Natural Remedies for Autoimmune Diseases

| Modified on Dec 09, 2022
Avoid High Histamine Levels
Posted by Charity (faithville, Us) on 09/05/2021
5 out of 5 stars

Histamine can be the underlying cause of many ills:

Check out 7 Surprising Factors that Can Increase Histamine Levels (And How to Deal With Them):

https://www.histamined.com/post/7-surprising-factors-that-can-increase-histamine-levels-and-how-to-deal-with-them

High Intracellular Calcium Levels for Myosititis
Posted by Gil (Greater Pittsburgh, PA) on 05/17/2021

Hi Barry,

I couldn't find your post on any TMA forum. I am very much interested in your research.

In February of this year, I was hit with a viral infection that started out as a sore throat quickly followed by terribly achy legs for 3 weeks. I tested negative for COVID, but I don't know the reliability of that test. I have had mild leg muscle aches almost every day since that time. But worse than that is I have a super easy tendency to upper extremity muscle strain, tendon and ligament tears where I'll injure myself just lifting/washing pots and pans or doing anything repetitively like rolling dough.

I plan to have some bloodwork done, including a creatine kinase level and am considering getting a muscle biopsy done. Hopefully, starting today, I will work on lowering the inflammatory foods in my diet. I already take fish oil, cod liver oil and turmeric as well as a multimineral, B complex, and vitamins C, D and E amongst other supplements.

Your recommendations would be super appreciated.


High Intracellular Calcium Levels for Myosititis
Posted by Anna Russell (Sydney ) on 05/15/2021

Hi Barry, I was wondering if I can contact you and talk to you about natural remedies for myositis?


High Intracellular Calcium Levels for Myosititis
Posted by ML (Massachusetts) on 04/11/2021

I would love to find out more for a family member, how can I contact you?


Scleroderma
Posted by Joel (Philadelphia) on 03/30/2021 15 posts

Regarding the cancer,

Https://www.cancure.org/12-links-page/43-artemesia

"Additionally, Dr. Rowen stated that he adds cod liver oil (for its omega-S and vitamin D) and conjugated linoleic acid (CLA) to this therapy. He says that, with the exception of patients very near death, taking artemisinin or derivatives have stabilized, improved, or remitted every cancer patient he has followed. Medical literature also seems to suggest that oxygenating the system might make the products effective."

You have to avoid any food with iron when taking artemisinin. Pre-load iron beforehand.


High Intracellular Calcium Levels for Myosititis
Posted by Barry (Australia) on 11/15/2020

Claudia,

I am sorry that I never noticed or responded to your query. I don't even recall leaving this post and hadn't received anything in my mail.

I knew absolutely nothing about myositis when I was first diagnosed with it so realised that I needed to find someone who had a preference for natural treatments for disease and who was much further advanced in their research than myself. I annoyed people on a forum by posting pieces on what I did know regarding simple treatments for arthritis and the like.

When I did find the nurse, whose husband suffers from IBM and necrotizing myositis, she introduced me to the issue of defective ion channels and genetic defects. As her own research had stalled, I was able to provide the momentum to take things much further. If you have a combination of the ACTN3XX gene variant and MLCK variant it results in enormous losses of creatinine kinase from your muscles when they get damaged by anything. Researchers have been generally avoiding looking into this despite a Mexican study finding that almost all myositis patients in their test group all had the ACTN3XX gene. Researchers seem fixated upon the idea that the immune response is somehow, magically, kicking out the CK. You can basically guess at whether you have the two genes by whether you were an incredible athlete in your youth. If you weren't then there's a good chance that you do.

Since only one or two percent of genes have been researched, it's a fair bet that there are even more genes which are involved in all of this and I could already speculate on some but don't want to complicate things.

As for the autoimmune aspect itself, I am now aware that this relates to the spleen. It caught my attention that a study done in Georgia in the US proved that baking soda can reset the immune response, temporarily stopping the autoimmune reaction.

Since then, I found out much more about my own condition, which was induced by a paralysed diaphragm (though we are still trying to work out why that occurred), and my attention is now on carbon dioxide. Where cells have lots of mechanisms for detecting low levels of oxygen, and various mechanisms to try to increase those levels, the spleen responds to low levels of carbon dioxide. Essentially this means that the less oxygen your cells are using in metabolism, the less carbon dioxide they are producing. The spleen reads these low levels as being evidence of disease and triggers the immune system to go on high alert. Whatever is causing a particular individuals myositis then draws the attention of the immune systems T cells to the damaged, or compromised (infection), muscle cells and you have what is misinterpreted as an autoimmune reaction.


High Intracellular Calcium Levels for Myosititis
Posted by Claudia (Sheboygan, Wisconsin ) on 04/23/2020

Barry, I have been diagnosed with scleroderma/myositis within the last several months. My hands and fingers are very are very clenched, making it very difficult to do any daily activities. My rheumatologist has me on prednisone temporarily and CellCept to start easing symptoms. I can hardly walk across the room without losing my breath and straightening arms legs shoulders neck etc. is very difficult because of The myositis. I had not heard anything about a genetic component to any of this and would therefore be interested in hearing what you have to say about it. I have also looked into various kinds of stem cell therapy, but it's difficult to find any medical institution that wants to do anything with stem cells.

Thank you. Claudia from Sheboygan, Wisconsin


High Intracellular Calcium Levels for Myosititis
Posted by Barry M. (Australia) on 03/08/2020
5 out of 5 stars

I don't know whether you will be interested in this but I was able to work with a fellow myositis sufferer and his wife in working out how the disease operates. The medical community is focused on the autoimmune reaction however we believe that this is secondary to the real issue. The fellow sufferer has multiple RYR gene defects leading to significantly raised intracellular calcium levels. It took ages but I correlated this with the ACTN3 XX gene variant which responds to high intracellular calcium levels by forcing creatinine kinase from muscle cells. There is much more to this picture however we believe that these are the most significant points.

If you want to know more about our research feel free to contact me though I already have it posted on an obscure natural treatment thread on the myositis TMA forum.

Borax and Liposomal Glutathione
Posted by Anon (Anon) on 11/07/2019

Hi! :D

Your condition is a bit vague, but I suspect a general recommendation could do you a world of good:

Aloe vera Turmeric fresh raw Bok choy Cabbage Fennel Pineapple Beets Ginger fresh raw Lemon juice fresh Colloidal silver Activated charcoal Psyllium husk Oxygenated magnesium bowel cleanser Diatomaceous earth *food grade* Ashwaganda Ginseng Goldenseal Green tea Look into these. I would start with the aloe, turmeric, bok choy, and ginger. Make a smoothie or juice from them for example. It should be quite soothing.

Consider taking vitamin e in generous doses, too. Maybe get some sun. You might want to avoid acetaminophen and nsaids for a while. https://articles.mercola.com/sites/articles/archive/2014/03/26/acetaminophen-overdose.aspx And consider going grainfree and organic to avoid noxious chemicals.


Borax and Liposomal Glutathione
on 11/07/2019

Thank you for replying Sherry. I only took a “teaspoon” of the liter mix, not a teaspoon of borax.


Borax and Liposomal Glutathione
Posted by Sherry (Phoenix AZ) on 11/05/2019

This is too much borax, dose should be 1/8 teaspoon or less. I wet my finger touch borax and put in my mouth. Be careful with a cleanse, I did one with herbs from rose mountain herbs, a great company, that also called for iodine drops in it and it caused my thyroid to crash. Never will I do a cleanse again. I felt like I was dying. One year later my thyroid is all over the place. Any autoimmune is caused from a leaky gut, (stomach issues) and take a lot of work to heal. No sugar or artificial sweeteners, no grains, gluten, fruit, only vegetables, meat, good fats. No more bloating, slowing healing. The answer is diet. Not easy but you can do this.


Borax and Liposomal Glutathione
Posted by Uncertain from LA (LA) on 11/04/2019
4 out of 5 stars

Borax/liver enzymes/autoimmune/causes/remedies/blood oxygen/liposomal glutathione -

Recently I started taking liposomal glutathione and have been feeling much better. I recommend this. - I have mild autoimmune issues. I have been taking the “maintenance dose” of borax, only one to two teaspoons of the concentrate a day. It has given me some results I am happy about.

I only take OTC supplements at this point. My doctor has not prescribed me any meds at this point. - Recently my “alt” test is slightly high, 36. I have stopped the borax and the curcumin I have been taking wondering if they are part of the problem. Could or should I switch to boron or fructoborate tablets? I have taken curcumin but not much, only when I felt some pain or neuropathy. - I am having stomach issues and wondered if my stomach issues were also related to the borax or curcumin?

If so, what do you do about it? - There is blue coloring under my fingernails near the lunula. I understand this is sign of low blood oxygen. Could this raise enzymes? Would sleeping with oxygen help me with low blood oxygen? - Autoimmune issues seem to have multiple causes. They could be from fungus, bacteria, viruses or triggered by something like a drug. Borax works against fungus. If you cannot take borax what would be the next best options to take? What would be the best thing to fight viruses and bacteria? Were my physician to give me prescription drugs can you take the boron or borax with them? Is it possible to treat the autoimmune antibodies? I thought about a cleanse but I don't want to damage my organs. What would be a gentle option that works even if it takes longer?

Dental Health Link to Autoimmune Disease
Posted by Beth (London) on 02/20/2019
5 out of 5 stars

Inflammatory and Autoimmune Disorders: I've seen a good body of anecdotal evidence to link these in some cases to gum disease. Doctors rarely think to check oral hygiene. If you have any bleeding of the gums, gum shrinkage, abscess or severe tooth sensitivity (which may indicate a cracked root) see a dentist and get these fixed. It won't instantly cure inflammatory problems but may remove one source of ongoing inflammation. Since toxins from gum bacteria are now known to cross the blood brain barrier, it may also reduce your chances of dementia.


Autoimmune Disease and Vitamin A Toxicity
Posted by Angela (Texas) on 11/22/2018

Autoimmune diseases may be caused from Vitamin A toxicity! A Canadian engineer, Grant Genereux, discovered the cause and a ND from Arizona furthered researched this and confirmed Grant's researched!


Viral Link to Autoimmunity
Posted by Mama To Many (Tn) on 08/17/2018

Dear Marsh,

Oh, I hope that the Children's hospital will find the missing link for what will help your grandson!

That is sobering about the possible long term effect of pitocin on children. So many unintended consequences of drugs...

Perhaps the stuttering is related to stress? Many years ago we had an extended family member living with us and it caused a very stressful time in our life. My son who was 5 at the time began to stutter. The stuttering completely ended when that family member moved on. I hope it is also short term for your little guy.

God bless you and your grandson.

~Mama to Many~


Viral Link to Autoimmunity
Posted by Marsh57 (Colorado) on 08/15/2018

Thanks Mama. Just received word an hour ago that the pediatrician and allergist want to send him to Children's Hospital for tests (to rule out rare disease). He started stuttering a couple weeks ago. Can there be anything else? My sister has European friend - her grandson has many of the same symptoms but much, much worse. A mom's support group abroad believe the Apraxia s ymptoms are is caused by Pitocin (induces labor). It supposedly causes postpartum depression too, which his mother seems to have had (after both kids) and still not the same. Heavens... so incredibly overwhelming, frightening and heart breaking.


Viral Link to Autoimmunity
Posted by Mama To Many (Tn) on 08/11/2018

Dear Marsh,

I know our experience with mono has been that it does reoccur! Perhaps that is the reason for those monthly fevers - at the least his immune system is overtaxed.

Are you using coconut oil? It has been the very best thing we have found for mono. It has to be the cold-pressed kind that isn't processed. Unfortunately it isn't everyone's favorite taste. For my adult children, they would take 3 T. a day. Even now, my 19 year old will take coconut oil for viruses since he sees how well it has helped him in the past.

For a little guy though, 1/4-1/2 teaspoon three times a day is likely sufficient. Some people experience digestive distress with coconut oil; my family never has though.

I have also probably mentioned that nettle has been huge for us for immune strengthening. I use nettle leaf capsules but tea and tincture work as well. Tincture is easily hidden in anything. A dose of it would be 5 drops a couple of times a day.

I know that you are concerned about the steroids. I don't like them either. But I know you may not have the final say about whether are not they are used. If they are, be encouraged that they may be a help to get over a health hump. We have used them a few times with children over the years in desperate poison ivy situations. Recently we did this for one of my sons. But he continues to mow and get into poison ivy. At first he was still breaking out some (though not nearly as bad.) even after the steroids. But I have been giving him nettle daily for maybe 6 weeks and he is currently poison ivy free, though I am sure he still gets exposed here and there.

I am so glad that your grandson has you on his side. You have done so much for him.

I hope you find just the solution for him.

~Mama to Many~


Viral Link to Autoimmunity
Posted by Marsh57 (Denver) on 08/10/2018

Dear Mama, Bill, Timh and Other Healers, Our little boy who just turned 3 years old has been running a temperature & sore throat every month like clockwork for about a year. Last September he had 10 crowns because of cavities. His diet mainly consists of carbs, won't eat much else as textures seem to upset him. He has a few apraxia symptoms (adding omegas and probiotics have helped speech). A month ago his pediatrician ran blood tests - he has Mono and Immunoglobulin A is low. We're looking for natural remedies as I'm scared to death the doctors will soon want to pump him with prednisone and steroids. Any recommendations appreciated.


Airborne Pathogens and Idiopathic Diseases
Posted by Susan Mcintyre (Dallas, Tx) on 07/11/2018
5 out of 5 stars

Airborne Pathogen and Idiopathic Diseases

Hello,

I can't remember if I already contacted you but this common but overlooked airborne pathogen is known to cause rheumatological syndromes (during a large outbreak of over 100,000 victims in Indianapolis) and this type of microorganism has been suspected for decades to cause gout:

https://pdfs.semanticscholar.org/f1b7/6b287b9595328716016b6815473714e3e532.pdf

Some online documents state this cancer-causing, mental illness-inducing airborne pathogen that can cause so many idiopathic diseases/conditions/symptoms is not zoonotic. That's wrong! It's carried by bats and shed in their feces. The bats even evolved to deal with the photophobia and tinnitus the pathogen causes by hunting at night by echolocation.

My coworkers and I, all immunocompetent, got Disseminated Histoplasmosis from roosting bats, that shed the fungus in their feces. The doctors said we couldn't possibly have it, since we all had intact immune systems. The doctors were wrong.

This underdiagnosed airborne infectious disease mimics the flu and can cause hematological malignancies, precancerous conditions, rheumatological diseases, connective tissue diseases, heart disease, autoimmune symptoms, inflammation, adrenal insufficiency, seizures, migraines, hydrocephalus, hallucinations, etc., etc. etc. and is often undiagnosed/misdiagnosed in immunocompetent people.

More than 100 outbreaks have occurred in the U.S. since 1938, and those are just the ones that were figured out, since people go to different doctors. One outbreak was over 100,000 victims in Indianapolis. 80-90+% of people in some areas have been infected, and it can lay dormant for up to 40 years in the lungs and/or adrenals.

It's known to cause hematological malignancies, and some doctors claim their leukemia patients go into remission when given antifungal. My friend in another state who died from lupus lived across the street from a bat colony. An acquaintance with alopecia universalis and whose mother had degenerative brain disorder has bat houses on their property.

Researchers claim the subacute type is more common than believed and that many children in California have the subacute form. It's known to at least “mimic” autoimmune diseases and cancer and known to give false-positives in PET scans. But no one diagnosed with an autoimmune disease or cancer is screened for it. In fact, at least one NIH paper states explicitly that all patients diagnosed with sarcoidosis be tested for it, but most, if not all, are not. Other doctors are claiming sarcoidosis IS disseminated histoplasmosis.

What if this infection, that made us so ill, isn't rare in immunocompetent people? What if just the diagnosis is rare, since most doctors ignore it?

Older documents state people who spend a lot of time in a building with roosting bats and in caves are known to get Disseminated Histoplasmosis, but the info appears to have been lost, for the most part. And now bat conservationists encourage people to leave bats in buildings/homes. What a terrible mistake they've made.

This pathogen parasitizes the reticuloendothelial system/invades macrophages, can infect and affect the lymphatic system and all tissues/organs, causes inflammation, granulomas, and idiopathic (unknown cause) diseases and conditions, including hematological malignancies, autoimmune symptoms, myelitis, myositis, vasculitis, panniculitis, dysplasia, hyperplasia, etc. It causes hypervascularization, calcifications, sclerosis, fibrosis, necrosis, eosinophilia, leukopenia, anemia, neutrophilia, pancytopenia, thrombocytopenia, hypoglycemia, cysts, abscesses, polyps, stenosis, perforations, GI problems, hepatitis, focal neurologic deficits, etc.

Many diseases it might cause are comorbid with other diseases it might cause, for example depression/anxiety/MS linked to Crohn's. (It's known to “mimic” inflammatory bowel disease.)

The fungus is an Oxygenale and therefore consumes collagen. It's known to cause connective tissue diseases (Myxomatous degeneration?), rheumatological conditions, seizures, and mental illness. Fungal hyphae carry an electrical charge and align under a current. It causes RNA/DNA damage. It's known to cause delusions, wild mood swings (pseudobulbar affect?), and hallucinations. It's most potent in female lactating bats, because the fungus likes sugar (lactose) and nitrogen (amino acids, protein, neurotransmitters?), releasing lactase and proteinases to obtain them. What about female lactating humans…postpartum psychosis (and don't some of these poor women also have trouble swallowing)? The bats give birth late spring/summer, and I noticed suicide rates spike in late spring/early summer. It's known to cause retinal detachment, and retinal detachments are known to peak around June-July/in hot weather. A map of mental distress and some diseases appear to almost perfectly overlay a map of Histoplasmosis. Cancer is known to occur more often near rivers than in mountains or deserts, just like this infection. Johns Hopkins linked autism to an immune response in the womb. Alzheimer's was linked to hypoglycemia, which can be caused by chronic CNS histoplasmosis.

The bats eat moths, which are attracted to blue and white city lights that simulate the moon the moths use to navigate, so diseases in cities would be expected to increase. Bats feed up to 500 feet in the air and six miles away in any direction from their roost, but not when it's raining or when the temperature is less than approximately 56° F. The fungus can grow in bird feces, but birds don't carry it because their body temperature is too high, killing the fungus.

I believe the “side effects” of Haldol (leukopenia and MS symptoms) might not always be side effects but just more symptoms of Disseminated Histoplasmosis, since it causes leukopenia and MS symptoms. What about the unknown reason why beta receptor blockers cause tardive dyskinesia? The tinnitus, photophobia, psychosis “caused” by Cipro? Hypersexuality and leukemia “caused” by Abilify? Humira linked to lymphoma, leukemia and melanoma in children? Disseminated Histoplasmosis is known to cause enteropathy, so could some people thought to have nonsteroidal anti-inflammatory drug enteropathy have it and taking NSAIDs for the pain/inflammation it causes, and the NSAIDs aren't the actual culprit?

From my experience, I learned that NO doctor, at least in DFW, will suspect subacute and/or progressive disseminated histoplasmosis in immunocompetent people. Some doctors, at least the ones I went to, will actually REFUSE to test for it, even when told someone and their coworkers have all the symptoms and spend a lot of time in a building with bats in the ceiling. Victims will be accused of hypochondriasis. (My doctors told me only farmer's or AIDS patients get it, it's only in bird feces, and it always infects the lungs...wrong, wrong, and wrong!) In fact, the first doctor to diagnose me was a pulmonologist, and the only reason he examined me was to try to prove that I didn't have it, when I really did. No doctor I went to realized bats carry the fungus. And NO doctor I went to in DFW, even infectious disease “experts, ” understand the DISSEMINATED form, just the pulmonary form, and the only test that will be done by many doctors before they diagnose people as NOT having it is an X-ray, even though at least 40-70% of victims will have NO sign of it on a lung X-ray. It OFTEN gives false-negatives in lab tests (some people are correctly diagnosed only during an autopsy, if then, after obtaining negative test results) and cultures may not show growth until after 6-12 weeks of incubation (but some labs report results after 2 weeks).

One disease of unknown cause that could be caused by Disseminated Histoplasmosis: I suspect, based on my and my coworker's symptoms (during our “rare” infectious disease outbreak) and my research, that interstitial cystitis and its comorbid conditions can be caused by disseminated histoplasmosis, which causes inflammation throughout the body, causes “autoimmune” symptoms, and is not as rare as believed. I read that “interstitial cystitis (IC) is a chronic inflammatory condition of the submucosal and muscular layers of the bladder, and the cause is currently unknown. Some people with IC have been diagnosed with other conditions such as irritable bowel syndrome (IBS), fibromyalgia, chronic fatigue syndrome, allergies, and Sjogren's syndrome, which raises the possibility that interstitial cystitis may be caused by mechanisms that cause these other conditions. In addition, men with IC are frequently diagnosed as having chronic nonbacterial prostatitis, and there is an extensive overlap of symptoms and treatment between the two conditions, leading researchers to posit that the conditions may share the same etiology and pathology.” Sounds like Disseminated Histoplasmosis, doesn't it?

My coworkers and I were always most ill around May, presumably since the Mexican Free-tail bats gave birth in Texas during May (and the fungus was most potent), and late fall/Thanksgiving to December, for some unknown reason (maybe migrating bats from the north?). We had GI problems, liver problems, weird rashes (erythema nodosum, erythema multiforme, erythema marginatum/annulare, etc.), plantar fasciitis, etc., and I had swollen lymph nodes, hives, lesions, abdominal aura, and started getting migraines and plantar fasciitis in the building, and I haven't had them since I left. It gave me temporary fecal incontinence, seizures, dark blood from my intestines, tinnitus, nystagmus, blurry vision/floaters/flashes of light, benign paroxysmal positional vertigo, isolated diastolic hypertension, what felt like burning skin, various aches and pains (some felt like pin pricks and pinches), tingling, tremors, "explosions" like fireworks in my head while sleeping, and temporary blindness. Suddenly I was allergic to Comice pears (latex fruit allergy or oral allergy syndrome?). I had insomnia (presumably from the fungus acidifying the blood, releasing adrenaline) and parasomnias. It felt like strong bursts of electrical shocks or steady electrical currents in my body, which now feel like low electrical currents at times, mostly at night. I was always worse at night (because bats are feeding? Or maybe because fungus follows a circadian rhythm?).

I suddenly had symptoms of several inflammatory/autoimmune diseases, including Fibromyalgia, Sarcoidosis, ALS, MS, Sjogren's syndrome, etc. that have disappeared since leaving the area and taking nothing but Itraconazole antifungal. No one, including doctors (we all went to different ones), could figure out what was wrong with us, and I was being killed by my doctor, who mistakenly refused to believe I had it and gave me progressively higher and higher doses of Prednisone (2 years after I already had Disseminated Histoplasmosis) after a positive ANA titer, until I miraculously remembered that a visiting man once told my elementary school class that bats CARRY histoplasmosis. There's a lot more. I wrote a book about my experience with Disseminated Histoplasmosis called “Batsh#t Crazy, ” (now you know where that term, “bats in the attic/belfry, ” and “going batty” came from) because bats shed the fungus in their feces and it causes delusions and hallucinations, I suspect by the sclerotia fungal mycelia can form emitting hallucinogens (like psilocybin and dimethyltryptamine) along with inflammation in the CNS. (Schizophrenics have 2X of a chemical associated with yeast, part of the fungal life cycle.)

Thank you for your time,

Susan McIntyre

P.S. Doesn't this infection share all the same symptoms with Gulf War Syndrome?

Supplements
Posted by Rebecca (Mn) on 07/10/2018

Superb post.. thank you.

Rebecca


Borax
Posted by K'c (Chicago) on 06/15/2018

I was wondering would this borax and magnesium work for RA? If so what are the proper doses of each? Thank you.


Bicarbonate of Soda
Posted by Beth (London, England) on 05/29/2018
5 out of 5 stars

Sodium bicarbonate (called baking soda in USA) was recently reported as a possible cure for autoimmune diseases.

The study was on rodents but some healthy student volunteers were also followed for 2 weeks in a small human study. After taking 0.5 tsp bicarb dissolved in water every day for that time their immunity was pronounced to be improved. I can report that following this regime for 4 weeks has produced no noticeable effect. Symptoms are unchanged. As ever, one wonders whether those humans studied had a healthy diet/lifestyle to begin; otherwise the bicarb could simply be countering an acid diet.


Gluten Free Diet for Polymyositis
Posted by Angela (Bloomfield) on 04/07/2018
5 out of 5 stars

Go Gluten Free for Lupus and other autoimmune diseases

My son was diagnosed with an autoimmune disease that I had never before heard of. It's called polymyositis. This disease caused the protein in his blood to rise to 11000. The norm for men is 200. He developed all type of symptoms, swollen joints, dry eyes, rashes all over his body, liver infection, water in his lungs and around his heart. He was hospitalized for a while and was treated with high doses of steriods. He did better after the steriods but I had concerns about the side effects of the steriods. I prayed to God every day to help me to help my son.

One day out of the blue an email about autoimmune diseases and gluten pop up in my email. That was the answer. My son has been gluten for 4 months and he is doing fine. No more steriods. If he accidentally eat something that contained gluten, he knows within half an hour.


Scleroderma
Posted by Becky (Ca) on 03/12/2018 32 posts

Please update us on the Ultraviolet Blood Irradiation for Scleroderma.


Borax
Posted by Elzee (Alberta) on 01/28/2018
5 out of 5 stars

First off, thank you for this site and information. I've suffered various autoimmune (AI) symptoms for nearly 2 decades. I'm largely anti-prescription- they just seem to trade one problem for another. I respond strongly to Rx & OTC drugs. After much research, I started oral Borax at the “maintenance" dose (5.5 grams (1.25 tsp) in a litre of water, then 1 tsp of the solution twice a day with magnesium).

In one day, my hoarse voice (thyroid symptom) of years returned to normal and my stomach feels relaxed. I'll continue with this low dose as long as it's effective but I personally know two severely arthritic people (with other AI problems) who take the large therapeutic dose with incredible success. I'm looking fwd to more symptoms disappearing, and plan to report back soon.

Autoimmune Paleo Protocol
Posted by Valleygirl (Chicago, Illinois) on 11/01/2017

Hello. I suffer from many different ailments all autoimmune related. When I was just 5 years old (i am in my 40's now) I contracted Henoch Scholein Purpura...another autoimmune disease. Then a year after the HSP, I contracted allergies and asthma. As an adult, no MD EVER thought to look back on those autoimmune issues. Instead, they pumped me up full of prescription narcotics and antidepressants. I have severe pain and inflammation and sometimes couldn't get up out of bed. I get various rashes often, I suffer from sinus polyps, joint pain, kidney stones and infections, and major digestive issues. All of that coupled with the heavy prescription drugs and regular use of ibuprofen, everything came to a head. Of course, I was diagnosed incorrectly numerous times and given so many prescriptions, that I just took it into my own hands. I thought, I am a smart girl, I have a masters degree, I can figure this out. And I did! I tried the Autoimmune Paleo Protocol. It's not easy. It sucks big time, honestly. There is a lot of information on line and in your local library about the AIP. The most important thing is that all of your food is organic, and in cases of meat, grass fed or pasteurized. So while you go through this Autoimmune Paleo Protocol, you will find immediately what works and doesn't work FOR YOU. I wholeheartedly believe that food is personal. Each person is different. I also took it a step further and visited a naturopath doctor. She did food intolerance testing on me, and that helped as well. I am not cured. But, I do live a MUCH better, less painful, more productive life. I also do not see any doctors, ever. That, again, is my choice, and yours may be different, and it may work for you! That is great, but they don't work for me. I have found that grains are the devil. Anytime I eat any type of grain, I am in pain. That would be the importance of getting grass fed meat. I use all organic everything. I make all my own soaps, shampoos, and cleaners. I use essential oils. My life has changed drastically. I don't go out to eat much, and I don't drink alcohol at all anymore. Like I said, this can really suck. Considering, though, what I used to feel like, this is all worth it. I don't take any prescription drugs either. I use turmeric for my menstrual cramps, and don't even take ibuprofen. This website is amazing and I feel blessed to have found it. Thank you to all who contribute.


Steroids
Posted by Ozgur (Turkey) on 09/11/2017

Hi

Your response is important to me because my mom has a Pemphigus Vulgaris and using 8 mg prednol and 150 mg immuran daily.

Ganoderma lucidum is a option to cure this ill? If it reinforces the immun system, it could empower the illness also. I need a solution that modulates the immune system to discreminate antigens.


Autoimmune Paleo Protocol
Posted by Charity (Faithville, Usa) on 09/06/2017

You might want to read Dr. Batmanghelidj, your body's many cries for water

Dehydration is the reason the body creates histamine. Dehydration is not just cured with water but minerals in balance with water

Rashes can be caused by histamine

I learned all this the HARD WAY.


Autoimmune Paleo Protocol
Posted by Joan Hargens (Rosemount, Mn) on 09/06/2017

What is with the rashes? I have had them show up sporatically on feet and legs. No dr whether functional or medical could tell me the cause. I have Hashimotos. Raynaurds, and Sjogrens. Just found out that I have Candida and SIBO. 7 years on the journey.


Steroids
Posted by Jan (Busselton, Western Australia) on 07/02/2017

To Melissa of Medford - yes, my blood sugars were up just above the threshold for Diabetes II and crept up a moderate amount while on Predenisolone but not to the extent of having to take medication for Diabetes (just made sure I watched my diet - low GI foods etc.). In the interim I learnt a lot Googling Prednisolone and decided to wean myself off it, UNDER MEDICAL SUPERVISION and hey presto my blood sugar levels dropped like a bomb to a safe level, to almost non-diabetic if that's possible! It doesn't take long to wean off Prednisolone but I stress it must be done, otherwise your body won't know how to make it's own insulin and that means trouble.

Dapsone costs AUS$103.00 for 100 tablets, however I do get them for very little (about AU$6.00 on our national health scheme.)

If you do Google Dapsone and its side effects, don't get frightened off because to my mind the alternative drugs that are on offer I consider to be worse than the disease itself. All drugs have side effects, you just have to weigh up the pros and cons.

If you want to chat further away from here, I can give you my email address. All the best and good luck.


Pemphigus Foliaceus Remedies
Posted by Jan (Busselton, Western Australia) on 06/30/2017

I weaned myself off prednisolone a few years ago, but do take Dapsone which I have found has the least "nasties" amongst all the other drugs available for this condition. Dapsone only keeps my pf "under control" (I still have lesions but not as bad as they could be) and I reckon that with all the other drugs available with horrible side effects that it's a case of the cure being worse than the disease! So far, after quite a few years on Dapsone I'm not experiencing any side effects at all. I am going to do a trial run of Apple Cider Vinegar on a couple of lesions to see if it cleans them up.


Steroids
Posted by Melisssa (Medford, Or) on 06/25/2017

Jan,

I'm curious did you have any symptoms of high blood sugars while taking these meds?

My mom now has diabetes from all the prednisone usage due to her pemphigus foliaceus, and her doctor is trying to wean her off of it.

Are the drugs you're using very expensive?

Looking for alternatives in Oregon,

~Melissa


Dietary Changes
Posted by Princess Joy (Md) on 02/28/2017

Thank you so much for this!


LDN
Posted by Jeff (New Zealand) on 02/19/2017
5 out of 5 stars

Look up LDN. I have PMR and was on Prednisone but had a few side effects and found LDN. I have been on it about 6 week and has seemed to have helped no longer on prednisone. LDN is a bit of an eye opener and has helped many with autoimmune problems.


Dietary Changes
Posted by Denise (Tennessee) on 02/08/2017

I have read other posts saying the same thing about the prednisone but my gastro has only put me on Vitamen E, 400 mg twice a day. My primary care doctor also likes that treatment as well. My bloodwork is all ok.


Antiphospholipid Syndrome Remedies
Posted by Hilda Wilson (Longmont, Colorado) on 11/22/2016

For anyone with blood clots or circulation problems get vitamin E complex. I take 1,000-1,200 IU a day and have for about 35 years. Without this I get blood clots in my leg and cramps in my legs and feet. I use the 400 IU bottles.


Turmeric
Posted by Tom (Los Angeles) on 11/15/2016

Thanks Mmsg. I will add good fats to her diet.


Turmeric
Posted by Mmsg (Somewhere, Europe) on 11/15/2016

Tom, turmeric also needs oil for it to work. And in general, you might try adding more good fats to her diet: avocado, virgin olive oil, organic coconut oil (the ones that smell like coconut! ).


Antiphospholipid Syndrome Remedies
Posted by Janice (Ca) on 11/14/2016

I have anitiphospholipid syndrome. Diagnosed 13 yrs ago. I just take a baby aspirin every night. That's what was recommended and haven't had any issues.


Turmeric
Posted by Tom (Los Angeles, California) on 11/14/2016

Hi,

This earthclinic.com has been a wonderful site for me and am a regular reader since last 10 years. I am sure all your feedback and comments have helped tremendous people with their conditions including me. I am a big fan of this website.

I wanted to know if anyone can share the benefits of using Turmeric for Auto Immune Diseases like Crohn's, IBD or Lupus. I have read on earth clinic and multiple other sides the benefits of turmeric.

I have been giving turmeric to my 10 year old DD who has been diagnosed with some Auto Immune Disease but doctors are not 100% sure whether it is Crohn's, Lupus, IBD or Arthritis. I take 1 teaspoon of turmeric powder and put some black pepper in it and feed her with water. She gulps it down easily but haven't noticed any benefit in her health so far. On the request of doctor we have been doing blood test every 2 weeks but her

Her diet has been pretty healthy and mostly vegetarian food. She is not eating any sugar, no wheat, no soy, no milk and no potatoes . She eats lot of homemade yogurt, all vegetables, fruits, rice and some pulses.

She has been loosing weight and we are very much concerned. I would really appreciate if someone can throw more light on turmeric and how to use it and has it benefitted someone with these conditions. She is on prescribed medications since last 6 months but we haven't seen much progress in her. Overall she does not have any issues related to Crohns or Lupus or IBD or Arthritis . She is not gaining any weight or height.

I would really appreciate for your help and reply. Thank you.

Please help.

Antiphospholipid Syndrome Remedies
Posted by Jan (Minnesota) on 10/22/2016

I came upon this by accident and couldn't help but read your post and feel compelled to offer an idea. I don't know if you have heard of the amazing effects of Vit K2 therapy in blood clotting disorders. I'm unfamiliar with your syndrome so I may be speaking from ignorance. Dr. Mercola has reported quite a bit about K2 in its proper form (big key). Life Extension Foundation is another excellent resource.

Allopathic medicine, though it has its place, only offers band aid solutions with toxic drugs. I would encourage you to seek out if possible an Integrative physician if you can afford it. It isn't cheap but sometimes if the doctor really wants to help, they will work with you financially. I sincerely wish you the best in your quest for health.


Antiphospholipid Syndrome Remedies
Posted by Claudia (Nc) on 08/11/2016

I'm sorry about your illness. I have suffered from immune System disease since some time ago. First it attacked my thyroid, right now my skin and joints. I love to search about natural medicine so, I have learned a few things and as far as I know cumin, turmeric and ginger are blood thinners. There is something you have to be careful about and it is that some veggies are doing the opposite and interfere with your blood thinner medicine. Some of those are broccoli, kale, spinach. You can search at those as anticoagulant antagonist. Doctors do not give notice of those and it is very important.


Supplements
Posted by Frances (Cabarlah, Australia) on 06/30/2016

Further to Mike's comment: two months ago I consulted a naturopath (the 3rd) after 2 GP's and 2 dermatologists for the GA. This naturapath told me that GA is autoimmune and that 80% of all autoimmune disease is due to leaky gut. I am also hypothyroid. So, after bowel cleanse and eliminating all gluten, & rice, corn, dairy, sugar, I am taking a probiotic as well as a powdered drink to heal the digestive tract. It may be a slow process, but I haven't been well for 50 years.


Scleroderma
Posted by Seth (Cinebar, Wa.) on 06/11/2016
5 out of 5 stars

Ultraviolet Blood Irradiation or UBI therapy. My naturopath says he has amazing results with this therapy for his scleroderma patients. I asked because my aunt has scleroderma. I wanted to share. The earlier you start the better.

Pemphigus Foliaceus Remedies
Posted by Melissa (Medford, Oregon) on 05/23/2016

My mom, who was diagnosed with the condition in June of 2015, is working with a doctor who's prescribing low-dose naltrexone while weaning her off of the prednisone she was place on during her hospital stay.

She takes 4 mgs at bedtime daily. I read that she has to take it between the hours of 9:00 PM and 3 AM (it works in conjunction with serotonin), but she hasn't been doing that as she often gets to bed around 2:00 AM. We're working on her getting to bed earlier as she hasn't been noticing any changes with it controlling pustules and itching. Timing is everything, I guess.

It's a S-L-O-W acting drug as we're told it could take a long time before it finally works.

Her doctor said she's working with another patient who is taking low-dose naltrexone, and it's taken 4 years for it to finally calm her patient's immune system down.

A lot of doctors don't like prescribing it, because they see it as only being implicated for substance abuse patients withdrawing from the effects of alcohol. As a result, most insurance co.'s won't cover it because it's not FDA approved.

However, there have been studies done that show its effectiveness in patients with pemphigus foliaceus. I'd recommend searching for "naltrexone and autoimmune diseases" or "pemphigus foliaceus" in Google to find the specific studies. They're out there!

I hope this helps and good luck!


Dietary Changes
Posted by Dawn (Nevada) on 05/11/2016
1 out of 5 stars

I have been following the Paleo diet for nearly three years now and was diagnosed with an auto immune disease two and a half years ago. Unfortunately I have not found this diet to be helpful in alleviating my symptoms (although on the bright side I've lost 45 pounds)


Steroids
Posted by Cora (California) on 04/29/2016

I just got a Biopsy yesterday. The biopsy is being sent in for Pemphigus (skin disease presenting as watery blisters.) I have been off and on sick for about 3.5 years. I get large open sores on my legs and arms. They start out as little dots and then open and eat my flesh. I have been to the ER several times and they ask if I am a Heroin user (no, I am not). I have had a tons of blood work, all my levels are great. So I gave up and continued to get these sores and deal with it. I also would suffer from fatigue, bone and muscle aches and chills. People thought I was over reacting. I have been reading on the causes and notice there was a few articles on Vaccines for adults that had a link to lupus, MS and other autoimmune diseases.

This being said, I thought back to when this issue started. It started not too long after I started working at a California UC Hospital. In order to work there you must be up to date with Vaccines. I had MMR, TDP, TB tests and I want to say there was one more. I never get the Flu shot and I never take antibiotics. I'm started to wonder if this could be a contributing factor to my scenario......


Vaccine Adjuvants
Posted by Ben (Bremerton Wa ) on 03/21/2016

Auto immune disease, a rapidly increasing global problem .

Your doctor tells you it is all in your head, you are just a hypochondriac imagining you have such severe problems. Maybe you just want attention. Maybe you are depressed and feel like wasting your doctors valuable time to treat a disease that does not exist. Perhaps you should go home take your antidepressants and speak to a psychiatrist

Or maybe you have an autoimmune disease.

Where did it come from? how did I get it? The answers may shock you.

A Glimpse into the Scary World of Vaccine Adjuvants - Http://vaccinechoicecanada.com/vaccine-ingredients/a-glimpse-into-vaccine-adjuvants/.


Pemphigus Foliaceus Remedies
Posted by Kumari (West Indies) on 02/26/2016

Diagnosed and being treated for Pemphigus Foliaceus since 2014, please share any information regarding the use of alternative medicine, prednisone poses more threats than cure!


LDN and Medicinal Mushrooms
Posted by Rsw (Oh) on 02/18/2016

Hi Karen,

The company that was used by the person with MS for the Lion's Mane is here:

http://mushroommatrix.com/store/mi/nrg-matrix-ingredients

This product is offered on many other health store sites as well as this one. Best wishes.


LDN and Medicinal Mushrooms
Posted by Karen (Usa) on 02/18/2016

What company makes those mushrooms? All your post says is M----- Mushrooms. Thank you.


Dietary Changes
Posted by Bcaru (Bristol, Ct) on 02/18/2016

It's also important that the cows are grass fed, and they they don't get injected with steroids, or other things such as antibiotics. I read a book by Dr Bragg and he pointed out that humans do not need milk. Humans are the only creature on earth that continue to drink milk after we're weaned and that continuosly drinks milk from other animals. Milk has no good purpose in the health of humans. If you must drink milk, there are better forms from plants. Coconut, hemp, and others. Stay away from soy though. Good luck.


Viral Link to Autoimmunity
Posted by Linda (Calif, Us) on 07/03/2015

I am so pleased to find this site! Great information/ideas shared here. About 4 years ago I was finally diagnosed with autoimmune and then helped by my DO. No thanks to the 6 MDs (you know the story). I had psoriatic tendonitis, psoriasis, pre diabetic, GI problems, sleep problems, urinary issues, mind fuzz and general fatigue. After eliminating foods, taking supplements and probiotics, I got noticeably better. My present (?) hurdle appears to be the systemic Candida infection which I am still working on that trips the arthritis. My next question was why? My father's family live long but not well, so part may just be genetics. My theory is that we have very good immune systems that are actually trying to protect us from invaders. Something trips our system, virus, chemicals, foods, vaccines. But by trying to do this we end up attacking ourselves with resultant auto-immune symptoms. However, I chanced upon info that many of us got polio vaccines in the late 1950s-early 1960s contaminated with a retro virus called Simian Virus 40 that was not sterilized out. (Look up Merck/polio/SV40) The CDC finally admitted it but says it is harmless. Research also shows that many people who never got the vaccine carry parts of SV40. They believe it was spread (by urine) and would indirectly protect the non-vaccinated from polio. Traces of this virus is showing up in a variety of cancers:certain brain, lung, bone, non-hodgkins lymphoma and they are researching others. There is even research on making a SV40 vaccine, gee wonder why. I take no meds, but do avoid wheat, sugars, and those listed on my food allergy panel. I take a wide variety of sups and can tell when I am neglecting myself. Be strong and know we are the tip of the epidemic, at least we are sharing and trying to help ourselves even though "established practitioners" want to feed us pharmaceuticals and make us feel it is our fault.


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 05/09/2015

Hi Deborah,

In answer to your question about how to drink CS...

I make my own and dilute to about 30 to 40 parts per million. I drink that as is, without more dilution.


Viral Link to Autoimmunity
Posted by Deborah (Nj) on 05/08/2015

Hi Dave, do you mix the Colloidal Silver with water or just drink 1/4 cup straight?


Antiphospholipid Syndrome Remedies
Posted by Nmax (US) on 04/21/2015

I came across this article that could cure many sufferers of autoimmune disorders by simply eliminating wheat and possibly dairy from your diet: http://www.faim.org/autoimmune/root-cause-autoimmune-disease.html

Get the word out to others who are suffering.


Antiphospholipid Syndrome Remedies
Posted by Julie (Swfl) on 03/07/2015

If you can't afford your medications, in most cases you can get them directly from the pharmaceutical company that makes them. There are forms to be filled out, but it can save you a lot of money. Go to: RxAssist.org for a relatively comprehensive list, but if the company whose medication you take isn't there, it doesn't mean they don't have a Patient Assistance Program. Call them and ask!


Dietary Changes
Posted by Mactwo (Beatty, Oregon) on 03/01/2015

Auto-Immune Disease is another name for Vitamin Deficiency Disease and makes the immune system is incapable of defending us from parasites, diseases and toxins.

Most spices are very nutritional and many are medicinal. Makes very interesting research.

Quote, Dr F R Klenner, " white blood cell without adequate vitamin 'C' is like soldiers without bullets". dez...


Dietary Changes
Posted by Gupta (Houston, Tx) on 03/01/2015

For RA, Curamin BCM-95 formulation has been found useful. It is a turmeric based product. My wife feels that she has benefited from it.


Antiphospholipid Syndrome Remedies
Posted by James222 (New Hampshire, US) on 11/23/2014

Hi, I was sorry to read of your illness, you might want to target your research towards Hawthorne, you can get it in tincture form and add it to 8oz of water, as with ANYTHING new best to start small and go slow, by that I mean start with a small does to see how you react.

Good Luck, James


Scleroderma
Posted by Sandra (Cork, Ireland) on 11/16/2014

Hi,

I've read recently that DMSO was very helpful for this. A lady gave an account in senate about DMSO reversing it. This isn't a first hand account though but worth researching more I'd say. Good luck!


General Feedback
Posted by Carrissa (Wisconsin, US) on 10/08/2014

That's exactly what birth control does. It makes the body think it's pregnant and lowers immune function. That's why so many women get autoimmune diseases.


N-Acetyl Glucosamine
Posted by Char (East Coast) on 07/09/2014
4 out of 5 stars

My mom has had her life-long psoriasis almost disappear from taking N-Acetyl Glucosamine (N-A-G). I read that it was recommended for autoimmune diseases such as Crohn's and Rheumatoid Arthritis. She has had psoriasis, psoriatic arthritis, and digestive issues for years. After 4-5 months of 1400mg 2xs a day, her digestion is much better and her psoriasis is almost gone. She will keep taking it, to see if the joints improve over time. She started seeing an improvement in 3-4 weeks. I hope this helps someone else!


Antiphospholipid Syndrome Remedies
Posted by Emanr (Nyc) on 06/22/2014

Hi. I have a very different blood clotting disorder. I have Anti-phosphilipid syndrome due to my Lupus. Its been an issue for 14 years. I've been on 3 different blood thinners. Coumadin was to up and down, Arixtra wasn't always working right and I got a clot in my eye. So they changed me to Lovenox. But because I was so stressed out last year, my meds didn't work and they had to amputate both my legs because of clots in my feet.

Although the lovenox works well, it's very expensive. I've been thinking about trying to do it naturally with the molasses and cayenne pepper, but I don't know if its too dangerous because of how erratic my health has been. My lupus is my worse enemy most of the time.

I've also been looking into getting a blood monitoring machine but those are very expensive. I think it might be worth it to try. Or go to bellevue a few times a week, which is also expensive and annoying. Also, the insurance company is giving me hell because its so expensive.

What do you think? Should I try the natural way and see how it works out, while my docs watch or stay with the meds?

Thanks.


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