This discussion perhaps especially for those of us suffering severe fms & cfs symptoms but also how much does viral impact on mcs?
"These include viral infections of Epstein-barr (EBV), cytomegalovirus (CMV), human herpes virus-6, (HHV-6), and bacterial infections such as mycoplasma, Chlamydia pneumoniae (CP) and Borrelia burgdorferi (Lyme disease). " I've had all of these. "Chronic reactivating infections, such as those mentioned above, do not stimulate IgM antibodies, as they are not new infections but rather intracellular reactivating infections."
I feel like I have EBV, ross river virus and most of these most days ie. Close to death.
"Additionally limiting sensitivity is the fact these infections are not concentrated in the blood or serum but rather in the tissues, especially nerves, brain and the white blood cells. "
They are using 2 antibiotics to treat; one intraveneously over 6 months and are back to precfs days. Has anyone had any success with this kind of treatment? I've only used the natural methods after doctors doing me in with antibiotics in my 20s for yeast and bladder infections but not making much progress.
Hi, Can you please let me know how you are, if you've had any success with specific treatments. I have mycoplasma, Clamydiae Pneumonia, Lyme disease, and endometriosis, all diagnosed. I suspect a couple other things aswell...Thanks!
Multiple Remedies
I was diagnosed with CFS/FM/Under active thyroid and arythma garret, 3 years ago they told me I need a hip replacement and I was being monitored for my heartbeat, which had dropped to 34, I was told that I would need to have a pacemaker. Thank God I did not listen to them and started doing research and then a friend took me to see someone who treats people with bio energy and after one treatment, my heart rate went up to 42, so I was safe from the pacemaker. A couple more treatments and I was starting to get a lot better, I suffered terribly from brain fog, a teaspoon of ESKIMO OIL every day.. I started to notice the difference after a week, started to remember things and my mind was a lot more sharper and clearer. I had to travel 40 miles and someone had to drive me there and back, so I was still looking for other options and someone introduced me to a bio energy bed, that I could use at home called cergen, after the unlimited free trials, I decided to invest in one as I wanted in the comfort of my home and be able to use it 3 times a day. It does many things, align your spine, where the blood is made and also massages you and focuses on the lymphatic system, that really helped. I used everything on earth clinic and still do.
Then I found wet cuppin, hijamah therapy, it is the best thing I have come across as it helped and healed me in many ways, and is so amazing that I could not possibly write all the benefits on here, so the best thing is to google it as Hijama. I had hijama done on my hip and after one treatment my hip was back to normal.
I have also started to use DMSO.. Amazing stuff. I am a lot better, I have more or less a normal life. I found speaking only positive and smiling all the time helped. I still continue to use all these things, whenever I can, especially hijama as I have found this to be the most beneficial. I also only use distilled water and threw my microwave out a long time ago. I try and eat health , organic food and do not use any chemicals on my body, , or take them. Writing everyday, to empty my mind of rubbish changed my life! I hope this can be helpful as I know too well what its like being ill and being neither awake , nor asleep, feeling jet-lagged and not being able to sleep, the pain used to be on the next level and the worst , family and freinds not understanding. Peace, love and thank you for this wonderful site.. I love it. Tanya.
Mitochondria

I have ebv and chronic fatigue for long time. Taking Mitochondria 2 tabs per day. I feel a little better and worse when not taking it.
Olive Leaf
The idea of what kinds of viruses is causing the CFS is just one question, the other is more broader question whether other viral strains are possible also. The olive leaf can be clean using a mild non fragrance soap, or a no fragrance shampoo. THe olive leaves may also be inspected visually and then are separated. The clean fresh young leaves are your best bet. Then you just prepared a drink using the blender after collecting them and refrigerate unused portions. The chronic fatigue I know that works, at least for a short term, is the clove oil mixed in ethanol alcohol, the ones you find in vodka, and make a 5-10% solution of that then is applied throughout the body or a clove oil shots (like beer shots) where vodka one capful is used, plus a 3-5 drops of clove oil is prepared.
Marshmallow and Astralagus Root

My sister was sick for 2 years with Mono that turned into Chronic Fatigue. We tried many things and nothing seemed to work. Finally a Naturopath told us that her immune system was over active which he said happens a lot in cases like these. He told us to take Marshmallow Root & Astragalus Root. We found a combination from Dr. Christopher's but that is just the one we went with, I'm sure there are others out there. She takes it religiously and has gotten back to her old self. I don't know how long she will have to take it, she's been on it for about 5 months and did try going down once and was able to, however when she tried going off of it she was getting the old symptoms back. It was such a blessing that someone recommended this to us. God Bless!!!
General Feedback
Hi Jack, It sounds to me like you need to SWEAT! Go to a spa or club where you can sweat. You are likely overloaded with toxins. These can make you feel like you are dragging an anchor. And you can have them (we all do) even though you live a healthy lifestyle.
A naturepath friend I've been working with recommended this for me. I bought a steam cabinet from her but wasn't using it. I was working on draining toxins, heavy metals, etc with her products...and would be so exhausted I could hardly move. She said I needed to go sweat. I didn't believe her, but tried it anyway. I couldn't believe the difference, like night and day! Now I try to sweat as often as possible.
If you can't find a way to steam, at least draw a hot bath and pour in a cup or two of epsom salt. This salt can help leach toxins from the body. Massage will help too, just drink lots of water afterwards.
Native traditions the world over know the value of sweating. It's wise medicine!
Good luck. I hope you feel more energetic soon!"
12/25/2008: June from KC, KS writes again: "Hi Jack,
I forgot to mention H2O2. I have been using it at work when I haven't gotten enough sleep. It's a fantastic remedy for waking me up. I'm not a coffee drinker at all, or caffeinated tea, and need to avoid these because of adrenal issues anyway.
But, you might try the food grade hydrogen peroxide. I saw it recommended here by someone who used it to stay awake. I haven't noticed any other benefits from taking h2o2 internally, but on days I haven't gotten enough sleep it helps tremendously by oxigenating the body.
My dosage is 4-5 drops of 6% h2o2 in herbal or fruit-based tea. The herbal flavor helps disguise the slightly odd h2o2 taste. You can find h2o2 in your health food store (mine is 12% strength). I found mine on amazon.com, told my hfs about it and now they carry it.
What you describe sounds like cfs, chronic fatigue syndrome, and also fibromyalgia symptoms. All this is due to toxic buildup in the body and a lack of drainage. H2O2 is also great for fibro and cfs problems, among others.
Again, good luck.
Hydrogen Peroxide

Worked Temporarily
Hydrogen Peroxide major turn around then not.
I have been rebuilding my health following CFS for many years but in June 07 I had "Influenza A" which really knocked me around. I thought I was recovering ok but the old CFS symptoms re -emerged ie headaches, brain fog, unrefreshing sleep, fibromyalgia, blurred vision, sleeping all the time. In November 07 I found EC and tried H2O2 food grade. At first I tried the inhalation method for a couple of weeks but progress was not really fast enough so I took it internally. Due to my low energy and fogginess I managed to take the upper end dose on the first day (normally people build up to this over a few weeks) ie. 150ml of .50% 1/4 tsp baking soda three times in one day. This is equivalent to 25 drops in 150ml of water three times in a day.
Results: first intake - nothing Second intake - my vision improved markedly over a ten minute period. It was as though a veil had been lifted from my eyes. Everything was sharper colors were brighter. I also began to feel more energy. (Since the flu my eyes have detiorated, I had to get a new prescription for my specs. And they had to make them 3 times because my vision varied so much from day to day. ) Third intake - nothing noticeable.
The following day I woke with a headache and fogginess and figured I was in for a detox reaction. This lasted until around 2pm and from then on I felt fantastic. I mean I felt exceptionally good. I felt like hugging strangers in the shopping mall. Giving money away, imagine no possessions and so on. It was exuberance, lightness, abundant energy. It lasted about 3-4 weeks. During this time I did some maintenance doses on a lower scale.
Results not: Anyway I have since had a garden variety bug and many of the symptoms have returned but to a lesser degree except for one debilitating condition that is worsening. When I eat - anything - I get a hangover and overwhelming fatigue for about 90mins. I have to sleep it off. I have tried various alternatives ie ACV & BS but to no avail. Does any one have any ideas what might cause this? I can't go out or for very long because if I have to eat I have to sleep.
I do not have any apparent digestive problems but it is probably connected in some way.

I couldnt agree more! I recently found out I also have food sensitivities. Dairy, all grains, potatoes, tomatoes, & eggs. I found out that my childred also suffer from them before I was tested myself. My 3 year old was very tired, cranky, wild, constant runny nose, eczema & she got sick a lot! Getting her screened for food sensitivites has transformed our life! Id say everyone should get one! 30% of people in the US have some form of food sensitivity, its a good tool to have.
Fatigue Vs Chronic Fatigue Syndrome
Please understand that CFS is so far beyond "fatigue" it's impossible for a normal person to relate to. Most people with CFS can barely function;'sheer exaustion' barely comes close to the feeling (I was an athelete with several world records, so I know what exhaustion is). Imagine having a restful nights sleep, and awakening to a beautiful day with fun plans, but discovering you are so "drained" you cannot hold your toothbrush up long enough to brush your teeth (let alone your hair). Imagine not being able to get to the mailbox on the street, knowing there are cards (and checks) out there because it's your birthday! Imagine having to call your 80 year-old next door neighbor to ask them to tote your rolling garbage can to the curb 20 feet from your house (when you've mowed thier lawn since you were 10). Imagine being this sick for 10 years now, but you are still that same happy go lucky person (despite this devastating illness). Then imagine people saying callously, "Oh I'm tired too; just get over it... you look like you're going to drop dead any minute!"
Apple Cider Vinegar

I have chronic fatigue syndrome and I read that raw, unfiltered apple cider vinegar kills bacteria and can give you energy. Well guess what ? It does give me a burst of energy every time I add it in my water. If this apple cider can give a patient with CFS a burst of energy, imagine what it can do for someone who is healthy !
Apple Cider Vinegar

I'am so! delighted to have found this site, and the recommendation of ACV- i have been suffereing with ongoing CFS for 11 and a half years, and within that time i always seem to be v. susceptible to picking up viruses, esp. prone to sinus probs. anyhow - this ACV seems to do the trick! it def. put a hold on me developing full blown sinusitus - it seems to diminish the viral flu type aches and pains and definately diminishes the catarrh - seems to kill of the headaches too. i have only been using an Organic Cyder Vinegar bought from the local supermarket, so am assuming if i went to the health food store, the product may work even better - dont know, but all i know is it has saved me taking to my bed - i notice also whilst taking it that i have slightly more energy. anyhow, am so! glad to have discovered it.
Yes, Apple Cider Vinegar is amazing and great for the pets too, it just saved me a vet bill for my cat's upper resp infection :)
Raw Cabbage Salad

Raw Cabbage salad has cured my dry, flaky skin and fatigue : ). I started having raw cabbage salad every morning after exercise for the last few weeks and I wasn't feeling tired the whole day and to top that my skin started glowing & feeling smooth .... !! I sure do love cabbage and now its like a ritual for me to have a bowl of raw cabbage salad every morn` !
Organic saurkraut is really good for you. Sure seems worth a try!
~Mama to Many~
Coconut Oil
Dear Ted, Not sure when this article was posted, but reading your response on Coconut Oil and CFS and how it helps; you also discussed using magnesium chloride, lavender oil, tea tree oil and zinc as topical application for viruses. Could you go into more detail on how to combine and use, please.
Everything I have read about Chronic Fatigue Syndrome and it's cousin diseases either point to a viral disease and/or Floride poisoning over years of internal and external body exposure. having lived with CFS now for 12 years and still developing more sypmtoms every year, I am now looking for alternative treatment/s to the classical MDs which are not working.
thank you, Susan H
Coconut Oil
I know when my CFS started, I had a particularly bad flu my freshman year in high school 64 years ago. I have been in and out of remission several times since then but know that I have to eat right and rest extra, and avoid stress, or it is going to get me down.
ACV, Cayenne, Molasses
I know it has been 11 years since this post, but can anyone tell me the amounts/measurements Lynette used?
ACV, Cayenne, Molasses
Yes I would like to know also. I've tried those products and nothing. so perhaps I was using an incorrect formula...hope someone answers.
Cold Showers
Thanks L for this observation as it does make good sense from a physiologic perspective.
Fortunately there are remedies to this loss of adrenal function. Raw Pituitary or Adrenal Glandulars are excellent for preserving these glands. 500mg Pantothenic Acid one or twice a week during the cold showers period helps. Adaptogenic herbs like Ginsing, Foti, Ashwanghanda help adrenals. Tyrosine is amino fuel for adrenaline.
Chronic Fluoride Poisoning Link
IMHO there are several holes in the fluoride connection logic. For me personally, I've known about the dangers of fluoride for years and avoided it persistently. I have done detoxes, too. I still have CFS but am responding quite well to anti-viral, antibacterial treatment and megadoses of vitamin C via IV. Also, CFS/fibromyalgia has been around for centuries. Fluoride water treatment, toothpastes, and medication haven't. If anybody would address these issues I would be more than happy to change my mind.
Chronic Fluoride Poisoning Link
i have read numerous responses here on flouride and other remedies or possible causes... i can say to all of you here now that the real cause is a cover-up... i was tested by drs. garth and nancy nicolson and i am positive to mycoplasma and i am also positive to 45% of the hiv virus envelope... these are all biological weapons that were released by the military and these same weapons were sold to suddam hussein to be used on the iranians during the 10 year war with iraq... when things soured between the u. s. a. and iraq the military was sent in to retrieve these biological weapons and decided instead to just blow them up... the mistake they also made was that these same weapons contained depleted uranium compounds and once these were burning thet released their toxic affect but also remember these weapons did not originate just prior to the gulf war they have been around for decades, in fact the dept of science and technology requested a $26 million dollar grant because these are the words they said way back in 1969 'we need these funds because 'we already have ways to spread these biologics' and they went on to say these exact words but remember these were words they used prior to any 'aids epidemics before anyone really knew immunodeficiency' they said to create 2 diseases, ' one where the host would become 'immunodeficient', two, to make the host incapacitated... xmrv does not cause cfids but a piece of hiv does play a major role but i still to this day feel that 'mycoplasmas and radiation' are what is causing disease and all this cure all meds people say they feel better on are actually only reducing inflammation in the body but not curing anything... i believe the u. s. military is responsible for the hiv/45%hiv epidemics and the reasons for all these cover-ups... why is it the nih/cdc is slow at anything they do and that is solely because the cdc/nih knows why people are sick and are part of this massive cover-up... let's see now the results from detroit michigan on broken cromosones and translocation all as a result of biological radiological weapons warfare... to any of you who think this is just simple lyme disease, this is another clever way they spread these diseases aside from on purpose putting theses weapons into vaccines... sincerely and always the truth aidan southampton u. k. 'xmrv' is not no cause but the hiv virus envelope is giving xmrv false positives...
Chronic Fluoride Poisoning Link
Leigh Anne, Belleville, Ontario
It was some years back on EC when Ted whom we all know and appreciate, told of this as he was then in the US. Much of what you have recounted.
Namaste, Om
Supplements
Astragalus
L: Quercetin and Pyroquinelonequinone (PQQ) are also good for restoring Mitochondria, as are most all antioxidant nutrients, preserving cell integrity to some degree; so supplementing the diet insures the loss of M decay.
There is probably a correlation w/ the Astragalus anti aging effect on the Mitochondria and Chromosome or Telomere. The antioxidant nutrient Resveratrol is also known longevity supporter.
Astragalus
Astragalus
Dear Connie,
For me, I would be comfortable with taking astragalus root and melatonin together.
~Mama to Many~
Glycine and Melatonin
Don't take Klonopin. You can build tolerance and inter-dose dependence. It can make your insomnia 10 times worse. If you are feeling agitated for no reason, it could be because of the Klonopin.
Hypothalamus Glandular Pill
Hi Dutchie....what an inspiring post....is there any way you can give me the name of the adrenal glandular that you used? I have adrenal issues for a long time and many days I can barely function.....thank you.....
Hypothalamus Glandular Pill
Hi Loraine,
The hypothalamus glandular I used was by a brand called 'Nutricology'. You can find them online at google shopping. They come in 500mg strength, I highly recommend you buy empty gelatin capsules and divide one capsule into two 250mg capsules and take one after breakfast and one after dinner.
Also you'll wanna get adrenal glandulars as well. Very important!! The brand I used was by 'Genestra'. They come in 165mg strength, also take one tablet after breakfast and one after dinner.
You will also need to start taking extra Vitamin C (calcium ascorbate). Take 500mg of Vit. C 3 or 4 times per day after meals.
Do all this and within a few days you'll notice a huge difference in your energy levels. I went from moping around with little energy to feeling great within a couple of days.
Hypothalamus Glandular Pill
Hello,
I know this post is getting on for 3 yrs old but can you recommend the pills you took. I have looked on Google as suggested but can't really see specific ones for hypothalamus
I really hope to receive a reply as I have been very ill fir a long time and have no life/
Would be keen to to try these. Thank you
Hypothalamus Glandular Pill
Yes, this is an old post but I am hoping someone can help with this. Did you take Hypothalamus or Thymus glad. I am unable to google a Hypothalamus gland tab or capsule, but Thymus seems to come up when I search for it. I want to be sure I take the right supplement. Thanks to all!
Multiple Remedies
Where do you store this massive amount of liquid once its mixed? The fridge? How long does this blend last for? a day, 2 days? Just curious because I want to try this. Thanks :)
Chronic Fatigue and Ciguatoxin Link
Just to let people know. I have added some more additional information regarding the ciguatoxin to the Q & A page - "Do I have Chronic Fatigue syndrome." There is also information in the Q & A page - "Chronic Fatigue Syndrome and Disability." that I added. Please read them if you think you have the disease.
https://www.earthclinic.com/cures/chronic_fatigue_syndrome_questions.html#Question_4675
https://www.earthclinic.com/cures/chronic_fatigue_syndrome_questions.html#Question_4676
Ted's Remedies
Clove oil - Bangkok Ted hello - is it possible to get that in Bangkok? If so, where? I cannot even find tea tree oil here. I made my own solution with cloves and water - seel below.
Also... I have long running fatigue / breathing problems and since addressing them with a breathing therapy that detoxes the body... (past nearly 4 years) I've noticed it's all happening in the bowels / digestion. As the liver and kidneys are kicking out a lot of stuff - both foul smelling bio-nasties, and some kind alcoholic / aldehydic unpleasant volatile organic chemical.
Anyway one thing I've noticed is sensitivity to mould - in aircon units / damp hotels etc. In my old apartment in Bangkok I discovered mould in the aircon when I was very sick and got a company round to clean the units (the landlord was terrible).
So outside my window was a shelf where aircon cooler sat and where the rain water collected. The aircon guys had stripped away a big carpet of moss for me, but whenever I went past that room my breath caught me with a coughing fit and wheezing.
As part of that demoulding, I had made clove tea - from boiling up a lot of cloves in water. So thinking maybe the ledge was the culprit for much bad air, I poured the clove mixture all over the ledge, and used a sweeping brush to scrub it in.... Strangely 15 minutes later.... It's like the air had transformed.... I am with Heidi in the Alps, singing Sound of Music. No more tightness / asthma... feeling of suffocation.
Cloves do seem to do something very powerful.
OUt of interest, while that external drama was going on I was finding I was getting very itchy feet and hands. I have a feeling there is mould contamination of my body and it's trying to fight it. I have something under my big toenails. And very dry skin hard skin like a camel's on the knuckles of my big toes.
Inspired by Bangkok Ted's points about clove oil, I am wondering whether to make more of that clove tea and soak my feet in it.
I would also like to understand the mechanism / history of this mould stuff in the body. I do know that as a baby my mum and I lived in a damp unheated basement in a very cold part of Northern Scotland - there were slugs inside and I got very sick with bronchitis. I wonder if I was first attacked by mould then and developed a low-level infection / alllergy that has continued to this day, dragging me down?
A good thing is I seem to be getting more aware of mould. I am staying right now in Chiang Mai for a few days and they put me in a room where I didn't like the smell. Everytime I went in I could smell it. I selpt for 3 hours in there and then went up on the balcony and slept sat up on a lounger the rest of the time. I asked to see a new room and they happily changed it for me. I also got a - much much mouldier - room changed in Laos in a cheap hotel about 3 months ago. I asked to move upstairs which was better - for 1 night it didn't matter so much. But I find mould has a big effect on my breathing and energy levels. So I would definitely advise anyone with CFS / health problems to be assertive if you're staying somewhere - get out of any place that is mouldy. If it's a damp climate, take a room on an upper floor because these are better. In these tropical climes it's better to find a living space where you can get air flow right through the room (with mozzie screens) and fans... this is healthier than air con.
If anyone has had health gains from demoulding - both the body and environment... Please can you advise on resoures / sources of practical advice?
Most doctors don't have any idea what CFS is so many people get misdiagnosed. One should get a ciguatoxin test done for confirmation.
Ted's Remedies
Hi, Yes I also have CFS and Fibromyalgia which I know I encountered living in my old apartment where I was for 13 years. I was getting sicker and sicker, sleeping all day, severe migraines. I finally found out when I was remodeling the bathroom. When we took down the shower walls, the mold was so thick it looked like pudding painted all over the walls. At that point it attacked me and my children violently. We have now been out of that house for a year. I have 6 children, I can no longer work due to my health conditions. The mold was eating the nerves in my body. Mold is so bad... Most people dont even know about it.
Ted's Remedies
I agree cloves help I take clove oil a just couple drops in water. Cloves kill parasites, my doctor has me change the herbs every month one month GSE Berberine following month Allimax which is mega garlic it was suggested I do this for two years which is a very long time, but that is the time it takes to kill them. A study found that one-third of people with chronic fatigue that were tested, were found to be infected with Giardia lamblia. Another study found one-half of people tested were infected with Candiada albicans, which is yeast. Getting checked at the right lab with right experts make all the difference in the world, Also mold poisioning can look like chronic fatigue since most doctor are not trained in diagnosing mold illness they don't even know what tests to give you. You have to find a mold doctor that is specialized pr an environmental illness doctor they will know how to treat you. Mold illness symptoms are as intense as Lyme.
Diatomaceous Earth

NAY. Diatomaceous Earth had no effect on my littany of Chronic Fagtigue related symptoms.
I used it for 7 or 8 weeks with no change or improvement in any of the things it is supposed to change or improve, and concluded that people writing in with testimonials are probably just experiencing placebo effect after taking it a few days.
It did kill earwigs (paper eating bugs) in my home though, so that justified buying it.
Lithium Aspartate
Hi Stacy, you must google the side effects of Lithium. My brother who has bipolar used Lithium for a long time. In the begining it helped my brother but then it made his bipolar symptoms more worse and also made him bald and hypothyroid. It can harm your liver and kidneys too. Instead of Lithium you can try Magnesium for your sleep problem. This is my personal observation that Lithium has ruined my brother's life.
Lithium Aspartate
Hi Aleeza, Could you let me know what form of lithium your brother was using? I think that the official pharmaceutical lithium is lithium carbonate at 250 mg per does. As I understand the literature, lithium orate and aspartate are more on the dietary supplement level and used at 5-10mg per day.
I use an iodine supplement to help with the hypothyroid issue. I know that my diet has very little in the way of either mineral, so that may also contribute to the positive effect.
I'ved tried magnesium in several forms, but found no noticible difference in my health over a 3 month period. I due use magnesium chloride brine as a deodarant, so I suppose I still get it transdermally.
Please let me know what form of lithium did this to your brother.
Lithium Aspartate
Hi Stacy, sorry I could not tell you that which form of Lithium my brother used because ten years ago he has stopped taking Lithium. At that moment I was not aware of holistic approach of treament. Although I could tell you that he took Lithium as a prescription drug by his doctor.
Activated Charcoal
hi im emailing to ask about a/c on behalf of my father. He contracted ross river virus from mosquito bites years ago and now has chronic fatigue syndrome/Fibromyalgia. He is taking medications for high blood pressure and other ailments and was wondering if it would be worthwhile trying activated charcoal. My father is desperate to be rid of this ill health and is willing to try just about anything, but im worried it may do more harm than good. Yours sincerly Daryl J Halliday.
CFS is well known among those of us who have the mold-susceptible haplotype to be caused by toxic mold exposure in a water damaged building. For some, early on, simply getting out will restore health. For others, with lengthy exposures, it can take years and specialized medical treatment will be required. Doctors in general are not cognizant of this or will say it can't happen because they cannot get away from the concept that this is not an allergic reaction. 24% of the population has a mold-susceptible haplotype, and we are the ones who get extremely ill when living or working in a water damaged building (the water damage may not be visible.)
Diatomaceous Earth
I have not seen Diatomaceous Earth labeled as food grade, but the fatigue problem is common to many prescription drugs and sauves. For example, steroid creams are often prescribed for all sorts of skin problems and over time the medications stop being useful, but cause all sorts of side effects, to include fatigue. I have trouble with my eyes, and the damage is likely permanent. Many of the other side effects common to Cushing's are starting to be less severe since I have stopped using the steriod cremes for my skin. All of the many doctors I have been treated by don't seem to know much about the side effects, nor suggest knowing about Cushing's.
Sulphur
Joyce.... Can you let me know the name of the sulpher tablets that you used? I have a similar problem like yours and can't wait to try this remedy to see if it would help. Also would you know if sulfur is safe for people who are hypothyroid. Thank you so much.
Sulphur
She says the sulphur she used had a 30c potency. That is Homeopathic Sulphur and should be prescribed by a knowledgeable Homeopath according to symptoms.
Sulphur
Thank you Tashimoto!! Can't believe I overlooked that.
Sulphur
Hi, You do not need a "Prescription" to take Homeopathic Sulphur... I bought it at Sprouts Health Food Store in my neighborhood. The brand I used is called Boericke and Tafel, but there are other brands that offer the same thing... If you purchase on line they will be a potency of 30c or sometimes 6x... You don't need a prescription though at all... I don't know where Tashimoto got that from... At the health food stores there are other Homeopathic supplements that you can take like "Kalium Iodatum", which is also known as "Potassium Iodine", which is basically what Lugol's Iodine is... And again, you don't even need a prescription for that either...
Sulphur
Joyce,
Did you have your amalgams removed? I understand you're not supposed to chelate until after all amalgams are gone.
How are you doing now? I'm curious - did you get CFS from mercury exposure? I have severe CFS and my symptoms started a month after a bad dental procedure involving copious amounts of mercury vapor. I now feel as if I'm dying.
I hope you continue to do well.
Sulphur
Any feedback on this now?
I still have my amalgams...cant really remove them without having my liver and kidneys super strong and healthy.. as well as my adrenals.
So sulphur wont help?
Sulphur
I'm wondering the same thing. I was all ready to begin the turpentine treatment when someone told me that doing it before removing my amalgams would deposit the mercury in my brain! I would be relieved to learn that sulfur will chelate the mercury, as I haven't the wherewithal to remove the amalgams now. I began a new thread on this issue yesterday but haven't received an answer yet, so thought I'd try here, as well. Thanks!
Coconut Oil
To Heather from San Diego, First off, Congratulations on your great results!
I have questions which have to do with your use of borax, but the EC form won't allow me to modify the subject line to include Borax in it.
Heather, could you please give some more details on your use of the Borax? How much did you take, and how frequently? How did you know, and how long did it take for you to know positively that it was Borax making the difference? Did you use 20 Mule Team or something else? This is important for me to know. Did the Borax initially produce an increase of pain for you?
Thank you very much, and again congratulations! Linda
Coconut Oil
Hi,
I feel absolutely exhausted. My head is drooping. I don't drink or use any drugs- well am on trazodone, 87.5 and gabapentin 150 mg. I used to be able to do stuff despite exhasution, now I just feel so tired. Ihave lymes, just began holistic treatment for it, and have parasites, fungus, and just don't know what to do about this profound exhaustion.
Is borax safe to take? I will try coconut oil and lugols. Also lots of pain in neck area, diges prob etc, and any help RE: exhaust would be appreciated.
Thanks, Dina
D-Ribose, Creatine
Do you take pill form or capsule or the fruit-chewable kind? I would love to be a better programmer and get back to my beloved dance exercise!
D-Ribose, Creatine
Hi Energizer Bunny - Thanks so much for the information on D-Ribose - especially now with winter closing in, far less sunshine and the cold winds howling. I feel I have to fight off the urge to hibernate!
Tomorrow I will stop off at the health food store and get that combination of vitamins that you have been using. Thanks again - cheers! Bess
D-Ribose, Creatine
The creatine has given me ridiculous amounts of energy /focus, it might be that and not the D-Ribose.
After I workout I'm normally exhausted, but on creatine it seems like it gives me even more energy when i'm done. Unfortunatly, 5 grams gave me insomnia, so I'm trying 1.25 grams to see if I can get similar results without the insomnia. Try micronized monohydrate or less stomach problems.
D-Ribose, Creatine
Thank you so much for this information. I enjoyed reading about your success and I am happy to hear how much healthier you are, especially how much energy you have now as well.
I myself have adrenal fatigue. Every task is a colossal effort. Even after exercising or doing a chore I am still tired. Ready to rest again. After sleeping a full 8 hours or more I still desire more sleep and it's just awful to feel this lethargic. And so I am going to try some the supplements that worked for you and hopefully they too work for me. All I want is to feel better, more energy and alive again. This state is like being a waking coma. I can't wait to try the supplements and again I thank you for sharing your really inspiring story.
D-Ribose, Creatine
How long should it take for these supplements to work? I've had chronic fatigue for 6 years and I'm taking D-ribose, creatine, acetyl carnitine and COQ10. I've been taking them for a few days now to no effect. Please help!
D-Ribose, Creatine
I'm happy for you. My question is, can you take this regimen long term? I know it's all natural but from what I have read even with all natural they suggest you cycle off and use natural remedies like this only when needed because it affects your brain chemistry. My problem is I need something I don't have to cycle off. I have ADD/chronic fatigue/anxiety and depression issues that all cause lack of energy and focus and extreme fatigue and I need something that I can stay on because this never seems to go away, battled it my whole life. My point is, I can't just “ take it when needed “ because my body needs it all the time, not in an addictive way, it just seems my body lacks these supplements to make it function properly.
Any advise? Trying to find natural remedies with no side affects or long term affects so I can take it nonstop and continually because nothing else has or is working.
D-Ribose, Creatine
You may have an allergy. That sounds like what happens when I eat cooked eggs. Raw eggs don't bother me. Milk, ice cream, and grains also bother me. Eating a lot of avocados, garlic powder, bone broth, and citrus juice, combined with detoxing - whole leaf aloe vera drink, activated charcoal, green tea, cocoa powder, green juices, iodine, etc. - have helped. I also feel better after laying in the sun and getting fresh air. If you can't go comando, wear dark colored, breathable, light-weight clothes. A top with a hood and long sleeves, and pants enable you to absorb the beneficial far infra-red light while reducing exposure to harmful ultra violet. I lay out as long as I can. But only 30 minutes at most if comando, flip halfway through. If you have been a smoker you may need to strenthen and clean your lungs to increase oxygen uptake.
Probiotics, Vitamin D3

Probiotics and VitD3 against Chronic Fatigue
ok - do alot of things and take/ have taken alot of supplements, but what really seems to have kicked CFS in the butt is strong probiotics and Vit D3. Suffered from CFS for a good 10 years. Much better now and besides shifting my sleep patterns (feel grottiest in the mornings, so just sleeping through it and not getting up before noon does part of the trick. Luckily am self-employed so can arrange my day as I please), exercise (alot of cardio - and go into mediatation/ healing-mode whilst (don't do this on the treadmill!, works well on cross trainers and bikes though)) strong probiotics (I just make my own Kefir (but not anyone can abide the taste) and Vit D3 seem to have been the greatest help.
There seems to be some medical evidence that CFS patients frequently have imblances of gut flora (through stress, trauma or antibiotics), i.e. too many 'neagtive' bacteria, which release toxings into the blood and harm/ weaken nerves and the immune system (of which supposedly 80% is around the gut) - i.e. continuously supporting the gut with beneficial probiotic bacteria which repopulate the gut and push out the negative bacteria seems a sensible idea. Since starting on Kefir two years ago the number of frequent infections went down! Did not do that much for energy though (besides a bit of a general feeling good boost to not be sick all the time anymore), but VitD3 did (initially about 10000IU for a few weeks and since 2000IU daily).
Supposedly in the UK and US 50 % of adults are VitD3 insufficient! ?! ? and besides being important for cardio vascular health, blood sugar health and protective against several forms of cancer it helps with mood, immunity and energy levels....!!!
Besides feeling better (hey still have bad, grumpy days, but (knock wood) have not had any major illness/ infections for almost a year now (there was just one heavy flu about 2 weeks after starting on VitD3 (healing crisis?! ?! )) - I have since managed to have the extra energy to stop smoking and come off antidepressants too!!!
Very good too is that both probiotics (especially self-made Kefir) and VitD3 are both cheap!
Good luck - never give up hope!

I was excited about the research on D3, but it seems to have no effect on my CFS.
General Feedback
History:
Developed asthma at pre-school age; used to play in big oxygen tent which covered my bed.
Developed Rheumatoid Arthritis at age 31 after birth of 2nd child; doctors still vacillate as to whether I have true RA as titers do not show up, but symtoms follow MD guidelines and over the years have taken extremely toxic meds for RA. No longer will take heavy meds for RA; deal with in other ways.
Developed Chronic Fatigue, or what was diagnosed as such, shortly after life long best friend died at age 50 with heart desease. I was then 48. Went to doctor I have used for years (still drive 12 hours to see her 2x a year) and told her I thought I was suffering from depression due to friend's death. She wanted to take blood work before just slapping me on anti-depressive meds. Tests came back with mono; which in Adults is Epstein Barr and two other less common viruses/ She treated me for 6 weeks and at the end of that time, though fevers were less, fatigue and stumbling, no sleep, too much sleep, were not markably improved. Lived with this for many more years with no treatment until MDs starting treating with B12 injections. I now take 3x a week (I am 60). It does help, but not alot. Episodes still occur with virilent effects every three to six weeks. Last year was put on SAVELLA which is new treatment for Fibromyalgia. It has helped some too, spaced out episodes to four to six months, but now having problems with dry eye; loss of part of film covering eye and IBS.
I have to tell all of you, common sense says autoimmune diseases are either related or feed off of each other or must strike some commonality as people with one autoimmune situation almost always have or develop another.
Though I have nothing against "good" doctors (was raised by two), I have strong objections to now taking 22 pills a day which in no way shape or form can be good for my system and probably to some extent counteract each other. I am a Type A personality (which most autoimmune sufferers are), used to be very athletic, no longer eat meat as body will not tolerate and, of course, like almost all CFS sufferers no longer work outside the home, much less overwork, which I was famous far.
I have lost friends over this as no one who has not suffered these life changing effects understands what you go through; luckily I do have a good spouse who tolerates my illness and my voracious reading and searches to try to find cause, effect and some form of treatment to help. I do think the floride poisoning reasearch has some strong studies to back it; oh and my hubby calls me a mine canary because if anything can effect anyone negatively by ingestion or skin contact, I usually "fall" off the perch first.
Any studies or possible treatment with diet change or minerals or vitamin additives that anyone has found to be helpful I would appreciate.
thanks.................stuck in lower rural, backward, Georgia
Susan
PS don't let anyone, with MD after their name or not, fool you into thinking this is caused by depression; anyone who has lived with chronic illness of any sort for more than a couple of years gets depressed.... HELLO?... Your life as you know it stops. If you need antidepressives to help control your sense of despair, take them, but be aware they come with their own issues as any chemical does......... Yoga does work for alot of people.
I had chronic fatigue for over 10 years in the '80's when it wasn't recognized as a 'real problem'. Eventually I even had to quit working (could never collect disability). Even spent 3 weeks in the hospital for testing by an infectious disease doctor, who found no reason for my symptoms. What I found out, over time and by accident, was that being on antibiotics would relieve my symptoms for a significant period of time. Luckily, my personal physician believed me, and would prescribe for me when I would get really bad. Over time, I gradually came out of it.
General Feedback
I came out of remission 11 yrs ago due to taking a beta blocker for 3 1/2 years. The regular MDs and the docs at the Fibromyalgia clinic are always asking me if I am depressed. I keep telling them that if I wasn't depressed I'd be CRAZY!
Multiple Remedies
Dear Ted, Thank you for your help with CFS and allergies. Six years ago I started a continuous struggle with Chronic sinus headaches and infections brought on by allergies, deep muscle pain and extreme brain fog(At times it is too difficult to drive) and now severe depression. I have been bed ridden much of the time, but still keep going and making efforts to get well for my two children (ages 7 and 11) and my husband who has been burdened with all of the things I can no longer do.
I have tried everything, I even stayed two months away from my family in order to get daily IV therapy which like all else was short-lived. I am currently on thyroid medication and a high dose of an anti-depressant.
I began your allergy protocol with amazing success. I had a few bad days, but they disappeared within a week. I then began the H202 recipe that you gave in an earlier CFS response. In one day I felt like my old self and have not taken an antihistimine or sinus medication in two weeks! I am cautiously ecstatic.
Last night hayfever set in with a vengeance. I have not taken any meds for it because I want to give your therapy a chance to work. I was able to get out of bed and steam with vinegar and water which finally brought the relief that citric acid and baking soda could not touch. It is evening and I am much better and can think clearly enough to write.
I think I may be taking too much between H2O2 (3 drops per glass of mineral water) two glasses sipped all day and citric acid, baking soda and mineral water twice a day. When I feel my energy drain I use clove oil with unbelievable success. Could this actually work long term? Should I keep doing this every day along with taking Mg, amino acid, Chlorella, Zinc and egg yokes?
I had a major setback today because I cut myself in the garden and got a a tetanus shot along with stitches. I am terrified all of this progress will now be lost. I would appreciate your thoughts on this.
Thank you again for the last few weeks of improved health and the sliver of hope that it is possible to be healthy again.
Sincerely, Courtney
Whats the allergy protocol please? Im so allergic Im living in a car, allergic to chemicals and formaldehyde so the house is unbearable and nature - pollens etc. Any help GREATLY appreciated.
Essiac Tea

I have battled chronic fatigue for more than 20 years. Sometimes it's baffling; it comes and goes. However, I have managed to keep working all this time because of the natural remedies I've used. The XMRV viral connection makes sense to me. I had Epstein-Barr virus. I treated this with the essiac fomula very successfully, and I am due for another brewing. It might be worth a try. It turns my energy around with a week of taking the brew morning and night on an empty stomach. Essiac is said to kill viruses and cancer cells in the bloodstream. I'd like to add that I took the essiac formula to my cousin and his partner, who had come down with AIDS many years ago. To this day, they still take it, and it has been a literal life saver for them. Chronic fatigue can also have a thyroid component, and also adrenal exhaustion may play a part, or a combination. A homeopathic doctor told me years ago that my mitochondria were dysfunctional. The mitochondria are organisms that live in our cells. They consume sugar and release energy, giving us energy at the cellular level. If this is not working correctly, you will not have any energy being supplied to your body. The mitochondria can be effected by viruses, candida, etc.! I'm currently looking into how to support the mitochondria. Anyone out there have any suggestions for that?
Re: Mitochondial Support: Definitely CoQ10 and Cell Salts (aka Tissue Salts available at most Health Stores. Note: the LARGE bottles of Bio-Plasma [a combo of all the salts] are very inexpensive and a great way to start); function explained here: http://en.wikipedia.org/wiki/Biochemic_cell_salts
United Mitochondial Disease Foundation www.umdf.org
Start at the top of the page (link below) with things to avoid etc. Scroll down to find Vitamin & Supplement Reccomendations/Chart. Below that is the Medication, Minerals, Vitamins and Substrates that May be Helpful (with the advice of a physician of course): http://www.umdf.org/site/c.otJVJ7MMIqE/b.5692887/k.6686/Treatments__Therapies.htm