers may have a role in keeping us well.

I think you are dead on in altering pH as a method of degrading gut biofilms, which I believe create conditons for autoimmunity, but healthy gut flora are also important.

Replied by [email protected]
Temecula, California


Replied by Jennifer
Owensboro, Kentucky

I don't know if anyone has replied to you question. I have just now found this site and information. It is entirely health to continue the baking soda every day if you want. Personally I have not been using it because I use lemon or apple cider vinegar, but may add the baking soda as well. Baking soda is NOT the same as baking powder!

Posted by Crystalbailey076 (Salyersville, Kentucky) on 08/17/2009

I have systemic lupus and I have being using the borax and baking soda. I have read conflicting info on the amount of mixture to use. Some state 1 liter divided into 5 equal doses (one dose per day for 5 days), but then others state 1 liter of mixture per day for five days, which would be 5 liters in five days. So which should I be doing? and I would also like to add the sea salt and the acv but can I add it with the borax and baking soda??

Please respond because I really need some relief. One liter a day is alot different that 1/5 of a liter per day and I would not be getting the maximum results. thanks

Posted by Tammy (Caroga Lake, New York) on 07/01/2009

Hello Ted! Thanks so much for your feedback on this site. I have been doing the Lupus treatments with borax/hydrogen peroxide/baking soda, etc. I just wanted to know with the Vitamin D3, Do you take it WITHOUT calcium? Or do you take it with it? I started taking the Vitamin D3, and noticed that some bottles contain calcium and some do not. But I noticed by reading comments about other supplements, that you say not to get it with calcium. I just want to make sure I am doing it right. Thanks so much again for all of your insight.

Posted by Tammy (Hemlock, Michigan) on 05/13/2009

I was wondering where to start, For 10 yrs i was told i had luekemia, then almost 2 yrs ago i had a mini stroke went to mayo clinic and was told never had luekmeia that i had lupus. I to also feel like I am loaded down with prescription drugs. I also take a blood thinner now too. I had no idea there were stages for lupus.What home remedys do u recomend and do i stop taking my regular medicines? I take a heart medicine also because the lupus has attacked a valve in my heart. Any information would be great Thank you

Posted by Dessert on 12/17/2007
5 out of 5 stars

Dear Ted, Re: SLE - Lupus remedies feedback (baking soda, borax, ACV and coriander)

I thank God for you and for leading me to earthclinic when I started researching on lupus to understand what lupus was all about. Numerous renowned medical websites and my rheumatologist claim lupus causes are not known, there's no cure and advocate prescribed drugs are the only way to put lupus under control, some with lifetime consumption. I was deceived by such websites and my rheumatologist initially until I found your contributions in earthclinic. I've got a rheumatologist who is always quick to add dosages in the name of preventing flare-ups, by simply basing on unreliable numbers from laboratory tests which are not lupus-specific, scares me. You have imparted valuable truths and knowledge for healthy living. Thank you very much for being very patient, very kind and very committed in finding lupus cure and with me. I suppose this is not your job and you are doing this outside your working time, I truly appreciate you and all that you have done.

I'm in my mid-30s, I've got SLE with no organs implications. I'm weaning off prednisolone which I've taken for 2 years, the side effects were getting more unbearable and worrisome and the frequency of pains and inflammation were on the increase without your lupus remedies, dropped plaquenil recently which caused blindness intermittently and I've tried traditional chinese medication for 5 weeks which gave me many other side effects, your lupus remedies gave me strong confidence to wean off prednisolone. I know long-term consumption of prednisolone will shut down my immune system and from a patient's point of view and experience, I concur with you that I should not suppress my immune system. Insofar I strongly believe there's no way I can wean off prednisolone without your lupus remedies. Your lupus remedies deal with the causes and hence the pain reduction or elimination and in my opinion, they do it speedily relative to the other treatments I've tried. I hardly change my diet to know and monitor what works for me and against me.

When I first read about your borax treatment on earthclinic, I had much faith in it even before I tried it. The very mention of lupus nanoinsects feeding on heavy metals caused me to link it with the nose infection I had about 8 years ago and I thought it made so much sense. I developed this nose infection shortly after I joined a MNC selling valves when I had to come into contact with them. I had 1 dent on each side of my nose, they looked like my flesh has been eaten up. Before this nose infection was cured 7 years ago, the scalps were never dried up and were growing bigger by and by. I had a biopsy done 7 years ago and I just found out recently I had discoid lupus then.

Over the last 6 months, I've tried your lupus remedies separately to see and feel my body's response to each of them:

1) 1/8 teaspoon of borax in 1 litre of water on empty stomach - I drank 250 ml 4 times a day and eating fresh coriander on empty stomach everyday to chelate mercury which feeds the lupus nanoinsects

When I first started borax treatment, I took it 4 days consecutively. I didn't see any lupus nanoinsects (tiny black dots) surfacing from my skin and I didn't have diarrhea, I used a see-through glass container to collect my stools hoping to see these tiny black dots. My stools are usually light brown to medium brown but during these 4 days, my stools were totally covered by so much of these tiny black dots (I broke down the stools with water to make sure they were not black stools to begin with) and I also experienced constipation and had piles. I understood from you that the dead lupus nanoinsects also cause inflammation hence the constipation and the piles did not make me stop the borax treatment. No more piles for subsequent borax treatments. I had loss of appetite and I experienced drowsiness whenever I take this borax treatment and I welcome drowsiness because I could sleep only 2-4 hours a day for the last decade. For a few months, I was very aggressive on borax treatment because I knew I had 'sticky blood', evident by the big blood clots from my periods. I made the mistake of not unclotting my blood first to allow the borax treatment penetrate into all my cells. The lupus nanoinsects were kinda wrapped up inside the blood clots. I used asprin as per your advice to unclot my blood and I have much lesser 'black blood' during menstruation now, which I've learnt from you that it is an indication of lowered levels of bacterial infection. I'm less dependent of borax treatment now that I don't see tiny black dots from my stools.

2) teaspoon of baking soda in mug of water on empty stomach once in the morning and once before bedtime in the evening to provide unfavourable terrain for mycoplasmas growth

Recently, I had a very speedy recovery from flare-up using this. I had a huge flare-up (intense pains and inflammation everywhere in my body) caused by eating vegetables not cleared of chemicals previously sprayed on them and sugar intake. The chemicals and sugar seem to fuel mycoplasmas growth very fast, gauging from the speed and intensity of pains and inflammation spreading all over my body. Bearing in mind I've been taking prednisolone and plaquenil faithfully since 2 years ago, they didn't help one bit in any way whenever flare-ups occur. Then I took baking soda treatment and borax treatment on empty stomach, on an alternate basis with 1 hour interval 3-4 times each and only had one meal for the day before I took medicine, the pains and inflammation reduced by 80% at the end of the same day. The next day and the day after, I simply take the baking soda treatment as per normal without taking borax treatment, no more pains and inflammation by the 3rd day. I didn't see any tiny black dots from my stools during these 3 days, figured baking soda treatment did the job. The existence of lupus nanoinsects or mycoplasmas give rise to the same kind of pains and inflammation.

3) 1 teaspoon of baking soda + 2 tablespoons of apple cider vinegar + 8 teaspoons of freshly squeezed lemon juice + 250 ml of water on empty stomach

Prior to asprin intake, this ACV treatment has made my blood less sticky, the blood clots became smaller. Together with baking soda treatment, the white coating (candida) on my tongue is getting less concentrated, I see more redness on my tongue. From http://www.earthclinic.com/remedies/acvinegar.html#why, I'm sure it also helps me in many areas which I'm not aware of.

I shout "YEA! YEA! YEA!" to the abovementioned lupus remedies.

God Bless You

Replied by Christmas
Dallas, Tx, USA

OMG! I am so happy to find this site and especially your comments. Thank God someone decided to be so descriptive about what is going on with stools, menstration, etc. At this point, Doctors are talking by the watercooler about me and even before I step into a new doctor's office, they are talking about me in the hall before they walk through the door. I can hear them, they should at least walk down the hall a little. I just visited an infectious disease doctor for the second time since I have lost 25 pounds since this has begun and he plainly states to me, "you seriously need to see a psychiatrist, there is nothing wrong with you except self inflicted wounds!". To make things worse, I got a secondary staph infection which infected my whole family including dogs and killed one of my gerbels. If that didn't confuse everything, I don't know what else!

Anyway, that is beside the point. I wanted to ask you how you picked out your Rheumatologist and what test results helped you get your diagnosis? I have been diagnosed with Fibromayalgia, Ankylosing Spondylitis, now asthma since i am having trouble exhaling, and anxiety issues and depression.

Good grief. I wouldn't be depressed if people would stop saying that I am harming myself (which I am not, these greasy, sticky, waxy lesions just won't heal) Anyway, my symptoms are the same including what you are calling the nanoinsects (need more info., I am new to all of this and this stuff is everywhere in the house) and it seems to respond to fungal treatment oral and topical. That is why I ended up at the infectious disease doctor 2x. However, when I stop the treatment, it reoccurs.

I am sitting here on Christmas Eve while my family is on vacation without me because I waited to be insulted by the infectious disease doctor, thanking God that I found this site.

Any information that anyone can give me regarding how I approach a new set of doctors along with my previous records. I am now hopeful! And by the way, somehow after reading all of this, I feel enlightened and happy. Imagine how a little bit of validation helps!


Replied by Madhumita
West Bengal, Kolkata, India

I have had Systemic Lupus Erythematosus since 2007 . Taking steroids and other medicine . Now I want to try your borax treatment. Which borax will I use borax detergent or homeopathy medicine borax?

Posted by Florence (Olathe, CO) on 11/27/2007
4 out of 5 stars

I have been using the vinegar and baking soda for lupus, also seasalt and borax. Since I have been using it I have had a cold and cough. I have had it for over a month now and feel better from the symtoms I had from Lupus, but the cold and cough won't go away am wondering if it is part of the detox. Also what is the maintenance once you have taken the vinegar and baking soda and borax.

Posted by akhtar (Karachi, Pakistan) on 11/19/2007

Want to contact Lupus patients in Pakistan especially if someone is following Ted's cures.

Posted by Michael (Lakewood, NJ) on 06/30/2007
5 out of 5 stars

Borax treatment for Lupus: I am on day 5 of my 1/4 tsp borax & 1/2 tsp baking soda w/ acv treatment for my Lupus & it is Working!! I have severe skin problems, butterfly rash, redness on farhead, etc., it is really getting less noticeable each day.

Still have alittle brain fog & head pains, some joint pain but all lesser, I did camphor 10% alcohol rub (couldnt find powder), with eucilyptus, and it did help. Im wondering if after 2-3 wks all symptoms are gone if they come back again??

Replied by Sonali

Hello, I want to know if Ted's lupus remedies work well for men also? My husband has lupus and has had a congested chest for a few months now alternating from very clear to congested. Also can someone pl summarise Ted's lupus remedy?

Replied by Lanee

Hello I just wanted to know have anyone's symptoms stayed better with these remedies, my sister's who's very young suffers from this illness and I am going to get her to this because the medicines are lethal and toxic. How is everyone doing now???!!