Hi to all, I have been researching PMR as I think my mum will be diagnosed after her blood tests. I am an autoimmune sufferer with B12 deficiency and Hashimoto's Thyroiditis. I have been using 7 keto DHEA for a few years now though in the beginning I used straight DHEA. Yesterday I researched medical papers on the use of either of these as a treatment for PMR, as far back as 2000 I found that this had been researched with positive results. DHEA is a mother hormone for oestrogen and testosterone and 7 keto is a sulphate of DHEA which doesn't convert into either of these hormones, these are our bodies natural steroids. As you see PMR mostly in older people especially women or women who are peri-menopausal or post menopausal, then it is a logical asumption that the loss of hormones have an involvment in PMR. Men do not suffer to the same extent hormonally as women do which would explain why the majority of people who suffer are women. I use 7 keto for two reasons one is that it boosts T3 thyroid conversion two it is a very powerful immune support. There is a lot on the net re both of these products, it is worth thinking about. I wish you all well Jane x
Kelowna, Bc, Canada
Santa Cruz, Ca
Cape Coral, FL
PMR diagnosed 6 months ago. D.O. recommended Prednisone. One month later the Prednisone symptoms came: bruising, more night sweats, "moon face", threat of diabetes, osteoporosis, high cholesterol... I saw neither as a "solution".
I began to see an acupuncturist, two weeks ago. I have had two visits. She let my body tell her what I needed. She administered acupuncture, then cupping, followed by massage. She adjusted my OTC herbs, which closely follow what I have already read on this site. She suggested using the book "Eat Right 4 Your Type" (D'Adamo). I am eating 50% organic, and follow my blood type recommendations to a T. "Good food is medicine" she says.
I feel SO much better. I can get thru the day without a nap, my muscles hurt less, my temp at night is lower, I have less heartburn, and am HAPPY!
I would never have tried acupuncture unless I felt cornered. I felt no solution otherwise. Feel free to use what ever info you would like. I am 60 years old, and work full time. God bless.
Lake Worth, Fl
Seattle, Wa - Usa
Los Altos, Ca
Weymouth, Ma, Usa
Dear PMR friends, I was diagnosed 1 year ago, my Dr. put me on Predisone and is weaning me off it, I take Vit B as well as cod liver oil capsules, no pain killers but I do take ALKALINE POWDER at night. As an alkaline it works 100 percent, it works for me, get better soon my friends.
Torrington, Ct, Usa
I was on steroids over a year & a half.. Finally weaned myself off steroids. Five days later I was in horrific pain & stiffness again for 2 weeks. Then I found your website and read about apple cider vinegar. I began to drink it every morning. Must be raw, unfiltered apple cider vinegar "with the mother. " After 2 days of drinking this every morning... Like a miracle... No pain! I am on my 5th day of drinking it and feeling better every day! I take 2 teaspoons of vinegar in 8 oz. of water. I am so grateful that I found your website.
Escondido, Ca Usa
It took 8 dr's before I was diagnosed with PMR. I had to search it up for myself. someone mentioned that condition. i then went to the mayo clinic. a blood test call sed rate & crp will show the inflammation in your body... i was on prednisone for about a year. now i am better, but i can sure predict the weather, my buttock tells me so... i take a b complex vitamin a couple times a week, & tbsp of apple cider vinegar (natural with the mother) not pasteurized, in a glass of water to neutralize the acidity the prednisone caused. so far so good.. hope this helps someone a little.
La Porte, Tx, Usa
I was diagnosed with PMR last year. It was tolerable for a time but then I started getting stiffness in my legs and severe pains in my hips. A couple of months ago, I started taking Ashwagandha (ayurvedic cure for ailing memory) pills to aid my memory, four days later I was pain free and it's basically been that way for two months.
Woody Creek Co
Woody Creek, Co
Post on the conference referred to a product from india called BYNA.
I have polymyalgia rhumatica and am currently weaning off prednisone and would like to find a natural remedy. Can you advise where to get BYNA in north america.
thanks very much
Victoria, British Columbia
Tauranga, New Zealand
I have had PMR for just over two years and it is slowly starting to ease off at long last. I now take 3 and 2.5 mg Prednisone alternately. It is harder to lower the dose as it gets down because you have to do it so slowly. I developed my symptoms two days after my flu vaccine. My doctor thinks the vaccine is definitely the culprit and says I am never to have another vaccine. I also take Rehmannia Complex, a herbal tablet that has definitely helped, but other than that, you just have to be patient. There is some great information on PMR on the patient.co.uk site that has helped me.
Polymyalgia: Hello, I had PMR, and got rid of it.
My DNA is from Northern European stock. In 2007 I started losing weight, was in extreme pain, couldn't sleep and was diagnosed with rheumatic. My blood specialist wanted me to take prednisone for 2 years, I took it for about one month saw a hurbalist who said she could get me walking I lived on pain killers, boiled roots and bark herbs and had acupuncture for the pain. Still no avail. Someone mentioned garlic and I remembered that my mother used a lot of raw garlic. A clerk at a health store helped me find out how much organic odorless garlic my body weight could tolerate. Nine months later my blood specialist said I didn't have to come back and I that garlic was wonderful.
It has been 6 years and I am still PMR free.
Timberlea, Nova Scotia
How long will I continue to take lemon and baking soda. Is it for a year until condition improves?
I can't explain how relieved I am to find out I'm not the only PMR "victim" and that I'm also not the only one on the miracle drug prednisone. I hate this drug but I love it. I was diagnosed recently while in the hospital for pneumonia. I have been ill for two years and had no clue why. I'm 49 and have read that's extremely young to get this. The pain was so bad I cried. Was on narcotic pain meds for a YEAR until I was put in the hospital for pneumonia last march and was put on preds 40 mg. I recently started to get off them myself because the doctor would never take me off unless I spent 280 dollars to come see him and take a pulmonary function test, something I did not have the money for. I have read that the addeno (sp?) virus can sometimes cause PMR but there's that pesky question now popping up in my mind about the flu shot I had last year. Hmm. Anyway, thanks so much all of you. I now have some paths to try.
I have had PMR symptoms for 1 year. I was placed on prednisone immediately. If I took 20 -25 mg, I could do anything. Move my arms, walk, work without pain. However, it kept me from being properly diagnosed. Presnisone masks a lot of tests. It took me several months to taper off. My Doctor had me reduce 2.5 mg every 2 weeks. Of course, then I was back to the extreme pain and weekness in my shoulders and hips. Two trips to the Mayo Clinic put me on the right track. Unfortunately, it still takes a long time to recover. I am still waiting for it to "go away".
I had polymyalgia about 15 years ago and it has returned recently, but a much milder case. The first time I had it, it went undiagnosed. Dr. unable to diagnose. I don't want to go on steriods so I am trying to eat healthy (more veg & fruit) and take vitamin B, fish oils, magnesium, bromelain, tumeric, boswellia, etc. Wishing all of you success in beating this disease. I found it interesting to read what other sufferers had to say.
Wow-I am so glad I found this site. It was given to me by a new dear friend. I was diagnosed with Fibromyalgia 2 years ago after going to 4-5 specialists. No one knew how to really treat it. Last year I saw a chiropracter and he put me on a PH balanced diet.
Sort of vegetarian but you could eat all the fish you liked, no breads, pasta or anything with grains. Vegetables, lots of salad with olive oil, fruits and fish. No sugar products all natural fruit drinks. Vitamin supplements a day: 3 omega3, 4 flax oil, 4 C, 2 E, 3 calcium, 3 MSN, 3 Mineral, 3 Glucosomine. I was on it for 6 months and while I had some relief I still was stiff every morning.
This year I started a new neurologist and went thru all the tests again: blood, MRI, EMG. She actually says I have Polymyalgia Rheumatica. Now I am taking Prednisone but am very concerned with side effects. I did get immediate relief but realize it will weaken my immune system. How frustrating!
Hello, 2 days on your lemon and soda after being diagnosed over 2 years ago and down to alternate days prednisolone 2.5 mg and 5 mg , any lower typical sites of pain return, being very quiet about it but today halved dose to 1.25 today and my soda and lemon, so far hardly any stiffness! I'm praying this is it and I will be able to get off the wonderful winner drug predisolone which I couldn't have done without but want to now say bye bye to!! TRY IT!
Mountain View, Ca