Hidradenitis Suppurativa Remedies
DISCLAIMER
Our readers offer information and opinions on Earth Clinic, not as a substitute for professional medical prevention, diagnosis, or treatment. Please consult with your physician, pharmacist, or health care provider before taking any home remedies or supplements or following any treatment suggested by anyone on this site. Only your health care provider, personal physician, or pharmacist can provide you with advice on what is safe and effective for your unique needs or diagnose your particular medical history.
GENERAL FEEDBACK
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05/21/2011: Rhonda from Golden, Co writes: "I'm a woman in my 50s and got HS about 5 years ago - out of nowhere! I've been on a daily antibiotic for over 4 years. I still have constant outbreaks, but they don't get as huge and horrid as they once did. I'm not overweight, but I was a smoker and was told that would make the condition worse. I quit for 2 years and it didn't make any difference. I've tried several of the remedies on this site except the Bacitracin ointment, turmeric, and Burdock root, so I'll look into them. I also have severe migraines, so anything with a side effect of headaches, I won't try. I was told today that milk allergies or sensitivities can cause boils, but couldn't find anything on the internet about it. I drink a small glass of milk every day. Does anyone know anything about this?"
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04/22/2011: Donelle from Victoria, Bc writes: "Hi everyone, I am a 31 year old Canadian girl and I was diagnosed with having this disease about a year ago. I believe it started about 7 years ago after I had my first child. While living in Calgary I saw a few doctors and one referred me to a general surgeon who hacked me all up and temporarilly removed three cysts from my groin area but who never told me what it was or mentioned the name. Just told me it was not rare and that they may resurface one day.
After about a year later, and some horrible scars too, they did resurface, mainly one that is... And I was too embarrassed to do much about it so I just dealt with it. It seemed to really only outbreak right before my period and die down after but I was pretty miserable about it. I now live in Victoria, B. C. And have had another child almost 3 yrs. ago..... And had a flare up so bad once that I went to the local hospital and said help...... Thank goodness the ER doctor was familiar with HS and diagnosed me with it immediately.
Finally someone could at least put a name on this awfulness, he put me on antibiotics or whatever and that was that. I told my own doctor who just kinda shrugged it off. Then I looked online and saw pictures and I gotta say that I am very fortunate that I don't have the armpit case or anywhere other than the one or two localized spots..... I am so sorry for those who do, I can only imagine your suffering:(. What a relief it is to know that there are others out there dealing with this and sharing ideas. I was tired of my doctor shruuggin me off about a dermatologist so I forced myself to go to a walk-in clinic (in the wal-mart, believe it or not) and showed him all my problems, twas a really bad month because I also have excema and occasional chest acne outbreaks... And he prescribed some keflex which helped a bit but of course is only temporary. More importantly though, he reffered me to a dermatologist who I will see next week............... Finally!! People take skin for granted!! When it is a mess, you feel like @$%%!!!!!!!! But thanks to everyone for all the tips... I am going to try some new things and see... Keep on keepin on y'all!!!!!"
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04/12/2011: Black2moose from Atlanta, Georgia writes: "Does anyone know if HS is a form of candida?
I've had HS since high school and I'm in my 30s now. It's pretty much all over my body, face, neck upper and lower back, thighs, armpits and back of arms. It gets worse when I'm stressed or I eat sugar or drink alcohol. I have been diagnosed with Candida. I know that sugar and alcohol both make Candida grow. While I was on the Candida diet my absesses got better but as soon as I got off the diet they got worse.
Somethings that work for me but are by no means a cure are as follows:
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04/05/2011: Glenn from Durban, Kzn South Africa writes: "HI been suffering from HS for about 15 years got totally ripped off by the medical profession for ten of those years. Diagnosed myself from the internet. Been using a broad based anti fungel cream under my arms each morning(cheap) has kept HS at bay but not cured. I havent had a boil once while on treatment but when I stop HS returns am now going to try tumeric as well. Will let you know how it go's thanx Glenn."
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04/04/2011: Ana from Las Vegas, Nv writes: "It's been a while since I've posted on this site. I've had a rough several months dealing with the HS. I now have 6 surgeries under my belt since July 2010. No pun intended. I have also been hospitalized 3 times with one admission due to sepsis. I've had this for 10 years and I'm ready for a miracle.
Since July I have a new team of MD's working with me to get this under control. I have a new primary, a dermatologist and a surgeon all working together to be the first team to say they cured HS. I am blessed to have found such great people willing to do something for me other than antibiotics. Here's what we've done so far. Like I said before, I've had several surgeries which are actually just "incision and drainage". I had 15 abscesses the first time I went under the knife. That by far was the worst recovery; the others were not so bad. There's very little pain after surgery in comparison to the boils themselves. I had 8 weeks of IV antibiotics. I had a PICC line inserted after the sepsis admission and a home health nurse came 2X a day to administer the Tygacil. By far the worst antibiotics ever! I lost 25# in those 8 weeks due to vomiting and stomach pain. As horrible as it was the HS seemed to quiet down a bit.
I recently had botox injections in my underarms. I do not have HS in that area but it is an area that the disease will spread to eventually so they are trying to stay ahead of it by stopping the sweat in my underarms. Not painful at all but it is 20 needle sticks in both arms so if you're needle shy just keep that in mind. It does only have to be done 3 times a years though.
Next week I am playing guinea pig for them by starting Humira. They have discussed it with an Infectuous Disease MD and she is interested in following the progression/decline in my HS once I start Humira. It is not normally used for HS and is off protocol but it is an autoimmune drug that they think may be helpful is bringing a cure or long term remission.
On another note. I have not been able to work since October 2010. The pain and number of surgeries has prevented me from it. I am currently under my employer's plan for short term disability income but that can't last forever. I have a case manager through my MD's and she suggested that I apply for Medicare Disability. I checked into it and HS is an approved disease for benefits. Just thought I would let everyone know since I know a lot of people suffering from this cannot financially survive without working. It is a long process and your MD has to say you cannot work due to your disease but if some of you are at the level I am with HS it shouldn't be an issue.
I will keep you all posted how the Humira goes for me. It's scary that it has gotten to this point but I will try just about anything to be pain free and clear of this disease."
Replies04/04/2011: Christine from Bellingham, Wa Usa replies: "You might see if you are short on zinc. Try 50mg zinc/day and see if it helps reduce the sepsis at least."
05/26/2011: Jessica from Bloomington, Indiana, Usa replies: "I have had this disease for 14 years. Antibiotics havent worked, accutane didnt work and made me feel really funny and wierd. I have had parts of both buttcheeks removed and a skin graft done in my groin area to try to stop the problem. Right now I have one on the inside of each thigh and one in the scar tissue from the skin graft. I am going back to my surgeon tomorrow to see what he has to say... Again. I went to the ER the other day for the one that is in the scar tissue and they were afraid to do anything with it. I really wish I could find something, Anything that would help me. I have had to apply for disability due to this disease and a few other issues, it took me 8 years to get it to go through. Im tired of struggling with this disease. There has to be Something someone can do for this AWFUL disease."
05/27/2011: Molly from Bloomington, Indiana replies: "Dear Jessica, I noticed your post because I am from Bloomington as well. I would strongly suggest colloidal silver both internally and externally. I will include a link for you below but I also make the silver myself if you want a larger or stronger amount. Please feel free to contact me if you would like to talk. Good luck!Molly
11/19/2011: Larry from Calgary, Alberta, Canada replies: "Hidradenitis suppurativa has caused me sorrows and mental pain and worse it has done havoc w/ my relationships Some ladies thought it is caused by herpes or a sign of promiscuity. I've gone several doctors and they can't explain it , they don't seem to know the real case so they don't have the way to fix it, it continues to appear again. I've tried ointments, antiseptics, special soaps, even turmeric is supposed to work, antibiotics, Oil of oregano, Colloidal silver, someone said laser but I don't believe it, so far nothing worked."
But there was a new explanation about the cause - the story is HS is due to antibodies to gluten. Now, I have heard of gluten caused Celiac disease and Dermatitis herpetiformis but according to the information, gluten contains 3 antigens one is gliadin but there are 2 other that likely causes the HS.
There is a remedy - recommended at one of the forums. It is a combination of peptide bottle with 2 herbs formula. Anyway, I had to try it because there were no other options left and I really have to find what works.
To make the story short, I used it for 3 months. The 2nd month is I believe enough evidence that it works because the skin problems and boil formation was reduced and I can tell the difference of before and after therapy. I cannot explain how it works , I only know it has brought relief and improvement. When I was finished with the medicine, there is a period of change that continues because it takes time. However, I believe it is a true medicine because I am free of symptoms.
12/09/2011: Shawnamarie75 from Moore, Ok United States Of America replies: "Larry,Please tell me where you found this information. I have long believed that my issues came from a gluten issue, however the doctor that I spoke with regarding my concerns completely dismissed my concerns.
I would be forever in your debt and beyond grateful for your help.
Thanks, Shawnamarie75"
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03/09/2011: Robin from Portland, Or writes: "Well I've had this 3 years and now I know what it is, finally!!! Going to dr tomorrow, get antibio... Anyway I took a product boiron silica 30c cleared most of it, now on turmeric, as far as mate just os nothing more but at last I have answer!!! And will keep trying everything till I get it under control, will keep ya posted!!!"
Replies03/22/2011: Robin from Portland, Or replies: "Hi well the dr gave me antibio, fungus cream and what has helped the most, benzoyl peroxide 6% cleanser!!!!Yippie!!!"
03/28/2011: Robin from Portland, Or replies: "Well it's back, I guess I'll try tea tree oil next."
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02/25/2011: Tonya from Atlanta, Ga writes: "Hidradenitis: It is great to find this web page to read what is and is not working for different people. I've been diagnosed with HS for three years now. Tried most of the things on this page and some would ease the pain and make HS bearable, but no remission for me. I pray and hope for all of us, that a "cure" is found sooner than later. Just wanted everyone suffering with this currently incurrable disease to keep your head up. BTW as a single female, how do you explain this to your boyfriend or potential boyfriend? It looks horrible to me, especiallly when there's drainage, much less someone else. I have been tested for MRSA and Staph infections and they came back negative. I've been told it's not contagious, but tell that to someone you want to be intimate with. Anyone have any suggestions on how to discuss HS with potential mates?"
Replies[BETTER BUT NOT CURED] 03/09/2011: Samantha from Orange County, Ca replies: "Hi Tonya! Blessings to you too! I've been dealing with HS for 12 years now. I usually tell my boyfriends that I have an issue with my sweat glands... That they get infected and don't function properly. That is usually sufficient and they always understand : )
For me, all of these things help:turmeric, topical antibiotics (evoclin), and using antibacterial soap. In addition, I'm mindful of the fabrics I wear (cotton almost always), the personal hygiene products I use (natural deodorants), and usually go "commando. " Lol. However, nothing has "cured" my HS yet.
I've quit smoking cigarettes and am working on losing weight. I am specifically focusing on having a clean and healthy body from the inside out. Eventually, I will do a comprehensive detox like a raw food cleanse for a few weeks this summer. It makes sense that this will be the best option because it has worked for others and these types of regimens have healed cancer and other vile diseases.
I'll keep you all posted <3
Samantha"
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02/03/2011: Wilma from Chino Valley, Az, Yavapai writes: "Hi. I am so glad that I found this site! :) I really thought I was alone with this terrible disease. I have had HS since I was around 10yrs old. I am now 38yrs. Like many of you every doctor that I went to for many years gave me a different answer and a different treatment. I have been on so many different treatments that it makes me sick just to think of it. What I did notice though is that both times I was pregnant that I hardly had any flare ups. I also notice that when my hormones are going bonkers the boils will subside or act up depending on what my hormones are doing. I always have at least two going at a time if not more. Because certain areas are now numb (i believe because of the boils) sometimes I don't know that they are there until I notice them draining.
I had surgery about 5 years ago under the breast to try and remove some lesions that would not quit draining. What the doctor did was "an upper tummy tuck". I scarred miserably and they were back within two years. I now take magnesium tablets and that seems to help some. I also have found that prescription strength Silica and Hehp Sulph works great at the onset of a boil. It speeds the process up for me. I also use a salve called RID. You can buy it at the pharmacy. This helps with the pain to a degree. I plan to try some of the suggestions that I have read today.
Thanks for listening. "
03/24/2011: Lrgold from Las Cruces, New Mexico replies: "Hello all--I can't believe it--after years of suffering and MANY hours of my own research, I found something that WORKS!!! I put the pieces together after doing my own research because docs kept putting me on antibiotics and I didn't want that. The meds cleared up the "bumps" (really bad under my breasts and in my armpits) for two weeks, then they'd come back with a vengeance. Also, I've tried collodial silver,
For the first time in 3 years, my bumps are gone and the scars are healing. I am 100% convinced that HS is related to yeast overgrowth in the body, which is aggravated by antibiotics and other things. Some symptoms are yeast infections (including under the finger or toe nails), vaginal yeast infections, chronic sinus problems, affected lymph nodes, and a white film on the tongue or a cracked tongue.
I've always had problems with vaginal yeast infections--very sensitive to sugar, though I eat my fair share of chocolate, of course. One beer makes me feel like that purple chick in the original Willy Wonka. On these HS support forums, many people swear by a gluten-free and dairy free diet... This is directly connected to the "yeast (candida)-free diet" which advises people with candida overgrowth to avoid fermented dairy products, pretzels, chips, bread, beer, wine, etc. Pretty much everything but veggies and meat. However, what's great is that it doesn't have to be a PERMANENT diet. Clear out your body for 3 or so months, then really monitor what is going into your body and how it makes you feel.
Sorry for the length of this post, but I feel compelled to pass this on to other sufferers!!! What finally cleared up my suffering is this:
NYSTATIN 100,000/g POWDER: prescription only (ask for the larger sized bottle), but not a controlled substance. Clean the area well, then put this in the groin area, under the armpits, and under the breasts (in your affected areas). I also had to use Nystatin cream on a small section of my groin and a little under my breasts, until I got it under control.
I am currently also taking (available from Vitamin or health stores):
Candidase Enzymatic supplement (to inhibit yeast growth)
Kyolic odorless garlic supplement (anti-candida formula)
Acidophilus Pearls (anti-yeast)
Turmeric one-a-day pills
(all of the above I plan to be on for one month, then try and monitor my yeast intake to keep levels under control).
Vitamin A
Vitamin D3
B-vitamin complex
Prenatal vitamins (always take them as my multi because I like the effect on my skin and nails)
I only use IVORY bar soap under my breasts and in my armpits and groin. I use a new razor every time I shave under my arms. Now that the bumps have gone down, I try to exfoliate under my armpits with a loofah to remove dead skin. I also do NOT use anti-persperant, but rather spray Crystal deodorant in the clear bottle with a purple label.
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When you are in a breakout--use pure tea tree oil on your bumps that haven't come to a head. It works wonders. If you get a bump behind your ear, don't mess with it, and the lymph node will eventually go back to normal. Take ibuprofen 800mg to reduce swelling in the deap-seated large abscesses.
The nystatin will help you! GO GET IT! I can't urge it enough. The anti-candida supplements helped too! There is another article I read that said people have had luck on long term anti-fungal prescription medication, but this can be damaging to the liver, so I opted to try the supplement route first.
I also gave up dairy a few months ago, and still severely limit my intake. I know that until I get the candida under control, I'll have to keep using the nystatin powder, but I am making an effort to try and cut out the yeast foods. Avoid sugar/sugary drinks at all costs if you can.
I have been in severe pain, spent hundreds of dollars for surgeons to drain and pack cysts, and been depressed and shameful. Please try this, I think it may help many people."
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01/17/2011: Liam from Ramsgate, Nsw writes: "Hi there, my name is Liam and I am from Sydney Australia. I am a 30yo male.
I have had HS from the age of 15 roughly. I have even had a Dermatologist take a biopsy off me in 2000 and not tell me I had HS, all he said was it was a Follicle issue.
After breaking down several weeks ago at the local doctors is when the Doctor told I had "Hidradenitis Suppurativa".
At this point in time I am in severe pain as I have multiple boils under my armpit, and several on my bottom, oh, should I mention that I am sitting sideways! They have been there for about 8 months now and they go and come back. There are some days when I am in so much pain that I cannot go to work. The other worse thing is, I love tennis and coach the game also, due to this illness, I am no longer able to play & coach.
This disease has stopped me from maintaining a relationship and has made me so depressed.
Today I googled "Hidradenitis Suppurativa" and read as much as I could until I went cross-eyed, and I think on the 5th page in the search I clicked on this link.
I have now been reading everyones testimonials on this site for the last 2 hours and have not stopped crying . Snot everywhere, sadly pus later.. It is so much different hearing from others who have the same problem.. I honestly thought I was alone.
I can't even believe that I am writing this up to be posted, I have never been compelled to do anything like this on the net.
Whoever has taken time to maintain & create this site, thank you.
I will try the Turmeric Remedy and keep all posted.
Regards, Liam"
Replies01/18/2011: Deb from Melbourne , Australia replies: "Liam you could also try one drop pure tea tree oil on the boils to draw out the toxins.I have read that boils can be caused by an acidic body. It may help you to look at your diet and eat more alkaline foods so that your body has the proper pH level. Green smoothies, pineapple juice, water are mostly alkaline while coke, milk, meats, are acidic. Bathing in bicarb soda is also good as it is alkalising to the skin. There are some good books you could read which list which foods are acidic and which are alkaline. Disease and toxins apparently can't exist in an alkaline body. Cheers"
03/18/2011: Kiki from Chicago, Il replies: "Im so amazed at what ive read. Im so happy to know that im not alone. All these stories have motivated me to eat better try harder and not give up. I have had HS or been diagnois since I was 15. Im embarassed at times too about my scars. Ive had several surgeries and still they come back. My last surgrey left me with open wounds under my arm for almost 3yrs now. I keep them cealn and I dont take any more antibotics. I know that God can heal me if I put the effort to heal myself. Im going try so of the things ive read and see what happens. Im so happy to share this because like Liam I have not been able to maintain a healthy relationship for several reasons but not having anyone to relate makes the stress more stressful. Im so determined now to just accept the dis-ease and make it my everyday goal to do something to better my HS. One thing that helps is in the bible Job was one of the most faithful men of God and he got boils and God blessed him. So I know that we are all blessed and highly favored in his eyes."
05/03/2011: Kara from Chicago, Il replies: "I don't even know where to began but I know that seeing others post on this site has been soo helpful and encouraging for me. I have had HS for 15 plus years now and have been through many of things mentioned on this page. I have draining from openings in the groin & armpits areas for years now. I have had many surgeries but decided I didn't want to be cut anymore as they always returned. I have been on antibiotic regimines/antibiotic topical creams/hibiclens/tea tree oil/turmeric/probiotics/multi vitamins/omega 3 oils/turmeric topical cream/espon salt baths/800mg ibuprofen for the pain the list goes on. I also played ginea pig for the drug Humira in a trial study... NOTHING has worked for me as of yet.. I am currently in the process of changing my diet to a more veggie/fruit/fish adding some exercise into my life as well... I am at my wits end so I hope the diet change along with my current regime of vitamin b-12 stress complex, omega 3 2000mg daily, clyndamycin antibiotic 2x a day(I hope to take out of my regime), washin with hibiclens/tea tree oil on new boils & tea tree antiseptic cream on existing draining boils, probiotic. I will be adding turmeric back into my daily regime. I will keep all posted.Thanks"
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12/16/2010: Tammy from Long Island, Ny writes: "My name is Tammy, and I stumbled on this site for the first time today. I've had HS for almost 20 years now. Every once in a while I'll surf the web praying to come across some miracle cure for HS. I don't bother even going to the dermatologist anymore. Although he's familiar with HS, he has no cure/solution for me. He can just lance these huge boils. But after dealing with this for 20 years, I've learned how to deal with the pain, and how to express these things myself. It's a whole lot cheaper then paying a $50 copay to have one lanced. I've tried the anitbacterial soaps, epsom salt baths, apple cider vinegar, antibiotics, etc. Nothing seems to work for me. So basically, I'm writing because it feels good to correspond with people who know what I'm going through. And also to ask a few questions/comparisons.
1. Does anyone else ever compare their flare ups to the carnvial game where you hit the animals that pop out of the holes, but then another pops up? Everytime I get a "boil" and it finally busts open, it never fails, another one starts to appear. It's so frustrating, because I can't even enjoy the pain going away from the one that opened, because another one has started. The worst is when these boils are in the growing stage, and they're not ready to be messed with or opened. This is the worse pain! 2. Does anyone else have body odor problems from this damn disease also? I use antibacterial soap everyday, but the areas that I get my breakouts have such a foul smell. It's bad enough living with the fear of someone seeing your scars, but then you have to also worry about someone smelling you on a bad day, and thinking you don't wash yourself! I'm currently single right now, and do not even know if I want to be in another relationship. It's very hard to have to explain this disease to someone who has no clue about it. And then becoming intimate with someone is my biggest fear. I also cannot wear sleeveless shirts in the summer, for fear of raising my arms and people seeing my scars on my armpits. They look like actual holes. Like the kids used to say in school, "craters. "
I also have to wear bathing suits with skirts on them. The inside of my legs also have terrible scars too. I think this disease would be a whole lot easier to deal with if it didn't leave behind such ugly scars. 3. Lastly, I also have Irritable Bowel Syndrome. I've read on the internet that HS and IBS are commonly found together in people. Does anyone else here have to deal with this problem too?
Thank you for listening. It feels good to vent. Hope everyone has a "pain free" holiday! :-)
Tammy"
12/16/2010: Brooke from Montgomery, Tx, Usa replies: "Hello Tammy
Are you drinking coffee with milk or cream? If so then stop immediately. That is the worst thing people can feed their bodies! It produces a "plastic like" substance that coats the insides of your intestines. Drink it only black! Then prepare a mixture of the following:
Cream of tartar 4 Tbls
Sulfur 4 tsp
Epsom Salts 4 tsp
Mix these thoroughly together then take a tsp of the mixture each day stirred into a glass of hot water. Then after about 5-6 days of taking these, then take Fletcher's Castoria - take a half tsp every hour to get it absorbed into your system. Boils occur when your eliminations aren't working correctly and with the IBS, I would say that this is the case for you. With a vibrator, go over your abdomen each day for 5-10 minutes and try to get your bowels moving better. Also you need to change your diet to a diet that moves your bowels. Figs, dates, fruit juices, veggie juices, oatmeals, etc for the days that you take the salt mixture, and if they are that bad, then I would just stay on that type of diet. Castor Oil packs at night help so many problems, I would do those also."
12/16/2010: Steve from Chicago, Il replies: "Coffee with cream---??When you make claims like this can you offer some evidence?... I dont mean to be rude but if you are going to suggest that someone stop doing something very popular and common then offer something that gives us the slightest reason to believe what you say... Thank you"
12/17/2010: Self from Ny replies: "Hey Steve, milk in general is an anti-nutrient. As it is a processed food. Cows are fed high amounts of antibiotics and growth hormones that get into the milk humans drink with adverse effects.
You can yahoo/google to learn more, but here are some quick links for now:
Hormones in milk can be dangerous
http://www.news.harvard.edu/gazette/2006/12.07/11-dairy.html
Does milk really do a body good?
http://www.msnbc.msn.com/id/22349307/ns/health-diet_and_nutrition/
Milk: The Hidden Toxins
http://curezone.com/foods/milk.asp
Edgar Cayce was an exceptional alternative healer that helped many that modern medicine could not. He wrote that the combination of milk and coffee was one combination that is hard for the body to digest.
Source: http://www.cayce.com/caycebasicdiet.htm
In the end, do what feels best for you. Many eat whatever they want and the average world life expectancy is still 67 and 77 in the USA (rough estimate). But since most people have crap diets and quasi-stressful lifestyles, many by the middle ages are on chemical cocktails for various ailments. The milk industry and pharmaceutical companies have tight bonds with government, once profits by getting you sick and another by quieting your symptoms. Since we still live several decades since the caveman, I guess they feel its a fair check for population. Can you imagine if we lived to be 100? Could you imagine double or whatever rush hour? But still!"
12/17/2010: Self from Ny replies: "BTW, I am wondering if Brooke meant when you combine milk and vinegar you get a plastic-like substance. When you combine a little vinegar (or lime/lemon juice) with milk and heat it, it will separate and you get curds is a popular Indian cheese called paneer. If you add a lot of vinegar, you will get a plastic-like substance that will get hard.
Here is a video demonstration of the latter:
How to make Plastic out of Milk & Vinegar
http://www.youtube.com/watch?v=4CGXNNoUwOA"
12/17/2010: Brooke from Montgomery, Tx, Usa replies: "Yes Steve and Self,I have been studying the Edgar Cayce readings for 25 years and it is through those readings that I do not take coffee with milk or cream. Cayce said that if you do drink coffee with milk or cream, then it inflames the mucous membrane and the linings of the intestines, it makes it hard on the pancreas and spleen, it is hard on the digestive system, it is detrimental to the gastric flow in the stomach, it is hard on the heart, among a lot of other things! He also said it makes for an OVER ACIDITY on the body which is hard on the digestion also. I never even started drinking coffee because I was turned on to Cayce at such an early age, however, when I see a client that has bad digestion problems, I always tell them to cut out the coffee and milk together. I let them know that if the want to drink coffee, then it is ok for them to drink it with a little sugar, preferably beet sugar, however, not with milk or cream. When coffee taken alone or with a little sugar - it is a FOOD in the body, a stimulating food, according to Cayce. Hope this clears up some stuff for you Steve."
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11/02/2010: Kathie from Celina, Ohio, Usa writes: "I suffer from hidradenitis for 35 yrs have had several surgery's. Left u-arm total removal of sweat glands & hair follicles. Now having a new site breaking out and I can not afford to see a Dr. I have had the new breakout site cut opened to drain and now having repeated growing. I wish that a cure can be made to help us who suffer this disorder."
Replies06/15/2011: Asim from Islamabad replies: "i am planing to have surgery under my armpits. Do you think I should go for it?"
06/23/2011: Kathie from Celina, Ohio, Usa replies: "to have the surgery I say yes at least you wont have so many breakouts."
[WARNING!] 09/13/2011: Ilena from Hickory, North Carolina replies: "THE SURGERY IS A BAD IDEA, B/C HS DOES COME BACK AND THEN IT TAKES MONTHS BEFORE YOU GAIN FEELING BACK IN YOUR ARM, SO ON THAT NOTE IF YOU WORK BE PREPARED TO MISS SOME DAYS IF YOU GO THROUGH WITH THIS SURGERY."
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10/13/2010: Liz from Lowell, Ma, Usa writes: "I developed a hole under my left arm that is infected and just keeps getting bigger. The doctor diagnosed me with HS but they do not want to operate. They have put me on Doxycycline which doesn't seem to be helping and I feel like there is nothing I can do but live with this gaping hole that just won't go away."
Replies11/02/2010: Kathie from Celina, Ohio, Usa replies: "HI BEST WAY IS TO BUY MEDICAL TAPE THAT'S CALLED STRIP"
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06/20/2010: Debn from Homeland, Calif writes: "I have had HS for about 15 yrs now, following a bilateral mastectomies and reconstruction, within 4 weeks of the surgery the HS was full blown, with mine when it first starts it is an uncontrolable itch, which i use hot compresses to soothe the itch, but usually within 2days i end up with the fissure(tubular abcess)I thought maybe it was my weight causing these monsters to grow, but after losing 75 lbs, they are STILL there, i have 2 good weeks and then suffer for 4 weeks, soap of any kind irritates the area, i had in my groin a few yrs ago, and i went to the dermatologist and he said he could remove it, within 10 mins he was lancing it and draining it, he gave me a local deadiner, within 20 mins of leaving his office i was in excrutiating pain, i was screaming in agony and had to have vicodin to ease the pain..
DO NOT let a dr open these under a local, there are nerves that become injured and the recovery is weeks, when the abcess came back, needless to say i went to a new dr. and he was appalled that the derm doc had done the surgery without putting me completly out.
one thing i have learned from HS is heat is our enemy! don't let the area rub skin on skin, this only makes it spread to the opposite side or skin fold, mine are all in my groin area, also erythrocyocin has helped settle the flame feeling. tape is bad too, anything that weakens the skin will cause an outbreak. Boil ease helps, it you just cant take the pain anymore, apply it the area and LAY down, watch tv, or sleep, and letting the boil ease dry, it will draw some of the pressure out.
for the last year, i have eaten only fruits and veggies, and very little meat, zero sugar, zero soda..its milk and water for me..so diet ( i dont think) has anything to do with it because i still get the same abcesses as i did 80 lbs ago and eating bad foods. what needs to happen is a DOCTOR needs to take the time to really look into the causes and the cures of this. shrugging it off and looking at us as if we are dirty does not cure the problem, it only lowers our self esteem lower, (IF THATS POSSIBLE) Good luck everyone"
Replies06/24/2010: Brenda from San Antonio, Texas replies: "i wonder if you have tried the amino acid glutathione. it will clean the cells, and i have seen it clear up the worst skin problems. the dose is 250mgs three times a day with no junk food. the chemicals seem to trigger the outbreaks. if you eat clean it may be something you are eating anyway."
06/25/2010: Isabelle from Garden Grove, Ca Usa replies: "hello! i am sorry that you have that problem. i like to suggest a try with turmeric .it has a wild range of healing.including any kind of inflammation and infection. turmeric must be taken with fat and black pepper in something hot for good absorption as it is not soluble in water and need to be heated .i take it twice a day like that: 1 tsp of turmeric 1/16 of a tsp of black pepper 1/2 to 1 tsp of coconut oil in 8 oz hot soup, broth or water. when an infection is severe it must be taken 4 times a day and it does miracles in two to three days. everything is clear or at least much better. i even give it to the dog if it has an ear infection and without fail in two days it is healed. PEACE!"
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04/15/2010: Michael from Suzhou, China writes: "Hello,
I'm Michael and suspect I have this condition called Hidradenitis Suppurativa. Although I'm British I live in China and have had two operations in the last three years over here. I'm feeling quite depressed at the moment since my last operation was only three months ago and the wounds have not healed fully.
I had three big holes in my groin area after the operation and words cannot express the pain I went through. I've been reading up on this disease and it seems to fit exactly with all the sypmtoms I got.
It all started with lumps in the groin area. These became swollen after a while and eventually burst. I had three interconnected tubes connecting the different sores and so the doctors removed all the surrounding flesh and went quite deep as well.
After the first operation I said to myself I would never have that done again. After the second operation recently I thought the same again. Never again.
The thought that this problem might just re-occur over and over for the rest of my life is just unbearable. The thought that I may need another operation in 12 months or two years just fills me with dread.
I just don't know what to do. Phrase 3 Hidradenitis Suppurativa really sucks!!!
I was reading about a surgery procedure that looks far more painful than what I have endured to date. And the Doctor at the local hospital showed me some pictures of the patient after the surgery and it looks like all the flesh around his buttocks has been removed.
Has anyone out there had this operation or something similar? Was it successful? Can you offer any advise or suggestions?
My email is: Valentinemj@hotmail.com
Thanks for any help you may have!
Michael"
04/16/2010: Lisa from Thousand Oaks, Ca, Usa replies: "Hi Michael,I am so sorry to hear of your suffering. Work to keep your spirits up. I know it's hard when sometimes the odds seem against you. So, since you are in China, have you explored Chinese medicine? Often, what cannot be explained in Western medicine, answers can be found in Chinese medicine. Also, our diet governs so much about our health. It is what creates our body. Whatever goes into it, our body uses to make it up. In that respect, how is your diet? Lots of greens will give healing energy to your body, raw mostly. And green juices as well. Recently, I read the anti-cancer diet book and there was fascinating evidence that turmeric is an extremely effective spice to take in helping heal the body and especially effective with "boil-type" issues and inflammatory problems. One of the key things it said that its effectiveness is raised exponentially by ingesting it with black pepper. This is traditionally what is in curry and could be the wisdom behind this combo of folk/culture knowledge. Burdock root is also used to purify blood and help remove toxins. It is known to be effective in antibacterials and antifungals- a concern in hd sufferers. The western drs. seem to recommend antibacterial soaps to be used with hd but, my concern would be that those soaps would throw off the natural, very important balance of the skin. For myself, I feel that cleaning up your diet changes everything.
I wish you the best and hope that some of this info can help you. Don't give up- answers are there but you have to search and sometimes quite deeply. I do not have hd but have had my own health issues. I have restored my health after 5 years of research and exploration. The final answer was truly found with diet. I eat a lot of raw greens and veggies, sprouts, green juicing daily, lots of garlic and onions and have cut out dairy and gluten which can wreak havoc in the body. I pass on this information because I have spent a lot of time and energy looking for answers so if I can help just one person by passing on what I've learned, that would be great! I just want to let others know it is not a "hopeless situation" as drs. will sometimes diagnose because in my own quest, I have heard story after story of these diagnoses turned around through natural means.
You are in my thoughts, Lisa"
04/17/2010: Alfred from Bangkok, Thailand replies: "Michael.. you have gone thru Hell..My Thai Father in Law.. Had a baseball growth under his rib cage.the massage lady found it.. He is 86 ..too old to operate.. which i was glad.. my Theory about Apple Cider Vinegar..NOTHING I Mean nothing bad will grow in your system, if you take ACV.. my father in law from Old Thai School.. Trusted me. he took ACV 3 times a day. 2 tea-spoon full in glass of water.. In Only 2 1/2 month the Tumor or what ever was gone.He keeps taking ACV because he feels better.. Now we have YOU..I am upset.. those Doctors cutting you up. Michael PLEASE start taking ACV Today..You can not take too much of ACV.. you can not overdose on ACV. No side effects.Please start now .. two TABLE SPOONS IN GLASS OF WATER.. 4 times a day.. i KNOW it will FLUSH all that bad stuff out of your system.. If you have boils now..they will disapear.. NO new boils will start.. Michael.. It sounds too easy.. It is easy.. IT WORKS.dO NOT TELL YOUR dOCTOR.. HE KNOWS NOTHING ABOUT ACV.yOU MUST FLUSH OUT YOUR SYSTEM WITH acv. YOU WILL FEEL BETTER AS YOU DO IT. I TAKE ACV DAILY.
you will feel better soon
Alfred"
04/18/2010: Anita from Edison, New Jersey, Usa replies: "turmeric and neosporin were what i tried. i am from india and that is what i went for first. the boil has burst, is hard and hot and i now have infected glands in my groin. a chinese herbalist has given me a combo of a natural tincture and cal sulph 6x homeopathy. dont know yet but it seems not to work still. starting a fever now and will have to go to a regular doc tomorrow for a strong anti biotic. yikes"
04/19/2010: Michael from Suzhou, Jiangsu, China replies: "Hello Lisa, Alfred and Anita,
Thanks for replying to my message. It seems my wounds are slowly healing, and after a visit to the hospital yesterday the doctor said I didn't need to go back unless there was a problem. I spent a month in hospital after the last operation and have had to go back every three days to have the wounds cleaned for the past two and a half months.
I'm very conscious that the problem could return at any moment so I guess I should give some serious thought, and action to preventative care.
I'm going to try that Apple Cider Vinegar that you suggest Alfred, and the Turmeric with the black pepper, thanks for your encouragement Lisa.
It helps just to know that I'm not alone with this thing. That there are others out there that understand the pain and trauma of dealing with this.
I also like your suggestions on changing my diet Lisa. Although I've never been a big fan of vegetables and fruit, it makes sense to me, so I'm going do my best to make some serious life changes. If anything can help to prevent another operation then I'm game.
Thanks so much for your support and understanding. It's much appreciated.
Michael xx"
04/19/2010: Alfred from Bangkok, Thailand replies: "Michael, You got some info from Ted & Lisa..Now its up to You..YOU ARE WHAT YOU EAT. First I suggest you clean out your system.. A lot of bad crud, that hanging around in your body. In San diego they have a health spa.. people who have one month to live.. They clean them out with Wheat Grass juice and Rejuvalac. See if you can find wheat grass juice, put into your body via enema. Twice a day..Drink 3 oz of juice twice a day..Put the juice in your eyes, ears.. anything growing on your body, put the wheatgrass pulp on the growths.. attach with masking tape..Then drink all the Rejuvalac you can drink. After two week ..Your insides will be like a baby.. then as Lisa said.. change your eating habits. No salt or food loaded with salt, no soft drinks, no fried foods, no food with fat, Stay close to raw foods or as close as possible.. Eat vegtables and fruit.. Green vegtables are very healthy.Michael.. the ball is in your court.. it up to you.. get healthy with fruits and vegtables.
Much caring
Alfred"
EC: Oh sorry, we posted Ted's information dated 04/19/2010 in a new thread at the top of the section: http://earthclinic.com/CURES/hidradenitis_suppurativa.html#TEDS
04/24/2010: Ana from Las Vegas, Nv replies: "Michael...I can empathize with you. I have had surgeries to remove individual lesions, tried every antibiotic; topical and oral, tried ACV, Zinc, Magnesium, Turmeric all the way to Mercury (homeopathically). I've been back to surgeons for help again and now have been turned down by 5 plastic surgeons because of the extent of my disease. My physician has pretty much thrown in the towel because her only answer is for me to be on antibiotics for the rest of my life and I refused. I fortunately work in a medical facility that has physicians who are at least willing to troubleshoot for me. Problem is; there is so little information on the disease that even the best physicians are at a loss as what to do. As far as the weight issue goes; I was not over weight when they started. After children; yes but I have lost 65# in the last year and have seen no improvement at all; as matter of fact they have worsened. I now have what I believe to be cellutitis. (yes I am medically educated)Onset was just a day ago and the pain is increasing so I may need to be seen by my physician at this juncture.Quick info about me: I am 38 y/o, was diagnosed with Obsessive Compulsive Disorder at age 14, no underlying medical conditions, no family history of this disease, had HS for almost 10 years, supportive family, and the ability to see physicians all over the country for this because we are a military family. I pointed out the OCD because that should indicate to you how compulsively I clean "everything". There is no cure! I take ibuprofen and take hot baths for the pain, Xanax for the anxiety it causes and ocassionally a nice stiff drink. (Ibuprofen because my physician will not prescribe anything else) I cover them with gauze since they constantly drain and ooze, wash the area several times a day with "normal" soap that I keep in my purse (the small travel size) and keep the area as dry as possible.
I have recently realized this may just be my cross to bear. It is a horrible disease that I wouldn't wish on anyone but I get through by thinking of those who have health problems that are far worse than my own. I haven't given up; I just refuse to do any more than I already do everyday; lead a healthy life by eating right, exercise and prayer.
I hope you all find peace and maybe one day they will find a cure. God's blessings to all. "
05/16/2010: Francisca from Michelbach-le-bas, Alsace, France replies: "Hi Ana, the Diane pill has been used for acne here in Europe for decades and it seems to work very well. Here it is prescribed by normal doctors. I hope that you get better soon!"
05/16/2010: Ana from Las Vegas, Nv replies: "As you can see from my previous post; I had stated I was going to do nothing more than I already had. Well unfortunately I must say my HS took a serious turn for the worse. I had several days of feeling yuckier than usual and started getting red streaks down my legs and up on my abdomen. I had a fever and was told by my MD to go to the ER. Long story short they took all kinds of wound and blood cultures and low and behold I had a blood infection. Several days in the hospital with so many IV medications I lost count. Only good part of it all was the Morphine they gave me for the pain. :) Well it's been 2 weeks and I'm still not well. I'm taking 3 antibiotics, an antifungal because the wound culture grew fungus, antinausea meds and a narcotic. My new dermatologist prescribed me a drug that is not approved in the US so I had to order it from Canada. He thinks outside of the box and I like that. It's called Diane35. It's basically a birthcontrol pill so only women can use it but it has some pretty interesting data when it comes to HS or severe acne cases. It's very affordable, you don't need a prescription and it also helps with excessive hair growth and sweating. Kills 3 birds with one stone. Worth a shot."
05/17/2010: Sara from The Beach, Canada replies: "I have PCOS and my doctor mentioned putting me on the pill if he could get my periods started back again. He has induced them with meds. They go for a month and stop again, then induced go for another month and stop. He says he would like to put me on the pill so they might come consistently if they stop coming on their own. I have to go back and tell him they have stopped. The problem is I would like to find out if the diane35 is suitable for a 46 year old woman with PCOS. I would benefit from the relief for HS as well I have had it
since I was in my early teens. Does anyone have any adverse effects to the Diane Pill? With similar circumstances? Thanks, Sara."
05/18/2010: Ana from Las Vegas, Nv replies: "Thank you Francisca. I hope to feel better soon and I have ordered the Diane35 so just awaiting its arrival. Good to hear that it works and has been used for years in Europe.Sara; I don't have any info on PCOS and Diane35 but I have had a hysterectomy so I obviously don't have a period either. I've researched other BC pills available in the US and none of them have the same formula as Diane35 even though they state they help with moderate acne. I've spoken to 3 different MDs in different specialties and they all agree that Diane35 is the way to go in regards to HS. Hopefully someone will be able to answer your questions soon. Take care Francisca and Sara."
06/14/2010: An from Las Vegas, Nv replies: "Well it has been a month since I started Diane35. To be honest I questioned whether not they were worth taking. The nausea, mood swings and irritablity were pretty intense but I noticed a change in the HS so I'm sticking it out. All of my doctors did tell me that I should take them for 3 months before I would see any significant change. As a bonus; I also have facial hair growth that has slowed down immensely. The mood swings and irritability have started to level out but keep in mind I had a hysterectomy so I've been without normal female hormones for several years. Overall I'd give them a thumbs up."
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04/15/2010: Efgirl from Chattanooga, Tn writes: "I guess one could say that I've suffered from HS for close to a decade. Yet, didn't really have a name for it for years and years. I am a few months shy of my 30th birthday and I remember when I first started to get the lesions in my groin area and thought they were an irritation from ingrown hairs and shaving. Not much later I feared they were some demented STD that I hadn't heard of... even though my fiance didn't have they same symptoms. I spoke to three different doctors that said they were weight related, if I lose weight and keep them clean they will go away. I have always been cautious about body odor so keeping it clean wasn't the problem and my weight has fluctuated over the past ten years but the sores got progressively worse. It wasn't until about a year ago that I started to try and research for myself what exactly was going on with my body. I believe that I have been blessed to not have ever experienced some of the worst of it yet. At their worst, the sores were no larger that a large grape. Still painful and still distracting from work and relaxation and so embarrassing that I had lost all confidence in my sex life. My armpits, stomach and groin area, i fear, are permanently scarred. I am writing to say that at the very least, finding this website has allowed me to feel less alone. Knowing that HS is a real ailment that others live with daily helps me to not feel so stupid for the misdiagnosis of uninformed health practitioners, or the awful days when I had to change my clothes three times in order to find the outfit that HURT the least, or the utter disgust I have felt seeing my naked body (let alone letting others see it). I have read advise from others who understand this pain, others who have tried remedies and failed or succeeded. I work at a health food store, and until tonight, haven't truly thought that there could be some relief to be found in the place I am everyday! I am planning on trying Tumeric starting tomorrow. I can only keep my fingers crossed that the first time trying to end this pain will be the charm. However, if it is not, at least I have so many other helpful suggestions on this site that I can always keep trying until I find the answer. Thank you Thank you Thank you!"
Replies05/16/2010: Kay Kay from Miamisburg, Ohio replies: "I was wondering how the turmeric worked for you? I am planning to purchase some tomorrow along with the crystal but was worried if they would really work."
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[QUESTION] 04/06/2010: M. from Wenatchee, Wa writes: "Im only 15 years old and i found out i had HS about 2 years ago but the symptoms started when i had started to get my period around age 12. I thought it was from my weight so for the last 3 years i have been unsuccesfully trying to loose weight. I only just started to think about my future with this. and so i researched it. I dont have the severity of this condition as some people do but it still scares me. So, thank you for the tips. Since i suffer from depression as well, this disease doesnt make it any better. This is probably going to be more helpful than what my dermatoligists give me. HS has ruined part of my social life.. i was wondering if any body has any Wifes or Boyfriends or any signifacant other and how you told them about it."
Replies10/08/2011: Jessica from Lyndhurst, Nj replies: "I am interested in talking to you more about how to introduce the " bad news" about HS to your potential mates, I have actually been married for 5 years and had several boyfriends before that, none of my partners ever cared as long as you explain it- email me jaksahin(at)gmail.com"
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02/08/2010: Alex from Puyallup, Wa writes: "i have sufferred from HS for approx 8 years. I am now 20 years old and it is in the worst I've ever experience. Granted i am maybe 30 lbs over weight. My sister & most of the other women in our family have also sufferred from this terrible/embarrassing skin condition. I have searched for answers and have used many doctor prescribed antibotiocs/acne treatments. Such as minocycline/doxycycline and even accutane(none of these worked). I bought turmeric today and am anxious to try this, i will leave an update in one week."
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12/30/2009: Crystal from Wallace, Ks writes: "I just figured out what I have tonight on this site. I have had HS for 11 years. It started when I was twelve years old. It started on my neck, causing embarrassing/painful lumps that people could see. A doctor told me that is was in the "fungus family" and told me to use compound W. This got rid of it, and left scarred holes in my neck. A year or two later it started between my thighs and under my stomach, and the compound W had no effect other than severely burning. Tried fungus creams... My husband has been supportive, but I feel for and understand the self-conciousness for the women (or men)who are finding new mates. It is embarrassing. I can't believe a cure may have been in my cuboard the whole time (i may have to purchase the capsules)! Anything is worth a try. I was getting to the point of wanting to scald all of my skin with as many chemicals as I could think of to get rid of it...the turmeric seem like a wonderful alternative, thank you all for the info. I will try to report back if I find this cure helpful!"
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12/27/2009: Epiphanae from Houston, Texas writes: "Hello all, I have recently self diagnosed with HS (due to having no health insurance)I am currently on my second attack in four weeks which I thought was due to a change in anti-perspirants,as I write I am in extreme pain, and desperate for some relief. So I am about to step out in search of this "Turmeric" and see what will become of me. Thankyou all for your insightful posts, particulary the references to boils on the buttocks (I've had three episodes, and thought I'd been bitten by a spider or insect). Needless to say it was also extremely painful and took ages to heal. Well wish me luck, and I'll keep you posted."
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12/20/2009: Stephanie from Eugene, Or, USA writes: "Suffering from Hidradenitis Suppurativa (HS), Looking for cures!
Hello, I've been suffering from HS ever since I can remember. I'm now 20, and my mother tells me I've had it since I was very young. Around the age of 11, I saw a [rather uneducated] dermatologist regarding the hideous and painful sores I had in my groin and inner thigh areas. After showing her, she actually had to consult another dermatologist, and refer to some Skin Disease Encyclopedia, based on what the boils looked like. This dermatologist offered me an antibiotic to treat it, and I remained on the drug for roughly 6 months, with no relent in sight. After the antibiotic failed, I was prescribed an ointment (clindamycin), which too failed to have any impact on the sores after months of diligent use. When all this failed, the dermatologist recommended intralesional injections-- they basically inject something (I don't recall what was in the syringe) directly into each boil. Left with really no other options, I agreed to take the injections. The dermatologist administered three injections one day, which were pretty painful (mostly due to the sensitive area of the body) and left scars, BUT scared off the boils. I had two more injections after that day before I couldn't take it anymore. The scars still remain, but I'm happy to say I haven't had any outbreaks in those 5 spots since the injections.
I went a few years in remission, with the occasional flair, however nothing I couldn't handle. About two years ago, I had another outbreak-- a very, very bad one. I didn't do anything about it, thinking it was just stress or irritation, and I'd go back into remission shortly. Long story short, that didn't happen, and the HS actually traveled north, so to speak, and I now have very embarrassing scarring and boils underneath my breasts. When I first noticed the spread to my breasts, I immediately called a dermatologist (a different one from the first, since I moved out of state for college). This dermatologist recognized the disease right away and seemed very familiar with it. She explained the lack of a cure for HS, and after telling her of all the medicines I'd tried years prior, she said the only option left was isotretinoin (sp?), aka Accutane. I was hesitant to begin a cycle on Accutane, since the FDA highly regulates the drug due to its connection with blindness, frequency of headaches, severe depression, and severe birth defects, if the child were to survive birth (miscarriage and stillborn children are common while on Accutane). However, with my options dwindling, I agreed to start Accutane. I'm currently in my third month, and have seen slight improvement, but nothing to jump up and down about. :/
I plan on seeing this cycle through (I have about 6 months left), but don't foresee anymore cycles. The risks are too high, and the payout is too low. I've read some other posters' remedies, such as epsom salt baths, tea tree oil, antibacterial bar soap, etc., and plan on giving some of those a try. I'm hoping something helps, because the condition is extremely embarrassing. I feel exposed, damaged, and don't feel like I can have an intimate life with my boyfriend, comfortably.
I am so happy to have found this site, it's a reminder that I'm not alone in my physical and emotional pain and suffering. I hope one day I live to see a cure for HS, and pray that doctors, especially dermatologists, become more educated on the subject.
Thanks, and good luck to everyone sharing this fight with me."
01/10/2010: Childofgod82 from Los Angeles, Ca replies: "im sorry for the pain both of you guys are experiencing. Happened to me at 12 always had reoccurring boils went to the doctors they just lanced and gave me meds. At 12 i had my sweat glands removed from under my arms, skin grafts the works. So now im a woman in my twenties i have them sometimes but very small usually around time of my period when the hormones are crazy anyway. then they go away afterwards. This is what i do everyday to keep things clean, i clean the area(s) with dial gold soap or safeguard bars only. i blow dry the area with an hair dryer to keep it dry, then rub witchazel on area and dry it again, thats had worked for e remember to keep the area as dry as possible so try panty liners, and try to keep the hair as short as possible never shave just clipped. Oh yea if i have one i mixed teatree oil a bit it will dry then itch really bad so just a lil mix with a thicker ointment if your want just natural try castor oil, maybe a lil raw honey and place it on it will quickly dry up. remember always keep areas dry. Hugs alicia"
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[QUESTION] 11/17/2009: Dmp from Wynantskill , New York writes: "I have been suffering from Hidradenitis Suppurativa for the past 20 years or so and was only recently diagnosed two years ago. Since August I have been on Bactrim three different times. It helps while I am taking it but after about a week of stopping my lovely groin cyst returns as does the pain. The only thing that seems to dull the pain is applying heat directly to the area...not easy to do escpecially at work. I decided to try using a disposable heat wrap. I attach it to my underware, tape a gauze pad on top and it does seem to dull the pain. It also seems to
decrease the swelling of cyst.
I am wondering if anyone knows of a connection between HS and other auto immune diseases? I have Psoriasis and was diagnosed with Psoriatic Arthritis this past summer.
I am so glad I found this site."
05/19/2011: Jade from Marrero, Louisiana replies: "I've read all of this and it comforts me to know that I'm not the only one. Everyone says it but its the truth. I have spent 10 years suffering. Recently they have spread to under my breasts and began tunneling. Its not bad enough to have surgery. Before I see another dermatologist I want to try some home remedies. I have seen a dermatologist 3 times to discuss this issue and I was given antibiotics and a push out the door. I started taking termeric (sp?). There is a lot of information on this website about what can and may work, so I will begin by using termeric in combination with a yeast/dairy free diet. I will do this for a month or so to see if it helps any. I plan on keeping this updated as I know its helpful to others. Hopefully I can start living with this instead of hating myself for it.."
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[QUESTION] 11/11/2009: Lola from Selangor, Malaysia writes: "hi im 23 and i have hs. After reading and seeing what other people have gone through and looking at some of the state that their HS have developed into, im really really upset and sad and i just need to know from everyone who is suffering from HS does HS get worse and worse as i age? please someone help answer this. Its really stressing me out. Im heartbroken. PS i really dont know where to post my questions. im so sorry, im new."
Replies11/12/2009: Dolly from Cairo, Egypt replies: "Hi Lola, I read your post and really feel for you as I have HS myself and it is a heartbreaking, depressing and stressful condition. Everywhere I read says its a progressive illness meaning to most people it starts with the 1st stage and by time gets worse, the good thing is by taking your remedies (found on earthclinic)and keeping a clean diet it could be controlled. I read in many HS forums that there are people who have been boil free for 2 years since they kept taking their remedies religiously.
I got this for the first time in 2008 under my arm and been very depressed since, I was in constant terrible pain it was the size of a golf ball until I lanced it, I am taking Turmeric 2 to 3 times daily, cayenne every other day, burdock root powder in times I feel pain and tingling under my arm (I add to the turmeric powder)and I take metformin 500g and Zinc 50g one pill each daily.
It is very important to stay away from sugar its really bad for HS, caffeine and stress, focus on vegy's and fruits, also avoid fats it is bad, for some people there are other foods that trigger their HS you will have to be aware of what you eat to know what to avoid.
I hope this helps, always pray for healing.
Good Luck, Dolly"
11/16/2009: Bill from San Fernando, Philippines replies: "Hi Dolly...HS sounds very difficult to control. I had tinea cruris (jock itch) for about 7 years, nothing I ever tried -- all the drugs, antibiotics, rubs -- all useless.
Then I read here that Milk of Magnesia (MoM) was a cure for tinea cruris which is fungal and not bacterial like HD. I had tinea in my crotch that went right round to my rectal area.
Using MoM every night after my shower, I would apply MoM externally all over the affected areas, and shower it off the next morning before breakfast. I have also read that MoM dries out and that you should wash it off after 10-20 mins because MoM also has a drying effect on the skin. Up to you really, I just did it my way.
Took 2 days to eradicate my tinea, after 7 whole years !!!
My belief is that because MoM has a pH of about 10, and all bacteria, fungus and microbes will be completely destroyed by this extreme alkalinity which does little harm to the skin. MoM even kills MRSA -- which is bacterial -- according to this site and I well believe it.
So perhaps a topical application of MoM is worth a try for HS. Try MoM on a small patch or area of HS first to see if it works. Worth a try.
Good luck !!"
11/18/2009: Dolly from Cairo, Egypt replies: "Hi Bill
Thanks a lot for your feedback, I am happy for you for getting rid of tinea. Its so true that HS is difficult to control as its a terrible disease and it has caused me unbelievable pains, I am trying to do my best though trying everything there is possible to handle this. I have tried to find MoM in Egypt months ago, but its not available, I would try to get it online & see.
Thanks again Bill."
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05/15/2009: Terry from Spring Valley, New York writes: "My daughter has Downs Syndrome and has been suffering from Hydradenitis Suppurativa since she was 9 years old. She is now 25 years old and in fact she is home today with breakouts under both arms. It seems to flair-up just a few days before her menstual starts. Apparently for her it may be a hormonal deficiency. We have been to numerous physicians but not one has offered any kind of support for this condition. She has been on the Omega 3 after every meal but it does not seem to help. I find that soaks in Epson salt and warm water hastens it to a head. At night I apply Ichthammol ointment 20% to the area (which really damages your clothes - stain will never come out), however it does bring it to a head. Since my daughter has hyperthyroidism and is on Synthroid daily, I am afraid to try different remedies that may compromise the effects of the Synthroid. So if anyone out there who may be in the situation my daughter is in, I am so very excited to hear from you."
Replies05/16/2009: Tina from Nova Scotia replies: "i take Synthroid as well i am hypo and what helps my HS is tumeric i take a tsp of tumeric and mix it with a tsp of peanut butter or another nut butter to make a paste and swallow it down that way. depending on the flare up i may do this morning and evening. most times it is just once a day. this does not contradict my Synthroid at all and really helps my HS.
good luck, tina"
10/21/2010: Lou from Tyler, Tx replies: "Be careful with peanut butter. It is a fungus food."
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05/15/2009: Terry from Spring Valley, NY writes: "This condition is world-wide and not enough studies are being done for those who are suffering. I receive calls and correspondence for every other condition/disease that's affecting people for monetary contributions but not for those who are suffering from Hydradenitis Suppurativa/Boils. There has to be a reason or cure for this condition but we are not being told - nothing seems to be concrete. Thanks for this web-site.
There is a new President in Washington and he seems to care very much about people's health. Write your Congressman, Senators and even the President if needed - we truly need their help at this point. This suffering has to end."
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05/06/2009: 32 female from Lakeland, GA writes: "Im 32 and has suffered with HS for about 17 yrs, I have tried everything from antibiotics to steroid treatments. Oh did I mention Nothing worked I am more saddend by the psycological affect that it has. I have been with the same guy for 15 years he is now my husband and Im still ashamed to show him my outbreaks. I try all that I can do to not let him see my armpits, and times that he wants to be intimate I have to turn him down because I have an outbreak in my private area. Very stressful but I have been dealing with a very long time, I just want some relief because no one I know can understand my pain."
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