Posted by Anonymous (Anywhere, USA) on 01/18/2009
[YEA] I had to write to you because I have been in a seizure situation for many years and I am finally starting to see the light at the end of the tunnel so I thought I would pass it on.
First, a quick story about me. When I was around 18 in 1989 I started having petit mal seizures and no one knew why or what brought them on. Looking back, I remember I was getting to the end of my high school years, and one day in celebration, me and a bunch of friends went swimming. And, in the pool, I was so excited to be in the pool...swimming so fast, I did a flip turn no knowing there was a seating area in the pool and bumped my head. I walked off, trying not to make a big scene...just let the pain go away on its own. A couple of days later at a graduation party, I remember having a few wine coolers...more than normal (that is not a lot..but it was to me!) and I had a seizure. I heard about it the next day. (Looking back and reading more about seizure causes, it could have been an acid buildup in the brain...an area of tissue that was disrupted and then the acids put in my body made it to the brain..and seizures were formed). Well, at the time I thought it was a one shot deal and didn't tell mom and dad. Well, time went on..a year or two and I was going through college and living abroad in France and I noticed they were coming back...more often now. So, I went to a doctor in France while I was on my study abroad and to make a long story short, I was told I had epilepsy. I was put on pills and I thought that was it. I got back to the U.S and I was still having them. At first, I wasn't the best about taking the meds religiously...but as time went on, I WAS taking them...all of them, like clock work. And, still having seizures. I tried MANY different drugs with no positive outcome. SO, in 1995, after getting different doctors opinions (looking back, from doctors that were almost identical) I had brain surgery to help get "rid" of these seizures. Well, what the surgery got rid of was my great memory and my ability to read. Following surgery I didn't know anyone's name...I didn't remember the states...or even something basic like the word "flower." Well, it finally came back (before surgery I was a foreign language teacher...French and Spanish...that was gone following surgery. But, the French came back...not perfect...after about 8 months) So, with a 6 month speech therapy class, my reading came back...not perfect...and my memory is not as sharp as it once was. Am I angry? You're damn right I have been angry, depressed, confused,...you name it! Why me? I was a great student in high school...number 9 in the class, went to a great college...felt like such a strong and independent woman! And now I am reliant on everyone else, can't drive, feel weak, memory is not the sharpest,..and the meds I was one got me even more depressed...and I was STILL HAVING SEIZURES!!! Well, I decided a year and a half ago, I wanted to see a change! I took myself off those pills that were killing me. You know, going in to see if my LIVER was still Ok. every few months just didn't seem right to me! You know, in my opinion, the BEST doctor in the world is IN ALL OF US...In OUR body! Let me figure out this doctor and see what needs to be done. The first couple of months off those pills, I think I was SO happy, feeling strong and IN CONTROL and I didn't have ONE seizure! So, again, to make a long story short - what controls our seizures? Well, that would be our emotions! As time went on, as I started getting USED to not having them, I let small things bother me. And, well, to make a long story short, I started having them again. SO, I read more, and came across a nice book.
Nice, encouraging, natural approach to seizure control. What a nice, refreshing outlook.
After reading this and seeing that there was someone who could come and HELP me with controlling my seizures...and someone who has been through it HERSELF helped me. She had encephalitis herself MANY years ago...had ALL the seizures OFTEN and was told by doctors - sorry, there is nothing we can do. Well, to get to the point, she taught HERSELF how to control them and it has now been...what are we up to..30 years!!! Seizure free! So, I had her come on over to my home for 4 days to train me how to control them. Do I have it PERFECT yet? No. But, do I know that at one point, I will have this DOWN! YES! You know what makes it hard? We ALL have emotions. We are human! That is normal and NATURAL. However, if you have epilepsy, you have to learn to take it all in stride. Don't let emotions get the best of you. Well, that isn't as easy as it may seem. BUT, it is possible. What makes it easier is the warnings our brain/body DO give us. Ig is kind of saying, "Watch out...a seizure may be coming." I NEVER though I had warnings...that must be what those other lucky people have. But, not me. Over time, I did realize, WOW...that IS a warning. There is a long list...I will let you read about the different warning signals. But, once you do get to know yourself and SEE or FEEL the warning, just BREATHE. Take DEEP, RELAXING breaths. That is it. When you feel it coming, BREATHE. Change the direction of the negative activity of the brain. Now, I told you, I don't have it perfect yet. Here is a recent example. I am a massage therapist (damn good!) and I was VERY busy yesterday. One client after another. Well, I needed to go and have lunch. The healthy, friendly, open arms, cute Thai restaurant I go to often was closed. I was sad, surprised and just decided to go to the other Thai place. I had been there once and didn't like it as much. But, had to eat and run. SO, go over, Maureen! I went in and waited for about 10 minutes to be seated so that didn't start off well. There was barely anyone there! Why so long? Then to get the menu and for them to help me...and when they DID come to me, they were annoyed I was there. So, to say the least, a lot of negative engery took over in my brain. And, a few minutes later, seizure. Petit mal. When I came to, I was frustrated and angry. But looking back, I SHOULD HAVE KNOWN. Come on! Obviously I was annoyed! Why didn't I just BREATHE and let positive take over. With breathing, my brain could have looked at this differently. It could have turned this around saying, "Maureen, maybe these waitresses are having a bad day. Maybe something bad happened to them today. They are human. Smile at them and let them enjoy the rest of their day." But, I didn't. Do you see how something so simple could have turned it around? But, I am human and negative took over. Soon, I WILL grasp this 100% ..but not yet. =)
So, stay positive and the seizure will be a thing of the past! A NEW, WONDERFUL, DIFFERENT life could come! You COULD control those seizures and help OTHERS do the same. Getting this word out is needed. Not EVERYONE NEEDS drugs to control their seizures. BUT!! don't just STOP taking the meds. This needs to be well thought out. Read the books I have sent you. Keep a journal.
If you want to go one step further, have Dr. Donna Andrews come to your home to work with you. Here is the info.
If you have any other questions, let me know! Good luck everyone!
Oops, one last thing. After reading Ted's last post on Ph water balance in the brain to control seizures, I have been doing that myself the past few months which has been helping me and I will put that together in another story. Drinking water with a higher ph can help MANY ailments. More in a couple days. Right now, go get those books!