★★★★★
Essential Oils
Vaginal Medication Link to Ls
With her diet, if she can get a lot of probiotics into her from yogurt, kefir, sauerkraut (it's got to be fresh - not canned, bottled - pasturized), also kombucha is a good source. Hope she finds relief soon! Katy
Vaginal Medication Link to Ls
Eliminating Wheat
Essiac Tea
Cold Water, Evening Primrose Oil
★★★★★
★★★★★
Eliminating Wheat
★★★★★
I encourage everyone to read the book "Wheat Belly" by William Davis MD. Modern Wheat has an inflammatory effect on the body, whether you feel the symptoms or not. There is a myriad of diseases that disappear when wheat is eliminated from the diet. Modern Wheat has more in it than just the gluten that causes allergies and doctors do not test for these. Even whole wheat bread (thought to be healthier than white bread) will raise your blood sugar higher than eating a candy bar! There is an episode of Dr. Oz where they showed this is true. This is true even if the bread is made from organic wheat.
To add to the inflammatory effect on the body of Wheat, here in the United States, 90% of the wheat (including corn, soy and canola) produced is "RoundUp Ready". (Only a few years ago that number was 60%) It has roundup poison molecule inserted into the grain so the fields can be sprayed to kill only the weeds. Then the whole field is sprayed with RoundUp, which is absorbed into the crop adding more poison which is later ingested by animals and people. In the US they do not have to label any food that is GM. Every time it goes to vote the industry uses scare tactics about the cost of food going up as a result of new labeling laws. This is simply not true. Many grocery prices have doubled in the past 5 years regardless. You can't put a price on our health, because the alternative is costly for sure! * * * I believe we are already seeing the health consequences from these genetically modified foods, but we can't yet prove it is due to them. I think we are going to see more illnesses that used to be rare, and see new unexplained illnesses due to GM RoundUp ready foods.
★★★★★
For the past week I have been drying myself, after having a pee, with a tissue, and then wiping myself with a tissue with some Witch Hazel on it. The effect has been quite dramatic. No more itching or soreness at all.
Is it possible, I wonder, that there is some toxic reason for the urine to affect the vulva so badly. All one gets from the medical profession is that Lichen Sclerosa is believed to be an auto-immune system breakdown. That seems to be their answer for anything they don't have an answer for.
In closing I should say that I don't believe my Lichen Sclerosa to be a really bad version of the complaint although I have had it for the past ten years. If I can stop using the Diprosone Ointment by using Witch Hazel I shall be well pleased.
Essiac Tea, Homeopathy
★★★★★
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
Essiac Tea
I have been trying Lisa's suggestion for water kefir for about a month and I think it is good for the whole body. I have ordered some essiac tea with high hopes, and passed your tip along to others with LP. I am praying this works for me and others. Thank you so much for posting!
Essiac Tea
★★★★★
★★★★★
★★★★★
I switched up the low oxalate diet for a gluten free diet and found that the fatigue and digestive symptoms went away, the LS became gradually less itchy, and the white patches started to disappear. I have not had to use steroid cream for months and I have been able to resume a normal sex life. After a significant improvement I realized that while the dietary change was helping it was not the only answer. I had also noticed that the itching would be the worst when I was lying down or sitting for long periods of time so I started jogging. I started off with 2km and have worked up to 6km 3 times a week. I think that the extra blood flow may be what is helping, because I did do regular excercise before, but it was yoga which was much lower impact and much less demanding to the cardio-vascular system. I would like to mention that I have also not had athsma for months since changing my diet. Trying the low oxalate diet an was the best thing did for my LS.
★★★★★
Wheatgrass
Vaginal Medication Link to Ls
I have been receiving UVB light treatments (excimer laser) twice a week at first and now once a week for almost a year. Plus I use the clobetasol 2 weeks on and 1 week off. My symptoms have completely reversed. The scarring/lesions are gone. It took a bit of effort to get my insurance company to pay for the treatments, but they couldn't deny the supporting research. The clitoris, hood, labia have returned to normal. Occasionally I have some white patches and itching on the week I'm off the clobetasol. I have also eliminated sugar, wheat, dairy, and artificial sweeteners from my diet for about six months, which is why I think I have been able to reduce the treatments to once a week.
In my research I found and visited a cosmetic gyn who developed a surgery to unbury the clitoris without damaging the nerves. His name is Dr. Ostrenski. He is located in St. Petersburg, Florida. Doctors comes from all over the world to study his technique.
★★★★★
#1 I've greatly redued the amount of gluten I take in, amost impossible to go Gluten free, but baby steps...
#2 Whole foods, veggies, meats, fruits... I TRY to stay away from processed foods.
#3 and the most important Take a GOOD probiotic. NSM sells a great probiotic, available online.
#4 DO NOT Use the Steroid cream if you can help it! I use A&D ointment on my bottom after every bathroom visit. I also use an aloe/vitatmin E Infused toilet paper, cottonnelle with Aloe & E and Unscented Baby Wipes with Aloe and E after every BM.
The LS is very manageable, I'll even have sex again, my Hubby is so happy... My Gyno is amazed, he said my bottom looked normal! No Steroid cream for over 4 months... IF I have a flareup he suggested minute amounts of the steroid mixed with the A&D ointment... But so for ok, the ointment takes the "edge off" any itchy burny sensation. I know this doesn't cure the LS, but it greatly reduces the effects. Some holistic MD's say the issue is fungus so I'm on it about the probiotics.. I take a double dose once a day... Stay away from Dairy as well even yogurt w/ probiotics...
Vaginal Medication Link to Ls
Wheatgrass
I have gone to the doctor and each time I go, they diagnose me with Thrush. So I'm so grateful to find that there are other women out there.
I noticed this in my teens and found everytime I had candy, chocolate or anything high in sugar, the itching would get worse. Bread from the grocery store and carbs in particular would also make the itching worse. For this reason, I just limited my carb and sugar intake (I have the sweetest tooth ever! ) and found that it was fine. Exercise, like 30 minutes of intense cardio regularly really helps with the symptoms.
I have young children and my diet has gone out the window and I've noticed that my symptoms are getting worse and the burning is getting more intense. I think I will have to get back on the bandwagon and continue with a 'healthy lifestyle.'
I have found cocoa butter oil helps with the itching and it's funny as I bought neem oil a couple weeks ago for this reason and looks like other ladies on this site have found it helpful.
Vaginal Medication Link to Ls
★★★★☆
Then finally as a result of a paragraph I saw written by a Doctor about psoriasis, his theory was that toxins were unable to escape through the normal route ie liver kidneys so they moved to the next available organ which was the skin, causing serious skin eruptions. This made a lot of sense to me, so I started to treat LS like it was one of my allergic reactions, and bingo, the first real success in 8 months of trying. All I did was cut down on my consumption of food by approximately one third. The sores, pimples and razor like cuts cleared up instantly, and the itching wasn't far behind. My symptoms are now 90% reduced, and I can control the symptoms by dieting. Someone mentioned a low carb diet, and I noticed that certainly applied to me also. Ironically vegetables and fruit, the things you would think were good for you, were causing a lot of surface itching that kept me awake all night. I try to eat any major meal early in the day, and at night it might just be a small high protein meal, like a leg of chicken, but no veg or fruit especially potatoes.
I do think this disease is multifaceted and there is no one solution for everyone. One thing I want to say about this. It had spread from my vulva to anus, cleavage, bust, and all over my back, and finally to my mouth where the white skin was about an inch long and half inch wide. I managed to easily get rid of the mouth problem by putting garlic oil on about 6 times a day. It completely disappeared within 3 to 4 days, and didn't reappear for about two months, when I again repeated the treatment and it went again. The diet cleared up the itching on my back and breasts and anus. The manic itching in the vulva area disappears 90% of the time as long as I don't overeat at all, and I am still experimenting with food to get an even better result. But right now I am in a very good place, and maybe this approach might help others. That is my sincere wish - if only to help one person with this awful disease.
I don't know if garlic oil repeatedly applied to white patches in any other area would work, as it seems to me that every place you get it, it behaves differently, so I would be interested to hear if anyone else has had any success with that. My sincere best wished to all. Just because they tell us this disease is incurable, doesn't mean we shouldn't try to cure it.
Vaginal Medication Link to Ls
Eliminating Artificial Sweeteners
★★★★★
Chemical Link to LS
I use Neem 100% pure oil after I have soaked in a small bath (baby bath if you can fit lower end in it) in Magnesium Chloride flakes once a week for about 20-30 minutes. 2 table spoons to half a bucket or 5 litres of warm water. Relax and read a book or something. Wont cure it but it brings relief and you wont be using dangerous/harmful drugs.
Eliminating Dairy
Vaginal Medication Link to Ls
MY DOCTOR AS ADVISED ME TO USE AN EMOLIENT CREAM FOR WASHING/CLEANING THE VAGINAL AREA. THIS HELPS TO STOP IT FROM DRYING OUT, WHICH IN TURN WILL GIVE THE AREA TIME TO HEAL.
Vaginal Medication Link to Ls
I also recently decided to research the cream I've been using over the years for my LS and one of the things it says can occur is folliculitis. Last October I woke up one morning with tiny red bumps all over my legs. I have not confirmed by a doctor that it is folliculitis, because I refuse to have anyone try to make me take any medications/creams (drugs)or antibiotics. I am on a mission to change my life for the better and it involves natural/holistic treatments. Always question your doctor and if you don't believe what they are suggesting it is best for you get a second opinion. I recently had to have my wisdom teeth removed and the first oral surgeon I met with said I would have to go on antibiotics and pain killers. I refused because I knew what that mess of meds got me in a year and a half ago. I searched for a holistic dentist and found one who guided me in the right path so I was able to do stay away from the antibiotics and pain meds by using a great quality probiotic and digestive enzymes for inflammation/pain.
I hope some of this helps someone else!
Vaginal Medication Link to Ls
Take care!
Vaginal Medication Link to Ls
★☆☆☆☆
Wheatgrass
★☆☆☆☆
Mary
Vaginal Medication Link to Ls
Vaginal Medication Link to Ls
★☆☆☆☆
WARNING!
This is in response to Kathy from Brisbane, Australia:
I have had the same theory for 4 years, that moderate to high use of Vaginal creams for thrush, vaginitis etc aggravate or possibly even CAUSE LS. 6 Months after taking precription medication for bacterial vaginitis the thinning, tearing, itchyness around th vulva area began.
Ladies please be aware when taking such meds.
Best of luck.
Neem Oil, Green Tea Extract
★★★★☆
The others brought relief from the itching and bleeding which is a blessing but I want it to heal and not continue to split.
Eliminating Dairy
Eliminating Dairy
I noticed that you mentioned you had this Lichen Sclerosis on your eyelids. Can you describe what the symptoms are on the eye? I believe I have LS in the nether regions but noticed that my eyes have been very dry and itchy. I thought that maybe there is a connection.
Thank you,
Jackie : )
Vaginal Medication Link to Ls
★☆☆☆☆
WARNING!
I have a theory that moderate to high use of Vaginal creams for Thrush etc aggravate or possibly even CAUSE LS. The only way to find this out is to get as many women as possible with LS to say whether they have used these creams a lot in the past. I had a history of repeated Thrush and used the creams many times - I notice now that use of these creams aggravate the itchiness and thinness of the area for up to 2 weeks after use. Please post a answer and see if we can 'find' the cause - the Drs have no idea, so....