My mother (69) has trigeminal neuralgia and has found some relief with Craniosacral therapy.
I was diagnosed with trigeminal neuralgia twenty years ago, with hours and hours of pain with each attack. I was treated successfully with carbamazipam although after read up on the side effects I became concerned about possible liver damage from taking the top dosage daily, since I did a lot of partyng in my younger days. Since the medication is an early one for epilepsy, I lurked on some sites re that disease, and found a growing number of people talking about the k factor diet for epileptic children ( a precisely measured high fat diet ) and even more people talking about "modified Atkins" for adults. Fortunately the Atkins type diet worked for me. As long as I maintain a high level of fat in my diet and very little carbs, and avoid my worse triggers, I have no pain at all. If I am exposed to a trigger, if I move fast enough any pain subsides in minutes. If anyone wants more information, contact me at liberty82645(at)yahoo.com. To go from being close to suicide to almost pain-free is a true miracle.
Has anyone tried the DMSO nasal spray for Trigeminal Neuralgia. I assume this is diluted... If so by how much and by what? distilled water? EC, if you know what the original author meant, pls let us know. Thanks so much.
(Fountain Inn, Sc)
Hello all fellow Trigeminal Neuralgia sufferers,
Several years ago I began suffering a condition which I now believe to be Trigeminal Neuralgia of the right side of my face and head. The pain comes on slowly but continuously until the pain is unbearable starting from my right front upper jaw to the right side of my nose and sinus, under my right eye and up to my right temple and right ear. I don't cry but my right eye tears and makes me want to cry more. I had actually contemplated suicide even before I had heard this condition called the "suicide disease". I have had broken noses, fractured eye socket etc. (not disfiguring) and have blamed the condition on those injuries but was never sure and I have been to many MDs, specialists and Maxillo Facial surgeons who told me that those injuries could no possibly cause headaches and never even diagnosed the headaches as Trigeminal Neuralgia!
However, we all know most of that but I have discovered another possible cause for our condition which may or may not give you relief that I am surprised that no one that I know of has suggested.
All my life I have had a problem with middle and inner ear infections. Some have been excruciatingly painful, and will let you know it's there and demands urgent treatment, which I'm sure some of you have experienced.
The facial nerve center is in very close proximity to the ear. It is possible that the patient can experience a low grade infection of the middle or inner ear which may only itch a little and not become highly inflamed and the patient may neglect the condition. But my friends let me tell you that it can tear your nerve center a NEW ONE!
So if you have this condition try antibiotic ear drops (I use Locacorten -Vioform) Which needs a prescription but is not so expensive. Lie down or turn the head sideways and use a small amount only until you feel the ear close up. Dampen a small amount of cotton and squeeze out water and place in ouside of the ear so the oil will not soak into the cotton. Use especially at night and leave in until morning and more during the day as needed if possible.
Also keep ears completely dry in shower, lake and ocean with ear plugs if necessary. Alcohol after swimming or showering WILL NOT WORK!
Hope some of you will find relief, and won't hurt to try...
Trigeminal Pain: I get the icy cheeks, pain in head... But does anyone get the very sore head - scalp where I can't even find a good spot to sleep because of the soreness on my scalp? Is this TN also?
(Fountain Inn, Sc)
I have constant pain on on my teeth where an dental implant was removed due to severe pain since removal pain is constant on my right upper jaw with radiating to cheek bone, constant pain and burning. Is this trigeminal neuralgia because I never felt shocking or numbness or tingling? I have taken Lyric , carbamazipine and afraid to do anymore dental work , I use a topical anesthetic compounded by my dentist which helps pain. I WANT CURE. PLEASE HELP I AM WILLING TO TRY ANYTHING AND WILLING TO SHARE RESULTS. PLEASE INCLUDE YOUR SYMPTOMS, PROPER THERAPY SO I CAN FOLLOW. WHAT IS TRIGEMINAL NEURALGIA HOW DID I DEVELOP AFTER DENTAL PROCEDURE AND HOW CAN I WARN OTHERS? THANK YOU AND MAY GOD BLESS YOU
(Las Vegas, Nevada)
(Kuala Lumpur, Malaysia)
Hello, i just wanted to let you know these post have been very helpful. My mother who is 40, is suffering from Trigeminal Neuralgia. It saddens me to see her depressed everyday! She is scared to have any surgeries done, but i hope some of these home remedies help. Again, thanks!
(In The Valley, Ca)
Dear T. Smalls, I have been on the Biogetica.com herbs for about 2 weeks. Pain has gotten worse with pain meds --up to over 1200 mg of Trileptal and sometimes still get really bad pain attacks. Small shocks during the day. How long do I have to wait until the Biogetica.com homeopathic pellets work? How long did it take for yours to work? do the herbs they have help it?
Hi. Yes I have just started Biogetica.com again, with the homeopathy for Trigeminal Neuralgia (OM 13 and Trigeminal Neuralgia CM the Ayruvedic herb combination) The herbs are something new for me. Maybe they make the homeopathic pellets work faster. I am also on 900 mg of Trileptal right now for pain until the Homeopathy kicks in. My question is how long did it take for the pellets to start working for you? This is the first time the trileptal at this dose really doesn't relieve the shocks so I need someone to tell me how long I need to wait. Thank you.
Also I found that B12 injections, took me about 2 months before they started to work to reduce pain. It allowed me to reduce Trileptal to 225 mg instead of 900 mg. (but couldn't get off the pain meds without more symptoms but only tried B12 for 2 1/2 months) I found the injections hard to continue- (cost and inconvenience) so I am transitioning from that to homeopathy now-unless I can't wait and the pain gets too bad.
Hello, I owe it to God and everyone who suffers from TN to share my story. I started suffering from TN in a very mild was about two years ago. I would notice a small zap periodically when I brushed my teeth. Three dentist all said there was nothing wrong with my teeth and because it would go away quickly, I didn't look further into the pain. However, 1 year later as I was going through a nasty seperation and divorce, the electric shocking pain became a whole lot worst radiating from my L jaw to my ear. It went from jabs to 3-4 minutes of high voltage shock. I would shake for 30-40 minutes after an episode. I finally went to the ER and was given gatapatin, and perks to no relief. I then saw a Neurologist who put me on a high dose of Tegratol, to little relief, and many side effect (mood swings, depression, loss of memory) I then had surgery to sever the nerve ending which was bumping an artery. The pain went away.... For 2 months and came back 100 times worst. I woke up screaming in the middle of the night as my face was being electricuted from within. I was then places on a high dose of Trileptal, to little relief. Then I became pregnant and my Neurologist basically said I can't do anything for you stop the Trileptal due to the pregnancy...
This is when I found Biogetica through an angel on an Online TN support group site. I immediately ordered the TN relief kit and have now been pain free for 2 months straight and counting. I am so thankful for Biogetica. These homeopathic herbs work wonders. I would suggest you look into it and give it a try.
Men- I finally found a way to shave when you have TN. You can go over the shock area very lightly and slowly, both in a moving motion or you can press slowly the electric razor into your check area and the remove it and slowly do the same motion to another area. It takes some time, but it can be done w/o a shock.
I am 74 have lots of head pain at times, I use hygrogen proxide 35% food grade from the health store with about 6 eye dropper drops in juice of about 8oz glass 1 to 2 times per day and it cleared my head pain back to normal, it felt like a bad tooth, but dentist says it is not your tooth, it is your sinus. The medical doctor called it tri-geminal - neuralgia. But this has cleared my problem up. Thank the Lord I feel I have found the answer. Baking soda may do the same though. my homopathic doctor taught us that disease cannot live in a high oxygen inverment. That is what is is.
I suffered from Trigeminal Neuralgia on and off for about 15 years. I spent thousands of dollars going to Holistic Healers and trying natural remedies. The cause of the condition is Herpes. FINALLY, I found Hannah Kroeger's remedy for Herpes -- Interferon.
When you feel a bout of Trigeminal Neuralgia coming on -- do these 3 things:
1) Eat Interferon 3 meals a day until it goes away. The recipe for Interferon is: 1 cup cottage cheese mixed thoroughly with either 2 tbsp of walnut or almond oil.
2) At bedtime, take a double dose of an over the counter non-chewable antacid (Cimetidine). I use Tagamet.
3) Do not talk about the condition to anyone. Keep it to yourself.
Using these 3 steps, I have not suffered from Trigeminal Neuralgia in three years. Whenever I feel a tinge....a warning that it might be coming on, I follow these steps, and it backs off. Sometimes I need to do this for a few days. Luckily, I enjoy cottage cheese!
Do you continue still with the iodine? What led you to discover this? (in other words, is it doctor prescribed?) Are you able to skip a day or more not doing the iodine and does the pain still stay away? How long have you been supplementing with the iodine? I have heard of this treatment for other ailments but never for TN, but obviously naturopathic treatments are just starting to become more public with the internet.
I am not sure if there are any side effects to iodine overdose or not. I will definitely ask my doctor about this. I am glad that you found something to help you.
Methyl-B12 orally or injections have been known to help with Trigeminal Neuralgia for a long time. Naturopathic doctors and some traditional MDs know about this treatment which does not have any side effects of overdose. The good thing about B vitamins is that your body excretes any excess it doesn't use.
Thanks for your tip about the iodine.
I experienced nerve pain in my face that was excruciatingly painful and since my mom has had trigeminal neuralgia I knew I had all of the symptoms. I decided not to take medication and to explore natural options and lots of prayer. One day I started to get a cold sore on my lip as I have gotten them all of my life so I took a very high dose of the amino acid l-lysine. My pain completely went away after a few days. My doctor said that it's possible that the herpes simplex virus could have attacked my nerves. Now I take 1 500mg capsule of l-lysine every day and praise the Lord I am still pain free after several months. I hope and pray that this will help others because I know how terrible it is. You can get L-lysine from any vitamin store. They cost around $5.00 for 250 capsules (don't get the pills cause they're hard to swallow). May God bless you!