Natural Remedies for Sjogren's Syndrome

In response to Angela's post:

09/26/2008: Angela from Broomfield, CO: "A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!"

Warm pack of castor oil for relief is good to know. I also suffered from inflamation of the salvary and parrotid glands. These glands become sore and enlarged because they do not have the right nutrients to manufacture saliva. Because they are depleted and still trying to work they become larger and painful. It is important to relieve these glands.

In 1985 when I first had the symptoms of Sjogrens with a vengence and found only topical drops for tears, saliva etc, it was apparent to me I needed to find out what was causing this in my body (female, 43 yrs). By luck I found a report serendititously offered at a symposeum by a doctor who reported that while he was not looking for relief for dry eyes among the fishing population which were his test subjects, that was their unamous report to him. He had been giving them an oil extracted from borage. I found borage oil at a small speciality store for vitamins and supplements. Within a few weeks of taking the oil pretty liberally my painfully eyes were relieved and the glands in my face became soft and pain free.

If is the gamma linoleic acid in the tasteless oil which my body needed. Its clear that while the precursors may be in my body, I did not have the ability to convert them into gamma linoleic acid. Once this was supplied the endocrine glands which secrete saliva and tears as well as many other glands such as the liver and pancreas, sweat and mucus in the lining of the reproductive tract, as well as the mamary glands functioned well. One terrific happy result was that the painful fibrous tissue in the breast became soft and pain free.

That been my experience and if it can help someone else be pain free that would give me great pleasure.

Mary

I was diagnosed in 2008 with sjogrens. After 9 liver flushes (Andrea Moritz style) I did 6 in 08 and 3 here in 2015.) I had blood redrawn last month and my blood work came back NEGATIVE. The DR said he "could not medically explain this". I tried to explain the liver flushes... but just got a blank stare.

Fyi, I was also able to go off of my meds for hashimotos and am hoping one day to also rid my body of scleraderma morphea. I do not do any speacial diet or supplements, I go gluten free temporaraly if it starts bothering my stomach. But no other restrictions.

I have also done a parasite detox through hummaworm.

I HOPE THIS FINDS YOU WELL AND BRINGS YOU HOPE. SJOGRENS IS CURABLE!

I have been taking Collagen/Keratin capsules for 2 weeks. I started taking these as a possible cure for neck pain which i have suffered from for years. I developed Sjogrens syndrome 2 years ago as a result of a nasty virus I had. I have had the dry mouth which has affected the linings of my mouth and caused bad breath. In the last year I also had dry gritty eyes, and dry vagina. After two weeks on the collagen/keratin
capsules I now have saliva in my mouth! My eyes and vagina are improving with moisture too. And yes my Neck pain has practically dissappeared. Hope someone else might find this cure works for them too!!

Raw milk. A high fat (high quality Ghee, butter, lard, tallow) diet. Digestives such as kraut, kvass, acv, enzymes to enable you to digest proteins. Pesticide free food.

My Sjorgens Syndrome was cured from some combination of these.

Has anyone has any success healing Sjogren's doing liver flushes? I have been hearing about this remedy from youtube vidoes from Andreas Moritz.

For fatigue, mine went almost completely away when I switched to drinking ONLY mineral water (not the sparkling kind). I get it delivered now. It's expensive, but I no longer have the horrible fatigue where I couldn't even stand to wash dishes or make it up the hill to where I park my car. After only 2 days of drinking only mineral water, it was all gone. My hip, shoulder, and foot pain also have no reappeared. it's been over 7 months now.

A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!

I've used Castor oil in my eyes for years. At night I place Castor oil all around my eyes. I then with a dropper place the organic castor oil in my eyes. Then I place plastic wrap over my eyes. My eyes stay moist all night. The wrap stays on my face because of the oil on my face.

If your eyes feel bad enough you will do this, and be happy you did. 👍Trust me I've tried EVERYTHING, I know this works.

Everyone's comments have been incredibly helpful!

I'm a very active, lean, 56-year-old who was experiencing several Sjogren's symptoms for months and they were significantly debilitating -- dry mouth, dry eyes, lung soreness plus heart palpitations. I refuse to seek out the help of traditional doctors because of their reliance on chemical cures. I did, however, engage a Sports Nutritionist that came highly recommended by an active, lean colleague of mine, who is 57 years old. I'm mentioning my age and my colleague's age so women who are of the same "vintage" realize that there is post menopause hope as one's body changes. When I shared my symptoms with the Sports Nutritionalist he said "Have you been tested for Sjogren's?" He also said, "At a minimum, you should be consuming 3000 mg of high grade fish oil per day." I was consuming 1000 mg per day. Interesting.

I next went online, read your comments, and did the following: increased my fish oil soft gels consumption to 3000 mg per day (Carlson Norwegian Salmon Oil), started taking 2 Solgar Flaxseed Oil 1250 mg soft gels per day and started taking 2 Solgar Super GLA Borage Oil 300 mg soft gels per day. The next day, my dry eyes and dry mouth significantly improved! The day after, my eyes and mouth felt normal again. I am still experiencing lung soreness plus heart palpitations, but I have noticed slight improvement there as well. My thought is that it may take longer for the rest of my body to get "fully lubricated" once again. I truly believe that I'm on the right path, so I wanted to share my experiences in case it may help others. As a side note, my Sports Nutritionalist also told me to switch multi-vitamins -- moving from a tablet to soft gels because they are absorbed into your system whereas tablets can pass right through you. One of his clients was being x-rayed for some type of condition, and the doctor saw the multi-vitamin in the gentlemen's intestinal tract, e.g., it hadn't been absorbed into his system. I am going to make this change as well.

I would recommend that if you increase your oil intake, you make sure that you're not over-doing it by eating fatty foods. Too much fat could cause other problems. Eat healthy!

Hello Everyone! Thank you all for your comments, they are helpful and encouraging. I am a 61 YY female, and was diagnosed with Sjogrens last year after many years of suffering from fatigue and dryness in the eyes and mouth. But with this diagnoses I was at least pleased to know that these symptoms are related, and REAL (and not something in my head to be demised by doctors).

Anyway, I would like to share some of the things that I am doing that have given me some relief. I have been taking (daily) fish oil, potassium, and vitamins C and D.

I have also been drinking organic unfiltered apple cider vinegar mixed with raw unfiltered local honey (about a tablespoon of each mixed with 12 oz of water). I have noticed a difference in my energy level, as well as some relief from my dry mouth. (And, I am no longer on high blood pressure medication. But that's for another post.)

For the past 2 months I have used something that my ophthalmologist recommended: serum tears. These have been a real blessing. I had started off using OTC replacement tears, with dismal results - no relief. Nothing seemed to provide lubrication in my eyes, and each time I applied the artificial tears, my eyes were left burned and painful; I tried every brand on the shelves; nothing helped. (On a scale of 1-10, my tear production was tested to be a "1", so... hmm, my eyes are very dry).

Anyway, serum tears could be a natural alternative for someone with severe dry eyes. They are made from your own blood, so they are unique to each person. Several units of your blood are drawn, and the red blood cells are separated out, and then the clear (white) cells are mixed with a saline solution, and put into small eye droppers. The solution must be kept frozen until ready to use, and then when thawed it lasts only 30 days under refrigeration. But, I can honestly say, these have given me my life back. I still have dry eyes, but the serum tears give soothing relief, where nothing else did. The serum puts back MY OWN cells in to my eyes, where they are needed. Serum tears are not offered by every eye doctor... you may have to check around. They can be expensive - and they are not always covered by insurance (mine aren't). The science behind these drops is a couple decades old, but it may help some of you who have severe dry eyes as I do.

At night, I am use a simple, pure, organic coconut oil. This has been far better for me than any chemical gel or ointment for night relief. I scoop (with a sterile knife) a small amount of solid oil, and put it in to an empty dropper. Before bed, I run the base of the dropper under hot water for a minute, and then put a couple drops of the barely warmed oil directly into my eyes. Bliss. Coconut oil is naturally antibacterial and anti fungal, which seems more safe than some synthetic chemical based gels or ointments.

Blessing to you all - I hope that that my experience helps someone. There is hope out there.

I have used a natural remedy for over twenty years-called black cohosh, it has been a God send for all these years. As for dry eyes, it's just the greatest, it also supports the whole system. Black Cohosh can be bought in almost any drug store and some of the leading stores. I thought I would add an extra alternative for many others to use. Good Luck...

Update, I wanted to add to my 2013 post. I use ACV for inflammation at least 1x a day now. I take and squeeze 1 lemon and add 1/4 to 1/2 t of baking soda to the juice. (Best to use organic lemons or limes) Let it bubble and fizz. When its completely flat add to 1 cup of water and drink. This helps to alkalize the body. I have sjogrens, Sclero, raynauds, . This seems to help with all. I also follow a supplemental regimen If anyone with AI is interested. : Vit. A, B's. K2, D3, Boron, E, fish oil, turmeric (product called curamin) and I make my own kefir from raw milk (this has trillions of probiotics to help heal the digestive tract). I also just added a product that combines, aloe, glutamine, and DGL. This helps with the digestive tract also. I like Colostrum for healing also. Can do a lot for the body.

When we are nutrient deficient the body cannot heal. Its important to follow a healthy diet and try to get the best quality of food we can obtain. I don't need to tell everyone that most of our food is dead. It contributes little. We are eating more and getting less basically. Of course growing your own it s the best source but when you can't find that buy local from farmers who sell produce and eggs. Free range eggs are the best. (the most nutritional eggs have an orange/dk yellow yolk.) Organic mean is also recommended for anyone who has AI. I know that a vegan diet is good however, the stomach lining needs "threonine" to regenerate every 3 days. So a good protein source is really important whether it be from animal or vegetable. I always tell people start out with minimal supplementation and work your way up in case something doesn't agree with the body bc we are all different and effected in a variety of ways. The body IS made to heal itself if you give it the right fuel and nutrients.

Plastic directly over skin that has castor oil on it may not be a good idea, according to all the Edgar Cayce castor oil sites. Usually the castor oil is just either rubbed into the skin, or on a castor oil pack made of wool or cotton flannel, as plastic can leach poison. (Though plastic can be laid ON TOP of the flannel or wool castor oil pack).

Yes castor oil helps me too - dry eye sufferer.

I have RA with painfully gritty dry eyes and mouth. I use castor oil for my eyes with great effect. Use a good grade caster oil cold pressed 100% solvent free, no hexane & paraben free. Before sleep apply thickly to upper & lower eyelids & rub into eye lashes. (The oil may blur your vision, but it will not harm your eyes) the thickness may take some time to get used to just keep it on all night. Apply a thin coat in the morning and whenever eyes are irritated.

I have used this for about 2 months or so and it relieves the dryness and lately have noticed a huge improvement in a lessening of grit which is more easily remover without scratching or tearing to my lower lids. I'm still working on the dry mouth I'm increasing my fluids to 12-14 cups daily, small amounts of coconut oil for dryness as needed and xylimelts. I'm just starting borage oil, as directed on bottle.

I use coconut oil, about a tablespoon just to hold in my mouth after brushing at night. I leave it in the length of taking my shower & then spit it out into the toilet. I started this months ago for general health of my mouth instead of chemical mouthwashes & the dentist says its doing well for my gums & I don't seem to be bothered by dry mouth much. Hope that helps.

Hi Art:

Sorry, I just saw this. I think you are spot-on. Vitamin D has been hard for me to budge, but I've started taking cod liver oil, so we'll see. Zinc is actually more interesting to me because the last 3 times I had a migraine coming on, I've taken zinc and it resolved w/in an hour. (I can't take NSAIDs due to fluoroquinolone toxicity and was scratching my head for alternatives, when something in me told me to try zinc... it worked! ) And as zinc is so important to the absorption of so many other vitamins, I suspect it could be a game changer for me. Thanks for your reply!

I found that eating wheat caused my saliva glands to dry up. When I don't eat wheat I have almost normal saliva. Perhaps it would work for others with Sjogrens.

Not sure what your weight is but I believe it's an ounce of water for every pound divided by two and then add a good mineral salt(salt holds water in place) as the water would flush out your minerals . 150 pound person would consume 75 ounces of water, including what you consume in soups, ect and add a bit more if they drink coffee or diuretics. Always increase water and mineral salt a bit a day until desired levels to prevent swelling . Watercure by Dr. Batmanghelidj helped a lot of sick people regain their health. Also hot tubs pools baths pull water out of the body and the skin on fingers shrivels. I learned it the hard way.

Histamine is a dehydration signal from the body to alert us there is an imbalance . Most drugs have anti histamine in them and most people who go to hospital get a saline IV and it greatly improves their health.

Blessings, Charity

Sjogren's Syndrome:

Oil pulling helped me. Oil pulling is where you swish an oil ( I use sesame oil or coconut oil) in your mouth for 15 minutes, then spit it out, and brush your teeth. I do it once a day.

Also, my salivary gland was enlarged may be clogged, and putting a tea bag between cheek, and gum for few hours, seems to unclog it.

Swallow the coconut oil. It is a healthy fat source especially if you are a low fat diet. To combat dryness (eyes, mouth, vagina, skin), I have started drinking Goji juice (one ounce) twice a day. I am going to get Evening Primrose Oil and Borage Oil.

No one should drink distilled water it has no minerals in it, it is "dead" water and very acidic. I drank it for several years and got very tired, naturopath told me Alkaline water is the best, it has the minerals still in it. Our body needs minerals.

HI U Timh,,,,,,,,,,, you a better man than I. You went around the May Pole to tell folks that distilled water has no value. It does not have any value what so ever, except it does not contain any garbage.

Folks are told to drink spring water because it contains lots of minerals. Distilled water has none. Distilled water has an affinity for calcium so it will remove that from your bones. Drink it long enough and you will end up with osteoporosis.

Won't say what I want to tell the advocates of distilled water except they have never studied chemistry.

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