Chemical Link to LS
Asian ladies report that LS is caused through the non washing of new under garments before wearing. I worked in China for 10 years and developed LS whilst there and went to see a doctor (Western man) he had no idea of what it was or how to treat it. I went to a pharmacy and the old gent told me the cause was due to new clothes unwashed first as they were contaminated with all sorts of chemicals. Same applies to chain store(cheap imported clothing) clothing.
I use Neem 100% pure oil after I have soaked in a small bath (baby bath if you can fit lower end in it) in Magnesium Chloride flakes once a week for about 20-30 minutes. 2 table spoons to half a bucket or 5 litres of warm water. Relax and read a book or something. Wont cure it but it brings relief and you wont be using dangerous/harmful drugs.
It was either last year or early this year there was a report on a TV show (Landline I think) about the amount of formaldehyde that is in imported clothes that are made overseas. 700 times (and no the 700 is not a misprint) the normal level of formaldehyde was found when they tested them. It is used to help prevent creases and prevent insect and rodent damage whilst in storage. So who knows what other chemicals are used as well. I know of many people (myself included) who cannot even touch new clothes or any new material. It used to take 2 or 3 washes before I could use anything new. I used to have my mum or a friend do the 1st wash for me and then we could have it in our laundry. It now takes 7 - 8 washes before I can touch them. This includes soakings in bi-carb soda before washing. The last pkt of knickers have been washed so many times and left out in the rain but I still cannot get them clear. So it looks like the pennies will need to be saved to buy organic underwear.
I have had LS for 7 years. I always wash my clothing, etc before wearing them.
Chlorine-Free Toilet Paper
Buy NON-CHLORINE TOILET PAPER. and LS will slowly disappear. Hurray! I buy mine at Whole Foods. W.F. makes their own but I buy Seventh Generation. The recycled chlorine free is pricey at a dollar a roll but worth it. Yes, recycled toilet paper sounds dreadful but apparently we can save forests of trees with it and THAT'S worth it. Your new year will truly be a happy one.
I have mine under control using a protocol found on a white paper from a doc in CA. It is:
20 min. hot bath every night for 6 weeks, immediately after, rub pea-size amount of clobetasol in for 90 sec. No less. Then 20 min Hot bath every other night for 6 weeks, immediately after rub cream in for 90 sec. Then 2x a week for life.
This has worked for me but I want it gone. On the relations part, idk cause I'm too worried to try.
I'm going to try some things I found today on here but wanted to post this for the lady who is having a hard time & can't get it under control.
The doc had a video showing how getting the thicker type skin down there hot via a 20min bath softens the layers then rubbing the cream in for 90 sec helps the cream Penetrate multiple layers. I have no itch. It's amazing & I'm very happy but I would really like to find a way to not have to use the cream at all.
Good Luck Ladies & I hope this helps someone.
Hi Melissa, has the hot baths and cream application still working for you? I am also finding it difficult to get the itching and soreness under control I was diagnosed in June after a punch biopsy and recently had really dry skin on either side of my clitoris that has shrunk back as of yet no white plaques on vulva. Thank you.
I have had LS for years and only had it diagnosed 2 years ago. My dermatologist put me on Clobetasol Propionate and it works wonders.
I have had LS for 10 years and was prescribed Clobatesol. It did help in the beginning with the white patches and the itch but still got flare-ups that are excrutiating. I have never been able to stop using it for any lenght of time and would have flare-ups that lasted for weeks. This creme has done absolutely nothing for my LS for the past 4 months, I don't know if the area is now immune to it. I'm willing to change my diet but do not have a clue where to start. Are there certain foods that I should stay away from? I don't eat processed food or junk food, I eat lots of fruits and vegetables, I eat poultry and some fish. I thank you for any advice you can give me.
I have had LS for 4 years. The clobetasol worked for the itch but I still and very sensitive there and cannot have relations with my husband I'm afraid the skin is too thin and It may tear. This is a problem! I recently got a book the autoimmune solution by Dr. Amy Meyers and yes a change in diet which she goes over in detail. I started 16 days ago and have been caffeine, sugar, wheat, dairy, and gluten free ever since and I am losing weight, and strengthening my gut. I have hypothyroid and want OFF of the medicine which in 30 days she can have you well on your way The recipes are easy clean and so nourishing that I am NEVER hungry I recommend the auto immune paleo cookbook. Made several recipes and I LOVE it
The clobetasol is one of the strongest topical steroids and the body seems to build resistance to it and it can not be used in multiple areas of the body such as the face, genital areas and the armpits as it can cause other issues such as thinning of the skin and discolorations of the skin. It can also cause high blood pressure if used over large areas of the body as well as blurred vision and high cholesterol. Hair loss is another side effect as is stretch marks. Itching is also a common one These side effects may or may not be reversible once the clobetasol is stopped.
I say this, not to scare you, but from experience.
Has anyone tried Coconut Oil for this condition (LS) ?
Soy and Canola oils both cause severe itching swelling and inflammation. Grains of any kind also cause reactions. Eliminate wheat, oats, corn, rice, mullet, quinoa, barley, and all oils made from them. I'm convinced it's an allergy for me.
Coconut Oil, Homeopathy
I was diagnosed with Lichen Sclerosis on April 16, 2015 after my OB GYN did a vulvar biopsy. I had been suffering for 20 months with symptoms but the current flare up has been the worst ever. My doctor prescribed the steroid, clobetasol, but I must be allergic to one of the preservatives because my symptoms became even more intense. I have stopped the steroids and I'm searching for some type of relief. What has been very soothing is using organic coconut oil before (used as a barrier) and after going to the bathroom. Two days ago I picked up a homeopathic remedy for shingles at the health food store that has greatly reduced the itching and pain. It did sting when I applied it so I have been diluting it with castor oil.
My question: Has anyone tried UV Light Therapy as a treatment for LS?? I had a horrific eczema outbreak on my legs and after using the UV Light Therapy, it completely sent away and has never returned.
I read about a 60 year old woman, here on EarthClinic, who has been healed by UVB light treatment (eximer laser). Her symptoms have been completely reversed. I wish she could tell us who gave her the treatment. And how comes this is not world news?
I will ask (again) for some Dutch doctors here and will let you know. In the meantime I sit in the sun, in lotus... now and then.
I also have found coconut oil to be very helpful and it does not have the odor or expense associated with the creams for LS sold on Amazon. Also, I am afraid of using too much clobetasol proprionate and allowing it to thin the skin. Coconut oil lets me to spread the steroid on thinner and use it less frequently.
Cold Water, Evening Primrose Oil
Have had LS for last six years. Severe pain and itching. Some days could hardly walk. I starting using cold water in a sitz bath every day what a relief. Every time I urinated poured cold water from tap overVJ. Also take evening primrose oil two or three a day. At night open a gel cap of the oil put on VJ. I am 90% better. I have tried everything. Cold Water is working for me.
I use colloidal silver gel for lichen sclerosis. Helps immediately.
For lichen sclerosis: I'm happy to see someone else on here trying colloidal silver gel. I have been using this also and it has helped a lot.
I have been using this also.
I also do the borax and baking soda soaks, which have given amazing results!
I cured the LS with a comfrey cream imported from Croatia. I suffered so much the whole last year that I did not want to live. My Croatian friend gave me the comfrey root based Croatian cream. It healed me. I don't have the itch and the inflammation anymore. I use it once or twice a day consistently.
How about cbd cream?
(Lady Lake, Fl)
Recently diagnosed. Location in anal area, on chest, stomach, and legs. Oh holy night the Chronic anal itching during day is terrible!!! The SEVERE, wake me up, loss of sleep, night itch... makes me want to scream into my pillow and cry. Wait I have done that!!!! Punctured a COQ10 softgel and placed directly on anal affected area at 7:00 a.m. (Warning!!!! ' it Burned like hell but I felt instant itch relief. Burning sensation lasted 10 minutes) Just for testing purposes, I placed it again at 5:00 (still burned but way less this time) It is now 9:19, not one time did I have to sneak off into the bathroom at work to scratch and I have been laying in bed for over an hour without a hint of an itch. Crossing fingers (haven't had a solid night's sleep in 14 months & I hope this allows me to sleep through the night)!
I have suffered from LS for many many years and like all of you tried so many different things somehow, some didn't but what I have found is a definitely boils down to diet when I went to my doctor she said my oxalates were high and she wondered why so she tested my candida it was high and high candida will make high oxalates so needless to say I do a low candida low oxalate diet and I do biocidin!
Within 4 weeks my LS had cleared up by 95%! I was ecstatic it definitely has to do with diet because I know as I fall off my diet and eat the wrong things again that are high and yeast and high in oxalates it comes right back my doctor said I should do it for about 6 months the protocol and I possibly could get rid of it completely for good. Hope this helps you.
Hi All, want to share my story so others may benefit from my struggles.
I had LS for more than 10 maybe 15 years. Saw my gynecologist (no idea of what it was); saw my skin doctor who did help and I can't remember what the ointment was but could only use it for a short amount of time, 2-3 times per week for a limited amount of time. This did take the itching away but the ointment was not healthy to take every. single. day. Which is what I needed to eliminate the itching.
Sooooo, I quit using it and suffered, for years. I tried all the diets, no sugar for more than 5 years, no gluten which I'm still off both these. Sometimes, no sugar/gluten would help but then it would flare up and no help again. I had the paper slits on both sides of my labia, one side was always worse than the other. The itching was INTENSE! Then the pain from the slits or the itching too much would be intense...AARGH.
Ok, so fast forward to today, errr well, 2 months ago. I read about the carnivore diet many years ago and this was one I had never tried. 2 months ago, I tried it...100%. Amazed me. 3 days after starting the carnivore diet, 100%, the itching stopped and has never returned. I still have the paper slits scars but there is no, opps repeat here, NO itching! None, zero, ziltch! And, it's been over 2 months with me being on the carnivore diet with only one minor cheat (hot herbal tea, 2 cups, with 2 hours inbetween) terrible reaction but still...NO itching. The diet is easy but greasy. No food craving...none.
The itching has never returned. My eczema rashes are nearly gone, just discolored skin. They have flared up during this 2 months but I associate that with loss of fat. I've lost 22 #'s and feel great. NO ITCHING! Heaven. I truly hope this helps someone.
The Carnivore Code written by Dr. Paul Saladino has all the science/know how you could ask for. He also has a website with loads of info. Watch some of Strong.sistas youtube videos. Here is a link to one that describes what they eat in a day on the carnivore diet, https://www.youtube.com/watch?v=k9C2O7F1UA4 .
They are a lot of fun to watch. They have been eating this way lots longer than myself. I'm so new and feel uncomfortable as I am such a beginner. The important thing here is, my crotch is normal now except for the scarring. It feels normal and behaves normal in every way. There are also lots of facebook pages on the carnivore diet; Women Carnivore Tribe, Carnivore for Beginners. I just found Strong.sistas and have learned a lot from them but you can get direct answers to your questions on the facebook pages. Finding out about all the toxins in plants to protect themselves from being preyed upon was an eye opener.
I've been organic and very healthy eating for years, not vegan tho but mostly salads with chicken or some sort of protein and a carb like sweet potato. You'll read a lot of healing stores from people who quit plants and went carnivore. It may not be for everyone but my LS took a quick nose dive and has not returned. My eczema is nearly all gone, just discolered skin. Lots of other subtle healings going on and I intend to stick to this diet, at first, for 3 months to see but the improvements are just great so am sticking to this diet for at least a year.
Good Luck on your journey and if you have LS, I pray you manage to get rid of it!
It is not a meat free diet but a plant free diet. If it grows on a plant, I don't eat it and if it grows on a tree, I don't eat it. Seafood is good, wild caught fish and all kinds of meat is good. Carnivore diet was a big learning curve for me. The LS disappeared within 3 days of starting. Eating organ meats is where a lot of the minerals and vitamins are. Beef liver, heart etc. I learned that ruminants are the best for me. Single stomach animals not so good and can't explain but did not feel the greatest after eating chicken or pork. I lost 50 lbs. in about 6 months without trying to lose weight. I feel the best I've felt in many years. This is not for everyone. We are all so different and some can handle the toxins plants produce better than others. I have an allergy to dairy which causes my nose to run. I have learned alot about myself and what my body can and does tolerate by eating this way. Best to You!
Robin, I've also been eating Carnivore and I can attest 100% that it does work. IF I go off though (like I did 3 days ago and had 2 glasses of dry red wine - I had an almost immediate terrible reaction, and became inflamed, in pain, and horrible itching. Many people with various autoimmune problems have tried Carnivore and had a lot of success. Basically, you are eating whole, one ingredient foods with none of the garbage that is put into processed foods. There are lots of support/community groups for those who wish to eat Carnivore - there are also three main types of Carnivore. 1) Carnivore where people try to eat as close to zero total carbs per day. 2) Ketovore - this is kind of a combination of the ketogenic diet with Carnivore (keeping carbs under 10 total carbs per day and eating whole foods) - it's more lenient than Carnivore. 3) The Lion Diet (also zero carb) but more strict. Lion Diet is nothing but water, and ruminant meats such as Beef, Bison, Lamb, Goat. I follow Carnivore. I DO allow spices (unless they have sugar/gluton/corn/rice in them) I make my own spice mixes whenever I can if I can't find what I want pre-made. I also discovered from my last flare up - I can NEVER have wine, peanut butter (even sugar-free organic) - and whey protein powder is still in question. Also, after my last flare up- in an effort to quickly calm things down, I fasted for 24 hrs (water only) I would like to incorporate longer fasts into this way of eating too - as occasional fasting can bring a lot of healing according to the research I've done. If anyone wants to try this food protocol - I would suggest using a food diary so that you can list any reactions if you have them.
Hi Robin, I too am trying the Carnivore diet. So far the changes I have noticed is my knee's don't hurt so bad. I was getting ready for knee replacement but now I am going to keep eating carnivore. The everyday pain and inflamation is gone. I watch Dr. Ken Barry on Youtube and also Dr. Anthony Chaffee. They will tell you all you need to know. They have been on the diet like for 20 years and their vitals are excellent.
Carnivore diet is the best diet. Our military unit tried 3 different diets one year to learn which diet was best for deployment. We divided our unit into 3, and each was given a strict selected diet for 3 months. After which we were all evaluated mentally, physically, had scans, blood work, urine and fecal testing. You name it we had it done. Turns out after the 9 months after all 3 groups had been on all 3 diets for 3 months, the results were tabulated and it was proven that the majority of health benefits, recovery, strength and endurance were on the carni diet. We exhibited better recovery, better injury repair, better energy, more strength, and better mental outlook. As you mentioned, we had a team member with a chronic sore shoulder, and another with chronic hip issues. When each of these members was on the high protein or carni diet, their pains went away. Actually both had returning pain on the vegetarian diet. Since then, our deployment meals have changed. We take a lot of dehydrated beef and turkey now. A lot of our meals have been changed for more protein and fats and less carbs.
This is incredible information and I wish it were shared more mainstream. I've recently begun learning more about the carnivore diet, so I was happy to read your post.
I have found diet extremely important for lichens healing. I eat a vegan diet with salmon, no sugar, alcohol or night shade vegetables, I also use apple cider vinegar and water sprayed on after urinating. I bath in baking soda every second night and I use only natural products for cleaning. Don't scratch. I am healing more everyday and have no itch.
Carol, I agree with your statement.
I was diagnosed a little over a year ago, and like many women, I've tried a variety of steroids, creams, potions, lotions, and salves etc.. with little to no relief. After having a severe flare 3.5 weeks ago, I was desperate and refused to go back to my 3rd gyno, who was no help at all. I researched and googled in desperation, and found several forums and Pinterest articles, where patients have treated it as a leaky gut/ and fungal overgrowth.
The remedies were all similar so I tried them! • I started to drink 1-2 tablespoons of Organic apple Cider vinegar with the mother every morning with 12 oz of hot water on empty stomach. • Purchased raw organics vaginal probiotic taken by mouth. • cut out sugars, gluten & diary • increased my vitamin D3 to 4000 ius daily as I was low confirmed by my Gp . • took vitamin K2 with D3 as it helps absorb the D3. • bought Nordics omega 3 supplement • raw juiced mid morning • purchased black African body wash • increased my b12 • drank a non dairy probiotic drink everyday • took 1 500 mg dmannose with cranberry daily. Helps with die off effects of fungus/yeast • applied over the counter clortimazole nightly on the white patches and labia • only used a little Cándula salve on labias and clit for moisture. • started taking collegen powder. • started taking plant digestive enzymes • drank lots of clean purified water After 5 days I got the relief I desired. The white patches are all gone, and the atrophy is much better and my tissue all around looks healthy and pink! I had no idea in my case that yeast/fungus was a factor. Who knew? I was even tested for it in the beginning.
It came back negative! I don't trust doctors. I don't think they are knowledgeable at all about this. I'm so thankful for forums like this.
Wat een verhaal, Mijn ayurvedische kunsten. Heeft me verteld. Na 15 jaar LS-problemen, witte westerse kunstmedicatie en gels DR. medication and gels Nu suiker, Geen industrieel voedsel It goes better, but dificult to follow this diet.
What a story. My ayurvedic arts. Told me. After 15 years of LS problems, western art meds and gels DR. medication and gels Now sugar, No industrial food. It goes better, but dificult to follow this diet.
Lichen Sclerosus is a terrible disease but it is manageable. I have zero pain or itching anymore. I would get rid of all processed foods and soft drinks. Take probiotics and drink kombucha tea. I have learned in my case that nightshade vegetables set me on fire. Take a natural hormone. Another thing get some DR Bonners organic peppermint soap. Only use that. I use the liquid. Also dr Bonners peppermint lotion is the biggest relief ever during an eruption. Take colloidal silver too.