Hi. I have a very different blood clotting disorder. I have Anti-phosphilipid syndrome due to my Lupus. Its been an issue for 14 years. I've been on 3 different blood thinners. Coumadin was to up and down, Arixtra wasn't always working right and I got a clot in my eye. So they changed me to Lovenox. But because I was so stressed out last year, my meds didn't work and they had to amputate both my legs because of clots in my feet.
Although the lovenox works well, it's very expensive. I've been thinking about trying to do it naturally with the molasses and cayenne pepper, but I don't know if its too dangerous because of how erratic my health has been. My lupus is my worse enemy most of the time.
I've also been looking into getting a blood monitoring machine but those are very expensive. I think it might be worth it to try. Or go to bellevue a few times a week, which is also expensive and annoying. Also, the insurance company is giving me hell because its so expensive.
What do you think? Should I try the natural way and see how it works out, while my docs watch or stay with the meds?
New Hampshire, US
Anyone who suffers from chronic hives, autoimmune urticaria, allergies of any kind, or obviously any autoimmune disease: I highly recommend reading The Autoimmune Paleo Protocol by Sarah Ballantyne, PhD. Extremely vital information on healing your digestive system/leaky gut. it breaks down everything scientifically, and is a very well organized book for someone who may not have much experience with nutrition, etc.
along with NAET, my chronic hives, eczema, and other health issues have greatly improved & only getting better!
First off, thank you for this site and information. I've suffered various autoimmune (AI) symptoms for nearly 2 decades. I'm largely anti-prescription- they just seem to trade one problem for another. I respond strongly to Rx & OTC drugs. After much research, I started oral Borax at the “maintenance" dose (5.5 grams (1.25 tsp) in a litre of water, then 1 tsp of the solution twice a day with magnesium).
In one day, my hoarse voice (thyroid symptom) of years returned to normal and my stomach feels relaxed. I'll continue with this low dose as long as it's effective but I personally know two severely arthritic people (with other AI problems) who take the large therapeutic dose with incredible success. I'm looking fwd to more symptoms disappearing, and plan to report back soon.
Rheumatoid arthritis, diabetes, and other autoimmune disorders MIGHT be cleared up by following a gluten free-casein free diet. I have been following a gluten free diet for over a year, and have improved, but still have some problems. My understanding is that casein (milk protein) is metabolized the same as gluten. By following a gluten free, casein free diet, I have read that people have also been cured of autistic disorders and even schizophrenia. I'm having trouble abstaining from the milk protein, but thought this info would be helpful.
Harbor Springs, Michigan, Usa
Harbor Springs, Michigan, Usa
Missing City, Missing Country
White River Junction, Vermont
White River Jct, Vermont
Saint Paul, Mn
Perth, Western Australia
Hi, I have been diagnosed with Dysautonomia (I suppose not officially, since it was an alternative doctor who diagnosed me). I have been suffering from a variety of symptoms, from profuse excessive sweating (hands, feet and underarms), facial flushing and inability to regulate temperature, to feeling weak, fatigued and highly sensitive to any sort of stressor-- Even something like having to speak to someone at the grocery store can cause all sorts of symptoms. I live in fear every day that what I eat in the morning will exacerbate my symptoms at night when I want to leave the house. This means I have an almost perfect diet-- lots of fruits and vegetables, a few whole grains, no sugar, no dairy or gluten (because of allergies), no instant yeast, and plenty of legumes and beans. I can barely exercise, I can't go out in the sun, and I have a plethora of allergies because when the autonomic nervous system is dysfunctioning the body can't digest, assimilate or have a good immune response to certain allergens.
So, what I'd like to ask is that you add a section having to do with Dysautonomia. I haven't been able to find a medical alternative place of discussion to find out what will help this.
A few things I've found that have helped with Dysautonomia for me are brain exercises (I sweat more on my right side, so doing left brain exercises like sodoku have helped a great deal), a good diet, stretching, aerobic exercise and meditation/visualization.
Getting to the root of autoimmunity is basically peeling all the layers of negatives that we bombard our body with. This could be food allergies (gluten, milk, etc), even if you don't react, I'm highly allergic to gluten but nothing happens to me when I eat it (not noticable anyways, one of the factos of autoimmune hepatits causing cirrhosis at 25yo). Vaccines and heavy metal poisoning which can be chelated out and helped with homeopathics. Diet is the most important and finding a doctor who can help you peel back all the layers to restore your health. It is treatable, I know people that had autoimmune hepatitis and cirrhosis that are 100% cured from figuring out all their triggers (pollutants, heavy metals, food allergies, emotional traumas, vitamin deficiency's, etc.)
Hello All! I got some very interesting information regarding auto-immune disorders from my ob/gyn this week, and thought I would share. This Dr. is open to natural remedies and alternative therapies, so I take a lot of stock in what he has to say. I was asking about thyroid disease, since this has been cropping up among the women in my family recently. He told me that thyroid disease is an auto-immune disorder, where the immune system becomes confused and begins to attack healthy tissues. I asked why this would happen, and here is what he said:
9 out of 10 cases of auto-immune disease happen in women. This is because women's immune systems are designed to be able to partially shut down to allow a pregnancy. A growing fetus is seen by the body as foreign tissue, since half of its DNA came from the father. For this reason, the immune system has to be suppressed so that the mother's body will accept the baby, otherwise all pregnancies would be miscarried. The male immune system does not have the ability to shut down to accept foreign tissues.
In an auto-immune disorder, the immune system becomes corrupted or confused. This is especially likely if the woman has had a pregnancy, since the system has been shut down and then "rebooted". Problems can occur with the "reboot". The Dr. Said that this can also happen if the woman is exposed to any foreign tissue, not just a pregnancy, for example, a blood transfusion. It can also happen in men who have been exposed to foreign tissue, but it is much less likely due to the design of the male immune system. Drugs that are taken to suppress the immune system, such as for organ transplants, can cause this process in men artificially.
This makes you wonder about vaccines using fetal cells and other tissues, GMO foods, and other products made with human tissue or DNA, or even animal DNA. How does this affect our immune systems? There is so much auto-immune disease today - lupus, thyroid disease, arthritis... makes you wonder!
Hopefully this information will aid others in their quest for health.
Go Gluten Free for Lupus and other autoimmune diseases
My son was diagnosed with an autoimmune disease that I had never before heard of. It's called polymyositis. This disease caused the protein in his blood to rise to 11000. The norm for men is 200. He developed all type of symptoms, swollen joints, dry eyes, rashes all over his body, liver infection, water in his lungs and around his heart. He was hospitalized for a while and was treated with high doses of steriods. He did better after the steriods but I had concerns about the side effects of the steriods. I prayed to God every day to help me to help my son.
One day out of the blue an email about autoimmune diseases and gluten pop up in my email. That was the answer. My son has been gluten for 4 months and he is doing fine. No more steriods. If he accidentally eat something that contained gluten, he knows within half an hour.
Dear EC Folks, The information in this movie could explain many Leaky Gut / High CRP test results, please watch and forward as you see fit.
Please forward before this one gets pulled out of availability. The *entire movie* "Genetic Roulette" is at this link, free for the watching... Right now. It starts and stops a little so you may have to re-start it a few times (you can move the cursor up to where you were) but my understanding is it's also on Youtube.. Right now.
Anyone who has an autoimmune condition or deals with autism in any form, or who seeks to understand the issues with GMO foods should watch this ASAP.
Its beyond time to wake up.
PS: I have found what may be a better link, also to the entire movie, on Youtube. Here it is: http://www.youtube.com/watch?v=wnlTYFKBg18
Grimsby, On< Canada
I have a friend whose sister has Guillain-Barre syndrome. The most info I can find is Julie Liu, who is selling a book. Are there anymore websites that cover this topic in a wholistic manner?
EC: Hi Janet, There are a few comments on our autoimmune page here: http://www.earthclinic.com/cures/autoimmune-disease-natural-treatment.html#GBS
Fountain Inn, Sc
One afternoon, two months after I had my first baby, I suddenly could not move my lower lip and chin was numb. The next morning I woke up, looked in mirror, and shrieked to find that my whole face was frozen. My mouth drooped, eyes only close halfways, couldn't move anything. I could open my mouth a bit, but eating and drinking was a messy struggle.
After tests, the doctor(s) vaguely concluded it was GBS, Guillane Barre Syndrome.
No one can tell me for sure what brought this on. One very reasonable theory is utter-exhaustion. I thought I was just still exhausted from giving birth, first time mama, but now looking back I know I was insanely exhausted, because I couldn't even stay alert long enough to read a few lines of books or messages on phone.
A few weeks before it happened, I noticed that there was no position comfortable enough for me to sleep in. Even laying my head on soft pillow, I felt like my ears were constantly folded causing pain, but they weren't! I could still walk, but slowly because my whole being was in pain. I could not bend my neck down far enough to be able to see toes/tummy/whatever. My blood pressure went up to 180/90 . I was advised to stop breastfeeding to ease on exhaustion and to take blood pressure medicine. But all it did was just adding more anxiety, and it didn't do anything for the blood pressure. So I went with my gut feeling to stop on the meds, and resume breastfeeding, although by this time my baby was already partially on formula.
The birth of my baby was awesome. But healing was very slow. My nipples were not only sore, they were cracked, and now are somewhat deformed. But I persisted on exclusively breastfeeding my baby.
I went through accupuncture for about 4 sessions, but did very little for the GBS at the time, and the trip to the accupuncturist was very exhausting itself, plus we couldn't afford the fees any longer. The medications from the doctors were none, because there weren't any known meds for it except for a "preventative" course of immunoglobulin (ImG) before the GBS went worse (because it could cause death if paralysis goes to lungs). By this time, after all the tests, it looked like the GBS was on the steady and not worsening, so we decided to not take the ImG course (couldn't afford it anyway; insanely expensive). I tried what they called "tantric" massage. I tried homeopathy (worked a little). I tried Craniosacral Theraphy (helped a bit). A bit of everything over the two years, but could not be consistent for several reasons (baby, time, cost).
It is now almost 3 years since the onset of the GBS. I am very thankful that I am still here, had a 2nd baby, breastfeeding well (both), active again. But the left side of my face is recovering very, very slowly. I can probably say that the right side is about 90% healed. I can smile (right half), raise right eyebrow, wiggle right nostril. Left side not so much. It still hurts when I press on my face. When I smile, my forehead crunches, making me look like I'm unsure of or questioning or even mad at something/someone. It is quite funny tho, especially when 2 years ago the whole face was still "frozen", I would be saying something in a happy voice but my face was bland/uninterested/mad, also because my eyes were always on the scary stare mode.
I have always been known to be a "smiley" person. I am more of an easygoing, happy person. I am thankful for a whole lot of things in my life. But I do tend to be an introvert sometimes when it comes to hurtful feelings. This might be one of the mental causes for my condition.
Even though I am about 90% healed on right side, I must admit I am still a bit worried about not being able to recover fully. My biggest concern is that I want my kids to know their mother's smile. And it's not a comfortable condition, because it's like my face is on constant 'pull'. Also, when I sleep, mostly in breastfeeding position, my hands fall asleep, too.
I wonder if there is any definite cure for my condition. I have started ACV 2tsp with BS 1/4tsp, and tall glass of water remedy, initially for food poisoning and flu symptoms. It is my 5th day on, so tomorrow off for 2 days. It definitely helped for the poisoning and flu, plus I do notice my face is clearer and almost glowing again. Because for 2 years my face was sagging for the lack of muscle activity, so skin was also "grey".
But I am so hoping I could smile my old smile again. Please help with any advice :)
White River Jct, Vermont
Keystone Heights, Fl
For those with autoimmune diseases, please look at www.ldninfo.org to see the many illnesses that can be helped by low dose naltrexone. MS progression can be stopped in 89% of MS sufferers, 67% of Crohn's disease can be put in remission, along with UC, backed up by published studies. Lupus, some cancers, and many other autoimmune diseases respond to LDN. Additionally, there is evidence that medicinal mushrooms can be useful in MS, especially the Lion's Mane mushroom, along with Cordyceps and Reishi. I have recently come across two people with MS, one who took Avonex for 13 years and one who had 13 lesions on his brain, and both are now leading normal lives using the mushroom products. One company who has the three mushrooms in a product is M----- Mushroom. I have no financial or other interest in this company. I usually advocate for LDN for MS, but it looks like the mushroom product could be a possibility for those wanting a food product for their healing.
My mom has had her life-long psoriasis almost disappear from taking N-Acetyl Glucosamine (N-A-G). I read that it was recommended for autoimmune diseases such as Crohn's and Rheumatoid Arthritis. She has had psoriasis, psoriatic arthritis, and digestive issues for years. After 4-5 months of 1400mg 2xs a day, her digestion is much better and her psoriasis is almost gone. She will keep taking it, to see if the joints improve over time. She started seeing an improvement in 3-4 weeks. I hope this helps someone else!
Pemphigus Foliaceus: Can anyone with this autoimmune disease share their experience with drugs and/or alternative remedies - success or otherwise? It seems to be such a rare disease that anecdotal information is hard to find.
Busselton, Western Australia
Ultraviolet Blood Irradiation or UBI therapy. My naturopath says he has amazing results with this therapy for his scleroderma patients. I asked because my aunt has scleroderma. I wanted to share. The earlier you start the better.