Table of Contents
- QUESTIONS & ANSWERS
- POPULAR REMEDIES
- Top Remedies Summary
- Acne Soap
- Antibacterial Soap
- Antibacterial Soap, Iodine
- Antibacterial Soap, Turmeric
- Antibacterial Soap, Weight Loss
- Antibiotic Ointment in the Nose
- Antioxidants, Vegetarian Diet, Herbs
- Apple Cider Vinegar
- Apple Cider Vinegar and Baking Soda
- Apple Cider Vinegar and Baking Soda, Epsom Salts
- Apple Cider Vinegar, Turmeric, Manuka Honey
- Avoid Bubble Baths
- Avoiding Chemical Allergies
- Bach Flower Remedies
- Bee Propolis
- Black Onion Seeds
- Bleach Bath, Clindamycin, Prednisonse
- Burdock Root
- Calcium Bentonite Clay, Epsom Salt Baths
- Calendula Oil, Turmeric
- Coconut Oil, Apple Cider Vinegar
- Colloidal Oatmeal
- Colloidal Silver
- Colloidal Silver, Zinc, Apple Cider Vinegar
- Deodorant Connection
- Dietary Changes
- Essential Oils
- Exfoliationg Scrub, Tea Tree Oil Deodorant
- General Feedback
- Get a Correct Diagnosis
- H.S. Dressings
- Hidradenitis Suppurativa and Stress
- Hidradenitis Suppurativa Studies
- Honey and Cinnamon Poultice
- Hydrogen Peroxide
- Laser Hair Removal
- Laser Therapy
- Mercurius Vivus (Homeopathic)
- Multiple Remedies
- Oil of Wild Oregano
- Olive Oil
- Omega 3 Oils
- On Scalp
- Oregano and Coconut Oils, Adrenal Support
- Pau D'arco, Red Clover Tea
- Reader Comments
- Remedies Needed
- Rubbing Alcohol
- Salt Crystal Deodorant
- Swiss Cheese
- Tanning Beds
- Tea Tree Oil
- Ted's Remedies
- Tooth Abcess Link to H.S.
- Turmeric, Cinnamon, Raw Honey
- Vitamin C, Aloe Vera, Spirulina
- Vitamin E
- Vitamins A, D, Zinc, Led Light
- Whey Protein Shakes
- Yara's HS Treatment Plan
- Zinc Gluconate
Last Modified on Jul 16, 2014
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[BETTER BUT NOT CURED] 04/13/2010: Susan from Argyll, Scotland: "Hidradentitis Suppurativa
Hi, firstly can I say thank God for this site! I had a hysterectomy 5 years ago and have had HS for the last 3/4 years. Through your site I am now realising that I may have had this disease for longer but before my hysterectomy I was on the contraceptive pill Diannette which I see from some previous posts has helped with HS.
I started off on the cures for boils as this was what I thought they were and went with the turmeric and garlic as I get severe outbreaks on my groin and buttock area. Neither of these worked for me unfortunately.
On reading through this wonderful site I now realise that I have HS and have been trying to treat it for the last 6 months as I was due to go back in for surgery and after having this done previously to no avail realised that I should start looking at alternatives.
At present I am on ACV with mother and Manuka Honey twice daily, shower daily with non scented soap and apply dressings with tea tree oil cream to affected areas to keep covered and stop spreading any further.
I haven't had a new outbreak for about 6 weeks (which is the longest in a while) but the problem that I have is that 1 of them is still leaking and there are 2 big holes at the area and the others just aren't going away. I am a very patient person (as you have to be with this) but wondered if anyone could provide any other things that I could try.
Thanking all of you for your help"Replies
04/14/2010: Dolly from Cairo, Egypt replies: "Hi Susan, I too was diagnosed with HS in 2008 and I know how devastating it is. What you are doing now is fine, but pls. go back to using Turmeric as follows: 1 tea spoon turmeric some black pepper 1 table spoon of oil some fresh lemon juice (1 table spoon) stir and add water and drink - from time to time add 1 spoon of powder ginger this is to be taken from 2 to 3 times daily. Lemon alkalizes your body and is a good antioxidant and does kill the strong smell and taste of turmeric for those who can't stand it.
Also add 50mg of zinc supplement to your daily diet, some people take metformin which helps.
Stay away from sugar and caffeine, sugar is a terrible trigger and try to cut off fats and white wheat from your diet.You might find this hard at the beginning, but you will get used to it. Try to see a doctor re. those holes so he can clean it to stop this leakage and start healing - always dry youself up very very well after showers.
We do all we can, HS doesn't really go away but we try to contain it as possible we can, good luck.
[YEA] 05/10/2011: Margaret from Toronto, Ontario, Canada replies: "TURMERIC REALLY WORKS!!!
I drink it dissolved in warm water once a day when I have an outbreak - and the boil literally shrinks within hours - it's amazing. 1/2 tsp in 1/4 cup of warm water, but you can play with the dose.
I also no longer sit in a chair at work - I sit on an exercise ball which constricts my groin area less - which has made a HUGE difference - my exercise ball deflated and I sat in a chair for a month and they came back - I bought a new ball, they were gone in a week.
PhisoHex also works if you use it consistently but you shouldn;t use it longterm.
I notice when I eat a lot of sugar, it makes it worse. Good luck."
[SIDE EFFECTS] 07/04/2009: Sherry from Central City, Ky: "I used to get boils in the groin area and just could not figure out why. I finally figured out what was causing this ailment after years and years of wondering. I had for years used bubble bath and I used many different ones throughout the years. Once I ran out and forgot to get some and again kept forgetting to pick some up. I didn't get any boils for a while. I bought some more bubble bath and I again got boils. I finally realized that whatever ingredient was in these bubble baths was causing my problem and I stopped using it altogether thank goodness. I am now boil free. So if you think that products are not harmful something as simple as bubble bath, think again. I won't use it ever again. I am a bath person as I like to soak and relax in a tub and I loved my bubbles.. but have learned to live without them."
[YEA] 06/14/2013: Anonymous from Holland: "Like many, I suffered from HS since puberty (so now about 10 years). I only went to the doctor once as a teen, this was quite traumatic as she simply told me I wasn't keeping myself clean. After that I started showering multiple times a day which caused the infections to get so bad I couldn't even walk. Now I know I'm extremely allergic to synthetic parfum and sulfates (also suspecting benzoates). I can't have it in anything, even if I wear clothes that've been washed with a 'wrong' detergent I'll break out within the hour. However, when I avoid bad soaps I'm 100% healthy (skinwise). Dietwise I eat mostly organic with much fruits and veggies and no porc, little sugar etc.. So I'm not sure if I would have infections again if I'd eat unhealthy. BUT I do smoke, drink coffee and alchohol, which doesn't seem to have any (negative) influence whatsoever."
[YEA] 11/03/2007: Sylvie from Ottawa, Canada: "I have suffered from HS for 30 yrs and have tried all doctors have to offer alternative remedies for relief. Bach (origional flower remedies)Rescue Remedy in spray or liquid..on boils and absesses 4-5 times daily. When caught early it resorbs/when in full "bloom" it helps drain and heal. I find myself craving Indian and Morocan food lately..will try the Tumeric remedy."
[BETTER BUT NOT CURED] 07/25/2009: Leeya from London, UK: "good news for everyone who are suffering with this disease. my daughter was suffering with this disease for the last 2yrs , i have tried everything u name it and one day in my home i found a herbal antibiotic. actually my uncle use this herbal antibiotic for general purpose and asked me to try this one. you can't believe it the very next day i saw the difference. boils which were open were like going to be disappear soon.
i am writing you the details of this antibiotic but would like to say one thing. this medicine effects on my daughter very quickly probably she is very young and respond immediately to this medicine. but as more adults are suffering with this.. i have a feeling its will take slightly more time probably it will take a month or more . but please try it. she takes one tablet everyday for the last 4 months. i dont know how long i am going to give this medicine but certainly not going to stop soon. at least she is not a victim of Hidradenitis Suppurativa anymore.
the name of the _____ is bee propolis. its a wood supplement. if you couldn't able to find it feel free to contact me."
[YEA] 02/14/2008: Ash from Bolton, Lancashire, UK: "my daughter is 9yrs old, she is suffering from painfull boils and swollen lumph in a groin area for the last 2 yrs . dermatologist has told us two months ago that she has Hidradenitis Suppurativa and there is no cure for this disease. she is on anitbioitc but believe me it doesnt help.
few weeks ago i read in a book about " black onion seeds" Tiny and black seeds of the nigella plant. in hindi and urdu it calls [kalonji] if you search on the google you will find more information about it. easily can buy from asian shops or buy online.
believe me her boils and swollen lymp nearly gone now.there is no new boil appear for the last few week. and i also give her turmeric powder as well it helps for wounds definately.
1: half tea spoone of "black onion seeds" with water everyday. before breakfast would be better.
2: turmeric powder,half tea spoone with water any time in a day.
3: drink atleast 8 glass of water.
4: try to eat healthy food and fruits instead of oil or fried food.
i m reffering this email to Charlene from Hope Mills, NC.
please believe on "black onion seeds" and try it ..it should work.atleast try 1 or 2 months.
i would be greatfull if i get a feed back.
i saw my daughter how she suffers and i can understand how much people r in pain ..please try black onion seeds..
thank u very much"
10/25/2009: Blr from Moreno Valley, Ca replies: "More info on the black onion seed please. How do you take it, hot or cold water? do you grind it up? At this time I will try anything please help. I have a very bad case. Thanks"
10/26/2009: Dolly from Cairo, Egypt replies: "Hi, i read the post about "Black onion seed" you use it by getting 1 tsp to a boil in one glass of water keep it boiling until the white part of the seed shows, let cool off and drink it, its very simple you can add honey for taste. There are some people who prepare a lot to last a whole week, its best done fresh in my opinion - I have not used it yet, but I was told its very good for HS and it helps stopping the boils from occurring.
I use turmeric and sometimes add burdock root powder with it- 1 tsp turmeric 1/2 tsp cinnamon 1 tsp honey sometimes I add 1/2 tsp of burdock root and sometimes I use a few drops of olive oil.
I use this without the burdock root daily 2 or 3 times a day. I also use another mixture, 1 lemon with turmeric without the cinnamon and honey - lemon kills the taste and strong smell of turmeric and helps boost the immune system.
You can find the Black Onion Seed, in any middle eastern, Lebanese, herb shop.
I hope this helps someone out there, good luck.
[BETTER BUT NOT CURED] 05/29/2009: Jo from Lafayette, LA: "I've only had HS for about a year now. After having about 3 lesions lanced and seeing so many different doctors, the dermatologist that I went to diagnosed me right away. He put me on an antibiotic(Doryx) and I started using Hibiclens. The antibiotic helps a lot since I was getting these lesions (boils) quite often. Instead of using the Hibiclens, I now soak for 15 to 20 minutes in a tub of water as hot as you can stand it with 2/3 of a cup of Clorox bleach once a week---more often when I have a flair up. The bleach helps to kill bacteria. I also use Clindamycin lotion after my bath at night. The HS affects my perivaginal region. When I do have a flair up my doctor puts me on Prednisone for a couple of days which softens the lesion and helps it to go away---much better and a lot less painful than having them lanced and less scarring. It's not a complete cure for HS but it sure makes it easier to deal with. Hope this helps!"Replies
11/06/2013: Sarah C from London, England replies: "Just to mention I did a little research on putting bleach in your bath water (Clorox Bleach) and the following is the information taken from their website:
Can I use Clorox? Regular-Bleach to gargle, brush my teeth or clean cuts and scrapes?
No. Clorox? Regular-Bleach is not for personal usage.
I use Tumeric, Baking Soda and Apple Cider Vinegar and I have found it to be very helpful."
11/06/2013: Rebel from Somewhere Usa replies: "Just want to let you know!!!!!!! I KNEW A GUY THAT POURED CLOROX ON AN OPEN WOUND AND DIED FROM BLOOD POISONING........ Seriously folks. He was an alcoholic and got a would on his leg ( not sure how ) But poured clorox on it for a few days and stopped drinking thing he was going to heal the wound..... The doctor said if he would have kept on drinking the alcohol it would have kept his blood from getting poisining in it... Weird, So yeah, Clorox can be deadly."
[YEA] 03/21/2009: Michelle from Chicago, IL: "Hidradenitis Suppurativa cure:
one thing that can cure your Hidradenitis Suppurativa is Burdock root. Take Burdock root for 3 months ( 3 times daily) and then stop for 3 months, then repeat... you will not have any problems anymore. Eat lots of read meat ( Burdock may lower iron), lots of fatty fish, limit dairy (once again because of iron absorption) and fruit + vegies. WORK OUT A LOT
Laugh a lot
03/24/2009: Tonya from Dallas, Tx replies: "Is Burddock root in a pill that I can buy from the store?"
04/07/2009: Geralyn from Milwaukee, Wisconsin,USA replies: "I know that Burdock Root comes in capsule form. I have bought it at the health food store. Hope this helps.
Have a great day"
[BETTER BUT NOT CURED] 11/18/2009: Claire from Brisbane, Australia: "HS: In my experience calcium bentonite clay compress draws out inflammation, soothes and accelerates healing process. Combine with epsom salt baths."
[BETTER BUT NOT CURED] 07/19/2012: "Hi, I just had to share some of the success I have found in managing this chronic ailment. I have increased my tumeric to 2000 mg, split morning and evening, lost some weight, clean areas with, the female wipes, apply emu oil, here is the kicker, Calendula Oil. I saw the recipe on Martha, but if you don't want to wait for the 4 weeks of infusion. I did buy a bottle, 29$ for like 8 ounces. I got it from farmaesthetics. I went on amazon and got dried Calendula petals, and made my own. I hope my batch turns out well, it comes out of the pantry on Sunday. I am Loving It!! Hope this benefits others that struggle every day like I do. Take Care"
[YEA] 04/10/2013: Gavin from Manganui, Northland, New Zealand: "Im reporting back on a boil that ive had reacuring on my back since last sepember, it flared up again so for three days I began putting a blob of coconut oil on a dressing and pushed it into the boil and left it there for twenty four hours, Then changed the dressing, every twenty four hours thereafter.. The third day I put some Apple Cider Vinegar on the coconut oil, it absorbed a certain amount, and used this for the next seven days, I knew the Apple Cider Vinegar was in the coconut oil because the bloody discharge although just a spot or two was black, (it turns blood black).. After about ten days. (Yesterday) the area was flat and no discharge, in fact it looks normal. I'll keep it up for a few days longer just to be on the safe side. The coconut oil by itself seems to work but the Apple Cider Vinegar is a logical boost, as it cures so many things on the surface. I think the coconut oil acts as a carrier for the acv. But it needs a few days constant application to work its way down to the root of the infection.
I dont know whether this was HS but the symptoms seem to sugest it was. If any one seems to get a recuring boil it might be worth a try and would be greatfull for another person reporting back on its efficacy.
The dressing was just clean absorbent toilet tissue, with eclectric tape top and bottom with a strip down the middle to stop the oil coming through onto clothing. Changed every 24 hours."
[BETTER BUT NOT CURED] 06/15/2013: Carly from Benoni, Gauteng, South Africa: "Colloidal Oatmeal as a symptomatic treatment for managing HS: Hi there, I am a 31 year old woman who has been suffering from HS for 17 years. I almost died from a drug resistant abscess on my right lung 21 years ago, I only survived because a lucky surgeon ripped my back open and removed the infected part of my lung. I am convinced that this lung abscess is connected to my HS. Anyway, you may want to try colloidal oatmeal as a symptomatic treatment. It's very effective at treating inflammation & has a soothing effect. You can either buy medical grade colloidal oatmeal (very expensive) or you can make your own by processing raw oats in your food processor (you need to get it to powder form, the finer the better). Put it in your bath or make a paste with purified water and apply as a skin masque or compress. As a bonus, it's also very effective against rosacea."
[NAY] 02/17/2009: Linda from Fremont, Michigan: "I have been diagnosed with HS and am greatful for all the comments out here--I will try the dial soap and tumeric, These sores are very painful ---I am currently changing my diet and dropping caffeine. Right now I could drink a whole pot of coffee--lol. Thanks for your help. I have tried colloidal silver, but nothing changed. Thanks Linda"
[YEA] 11/25/2008: Carolina from Sto Dgo, Dom Rep: "Hello, First of all, I want apologize for my English but I want give you my opinion.
I'm 32 years old and I'm suffering HS for 10 years, I had read and try every antibiotic, and some natural remedies, but my worse situation now is, My husband is starting with the problem in his testicles after he started to drink ACV to lose weight? and I feel terrible and I don't knew the HS could be contagious.
every month before my period I have the ball, I'm using with good result a silver gel, the name is "colloidal silver" help me a lot to calm and restructure the skin and the ball gone after 3 days.
I hope you can try the colloidal silver.
I have try a lot remedies but the ball coming 3 or 4 months later.
I'm feel crazy because if I'm depress, sad, worry, angry even excited or happy the ball coming up, I'm can't stand my hormonal disorder.
Please try the colloidal silver maybe can help you.
EC: "the ball" = large, recurring boil
02/11/2009: Sarah from Brisbane, Australia replies: "Hi - just reading the above comment on your husband getting cysts similar to HS.
I've been an HS sufferer for many years now but this message rang an alarm bell as my husband is a testicular cancer survivor. PLEASE get the doctor to check his cysts to make sure it is not testicular cancer.
The doctor will be able to see right away if the cyst is a tumour or not.
HS is NOT contagious and his problem is unrelated so please don't feel guilty that you have given him something - you haven't.
I can't stress enough how common testicular cancer is in men or the necessity to have any lumps in the area checked. TS is a VERY fast cancer, but also one of the most survivable if you catch it fast."
04/18/2009: Beanie from Ontario, California replies: "In respnse to the lady that has HS and her husband now has it too...I have suffered with HS for 14 years, and i had to diagnose it myself (then my doctor said "oh you are right...UGH). anyway, I recently learned that a friend of mine suffers from what sounded to be a similar condition; however, her doctors did something that mine have NEVER done, which is to culture the bacteria. Turns out that she actually has community-acquired MRSA, which IS contagious. Oddly, my husband had a lesion on his inner thigh a few months ago and "suggested" that I was contagious (jokingly, of course). Now I'm wondering if maybe my problem is CA-MRSA, not HS, and am going to have my dr. culture my wound next time I have a flare-up that becomes severe enough to need his attention. Anyway, just thought that in addition to prior comments, this might be a good thing to have checked out as well in case it is something contagious such as MRSA, since their presentations can sometimes look similar."
09/15/2009: Kerry from Queensland, Australia replies: "I agree with you i was diagnosed with HS about 6yrs ago i have suffered with this for 10yrs i recently moved home and went to a new doctor about something unrelated (i gave up going to doctors about my HS along time ago) anyway i asked my new dc if the present condition could be related to my HS this dr took a swab and sent it away to be cultered the results have just come back today and i actually have MRSA! I'm happy and angry at the same time, that no other dr has ever done this when they have very similar symptoms im just hoping and praying now that the antibiotics i have recived today will put an end to this misery."
10/05/2009: Kate from Pensacola, Florida replies: "I have been diagnosed with both MRSA and HS. The symptoms of the lesions are slightly different, so stopping treatment for one because you think all symptoms are caused by the other might make things worse. When I have had MRSA lesions, they occur anywhere (mostly my legs or face). If they do open or drain, the drainage is thick with a greenish tint, and sometimes you can see the infection beneath the skin. When the wound is completely cleaned of bacteria, there is a definite hole where the infection was. With the HS, the lesions are boils. Just wanted to let you know that it is possible to have both (as I do)so don't neglect your HS remedies if you have a flare-up of MRSA. The MRSA antibiotics don't help with the HS at all, or at least they didn't for me. And I wanted to say thanks for all the suggestions, I've never found a better place for info about HS."
09/14/2011: Bb from Hood River, Oregon replies: "I just wanted to say that HS is NOT contagious. I have had HS for 36 years and I was married for 19 years and my husband never once had anything, my doctor also assured me that you can not pass HS so your husband had a different issue going on."
[YEA] 12/26/2011: Jennifer from Philadelphia, Pa: "I have had HS for about 4 years now. Sadly, most doctors are not aware of the skin disease, and I have been diagnosed with Boils, Cysts, ingrown hairs, and was told to wear loose clothing, don't shave; everything they told me not to do- didn't work.
I only get them in my groin area- and it is the worst pain you could imagine. I am not overweight, nor have I ever been; as many say that is a big cause. I have never smoked. I have tried so many things including antibiotics on several occassions, topical antiobiotic creams, eating healthy, etc.
I have been taking Colloidal Silver for the past 7 months, and have seen a drastic difference. I don't get flares anymore (as long as I take it) but I know I am not cured becuase I can still feel the sacs under the skin and my skin is discolored. I had a wound that didn't heal for 4 months! That was when I started the Colloidal Silver. (My mom had told me about it). If I forget to take it, I am reminded when I start to get a flare up.
I also take Zinc supplements, and Apple Cider Vinegar tablets. I read on one of the forums that Oils (such as Omega) helps, as the oil glands are blocked because it is hardened. To me, this makes the most sense. I am going to try to include Oils in my supplements. We are all different, and every person's body reacts differently- which it's so hard because what works for one, may not work for another. You just have to keep trying different remedies, until you find what works best. I'm not sure which of the supplements I am taking are actually helping the most (of if all are) but I'm not stopping since it's working!"Replies
07/28/2012: Melissa from In, Michigan replies: "Hi, like most of you on here I have been suffering from HS for about 10 years. Like most of you I have endured it silently. I get them in groin area, armpits and weirdly enough only under left breast. I have seen a few doctors but they say its an infection and give me antibiotics. They can become sooo painful all you can do is cry. I highly believe in holistic medicine and decided to treat them with tea tree oil. I found tea tree just wasn't enough so I added lemon oil to the mix. This seemed to help them clear up much faster but I would still get outbreaks. I did notice though that there wasn't a bad smell when they burst. This is because tee tree kills bacteria. I also have pcos and insulin resistence. I am also a smoker which doesn't help.
So fed up I did some research and discovered turmeric. I started mixing it with almond milk, cinnamon and honey. It tastes really good. I noticed my outbreaks lessened and when I did get anything the pain would be gone within a day or two and then it would drain. I no longer really get any in my groin mostly now just under left breast. It makes me sad all the scars and deep purple scars it has left behind. Time does lessen the appearance and I also use rose water to help with the scars. I have also become a member of be young essential oils and they have a liver cleanse which has helped tremendously. It's peppermint oil and lemon oil cleanse. You use it by adding one drop of each in a cup of distilled water and I squeeze a half lemon in it and drinking it first thing in the morning. The peppermint does wonders by cooling the inflammation and the lemon helps cleanse and alkalanize the ph in body. It gives me more energy and cleans liver at the same time. I also just started using black cumin oil. I don't know how much it is helping yet since I have just started using it a few days ago.
About a week ago I went to the movies and ate salty buttery popcorn and halfway through the movie I noticed a very painful little friend just popped up in groin area. The next morning I drank my cleanse and poof it popped and drained that day. They used to last weeks. I also just noticed a bright red one that appeared under breast but without any pain. I have been putting Turmeric directly on it and it's gone already. It's amazing what these treatments have done for me. Yes I still break out but the pain isn't there anymore at least not nearly as bad as it used to be, no smell, and they go away sooo quickly. Oh and I had a bad one under breast a few weeks ago and I treated it and the pain went away but the lump didn't bt it also didn't spread. Then about one week ago I noticed it felt wet under breast and it had popped and was draining. I didn't even know it was still there. No pain or anything.
I hope this can help some of you. I have read others posts about mixing turmeric with warm water and drinking it but gross. Mixing it with cinnamon and milk makes it tastes almost like chai tea. I really enjoy the taste. I haven't needed it though for awhile since I began the liver cleanse."