The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Retroviral Link to Cfs
Posted by Pr (Houston, Texas, Usa) on 02/24/2010
★★★★★
Resistant Chronic Fatigue/Fibromyalgia
Helpful news from my doctors office yesterday. I was given info on a retrovirus XMRV showing up in the blood work of those who suffer from CFS and Fibromyalgia. (see link below) The article did not state Fibromyalgia but many who have Fibromyaglia have CFS. My doctor told me in approx. 2 months the blood test should be ready for use. This can be helpful for many who has tried everything with limiting results.
I have a request for help from our posting gurus to help with natural remedies for muting virus. I know BHT has been mention as one. But how much and how often, and are there other remedies?
http://www.nih.gov/news/health/oct2009/nci-08.htm
Retroviral Link to Cfs
Posted by Toni (Hutchinson Island, Fl) on 03/05/2011
I have CFS also. Did you have the test for XMRV ?If so, what were the results.
General Feedback
Posted by Jack (Lexington, KY-USA) on 12/25/2008
I can't figure this out: I live healthy, look 10+ years younger than I am (45) but am really tired-exhausted and have almost no ability to store up energy. I have no endurance. Sometimes I feel slightly dizzy or "off" as I stand or walk.
Everything seems to be working right. I'm currently testing my PH and it seems normal. I had blood tests from a traditional MD doctor and nothing showed up. I've had NAET.com treatments--they've helped but I am pooped again. I've varied my diet big time over the last 12 years: vegetarian; vegan; big meat eater; raw foods-juicing; supplements galore $$; organic. I've done fasts, cleanses, energy work---weaker than ever. It gets worse every year. I'm colder than most people. I don't do junkfood, food additives (I do organic) or fast food.
I've tried working out at a gym 3x a week but am too tired for that. It's like I can use up my energy and be wasted tired until it builds up again. Aerobic exercise gets my breath and everything going...feeling good, but a week later of that and I will crash. I don't do: drugs, prescriptions, tobacco, drink (I'll have a beer once a month but no side effects) alcohol.
Needless to say, I have trouble just doing my job, getting around, and staying positive...really hard to do when others my age can play hockey, run marathons, etc (others that exercise and eat right).
I'm at the end of my rope with this stuff. I'm really discouraged with the medical industry as anyone I see wants to do lots of Tests $$$ and then guess what drugs I need to take.
I live in Lexington, KY and haven't found anyone out here who can put a finger on it. A chinese medicine guy could tell I had something really wrong with my Chi-Qui and gave me a supplement to strengthen my Kidney Chi but that didn't seem to do anything...Oh yeah, I tried Qui-Gong--nada. Zilch.
Any ideas would be great!
thanks
General Feedback
Posted by Peter (Sao Paulo, Brazil) on 12/25/2008
Hi Jack, Have you tried fasting? There are many ways you can do it (do your homework and research "natural hygene" before you attempt anything). I personally have been doing "The Master Cleanse" for a few years now. The longest I have been on it was for 21 days, and everytime it has been the MOST amazing experience. My energy levels go through the roof, to the point where 6 hours of sleep a day are enough, and I even manage to go jogging and exercise with no problems at all.
Just a thought... keep looking for something that works for you. I'm sure you will eventually hit the jackpot.
Good luck!
General Feedback
Posted by Robin (Rural, VA) on 12/25/2008
You might consider the possibility that you have depression. It affects different people in different ways. I would suggest trying Rhodiola. Even if it is not a matter of depression, athletes use it to help build stamina.
General Feedback
Posted by Jude (Louisville, Ky) on 01/19/2009
Hi Jack, If I were you I would do a spit test for candida, and I am 100% for the sweat box it brings such great relief just make sure if you replace your electrolites.I live in the Ohio valley too and in the summer time when everybody is running for the air conditioner I am outside trying to stay out in the humid weather as much as possible then go in and shower all the funk you have eliminated you will feel like a new person but the shower is most important if you allow yourself to dry up everything will be reabsorbed into the system GOOD LUCK
General Feedback
Posted by Lauren (Santa Cruz, CA) on 04/05/2009
Hey Jack. One thing that I find that isn't mentioned on this site is the importance of sexual continence. Refrain from ejaculating as much as possible and avoid sexual stimuli. Semen is vital energy and you need all you have to heal your body. Secondly I would suggest cold showers, both for general health and to combat CFS, as well as taming any sexual desires you may have as you reduce your sexual activity. Good luck and don't give up!
General Feedback
Posted by T (Maryland, USA) on 04/05/2009
The fatigue and coldness may indicate a thyroid problem. Get your TSH, Free T3, and Free T4 tested (make SURE they do the *FREE* T3 and T4). Don't take a doc's word for so-called "normal" results. Get the lab figures and research them yourself online; there's great thyroid forums out there with very knowledgeable people. Thyroid problems are widely misdiagnosed and many if not most doctors are appallingly ignorant about them. You can order the tests I mentioned for yourself online if you have an uncooperative doctor. But do get them one way or another just to be sure. Untreated thyroid disease can have devastating consequences from bone loss to heart disease, not to mention plain old quality-of-life issues. Good luck, and I hope you find the answer and solutions very soon.
Food Sensitivities
Posted by Mary (Eastpointe, MI) on 11/12/2008
In regards to comment about the PBB spill in cow feed in MI. in the70's -- has anyone any idea how to research the effects? I keep hitting a brick wall!!!
Food Sensitivities
Posted by Jeannie (Ventura, Ca) on 04/06/2013
Emilia, you are right on! I am still trying to figure out exactly what has invaded my body or whacked it out. I know I have heavy metal poisening from dental work. My earliest symptoms even started after I first had mercury fillings placed. And then later more severe symptoms correlated with more dental work. Pregnancy, sadly, caused the toxins/infection to really spread. So many other factors mixed in.
Our conventional medical system is generally of no help (and my experience is even alternative doctors, although more open minded and knowledgeable, often just do not get what we are going through either... but learning).
I am amazed at how the average person thinks you can put chemicals and other known toxins into your body or on it and it is acceptable and then completely disregard that it could be the reason for any illness that conventional medicine will never find the cause of. The correlation between the rise in illnesses we had never even heard of 30 years ago and just how messed up our food supply has become... just unbelievable the denial.
Unfortunately our generation is caught in the middle of the "awakening" (seems to be the case in all areas of our life/generation..Ugh! )... But hope we can figure it out enough that our children do not have to suffer or have less of a life like I feel happened to us. Slow decline where I knew something was just not right. Basically feel like a zombie... Brain knows what I WANT to do, but body will not cooperate. That is no life. Not giving up though!!
Low Blood Volume Cause
Posted by FranSix (Toronto, Canada) on 02/06/2008
★★★★★
Thanks to the writer from Australia who described peroxide "hang over effect." If after eating you notice a higher heart rate, strong fatigue, sweating and sleepiness, this is probably due to peroxide hang over. Like coffee or alcohol, peroxide will build up in daily use.
I had noticed these effects with daily footbaths/baths/shower use after 5 weeks, and into my sixth week, I was into peroxide hang over. I stopped using peroxide for the time being and its been about 5 days of after effect.
So anyone with chronic fatigue or post viral fatigue will see a return of symptoms after several weeks of peroxide use. Don't worry about losing ground, the hang over effect goes away after a few days, and the peroxide being worked through the system will continue to work. If you wish to continue, make certain to give it a bit of a rest and not try a miracle cure in the shortest time possible. It will be disappointing for chronic fatigue sufferers to hear this, but having serious peroxide hang over effect will almost certainly not help.
Its best to determine a maintenance dose once a buildup of peroxide occurs, and remember to drink lots of herbal tea or water afterwards. It would be interesting for the medical community to study peroxide hang over as it is exactly similar to chronic fatigue.
Iodine
Posted by Rosie (Bedford, Tx) on 03/14/2013
Dear Heather, I have CFS for five years, if it's possible can you tell me exactly what to take (dose). Thanks, Rosie
Multiple Remedies
Posted by Alice (Hamilton, Mo) on 02/08/2009
Can you give the specfics of your treatment ex 5 days and wait how many days and what dose of B complex amino acids chorella? sincerly ali.
Fatigue Vs Chronic Fatigue Syndrome
Posted by Jeannette (Northwestern, WI, USA) on 11/09/2007
★★★★★
A'lot of people who have chronic fatigue syndrome are way beyond the reach of healing methods for simple chronic fatigue. chronic fatigue is just that... ongoing fatigue. it can be due to physical, emotional or mental conditions and once they are addressed, the fatigue is gone. chronic fatigue syndrome, CFS, is NOT simple fatigue. it is a neurological autoimmune response that manifests like influenza, an activation of our immune system. it includes chronic fatigue, but that is only a part of the symptomology.
Fatigue Vs Chronic Fatigue Syndrome
Posted by Nadia (Western, WA) on 07/02/2008
I agree with you, Jeannette, in that there is a HUGE difference between being chronically fatigued and having CFS. I was diagnosed with CFS in October of 1991, by a leading researcher from the University of WA. She said I had the worst case she had seen to date and that I should not "listen" to quackary and thus waste my money on supposed cures. Yes, if you are chronically fatigued, you can "cure" that with a change of your diet or various other things. But what I have is not "curable." I, however, have helped myself by daily exercise, drinking plenty of water, eating a healthy diet, and positive thinking. No one told me to do these things, I have just been doing them from day one of diagnosis.
Fatigue Vs Chronic Fatigue Syndrome
Posted by Georgia (Rackenford, UK) on 08/08/2008
You must have a low immune system, therefore if you have mercury/silver fillings you might need to see a mercury free dentist to get them out because your body can't deal with the mercury.
Fatigue Vs Chronic Fatigue Syndrome
Posted by Amy (Ny) on 05/01/2012
Kay, thank you for your post, and big hugs.
Jeannette thanks for speaking up on this topic.
CFS the debilitating illness is starting to be called neuroendocrineimmune disease. Researchers are finally discovering the links to cancer and autism and gene defects or mutations. There may be links to animal retroviruses. They are barely scratching the surface because of limiting funding. Many of us have suffered for decades and just want to have some semblance of a life. May 12, 2012 marks the 20th anniversary of International Awareness Day for ME/CFS, FM, MCS & GWS.
Raw Cabbage Salad
Posted by Kim (Petaluma) on 08/21/2015
Interesting. How did you learn about cabbage? I'm wondering if organic, raw sauerkraut would have the same effect. (I'm not a fan of plain cabbage).
My skin is severely dry, loose and thin. And I have severe CFS.
Raw Cabbage Salad
Posted by Andon Science (Limassol) on 01/14/2023 21 posts
Avoid cabbage salads. Cabbage has L glutamine and L glutamine feeds cancer, in case there are cancer cells in the body. I am a researcher thus I suggest avoid cabbage salad.
Raw Cabbage Salad
Posted by Sam (Miami) on 01/15/2023
I disagree.
Distilled Water, Apple Cider Vinegar
Posted by Katwilm (Wilmington, Nc) on 02/24/2011
Whatever the cause of the constipation, magnesium is your best friend. Can't really get too much since your body devours it, but take the magnesium pills once, twice or even three times a day and the results are more than satisfying.
Cold Showers
Posted by Lorica (Indiana, US) on 03/13/2015
Cold showers can maximally tax your adrenals. You may not feel it at once at all since there is a reserve, but over time that reserve can be used up if too many cold showers are done.
Supplements
Posted by Lynn (Holland, OH) on 03/16/2006
★★★★★
I am taking Spectro 3 vitamin/mineral supplement, magnesium taurate for the depression, extra calcium, B-50 complex for all the vitamins the candida depletes your body of, digestive enzymes to eat up all the waste material you are killing - with each meal and in between, a good probiotic to replenish the good bacteria an hour after each meal and at bedtime (read "You're Nuts Because of Your Guts" at Cure Zone.com, 70% of your immune system is in your digestive tract, 90% of Serotonin is made in your gastro-intestinal tract), coconut oil (Spectrum organic unrefined - has yeast defeating properties and is a medium chain fatty acid which is very good for you and is supposed to help you lose weight, read The Coconut Diet by Cherie Calbom), MSM (500 mg per 30 lbs. of body weight), I take 1000 mg(pure, no fillers) twice a day to help strip the mucous membranes where yeast live in and restore PH in your GI tract, liquid molybdenum (a mineral) to help break down the acetaldehyde toxin the yeast produces and Oxymune oxygen drops to help build the immune system even stronger, and gently bounce (do not take feet off) on a mini-trampoline to help clear toxins from my lymphatic system.
So far, my CFS and Fibromyalgia are much improved, the thrush in my mouth is losing its hold. Pink skin is starting to appear at bottom of a totally white coated tongue. Totally yeast infected ears are almost totally cleared up (intense itching and yucky yeast residue are gone) I am making slow but progressive progress.
My understanding is that this overgrowth of systemic candida is due to a suppressed immune system, however you got it; overuse of antibiotics, birth control pills, use of steroids (prednisone),etc., all the bad things doctors give us to help us get well have made millions of us terribly ill. I am doing everything I can to build up my immune system. Read Ed McCabe's book, "Flood Your Body with Oxygen", in which he explains over and over again how YOUR IMMUNE SYSTEM RUNS ON OXYGEN. This disease is a parasite and you are the host, it thrives in an anerobic environment (no oxygen), and the more oxygen you force into your body, the weaker this parasite becomes, but you must keep at it every day and never give up. I once recovered from this terrible disease doing yoga morning and night for a half an hour at a time. I felt great for about 3 months -- I looked wonderful, I felt wonderful, I couldn't get sick no matter how many sick people I was exposed to, my immune system was that strong and then I quit the yoga thinking it was the MSM that had done the healing, so it's back to gentle exercising to build up the immune system. Excessive exercise will just depress your immune system even more. Read up on how yoga builds up the immune system and detoxifies the body through urination, elimination and sweating. I believe due to the constant deep intake of oxygen with the deep breathing involved in the yoga poses and the constant twisting and bending involved that detoxified my liver, kidneys, pancreas, etc. my immune system became so strong nothing could exist in my body but great health. If anyone wants to e-mail me to discuss wellness my email is [email protected] I hope this helps someone.
Chronic Fluoride Poisoning Link
Posted by Faithinhealing (Forest Park, Ohio, Usa) on 04/07/2010
★★★★★
Hello, I believe that you are onto something about the fluoride poisoning and chronic fatigue syndrome. At the same time that I became ill, I started noticing spots on my daughters teeth. Unfortunately, I have not only dealt with chronic fatigue but extreme mood swings, mental illness, etc., I think all a result of fluoride poisoning.
I started a detox recently and started drinking distilled water, immediately within days I felt better on the distilled water. I then started to detox my body using kelp and that has helped my body too.
I also have added the alkalyzing protocols of Teds's, adding baking soda to my acv or lemon twice a day and that has even further helped the chronic fatigue.
I'm in the process of getting a filtering system put into my home, I would recommend others look into this! This fluroide is killing people and the cities keep adding it back to the water, I don't understand it!
Chronic Fluoride Poisoning Link
Posted by Andrea C (Cardiff, Wales) on 05/04/2011
★★★★★
Fluoride is hidden in medications and also "natural health products" vits, supplements, and even if you eat organic produce its probably been watered in fluorieded water! And then washed in fluorided water! We have to be ever vigilant, this is allowed by law and doesn't have to be printed as a health warning. Then theres the packaging issuse, how many people are aware that most organic ready prepeared veg or salad, has been washed in chlorine bleach and of course flourided tap water! I am talking from experience, because of nerve damage, Fibro, (which my consultant told me, ME, fibro, and cfs, are all the same illness) some of us have it to a degree that we're not aware we have it, and by God! Some of us fear death before cure as we can't un-wrap slice, or cut our food up, pour or hold a glass of water, sit, wash, or dress with no help. Get in or out of bed, open mail, med, vit, or supplement containers? The only way to be sure is to grow it, raise it, kill it and cook it. Even organically raised animals are given tap water to drink! I have spent thousands on electrical appliances to peel chop, grind, what ever, and I can't switch them on or off, and the vibration is hell! I've had a hip replacement, my other one needs doing, disc detereation, arthritis, neuropathic nerve pain all over my body, I was a supreme athlete, but amonghst the locals I was know as that fit girl who was always drinking tap water!!! That and the drugs I should never been given in the first place wreaked my life!! So please, by all means share your trials and experiences, but don't be so self santimonious! I'm sorry your unwell, but its true, theres always people with no help worse off than yourself!!
Chronic Fluoride Poisoning Link
Posted by H (Sf, Ca) on 07/21/2011
Chronic Fluoride Poisoning Link
Posted by Messenger (La) on 02/27/2014
I absolutely believe that fluoride chemical makes us sick. We are lucky to have fluoride voted down here, This is interesting I read that Dr David Bell made a striking discovery on the cause of Chronic Fatique Syndrome there is a cause, the blood circulation blood value and plasma is not circulating the way it should be that CFIDS may have "extraordinarily" low circulating blood volume this is NOT low blood pressure. What would cause that toxins or a deficiency maybe a microscopic bacteria or an infection?
