Natural Remedies for Sjogren's Syndrome

Mineral Water for Fatigue
Posted by Diane (California, US) on 01/19/2015
★★★★★

Has anyone has any success healing Sjogren's doing liver flushes? I have been hearing about this remedy from youtube vidoes from Andreas Moritz.

For fatigue, mine went almost completely away when I switched to drinking ONLY mineral water (not the sparkling kind). I get it delivered now. It's expensive, but I no longer have the horrible fatigue where I couldn't even stand to wash dishes or make it up the hill to where I park my car. After only 2 days of drinking only mineral water, it was all gone. My hip, shoulder, and foot pain also have no reappeared. it's been over 7 months now.

Dietary Changes
Posted by Gokhals (Ca, US) on 12/29/2014 34 posts
★★★★★

Raw milk. A high fat (high quality Ghee, butter, lard, tallow) diet. Digestives such as kraut, kvass, acv, enzymes to enable you to digest proteins. Pesticide free food.

My Sjorgens Syndrome was cured from some combination of these.

Multiple Remedies
Posted by Donna (Ontario, Canada) on 12/11/2014

What is eyebright? I haven't been diagnosed yet, but I'm pretty sure I have Sjogren's Syndrome. I'm a Dental Hygienist, an I see patients with SS often enough, and dreaded that it would ever happen to me. I'm going on my second week straight of this agonizing dry eye and mouth issue. I'm going out of my mind. Still awaiting RA blood tests. I'm finding that chewing icecubes helps me stay hydrated but doesn't deplete the saliva from my mouth like water. What is night shade foods? I've doubled up on my omega 3's. This all started the night (of the day) that I started my liver cleanse that she put me on with other things( paricide, curcumin, probiotics, b12 with folic acid) I also had acupuncture done as well that day to increase my fertility, and I fell like all of that triggered this reaction. I'm desperate to get rid of it.


Black Cohosh
Posted by Diamond (Ma., US) on 11/22/2014
★★★★★

I have used a natural remedy for over twenty years-called black cohosh, it has been a God send for all these years. As for dry eyes, it's just the greatest, it also supports the whole system. Black Cohosh can be bought in almost any drug store and some of the leading stores. I thought I would add an extra alternative for many others to use. Good Luck...


Borage Oil
Posted by Ally (Simsbury Ct) on 11/21/2014

Oh my gosh, Mary. I got dry mouth in the worst way. I am basically 47 and entering perimenopause. It has been the most miserable experience... Something we all take for granted but when your mouth is dry, it affects everything and causes such anxiety. I have always been more of a dry person anyway tho my eyes only slightly-mostly my allergy-laden nose. But little did I know the difference the borage oil seems to make for me. I'm taking in conjunction with flax and fish oils I'm hoping it is for real and keeping my fingers crossed! Thanks for your post. Hope it will help other people suffering too.


Ted's Remedies
Posted by Su (London, UK) on 11/09/2014

Hi Ritu

Plz let me know how much of baking soda lemon juice and water one has to use.


Fish Oil
Posted by Prioris (Fl, US) on 09/29/2014

Omega 7 is relatively new so appreciate hearing your feed back. It helps understanding its limitations. What dosage did you try per day and I assume you took it with fats for absorption.

Here is something on Sjogren's Syndrome.

http://www.seabuckthorn.com/Omega-7 Sea Buckthorn HANDOUT.pdf

They used 3 grams of Sea Buckthorn Oil

It seems to help some people with that syndrome


Fish Oil
Posted by Gwen (Cleveland, Oh) on 09/29/2014

For Prioris...thank you for your comment. I actually started taking Omega 7 Palmitoleic Acid 4'ish weeks ago, as recommended by my local health food store. I experienced no improvement -- no dry eye, dry mouth, sore lung and heart palpitation relief at all. We're all built differently, so while fish oil, flaxseed oil and borage oil worked perfectly for me, maybe Omega 7 might benefit others.


Fish Oil
Posted by Prioris (Fl, US) on 09/29/2014

You missed one of the most important oils for dryness problems. Look into Palmatoleic Acid or Omega 7. Primeval has 50% in their brand.


Fish Oil
Posted by Gwen (Cleveland, Ohio) on 09/28/2014
★★★★★

Everyone's comments have been incredibly helpful!

I'm a very active, lean, 56-year-old who was experiencing several Sjogren's symptoms for months and they were significantly debilitating -- dry mouth, dry eyes, lung soreness plus heart palpitations. I refuse to seek out the help of traditional doctors because of their reliance on chemical cures. I did, however, engage a Sports Nutritionist that came highly recommended by an active, lean colleague of mine, who is 57 years old. I'm mentioning my age and my colleague's age so women who are of the same "vintage" realize that there is post menopause hope as one's body changes. When I shared my symptoms with the Sports Nutritionalist he said "Have you been tested for Sjogren's?" He also said, "At a minimum, you should be consuming 3000 mg of high grade fish oil per day." I was consuming 1000 mg per day. Interesting.

I next went online, read your comments, and did the following: increased my fish oil soft gels consumption to 3000 mg per day (Carlson Norwegian Salmon Oil), started taking 2 Solgar Flaxseed Oil 1250 mg soft gels per day and started taking 2 Solgar Super GLA Borage Oil 300 mg soft gels per day. The next day, my dry eyes and dry mouth significantly improved! The day after, my eyes and mouth felt normal again. I am still experiencing lung soreness plus heart palpitations, but I have noticed slight improvement there as well. My thought is that it may take longer for the rest of my body to get "fully lubricated" once again. I truly believe that I'm on the right path, so I wanted to share my experiences in case it may help others. As a side note, my Sports Nutritionalist also told me to switch multi-vitamins -- moving from a tablet to soft gels because they are absorbed into your system whereas tablets can pass right through you. One of his clients was being x-rayed for some type of condition, and the doctor saw the multi-vitamin in the gentlemen's intestinal tract, e.g., it hadn't been absorbed into his system. I am going to make this change as well.

I would recommend that if you increase your oil intake, you make sure that you're not over-doing it by eating fatty foods. Too much fat could cause other problems. Eat healthy!

Ted's Remedies
Posted by Ritu (Columbus, Oh) on 06/01/2014

Hi! This message is for Candyk from Rural, Ohio.

My mother (age 67 yrs) has severe Sjogrens Syndrome.
I read about your remedy of baking soda and lemon.
Could you please elaborate on the quantity of each and in how much water? Also if the water should be warm or at room temperature? How many times a day you take this?
How helpful it has been.

I will really appreciate your response as I am desperate for help.

Thanks a ton! Ritu from Columbus, Ohio.


Multiple Remedies
Posted by Steenie (Florida) on 09/03/2013
★★★★☆

One time, I did put my Sjogren's into "remission" for 6 years, actually... I started going back to the things which got me "into the mess" to begin w/...

First of all, mine came from having a toxemia as a child as well as a genetic predisposition... I had been food combining and vegan for years but I didn't find help until I got OFF the Prednisone eye drops I'd been doing for years for my Uveitis (I guess, I should tell others to work caution and check w/ a Naturpoath, uveitis is a serious condion, as well)... I actually tapered off of them as well as (diluted w/ distilled water and more over a period of a month), I had found the ultimately, Eyebright in the eye (would recommend, now, checking Weleda or a homeopath as the way I did it caused infection), but infection or not, the body was then able to heal... Also, around that time, I did a liver cleanse using only milk thistle tea with a juice fast over a period of time. I would also recommend that anyone with Sjogren's take out any nightshades from their diet or regime, sincerely, my uveitis would flare and I also didn't realize that tomatoes were a culprit, I knew I reacted to all other nightshades... I know that I have been successful w/ potatoes, but don't remember doing them around the time I got rid of it.

I got in a less clean environment and the Uveitis crept in some and began use in the eye of the Pred drops again (should've stuck w/ the eyebright, really)... But, thought I was "normal"... Many eye surgeries later, more Pred and not keeping up w/ the natural diet, doing more man made things (it's hard, you need the right nutrients when you have both these conditions, if vegan, you really need to supplement w/ a quality D3 and B12 supplement as well as having a great source of calcium)... and the Sjogren's came back... I'm going to try my former regimine and see how it goes, if that doesn't work, I'm moving where the air is cleaner. Hope this helps someone else! :)

Evening Primrose Oil
Posted by Steenie (Florida) on 09/03/2013
★★★★★

Sjogren's Syndrome:

Another source of GLA, Evening Primrose Oil, I hapsed upon it as it said something about 'menstrual help', and I seriously got a regular pharmacy brand, and I began to notice my dry eyes going back to normal (I wasn't sure if I was nuts or it was true, so I stopped... )... I'm about to restart, I empty out these gel caps (couldn't find a veg formula at my store)...

There's actually a pub med study, look up pub med sjogren's and evening primrose oil (EPO)...


Ted's Remedies
Posted by Gingermeggs (Sydney) on 08/03/2013

Sharon, I had the fluid cysts on my first knuckles. That's what led me to the dr to find out I had sjogrens. One would open up every few weeks and drain. For years. Seems to have healed after taking nattokinase and serrapeptase for a few months. Only 2 of each, now back to one. Kinda hard on the stomach.


Ted's Remedies
Posted by Candyk (Rural, Ohio) on 06/04/2013

Sharon from NY - I also have sjorgrens and I use the alkalizing lemon/bakingsoda everyday. It has helped me tremendously. I also take a vit. B complex. I eat coconut and and use coconut oil since I have other auto disease too. But I have stayed off all the RX drugs and I think its due to this regimen. NOTE: I drink 8 to 10 glasses of water/day.


Borage Oil
Posted by Mary (Denver, Colorado) on 01/22/2013
★★★★★

In response to Angela's post:

09/26/2008: Angela from Broomfield, CO: "A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!"

Warm pack of castor oil for relief is good to know. I also suffered from inflamation of the salvary and parrotid glands. These glands become sore and enlarged because they do not have the right nutrients to manufacture saliva. Because they are depleted and still trying to work they become larger and painful. It is important to relieve these glands.

In 1985 when I first had the symptoms of Sjogrens with a vengence and found only topical drops for tears, saliva etc, it was apparent to me I needed to find out what was causing this in my body (female, 43 yrs). By luck I found a report serendititously offered at a symposeum by a doctor who reported that while he was not looking for relief for dry eyes among the fishing population which were his test subjects, that was their unamous report to him. He had been giving them an oil extracted from borage. I found borage oil at a small speciality store for vitamins and supplements. Within a few weeks of taking the oil pretty liberally my painfully eyes were relieved and the glands in my face became soft and pain free.

If is the gamma linoleic acid in the tasteless oil which my body needed. Its clear that while the precursors may be in my body, I did not have the ability to convert them into gamma linoleic acid. Once this was supplied the endocrine glands which secrete saliva and tears as well as many other glands such as the liver and pancreas, sweat and mucus in the lining of the reproductive tract, as well as the mamary glands functioned well. One terrific happy result was that the painful fibrous tissue in the breast became soft and pain free.

That been my experience and if it can help someone else be pain free that would give me great pleasure.

Mary

Collagen and Keratin Capsules
Posted by Denise (Mishawaka, In) on 10/19/2012

I'm seeing a rheumatologist on Novemeber 5th and believe I could have sjogrens syndrome. I have the dry mouth symptoms exactly as you have stated and want to try a natural approach. I was wondering the same thing on how much you use and if it's daily? Please let us know how to take these so I can prevent taking prescription meds. Thanks :)


Ted's Remedies
Posted by Anne (Newport Beach, Ca) on 10/15/2012

Shaon, ask your doctors about packing the wounds with manuka honey.


Ted's Remedies
Posted by Shaon (Independence, La, Usa) on 09/14/2012

I was reading about David who has Sjogrens I too have Sjogren. I was diagnosed with Sjogren's Syndrome in 2010 but I'm sure I've had it since 2005. The doctors have run test but no one diagnosed it until I when in the hospital in 2010. The heart doctor said I had a sticking value which we found out was cause from the sjogren, I've lost teeth because of the dry mouth, I can't go in the sun because it hurts my eyes, I've lost my taste, my ears hurt and now theres joint problems.

But that's not why I really need help I have allergies from nuts to purfumes. In 1999 I had a reaction to tea-tree oil residue left in the bath tub I was taken to the hospital where they but umna boots on me that only made matters worse and I carry the scars to proof it. There is this one spot on my left leg that never heals, I have had it for 13 years it was never any big than a quarter until 2010 when it decide to get bigger after beening hit.

Then at the end of 2011 I hit the other leg on a box and a new hole formed, the doctors at wound care have tried about ten differance medicine on me but nothing has worked. They have put the medication on than wrap my legs but the wrap cause pain and itching. Now I itch all the time and the itching is driving me up the wall, when any thing touches my lower legs I see stars that's how bad they hurt and I don't mean where the sores are I mean any where on my lower legs and then these water like blisters form and new holes start. Most of the time the smaller ones are just skin deep and heal but some are a little deeper and take there time healing but not the bigger ones there just will not heal. I've tried epsom salt baths and bag balm at home but nothing works and I have constant drainage from the minute my feet hit the floor. I hope you can help me, please


Collagen and Keratin Capsules
Posted by Jacquie (Wellington, New Zealand) on 08/07/2012

Hi Janine, I'm a 46 year old Wellingtonian with exactly the same symptons as yourself. I also take Collagen for my neck problems and have the dry eye and mouth issue which causes bad breath and drives me crazy!! Could you tell me what collagen keratin capsules you take and if its still working for you 4 years later??


Collagen and Keratin Capsules
Posted by Deb (Sherrard, Il) on 06/27/2011

how many mg do you take and how may tablets is that. how long did it take before you had results? I was diganoised with sjogren's syndrome and would like to try a natural approach before using meds.


Fish Oil
Posted by Suza (Sydney, NSW, Australia) on 04/20/2009
★★★★☆

I have Sjogrens syndrome, a mild version, but what has really helped me is taking a lot of EPA & vitamin E fishoil as well as Nodic Cod liver oil, I can feel the difference when I don't take it, as my symptoms worsen.

I also feel that getting a neck massage helps my symptoms, I have a feeling that the neck seems to be linked to the sjogrens somehow , I have always had a sore neck too, but have been doing stretches that help. anyway give the fish oil pills a go- I take 12 a day + 3 nordic cod liver oil pills. I have been doing that for years and it seems to keep it under control.


Castor Oil
Posted by Angela (Broomfield, CO) on 09/26/2008
★★★★★

A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!

Collagen and Keratin Capsules
Posted by Janine (Wellington , NZ) on 08/11/2008
★★★★★

I have been taking Collagen/Keratin capsules for 2 weeks. I started taking these as a possible cure for neck pain which i have suffered from for years. I developed Sjogrens syndrome 2 years ago as a result of a nasty virus I had. I have had the dry mouth which has affected the linings of my mouth and caused bad breath. In the last year I also had dry gritty eyes, and dry vagina. After two weeks on the collagen/keratin
capsules I now have saliva in my mouth! My eyes and vagina are improving with moisture too. And yes my Neck pain has practically dissappeared. Hope someone else might find this cure works for them too!!


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