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Lichen Sclerosus Remedies


Multiple Remedies  

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Posted by Jill (Dallas, Tx) on 12/27/2010
4 out of 5 stars

Lichen Sclerosus is a condition that I self-diagnosed myself with a few years ago, after much internet research and no help from my doctor. This is still such a mysterious condition, with little concrete medical data out there to refer to, but here are some of my observations and some things that have helped me quite a bit.

First, I believe that it is caused by hormone imbalance and/or auto-immune issues. Most people notice their symptoms begin with hormone shifts. For me, it was at the beginning of peri-menopause, and came along with other, more common symptoms of that. Along those same lines, the symptoms are always worse at the end of my cycle (pre-menstrually) and better towards the beginning of the cycle. Also, I notice my symptoms flare up (and have heard others report the same) when my immune system is run down or strained, especially if I'm fighting a virus (cold, etc... ). Interestingly, as several others here have mentioned, I also have a history of adrenal fatigue/chronic fatigue. So seeking natural hormone balance and a healthy, balanced immune system are, in my opinion, key to going into permanent remission.

Topically, I have found the most success with a cream called Perrin's Cream Complete, found on the Perrin's website (you'll find it if you google it). It immediately relieves discomfort and seems to help quite a bit overall with other symptoms. It is a soothing antioxidant cream that is very healing as well. It was originally developed to help prevent and reverse skin cancer, so for a condition with an increased cancer risk associated with it, this cream is a good one to have on hand. Also evening primrose oil has been helpful topically.

I have tried to adopt an anti-inflammatory diet to help with the auto-immune aspect: no sugar (very inflammatory and noticeably worsens LS), fried foods, junk foods, processed foods/fast foods, margarine or shortening. About a month ago I also eliminated gluten (mostly found in wheat) and either it's a coincidence, or that was truly helpful because it's better now than it's been in years. A whole foods diet that is loaded with vegetables and healthy fats and protein (which includes SATURATED fats: coconut oil, eggs, butter and meat from healthy, pastured cows, etc... ), fish, krill, or cod-liver oil, and low on grains (especially wheat). Try to eat more like your great-grandparents ate and you'll be doing much better than if you follow the USDA food pyramid! The Weston A. Price Foundation has great info on healthy traditional diets and how our modern, western diet and food preparation has damaged our health (westonaprice.org). Learning about food sensitivities/allergies would also be essential for reducing systematic inflammation. If you can't afford allergy testing, try checking your pulse before and after eating suspected foods. If you notice a marked rise in your pulse after eating a particular food, you are probably sensitive if not allergic to it.

Also avoiding chemicals as much as possible in your environment (cleaning products, unfiltered city water), and food (genetically modified and/or pesticide laden foods) is also important. I know there are lots of supplements that help with inflammation: turmeric, fish oil (or krill or cod liver), vitamin D3 (current recommendations are extremely low, so probably around 5, 000 mg. daily, or better yet, get your levels tested and aim for therapeutic levels--check out http://mercola.com for more info on vit. D), and many more.

There are also supplements designed specifically for reducing inflammation. Chinese mushrooms and herbs have been used with incredible success for a variety of inflammatory conditions, so that would sure be worth checking out. Fungi Perfecti has a product line called Host Defense and a product in that line called My Community that looks very intriguing. It's a very reputable company and scores of people with serious immune and/or cancer issues swear by their products. http://iherb.com seems to have the best prices. Searching out anti-inflammatory diet and supplements should provide lots of good ideas. Hopefully there's something of use in all that!

If I discover a magic pill, I will certainly share my discovery, but my guess is that it's really about getting your hormonal and immune systems balanced out, which involves a more holistic approach to diet and lifestyle than what one pill can provide.

Replied by Sherry
Roanoke, Va
01/23/2011
I have had LS for 7 years. I was diagnosed during the 7th month of my first pregnancy. I have tried so much of what is listed here. I also began using the Perrin's Cream about six months ago. It is by far the most helpful thing that I have tried. I am having a flare up now (that is driving me MAD), and I have had to use the steriod cream, BUT what I find is that the Perrin's Cream seems to help restore health to the damaged skin (by the disease and the steroid creams). Healthy diet is crucial. I am a health nut... When I have a flare up, it is usually linked to STRESS! Stress reduction and dealing with it well is crucial. I struggle with this! I will say that since using the Perrin's Cream, I have only had one flare up. Use the CREAM, not the ointment! The ointment is TOO strong and will burn! You are not alone. I am sorry that all of you are dealing with this also.
Replied by Kim
Effingham, Il Usa
07/01/2011
5 out of 5 stars
Jill from TX:

Your advise is EXCELLENT!! I have done my research and agree with all. I am a LS suffering soul. Perrins cream and your diet recommendations do help.

That being said, I would like to add to this forum some things that have helped me considerably with my LS.

I am certain that mine is associated with the endocrine/immune system. I have enlarged lymph nodes under arm when I have a flare up. I also have hypothyroid too.

In the last year I found a product called I-26 or hyperimmune egg. Started taking this and have had GREAT results, symptoms are greatly reduced. I am planning on continuing this until I find something else. I also came up with a remedy for the pain/itching. Take Lysine in powder form and add to Aloe Vera. Within seconds the pain itching will be gone. I apply this usually 1x a day and it lasts until the evening.

I have had this terrible disease for 8 years and found the lysine trick in a herpes tx. I just tried mixing it in aloe vera and it works like a charm.

I am not sure what caused mine, but it started after I had a hyster and dx hypothyroid.

Again, the hyperimmune egg is worth trying. Just mix it in with OJ, drink down.

God bless, hope this helps some other women.

Replied by Diane
Nashville, Tn
08/10/2011
Thank you for sharing your remedies. Do you apply the lysine and aloe Vera topically or take it orally?
Replied by Kim
Effingham, Usa
08/17/2011
For the LS to stop the intense itching... Take the lysine powder and mix it in the Aloe Vera and apply topically. You may need to start doing it 3x/day until it puts the fire out, then you will only have to do it daily. It worked for me. Best and stay blessed. This is an awful disease.
Replied by Gem
Melbourne, Australia
08/20/2011
Finally.. A website that gives me some hope. I have written down EVERYone's suggestions and may have to give up work just to manage this LS!! (I wish). But, thanks all for sharing the tips.. I about to embark on a gluten & dairy (&sugar) free diet, see a naturapath AND try many of the 'remedies' on this page. My wish is to stop the steroid creams.. that stop itching but not the progression.. And keep enjoying sex!!
Replied by Louise
Newcastle Upon Tyne, U.k.
07/27/2012
I was diagnosed with LS two years ago. Pure essential lavender oil in the bath has helped me, and also Perrin's cream. Attention to diet, and cutting right back on sugar and yeast products has also helped. I agree that this is a horrible disease, and sometimes I can't believe I have it, but does anyone know how much research is going on to find a cure? What have we all got in common that would trigger this in us?
Replied by Aine
Monaghan Ireland
04/15/2016
What is hyperimmune egg?
Replied by Frances
Cabarlah, Qld.
04/17/2016
Aine, If a person has an autoimmune illness, this would overstimulate the system to attack the body even more.

“Hyperimmune egg is an egg from a hen that has been vaccinated against certain infectious diseases. The hen develops specific antibodies that rev up the immune system to fight the specific diseases included in the vaccination. These antibodies pass into the hen's eggs. People harvest the eggs and remove the antibodies. These antibodies are then used to treat diseases in people.”

“How does it work? – Antibodies contained in hyperimmune egg are thought to stimulate the immune system and help the body fight disease.” – www.webmd.com

Replied by Sara
Monterey, Ca
07/12/2016
I have never used the creams or vagisil and I have lichens sclerosis. I do eat primarily organic foods sourced from local farmers markets along with ranch raised eggs dairy and meat.

I find recent stress has aggravated my lichens, that had been in remission. I will go back to the obgyn for evaluation today.

I will seek more prp treatments and one of the topical treatments on this site. I can't tolerate the steroids. The platelette rich plasma treatment has kept the symptoms at bay for over a year. I will keep my hope and faith that it will push it back into remission. I am afraid I will have to change my work out routine as well. It's a life style thing, I'm afraid.


Neem Oil, Green Tea Extract  

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Posted by Terlyn (Syracuse, Ny) on 12/28/2009
4 out of 5 stars

I have had LS for a few years to the puzzlement of my gyn until September when the white spotting finally appeared. I tried calendula oil then castor oil and now I am in my 2nd week of Neem oil with a green tree extract added 2 or 3X a day. It is messy but it brought me healing relief.

The others brought relief from the itching and bleeding which is a blessing but I want it to heal and not continue to split.


Ozonated Olive Oil  

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Posted by Gertie (Ontario) on 09/14/2015
5 out of 5 stars

Ozonated olive oil has reversed my LS symptoms. I applied it to the labia area and it unfused the labia. I have applied a small amount 3 times daily for three weeks now.

I bought a small jar from a British Columbia company and when you receive it, keep it stored in the fridge. It's okay to ship via unrefrigerated mail though. It looks like solid vaseline. Reasonably priced.

There are many topical uses for this product, from acne to cuts and bruises.


Platelet Rich Plasma Injection Therapy  

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Posted by Ocean51 (Carmel, Ca) on 06/27/2016
5 out of 5 stars

After 5 years of suffering with Lichens Sclerosis, I must share what has given me relief and remission. My husband researched treatments and found an OB/ GYN in a neighboring county, who provides Platelet Rich Plasma Injection Therapy. This is an experimental treatment, and I am the 3rd patient she has treated with "PRP" for Lichens.

The 3 treatments with an out of pocket expense of $800 each have completely cleared all of my itching, Burning and white patches. Upon my follow up exam, my doctor stated she could not tell I had lichens! I do not have a reversal in vaginal tissue elasticity, but I believe my peri menopause contributes to that condition. My 3 outpatient treatments were completed in less than 2 hours each, and were non invasive. The process begins with your own blood draw that is put in a centrifuge for about 15 minutes. The platelet the rich plasma is drawn into a syringe and injected in the affected areas (with a large needle to protect the platelets) OUCH!, but the local helps a lot.

This 3 round treatment over 6 months completely cleared my lichens. No creams, steroids or prayers could do that. I was told to come back every 6 months, and that I may require more treatments. After a year I am still clear. This doctor was the first of 3 gynecologists to actually do a biopsy to confirm lichens sclerosis, I am forever grateful to her for taking the bold steps to help me.

FYI PRP is also known as the O shot and the Vampire Facelift, and is thought to restore healthy tissue and blood flow. Read up on it to see if this is an option for you. I know I would pay almost anything to rid myself of the agony of Lichens Sclerosis.


Shea Butter  

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Posted by Tiya (Bellflower, California) on 04/01/2013
5 out of 5 stars

I have has LS for 5 years now and I'm only 16 years old. So far no doctor has been able to figure out a cure to LS. I've done my own experiments and I've been using Shea Butter for 3 years and I rarely have flare ups or any itching. Though I notice I have more discharge but it's worth not having unbearable itching.


Sitz Baths  

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Posted by Wolf5alpha (Portland, Oregon) on 08/22/2015
4 out of 5 stars

I have recently been diagnosed with lichen sclerosis. I have had severe itching and after trying many things which seem to relieve it for about a week and then it is like it develops some immunity to it, I tried vagisil. This has given me the most relief as a cream. But what has actually been helping to heal it and give much longer relief is sitz baths. I use some epsom salt, lavender, chamomile, comfrey, yarrow, and marigold, steep this in a sitz bag for a bit and add it to a very shallow warm bath. Then I add baking soda to the water and soak for 20-30 minutes. Doing this twice a day is best. This is still very new to me and I'm horrified to find out it is chronic and the damage it causes. I haven't tried the steroid cream yet but after reading the many replies, I'm very concerned about using it at all.


Skin Cream  

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Posted by Vg (Sc, US) on 01/28/2015

Egyptian Magic All Purpose Skin Cream works as well (if not better) then the prescription Clobetasol. It has all natural ingredients so can be used long term with no bad side effects. My OBGYN said that it was ok to use. The thought of using a steroid cream for the rest of my life bothered me. Glad to have found something safe. Buy it at Costco (best price), Whole Foods or online. Just use as often needed.


Vaginal Medication Link to Ls  

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Posted by Kathy (Brisbane, Australia) on 09/10/2009
1 out of 5 stars

Warning
WARNING!

Lichen Scelrosis - theory yet to be proved:

I have a theory that moderate to high use of Vaginal creams for Thrush etc aggravate or possibly even CAUSE LS. The only way to find this out is to get as many women as possible with LS to say whether they have used these creams a lot in the past. I had a history of repeated Thrush and used the creams many times - I notice now that use of these creams aggravate the itchiness and thinness of the area for up to 2 weeks after use. Please post a answer and see if we can 'find' the cause - the Drs have no idea, so....

Replied by Kim
Los Angeles, California
01/07/2010
1 out of 5 stars
WARNING!

Vaginal Meds causing LS symptoms

This is in response to Kathy from Brisbane, Australia:

I have had the same theory for 4 years, that moderate to high use of Vaginal creams for thrush, vaginitis etc aggravate or possibly even CAUSE LS. 6 Months after taking precription medication for bacterial vaginitis the thinning, tearing, itchyness around th vulva area began.

Ladies please be aware when taking such meds.

Best of luck.

Replied by Jami
Roanoke, Va
01/30/2010
I've just been diagnosed with LS, how fun. I have been treated many times in the past for yeast infections and bacterial vaginosis. I believe you may be on to something BIG. I also believe that stress and perhaps past trauma/emotions may have an impact on what is happening now.
Replied by Amy
Tucson, Az
02/22/2010
1 out of 5 stars
I was diagnosed with LS a few years back. Contrary to your theory I had never used any vaginal creams for any ailment.
Replied by Montanamama4b
Billings, Mt
05/08/2010
I read on another website that it is common with LS to be extremely sensitive to any creams that have any of the -parabens in them. This can be methylparaben, propylparaben, etc. Since nearly every single cream out there needs the parabens to make it "creamy", be sure to read the labels very carefully.

Take care!
Replied by Adrianna
Chicago, Il, Usa
07/26/2010
I was diagnosed with LS 10 years ago. It happened shortly after having oral sex. I have used a vaginal cream since then, but off and on. Not on a regular basis. About 2 years ago I had surgery in which I took antibiotics and pain meds. Within 2 months I started noticing some really weird things happening to me that never happened before. Since then I've been researching relentlessly on what could be wrong with me. My conclusion is the antibiotics, drugs, creams etc. . . are bad for us. I have candidiasis because antibiotics not only kill the bad bacteria, but the good. This in return let yeast grow out of control in my body causing skin issues, digestive issues, dizziness, drunkenness, etc. . . I believe the only way to get better is to change your life away from the SAD (Standard American Diet). Eat healthy, meaning fresh fruits (very little), meats and vegetables. Try to buy organic, if possible. The pesticides and hormones sprayed/injected into our foods ultimately get inside us and also affect us. No processed, canned, packaged foods. No lunchmeats, sweets, etc. Obviously it can be very difficult to completely stay away from these foods for the rest of your life. I love sweets so I know. I try to eat healthy 99% of the time though. Educate yourself. Research candidiasis, get on a good probiotic, see if you could benefit from digestive enzymes, fish oils, read the Metabolic Typing Diet, search for Yeast Infection No More online book, how dental work can have you suffering (mercury in your mouth), metal in your body. I recently had an eery feeling my LS was linked to my diet as well as all the other issues I've dealt with in the last year. I believe it is true because when I was following a super healthy diet for 5 months (no dairy, only brown rice pasta, brown rice cakes, brown rice, fresh veggies, little fruit (mainly berries) and protein) NO sugar whatsoever and only drank water or decaf herbal teas, continued to exercise, reduce my stress level and take some supplements I had no anal itching and very little if any vulva pain/discomfort.

I also recently decided to research the cream I've been using over the years for my LS and one of the things it says can occur is folliculitis. Last October I woke up one morning with tiny red bumps all over my legs. I have not confirmed by a doctor that it is folliculitis, because I refuse to have anyone try to make me take any medications/creams (drugs)or antibiotics. I am on a mission to change my life for the better and it involves natural/holistic treatments. Always question your doctor and if you don't believe what they are suggesting it is best for you get a second opinion. I recently had to have my wisdom teeth removed and the first oral surgeon I met with said I would have to go on antibiotics and pain killers. I refused because I knew what that mess of meds got me in a year and a half ago. I searched for a holistic dentist and found one who guided me in the right path so I was able to do stay away from the antibiotics and pain meds by using a great quality probiotic and digestive enzymes for inflammation/pain.

I hope some of this helps someone else!
Replied by Sandra
Grantham, United Kingdom
08/14/2010
HI

MY DOCTOR AS ADVISED ME TO USE AN EMOLIENT CREAM FOR WASHING/CLEANING THE VAGINAL AREA. THIS HELPS TO STOP IT FROM DRYING OUT, WHICH IN TURN WILL GIVE THE AREA TIME TO HEAL.
Replied by Jonimoso
Fraser, Michigan, Us
05/01/2011
I was diagnosed with Lichen Sclerosis 7 years ago. According to my doctor "no known cause no known cure" -- just take this prescription for the rest of your life and you'll never get better. I also thought it may be linked to use of products for vaginal candida which I used just about every other month for about 5 years before being diagnosed with Lichen Sclerosis. Struggled with vaginal candida for many years, but now am free of it. I used 1 teaspoon of dissolved ionic mineral salt in 1 ounce of water, followed by 1 liter of purified water daily for 3 weeks and have had no more candida and also, no more flare ups of lichen sclerosis. Can't say I'm cured, since I haven't seen a doctor after using it, but am extremely happy with the results. Also in the past, I have used organic coconut oil in the vaginal area (anti-viral, anti-bacterial, anti-microbial, anti-fungal) for lubrication and sensitivity. IMPORTANT NOTE: Coconut oil breaks down latex condoms, so use polyurethane instead. Hope this helps.
Barb
Wi
02/29/2016
Did you use this topically or internally or drink it? Did it have lasting results?.

1 teaspoon of dissolved ionic mineral salt in 1 ounce of water, followed by 1 liter of purified water daily for 3 weeks and have had no more candida and also, no more flare ups of lichen sclerosis.

Replied by Wendy
Bristol, Avon, Uk
09/23/2011
4 out of 5 stars
I'd like to add my pennyworth to this thread for what it is worth and in the hope that it may help just one person, more even better. I have suffered from food allergies for some 40 years, I was never able to get rid of them, only control them by eating less. I was diagnosed with LS about a year ago, but I think I may have had it in a more minor form for much longer. For the first two months it didn't seem much of a problem, but then it developed rapidly into a major discomfort and pain. I threw everything but the kitchen sink at it, in order to find a solution. I found that lots of things helped but only temporarily.

Then finally as a result of a paragraph I saw written by a Doctor about psoriasis, his theory was that toxins were unable to escape through the normal route ie liver kidneys so they moved to the next available organ which was the skin, causing serious skin eruptions. This made a lot of sense to me, so I started to treat LS like it was one of my allergic reactions, and bingo, the first real success in 8 months of trying. All I did was cut down on my consumption of food by approximately one third. The sores, pimples and razor like cuts cleared up instantly, and the itching wasn't far behind. My symptoms are now 90% reduced, and I can control the symptoms by dieting. Someone mentioned a low carb diet, and I noticed that certainly applied to me also. Ironically vegetables and fruit, the things you would think were good for you, were causing a lot of surface itching that kept me awake all night. I try to eat any major meal early in the day, and at night it might just be a small high protein meal, like a leg of chicken, but no veg or fruit especially potatoes.

I do think this disease is multifaceted and there is no one solution for everyone. One thing I want to say about this. It had spread from my vulva to anus, cleavage, bust, and all over my back, and finally to my mouth where the white skin was about an inch long and half inch wide. I managed to easily get rid of the mouth problem by putting garlic oil on about 6 times a day. It completely disappeared within 3 to 4 days, and didn't reappear for about two months, when I again repeated the treatment and it went again. The diet cleared up the itching on my back and breasts and anus. The manic itching in the vulva area disappears 90% of the time as long as I don't overeat at all, and I am still experimenting with food to get an even better result. But right now I am in a very good place, and maybe this approach might help others. That is my sincere wish - if only to help one person with this awful disease.

I don't know if garlic oil repeatedly applied to white patches in any other area would work, as it seems to me that every place you get it, it behaves differently, so I would be interested to hear if anyone else has had any success with that. My sincere best wished to all. Just because they tell us this disease is incurable, doesn't mean we shouldn't try to cure it.

Replied by Angela
Pasadena, Ca, Usa
10/11/2011
I think that you will find that many people with LS were treated with creams before diagnosis because they or their doctors thought their symptoms were candida. So that would mean they already had LS, not that the creams caused it. That is what happened to me. I was diagnosed with LS after 10 years or more of symptoms that were missed by many doctors and midwives. One midwife saw that it wasn't candida, and saw the changes in the skin, but she apparently knew nothing of LS and called it non-specific bacterial infection, and had me take peridine baths. I've been using clobetasol sparingly for 19 years, and it has arrested the progress, but I don't want to use it anymore.
Replied by Lynn
Madison, Ms
11/05/2011
5 out of 5 stars
Hi Everyone, I've been looking for anwers in many places regarding LS, I've had this for over 10 years myself and it affects my bottom/anal area mostly and I just got fed up with it all!

#1 I've greatly redued the amount of gluten I take in, amost impossible to go Gluten free, but baby steps...

#2 Whole foods, veggies, meats, fruits... I TRY to stay away from processed foods.

#3 and the most important Take a GOOD probiotic. NSM sells a great probiotic, available online.

#4 DO NOT Use the Steroid cream if you can help it! I use A&D ointment on my bottom after every bathroom visit. I also use an aloe/vitatmin E Infused toilet paper, cottonnelle with Aloe & E and Unscented Baby Wipes with Aloe and E after every BM.

The LS is very manageable, I'll even have sex again, my Hubby is so happy... My Gyno is amazed, he said my bottom looked normal! No Steroid cream for over 4 months... IF I have a flareup he suggested minute amounts of the steroid mixed with the A&D ointment... But so for ok, the ointment takes the "edge off" any itchy burny sensation. I know this doesn't cure the LS, but it greatly reduces the effects. Some holistic MD's say the issue is fungus so I'm on it about the probiotics.. I take a double dose once a day... Stay away from Dairy as well even yogurt w/ probiotics...

Replied by Mary
Encino, California
01/04/2012
I am 60 years old. I was diagnosed with LS about 3 years ago and prescribed clobetasol which seemed to keep it from progressing. About a year ago and about 6 months after I had a gyn exam, I was horrified to discover that my labia was all but gone, I had scar tissue covering my clitoris, and the hood was at least 50% fused.

I have been receiving UVB light treatments (excimer laser) twice a week at first and now once a week for almost a year. Plus I use the clobetasol 2 weeks on and 1 week off. My symptoms have completely reversed. The scarring/lesions are gone. It took a bit of effort to get my insurance company to pay for the treatments, but they couldn't deny the supporting research. The clitoris, hood, labia have returned to normal. Occasionally I have some white patches and itching on the week I'm off the clobetasol. I have also eliminated sugar, wheat, dairy, and artificial sweeteners from my diet for about six months, which is why I think I have been able to reduce the treatments to once a week.

In my research I found and visited a cosmetic gyn who developed a surgery to unbury the clitoris without damaging the nerves. His name is Dr. Ostrenski. He is located in St. Petersburg, Florida. Doctors comes from all over the world to study his technique.

Replied by Clara
Massachusetts
09/24/2014
Mary, I'm having some of the same issues. What kind of doctor performed the UVB laser treatments for you? An OB/GYN or Dermatologist? Have the results lasted for you since your last post? Thank you for your help. The steroid cream is helping but not doing enough and some symptoms are progressing.
Replied by Jillery
North Carolina
01/09/2016

62 Posts
An ok theory for some, but there are little kids who get LS and people who have never used vaginal meds... But true I think that stuff can precipitate LS in others. Look at all the variations of symptoms too.
Replied by Jamie
Canada
02/14/2016
Wendy, your post is so interesting to me. I have had skin issues since I was a teenage (40 years). My skin would itch and burn and small sores would erupt that were like a burn and sometimes would grow to and inch big. I have scarring all over my upper arms, upper back and legs. As a teenager, I was diagnosed with psoriasis. After many years of dermatologists and naturopaths, everyone was perplexed because nothing helped.

I developed LS a year ago and through research was led to Trying Low Oxalates. I went on a low oxalate diet and this has helped tremendously! Many vegetables, fruits, beans, nuts, etc are not my friends.

Like you, the less food I eat, the better I feel! I only have LS breakouts, itchy, burning skin when I eat higher oxalate foods.

Thanks for sharing. I rarely run across anyone who has experienced the whole skin thing.


Vitamin E  

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Posted by Andrea (Asheville, NC) on 03/01/2009

For Lichen Sclerosus, I have found that using a vitamin E capsule like a suppository overnight usually takes care of symptoms overnight. My MD prescribed steriod creams, which also work, but not as well. However, they are more convenient to use during the day. Although steriod creams are not natural, I believe a natural estrogen cream may work the same way. I have read lately that lichen schlerosis is often triggered by a decrease in estrogen in the body, so I'm experimenting with increasing intake of soy products, which contain natural estrogens. My MD also recommended probiotics and turmeric to control symptoms. Apparently, there is no cure available, just good symptom management.

Replied by Jillery
Nc
02/14/2016

62 Posts
Try adding Red Clover herbal pills... they supposedly increase estrogen. They have helped my LS symptoms a GREAT DEAL!!

Vitamin E, Lavender Oil  

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Posted by Ajm (Alabama) on 12/22/2013
5 out of 5 stars

Lichen Sclerosus: Based on some of the suggestions on this site, I began using vitamin E oil and certified pure therapeutic grade Lavender oil on the affected area and all symptoms have stopped. Lavender oil has analgesic, antifungal, anti-inflammatory, antimicrobial and antiseptic properties, to name a few. I have had LS since puberty but was misdiagnosed until 3 years ago. No cure and steroids are a no-go for me so management is my focus. Symptoms vary based on diet, exercise, and hormones, though this combo seems to be working well so far. I may try the purple emu oil in the future or possibly make an essential oil combination using lavender, melaleuca (tea tree), and oregano. Thanks to the makers of this site! It helps a lot!

Replied by Lg
Sacramento, Ca
08/14/2015
5 out of 5 stars
Thank you for sharing, I was skeptical that this would help. It has more than helped it has almost completely healed. I have dealt with this for over 20 years and I am amazed at the results. I use cotton rounds with a few drops of lavender and dilute with water 3 times a day. I also purchased some Frankincense as someone else suggested on here and plan on using it as well just as a precautionary.It is a little pricey, but we'll worth it and it's not a steroid! Thank you again for sharing! I hope this information will be helpful to others as well.
Replied by Freda
Lancaster, Tx
03/05/2016
5 out of 5 stars
I can't begin to thank you enough!!! I've had LS for 11 years and I can deal with the pain and bleeding and all that but the itching!!!!!!! The kind where you want to take a knife and cut it out or the relief from scratching is better than sex. Anyway, I was having one of those episodes last night... It is always at night... And so came searching once again and found this. I use essential oils and have a bottle of lavender mixed with cedarwood, mineral water and witch hazel that I use on my pillows and thought maybe this would work. I added a few more drops of lavender and many drops of frankincense and all I can say is I was in heaven from the instant relief! I usually have itching in the morning also right after my shower and I used the spray again and what joy! THANK YOU THANK THANK YOU
Replied by Thankful
Trinidad
03/29/2016
5 out of 5 stars
I swear I used lavender oil vitamin e, witch hazel and castor oil and I am as free as a bird from lichen sclerosis after reading your remedies. I was suffering from it for a year and prayed for a solution and found it on your page. Thanks a million for everything I can live a better life without the itching. That was one of the Worst things ever Thanks😀
Elyse
Ri
04/29/2016
Thanks for posting! How did you go about mixing these together?
Replied by Robbie
Missouri (mo)
04/07/2016
How much of each of these ingredients for Lichen Sclerosus?
Replied by B
Ca
06/20/2016
Could you please post how you used the oils, how much...

Wheatgrass  

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Posted by Colleen (New Brunswick, NJ) on 03/29/2009
5 out of 5 stars

Wheatgrass Cure for Lichen Scelrosis.

I have had this for 2 years. and found Wheatgrass works wonders after using the topical steroids and it getting worse. I stopped using what the doctor prescribed and used WG and she was amazed and wanted to take pictures and everything. I tried many natural remedies and this is what I have found to work. I had about 6 months that was excruciating and painful sex but now and basically symptom free besides having a small patch of white spots that never real go all the way for good.

Wheatgrass pulp as a compress for 15-45 mins. Make sure it is juicy this is a little messy but very clean and has been proven as a remedy for many problems including yeast infections. Just holding the compress on for 30 mins made my white spots disappear and the skin that appeared was pink and healthy. Juice it and grow it yourself and use 1-2 times a week or get a wheatgrass shot at a heathfood store and ask for some of the pulp. I do this -you can tell them it is to treat a burn or infected cut b/c it is used for that too. You just bundle up the pulp and hold it on press it to your skin firmly. I sit and watch TV on the couch or in bed on top of a towel with paper towels on top. The chlorophyl is very rich and can stain clothing/sheets. Wheat Grass contains many minerals and chlorophyl so maybe this is why it works so well.

But, I recently got wheatgrass cream form an Australian doctor who makes it. it is sold on his website Dr. Wheatgrass. I find if I put this on a few nights a week the white spots disappear too and the skin heals. This stuff is amazing you can heal cuts and burns very quickly with it with generally no scarring. I also found that salt water baths help and Aloe Vera gel helps soothe, and tea tree oil ointment takes away itchiness.

I used the Nuva Ring birth control vaginal ring for 2 years and that is when my problems with LS started. Now I use a pill and generally have a little bit of white spots but no irritation at all anymore and the white spots always go away every month when I get my period. I feel maybe if I did not use hormonal birth control at all this would go away completely but am not at a point in my life where I can justify it as there is not as reliable of a natural method Hope this helps some people with LS b/c it is really awful to have this condition.

Replied by Stacy
Durango, CO
07/12/2009
Hi, I haven't ever used this form of communication before but I have a question. A friend suggested to me that I may have lichen sclerosis. I have tiny razor blade slits up the sides of my labia majora (both sides)- they bleed and sting and feel much like a razor blade cut. Sometimes it seems to go across my perineum and over my anus, causing that to also be painful. I used to only think that it was from sex and maybe I had an STD but have been checked many times and seem to baffle the practioners - they often start questioning me about abuse. Well, now, I haven't had sex in two months and I have it again - so I am trying to figure out what it may be - my symptoms do not seem to be the same as what you are describing but I'm trying whatever avenue I can because it is quite painful and debilitating and I recieve no valid answers from practioners.
Replied by Linda
Houston, TX
07/21/2009
Stacy from Durango - According to my good friend, a dermatologist, Lichen sclerosis can be diagnosed with a biopsy of the skin. According to her it is not that uncommon and you should be able to ask a derm or ob-gyn to biopsy the skin so you can get an answer and start treatment. I too have been diagnosed with it but I haven't had the biopsy yet. I will be doing that soon so I can get a definite answer. Steroid creams are used quite a bit to bring the skin back to normal. If you don't want to waste your time with an uninformed doctor, try calling ahead and find out if they're familiar with the condition. Good luck
Replied by Mary
Valencia, Ca
02/07/2010
1 out of 5 stars
I was desperate for relief and decided to try the Wheatgrass lotion. The delivery was great. However, when I put the lotion on the vaginal area it burned like crazy. Not just for a short time. I put some more on later thinking it just takes time. Again the burning. So, I went back to my salt water which seemed to relieve the burning for a while. There must be something else out there but I don't have a clue. I don't have the itching, I have the soreness (sitting and exercising are very uncomfortable), redness and inflammation.

Mary

Replied by Tropical Qld
Australia, Qld
09/25/2011
I have had LS for 13 years and had no idea what it was until I saw this post.

I have gone to the doctor and each time I go, they diagnose me with Thrush. So I'm so grateful to find that there are other women out there.

I noticed this in my teens and found everytime I had candy, chocolate or anything high in sugar, the itching would get worse. Bread from the grocery store and carbs in particular would also make the itching worse. For this reason, I just limited my carb and sugar intake (I have the sweetest tooth ever! ) and found that it was fine. Exercise, like 30 minutes of intense cardio regularly really helps with the symptoms.

I have young children and my diet has gone out the window and I've noticed that my symptoms are getting worse and the burning is getting more intense. I think I will have to get back on the bandwagon and continue with a 'healthy lifestyle.'

I have found cocoa butter oil helps with the itching and it's funny as I bought neem oil a couple weeks ago for this reason and looks like other ladies on this site have found it helpful.

Replied by Venda
Redmond, Wa
01/19/2012
Biopsy showed lichen sclerosis, sorry I always misspell this. Prescribed ointment thinned out skin so it would easily break, so I stopped. Also when preg wanted natural option. Best natural relief: Burt's bees chapstick, with peppermint is the best. Can be used several times a day without irritation. Shower daily a must. If leaking urine after baby, wipe with wipey as well for extra cleaning. Actually have always been very sexual, and luckily this hasn't affected my drive :)

Witch Hazel  

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Posted by Georgina (Tolmie, Victoria, Australia) on 03/04/2013
5 out of 5 stars

I don't know about the Essiac Tea but I recently read on a Lichen Sclerosa Forum about Witch Hazel. The writer had felt that in someway her urine was to blame for her symptoms. I had had some similar thoughts so decided to follow her advice.

For the past week I have been drying myself, after having a pee, with a tissue, and then wiping myself with a tissue with some Witch Hazel on it. The effect has been quite dramatic. No more itching or soreness at all.

Is it possible, I wonder, that there is some toxic reason for the urine to affect the vulva so badly. All one gets from the medical profession is that Lichen Sclerosa is believed to be an auto-immune system breakdown. That seems to be their answer for anything they don't have an answer for.

In closing I should say that I don't believe my Lichen Sclerosa to be a really bad version of the complaint although I have had it for the past ten years. If I can stop using the Diprosone Ointment by using Witch Hazel I shall be well pleased.

Replied by Alea
Las Vegas, Nv
02/11/2015
I clean with Witch Hazel Wipes (courtesy of VA dr) and using diluted Apple Cider Vinegar. Hopefully I can cure self using these simple things. Four years is too long to be itching and having skin tear and bleed. Been celibate well over four years!!!!!

Zinc Oxide  

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Posted by Janet (Anglesey, Uk) on 10/29/2012
5 out of 5 stars

After months of suffering and using steroid creams to no effect I used zinc oxide and within 24 hrs the soreness, redness and discomfort had gone. I have only applied the cream 4 times but the affected area seems to be almost back to normal. Miraculous result

Replied by Sydney
Richmond, Virginia/usa
11/10/2012
I have had LS for 18 years. I have tried everything my doctor has suggested and had it under control for many years. About 1 1/2 years ago I had a flare up that has persisited. I am burning and itching. I can no longer use the prescription medications. I have tried Perrins products which helped at first but are no longer giving any relief. I am considering other options such as Emuaid and the Zinc Oxide powder or Scar-Zone mentioned above. I have tried Desitin which contains zinc oxide, in the past however, and am wondering if I need to even try to zinc oxide products. Can someone tell me if there is a significant difference? Has anyone tried the Emuaid?

Also, for immediate, calming relief there is a product which is mixed with water and used as a compress. It is available at most drug stores and is similar to the vinegar idea. I have used this for years with flare ups.

Replied by Agnes
Merritt, Canada
11/08/2014
I brought some zinc oxide powder. Do I make a paste and put it on the affected area?

Posted by Leslie (Sydney, Australia) on 12/09/2011
5 out of 5 stars

There might be some hope for LS sufferers by using Zinc Oxide powder. I'm a 69 year old male and I first got LS at about age 30. After trying a few other treatments I tried simple ZnO powder. Within about 2 days most of the annoying symptoms were gone, and by 2 weeks it was like I never had LS (apart from a little scarring).. LS reappeared about a year ago and I treated it again with ZnO. Amazing, the clearing up of LS as I got 40 years ago. I don't think that the treatment can be as simple as ZnO, but it has worked miraculously for me both times. The reply of Kim from Effingham above is the first time I have seen mention of ZnO working for anybody else.

Replied by Rachelle
Kearney, Ne
08/08/2016
How much Zinc Oxide powder, and how often. Do you apply it or ingest it?
Replied by Mama To Many Donate

Tn
08/08/2016
Zinc oxide powder is only for external use. You can look for a diaper rash cream with zinc in it for external use.

Posted by Kim (Effingham, Il Usa) on 11/22/2011
5 out of 5 stars

Hello again on LS... Found something I wanted to share that is working for the elimination of the small white lesions and itching. It is called Scar-Zone. The zinc oxide and antioxidants completely resolve the itching and thinning/white lesions. I hope this helps someone with this dreaded disease. Not sure if it will completely resolve the issue. Please respond and let me know. Thanks.

Replied by Rekha
India
04/27/2014
Where can you buy scar-zone in the USA? Thanks