A Dr. diagnoised my 17 yr old grand-daughter with epilepsy. I'm am not convinced of his diagnosis. She had a one time passing out and no seziure activity was present. She went to the ER and all they found was she was dehydrated. Her brain scan was normal and her MRI was normal. The EEG she had was slightly abnormal. The 72 hour EEG she had had some peaks and a small amount of high electrial activy? areas. She has a headache occ. and does not sleep regulary or eat properly. She is under alot of stress and has anxiety attacks occ. But she is your active average teenager in her senoir year of school and makes very good grades. They want to put her on Lamictal but I'm not convinced that she has epilepsy and the med has way to many side effects. The Dr. said if she took the med for 5 yrs and did not have a seizuer she could come off it. My other concern is what damage will it do to her body in 5 years. Having trouble getting a second opinion. Any suggestions would be appreciated.Thanks
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Granite Bay, Ca
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Kihei, Hawaii, Usa
Posted by Jem (Austin, Tx) on 09/11/2011
one cause of epileptic seizures is an overdose of glutamic and aspartic acid.
many foods contain these amino acids in their free state which creates a shutdown of neurotransmitter production in the brain, along with oxidizing it.
i don't mean to be 'selling' anything, I have written a book on the subject of how dangerous these free form amino acids are to the brain affecting/causing everything from bi-polar disorder, anxiety, panic, rage.. to physical symptoms such as epilepsy, stroke, parkinson's, altzheimers..
the info is too vast to write here, however the main things to avoid are msg, which is freed glutamic acid and all things high in freed glutamic acid... there is a list of food substances in my book.
also, aspartic acid in nutrasweet, fried foods.. processed foods..
the biggest culprits, cooked food, soy, oats, barley, wheat, grains, nuts, seeds, .... The obvious processed foods/foods that outright contain msg... and aspartame...
hope this helps. My book is about to be launched through a site, if you contact me through this thread (as in, let me know you read this here) I'm happy to send anyone suffering from epilepsy a copy of my book.. you can donate later if it helps.
it will be the last version before being edited for the upcoming launch.... Not the final version... the info is valuable
the book is geared toward those who suffer from emotional disorders mild to severe and raising consciousness through live food
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Jamaica, West Indies
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Ten Mile, Tn
Posted by Debbie (Melbourne, Australia ) on 09/11/2011
A really good book on seizures and glutamic acid written by a Neurosurgeon is "Excitotoxins, the Taste that Kills" By Dr. Russell Blaylock. He has done extensive study on the subject.
Posted by Jim (dallas, ga) on 12/19/2007
We started the gluten / casien free diet about a month and a half ag. I have noticed that my 4yr lod daughter's constipation has all but gone. We have started seeing a natruropathic dr. found that she had fungal yeast overgrowth in both the large and small intestines, mercury, and vaccines in her body. Since seeing the new dr. she has started getting some of her words back and being alot more affectionate towards everybody especially her older sister of 5yrs. old. Not to say it is a cure but GOD has opened doors for me and after 4yrs. of battlling seizure after seizure, and now autism, I think our tunnel is getting brighter.
Replied by Sharon
Rio Rancho, New Mexico
Posted by Dolores (Noti, Oregon) on 07/09/2012
Hello I was looking for help with seizure control because my 17 year old son will be going off medication by the end of this month, no insurance (husband lost his job). As I was reading some of the remedies from others I thought I could add something.
I have always controled my two boys seizures by diet. The information I read when they were 3 and 5 years (their first seizures) was from a naturopath doctor. She listed what needs to be avoided: chicken and chicken eggs. black and red fruits (plums, red apple skins, blueberries, strawberries, purple eggplant skins, red tomatoes etc. It is the pigment that is the seizure trigger also manmade dyes, so marshmallows with blue dye to make them white, milk will sometimes have blue in it, etc. READ the LABELS, then the man made stuff other than dyes... BHA, BHT, and MSG. So, BHA and BHT are in oils and fats... If the product has less than 2% of the chemical the manufacturer does not have to list it so you need to stick to your natural oils and butters or call the individual companies and ask if they have either of those chemicals in their products. MSG is everywhere. Look up "truth in labeling" they have a list and explanations about MSG (very good information).
This list of things to avoid has always proven true for my boys. If they would have a seizure (about once every 6 months or less) I could always pinpoint what "got past me" and caused it. One boy has stopped having them. But the younger still has them if I am not careful. The reason we went to mediation is because over the years I didn't realize that MSG was being put into so many more products under so many more names and he was starting to have little seizures regularly. He is sensitive and I want more help. I am going to try the baking soda and lecithin and vit C and magnesium as extra support for him.
I hope this list will help others, it has been very good for us. Also stress affects my boy, fever, overwork.
Posted by Joyce (Lansdowne, Pa ) on 09/09/2014
Do some research on Ketogenic diet. I have read where it helps with seizures.
Posted by Mominchi (Chicago, Il) on 12/29/2012
We have tried Keto diet for my toddler's epilepsy and have now switched to a high in good fats diet. The issue with brain fats as far as I read with Keto is that long chain trigylcerides like veg oils burn really crappy as brain fuel and lots of fats pick up free radicals when you cook with them or become derranged or transfats as they are more commonly known. Those actually prevent the brain from using fats to repair itself (brain & nervous system is comprised of saturated fats).
My understanding of the reason the old school version of ketogenics worked best is because ALL the fat was short chain triglycerides from milkfats they burn cleanly and leave less metabolic waste (ketones) of course now since milk is superheated thru pasturization and derranged thru homogenization the diet is far less effective than the 20's version. Coconut oil is a medium chain and that was why MCT version of keto gave decent results. It is a good saturated fat (they actually prevent the oil from becoming a transfat when heated) and all cooking is ideally done with coconut, butter, or ghee. They gave excellent results on KD as compared to the terrible formula readymix loaded with calcium, aspertame, and vegetable oil.
Posted by Nelson Narciso (Toronto , Ontario) on 04/06/2012
Hi, I highly recommend the ketogenic diet my son is 6 yrs old and has had all the seizures you can name and the meds are garbage. This diet can help to stop them with out meds please try this diet it really works you have to be very strict but its worth it.
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Posted by Neurosky (Vancouver, Bc) on 04/10/2013
Another thing that has a major effect on seizures is sleep. Lack of sleep and stress can cause epilepsy. I have a really mild case of it and that's the only time I ever get epilepsy is when I am stressed or haven't been sleeping much or going to bed late.
Posted by Anonymous (Anywhere, USA) on 01/18/2009
I had to write to you because I have been in a seizure situation for many years and I am finally starting to see the light at the end of the tunnel so I thought I would pass it on.
First, a quick story about me. When I was around 18 in 1989 I started having petit mal seizures and no one knew why or what brought them on. Looking back, I remember I was getting to the end of my high school years, and one day in celebration, me and a bunch of friends went swimming. And, in the pool, I was so excited to be in the pool...swimming so fast, I did a flip turn no knowing there was a seating area in the pool and bumped my head. I walked off, trying not to make a big scene...just let the pain go away on its own. A couple of days later at a graduation party, I remember having a few wine coolers...more than normal (that is not a lot..but it was to me!) and I had a seizure. I heard about it the next day. (Looking back and reading more about seizure causes, it could have been an acid buildup in the brain...an area of tissue that was disrupted and then the acids put in my body made it to the brain..and seizures were formed). Well, at the time I thought it was a one shot deal and didn't tell mom and dad. Well, time went on..a year or two and I was going through college and living abroad in France and I noticed they were coming back...more often now. So, I went to a doctor in France while I was on my study abroad and to make a long story short, I was told I had epilepsy. I was put on pills and I thought that was it. I got back to the U.S and I was still having them. At first, I wasn't the best about taking the meds religiously...but as time went on, I WAS taking them...all of them, like clock work. And, still having seizures. I tried MANY different drugs with no positive outcome. SO, in 1995, after getting different doctors opinions (looking back, from doctors that were almost identical) I had brain surgery to help get "rid" of these seizures. Well, what the surgery got rid of was my great memory and my ability to read. Following surgery I didn't know anyone's name...I didn't remember the states...or even something basic like the word "flower." Well, it finally came back (before surgery I was a foreign language teacher...French and Spanish...that was gone following surgery. But, the French came back...not perfect...after about 8 months) So, with a 6 month speech therapy class, my reading came back...not perfect...and my memory is not as sharp as it once was. Am I angry? You're damn right I have been angry, depressed, confused,...you name it! Why me? I was a great student in high school...number 9 in the class, went to a great college...felt like such a strong and independent woman! And now I am reliant on everyone else, can't drive, feel weak, memory is not the sharpest,..and the meds I was one got me even more depressed...and I was STILL HAVING SEIZURES!!! Well, I decided a year and a half ago, I wanted to see a change! I took myself off those pills that were killing me. You know, going in to see if my LIVER was still Ok. every few months just didn't seem right to me! You know, in my opinion, the BEST doctor in the world is IN ALL OF US...In OUR body! Let me figure out this doctor and see what needs to be done. The first couple of months off those pills, I think I was SO happy, feeling strong and IN CONTROL and I didn't have ONE seizure! So, again, to make a long story short - what controls our seizures? Well, that would be our emotions! As time went on, as I started getting USED to not having them, I let small things bother me. And, well, to make a long story short, I started having them again. SO, I read more, and came across a nice book.
Nice, encouraging, natural approach to seizure control. What a nice, refreshing outlook.
After reading this and seeing that there was someone who could come and HELP me with controlling my seizures...and someone who has been through it HERSELF helped me. She had encephalitis herself MANY years ago...had ALL the seizures OFTEN and was told by doctors - sorry, there is nothing we can do. Well, to get to the point, she taught HERSELF how to control them and it has now been...what are we up to..30 years!!! Seizure free! So, I had her come on over to my home for 4 days to train me how to control them. Do I have it PERFECT yet? No. But, do I know that at one point, I will have this DOWN! YES! You know what makes it hard? We ALL have emotions. We are human! That is normal and NATURAL. However, if you have epilepsy, you have to learn to take it all in stride. Don't let emotions get the best of you. Well, that isn't as easy as it may seem. BUT, it is possible. What makes it easier is the warnings our brain/body DO give us. Ig is kind of saying, "Watch out...a seizure may be coming." I NEVER though I had warnings...that must be what those other lucky people have. But, not me. Over time, I did realize, WOW...that IS a warning. There is a long list...I will let you read about the different warning signals. But, once you do get to know yourself and SEE or FEEL the warning, just BREATHE. Take DEEP, RELAXING breaths. That is it. When you feel it coming, BREATHE. Change the direction of the negative activity of the brain. Now, I told you, I don't have it perfect yet. Here is a recent example. I am a massage therapist (damn good!) and I was VERY busy yesterday. One client after another. Well, I needed to go and have lunch. The healthy, friendly, open arms, cute Thai restaurant I go to often was closed. I was sad, surprised and just decided to go to the other Thai place. I had been there once and didn't like it as much. But, had to eat and run. SO, go over, Maureen! I went in and waited for about 10 minutes to be seated so that didn't start off well. There was barely anyone there! Why so long? Then to get the menu and for them to help me...and when they DID come to me, they were annoyed I was there. So, to say the least, a lot of negative engery took over in my brain. And, a few minutes later, seizure. Petit mal. When I came to, I was frustrated and angry. But looking back, I SHOULD HAVE KNOWN. Come on! Obviously I was annoyed! Why didn't I just BREATHE and let positive take over. With breathing, my brain could have looked at this differently. It could have turned this around saying, "Maureen, maybe these waitresses are having a bad day. Maybe something bad happened to them today. They are human. Smile at them and let them enjoy the rest of their day." But, I didn't. Do you see how something so simple could have turned it around? But, I am human and negative took over. Soon, I WILL grasp this 100% ..but not yet. =)
So, stay positive and the seizure will be a thing of the past! A NEW, WONDERFUL, DIFFERENT life could come! You COULD control those seizures and help OTHERS do the same. Getting this word out is needed. Not EVERYONE NEEDS drugs to control their seizures. BUT!! don't just STOP taking the meds. This needs to be well thought out. Read the books I have sent you. Keep a journal.
If you want to go one step further, have Dr. Donna Andrews come to your home to work with you. Here is the info.
If you have any other questions, let me know! Good luck everyone!
Oops, one last thing. After reading Ted's last post on Ph water balance in the brain to control seizures, I have been doing that myself the past few months which has been helping me and I will put that together in another story. Drinking water with a higher ph can help MANY ailments. More in a couple days. Right now, go get those books!
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Corpus Christi, Texas
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Posted by Charlie (K. Lumpur) on 04/16/2015
One of my friend got cured of seizures by taking oral Magnesium chloride and Epsom salt for foot bath.
Posted by Deel~ (Flint, Mich./usa) on 10/31/2012
Additional research(:-) a deficiency of Magnesium, can be implicated as a cause of almost all ailments, esp'lly Seizure disorders, & adding B-6 helps it absorb, but is better to take a B-Complex, as they all work together, so about 500mg Mg 100mg B-6 B's> assist metabolize Carbohydrates, Brain fuel.
Calcium D also assist as does a Multi-Vitamin; as Anti-convulsants deplete D, Folic acid, & others.
Posted by Exhausted (Somewhere, In The Usa) on 07/16/2012
I have Epilepsy it has just turned from absence type to the scary biting tongue, falling down nocturnal type. I'm interested in magnesium as a possible cure since mine started as a teenager and I also have had headaches often.
My QUESTION: I took about a teaspoon of epsom salts dissolved in some fruit juice once per day- two days in a row in the evening. My problem is now I am experiencing racing thoughts at night, tingling hands, some numbness in the face (especially when I try to sleep) and really bad insomnia. I can only sleep a couple of hours and I wake up again. Plz help it feels like I am buzzing with electricity. I am exhausted. What's wrong with me?? :( Btw, I was fighting off the dreaded feeling of an oncoming attack for several days prior to taking the epsom salts (i have one every 2 weeks) and after taking magnesium the dread feeling is mostly gone so I feel like magnesium may be helping except for this new problem.
Replied by Citygirl27
Richardson, Tx, Usa
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Prague, Czech Republic
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Somewhere, In The Usa
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Posted by Babyangel (Sinton, Texas, Usa) on 06/26/2012
Hello, my name is Katie. I had mild epilepsy since 11/12/2004 when I had my first grandmal it was induced by stress from seeing my mother stay in hospital 1 month (shes ok now) I took phenytoin 500mg for 11 months, the side affects were HORRIBLE! I was fine for years I knew to avoid foul stong odors such as from nail polish and hair coloring that made me feel I may have a seizure if I was around that odor long. I had a few close calls I drank herbal tea called chamomile to relieve the "yucky" feeling I may have a seizure. I let the tea bag sit in the coffee cup of water I put in microwave 2 mins sit in the water 15mins to make it stronger, if it was an emergency I would get the chamomile tea stems and chew on it like gum, I had 1-3 mild nocturnal seizures each year I knew it was about to happen when I felt the extreme "deja vu" feeling. I started to take a herbal vitamin called valerian root since I had trouble sleeping.. This worked very well 2-3 each night and I had no more nocturnal seizures
I started getting older so, like many other young adults drinking became common for me. My finst few yrs I was fine having 6-8 beers. Then around oct 2011 I started to binge drink 10-12 beers at a time 2-3 times a week until I had a simple partial seizure feb 15 2012 from the bad hangover that triggered it. I did not see a doctor right away I just stopped drinking and smoking tobacco. I still did not feel well I had "close calls" daily and had 2 more simple partial seizures. I finally saw a doctor march 16 2012, I explained to the doctor I never want to take dilantin again. It was so horrible, so the doctor gave me something thats helped ALOT, .50 mg alprazolam (generic xanax) I feel relaxed now, I havent had anymore seizures or closecalls. I break the pill 1/2 so I take only .25mg of xanax at time. I still drink chamomile tea. I also like to drink either cinnamon tea or take 2 cinnamon capsules in the morning that HELPS ALOT the cinnamon, I also take 1 Vitamin E tablet, and 1 omega3 daily.
Whats helped me most is exercising or staying busy on feet!! I havent drank or smoked in over 4 months now . And if you're taking a medication make sure you read online of warnings what may contradict that medicine thats very important.. and if you believe in god, keep something holy closeby. I personally carry a ring rosary always in my pocket with me and next to my bed when im asleep..
I hope I can help someone that reads this.. I wanted to post here hoping to help someone.. God bless you
Posted by Michael Tan (Singapore) on 07/12/2013
(adult formula) For children below 12, reduce formula by half.
Qian Shi 6g, Bai Guo 6g, Huai Shan 6g, Dang Shen 6g, Huang Qi 6g, Chuan Gong 3g, Gou Qi Zi 6g, Du Zhong 6g, Lian Zi 6g, Yuan Shen 12g, Deng Xin Cao 15g
1.5 litre of water, bring water to boiling point then switch to very low flame and boil for 1. 5 hr. Consume before food or 2 hours after food.
This is an effective epilepsy remedy I find in a Malaysia Herbal Magazine. According to the contributor, this remedy have already cure many patients.
For a start drink 10 doses and then observe if the patient is cure. More doses will be needed if the patient is not cure.
Epilepsy is easier to cure in young children and teenager. The younger you are the higher your chances of getting your epilepsy cure.