Lichen Sclerosus Remedies

Chemical Link to LS  

Posted by Anna (Toogoolawah, Queensland Australia) on 12/05/2010

Asian ladies report that LS is caused through the non washing of new under garments before wearing. I worked in China for 10 years and developed LS whilst there and went to see a doctor (Western man) he had no idea of what it was or how to treat it. I went to a pharmacy and the old gent told me the cause was due to new clothes unwashed first as they were contaminated with all sorts of chemicals. Same applies to chain store(cheap imported clothing) clothing.

I use Neem 100% pure oil after I have soaked in a small bath (baby bath if you can fit lower end in it) in Magnesium Chloride flakes once a week for about 20-30 minutes. 2 table spoons to half a bucket or 5 litres of warm water. Relax and read a book or something. Wont cure it but it brings relief and you wont be using dangerous/harmful drugs.

Replied by Maria
Gippsland, Australia
12/06/2010

It was either last year or early this year there was a report on a TV show (Landline I think) about the amount of formaldehyde that is in imported clothes that are made overseas. 700 times (and no the 700 is not a misprint) the normal level of formaldehyde was found when they tested them. It is used to help prevent creases and prevent insect and rodent damage whilst in storage. So who knows what other chemicals are used as well. I know of many people (myself included) who cannot even touch new clothes or any new material. It used to take 2 or 3 washes before I could use anything new. I used to have my mum or a friend do the 1st wash for me and then we could have it in our laundry. It now takes 7 - 8 washes before I can touch them. This includes soakings in bi-carb soda before washing. The last pkt of knickers have been washed so many times and left out in the rain but I still cannot get them clear. So it looks like the pennies will need to be saved to buy organic underwear.

Replied by Wendy
Canada
05/27/2014

I have had LS for 7 years. I always wash my clothing, etc before wearing them.


Coconut Oil  

Posted by Victoria (Wichita, Kansas) on 12/06/2010

Has anyone tried Coconut Oil for this condition (LS) ?


Coconut Oil, Homeopathy  

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Posted by Linda (Auburn, Ca) on 05/01/2015
4 out of 5 stars

I was diagnosed with Lichen Sclerosis on April 16, 2015 after my OB GYN did a vulvar biopsy. I had been suffering for 20 months with symptoms but the current flare up has been the worst ever. My doctor prescribed the steroid, clobetasol, but I must be allergic to one of the preservatives because my symptoms became even more intense. I have stopped the steroids and I'm searching for some type of relief. What has been very soothing is using organic coconut oil before (used as a barrier) and after going to the bathroom. Two days ago I picked up a homeopathic remedy for shingles at the health food store that has greatly reduced the itching and pain. It did sting when I applied it so I have been diluting it with castor oil.

My question: Has anyone tried UV Light Therapy as a treatment for LS?? I had a horrific eczema outbreak on my legs and after using the UV Light Therapy, it completely sent away and has never returned.

Replied by Rusty
Lansing, Mi
05/08/2015

Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.

Replied by Rusty
Lansing, Mi
05/08/2015

Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.

Replied by Pan
Holland
05/28/2015

I read about a 60 year old woman, here on EarthClinic, who has been healed by UVB light treatment (eximer laser). Her symptoms have been completely reversed. I wish she could tell us who gave her the treatment. And how comes this is not world news?

I will ask (again) for some Dutch doctors here and will let you know. In the meantime I sit in the sun, in lotus... now and then.

Replied by Ref
Iowa
09/11/2016
4 out of 5 stars

I also have found coconut oil to be very helpful and it does not have the odor or expense associated with the creams for LS sold on Amazon. Also, I am afraid of using too much clobetasol proprionate and allowing it to thin the skin. Coconut oil lets me to spread the steroid on thinner and use it less frequently.


Cold Water, Evening Primrose Oil  

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Posted by Ann (Kennesaw, Ga) on 05/18/2013
5 out of 5 stars

Have had LS for last six years. Severe pain and itching. Some days could hardly walk. I starting using cold water in a sitz bath every day what a relief. Every time I urinated poured cold water from tap overVJ. Also take evening primrose oil two or three a day. At night open a gel cap of the oil put on VJ. I am 90% better. I have tried everything. Cold Water is working for me.

Replied by Frankie
Brooklyn Ny
11/02/2016
5 out of 5 stars

You're right, cold water always work.


Colloidal Silver  

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Posted by Cari (Ca) on 03/26/2016
5 out of 5 stars

I use colloidal silver gel for lichen sclerosis. Helps immediately.

Replied by Elisa
Utah
06/06/2016
4 out of 5 stars

For lichen sclerosis: I'm happy to see someone else on here trying colloidal silver gel. I have been using this also and it has helped a lot.


Comfrey  

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Posted by Anna (Queens, Ny) on 09/25/2016
5 out of 5 stars

I cured the LS with a comfrey cream imported from Croatia. I suffered so much the whole last year that I did not want to live. My Croatian friend gave me the comfrey root based Croatian cream. It healed me. I don't have the itch and the inflammation anymore. I use it once or twice a day consistently.

Replied by Compastella
Middle East
11/28/2016

Anna,

Please I need to know exactly what the cream is and where to get it urgently. The pain is immense.


CoQ10  

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Posted by Ellie (Kansas City, Mo) on 08/17/2015
5 out of 5 stars

Recently diagnosed. Location in anal area, on chest, stomach, and legs. Oh holy night the Chronic anal itching during day is terrible!!! The SEVERE, wake me up, loss of sleep, night itch... makes me want to scream into my pillow and cry. Wait I have done that!!!! Punctured a COQ10 softgel and placed directly on anal affected area at 7:00 a.m. (Warning!!!! ' it Burned like hell but I felt instant itch relief. Burning sensation lasted 10 minutes) Just for testing purposes, I placed it again at 5:00 (still burned but way less this time) It is now 9:19, not one time did I have to sneak off into the bathroom at work to scratch and I have been laying in bed for over an hour without a hint of an itch. Crossing fingers (haven't had a solid night's sleep in 14 months & I hope this allows me to sleep through the night)!


Dietary Changes  

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Posted by Emily (Los Angeles, Ca) on 10/08/2014
5 out of 5 stars

All of my Lichen Sclerosus symptoms disappeared within about a week of starting the raw food diet + supplement. I had horrible LS symptoms for 2.5 years and was 12 doctors before being diagnosed. I also have contact dermatitis (skin allergies) and was prone to yeast infections, both of which made it even more inflamed. Anyway, after trying tons of home remedies and not wanting to be on steroids long term I decided to focus on my immune system.

So, I started taking Culturelle and eating a 90% raw food diet (MOSTLY vegetables and SOME fruits). I like to blend them up so the sweetness of the fruit makes it more enjoyable to eat a lot of greens. I recommend watching documentaries like "Fat, Sick & Nearly Dead" and "Food Matters" to kick start your new diet. Supplements I take are liquid B Complex, Zinc, Fish Oil, and a did a 2 week Essiac tonic detox which is easy and inexpensive. YOUR BODY IS ABLE TO CURE ANY DISEASE OR ILLNESS IF YOU PROVIDE IT WITH THE RIGHT FOODS. You should avoid sugar and minimize animal products (milk, eggs, meat). Less than 6% of Doctors get any nutritional education in school so don't listen to them if they tell you you don't need to make dietary changes like they told me.

Replied by Pan
Holland
12/06/2014

Hi Emily, Do you mean you are cured? Is it really gone, or 'just' the symptoms? I can prevend the itching by using oil on the white area, but the pain stays. I do not eat/drink: gluten, sugar, dairy, alcohol, black coffee, black tea. I meditate and sport a lot. My main whish is to get back the soft skin around my clitoris. It is hidden now...and I would love to dare being intimate again, without pain and with more joy!

Replied by Priscilla Winslowe
San Mateo, Ca
03/05/2016

Emily, Do you mean you have cured your Lichen Sclerosis by eating a raw food diet? How many weeks of eating the raw vegetables, including the greens, and berries as fruit did it take?

Are you still cured? Do you no longer have 'itch" or 'white patches" in the pubic area?

I bought a book called " LICHEN SCLEROSIS -HEALING THE DISEASE" by Ginny Chandoha...Helping the Body Heal Naturally" ISBN9781836711345, , , how she cured her lichen sclerosis..

Among other things, she used organic, unrefined, coconut oil on her itch and stopped the itch at that moment...etc She eats organically.. Also heard that Dermatologist Doctor prescribed steroid cream DESONOIDE CREAM 0,05% that took itch away..to be used sparingly.

Has anyone read this book or tried this cream? And cured themselves? I just got this book this week. Great ideas in it that helped me a lot.

Priscilla-on March 4,2016


Dietary Changes, Essential Oils  

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Posted by Cindy (Newberry Fl) on 03/13/2016
4 out of 5 stars

I started with Lichen Sclerosis at 56 years old in 2014 with a spot on my breast and white patches starting on the underneath side. This diagnose came shortly after I fell and ended up with a par fracture and bulging disks in my back. I used whatever cream they had giving me along with eating 80/20 alkaline. I completely healed that area and it hasn't come back to this day and it's 2016.

Over the holidays I splurged eating too much of the good stuff and started with it in the vulva area. At first I thought I just scratched myself while wiping. I started getting worse in the next three weeks. Sleepless nights and the scratching and rubbing was getting out of control. I finally called the gyno. I couldn't get in until Monday so that meant go the whole weekend. I faithfully took me essential oils and immediately got off everything that had sugar in it. I was in and out of the tub with a few inches of water and baking soda at least 25 times or more to get relief.

I had called the doctor on call that Saturday morning she told me to use desitin. It helped a little along with the bath. I also took some Benedryl. I finally got a mirror out and looked down there. I knew right away the Lichen Sclerosis had got me. Saw the gyno next day. She wrote the script for a steroid. When I went to pick it up they wanted 250.00 I just about started crying. I have been out of work for almost two years from that fall.

Little did I know at the time this was in my favor. When I looked up the Lichen Sclerosis I read terrible things about what the steroid cream does to you. There was no way I would use that down there. That stuff shouldn't be allowed. What the doctors should do is hook up with a homeopathic doctor and get educated. I couldn't get it so I went home looked up lichen sclerosis vs alkaline and lichen sclerosis vs essential oils. I get them from a reputable company. Find yourself a health coach that knows how to use them.

I stopped all the sugar, flours, fruits and vegetables high in sugar. (No carrot-sweet potato-potato-rice etc.). When I cheat (like have a few organic gmo free chips) I know it because my lichen sclerosis acts up again. I also used a product called emu oil-then switch to emuaid. They helped a lot. I'm running out of emuaid so someone told me her oncologist told her to tell me to use bag balm.

I am using that now. I also got a squirt bottle and rinse every time I pee with water high in PH/alkaline water. Tap water makes it sting. I no longer have any splitting and cracking and my color is back. I barely have any scarring left. You must take care of leaky gut to get this to clear.

Oh by the way I've already been able to have sex again. I am on the road to recovery and feeling better than I have in many years and I've lost some weight and inches too. I also found stress can also add to this problem. From my experience so far I'm finding for me that changing my eating habits is the way to heal and get past this lichen sclerosis.


Eliminating Artificial Sweeteners  

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Posted by Lori7nty7 (Nashville, Tn/usa) on 01/21/2011
5 out of 5 stars

For Lichen Sclerosus, eliminate diet drinks, Soda and Crystal Light sweetened with aspartame from your diet. Aspartame is made out of wood alcohol, a toxin. When Aspartame 1st came out many years ago, I had the same symptoms, they now call Lichen Sclerosis. My doctor worked with me eliminating foods and drinks I was ingesting. We found my symptoms would elevate after aspartame drinks. After eliminating aspartame from my diet, I felt relief within a few weeks. Although it took a year to clear up all symptoms. I have been free of all symptoms for many years now. I read all labels, I do not eat or drink anything with aspartame.

Replied by Rita
United States
05/22/2014

I have noticed a lot of comments about artificial sweeteners being suspect. Not true in my case. I am 45 years old and have always avoided artificial sweeteners due to the controversies. I have found that less sugar, in general, has helped with mine. When I was first diagnosed, I was given Clobetasol. At the time, my vulva had scarring but nothing like it does now. I won't be graphic but I do believe the steroid cream/ointment is what has caused even more narrowing/scarring at my vaginal opening and various other important areas. I also, strongly believe, I have an undiagnosed thyroid issue.

Replied by Lynn
California
07/23/2014

Rita...for scarring: have you ever been offered estrogen cream (estradiol--prescription only in the U.S.) to apply to the scars? I have been reading that many people have seen their scars "break up" with the use of the cream. It doesn't matter what your age..even young children have shown improvement with it's use. It's not enough hormone to be absorbed by the body or change your own hormones. It's just a small amount rubbed into the scarred area. Do a search for Lichen Schlerosus and Estrogen Cream.

Replied by Elizabeth
New Zealand
02/27/2015
5 out of 5 stars

I don't know what the relationship is but I have flare ups if I drink sweet soda whether artificially sweetened or not, organic or the usual. I haven't noticed any other strong correlations.


Eliminating Dairy  

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Posted by Kerry (Wenatchee, WA) on 07/23/2009
5 out of 5 stars

I was diagnosed with Lichen Sclerosis 4 years ago in genital area and my eye lids. What I found that helps the most is to eliminate dairy from my diet. For a year or more, I had to eliminate all mammal products too. So no dairy, pig, cow, lamb, etc. So first, figure out if you have a food sensitivity. Second, DON'T eat foods that bother you. Gas, diarrhea, bloating, constipation. These are all signs that your body can't tolerate what ever you ate. Symptoms can be fairly immediate to 24 hours later.

Third, take a high quality fish oil. For me, 4,ooo mg seem to do the trick. I don't have any vaginal itching and my eyelids don't stick to my eyeballs at night as long as I unless I indulge in cheesecake on my birthday or forget to take the fish oil.

As a side note, as of two years ago, I have adrenal fatigue too. These measures help with that too.

Replied by Jackie
Houston, Tx
09/24/2009

Hi Kerry,

I noticed that you mentioned you had this Lichen Sclerosis on your eyelids. Can you describe what the symptoms are on the eye? I believe I have LS in the nether regions but noticed that my eyes have been very dry and itchy. I thought that maybe there is a connection.

Thank you,
Jackie : )

Replied by Paula
Garrison, Ky
09/29/2009

I have noticed the same thing, all meat, dairy and even sugar acts up my LS horribly. Ive basically went Vegan since the perscribed cream did nothing for me and my dr ran out of options and I was told to "learn to deal with it". I went on an all juice diet thinking it might be linked to my thyroid or something else so I juiced daily, then I noticed I felt great during the 7 days of all juice, when I added in food back in its when I noticed the symptoms back with in minutes of eating certain food. The only time my LS goes away is when Im sick then I have No LS at all until my cold/flu goes away then it comes back with a vengance!!!

Replied by Frannie
Wilsonville, Or
09/12/2010

Kerry from Winatchee....... I also suffer from both ailments - adrenal fatigue and lichen schlerosis. I had the lichen schlerosis under control with steroids, but now it's back worse than ever a few years later. I'm looking for a better solution. Natural if possible.

Replied by Rob
Manhattan, New York
09/12/2010

Some herbs to address adrenal fatigue are, Ashwaganda, and Rhodiola.... I would add to that a good mushroom formula with Reishi... Or AHCC if you can afford it. Also the B12, B6 and Folic acid to low homocysteine.. You will notice a difference with the above... But most importantly, exercise, (yoga) and meditation (walking, breathing)

Replied by Elizabeth
New Zealand
02/27/2015
5 out of 5 stars

Wow, I hadn't put the two together. My eyes are dry and red when I have the flare ups. Never realized that before this post. Thank you.


Eliminating Wheat  

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Posted by Suzzie (Portland, Oregon) on 03/21/2013
5 out of 5 stars

Eating Wheat was what was causing my Lichen Sclerosus symptoms. The symptoms I had was shrinking labia minor, horrible drive me crazy itching of my clitoris and the area to the entrance to my vagina was not supple at all and was painfully tight. When I quit eating wheat, the itching completely stopped after about a week. (It may take longer for someone else to experience total relief, as the effects of wheat can stay in the body for 6 months) After a month off Wheat, the tissue in my labia minor has started to plump up again and the entrance to my vagina is now supple and stretches like it should. No more pain!!! Halleluiah!

I encourage everyone to read the book "Wheat Belly" by William Davis MD. Modern Wheat has an inflammatory effect on the body, whether you feel the symptoms or not. There is a myriad of diseases that disappear when wheat is eliminated from the diet. Modern Wheat has more in it than just the gluten that causes allergies and doctors do not test for these. Even whole wheat bread (thought to be healthier than white bread) will raise your blood sugar higher than eating a candy bar! There is an episode of Dr. Oz where they showed this is true. This is true even if the bread is made from organic wheat.

To add to the inflammatory effect on the body of Wheat, here in the United States, 90% of the wheat (including corn, soy and canola) produced is "RoundUp Ready". (Only a few years ago that number was 60%) It has roundup poison molecule inserted into the grain so the fields can be sprayed to kill only the weeds. Then the whole field is sprayed with RoundUp, which is absorbed into the crop adding more poison which is later ingested by animals and people. In the US they do not have to label any food that is GM. Every time it goes to vote the industry uses scare tactics about the cost of food going up as a result of new labeling laws. This is simply not true. Many grocery prices have doubled in the past 5 years regardless. You can't put a price on our health, because the alternative is costly for sure! * * * I believe we are already seeing the health consequences from these genetically modified foods, but we can't yet prove it is due to them. I think we are going to see more illnesses that used to be rare, and see new unexplained illnesses due to GM RoundUp ready foods.

Replied by Effingham
USA
09/03/2013

Well, it is 2013... Just wanted to let everyone know, I have managed this disease very well with the "Curezone". After careful research and self experiments... I must agree with Suzzie from Oregon. I have read Wheat Belly, but realized this before the release of the book. Found out that eating GMO chips (corn) would send my LS through the roof. I also noticed other products - milk, breads.. They all have in common the GMO.. Round up toxified stuff. I made an honest effort to stop all these and my symptoms clear up. I rarely use the curezone, unless I eat these poisonous foods. Check out all the research on "hyperimmune" and "autoimmune" also "genetic transfer" of the altered DNA in GMO's.. Which could cause permanent changes in our DNA in turn which constantly triggers above responses. Stop the insanity of this food. Why is it that other countries outlaw it but not the USA. This has to be the culprit like the "immune" issues the Bee's are presenting with... Food for thought. Peace.

Replied by Cindy
Canada
12/18/2014

Did you just go wheat free and sugar free, or grain free? Due to my jst flashes, insomnia, my nutrtionist said I should give up all grains which I did for almost two months and things were getting better but not quite perfect, I think nightshades and dairy are culprits... It was just so expensive eating organic, buying all my vitamins, etc that I. Ould to keep it up. I ended up going on bioidentical hormones which mostly work. I believe I have had LS for over ten years and just now my Dr did a biopsy for it. I'm using cortisone but it's only been two weeks and things are a bit better but far from perfect. I have raw areas around my opening that aren't healing much, I have not been able to have intercourse for six months. Wondering what to do. I will try wheat free and sugar free and go from there I guess.

Replied by Elizabeth
New Zealand
02/27/2015
1 out of 5 stars

Fairly irrelevant but no, 90% of the wheat is not roundup ready. It is desiccated before harvest with round up but GMO wheat, though it exists is not approved for planting. What is out there is an accidental escape from test plots. I highly recommend avoiding any contact with RoundUp if you have any autoimmune issues at all, ever, under any circumstances. But, if Monsanto asks, I didn't say that.


Emu Oil  

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Posted by Relief At Last (Toronto, On) on 02/11/2012
5 out of 5 stars

Hello, I have had LS for about 5 months now. It went from a patch of white skin to scaling skin in very quick order. As I did not want to use steroid creams I researched the internet for alternate solutions. I have added a probiotic to my diet, drink more water, and generally try to keep all sugars and processed foods out of my diet. After trying a few alternate solutions that only temporarily stopped itching, I ordered some Pure Emu oil and although I have only been using for a week I am pleasantly surprised. No itching, the skin seems to be returning right back to normal-texturewise. I will have to wait to see if the white patch returns to its natural colour.

I plan to check in here in a few weeks to update on my condition.

Good Luck to all. This is a horrid thing to live with.

Replied by Peter
Auckland, Newzealand
07/20/2012

Ostrich oil seems to work as well, it could be that the oil from other birds may work as well.


Posted by Carolyn (Pittsburgh, Pa) on 11/26/2011
5 out of 5 stars

When diagnosed with LS I was prescribed a steroid cream. The cream instructed to discontinue use after 2 weeks which concerned me so I went looking for another solution. The Doctor said it is one of those conditions that the medical field simply doesn't have an answer for... No one knows how you get it or how to cure it and I have found the same on the internet. The Purple emu oil is great. It is an anti-inflamatory and highly moisturizing which deals with 2 of the symptoms. It really keeps the LS symptoms to a minimum. I will also use it on blemishes, dry skin, and I rub some on my nails before bed time which keeps moisturized and nice.


Posted by Misha (Binghamton, New York, USA) on 01/26/2009
4 out of 5 stars

For LS, I have been trying purple emu oil with good results. As they say this condition is related to autoimmunity problems, I have also been taken probiotics, which they say are good for calming an overactive immune system. I will keep the earth clinic community posted on my progress.



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