Does anyone have information specifically for Bronchiectasis? It is technically a COPD disease with some significant differences. There are two types, Cystic Fibrosis and Non Cystic Fibrosis. I have the non Cystic Fibrosis type. Bronchiectasis is inflammation of the Bronchial tubes caused by the bacteria Pseudomonas Aeruginosa. Apparently it is often caused by contamination in surgical settings through ventilators or water.
I had several surgeries between 2007 and 2009 for Breast Cancer. I developed Bronchiectasis within a few months after my last surgery, although it took nearly five years to get an accurate diagnosis.
Bronchiectasis differs from other COPD diseases in that it is characterized by excessive phlegm production, occasional bleeding of the bronchial tubes, constant flu like symptoms associated with the infection, periodic low grade fever, and coughing (particularly when laying down at night) and wheezing. Many people with Bronchiectasis are mis-diagnosed as asthma, COPD, etc.
Apparently, Pseudomonas Aeruginosa is already somewhat antibiotic resistant when it infects the lungs. The general progression is one of mild infections in the beginning, then increasingly worse and worse over time. In the last four months, I have been on antibiotics of varying kinds and strengths five times. I have now become resistant to ALL of them. When the infection "blows up" it happens very fast and I have been hospitalized twice in two years with Pneumonia.
I had tried some natural remedies in the early stages of this disease but saw no improvement, so succumbed to the idea that the medical establishment was my only hope. Now that is gone as well. I am ready to try ANYTHING. I am particularly interested in CS, DMSO, HP inhaled or diffused. I am starting an ACV and MSM intake protocol.
I also do a clearing technique I learned at Mayo Clinic in Jacksonville, FL. I lay on the bed with my legs bent, feet tucked up close to my hips and then raise my hips as high as I can. Trying to avoid coughing, I labor breathe out, pushing the phlegm down my esophagus to my throat and then simultaneously coughing and sitting up and spitting into a cup. I do this several times until there is nothing left to cough up. I do this once a day, usually in the evening before dinner (ie; on an empty stomach! ).
I also use a percussion machine, a vest filled with air that percusses, loosening the phlegm and I use Symbicort 160/4.5 inhaler after breakfast, once a day.
I would appreciate ANY suggestions people have on how to improve my condition. Thank you all so much in advance!