Table of Contents
- QUESTIONS & ANSWERS
- POPULAR REMEDIES
- Top Remedies Summary
- Acne Soap
- Antibacterial Soap
- Antibacterial Soap, Iodine
- Antibacterial Soap, Turmeric
- Antibacterial Soap, Weight Loss
- Antibiotic Ointment in the Nose
- Antioxidants, Vegetarian Diet, Herbs
- Apple Cider Vinegar and Baking Soda
- Apple Cider Vinegar and Baking Soda, Epsom Salts
- Apple Cider Vinegar, Turmeric, Manuka Honey
- Avoid Bubble Baths
- Avoiding Chemical Allergies
- Bach Flower Remedies
- Bee Propolis
- Black Onion Seeds
- Bleach Bath, Clindamycin, Prednisonse
- Burdock Root
- Calcium Bentonite Clay, Epsom Salt Baths
- Calendula Oil, Turmeric
- Coconut Oil, Apple Cider Vinegar
- Colloidal Oatmeal
- Colloidal Silver
- Colloidal Silver, Zinc, Apple Cider Vinegar
- Deodorant Connection
- Dietary and Lifestyle Changes
- Dietary Changes
- Dietary Changes, Turmeric, Supplements
- Eliminate Caffeine
- Essential Oils
- Exfoliationg Scrub, Tea Tree Oil Deodorant
- Food Allergies
- General Feedback
- Get a Correct Diagnosis
- Gluten Free Diet
- H.S. Dressings
- Hidradenitis Suppurativa and Stress
- Hidradenitis Suppurativa Studies
- Honey and Cinnamon Poultice
- Hydrogen Peroxide
- Laser Hair Removal
- Laser Therapy
- Mercurius Vivus (Homeopathic)
- Multiple Remedies
- Oil of Wild Oregano
- Olive Oil
- Omega 3 Oils
- On Scalp
- Oregano and Coconut Oils, Adrenal Support
- Pau D'arco, Red Clover Tea
- Reader Comments
- Remedies Needed
- Rubbing Alcohol
- Salt Crystal Deodorant
- Swiss Cheese
- Tanning Beds
- Tea Tree Oil
- Ted's Remedies
- Tooth Abcess Link to H.S.
- Turmeric, Cinnamon, Raw Honey
- Vitamin C, Aloe Vera, Spirulina
- Vitamin E
- Vitamins A, D, Zinc, Led Light
- Whey Protein Shakes
- Zinc Gluconate
[YEA] 06/14/2013: Anonymous from Holland: "Like many, I suffered from HS since puberty (so now about 10 years). I only went to the doctor once as a teen, this was quite traumatic as she simply told me I wasn't keeping myself clean. After that I started showering multiple times a..."
Our readers offer information and opinions on Earth Clinic, not as a substitute for professional medical prevention, diagnosis, or treatment. Please consult with your physician, pharmacist, or health care provider before taking any home remedies or supplements or following any treatment suggested by anyone on this site. Only your health care provider, personal physician, or pharmacist can provide you with advice on what is safe and effective for your unique needs or diagnose your particular medical history.
|General Feedback||7 YEAS|
|Antibacterial Soap||6 YEAS|
|Tea Tree Oil||5 YEAS|
Avoid Bubble Baths
[SIDE EFFECTS] 07/04/2009: Sherry from Central City, Ky: "I used to get boils in the groin area and just could not figure out why. I finally figured out what was causing this ailment after years and years of wondering. I had for years used bubble bath and I used many different ones throughout the years. Once I ran out and forgot to get some and again kept forgetting to pick some up. I didn't get any boils for a while. I bought some more bubble bath and I again got boils. I finally realized that whatever ingredient was in these bubble baths was causing my problem and I stopped using it altogether thank goodness. I am now boil free. So if you think that products are not harmful something as simple as bubble bath, think again. I won't use it ever again. I am a bath person as I like to soak and relax in a tub and I loved my bubbles.. but have learned to live without them."
Avoiding Chemical Allergies
[YEA] 06/14/2013: Anonymous from Holland: "Like many, I suffered from HS since puberty (so now about 10 years). I only went to the doctor once as a teen, this was quite traumatic as she simply told me I wasn't keeping myself clean. After that I started showering multiple times a day which caused the infections to get so bad I couldn't even walk. Now I know I'm extremely allergic to synthetic parfum and sulfates (also suspecting benzoates). I can't have it in anything, even if I wear clothes that've been washed with a 'wrong' detergent I'll break out within the hour. However, when I avoid bad soaps I'm 100% healthy (skinwise). Dietwise I eat mostly organic with much fruits and veggies and no porc, little sugar etc.. So I'm not sure if I would have infections again if I'd eat unhealthy. BUT I do smoke, drink coffee and alchohol, which doesn't seem to have any (negative) influence whatsoever."
Bach Flower Remedies
[YEA] 11/03/2007: Sylvie from Ottawa, Canada: "I have suffered from HS for 30 yrs and have tried all doctors have to offer alternative remedies for relief. Bach (origional flower remedies)Rescue Remedy in spray or liquid..on boils and absesses 4-5 times daily. When caught early it resorbs/when in full "bloom" it helps drain and heal. I find myself craving Indian and Morocan food lately..will try the Tumeric remedy."
[BETTER BUT NOT CURED] 07/25/2009: Leeya from London, UK: "good news for everyone who are suffering with this disease. my daughter was suffering with this disease for the last 2yrs , i have tried everything u name it and one day in my home i found a herbal antibiotic. actually my uncle use this herbal antibiotic for general purpose and asked me to try this one. you can't believe it the very next day i saw the difference. boils which were open were like going to be disappear soon.
i am writing you the details of this antibiotic but would like to say one thing. this medicine effects on my daughter very quickly probably she is very young and respond immediately to this medicine. but as more adults are suffering with this.. i have a feeling its will take slightly more time probably it will take a month or more . but please try it. she takes one tablet everyday for the last 4 months. i dont know how long i am going to give this medicine but certainly not going to stop soon. at least she is not a victim of Hidradenitis Suppurativa anymore.
the name of the _____ is bee propolis. its a wood supplement. if you couldn't able to find it feel free to contact me."
Black Onion Seeds
[YEA] 02/14/2008: Ash from Bolton, Lancashire, UK: "my daughter is 9yrs old, she is suffering from painfull boils and swollen lumph in a groin area for the last 2 yrs . dermatologist has told us two months ago that she has Hidradenitis Suppurativa and there is no cure for this disease. she is on anitbioitc but believe me it doesnt help.
few weeks ago i read in a book about " black onion seeds" Tiny and black seeds of the nigella plant. in hindi and urdu it calls [kalonji] if you search on the google you will find more information about it. easily can buy from asian shops or buy online.
believe me her boils and swollen lymp nearly gone now.there is no new boil appear for the last few week. and i also give her turmeric powder as well it helps for wounds definately.
1: half tea spoone of "black onion seeds" with water everyday. before breakfast would be better.
2: turmeric powder,half tea spoone with water any time in a day.
3: drink atleast 8 glass of water.
4: try to eat healthy food and fruits instead of oil or fried food.
i m reffering this email to Charlene from Hope Mills, NC.
please believe on "black onion seeds" and try it ..it should work.atleast try 1 or 2 months.
i would be greatfull if i get a feed back.
i saw my daughter how she suffers and i can understand how much people r in pain ..please try black onion seeds..
thank u very much"
10/25/2009: Blr from Moreno Valley, Ca replies: "More info on the black onion seed please. How do you take it, hot or cold water? do you grind it up? At this time I will try anything please help. I have a very bad case. Thanks"
10/26/2009: Dolly from Cairo, Egypt replies: "Hi, i read the post about "Black onion seed" you use it by getting 1 tsp to a boil in one glass of water keep it boiling until the white part of the seed shows, let cool off and drink it, its very simple you can add honey for taste. There are some people who prepare a lot to last a whole week, its best done fresh in my opinion - I have not used it yet, but I was told its very good for HS and it helps stopping the boils from occurring.
I use turmeric and sometimes add burdock root powder with it- 1 tsp turmeric 1/2 tsp cinnamon 1 tsp honey sometimes I add 1/2 tsp of burdock root and sometimes I use a few drops of olive oil.
I use this without the burdock root daily 2 or 3 times a day. I also use another mixture, 1 lemon with turmeric without the cinnamon and honey - lemon kills the taste and strong smell of turmeric and helps boost the immune system.
You can find the Black Onion Seed, in any middle eastern, Lebanese, herb shop.
I hope this helps someone out there, good luck.
Bleach Bath, Clindamycin, Prednisonse
[BETTER BUT NOT CURED] 05/29/2009: Jo from Lafayette, LA: "I've only had HS for about a year now. After having about 3 lesions lanced and seeing so many different doctors, the dermatologist that I went to diagnosed me right away. He put me on an antibiotic(Doryx) and I started using Hibiclens. The antibiotic helps a lot since I was getting these lesions (boils) quite often. Instead of using the Hibiclens, I now soak for 15 to 20 minutes in a tub of water as hot as you can stand it with 2/3 of a cup of Clorox bleach once a week---more often when I have a flair up. The bleach helps to kill bacteria. I also use Clindamycin lotion after my bath at night. The HS affects my perivaginal region. When I do have a flair up my doctor puts me on Prednisone for a couple of days which softens the lesion and helps it to go away---much better and a lot less painful than having them lanced and less scarring. It's not a complete cure for HS but it sure makes it easier to deal with. Hope this helps!"
[YEA] 03/21/2009: Michelle from Chicago, IL: "Hidradenitis Suppurativa cure:
one thing that can cure your Hidradenitis Suppurativa is Burdock root. Take Burdock root for 3 months ( 3 times daily) and then stop for 3 months, then repeat... you will not have any problems anymore. Eat lots of read meat ( Burdock may lower iron), lots of fatty fish, limit dairy (once again because of iron absorption) and fruit + vegies. WORK OUT A LOT
Laugh a lot
03/24/2009: Tonya from Dallas, Tx replies: "Is Burddock root in a pill that I can buy from the store?"
04/07/2009: Geralyn from Milwaukee, Wisconsin,USA replies: "I know that Burdock Root comes in capsule form. I have bought it at the health food store. Hope this helps.
Have a great day"
Calcium Bentonite Clay, Epsom Salt Baths
[BETTER BUT NOT CURED] 11/18/2009: Claire from Brisbane, Australia: "HS: In my experience calcium bentonite clay compress draws out inflammation, soothes and accelerates healing process. Combine with epsom salt baths."
Calendula Oil, Turmeric
[BETTER BUT NOT CURED] 07/19/2012: "Hi, I just had to share some of the success I have found in managing this chronic ailment. I have increased my tumeric to 2000 mg, split morning and evening, lost some weight, clean areas with, the female wipes, apply emu oil, here is the kicker, Calendula Oil. I saw the recipe on Martha, but if you don't want to wait for the 4 weeks of infusion. I did buy a bottle, 29$ for like 8 ounces. I got it from farmaesthetics. I went on amazon and got dried Calendula petals, and made my own. I hope my batch turns out well, it comes out of the pantry on Sunday. I am Loving It!! Hope this benefits others that struggle every day like I do. Take Care"
Coconut Oil, Apple Cider Vinegar
[YEA] 04/10/2013: Gavin from Manganui, Northland, New Zealand: "Im reporting back on a boil that ive had reacuring on my back since last sepember, it flared up again so for three days I began putting a blob of coconut oil on a dressing and pushed it into the boil and left it there for twenty four hours, Then changed the dressing, every twenty four hours thereafter.. The third day I put some Apple Cider Vinegar on the coconut oil, it absorbed a certain amount, and used this for the next seven days, I knew the Apple Cider Vinegar was in the coconut oil because the bloody discharge although just a spot or two was black, (it turns blood black).. After about ten days. (Yesterday) the area was flat and no discharge, in fact it looks normal. I'll keep it up for a few days longer just to be on the safe side. The coconut oil by itself seems to work but the Apple Cider Vinegar is a logical boost, as it cures so many things on the surface. I think the coconut oil acts as a carrier for the acv. But it needs a few days constant application to work its way down to the root of the infection.
I dont know whether this was HS but the symptoms seem to sugest it was. If any one seems to get a recuring boil it might be worth a try and would be greatfull for another person reporting back on its efficacy.
The dressing was just clean absorbent toilet tissue, with eclectric tape top and bottom with a strip down the middle to stop the oil coming through onto clothing. Changed every 24 hours."
[BETTER BUT NOT CURED] 06/15/2013: Carly from Benoni, Gauteng, South Africa: "Colloidal Oatmeal as a symptomatic treatment for managing HS: Hi there, I am a 31 year old woman who has been suffering from HS for 17 years. I almost died from a drug resistant abscess on my right lung 21 years ago, I only survived because a lucky surgeon ripped my back open and removed the infected part of my lung. I am convinced that this lung abscess is connected to my HS. Anyway, you may want to try colloidal oatmeal as a symptomatic treatment. It's very effective at treating inflammation & has a soothing effect. You can either buy medical grade colloidal oatmeal (very expensive) or you can make your own by processing raw oats in your food processor (you need to get it to powder form, the finer the better). Put it in your bath or make a paste with purified water and apply as a skin masque or compress. As a bonus, it's also very effective against rosacea."
[NAY] 02/17/2009: Linda from Fremont, Michigan: "I have been diagnosed with HS and am greatful for all the comments out here--I will try the dial soap and tumeric, These sores are very painful ---I am currently changing my diet and dropping caffeine. Right now I could drink a whole pot of coffee--lol. Thanks for your help. I have tried colloidal silver, but nothing changed. Thanks Linda"
[YEA] 11/25/2008: Carolina from Sto Dgo, Dom Rep: "Hello, First of all, I want apologize for my English but I want give you my opinion.
I'm 32 years old and I'm suffering HS for 10 years, I had read and try every antibiotic, and some natural remedies, but my worse situation now is, My husband is starting with the problem in his testicles after he started to drink ACV to lose weight? and I feel terrible and I don't knew the HS could be contagious.
every month before my period I have the ball, I'm using with good result a silver gel, the name is "colloidal silver" help me a lot to calm and restructure the skin and the ball gone after 3 days.
I hope you can try the colloidal silver.
I have try a lot remedies but the ball coming 3 or 4 months later.
I'm feel crazy because if I'm depress, sad, worry, angry even excited or happy the ball coming up, I'm can't stand my hormonal disorder.
Please try the colloidal silver maybe can help you.
EC: "the ball" = large, recurring boil
02/11/2009: Sarah from Brisbane, Australia replies: "Hi - just reading the above comment on your husband getting cysts similar to HS.
I've been an HS sufferer for many years now but this message rang an alarm bell as my husband is a testicular cancer survivor. PLEASE get the doctor to check his cysts to make sure it is not testicular cancer.
The doctor will be able to see right away if the cyst is a tumour or not.
HS is NOT contagious and his problem is unrelated so please don't feel guilty that you have given him something - you haven't.
I can't stress enough how common testicular cancer is in men or the necessity to have any lumps in the area checked. TS is a VERY fast cancer, but also one of the most survivable if you catch it fast."
04/18/2009: Beanie from Ontario, California replies: "In respnse to the lady that has HS and her husband now has it too...I have suffered with HS for 14 years, and i had to diagnose it myself (then my doctor said "oh you are right...UGH). anyway, I recently learned that a friend of mine suffers from what sounded to be a similar condition; however, her doctors did something that mine have NEVER done, which is to culture the bacteria. Turns out that she actually has community-acquired MRSA, which IS contagious. Oddly, my husband had a lesion on his inner thigh a few months ago and "suggested" that I was contagious (jokingly, of course). Now I'm wondering if maybe my problem is CA-MRSA, not HS, and am going to have my dr. culture my wound next time I have a flare-up that becomes severe enough to need his attention. Anyway, just thought that in addition to prior comments, this might be a good thing to have checked out as well in case it is something contagious such as MRSA, since their presentations can sometimes look similar."
09/15/2009: Kerry from Queensland, Australia replies: "I agree with you i was diagnosed with HS about 6yrs ago i have suffered with this for 10yrs i recently moved home and went to a new doctor about something unrelated (i gave up going to doctors about my HS along time ago) anyway i asked my new dc if the present condition could be related to my HS this dr took a swab and sent it away to be cultered the results have just come back today and i actually have MRSA! I'm happy and angry at the same time, that no other dr has ever done this when they have very similar symptoms im just hoping and praying now that the antibiotics i have recived today will put an end to this misery."
10/05/2009: Kate from Pensacola, Florida replies: "I have been diagnosed with both MRSA and HS. The symptoms of the lesions are slightly different, so stopping treatment for one because you think all symptoms are caused by the other might make things worse. When I have had MRSA lesions, they occur anywhere (mostly my legs or face). If they do open or drain, the drainage is thick with a greenish tint, and sometimes you can see the infection beneath the skin. When the wound is completely cleaned of bacteria, there is a definite hole where the infection was. With the HS, the lesions are boils. Just wanted to let you know that it is possible to have both (as I do)so don't neglect your HS remedies if you have a flare-up of MRSA. The MRSA antibiotics don't help with the HS at all, or at least they didn't for me. And I wanted to say thanks for all the suggestions, I've never found a better place for info about HS."
09/14/2011: Bb from Hood River, Oregon replies: "I just wanted to say that HS is NOT contagious. I have had HS for 36 years and I was married for 19 years and my husband never once had anything, my doctor also assured me that you can not pass HS so your husband had a different issue going on."
Colloidal Silver, Zinc, Apple Cider Vinegar
[YEA] 12/26/2011: Jennifer from Philadelphia, Pa: "I have had HS for about 4 years now. Sadly, most doctors are not aware of the skin disease, and I have been diagnosed with Boils, Cysts, ingrown hairs, and was told to wear loose clothing, don't shave; everything they told me not to do- didn't work.
I only get them in my groin area- and it is the worst pain you could imagine. I am not overweight, nor have I ever been; as many say that is a big cause. I have never smoked. I have tried so many things including antibiotics on several occassions, topical antiobiotic creams, eating healthy, etc.
I have been taking Colloidal Silver for the past 7 months, and have seen a drastic difference. I don't get flares anymore (as long as I take it) but I know I am not cured becuase I can still feel the sacs under the skin and my skin is discolored. I had a wound that didn't heal for 4 months! That was when I started the Colloidal Silver. (My mom had told me about it). If I forget to take it, I am reminded when I start to get a flare up.
I also take Zinc supplements, and Apple Cider Vinegar tablets. I read on one of the forums that Oils (such as Omega) helps, as the oil glands are blocked because it is hardened. To me, this makes the most sense. I am going to try to include Oils in my supplements. We are all different, and every person's body reacts differently- which it's so hard because what works for one, may not work for another. You just have to keep trying different remedies, until you find what works best. I'm not sure which of the supplements I am taking are actually helping the most (of if all are) but I'm not stopping since it's working!"Replies
07/28/2012: Melissa from In, Michigan replies: "Hi, like most of you on here I have been suffering from HS for about 10 years. Like most of you I have endured it silently. I get them in groin area, armpits and weirdly enough only under left breast. I have seen a few doctors but they say its an infection and give me antibiotics. They can become sooo painful all you can do is cry. I highly believe in holistic medicine and decided to treat them with tea tree oil. I found tea tree just wasn't enough so I added lemon oil to the mix. This seemed to help them clear up much faster but I would still get outbreaks. I did notice though that there wasn't a bad smell when they burst. This is because tee tree kills bacteria. I also have pcos and insulin resistence. I am also a smoker which doesn't help.
So fed up I did some research and discovered turmeric. I started mixing it with almond milk, cinnamon and honey. It tastes really good. I noticed my outbreaks lessened and when I did get anything the pain would be gone within a day or two and then it would drain. I no longer really get any in my groin mostly now just under left breast. It makes me sad all the scars and deep purple scars it has left behind. Time does lessen the appearance and I also use rose water to help with the scars. I have also become a member of be young essential oils and they have a liver cleanse which has helped tremendously. It's peppermint oil and lemon oil cleanse. You use it by adding one drop of each in a cup of distilled water and I squeeze a half lemon in it and drinking it first thing in the morning. The peppermint does wonders by cooling the inflammation and the lemon helps cleanse and alkalanize the ph in body. It gives me more energy and cleans liver at the same time. I also just started using black cumin oil. I don't know how much it is helping yet since I have just started using it a few days ago.
About a week ago I went to the movies and ate salty buttery popcorn and halfway through the movie I noticed a very painful little friend just popped up in groin area. The next morning I drank my cleanse and poof it popped and drained that day. They used to last weeks. I also just noticed a bright red one that appeared under breast but without any pain. I have been putting Turmeric directly on it and it's gone already. It's amazing what these treatments have done for me. Yes I still break out but the pain isn't there anymore at least not nearly as bad as it used to be, no smell, and they go away sooo quickly. Oh and I had a bad one under breast a few weeks ago and I treated it and the pain went away but the lump didn't bt it also didn't spread. Then about one week ago I noticed it felt wet under breast and it had popped and was draining. I didn't even know it was still there. No pain or anything.
I hope this can help some of you. I have read others posts about mixing turmeric with warm water and drinking it but gross. Mixing it with cinnamon and milk makes it tastes almost like chai tea. I really enjoy the taste. I haven't needed it though for awhile since I began the liver cleanse."
[BETTER BUT NOT CURED] 05/12/2008: Jerika from Detroit, MI: "HIDRADENITIS SUPPURATIVA: HELLO EVERYONE, I'M BACK WITH MORE SUGGESTIONS ON HOW TO HELP THIS ANNOYING PAINFUL SKIN DISEASE. I'VE DECIDED TO TRY A COLONIC, I REALIZE THAT WITH OUR FIBERLESS, AND NUTRIENT LACKING DIETS THAT OUR IMMUNE SYSTEMS AND INTERNAL HEALTH COULD BE CONTRIBUTING TO THIS DISORDER. THE BUILDUP OF TOXINS OVER THE YEARS FROM NOT FULLY EXPELLING FECAL MATERIAL COULD BE CAUSING OUR IMMUNE SYSTEMS NOT TO PROPERLY PERFORM, THEREFORE ALLOWING SKIN DISORDERS SUCH AS ACNE, HS, ANEMIA FROM MALABSORPTION OF NUTRIENTS, FATIGUE, INSOMNIA, AND SO MANY OTHER HEALTH PROBLEMS.
A HEALTHY DIET FREE FROM REFINED SUGARS, AND PROCESSED FOODS, AND PLENTY OF WATER COULD ONLY HELP THIS DISORDER. I'M GUILTY OF TERRIBLE EATING HABITS AND SMOKING WHICH COULD ONLY BE CONTRIBUTING TO THIS PROBLEM. I STRONGLY BELIEVE THAT A COLONIC WHICH IS LIKE AN INTENSE ENEMA RIDS OUR BODY OF OLD FECAL MATERIAL, PARASITES, AND TOXINS THAT HAVE BUILT UP IN THE COLON OVER THE YEARS FROM UNHEALTHY EATING HABITS, I THINK THAT COLONICS AND A DRASTIC CHANGE IN EATING HABITS CAN DRASTICALLY MAKE A DIFFERENCE IN THE SEVERITY OF HS.
I THINK THAT ANTIBIOTICS AND SURGERY ARE ONLY A BANDAID TO THE TRUE CAUSE OF HS. GETTING TO THE ROOT OF THE PROBLEM IS THE ONLY WAY TO PINPOINT THE CAUSE OF HS. I WIL TRY THE COLONIC AND MAKE HEALTHY DIET CHOICES AND LET YOU KNOW THE OUTCOME AS SOON AS I SEE RESULTS. I HOPE THAT SOMEONE SUFFERING WITH HS AS I HAVE OVER THE YEARS WILL READ THIS AND GIVE OTHERS IDEAS ON WHAT WORKED FOR THEM, TAKE CARE AND GOD BLESS."Replies
07/09/2011: Renee from Atlanta, Ga replies: "Jerilyn,
I encouraged my daughter who has HS to try colonics. She went to her first session today. Also I am working with her to change her eating habits by eating healthy foods (excluding sugars and foods with refined carbs), drinking lots of water daily (with immune system drops in it), taking Vitamin A and drinking a blood cleaning tea that includes a variety of herbs (we purchased from a natural store). I'll let you know how it works. She needs a friend who has HS who she can talk with and develop a good relationship. I do anything that I can to keep her working on the issue daily so that she doesn't get too depressed. Sometimes we both get in slump about it, but working together, neither of us ever gives up. Her two children (two and five years of age) keep her focused too. Would you be willing to be her friend?
09/06/2011: Gina from Dallas, Tx replies: "Renee, I am going through the same thing with my daughter. May thoughts and prayers are with you and any parent that has to watch their children suffer with this condition. I am so tired of the dermatologists, surgeries and giving the Humira shots. I am going all nature, this entire house is going vegan and we are all going to get colonics. I am keeping you in my prayers and everyone on this site. We are going to beat this thing."
12/01/2011: Renee from Medford, Or replies: "I would love to have someone to talk with about hs I was just diagnosed with it. I have had it for many many years and was misdiagnosed and had one obgyn say in front of my then husband oh my god what are those? I have never seen anything like it? And totally embarrassed me to the point I never told anyone about them, my husband when divorcing said to hurt me and it did very much said who will want that lumpy pussy! So I lived in shame, fear disgrace, pain, itching etc. for many years.
Then I started going thru menopause and they have got worse and huge very very painful and itch like crazy (no one talks about the itching so I'm still not sure I have this, does anyone itch, I can scratch thru clothing in a night and be raw the next day? Does anyone else itch this bad?) So anyway going thru menopause they have gotten worse to the point I went to a Dr.again was put on antibiotics to no avail. Go figure I thought I had it figured out and it would go away, no more lumps, itching and embarrassment. But that didn't happen, and they are getting bigger and I guess connecting underneath the skin. I am in so much pain.
I moved to another state and had to again go to another doc and be embarrassed again and show her what I call my monsters. She said I have hs, now that I have been diagnosed with it. And don't have insurance anymore she is saying cause of the severity of mine and them tunneling together I need to have them surgically removed, when I had insurance no one knew or embarrassed me, now someone knows what it is and of course I don't have insurance.
I have lived in shame and have come to the conclusion I will live alone or with my monsters lol. I don't know what to do. I really sometimes like now don't want to live anymore! I have so many of them all over my pelvic area and one on each inner thigh. I scratch myself to death it's a scratch you can't get to, I squeeze or like pinch and twist and turn to try and relieve the itch. I hate my life. I have tried lots of things that have been suggested here and by my doc. In fact, she is the one who referred me to this site. I told her it took everything (mainly pain and itching) for me to even talk to you about it. I'm not going to talk to anyone else I'm embarrassed enough, but obviously here I am telling my story about the monsters that live on me! I wish I could get them cut out and try and have a life again. Right now they are inflamed and very painful, at times I almost want to cut them out myself but there are too many and I wouldn't know what to do. I don't know why I'm posting this but I am now. I just hope I have the guts to press send.
Help me, please god, someone I don't want to be in this pain and I don't want to die alone but if this is the way the rest of my life is going to be like I really want out. My doc. said she is going to talk to this other doc. to see if maybe she can do something, I'm guessing maybe she will take them out on a pro Bono type deal. It would be more like plastic surgery because I have so many. I wish I had a mom that was loving and understanding. I have lived with these for years and never told her cause she is, I guess a prude and talking about anything to do with sex or sexual parts she does not want to hear. Sorry I'm rambling but this is my shot to get it out there.
Anyway since the divorce and not being able to get a job blah blah blah I had to move in with her. I had a flare up before I moved here and I finally told here cause it was a bad one and they thought it could be related to the 6 lbs tumor on my ovaries that were removed but maybe some was left I guess they thought it could be, but I don't have insurance and went to the er and they gave me strong antibiotic that should help and I prayed it would. They went down but are still there. So when I moved into her home recently and I am having another flare up, and seen the doc up here and I had hs and a bad case of it, my mom said to me I thought you had this taken care of before you moved up here? I said well I was put on antibiotics and they went down but they didn't go away. So then she said to me so you moved up here knowing you had this debilitating disease so I am stuck taking care you. First of all I just found out what I had and she was the one who told me to go to this doc. And she thinks I did this to her on purpose. It's not like I don't have enough to deal with but hearing your mom say that I deliberately set her up to have to deal with me. Not this oh I'm sorry honey, no kind words I just don't want this life anymore okay now I'm crying and like my mom says playing the victim, cause she didn't understand what I had so I let her read about it thinking she would be more supportive but she thinks I moved in with her to purposely, I guess, leach of her. Okay I'm going to hit send I hope I didn't waste anyone's time but if I was going to write I want to get it all out, if it doesn't make sense it's cause I just kept writing feelings as I was feeling them. Thanks and if you all could pray for me I would so appreciate it, I'm praying the doc. will operate for free, so please help and pray with me thanks."
12/01/2011: Debbie from Melbourne, Australia replies: "Many people have had great results taking tumeric for this problem. I would read the section under ailments on this site and see what people who have had success have done. Tumeric seems the most popular.
I would also look at your diet.. Obviously your body is in a toxic state, you need to detox it. The toxins are getting out of your body through the skin. If I were you I would go on a fresh green juice detox for a week to clear everything out (maybe on a regular basis). No processed foods, or sodas. You could also add chlorella and spirulina to the green juices. I would also add colloidal minerals and drink plenty of water to flush everything out.
Antibiotics usually cause a yeast problem in the body so you probably have that as well.. so I would stay away from sugars that may be feeding the yeast.
As they say you are what you eat, so you need to look at what you are eating."
12/02/2011: Timh from Louisville, Usa replies: "Renee, if you presently seem to not have ANY cure for this disease, you can simply fortify your entire body and mind with the many protocols and therapies offered by especially alternative medicine most of which are found on this site. Good diet, supplements (esp. Zinc), exercise, positive thinking etc. and you will improve. Have you detoxed? Oil Pulled? Cold Showers? Your immune system is proly very low, especially in antibodies. No topical salves or ointments work whatsoever? Inflammation could be aiding the "monsters". What about natural antibiotics like Silver, H2O2, MMS (bath), Iodine? Sauna? I witnessed an old school therapist use a heat-lamp on skin conditions (mostly bed sores) in a nursing home with very good results. Now we have far and near infared lamps for skin and other conditions.
Good luck and don't give up."
12/03/2011: Liz from Caledonia, Mi replies: "Renee,
First of all, I am sending you a huge hug. Please don't give up, I just know there has to be a solution to help you! Keep researching ideas on EC and keep asking questions and try to keep a positive outlook.
I don't have any idea if this would help - but while I was reading your post, a quote by Bill Munro popped in my head. "Hydrogen Peroxide is the most over looked chemical used by man. New uses of it are coming to light every day. Bad bugs be they, in your garden or your body, they cannot live in an oxygen rich environment."
I'm wondering if soaking in baths with hydrogen peroxide in it might help at all? Maybe do some researching on EC on hydrogen peroxide. I personally would soak once or twice a day for as long as I could stand it. I don't think it could hurt anything and it might help a lot! Best wishes to you!!"
12/04/2011: Dolly from Cairo, Egypt replies: "Please try to use Turmeric from 3 to 5 times daily in the first week and then decrease the number to 3 times daily this is a forever treatment, 50 mg of zinc daily forever 1 tablet of iodine. Use only sulphur soap on the infected areas, no cream, perfume or anything allowed to come in contact with the infected areas. Try to always keep your body alkalinized, drink at least 2 juiced lemons/limes per day.
The Turmeric drink method:
I teaspoon turmeric 1 table spoon olive oil or coconut oil mix together until the turmeric disolves add a pinch of black pepper half a lemon and stirthis mixture add water and drink.
The other way is to add the same amount of turmeric 1 teaspoon of cinnamon 1 teaspoon of honey a pinch of black pepper water or warm milk and drink.
Eliminate totally sugar and caffeine (at least for the first month) be stress free as much as you can.
Wear cotton underwear only and wash at least 3 times daily with sulphur soap.
If you have sinus tracts you must go to the doctor to drain/clean the infected areas first (surgery).
Stay in a cool place and avoid humid and hot places as much as you can.
Turmeric treatment will not help if your wounds/boils and tunnels are not cleaned first.
I hope this helps, good luck to you.
02/24/2012: Meg from Pittsburgh, Pa replies: "I have just been diagnosed with this as of yesterday. I have just recently discovered I was pregnant and changed my obgyn. When I initially had these symptoms at about age 16/17 I was told by my old obgyn these were ingrown hairs, but I wanted testing for all stds anyway. Everything came back negative so I trusted in my doctor.
I am now 21 it has progressed and continued to become worse, I was very ashamed but trusted in the experienced obgyn I had. I spent hundreds of hours looking for information that could better explain what was going on, with the scarring and everything. This is something that had NEVER come up. I wish there was more awareness for this disease, and I definitely want to share what happened to me to help others. When I was diagnosed with this yesterday, I could not get enough information. Everything I was told matched it to a T. I couldn't believe that I had never gotten another opinion and am pretty angry at myself for not doing so. I just wish I had this obgyn from the start. I feel very dismayed now that it's gone on for so long without anything being done- and that it could be genetic? and just finding out about this when I'm pregnant it really upsets me. Do'nt know where to start I already know hot baths can calm it that's the only relief I have had since age 16. I do start to feel sick when it's coming about and when it's gone, feel much better. Hopefully I can find what works for me, and good luck to all of you. I do feel better knowing than just wondering what it could be. Just wish I would have known sooner."
05/28/2012: Holly D from Leeds, England replies: "I have suffered with HS in my groin and upper inner thighs for about 8 years now. I'm a 30 year old woman and I have had a few surgeries to remove the cysts but they keep coming back. My consultant told me he thought it was hormonal (something to do with the fact we all have male and female hormones in us, and he thought I had too much of one of them). He therefore suggested as I was on the contraceptive pill, to change to one called Dianette which helps hormone issues. It really calmed my symptoms down and although I still got outbreaks, they were manageable. I have just come off this pill and have had immediate outbreak!!"
07/18/2012: Diane from Tiger, Ga replies: "My daughter is Down Syndrome and has had hidradenitis suppurativa since she started puberty. I had the usual doctors misdiagnosis this and one day I happen to mention it to a friend who was very knowledgable with herbs. I described what the condition looked like and he said it sounded like HS. He made a solution for me apply twice daily that contained collodial silver. The solution did wonders for the condition. She would still break out but the skin would sluff of and it would open and drain and she had practically no pain. But the best part was it stopped the scarring. When I ran out I went back to get a refill and he couldn't give it to me because they had stopped supplying him the C. S. I never knew all the ingredients in the solution and he closed up shop after 5 years doing this. He said he couldn't make a living. If anyone has heard of this and know how I can get this product again I would be very glad to hear from you.
All the DS girls I know suffer with this awful condition."
07/19/2012: Jenna from Canberra, Australia replies: "Reply to Diane from Tiger, Ga: I can't help with the full contents of the preparation you were using on your daughter - but I can provide the instructions for making the CS. Email me (Jenny): brag @ iprimus.com. au (remove all the spaces)."
06/01/2013: Lilmini from Toronto, Ontario replies: "Ask your dermatoligist for cortisone shots. They are painful but work well..... Swelling goes down... and antibiotic clears infection... I had an open wound for 6 months until I recieved a cortisone shot and it was finally able to heal."