Lichen Sclerosus Remedies

Last Modified on Jan 25, 2015

Multiple Remedies   1  0   

Posted by Moira (Long Island, Ny) on 11/04/2013

[BETTER BUT NOT CURED]  Hello, thanks to all of you for the many comments and helpful suggestions re. L.C. I am 60 yrs old and have been diagnosed 3 years ago with L.C.

I read and re-read many of your suggestions and for the last 4 days I have had some relief with the following suggestions: 1 cup baking soda and 1 cup white vinegar in bath and soak for 15min. It has cut down on itching and I'm less inflammed.

Zinc oxide seems to work on decreasing redness and itching ( applying 2x a day) However is it OK to use continually on vaginal tissue?

Also applying cold water after each time I urinate. Started Essiac tea but too soon to access.Thanks, Moira, N.Y.

Posted by Dee (Utica, Mi) on 07/23/2011

[BETTER BUT NOT CURED]  I have had symptoms of LS for 2 years now and have finally found a way to keep it under control. The symptoms started after menopause with extreme vaginal dryness. Then the vulvar skin breaking, bruising and vaginal atrophy began. I work for a GYN doctor so I knew what was happening to me. I did try Perrins cream which helped a little in the beginning. I vas very reluctant to use any prescription medication, but after suffering for so long I finally tried a very small dose of Estrace cream vaginally once or twice a week which has helped alot. (I did not want to use Steroids). I also apply pure vitamin E oil (found at Target for $5.00) to the vaginal/rectal area everyday after bathing/soaking. I use only natural soap very gently in that area, no bleach on underwear, avoid any perfumes or strong dryer sheets that irritate, no underwear when at home and only lightly blot when using toilet paper. These things have helped me tremendously. Avoiding sugar and taking high potency probiotics do also help. I hope and pray that a natural cure can be found and that the cause of this awful condition will soon be discovered. I have been doing my own research and taking note of the similarities in women who have this condition. Hope this helps someone.

Replied by Kim
Effingham, Usa
Hello, I too work in the medical field, have you had any success with new insights from MD? Do you visit Pubmed frequently? They have found the tissues to be abnormally deficiet of antioxidants. When I use them (above) it really does decrease the symptoms. Lycine works too.

Mine stopped reacting, skin was pinking up with oral intake of vinegar - the very same reaction with MS and vinegar. MS is an autoimmune disease. Vinegar inhibits a reaction of the autoimmune.

Western medicine has found that some of the medication used for anti rejection for organ donors are working but not resolving it.

Does the Estrace stop the progress of the disease?

For research purposes do you have Estrogen dominance? Thyroid link?

I was hoping Ted would comment, maybe he has something to offer.

Replied by Ana
Toogoolawah, Queensland Australia
I have what my doctor described as 'Extreme LS' this is where I have LOST most of my vulva and all that remains is the opening ( very small) and part of my clit which is not very painful to. The lenght of my vagina has shrunk to just 2 inches from top to end and if I lose the remainder of my clit I will have to have some sort of mobile tubes to incert when I need to pee.

I have tried everything, cremes lotions ACV, oils, you name it I have tried it including Perrins offerings, even used steroid cremes. Nothing worked. Todate there is NO cure and may not be one in my life time (I am 67) but there is some trials been done in Sweden or Denmark where they are trying out natural Progesterone creme. , available only by script in Australia ( big Pharm dictates here, so Aussie and NZ have to buy from USA). You also have to be careful using Progesterone if you are postmem, which I found to my cost, on 2 seperate days after two small dabs I was in agony with miscarriage/labor pains and the need to bare down, this lasted over 1/2 an hour till I had a show of blood. It turns out that I have a medium fibroid in on the back wall of my womb and the Progesserone acted a prelude to esterone which fed the fibroid and caused it to grow and as a postmenopausal woman that made my body think I was pregnant and it had to go. Thats what my last gyno said, but there again she said I had vaginitis when I first visited her for the itch and dryness 2 years ago. My GP has now got me on DermAid 0.5% which is not so harsh and it helps with the itch, I also sit in a baby bath of warm water with 1/4 cup ACV 1/4 cup Bicarb soda, and 1 cup Magneesium Chloride which I buy from food ingredient suppliers and I find this is works as well as anything I have tried so far and all 3 are good for the body anyway. I will try Argan oil in the blend next for the dryness.

Replied by Kim
Effingham, Illinois
[BETTER BUT NOT CURED]   Wanted to let everyone know... I started using Niacinamide and Lycine (mixed it in a small bottle of pure water) spraying it on the LS and then applying Argan oil, my symptoms have decreased by 60%. I also quit drinking coffee and the skin on the backs of my arms and legs cleared up. Not sure if this was an allergy and LS is connected but am not ruling it out.

This is such an awful disease. Hang in there.

Replied by Cindy
Ft. Lauderdale, Fl, Usa

My symptoms occured exactly like Dee's. I don't have itching or any white spots. But I do have some atrophy, white thinning skin in the folds, some past bleeding. I'm really upset that my atrophy will never grow back. This will prevent normal, painfree sex.

I was given potent steroids to apply topically everyday for one month, and then down to 2-3 times per week. After six weeks, my skin looks whiter than ever and I think it's gotten worse.

I took myself off the steroids, but needed something else to replace it. I wanted to do an all natural solution, so I searched this website as well as many others. After much research looking for women with my similar symtoms, I decided to try using Red Clover infusion/tea drinks. Everyone has recommended one quart per day. It has many anti-inflamatory properties as well as healing properties. Research has also showed that LS may be helped by megadoses of antioxidants. So, I went to the heath food store and bought the strongest antioxidant powder mix I could find (they work better, absored more than tablets). That's what I take internally.

As for what to use externally in the vulva area, I decided to use Neem cream followed by Organic Coconut oil (comes in a large jar, very soft and melts in your hand). Both have amazing healing properites, and the coconut oil replaces the essential fatty acids that the skin in this area desperately needs. I use coconut oil in place of everything I would have used butter or oil for, for example, use it for cooking eggs, baking, etc. It also can be used on the skin. I put it all over my body after the shower as a moisturizer. It is awesome! My nutritionist raves about it and uses it for everything also. It's a superfood!

I have used these drinks and creams for two days now, and my skin is already pinker! I still have some white skin in the fold area, but I am hopeful! Before this, I had an almost totally white vulva! I have also thrown away all my sweeteners with Aspartame, and will use only Stevia. I suggest everyone cut out the sugar, even honey. Sugar is sugar, and it creates an imflammatory reaction in the body.

It's worth a try, anything is better than steroids! Let me know how it works for you.....

Replied by Lynn
Kansas City, Kansas
I, too have heard of the coconut oil and already use it for my omelets and other cooking. I have had LS for 12 years (43 years old now). The labia is fused for the most part on both sides, with pale, thin tissue. The majora has shrunk a little, but is still somewhat pink. In the beginning, I was put on clobetasol, etc. This was not good. My symptoms really didn't get better, and it thinned the tissue more. I had a dermatologist who put me on Metformin crushed in Vaseline that seemed to help a little. She wanted me to take it orally, but my GI sx at the time prevented that. I have started taking Mercola's Krill oil which has all sorts of backing as an anti-flammatory. Hopefully, the combination of making my body not so inflamed inside, and the coconut oil outside will do the trick. I also have Raynaud's. I agree with eliminating nutra sweet, etc. I eat a low-carb diet. I think we now have more auto-immune than ever, and we need to look at the state our bodies are in. I wish everyone the best. Hopefully, there will be a cure someday! Thankfully, my husband is very understanding :)
Replied by Kim
Effingham, Usa
Lynn, read your note with interest. This is an awful disease.. I wonder if like the bee's our immune systems have been crippled by the pesticides... Food for thought. What I found strange.. I didn't have these problems until I moved to a farming area. I formally lived in the Mtns and drank spring water... I did find that Scar reduction cream (zinc oxide) with the tea extract totally knocks all the itch/thining and any progression of fusion of the tissue. Should have figured this before as this is for overreactive skin tissue. It does not cure it but I don't have to apply every day, just 1 x every 2-3 days. It is strange all of us are getting this....
Replied by Julia
Indianapolis, In
I have had LS for 6 years, following severe physical trauma and mental anguish. I am athyroid, a thyroid cancer survivor. Part of my labia is gone, eaten away. The clitoris is covered by fused labia minora. I have been using Clobestiral and hormone cream every other day. I still have outbreaks of red, thin and itchy skin with bleeding. White patches come and go. Now, I am having deep pelvic pain where my ovaries used to be. Had a total hysterectomy for severe endometriosus 30 yrs. ago. I have no orgasmic response, but do get aroused to some extent. I do not eat wheat, drink coffee and avoid sugar. I try to use all natural products. I can't tolerate underwear. I am miserable and the Dr. says "see you in a year."

Posted by Jen (Vancouver, Bc, Canada) on 04/20/2011

[BETTER BUT NOT CURED]  I am 28 years old female who was diagnosed with LS in Aug 2010. After 2.5 years of continuing Yeast infection and Strep B bacteria since my honeymoon in Caribbean.

I believe after taking many antibiotics and Diflucan, my body collapsed!

I had a blood test and my natural path informed me that I am Lactose intolerant and I have to avoid Dairy and Gluten. I am taking Probiotic and Fish oil (Omega 3) and L-Glutamine (I guess to clean my liver. ) I have not seen any major changes to LS in my vulvar area. Yet, I can feel less gas (stinky gas), diarrhea, bowel movement and no more Yeast and Strep B bacteria.


Yeast: after unsuccessful 2 years of using Antibiotic, I used Boric acid and soaked my body in Baking soda every day for a few weeks which have been very very helpful. Even my husband did it too. I am free of yeast or bacteria now.

LS: I have been using lower dose of Topical cream which was useful at the beginning but not after 3 months. After the flare up and no sexual intercourse for a while because of the pain and itchiness, doctor gave me another higher dosage of cream, I have been using this for 3 weeks now and it is helping a lot. But I don't want to be dependent on this at all. I am young, still have another 50 years to go, can't use the cream for the rest of my life. I don't have any kids yet either.

My research shows that Omega 3 (fish oil), and probiotic are great to use to balance your body and create healthy skin. Healthy diet is another one, have a test or look at your blood group type and see what is better to eat for your body type. I did a cleanse in summer which helped my body to normalize and of course got rid of the yeast.

Also, I have found that Neem oil, Calendula oil, Emu oil are helpful. I have heard from a few professionals about Neem oil and Calendula, but rarely about Emu oil. So I was reluctant to buy Emu oil for my LS. Apparently, some people used Emu oil and it worked but not many professionals know about it.

Yesterday was the first night I used Neem oil and hoping to be helpful.

If anyone has any other suggestions, Please let me know.


Posted by Jill (Dallas, Tx) on 12/27/2010

[BETTER BUT NOT CURED]  Lichen Sclerosus is a condition that I self-diagnosed myself with a few years ago, after much internet research and no help from my doctor. This is still such a mysterious condition, with little concrete medical data out there to refer to, but here are some of my observations and some things that have helped me quite a bit.

First, I believe that it is caused by hormone imbalance and/or auto-immune issues. Most people notice their symptoms begin with hormone shifts. For me, it was at the beginning of peri-menopause, and came along with other, more common symptoms of that. Along those same lines, the symptoms are always worse at the end of my cycle (pre-menstrually) and better towards the beginning of the cycle. Also, I notice my symptoms flare up (and have heard others report the same) when my immune system is run down or strained, especially if I'm fighting a virus (cold, etc... ). Interestingly, as several others here have mentioned, I also have a history of adrenal fatigue/chronic fatigue. So seeking natural hormone balance and a healthy, balanced immune system are, in my opinion, key to going into permanent remission.

Topically, I have found the most success with a cream called Perrin's Cream Complete, found on the Perrin's website (you'll find it if you google it). It immediately relieves discomfort and seems to help quite a bit overall with other symptoms. It is a soothing antioxidant cream that is very healing as well. It was originally developed to help prevent and reverse skin cancer, so for a condition with an increased cancer risk associated with it, this cream is a good one to have on hand. Also evening primrose oil has been helpful topically.

I have tried to adopt an anti-inflammatory diet to help with the auto-immune aspect: no sugar (very inflammatory and noticeably worsens LS), fried foods, junk foods, processed foods/fast foods, margarine or shortening. About a month ago I also eliminated gluten (mostly found in wheat) and either it's a coincidence, or that was truly helpful because it's better now than it's been in years. A whole foods diet that is loaded with vegetables and healthy fats and protein (which includes SATURATED fats: coconut oil, eggs, butter and meat from healthy, pastured cows, etc... ), fish, krill, or cod-liver oil, and low on grains (especially wheat). Try to eat more like your great-grandparents ate and you'll be doing much better than if you follow the USDA food pyramid! The Weston A. Price Foundation has great info on healthy traditional diets and how our modern, western diet and food preparation has damaged our health ( Learning about food sensitivities/allergies would also be essential for reducing systematic inflammation. If you can't afford allergy testing, try checking your pulse before and after eating suspected foods. If you notice a marked rise in your pulse after eating a particular food, you are probably sensitive if not allergic to it.

Also avoiding chemicals as much as possible in your environment (cleaning products, unfiltered city water), and food (genetically modified and/or pesticide laden foods) is also important. I know there are lots of supplements that help with inflammation: turmeric, fish oil (or krill or cod liver), vitamin D3 (current recommendations are extremely low, so probably around 5, 000 mg. daily, or better yet, get your levels tested and aim for therapeutic levels--check out for more info on vit. D), and many more.

There are also supplements designed specifically for reducing inflammation. Chinese mushrooms and herbs have been used with incredible success for a variety of inflammatory conditions, so that would sure be worth checking out. Fungi Perfecti has a product line called Host Defense and a product in that line called My Community that looks very intriguing. It's a very reputable company and scores of people with serious immune and/or cancer issues swear by their products. seems to have the best prices. Searching out anti-inflammatory diet and supplements should provide lots of good ideas. Hopefully there's something of use in all that!

If I discover a magic pill, I will certainly share my discovery, but my guess is that it's really about getting your hormonal and immune systems balanced out, which involves a more holistic approach to diet and lifestyle than what one pill can provide.

Replied by Sherry
Roanoke, Va
I have had LS for 7 years. I was diagnosed during the 7th month of my first pregnancy. I have tried so much of what is listed here. I also began using the Perrin's Cream about six months ago. It is by far the most helpful thing that I have tried. I am having a flare up now (that is driving me MAD), and I have had to use the steriod cream, BUT what I find is that the Perrin's Cream seems to help restore health to the damaged skin (by the disease and the steroid creams). Healthy diet is crucial. I am a health nut... When I have a flare up, it is usually linked to STRESS! Stress reduction and dealing with it well is crucial. I struggle with this! I will say that since using the Perrin's Cream, I have only had one flare up. Use the CREAM, not the ointment! The ointment is TOO strong and will burn! You are not alone. I am sorry that all of you are dealing with this also.
Replied by Kim
Effingham, Il Usa
[YEA]   Jill from TX:

Your advise is EXCELLENT!! I have done my research and agree with all. I am a LS suffering soul. Perrins cream and your diet recommendations do help.

That being said, I would like to add to this forum some things that have helped me considerably with my LS.

I am certain that mine is associated with the endocrine/immune system. I have enlarged lymph nodes under arm when I have a flare up. I also have hypothyroid too.

In the last year I found a product called I-26 or hyperimmune egg. Started taking this and have had GREAT results, symptoms are greatly reduced. I am planning on continuing this until I find something else. I also came up with a remedy for the pain/itching. Take Lysine in powder form and add to Aloe Vera. Within seconds the pain itching will be gone. I apply this usually 1x a day and it lasts until the evening.

I have had this terrible disease for 8 years and found the lysine trick in a herpes tx. I just tried mixing it in aloe vera and it works like a charm.

I am not sure what caused mine, but it started after I had a hyster and dx hypothyroid.

Again, the hyperimmune egg is worth trying. Just mix it in with OJ, drink down.

God bless, hope this helps some other women.

Replied by Diane
Nashville, Tn
Thank you for sharing your remedies. Do you apply the lysine and aloe Vera topically or take it orally?
Replied by Kim
Effingham, Usa
For the LS to stop the intense itching... Take the lysine powder and mix it in the Aloe Vera and apply topically. You may need to start doing it 3x/day until it puts the fire out, then you will only have to do it daily. It worked for me. Best and stay blessed. This is an awful disease.
Replied by Gem
Melbourne, Australia
Finally.. A website that gives me some hope. I have written down EVERYone's suggestions and may have to give up work just to manage this LS!! (I wish). But, thanks all for sharing the tips.. I about to embark on a gluten & dairy (&sugar) free diet, see a naturapath AND try many of the 'remedies' on this page. My wish is to stop the steroid creams.. that stop itching but not the progression.. And keep enjoying sex!!
Replied by Louise
Newcastle Upon Tyne, U.k.
I was diagnosed with LS two years ago. Pure essential lavender oil in the bath has helped me, and also Perrin's cream. Attention to diet, and cutting right back on sugar and yeast products has also helped. I agree that this is a horrible disease, and sometimes I can't believe I have it, but does anyone know how much research is going on to find a cure? What have we all got in common that would trigger this in us?

Neem Oil, Green Tea Extract   0  0   

Posted by Terlyn (Syracuse, Ny) on 12/28/2009

[BETTER BUT NOT CURED]  I have had LS for a few years to the puzzlement of my gyn until September when the white spotting finally appeared. I tried calendula oil then castor oil and now I am in my 2nd week of Neem oil with a green tree extract added 2 or 3X a day. It is messy but it brought me healing relief.

The others brought relief from the itching and bleeding which is a blessing but I want it to heal and not continue to split.

Shea Butter   1  0   

Posted by Tiya (Bellflower, California) on 04/01/2013

[YEA]  I have has LS for 5 years now and I'm only 16 years old. So far no doctor has been able to figure out a cure to LS. I've done my own experiments and I've been using Shea Butter for 3 years and I rarely have flare ups or any itching. Though I notice I have more discharge but it's worth not having unbearable itching.

Vaginal Medication Link to Ls   1  1   

Posted by Kathy (Brisbane, Australia) on 09/10/2009

[WARNING!]  Lichen Scelrosis - theory yet to be proved:

I have a theory that moderate to high use of Vaginal creams for Thrush etc aggravate or possibly even CAUSE LS. The only way to find this out is to get as many women as possible with LS to say whether they have used these creams a lot in the past. I had a history of repeated Thrush and used the creams many times - I notice now that use of these creams aggravate the itchiness and thinness of the area for up to 2 weeks after use. Please post a answer and see if we can 'find' the cause - the Drs have no idea, so....

Replied by Kim
Los Angeles, California
[WARNING!]   Vaginal Meds causing LS symptoms

This is in response to Kathy from Brisbane, Australia:

I have had the same theory for 4 years, that moderate to high use of Vaginal creams for thrush, vaginitis etc aggravate or possibly even CAUSE LS. 6 Months after taking precription medication for bacterial vaginitis the thinning, tearing, itchyness around th vulva area began.

Ladies please be aware when taking such meds.

Best of luck.

Replied by Jami
Roanoke, Va
I've just been diagnosed with LS, how fun. I have been treated many times in the past for yeast infections and bacterial vaginosis. I believe you may be on to something BIG. I also believe that stress and perhaps past trauma/emotions may have an impact on what is happening now.
Replied by Amy
Tucson, Az
[NAY]   I was diagnosed with LS a few years back. Contrary to your theory I had never used any vaginal creams for any ailment.
Replied by Montanamama4b
Billings, Mt
I read on another website that it is common with LS to be extremely sensitive to any creams that have any of the -parabens in them. This can be methylparaben, propylparaben, etc. Since nearly every single cream out there needs the parabens to make it "creamy", be sure to read the labels very carefully.

Take care!

Replied by Adrianna
Chicago, Il, Usa
I was diagnosed with LS 10 years ago. It happened shortly after having oral sex. I have used a vaginal cream since then, but off and on. Not on a regular basis. About 2 years ago I had surgery in which I took antibiotics and pain meds. Within 2 months I started noticing some really weird things happening to me that never happened before. Since then I've been researching relentlessly on what could be wrong with me. My conclusion is the antibiotics, drugs, creams etc. . . are bad for us. I have candidiasis because antibiotics not only kill the bad bacteria, but the good. This in return let yeast grow out of control in my body causing skin issues, digestive issues, dizziness, drunkenness, etc. . . I believe the only way to get better is to change your life away from the SAD (Standard American Diet). Eat healthy, meaning fresh fruits (very little), meats and vegetables. Try to buy organic, if possible. The pesticides and hormones sprayed/injected into our foods ultimately get inside us and also affect us. No processed, canned, packaged foods. No lunchmeats, sweets, etc. Obviously it can be very difficult to completely stay away from these foods for the rest of your life. I love sweets so I know. I try to eat healthy 99% of the time though. Educate yourself. Research candidiasis, get on a good probiotic, see if you could benefit from digestive enzymes, fish oils, read the Metabolic Typing Diet, search for Yeast Infection No More online book, how dental work can have you suffering (mercury in your mouth), metal in your body. I recently had an eery feeling my LS was linked to my diet as well as all the other issues I've dealt with in the last year. I believe it is true because when I was following a super healthy diet for 5 months (no dairy, only brown rice pasta, brown rice cakes, brown rice, fresh veggies, little fruit (mainly berries) and protein) NO sugar whatsoever and only drank water or decaf herbal teas, continued to exercise, reduce my stress level and take some supplements I had no anal itching and very little if any vulva pain/discomfort.

I also recently decided to research the cream I've been using over the years for my LS and one of the things it says can occur is folliculitis. Last October I woke up one morning with tiny red bumps all over my legs. I have not confirmed by a doctor that it is folliculitis, because I refuse to have anyone try to make me take any medications/creams (drugs)or antibiotics. I am on a mission to change my life for the better and it involves natural/holistic treatments. Always question your doctor and if you don't believe what they are suggesting it is best for you get a second opinion. I recently had to have my wisdom teeth removed and the first oral surgeon I met with said I would have to go on antibiotics and pain killers. I refused because I knew what that mess of meds got me in a year and a half ago. I searched for a holistic dentist and found one who guided me in the right path so I was able to do stay away from the antibiotics and pain meds by using a great quality probiotic and digestive enzymes for inflammation/pain.

I hope some of this helps someone else!

Replied by Sandra
Grantham, United Kingdom


Replied by Jonimoso
Fraser, Michigan, Us
I was diagnosed with Lichen Sclerosis 7 years ago. According to my doctor "no known cause no known cure" -- just take this prescription for the rest of your life and you'll never get better. I also thought it may be linked to use of products for vaginal candida which I used just about every other month for about 5 years before being diagnosed with Lichen Sclerosis. Struggled with vaginal candida for many years, but now am free of it. I used 1 teaspoon of dissolved ionic mineral salt in 1 ounce of water, followed by 1 liter of purified water daily for 3 weeks and have had no more candida and also, no more flare ups of lichen sclerosis. Can't say I'm cured, since I haven't seen a doctor after using it, but am extremely happy with the results. Also in the past, I have used organic coconut oil in the vaginal area (anti-viral, anti-bacterial, anti-microbial, anti-fungal) for lubrication and sensitivity. IMPORTANT NOTE: Coconut oil breaks down latex condoms, so use polyurethane instead. Hope this helps.
Replied by Wendy
Bristol, Avon, Uk
[BETTER BUT NOT CURED]   I'd like to add my pennyworth to this thread for what it is worth and in the hope that it may help just one person, more even better. I have suffered from food allergies for some 40 years, I was never able to get rid of them, only control them by eating less. I was diagnosed with LS about a year ago, but I think I may have had it in a more minor form for much longer. For the first two months it didn't seem much of a problem, but then it developed rapidly into a major discomfort and pain. I threw everything but the kitchen sink at it, in order to find a solution. I found that lots of things helped but only temporarily.

Then finally as a result of a paragraph I saw written by a Doctor about psoriasis, his theory was that toxins were unable to escape through the normal route ie liver kidneys so they moved to the next available organ which was the skin, causing serious skin eruptions. This made a lot of sense to me, so I started to treat LS like it was one of my allergic reactions, and bingo, the first real success in 8 months of trying. All I did was cut down on my consumption of food by approximately one third. The sores, pimples and razor like cuts cleared up instantly, and the itching wasn't far behind. My symptoms are now 90% reduced, and I can control the symptoms by dieting. Someone mentioned a low carb diet, and I noticed that certainly applied to me also. Ironically vegetables and fruit, the things you would think were good for you, were causing a lot of surface itching that kept me awake all night. I try to eat any major meal early in the day, and at night it might just be a small high protein meal, like a leg of chicken, but no veg or fruit especially potatoes.

I do think this disease is multifaceted and there is no one solution for everyone. One thing I want to say about this. It had spread from my vulva to anus, cleavage, bust, and all over my back, and finally to my mouth where the white skin was about an inch long and half inch wide. I managed to easily get rid of the mouth problem by putting garlic oil on about 6 times a day. It completely disappeared within 3 to 4 days, and didn't reappear for about two months, when I again repeated the treatment and it went again. The diet cleared up the itching on my back and breasts and anus. The manic itching in the vulva area disappears 90% of the time as long as I don't overeat at all, and I am still experimenting with food to get an even better result. But right now I am in a very good place, and maybe this approach might help others. That is my sincere wish - if only to help one person with this awful disease.

I don't know if garlic oil repeatedly applied to white patches in any other area would work, as it seems to me that every place you get it, it behaves differently, so I would be interested to hear if anyone else has had any success with that. My sincere best wished to all. Just because they tell us this disease is incurable, doesn't mean we shouldn't try to cure it.

Replied by Angela
Pasadena, Ca, Usa
I think that you will find that many people with LS were treated with creams before diagnosis because they or their doctors thought their symptoms were candida. So that would mean they already had LS, not that the creams caused it. That is what happened to me. I was diagnosed with LS after 10 years or more of symptoms that were missed by many doctors and midwives. One midwife saw that it wasn't candida, and saw the changes in the skin, but she apparently knew nothing of LS and called it non-specific bacterial infection, and had me take peridine baths. I've been using clobetasol sparingly for 19 years, and it has arrested the progress, but I don't want to use it anymore.
Replied by Lynn
Madison, Ms
[YEA]   Hi Everyone, I've been looking for anwers in many places regarding LS, I've had this for over 10 years myself and it affects my bottom/anal area mostly and I just got fed up with it all!

#1 I've greatly redued the amount of gluten I take in, amost impossible to go Gluten free, but baby steps...

#2 Whole foods, veggies, meats, fruits... I TRY to stay away from processed foods.

#3 and the most important Take a GOOD probiotic. NSM sells a great probiotic, available online.

#4 DO NOT Use the Steroid cream if you can help it! I use A&D ointment on my bottom after every bathroom visit. I also use an aloe/vitatmin E Infused toilet paper, cottonnelle with Aloe & E and Unscented Baby Wipes with Aloe and E after every BM.

The LS is very manageable, I'll even have sex again, my Hubby is so happy... My Gyno is amazed, he said my bottom looked normal! No Steroid cream for over 4 months... IF I have a flareup he suggested minute amounts of the steroid mixed with the A&D ointment... But so for ok, the ointment takes the "edge off" any itchy burny sensation. I know this doesn't cure the LS, but it greatly reduces the effects. Some holistic MD's say the issue is fungus so I'm on it about the probiotics.. I take a double dose once a day... Stay away from Dairy as well even yogurt w/ probiotics...

Replied by Mary
Encino, California
I am 60 years old. I was diagnosed with LS about 3 years ago and prescribed clobetasol which seemed to keep it from progressing. About a year ago and about 6 months after I had a gyn exam, I was horrified to discover that my labia was all but gone, I had scar tissue covering my clitoris, and the hood was at least 50% fused.

I have been receiving UVB light treatments (excimer laser) twice a week at first and now once a week for almost a year. Plus I use the clobetasol 2 weeks on and 1 week off. My symptoms have completely reversed. The scarring/lesions are gone. It took a bit of effort to get my insurance company to pay for the treatments, but they couldn't deny the supporting research. The clitoris, hood, labia have returned to normal. Occasionally I have some white patches and itching on the week I'm off the clobetasol. I have also eliminated sugar, wheat, dairy, and artificial sweeteners from my diet for about six months, which is why I think I have been able to reduce the treatments to once a week.

In my research I found and visited a cosmetic gyn who developed a surgery to unbury the clitoris without damaging the nerves. His name is Dr. Ostrenski. He is located in St. Petersburg, Florida. Doctors comes from all over the world to study his technique.

Replied by Clara
Mary, I'm having some of the same issues. What kind of doctor performed the UVB laser treatments for you? An OB/GYN or Dermatologist? Have the results lasted for you since your last post? Thank you for your help. The steroid cream is helping but not doing enough and some symptoms are progressing.

Vitamin E   0  0   

Posted by Andrea (Asheville, NC) on 03/01/2009

For Lichen Sclerosus, I have found that using a vitamin E capsule like a suppository overnight usually takes care of symptoms overnight. My MD prescribed steriod creams, which also work, but not as well. However, they are more convenient to use during the day. Although steriod creams are not natural, I believe a natural estrogen cream may work the same way. I have read lately that lichen schlerosis is often triggered by a decrease in estrogen in the body, so I'm experimenting with increasing intake of soy products, which contain natural estrogens. My MD also recommended probiotics and turmeric to control symptoms. Apparently, there is no cure available, just good symptom management.

Vitamin E, Lavender Oil   1  0   

Posted by Ajm (Alabama) on 12/22/2013

[YEA]  Lichen Sclerosus: Based on some of the suggestions on this site, I began using vitamin E oil and certified pure therapeutic grade Lavender oil on the affected area and all symptoms have stopped. Lavender oil has analgesic, antifungal, anti-inflammatory, antimicrobial and antiseptic properties, to name a few. I have had LS since puberty but was misdiagnosed until 3 years ago. No cure and steroids are a no-go for me so management is my focus. Symptoms vary based on diet, exercise, and hormones, though this combo seems to be working well so far. I may try the purple emu oil in the future or possibly make an essential oil combination using lavender, melaleuca (tea tree), and oregano. Thanks to the makers of this site! It helps a lot!

Wheatgrass   1  1   

Posted by Colleen (New Brunswick, NJ) on 03/29/2009

[YEA]  Wheatgrass Cure for Lichen Scelrosis.

I have had this for 2 years. and found Wheatgrass works wonders after using the topical steroids and it getting worse. I stopped using what the doctor prescribed and used WG and she was amazed and wanted to take pictures and everything. I tried many natural remedies and this is what I have found to work. I had about 6 months that was excruciating and painful sex but now and basically symptom free besides having a small patch of white spots that never real go all the way for good.

Wheatgrass pulp as a compress for 15-45 mins. Make sure it is juicy this is a little messy but very clean and has been proven as a remedy for many problems including yeast infections. Just holding the compress on for 30 mins made my white spots disappear and the skin that appeared was pink and healthy. Juice it and grow it yourself and use 1-2 times a week or get a wheatgrass shot at a heathfood store and ask for some of the pulp. I do this -you can tell them it is to treat a burn or infected cut b/c it is used for that too. You just bundle up the pulp and hold it on press it to your skin firmly. I sit and watch TV on the couch or in bed on top of a towel with paper towels on top. The chlorophyl is very rich and can stain clothing/sheets. Wheat Grass contains many minerals and chlorophyl so maybe this is why it works so well.

But, I recently got wheatgrass cream form an Australian doctor who makes it. it is sold on his website Dr. Wheatgrass. I find if I put this on a few nights a week the white spots disappear too and the skin heals. This stuff is amazing you can heal cuts and burns very quickly with it with generally no scarring. I also found that salt water baths help and Aloe Vera gel helps soothe, and tea tree oil ointment takes away itchiness.

I used the Nuva Ring birth control vaginal ring for 2 years and that is when my problems with LS started. Now I use a pill and generally have a little bit of white spots but no irritation at all anymore and the white spots always go away every month when I get my period. I feel maybe if I did not use hormonal birth control at all this would go away completely but am not at a point in my life where I can justify it as there is not as reliable of a natural method Hope this helps some people with LS b/c it is really awful to have this condition.

Replied by Stacy
Durango, CO
Hi, I haven't ever used this form of communication before but I have a question. A friend suggested to me that I may have lichen sclerosis. I have tiny razor blade slits up the sides of my labia majora (both sides)- they bleed and sting and feel much like a razor blade cut. Sometimes it seems to go across my perineum and over my anus, causing that to also be painful. I used to only think that it was from sex and maybe I had an STD but have been checked many times and seem to baffle the practioners - they often start questioning me about abuse. Well, now, I haven't had sex in two months and I have it again - so I am trying to figure out what it may be - my symptoms do not seem to be the same as what you are describing but I'm trying whatever avenue I can because it is quite painful and debilitating and I recieve no valid answers from practioners.
Replied by Linda
Houston, TX
Stacy from Durango - According to my good friend, a dermatologist, Lichen sclerosis can be diagnosed with a biopsy of the skin. According to her it is not that uncommon and you should be able to ask a derm or ob-gyn to biopsy the skin so you can get an answer and start treatment. I too have been diagnosed with it but I haven't had the biopsy yet. I will be doing that soon so I can get a definite answer. Steroid creams are used quite a bit to bring the skin back to normal. If you don't want to waste your time with an uninformed doctor, try calling ahead and find out if they're familiar with the condition. Good luck
Replied by Mary
Valencia, Ca
[NAY]   I was desperate for relief and decided to try the Wheatgrass lotion. The delivery was great. However, when I put the lotion on the vaginal area it burned like crazy. Not just for a short time. I put some more on later thinking it just takes time. Again the burning. So, I went back to my salt water which seemed to relieve the burning for a while. There must be something else out there but I don't have a clue. I don't have the itching, I have the soreness (sitting and exercising are very uncomfortable), redness and inflammation.


Replied by Tropical Qld
Australia, Qld
I have had LS for 13 years and had no idea what it was until I saw this post.

I have gone to the doctor and each time I go, they diagnose me with Thrush. So I'm so grateful to find that there are other women out there.

I noticed this in my teens and found everytime I had candy, chocolate or anything high in sugar, the itching would get worse. Bread from the grocery store and carbs in particular would also make the itching worse. For this reason, I just limited my carb and sugar intake (I have the sweetest tooth ever! ) and found that it was fine. Exercise, like 30 minutes of intense cardio regularly really helps with the symptoms.

I have young children and my diet has gone out the window and I've noticed that my symptoms are getting worse and the burning is getting more intense. I think I will have to get back on the bandwagon and continue with a 'healthy lifestyle.'

I have found cocoa butter oil helps with the itching and it's funny as I bought neem oil a couple weeks ago for this reason and looks like other ladies on this site have found it helpful.

Replied by Venda
Redmond, Wa
Biopsy showed lichen sclerosis, sorry I always misspell this. Prescribed ointment thinned out skin so it would easily break, so I stopped. Also when preg wanted natural option. Best natural relief: Burt's bees chapstick, with peppermint is the best. Can be used several times a day without irritation. Shower daily a must. If leaking urine after baby, wipe with wipey as well for extra cleaning. Actually have always been very sexual, and luckily this hasn't affected my drive :)

Witch Hazel   1  0   

Posted by Georgina (Tolmie, Victoria, Australia) on 03/04/2013

[YEA]  I don't know about the Essiac Tea but I recently read on a Lichen Sclerosa Forum about Witch Hazel. The writer had felt that in someway her urine was to blame for her symptoms. I had had some similar thoughts so decided to follow her advice.

For the past week I have been drying myself, after having a pee, with a tissue, and then wiping myself with a tissue with some Witch Hazel on it. The effect has been quite dramatic. No more itching or soreness at all.

Is it possible, I wonder, that there is some toxic reason for the urine to affect the vulva so badly. All one gets from the medical profession is that Lichen Sclerosa is believed to be an auto-immune system breakdown. That seems to be their answer for anything they don't have an answer for.

In closing I should say that I don't believe my Lichen Sclerosa to be a really bad version of the complaint although I have had it for the past ten years. If I can stop using the Diprosone Ointment by using Witch Hazel I shall be well pleased.

Zinc Oxide   3  0   

Posted by Janet (Anglesey, Uk) on 10/29/2012

[YEA]  After months of suffering and using steroid creams to no effect I used zinc oxide and within 24 hrs the soreness, redness and discomfort had gone. I have only applied the cream 4 times but the affected area seems to be almost back to normal. Miraculous result

Replied by Sydney
Richmond, Virginia/usa
I have had LS for 18 years. I have tried everything my doctor has suggested and had it under control for many years. About 1 1/2 years ago I had a flare up that has persisited. I am burning and itching. I can no longer use the prescription medications. I have tried Perrins products which helped at first but are no longer giving any relief. I am considering other options such as Emuaid and the Zinc Oxide powder or Scar-Zone mentioned above. I have tried Desitin which contains zinc oxide, in the past however, and am wondering if I need to even try to zinc oxide products. Can someone tell me if there is a significant difference? Has anyone tried the Emuaid?

Also, for immediate, calming relief there is a product which is mixed with water and used as a compress. It is available at most drug stores and is similar to the vinegar idea. I have used this for years with flare ups.

Replied by Agnes
Merritt, Canada
I brought some zinc oxide powder. Do I make a paste and put it on the affected area?

Posted by Leslie (Sydney, Australia) on 12/09/2011

[YEA]  There might be some hope for LS sufferers by using Zinc Oxide powder. I'm a 69 year old male and I first got LS at about age 30. After trying a few other treatments I tried simple ZnO powder. Within about 2 days most of the annoying symptoms were gone, and by 2 weeks it was like I never had LS (apart from a little scarring).. LS reappeared about a year ago and I treated it again with ZnO. Amazing, the clearing up of LS as I got 40 years ago. I don't think that the treatment can be as simple as ZnO, but it has worked miraculously for me both times. The reply of Kim from Effingham above is the first time I have seen mention of ZnO working for anybody else.

Posted by Kim (Effingham, Il Usa) on 11/22/2011

[YEA]  Hello again on LS... Found something I wanted to share that is working for the elimination of the small white lesions and itching. It is called Scar-Zone. The zinc oxide and antioxidants completely resolve the itching and thinning/white lesions. I hope this helps someone with this dreaded disease. Not sure if it will completely resolve the issue. Please respond and let me know. Thanks.

Replied by Rekha
Where can you buy scar-zone in the USA? Thanks


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