Table of Contents
- QUESTIONS & ANSWERS
- Anti-Candida Diet
- Apple Cider Vinegar
- Apple Cider Vinegar, Lavender Oil
- Baking Soda
- Chemical Link to LS
- Coconut Oil
- Cold Water, Evening Primrose Oil
- Eliminating Artificial Sweeteners
- Eliminating Dairy
- Eliminating Wheat
- Emu Oil
- Essential Oils
- Essiac Tea
- Essiac Tea, Homeopathy
- Frankincense Oil
- Lichen Sclerosus Remedies
- Low Oxalates Diet
- Multiple Remedies
- Neem Oil, Green Tea Extract
- Remedies Needed
- Shea Butter
- Vaginal Medication Link to Ls
- Vitamin E
- Vitamin E, Lavender Oil
- Witch Hazel
- Zinc Oxide
Last Modified on Apr 10, 2014<< Continued from page 1Next page >>
[YEA] 11/26/2011: Carolyn from Pittsburgh, Pa: "When diagnosed with LS I was prescribed a steroid cream. The cream instructed to discontinue use after 2 weeks which concerned me so I went looking for another solution. The Doctor said it is one of those conditions that the medical field simply doesn't have an answer for... No one knows how you get it or how to cure it and I have found the same on the internet. The Purple emu oil is great. It is an anti-inflamatory and highly moisturizing which deals with 2 of the symptoms. It really keeps the LS symptoms to a minimum. I will also use it on blemishes, dry skin, and I rub some on my nails before bed time which keeps moisturized and nice."
[BETTER BUT NOT CURED] 01/26/2009: Misha from Binghamton, New York, USA: "For LS, I have been trying purple emu oil with good results. As they say this condition is related to autoimmunity problems, I have also been taken probiotics, which they say are good for calming an overactive immune system. I will keep the earth clinic community posted on my progress."
[YEA] 07/27/2012: Melody from Beebe, Ar, Usa: "I believe the Lichen Sclerosus is a yeast/fungal infection and can also be a Thyroid problem. My family uses Essential Oil of Thieves, Ocotea, Oregano... To name a few that are antifungal oils and do no harm to the body. Myrrh oil is also GREAT for the Thyroid. Please do not try using oils that are not pure... Know the company you purchase from and make sure they are pure. Fungus disappears when the oils are used."Replies
10/16/2013: Ab from New York replies: "Hello, I am thinking I may have LS just because of the symptoms I am experiencing. Can all of the essential oils be used in conjunction with one another? Also would Vitamin E oil work as well?"
[YEA] 11/26/2013: Mk from Usa: "I started using Essiac Tonic a few days ago. My symptoms have gotten so much better already. I'm also taking/eating probiotics and taking slippery elm & marshmallow root to heal my gut (I think I have a leaky gut and it causes my LS). I'm also on low-oxalate gluten-free diet. I really do think that Essiac Tonic will cure my LS, combined with proper diet."
[YEA] 11/10/2012: Daisy from Ewa Beach, Hi: "I had Lichen Sclerosus and was misdiagnosed for a year. I got it under control by steroid creams but it was not gone. For a reason I don't need to go into, I bought someone a detox liquid called Essaic Tonic Tea (nonalcohol) and they didn't want it. So not to waste my money, I used the whole bottle and was cured! I told my friend with Lupus and she takes it and it is making her feel better. It is a miracle the way this stuff works. Its all natural and won't hurt you. I don't sell it, you have to go to a natual health food store and buy the nonalcohol formula."Replies
11/16/2012: Rsw from Uniontown, Oh replies: "Hi Daisy, Can you tel us how long you took the essiac tea tonic and how many times a day did you take it? How many drops? You are the first person who has ever been cured of LS that I have seen. I have Lichen Planus and have been trying to cure it for almost ten years. My doctor and dentist admit they don't understand the disease. Mine is all internal and systemic, no skin outbreaks.
I have been trying Lisa's suggestion for water kefir for about a month and I think it is good for the whole body. I have ordered some essiac tea with high hopes, and passed your tip along to others with LP. I am praying this works for me and others. Thank you so much for posting!"
11/19/2012: Daisy from Ewa Beach, Hi replies: "I took the whole bottle, I was cured within a few days of taking it but took the whole bottle of non alcohol formula. I really stress this because the alcohol one tastes God awful. Anyway, read about the benefits on the internet. I bought the liquid kind. 40 drops on an empty stomach in the a. M. And 40 drops on an empty stomach in the pm. I really want someone esle to try to see if it cures them too! I was diagnosised through a doctor and told and prescribed all the same stuff as anyone else. Essaic Tonic Tea purfies the blood, cleans the organs even the lungs and is a parasite killer too! Again, I took this not intentionally trying to cure my LS but I am cured. I haven't had a break out since this year June and no longer use any creams."
11/20/2012: Joni from Selma, Oregon replies: "Hi Daisy, The only type of Essiac I've seen is in a powder form for making a tea. You said your product is in liquid form. Is this a tincture? How wonderful this has cured you!"
11/22/2012: Daisy from Ewa Beach, Hawaii replies: "Joni, it is made from different plants. It is an old native american cure and people are claiming it shrinks tumors. Its so gently you can use it on your animals. Chemotheraphy patients are using it along with thier Chemo. It comes in all forms... Powder... Pills... Liquid... I prefer liquid... I have a hard time swallowing pills. I hope it works for others. It is wonderful not being itchy especially at night. I have some scaring on my wrists but all other scars have healed. If this doesn't cure others... than I have received a miracle from God."
11/23/2012: Linda from Reno, Nv replies: "Daisy, where do you buy your essiac toner with no alcohol? Looking on the internet and seeing only ones with alcohol in them."
11/23/2012: Daisy from Ewa Beach, Hawaii replies: "I buy mine from a [local] health food store. It is also sold online by different people who sell it. Usually health food stores have it and it is in the detox section of the store. I live Hawaii where everything is shipped in so, I purchase it for about $25 a bottle. I plan on taking this 3 times a year. Next year, I will buy a bottle in March, July and then in November."
11/23/2012: Linda from Reno, Nv replies: "Daisy, thanks for your reply. Is this tonic something you need to take everyday? You mentioned using 3 bottles for a whole year."
11/25/2012: Daisy from Ewa Beach, Hawaii replies: "I would treat it like a detox and only take it a few times a year. A bottle of drops lasts me about 2 weeks. When taking it I feel great... I even get a zing in my step. But I wouldn't take it every day all year long. Just a few times a year to reclean and purify your body and blood. Again, if you do take it and it works or doesn't work let me know. If it doesn't work, than I know it was a miracle I was healed and I will quit telling people about Essaic. If it does work than we can let everyone know it really works. I have yearly appts. Now with my doctor and she doesn't know I am cured. I can't wait for my appt and bring the bottle of Essaic Tonic Tea with me."
11/25/2012: Rsw from Uniontown, Oh replies: "Hi Daisy, I ordered essiac tea, which I will brew at home, and it should be here this coming week. I hope it will work as well as the tea tonic, which I didn't see on the Internet. If this works, you will have found a very elusive cure and many people will finally find some relief from these miserable autoimmunes. I have tried every lead that seems plausible for ten years and I'm so excited to try this! Thank you, Daisy, for posting your experience on EC. I hope we get a bunch of success stories!"
11/25/2012: Joni from Selma, Oregon replies: "Thanks Daisy, I am going to get some Essiac and will certainly let you know the results. I absolutely believe in miracles. God doesn't always work in the same way for all people, but I won't know if this will be my miracle too until I try!"
11/28/2012: Linda from Reno replies: "Daisy, I am going to try it and I will let you know for sure if it works."
01/20/2013: Mjf030947 from Las Vegas, Nv replies: "I have LS and want to know how to apply the essaic tonic."
02/21/2013: Daisy from Ewa Beach, Hi replies: "You drink it."
08/19/2013: Kim from Florida replies: "To Daisy from Ewa Beach: Does the Essiac tonic still works for you? I was going to try it myself and was wondering if your LS ever came back?"
Essiac Tea, Homeopathy
[YEA] 03/02/2013: Kate from Auckland, New Zealand: "Last year I had my first flare up of Lichen Sclerosis, I didn't know that's what it was till I got it back this year in early February. I'm not interested in using steroid creams so I researched alternative treatments and came across Essiac Tea. I followed the instructions, it is now early March and it is almost gone. I also used homeopathic remedies to ease the itch, inflammation and splitting. Homeopathic Graphites, Urtica-urens, Nit-ac and Apis, each in a 30c potency. Am also taking homeopathic Kreosotum and Petroleum and they are taking away the last of the splits and itching. Hope this helps anyone suffering this awful affliction, feel free to message me. Xx"Replies
03/02/2013: Desperate For Help from Grabill, Indiana. Usa replies: "What brand of Essiac tea did you use? I am desperate. There are different brands... Liquid and powder. Please advise. Thank you."
[YEA] 01/23/2014: Sher from Nj replies: "My condition was self diagnosed. I have had LS for several years now and non of the doctors could figure out what it was. Finally my condition got worse and started researching the symptoms and couple of months ago I figured what I had. I came across this site to find cure for this and I took Daisy's advice and ordered some Essiac Tea to cure it internally and used Perrin's blend for external use. It's been almost a month and I am feeling much better. The white patches have almost disappeared just 2 small areas to be treated. Also I've heard that this could be due to some emotional trauma and shame so I am sending myself some luv every morning and night. Essentially I am doing three prone healing - internal, external and emotional. I am optimistic that I am getting better and better everyday. I will keep you posted."
[YEA] 01/27/2014: Gentlestrength from Globe, Az: "Frankincense Oil completely healed my painful LS very quickly! To think that I had suffered with this for over 4 years. At first I was embarrassed thinking that it was a painful VD but because of the itching thought it was a candida fungal problem. I tried EVERYTHING... with various results but it kept returning and was excruciatingly painful. Rosewater sprayed on the area would stop the itching though. Yes, I even tried Oregano oil diluted, white iodine with DMSO, baking soda baths. All would help for a day or so but would not heal it.
Then I read that this was a precancerous condition and very closely tied to emotional issues. So I immediately started using pure Frankincense oil and within two days could tell it was healing. No pain, no itching and the lesions were disappearing. I used two drops in the am and in the pm for three weeks. Now it is GONE! I'm so thankful for this healing and am staying off sugar and starting to eliminate wheat! I can sit without wincing and walk without that pain! Thank you EC for your awesome website to help us all!"Replies
04/10/2014: Mary from Minneapolis, Mn replies: "I had a question about the frankincense oil, did you use it straight or diluted?"
[YEA] 02/14/2014: Jennifer from Warwickshire: "I have found using a good quality honey applied topically to the area a few times a day until the symptoms are relieved does reduce itching and irritation."
Lichen Sclerosus Remedies
05/26/2013: Rosedancer from Salt Lake City, Utah, Usa: "I was told I have Sojurns disease also and didn't quite know what to do, now I have been told I have LS. I was so surprised, I have never even heard of this. I just had a physical and was told I should go to the GYN doctor. She wanted to put me on steroids and hormones. I have been breaking out with extreme itching, eczema on my chest from my neck almost to my breasts. It seems to go away when I do only a VERY clean diet and spray colloidal silver on it. I was diagnosed in 1997 with Chronic Fatigue and have dealt with that with diet and herbs. Now the LS, I am really thinking what the h...!!! I am 66 and have been divorced for 8 years and have not had sex and have met someone and thought I might want to be intimate with and wanted to be sure I am okay. Then I find out I have this. I have not had itching but it is very inflammed and sore. I am reading that people have used strong herbs and healed this. I would love to hear from people that have had success in healing this. I find it interesting that I was molested as a child and did not really feel connected to that part of me and I am now very open to healing both physically and emotionally."
Low Oxalates Diet
[YEA] 04/28/2012: Sandra from Ottawa, Ontario: "I have had LS for a year now. I went on the Low Oxalate diet in September and noticed that the itching immediately began to subside (a HUGE relief considereing I was returning to work and hadn't been able to wear pants for the past 4 months). I had also been experiencing extreem fatigue and digestive issues, which went away within a matter of days. After about a month I was at a confrence and cheated by eating a sandwich and cookie. I was exhausted.
I switched up the low oxalate diet for a gluten free diet and found that the fatigue and digestive symptoms went away, the LS became gradually less itchy, and the white patches started to disappear. I have not had to use steroid cream for months and I have been able to resume a normal sex life. After a significant improvement I realized that while the dietary change was helping it was not the only answer. I had also noticed that the itching would be the worst when I was lying down or sitting for long periods of time so I started jogging. I started off with 2km and have worked up to 6km 3 times a week. I think that the extra blood flow may be what is helping, because I did do regular excercise before, but it was yoga which was much lower impact and much less demanding to the cardio-vascular system. I would like to mention that I have also not had athsma for months since changing my diet. Trying the low oxalate diet an was the best thing did for my LS."
[YEA] 02/18/2012: Healthygirl110 from Sacramento, Ca: "I've been able to reverse Lichen Sclerosis by going on a Low Oxalates diet. Steroid creams do not work. After being on a low oxalates diet within a month my LS has reversed by 50% and still healing everyday! I wrote up a page about the resources and my experiences with battling Lichen Sclerosis -- you can go to lichensclerosis (dot) wordpress (dot) com I hope this others -- I never thought in a million years I could reverse LS but it's possible. You can also check out Vulvar Pain Foundation online with similar resources. Good Luck! "
[BETTER BUT NOT CURED] 11/04/2013: Moira from Long Island, Ny: "Hello, thanks to all of you for the many comments and helpful suggestions re. L.C. I am 60 yrs old and have been diagnosed 3 years ago with L.C.
I read and re-read many of your suggestions and for the last 4 days I have had some relief with the following suggestions: 1 cup baking soda and 1 cup white vinegar in bath and soak for 15min. It has cut down on itching and I'm less inflammed.
Zinc oxide seems to work on decreasing redness and itching ( applying 2x a day) However is it OK to use continually on vaginal tissue?
Also applying cold water after each time I urinate. Started Essiac tea but too soon to access.Thanks, Moira, N.Y."
[BETTER BUT NOT CURED] 07/23/2011: Dee from Utica, Mi: "I have had symptoms of LS for 2 years now and have finally found a way to keep it under control. The symptoms started after menopause with extreme vaginal dryness. Then the vulvar skin breaking, bruising and vaginal atrophy began. I work for a GYN doctor so I knew what was happening to me. I did try Perrins cream which helped a little in the beginning. I vas very reluctant to use any prescription medication, but after suffering for so long I finally tried a very small dose of Estrace cream vaginally once or twice a week which has helped alot. (I did not want to use Steroids). I also apply pure vitamin E oil (found at Target for $5.00) to the vaginal/rectal area everyday after bathing/soaking. I use only natural soap very gently in that area, no bleach on underwear, avoid any perfumes or strong dryer sheets that irritate, no underwear when at home and only lightly blot when using toilet paper. These things have helped me tremendously. Avoiding sugar and taking high potency probiotics do also help. I hope and pray that a natural cure can be found and that the cause of this awful condition will soon be discovered. I have been doing my own research and taking note of the similarities in women who have this condition. Hope this helps someone."Replies
08/17/2011: Kim from Effingham, Usa replies: "Hello, I too work in the medical field, have you had any success with new insights from MD? Do you visit Pubmed frequently? They have found the tissues to be abnormally deficiet of antioxidants. When I use them (above) it really does decrease the symptoms. Lycine works too.
Mine stopped reacting, skin was pinking up with oral intake of vinegar - the very same reaction with MS and vinegar. MS is an autoimmune disease. Vinegar inhibits a reaction of the autoimmune.
Western medicine has found that some of the medication used for anti rejection for organ donors are working but not resolving it.
Does the Estrace stop the progress of the disease?
For research purposes do you have Estrogen dominance? Thyroid link?
I was hoping Ted would comment, maybe he has something to offer."
08/30/2011: Ana from Toogoolawah, Queensland Australia replies: "I have what my doctor described as 'Extreme LS' this is where I have LOST most of my vulva and all that remains is the opening ( very small) and part of my clit which is not very painful to. The lenght of my vagina has shrunk to just 2 inches from top to end and if I lose the remainder of my clit I will have to have some sort of mobile tubes to incert when I need to pee.
I have tried everything, cremes lotions ACV, oils, you name it I have tried it including Perrins offerings, even used steroid cremes. Nothing worked. Todate there is NO cure and may not be one in my life time (I am 67) but there is some trials been done in Sweden or Denmark where they are trying out natural Progesterone creme. , available only by script in Australia ( big Pharm dictates here, so Aussie and NZ have to buy from USA). You also have to be careful using Progesterone if you are postmem, which I found to my cost, on 2 seperate days after two small dabs I was in agony with miscarriage/labor pains and the need to bare down, this lasted over 1/2 an hour till I had a show of blood. It turns out that I have a medium fibroid in on the back wall of my womb and the Progesserone acted a prelude to esterone which fed the fibroid and caused it to grow and as a postmenopausal woman that made my body think I was pregnant and it had to go. Thats what my last gyno said, but there again she said I had vaginitis when I first visited her for the itch and dryness 2 years ago. My GP has now got me on DermAid 0.5% which is not so harsh and it helps with the itch, I also sit in a baby bath of warm water with 1/4 cup ACV 1/4 cup Bicarb soda, and 1 cup Magneesium Chloride which I buy from food ingredient suppliers and I find this is works as well as anything I have tried so far and all 3 are good for the body anyway. I will try Argan oil in the blend next for the dryness."
[BETTER BUT NOT CURED] 10/16/2011: Kim from Effingham, Illinois replies: "Wanted to let everyone know... I started using Niacinamide and Lycine (mixed it in a small bottle of pure water) spraying it on the LS and then applying Argan oil, my symptoms have decreased by 60%. I also quit drinking coffee and the skin on the backs of my arms and legs cleared up. Not sure if this was an allergy and LS is connected but am not ruling it out.
This is such an awful disease. Hang in there."
11/29/2011: Cindy from Ft. Lauderdale, Fl, Usa replies: "Hi,
My symptoms occured exactly like Dee's. I don't have itching or any white spots. But I do have some atrophy, white thinning skin in the folds, some past bleeding. I'm really upset that my atrophy will never grow back. This will prevent normal, painfree sex.
I was given potent steroids to apply topically everyday for one month, and then down to 2-3 times per week. After six weeks, my skin looks whiter than ever and I think it's gotten worse.
I took myself off the steroids, but needed something else to replace it. I wanted to do an all natural solution, so I searched this website as well as many others. After much research looking for women with my similar symtoms, I decided to try using Red Clover infusion/tea drinks. Everyone has recommended one quart per day. It has many anti-inflamatory properties as well as healing properties. Research has also showed that LS may be helped by megadoses of antioxidants. So, I went to the heath food store and bought the strongest antioxidant powder mix I could find (they work better, absored more than tablets). That's what I take internally.
As for what to use externally in the vulva area, I decided to use Neem cream followed by Organic Coconut oil (comes in a large jar, very soft and melts in your hand). Both have amazing healing properites, and the coconut oil replaces the essential fatty acids that the skin in this area desperately needs. I use coconut oil in place of everything I would have used butter or oil for, for example, use it for cooking eggs, baking, etc. It also can be used on the skin. I put it all over my body after the shower as a moisturizer. It is awesome! My nutritionist raves about it and uses it for everything also. It's a superfood!
I have used these drinks and creams for two days now, and my skin is already pinker! I still have some white skin in the fold area, but I am hopeful! Before this, I had an almost totally white vulva! I have also thrown away all my sweeteners with Aspartame, and will use only Stevia. I suggest everyone cut out the sugar, even honey. Sugar is sugar, and it creates an imflammatory reaction in the body.
It's worth a try, anything is better than steroids! Let me know how it works for you....."
12/17/2011: Lynn from Kansas City, Kansas replies: "I, too have heard of the coconut oil and already use it for my omelets and other cooking. I have had LS for 12 years (43 years old now). The labia is fused for the most part on both sides, with pale, thin tissue. The majora has shrunk a little, but is still somewhat pink. In the beginning, I was put on clobetasol, etc. This was not good. My symptoms really didn't get better, and it thinned the tissue more. I had a dermatologist who put me on Metformin crushed in Vaseline that seemed to help a little. She wanted me to take it orally, but my GI sx at the time prevented that. I have started taking Mercola's Krill oil which has all sorts of backing as an anti-flammatory. Hopefully, the combination of making my body not so inflamed inside, and the coconut oil outside will do the trick. I also have Raynaud's. I agree with eliminating nutra sweet, etc. I eat a low-carb diet. I think we now have more auto-immune than ever, and we need to look at the state our bodies are in. I wish everyone the best. Hopefully, there will be a cure someday! Thankfully, my husband is very understanding :)"
02/14/2012: Kim from Effingham, Usa replies: "Lynn, read your note with interest. This is an awful disease.. I wonder if like the bee's our immune systems have been crippled by the pesticides... Food for thought. What I found strange.. I didn't have these problems until I moved to a farming area. I formally lived in the Mtns and drank spring water... I did find that Scar reduction cream (zinc oxide) with the tea extract totally knocks all the itch/thining and any progression of fusion of the tissue. Should have figured this before as this is for overreactive skin tissue. It does not cure it but I don't have to apply every day, just 1 x every 2-3 days. It is strange all of us are getting this...."
06/09/2013: Julia from Indianapolis, In replies: "I have had LS for 6 years, following severe physical trauma and mental anguish. I am athyroid, a thyroid cancer survivor. Part of my labia is gone, eaten away. The clitoris is covered by fused labia minora. I have been using Clobestiral and hormone cream every other day. I still have outbreaks of red, thin and itchy skin with bleeding. White patches come and go. Now, I am having deep pelvic pain where my ovaries used to be. Had a total hysterectomy for severe endometriosus 30 yrs. ago. I have no orgasmic response, but do get aroused to some extent. I do not eat wheat, drink coffee and avoid sugar. I try to use all natural products. I can't tolerate underwear. I am miserable and the Dr. says "see you in a year.""
[BETTER BUT NOT CURED] 04/20/2011: Jen from Vancouver, Bc, Canada: "I am 28 years old female who was diagnosed with LS in Aug 2010. After 2.5 years of continuing Yeast infection and Strep B bacteria since my honeymoon in Caribbean.
I believe after taking many antibiotics and Diflucan, my body collapsed!
I had a blood test and my natural path informed me that I am Lactose intolerant and I have to avoid Dairy and Gluten. I am taking Probiotic and Fish oil (Omega 3) and L-Glutamine (I guess to clean my liver. ) I have not seen any major changes to LS in my vulvar area. Yet, I can feel less gas (stinky gas), diarrhea, bowel movement and no more Yeast and Strep B bacteria.
Yeast: after unsuccessful 2 years of using Antibiotic, I used Boric acid and soaked my body in Baking soda every day for a few weeks which have been very very helpful. Even my husband did it too. I am free of yeast or bacteria now.
LS: I have been using lower dose of Topical cream which was useful at the beginning but not after 3 months. After the flare up and no sexual intercourse for a while because of the pain and itchiness, doctor gave me another higher dosage of cream, I have been using this for 3 weeks now and it is helping a lot. But I don't want to be dependent on this at all. I am young, still have another 50 years to go, can't use the cream for the rest of my life. I don't have any kids yet either.
My research shows that Omega 3 (fish oil), and probiotic are great to use to balance your body and create healthy skin. Healthy diet is another one, have a test or look at your blood group type and see what is better to eat for your body type. I did a cleanse in summer which helped my body to normalize and of course got rid of the yeast.
Also, I have found that Neem oil, Calendula oil, Emu oil are helpful. I have heard from a few professionals about Neem oil and Calendula, but rarely about Emu oil. So I was reluctant to buy Emu oil for my LS. Apparently, some people used Emu oil and it worked but not many professionals know about it.
Yesterday was the first night I used Neem oil and hoping to be helpful.
If anyone has any other suggestions, Please let me know.
[BETTER BUT NOT CURED] 12/27/2010: Jill from Dallas, Tx: "Lichen Sclerosus is a condition that I self-diagnosed myself with a few years ago, after much internet research and no help from my doctor. This is still such a mysterious condition, with little concrete medical data out there to refer to, but here are some of my observations and some things that have helped me quite a bit.
First, I believe that it is caused by hormone imbalance and/or auto-immune issues. Most people notice their symptoms begin with hormone shifts. For me, it was at the beginning of peri-menopause, and came along with other, more common symptoms of that. Along those same lines, the symptoms are always worse at the end of my cycle (pre-menstrually) and better towards the beginning of the cycle. Also, I notice my symptoms flare up (and have heard others report the same) when my immune system is run down or strained, especially if I'm fighting a virus (cold, etc... ). Interestingly, as several others here have mentioned, I also have a history of adrenal fatigue/chronic fatigue. So seeking natural hormone balance and a healthy, balanced immune system are, in my opinion, key to going into permanent remission.
Topically, I have found the most success with a cream called Perrin's Cream Complete, found on the Perrin's website (you'll find it if you google it). It immediately relieves discomfort and seems to help quite a bit overall with other symptoms. It is a soothing antioxidant cream that is very healing as well. It was originally developed to help prevent and reverse skin cancer, so for a condition with an increased cancer risk associated with it, this cream is a good one to have on hand. Also evening primrose oil has been helpful topically.
I have tried to adopt an anti-inflammatory diet to help with the auto-immune aspect: no sugar (very inflammatory and noticeably worsens LS), fried foods, junk foods, processed foods/fast foods, margarine or shortening. About a month ago I also eliminated gluten (mostly found in wheat) and either it's a coincidence, or that was truly helpful because it's better now than it's been in years. A whole foods diet that is loaded with vegetables and healthy fats and protein (which includes SATURATED fats: coconut oil, eggs, butter and meat from healthy, pastured cows, etc... ), fish, krill, or cod-liver oil, and low on grains (especially wheat). Try to eat more like your great-grandparents ate and you'll be doing much better than if you follow the USDA food pyramid! The Weston A. Price Foundation has great info on healthy traditional diets and how our modern, western diet and food preparation has damaged our health (westonaprice.org). Learning about food sensitivities/allergies would also be essential for reducing systematic inflammation. If you can't afford allergy testing, try checking your pulse before and after eating suspected foods. If you notice a marked rise in your pulse after eating a particular food, you are probably sensitive if not allergic to it.
Also avoiding chemicals as much as possible in your environment (cleaning products, unfiltered city water), and food (genetically modified and/or pesticide laden foods) is also important. I know there are lots of supplements that help with inflammation: turmeric, fish oil (or krill or cod liver), vitamin D3 (current recommendations are extremely low, so probably around 5, 000 mg. daily, or better yet, get your levels tested and aim for therapeutic levels--check out http://mercola.com for more info on vit. D), and many more.
There are also supplements designed specifically for reducing inflammation. Chinese mushrooms and herbs have been used with incredible success for a variety of inflammatory conditions, so that would sure be worth checking out. Fungi Perfecti has a product line called Host Defense and a product in that line called My Community that looks very intriguing. It's a very reputable company and scores of people with serious immune and/or cancer issues swear by their products. http://iherb.com seems to have the best prices. Searching out anti-inflammatory diet and supplements should provide lots of good ideas. Hopefully there's something of use in all that!
If I discover a magic pill, I will certainly share my discovery, but my guess is that it's really about getting your hormonal and immune systems balanced out, which involves a more holistic approach to diet and lifestyle than what one pill can provide."Replies
01/23/2011: Sherry from Roanoke, Va replies: "I have had LS for 7 years. I was diagnosed during the 7th month of my first pregnancy. I have tried so much of what is listed here. I also began using the Perrin's Cream about six months ago. It is by far the most helpful thing that I have tried. I am having a flare up now (that is driving me MAD), and I have had to use the steriod cream, BUT what I find is that the Perrin's Cream seems to help restore health to the damaged skin (by the disease and the steroid creams). Healthy diet is crucial. I am a health nut... When I have a flare up, it is usually linked to STRESS! Stress reduction and dealing with it well is crucial. I struggle with this! I will say that since using the Perrin's Cream, I have only had one flare up. Use the CREAM, not the ointment! The ointment is TOO strong and will burn! You are not alone. I am sorry that all of you are dealing with this also."
[YEA] 07/01/2011: Kim from Effingham, Il Usa replies: "Jill from TX:
Your advise is EXCELLENT!! I have done my research and agree with all. I am a LS suffering soul. Perrins cream and your diet recommendations do help.
That being said, I would like to add to this forum some things that have helped me considerably with my LS.
I am certain that mine is associated with the endocrine/immune system. I have enlarged lymph nodes under arm when I have a flare up. I also have hypothyroid too.
In the last year I found a product called I-26 or hyperimmune egg. Started taking this and have had GREAT results, symptoms are greatly reduced. I am planning on continuing this until I find something else. I also came up with a remedy for the pain/itching. Take Lysine in powder form and add to Aloe Vera. Within seconds the pain itching will be gone. I apply this usually 1x a day and it lasts until the evening.
I have had this terrible disease for 8 years and found the lysine trick in a herpes tx. I just tried mixing it in aloe vera and it works like a charm.
I am not sure what caused mine, but it started after I had a hyster and dx hypothyroid.
Again, the hyperimmune egg is worth trying. Just mix it in with OJ, drink down.
God bless, hope this helps some other women."
08/10/2011: Diane from Nashville, Tn replies: "Thank you for sharing your remedies. Do you apply the lysine and aloe Vera topically or take it orally?"
08/17/2011: Kim from Effingham, Usa replies: "For the LS to stop the intense itching... Take the lysine powder and mix it in the Aloe Vera and apply topically. You may need to start doing it 3x/day until it puts the fire out, then you will only have to do it daily. It worked for me. Best and stay blessed. This is an awful disease."
08/20/2011: Gem from Melbourne, Australia replies: "Finally.. A website that gives me some hope. I have written down EVERYone's suggestions and may have to give up work just to manage this LS!! (I wish). But, thanks all for sharing the tips.. I about to embark on a gluten & dairy (&sugar) free diet, see a naturapath AND try many of the 'remedies' on this page. My wish is to stop the steroid creams.. that stop itching but not the progression.. And keep enjoying sex!!"
07/27/2012: Louise from Newcastle Upon Tyne, U.k. replies: "I was diagnosed with LS two years ago. Pure essential lavender oil in the bath has helped me, and also Perrin's cream. Attention to diet, and cutting right back on sugar and yeast products has also helped. I agree that this is a horrible disease, and sometimes I can't believe I have it, but does anyone know how much research is going on to find a cure? What have we all got in common that would trigger this in us?"