I have used a natural remedy for over twenty years-called black cohosh, it has been a God send for all these years. As for dry eyes, it's just the greatest, it also supports the whole system. Black Cohosh can be bought in almost any drug store and some of the leading stores. I thought I would add an extra alternative for many others to use. Good Luck...
In response to Angela's post:
09/26/2008: Angela from Broomfield, CO: "A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!"
Warm pack of castor oil for relief is good to know. I also suffered from inflamation of the salvary and parrotid glands. These glands become sore and enlarged because they do not have the right nutrients to manufacture saliva. Because they are depleted and still trying to work they become larger and painful. It is important to relieve these glands.
In 1985 when I first had the symptoms of Sjogrens with a vengence and found only topical drops for tears, saliva etc, it was apparent to me I needed to find out what was causing this in my body (female, 43 yrs). By luck I found a report serendititously offered at a symposeum by a doctor who reported that while he was not looking for relief for dry eyes among the fishing population which were his test subjects, that was their unamous report to him. He had been giving them an oil extracted from borage. I found borage oil at a small speciality store for vitamins and supplements. Within a few weeks of taking the oil pretty liberally my painfully eyes were relieved and the glands in my face became soft and pain free.
If is the gamma linoleic acid in the tasteless oil which my body needed. Its clear that while the precursors may be in my body, I did not have the ability to convert them into gamma linoleic acid. Once this was supplied the endocrine glands which secrete saliva and tears as well as many other glands such as the liver and pancreas, sweat and mucus in the lining of the reproductive tract, as well as the mamary glands functioned well. One terrific happy result was that the painful fibrous tissue in the breast became soft and pain free.
That been my experience and if it can help someone else be pain free that would give me great pleasure.
(Green Bay, Wi)
I've used Castor oil in my eyes for years. At night I place Castor oil all around my eyes. I then with a dropper place the organic castor oil in my eyes. Then I place plastic wrap over my eyes. My eyes stay moist all night. The wrap stays on my face because of the oil on my face.
If your eyes feel bad enough you will do this, and be happy you did. 👍Trust me I've tried EVERYTHING, I know this works.
(San Jose, Ca)
Yes castor oil helps me too - dry eye sufferer.
I have RA with painfully gritty dry eyes and mouth. I use castor oil for my eyes with great effect. Use a good grade caster oil cold pressed 100% solvent free, no hexane & paraben free. Before sleep apply thickly to upper & lower eyelids & rub into eye lashes. (The oil may blur your vision, but it will not harm your eyes) the thickness may take some time to get used to just keep it on all night. Apply a thin coat in the morning and whenever eyes are irritated.
I have used this for about 2 months or so and it relieves the dryness and lately have noticed a huge improvement in a lessening of grit which is more easily remover without scratching or tearing to my lower lids. I'm still working on the dry mouth I'm increasing my fluids to 12-14 cups daily, small amounts of coconut oil for dryness as needed and xylimelts. I'm just starting borage oil, as directed on bottle.
(Faithville , Us)
A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!
Coconut Oil for Sjogren's Syndrome
I agree with the post from 2015 about using coconut oil. I brush my teeth with toothpaste maybe once a week, all other times I just brush with water to clean them well. Then I brush them with coconut oil, and leave it on them. I've noticed a better tooth condition, more moisture in mouth, and healthier looking gums.
I use coconut oil, about a tablespoon just to hold in my mouth after brushing at night. I leave it in the length of taking my shower & then spit it out into the toilet. I started this months ago for general health of my mouth instead of chemical mouthwashes & the dentist says its doing well for my gums & I don't seem to be bothered by dry mouth much. Hope that helps.
(Rio Vista, CA)
I have been taking Collagen/Keratin capsules for 2 weeks. I started taking these as a possible cure for neck pain which i have suffered from for years. I developed Sjogrens syndrome 2 years ago as a result of a nasty virus I had. I have had the dry mouth which has affected the linings of my mouth and caused bad breath. In the last year I also had dry gritty eyes, and dry vagina. After two weeks on the collagen/keratin
capsules I now have saliva in my mouth! My eyes and vagina are improving with moisture too. And yes my Neck pain has practically dissappeared. Hope someone else might find this cure works for them too!!
(Wellington, New Zealand)
I am 55, white, female. I had whooping cough which left me with Sjorgrens which was largely asymptomatic until it wasn't. Two years after diagnosis I had extreme fatigue, weird rashes and pimply type things on my scalp, very red eyes. I tried anything and everything including the Auto Immune Protocol. It's no joke and it's a big commitment but after a few months it made a huge difference and I was able to start exercising and commuting by bike. AIP has a lot of supplements and it is worth getting one of the main books about them for that. Headlines: No gluten, dairy, alcohol, nightshades, sugar. Only grass fed meat. If you eat meat you eat nose to tail - so liver, skin, marrow. Lots of probiotics in diet. I sometimes cheat (cheese) these days but I have mostly kept it up for four years. I had a flare up while getting over Covid but mostly I have been healthy and highly functional. I think the AIP was a part of it, but I also tried low dose naltraxone, transcendental meditation (wow that helps with everything) Iyengar yoga (alignment and twists benefits internal organs). I also work on a kneeling chair or cross legged on the floor. Who knows which of the things really help - one person once told me they all do. I wish you all well on your quest to manage this condition and live in harmony with the body that you have.
I found that eating wheat caused my saliva glands to dry up. When I don't eat wheat I have almost normal saliva. Perhaps it would work for others with Sjogrens.
Raw milk. A high fat (high quality Ghee, butter, lard, tallow) diet. Digestives such as kraut, kvass, acv, enzymes to enable you to digest proteins. Pesticide free food.
My Sjorgens Syndrome was cured from some combination of these.
Another source of GLA, Evening Primrose Oil, I hapsed upon it as it said something about 'menstrual help', and I seriously got a regular pharmacy brand, and I began to notice my dry eyes going back to normal (I wasn't sure if I was nuts or it was true, so I stopped... )... I'm about to restart, I empty out these gel caps (couldn't find a veg formula at my store)...
There's actually a pub med study, look up pub med sjogren's and evening primrose oil (EPO)...
Gwen, Thank you for sharing your experience and protocol... so helpful! As some others suggested, I ordered the sea buckthorn oil, but while waiting for it to arrive, I tried just upping my consumption of cod liver oil (I had been taking 1g/day)... lo and behold, the day after I upped it to 3g/day, my eyes were no longer dry and my mouth had improved by about 50%. And today, 2 days later, my salivary glands are 98% back in action! (Weirdly, I had a dream last night that I couldn't stop drooling. ; P)
I still plan to try the sea buckthorn oil, mainly to see if I get any of the skin benefits, but it's good to know how powerful something as simple as cod liver oil can be (good for vit D, too, which I'm borderline low in). Cheers!
(Orange County, ca)
Everyone's comments have been incredibly helpful!
I'm a very active, lean, 56-year-old who was experiencing several Sjogren's symptoms for months and they were significantly debilitating -- dry mouth, dry eyes, lung soreness plus heart palpitations. I refuse to seek out the help of traditional doctors because of their reliance on chemical cures. I did, however, engage a Sports Nutritionist that came highly recommended by an active, lean colleague of mine, who is 57 years old. I'm mentioning my age and my colleague's age so women who are of the same "vintage" realize that there is post menopause hope as one's body changes. When I shared my symptoms with the Sports Nutritionalist he said "Have you been tested for Sjogren's?" He also said, "At a minimum, you should be consuming 3000 mg of high grade fish oil per day." I was consuming 1000 mg per day. Interesting.
I next went online, read your comments, and did the following: increased my fish oil soft gels consumption to 3000 mg per day (Carlson Norwegian Salmon Oil), started taking 2 Solgar Flaxseed Oil 1250 mg soft gels per day and started taking 2 Solgar Super GLA Borage Oil 300 mg soft gels per day. The next day, my dry eyes and dry mouth significantly improved! The day after, my eyes and mouth felt normal again. I am still experiencing lung soreness plus heart palpitations, but I have noticed slight improvement there as well. My thought is that it may take longer for the rest of my body to get "fully lubricated" once again. I truly believe that I'm on the right path, so I wanted to share my experiences in case it may help others. As a side note, my Sports Nutritionalist also told me to switch multi-vitamins -- moving from a tablet to soft gels because they are absorbed into your system whereas tablets can pass right through you. One of his clients was being x-rayed for some type of condition, and the doctor saw the multi-vitamin in the gentlemen's intestinal tract, e.g., it hadn't been absorbed into his system. I am going to make this change as well.
I would recommend that if you increase your oil intake, you make sure that you're not over-doing it by eating fatty foods. Too much fat could cause other problems. Eat healthy!
(Albuquerque NM, USA)