Lichen Sclerosus Remedies

Last Modified on Aug 07, 2014


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Emu Oil   2  0   

Posted by Carolyn (Pittsburgh, Pa) on 11/26/2011

[YEA]  When diagnosed with LS I was prescribed a steroid cream. The cream instructed to discontinue use after 2 weeks which concerned me so I went looking for another solution. The Doctor said it is one of those conditions that the medical field simply doesn't have an answer for... No one knows how you get it or how to cure it and I have found the same on the internet. The Purple emu oil is great. It is an anti-inflamatory and highly moisturizing which deals with 2 of the symptoms. It really keeps the LS symptoms to a minimum. I will also use it on blemishes, dry skin, and I rub some on my nails before bed time which keeps moisturized and nice.

Posted by Misha (Binghamton, New York, USA) on 01/26/2009

[BETTER BUT NOT CURED]  For LS, I have been trying purple emu oil with good results. As they say this condition is related to autoimmunity problems, I have also been taken probiotics, which they say are good for calming an overactive immune system. I will keep the earth clinic community posted on my progress.

Essential Oils   1  0   

Posted by Melody (Beebe, Ar, Usa) on 07/27/2012

[YEA]  I believe the Lichen Sclerosus is a yeast/fungal infection and can also be a Thyroid problem. My family uses Essential Oil of Thieves, Ocotea, Oregano... To name a few that are antifungal oils and do no harm to the body. Myrrh oil is also GREAT for the Thyroid. Please do not try using oils that are not pure... Know the company you purchase from and make sure they are pure. Fungus disappears when the oils are used.

Posted by Ab
New York
10/16/2013
Hello, I am thinking I may have LS just because of the symptoms I am experiencing. Can all of the essential oils be used in conjunction with one another? Also would Vitamin E oil work as well?

Essiac Tea   2  0   

Posted by Mk (Usa) on 11/26/2013

[YEA]  I started using Essiac Tonic a few days ago. My symptoms have gotten so much better already. I'm also taking/eating probiotics and taking slippery elm & marshmallow root to heal my gut (I think I have a leaky gut and it causes my LS). I'm also on low-oxalate gluten-free diet. I really do think that Essiac Tonic will cure my LS, combined with proper diet.

Posted by Daisy (Ewa Beach, Hi) on 11/10/2012

[YEA]  I had Lichen Sclerosus and was misdiagnosed for a year. I got it under control by steroid creams but it was not gone. For a reason I don't need to go into, I bought someone a detox liquid called Essaic Tonic Tea (nonalcohol) and they didn't want it. So not to waste my money, I used the whole bottle and was cured! I told my friend with Lupus and she takes it and it is making her feel better. It is a miracle the way this stuff works. Its all natural and won't hurt you. I don't sell it, you have to go to a natual health food store and buy the nonalcohol formula.

Posted by Rsw
Uniontown, Oh
11/16/2012
435 Posts
Hi Daisy, Can you tel us how long you took the essiac tea tonic and how many times a day did you take it? How many drops? You are the first person who has ever been cured of LS that I have seen. I have Lichen Planus and have been trying to cure it for almost ten years. My doctor and dentist admit they don't understand the disease. Mine is all internal and systemic, no skin outbreaks.

I have been trying Lisa's suggestion for water kefir for about a month and I think it is good for the whole body. I have ordered some essiac tea with high hopes, and passed your tip along to others with LP. I am praying this works for me and others. Thank you so much for posting!

Posted by Daisy
Ewa Beach, Hi
11/19/2012
6 Posts
I took the whole bottle, I was cured within a few days of taking it but took the whole bottle of non alcohol formula. I really stress this because the alcohol one tastes God awful. Anyway, read about the benefits on the internet. I bought the liquid kind. 40 drops on an empty stomach in the a. M. And 40 drops on an empty stomach in the pm. I really want someone esle to try to see if it cures them too! I was diagnosised through a doctor and told and prescribed all the same stuff as anyone else. Essaic Tonic Tea purfies the blood, cleans the organs even the lungs and is a parasite killer too! Again, I took this not intentionally trying to cure my LS but I am cured. I haven't had a break out since this year June and no longer use any creams.
Posted by Joni
Selma, Oregon
11/20/2012
Hi Daisy, The only type of Essiac I've seen is in a powder form for making a tea. You said your product is in liquid form. Is this a tincture? How wonderful this has cured you!
Posted by Daisy
Ewa Beach, Hawaii
11/22/2012
6 Posts
Joni, it is made from different plants. It is an old native american cure and people are claiming it shrinks tumors. Its so gently you can use it on your animals. Chemotheraphy patients are using it along with thier Chemo. It comes in all forms... Powder... Pills... Liquid... I prefer liquid... I have a hard time swallowing pills. I hope it works for others. It is wonderful not being itchy especially at night. I have some scaring on my wrists but all other scars have healed. If this doesn't cure others... than I have received a miracle from God.
Posted by Linda
Reno, Nv
11/23/2012
Daisy, where do you buy your essiac toner with no alcohol? Looking on the internet and seeing only ones with alcohol in them.
Posted by Daisy
Ewa Beach, Hawaii
11/23/2012
6 Posts
I buy mine from a [local] health food store. It is also sold online by different people who sell it. Usually health food stores have it and it is in the detox section of the store. I live Hawaii where everything is shipped in so, I purchase it for about $25 a bottle. I plan on taking this 3 times a year. Next year, I will buy a bottle in March, July and then in November.
Posted by Linda
Reno, Nv
11/23/2012
Daisy, thanks for your reply. Is this tonic something you need to take everyday? You mentioned using 3 bottles for a whole year.
Posted by Daisy
Ewa Beach, Hawaii
11/25/2012
6 Posts
I would treat it like a detox and only take it a few times a year. A bottle of drops lasts me about 2 weeks. When taking it I feel great... I even get a zing in my step. But I wouldn't take it every day all year long. Just a few times a year to reclean and purify your body and blood. Again, if you do take it and it works or doesn't work let me know. If it doesn't work, than I know it was a miracle I was healed and I will quit telling people about Essaic. If it does work than we can let everyone know it really works. I have yearly appts. Now with my doctor and she doesn't know I am cured. I can't wait for my appt and bring the bottle of Essaic Tonic Tea with me.
Posted by Rsw
Uniontown, Oh
11/25/2012
435 Posts
Hi Daisy, I ordered essiac tea, which I will brew at home, and it should be here this coming week. I hope it will work as well as the tea tonic, which I didn't see on the Internet. If this works, you will have found a very elusive cure and many people will finally find some relief from these miserable autoimmunes. I have tried every lead that seems plausible for ten years and I'm so excited to try this! Thank you, Daisy, for posting your experience on EC. I hope we get a bunch of success stories!
Posted by Joni
Selma, Oregon
11/25/2012
2 Posts
Thanks Daisy, I am going to get some Essiac and will certainly let you know the results. I absolutely believe in miracles. God doesn't always work in the same way for all people, but I won't know if this will be my miracle too until I try!
Posted by Linda
Reno
11/28/2012
Daisy, I am going to try it and I will let you know for sure if it works.
Posted by Mjf030947
Las Vegas, Nv
01/20/2013
I have LS and want to know how to apply the essaic tonic.
Posted by Daisy
Ewa Beach, Hi
02/21/2013
6 Posts
You drink it.
Posted by Kim
Florida
08/19/2013
To Daisy from Ewa Beach: Does the Essiac tonic still works for you? I was going to try it myself and was wondering if your LS ever came back?

Essiac Tea, Homeopathy   2  0   

Posted by Kate (Auckland, New Zealand) on 03/02/2013

[YEA]  Last year I had my first flare up of Lichen Sclerosis, I didn't know that's what it was till I got it back this year in early February. I'm not interested in using steroid creams so I researched alternative treatments and came across Essiac Tea. I followed the instructions, it is now early March and it is almost gone. I also used homeopathic remedies to ease the itch, inflammation and splitting. Homeopathic Graphites, Urtica-urens, Nit-ac and Apis, each in a 30c potency. Am also taking homeopathic Kreosotum and Petroleum and they are taking away the last of the splits and itching. Hope this helps anyone suffering this awful affliction, feel free to message me. Xx

Posted by Desperate For Help
Grabill, Indiana. Usa
03/02/2013
What brand of Essiac tea did you use? I am desperate. There are different brands... Liquid and powder. Please advise. Thank you.
Posted by Sher
Nj
01/23/2014
[YEA]   "My condition was self diagnosed. I have had LS for several years now and non of the doctors could figure out what it was. Finally my condition got worse and started researching the symptoms and couple of months ago I figured what I had. I came across this site to find cure for this and I took Daisy's advice and ordered some Essiac Tea to cure it internally and used Perrin's blend for external use. It's been almost a month and I am feeling much better. The white patches have almost disappeared just 2 small areas to be treated. Also I've heard that this could be due to some emotional trauma and shame so I am sending myself some luv every morning and night. Essentially I am doing three prone healing - internal, external and emotional. I am optimistic that I am getting better and better everyday. I will keep you posted.

Frankincense Oil   1  0   

Posted by Gentlestrength (Globe, Az) on 01/27/2014

[YEA]  Frankincense Oil completely healed my painful LS very quickly! To think that I had suffered with this for over 4 years. At first I was embarrassed thinking that it was a painful VD but because of the itching thought it was a candida fungal problem. I tried EVERYTHING... with various results but it kept returning and was excruciatingly painful. Rosewater sprayed on the area would stop the itching though. Yes, I even tried Oregano oil diluted, white iodine with DMSO, baking soda baths. All would help for a day or so but would not heal it.

Then I read that this was a precancerous condition and very closely tied to emotional issues. So I immediately started using pure Frankincense oil and within two days could tell it was healing. No pain, no itching and the lesions were disappearing. I used two drops in the am and in the pm for three weeks. Now it is GONE! I'm so thankful for this healing and am staying off sugar and starting to eliminate wheat! I can sit without wincing and walk without that pain! Thank you EC for your awesome website to help us all!

Posted by Mary
Minneapolis, Mn
04/10/2014
I had a question about the frankincense oil, did you use it straight or diluted?
Posted by Paula
Toronto Canada
04/22/2014
A further question about the use of Frankincense Oil - did you use it topically or did you take it internally?
Posted by Asrana
Rancho Cordova, Ca
05/12/2014
Oil of Frankincense, as well as any other essential oil but Oil of Lavender, should NOT be used neat (undiluted) put the drops in a carrier oil and apply topically. Do NOT take it internally!
Posted by Linda
Mariposa, Ca
06/04/2014
Was the Frankensence oil applied topically?

General Feedback   0  0   

Posted by Charles (Callifornia, US) on 08/06/2014

Free treatment for those who qualify for this research project for the treatment of Lichen Sclerosus. Go to this website: www.LichenSclerosusTreatment.com

Honey   1  0   

Posted by Jennifer (Warwickshire) on 02/14/2014

[YEA]  I have found using a good quality honey applied topically to the area a few times a day until the symptoms are relieved does reduce itching and irritation.

Lichen Sclerosus Remedies   0  0   

Posted by Rosedancer (Salt Lake City, Utah, Usa) on 05/26/2013

I was told I have Sojurns disease also and didn't quite know what to do, now I have been told I have LS. I was so surprised, I have never even heard of this. I just had a physical and was told I should go to the GYN doctor. She wanted to put me on steroids and hormones. I have been breaking out with extreme itching, eczema on my chest from my neck almost to my breasts. It seems to go away when I do only a VERY clean diet and spray colloidal silver on it. I was diagnosed in 1997 with Chronic Fatigue and have dealt with that with diet and herbs. Now the LS, I am really thinking what the h...!!! I am 66 and have been divorced for 8 years and have not had sex and have met someone and thought I might want to be intimate with and wanted to be sure I am okay. Then I find out I have this. I have not had itching but it is very inflammed and sore. I am reading that people have used strong herbs and healed this. I would love to hear from people that have had success in healing this. I find it interesting that I was molested as a child and did not really feel connected to that part of me and I am now very open to healing both physically and emotionally.

Low Oxalates Diet   2  0   

Posted by Sandra (Ottawa, Ontario) on 04/28/2012

[YEA]  I have had LS for a year now. I went on the Low Oxalate diet in September and noticed that the itching immediately began to subside (a HUGE relief considereing I was returning to work and hadn't been able to wear pants for the past 4 months). I had also been experiencing extreem fatigue and digestive issues, which went away within a matter of days. After about a month I was at a confrence and cheated by eating a sandwich and cookie. I was exhausted.

I switched up the low oxalate diet for a gluten free diet and found that the fatigue and digestive symptoms went away, the LS became gradually less itchy, and the white patches started to disappear. I have not had to use steroid cream for months and I have been able to resume a normal sex life. After a significant improvement I realized that while the dietary change was helping it was not the only answer. I had also noticed that the itching would be the worst when I was lying down or sitting for long periods of time so I started jogging. I started off with 2km and have worked up to 6km 3 times a week. I think that the extra blood flow may be what is helping, because I did do regular excercise before, but it was yoga which was much lower impact and much less demanding to the cardio-vascular system. I would like to mention that I have also not had athsma for months since changing my diet. Trying the low oxalate diet an was the best thing did for my LS.

Posted by Healthygirl110 (Sacramento, Ca) on 02/18/2012

[YEA]  I've been able to reverse Lichen Sclerosis by going on a Low Oxalates diet. Steroid creams do not work. After being on a low oxalates diet within a month my LS has reversed by 50% and still healing everyday! I wrote up a page about the resources and my experiences with battling Lichen Sclerosis -- you can go to lichensclerosis (dot) wordpress (dot) com I hope this others -- I never thought in a million years I could reverse LS but it's possible. You can also check out Vulvar Pain Foundation online with similar resources. Good Luck!

LS and Hypothyroidism Connection   0  0   

Posted by Wendy (Canada) on 05/27/2014

Hello everyone.....I am sorry that a lot of you are suffering with LS!

I've had LS for at least 7 years now....diagnosed for 5 years.(I am 55) I have tried so many lotions, potions, treatments, etc....I've been reading your posts and will try some of these! I eat organically, eat pasture fed meat and eggs, drink Reverse Osmosis water and exercise.I eat healthy. I am going to try the gluten free diet and see if that helps. I take all kinds of vitamins, etc...a lot of these were mentioned in your posts. I have been using steroid cream....but it has stopped working about 10 months ago....I hated using it anyways......but kept me from going mad. I was using organic, bio-identical progesterone cream..(Natpro).....I didn't think the cream was working, and thought maybe that I didn't use a high enough dosage, but after discontinuing the cream my LS became much worse. I was also under a lot of stress since about that time...so I'm not sure if this is a coincidence or not. I belong to an online support group and some of the women on there say they have had remarkable success using concentrated cannabis oil (topically). Makes one think. I know my doctor would never give me a prescription for it. :( They rarely give people here prescriptions for medical cannabis...let alone the oil. Makes one want to break the law! A lot of the LS treatments are just that.....treating the horrible symptoms that we get....never getting at the cause. It definitely has something to do with hormonal imbalance. Almost everyone that has LS has hypothyroidism...and I think the ones that don't have hypothyroidism just haven't been diagnosed with it yet. It makes me think that maybe we should be finding something that cures hypothyroidism which in turn would cure the LS. I am going to start researching into the thyroid issue. I've been rather down about my LS lately. I hate the horrible itching, the pain, the atrophy.....and especially how it effects my sex life and relationship with my husband. I usually try to be positive and up beat about things......but lately it's been bad.

Multiple Remedies   1  0   

Posted by Moira (Long Island, Ny) on 11/04/2013

[BETTER BUT NOT CURED]  Hello, thanks to all of you for the many comments and helpful suggestions re. L.C. I am 60 yrs old and have been diagnosed 3 years ago with L.C.

I read and re-read many of your suggestions and for the last 4 days I have had some relief with the following suggestions: 1 cup baking soda and 1 cup white vinegar in bath and soak for 15min. It has cut down on itching and I'm less inflammed.

Zinc oxide seems to work on decreasing redness and itching ( applying 2x a day) However is it OK to use continually on vaginal tissue?

Also applying cold water after each time I urinate. Started Essiac tea but too soon to access.Thanks, Moira, N.Y.

Posted by Dee (Utica, Mi) on 07/23/2011

[BETTER BUT NOT CURED]  I have had symptoms of LS for 2 years now and have finally found a way to keep it under control. The symptoms started after menopause with extreme vaginal dryness. Then the vulvar skin breaking, bruising and vaginal atrophy began. I work for a GYN doctor so I knew what was happening to me. I did try Perrins cream which helped a little in the beginning. I vas very reluctant to use any prescription medication, but after suffering for so long I finally tried a very small dose of Estrace cream vaginally once or twice a week which has helped alot. (I did not want to use Steroids). I also apply pure vitamin E oil (found at Target for $5.00) to the vaginal/rectal area everyday after bathing/soaking. I use only natural soap very gently in that area, no bleach on underwear, avoid any perfumes or strong dryer sheets that irritate, no underwear when at home and only lightly blot when using toilet paper. These things have helped me tremendously. Avoiding sugar and taking high potency probiotics do also help. I hope and pray that a natural cure can be found and that the cause of this awful condition will soon be discovered. I have been doing my own research and taking note of the similarities in women who have this condition. Hope this helps someone.

Posted by Kim
Effingham, Usa
08/17/2011
Hello, I too work in the medical field, have you had any success with new insights from MD? Do you visit Pubmed frequently? They have found the tissues to be abnormally deficiet of antioxidants. When I use them (above) it really does decrease the symptoms. Lycine works too.

Mine stopped reacting, skin was pinking up with oral intake of vinegar - the very same reaction with MS and vinegar. MS is an autoimmune disease. Vinegar inhibits a reaction of the autoimmune.

Western medicine has found that some of the medication used for anti rejection for organ donors are working but not resolving it.

Does the Estrace stop the progress of the disease?

For research purposes do you have Estrogen dominance? Thyroid link?

I was hoping Ted would comment, maybe he has something to offer.

Posted by Ana
Toogoolawah, Queensland Australia
08/30/2011
I have what my doctor described as 'Extreme LS' this is where I have LOST most of my vulva and all that remains is the opening ( very small) and part of my clit which is not very painful to. The lenght of my vagina has shrunk to just 2 inches from top to end and if I lose the remainder of my clit I will have to have some sort of mobile tubes to incert when I need to pee.

I have tried everything, cremes lotions ACV, oils, you name it I have tried it including Perrins offerings, even used steroid cremes. Nothing worked. Todate there is NO cure and may not be one in my life time (I am 67) but there is some trials been done in Sweden or Denmark where they are trying out natural Progesterone creme. , available only by script in Australia ( big Pharm dictates here, so Aussie and NZ have to buy from USA). You also have to be careful using Progesterone if you are postmem, which I found to my cost, on 2 seperate days after two small dabs I was in agony with miscarriage/labor pains and the need to bare down, this lasted over 1/2 an hour till I had a show of blood. It turns out that I have a medium fibroid in on the back wall of my womb and the Progesserone acted a prelude to esterone which fed the fibroid and caused it to grow and as a postmenopausal woman that made my body think I was pregnant and it had to go. Thats what my last gyno said, but there again she said I had vaginitis when I first visited her for the itch and dryness 2 years ago. My GP has now got me on DermAid 0.5% which is not so harsh and it helps with the itch, I also sit in a baby bath of warm water with 1/4 cup ACV 1/4 cup Bicarb soda, and 1 cup Magneesium Chloride which I buy from food ingredient suppliers and I find this is works as well as anything I have tried so far and all 3 are good for the body anyway. I will try Argan oil in the blend next for the dryness.

Posted by Kim
Effingham, Illinois
10/16/2011
7 Posts
[BETTER BUT NOT CURED]   "Wanted to let everyone know... I started using Niacinamide and Lycine (mixed it in a small bottle of pure water) spraying it on the LS and then applying Argan oil, my symptoms have decreased by 60%. I also quit drinking coffee and the skin on the backs of my arms and legs cleared up. Not sure if this was an allergy and LS is connected but am not ruling it out.

This is such an awful disease. Hang in there.

Posted by Cindy
Ft. Lauderdale, Fl, Usa
11/29/2011
Hi,

My symptoms occured exactly like Dee's. I don't have itching or any white spots. But I do have some atrophy, white thinning skin in the folds, some past bleeding. I'm really upset that my atrophy will never grow back. This will prevent normal, painfree sex.

I was given potent steroids to apply topically everyday for one month, and then down to 2-3 times per week. After six weeks, my skin looks whiter than ever and I think it's gotten worse.

I took myself off the steroids, but needed something else to replace it. I wanted to do an all natural solution, so I searched this website as well as many others. After much research looking for women with my similar symtoms, I decided to try using Red Clover infusion/tea drinks. Everyone has recommended one quart per day. It has many anti-inflamatory properties as well as healing properties. Research has also showed that LS may be helped by megadoses of antioxidants. So, I went to the heath food store and bought the strongest antioxidant powder mix I could find (they work better, absored more than tablets). That's what I take internally.

As for what to use externally in the vulva area, I decided to use Neem cream followed by Organic Coconut oil (comes in a large jar, very soft and melts in your hand). Both have amazing healing properites, and the coconut oil replaces the essential fatty acids that the skin in this area desperately needs. I use coconut oil in place of everything I would have used butter or oil for, for example, use it for cooking eggs, baking, etc. It also can be used on the skin. I put it all over my body after the shower as a moisturizer. It is awesome! My nutritionist raves about it and uses it for everything also. It's a superfood!

I have used these drinks and creams for two days now, and my skin is already pinker! I still have some white skin in the fold area, but I am hopeful! Before this, I had an almost totally white vulva! I have also thrown away all my sweeteners with Aspartame, and will use only Stevia. I suggest everyone cut out the sugar, even honey. Sugar is sugar, and it creates an imflammatory reaction in the body.

It's worth a try, anything is better than steroids! Let me know how it works for you.....

Posted by Lynn
Kansas City, Kansas
12/17/2011
I, too have heard of the coconut oil and already use it for my omelets and other cooking. I have had LS for 12 years (43 years old now). The labia is fused for the most part on both sides, with pale, thin tissue. The majora has shrunk a little, but is still somewhat pink. In the beginning, I was put on clobetasol, etc. This was not good. My symptoms really didn't get better, and it thinned the tissue more. I had a dermatologist who put me on Metformin crushed in Vaseline that seemed to help a little. She wanted me to take it orally, but my GI sx at the time prevented that. I have started taking Mercola's Krill oil which has all sorts of backing as an anti-flammatory. Hopefully, the combination of making my body not so inflamed inside, and the coconut oil outside will do the trick. I also have Raynaud's. I agree with eliminating nutra sweet, etc. I eat a low-carb diet. I think we now have more auto-immune than ever, and we need to look at the state our bodies are in. I wish everyone the best. Hopefully, there will be a cure someday! Thankfully, my husband is very understanding :)
Posted by Kim
Effingham, Usa
02/14/2012
7 Posts
Lynn, read your note with interest. This is an awful disease.. I wonder if like the bee's our immune systems have been crippled by the pesticides... Food for thought. What I found strange.. I didn't have these problems until I moved to a farming area. I formally lived in the Mtns and drank spring water... I did find that Scar reduction cream (zinc oxide) with the tea extract totally knocks all the itch/thining and any progression of fusion of the tissue. Should have figured this before as this is for overreactive skin tissue. It does not cure it but I don't have to apply every day, just 1 x every 2-3 days. It is strange all of us are getting this....
Posted by Julia
Indianapolis, In
06/09/2013
I have had LS for 6 years, following severe physical trauma and mental anguish. I am athyroid, a thyroid cancer survivor. Part of my labia is gone, eaten away. The clitoris is covered by fused labia minora. I have been using Clobestiral and hormone cream every other day. I still have outbreaks of red, thin and itchy skin with bleeding. White patches come and go. Now, I am having deep pelvic pain where my ovaries used to be. Had a total hysterectomy for severe endometriosus 30 yrs. ago. I have no orgasmic response, but do get aroused to some extent. I do not eat wheat, drink coffee and avoid sugar. I try to use all natural products. I can't tolerate underwear. I am miserable and the Dr. says "see you in a year."


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