In response to Angela's post:
09/26/2008: Angela from Broomfield, CO: "A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!"
Warm pack of castor oil for relief is good to know. I also suffered from inflamation of the salvary and parrotid glands. These glands become sore and enlarged because they do not have the right nutrients to manufacture saliva. Because they are depleted and still trying to work they become larger and painful. It is important to relieve these glands.
In 1985 when I first had the symptoms of Sjogrens with a vengence and found only topical drops for tears, saliva etc, it was apparent to me I needed to find out what was causing this in my body (female, 43 yrs). By luck I found a report serendititously offered at a symposeum by a doctor who reported that while he was not looking for relief for dry eyes among the fishing population which were his test subjects, that was their unamous report to him. He had been giving them an oil extracted from borage. I found borage oil at a small speciality store for vitamins and supplements. Within a few weeks of taking the oil pretty liberally my painfully eyes were relieved and the glands in my face became soft and pain free.
If is the gamma linoleic acid in the tasteless oil which my body needed. Its clear that while the precursors may be in my body, I did not have the ability to convert them into gamma linoleic acid. Once this was supplied the endocrine glands which secrete saliva and tears as well as many other glands such as the liver and pancreas, sweat and mucus in the lining of the reproductive tract, as well as the mamary glands functioned well. One terrific happy result was that the painful fibrous tissue in the breast became soft and pain free.
That been my experience and if it can help someone else be pain free that would give me great pleasure.
(Nelson, New Zealand)
(Green Bay, Wi)
I've used Castor oil in my eyes for years. At night I place Castor oil all around my eyes. I then with a dropper place the organic castor oil in my eyes. Then I place plastic wrap over my eyes. My eyes stay moist all night. The wrap stays on my face because of the oil on my face.
If your eyes feel bad enough you will do this, and be happy you did. 👍Trust me I've tried EVERYTHING, I know this works.
I have RA with painfully gritty dry eyes and mouth. I use castor oil for my eyes with great effect. Use a good grade caster oil cold pressed 100% solvent free, no hexane & paraben free. Before sleep apply thickly to upper & lower eyelids & rub into eye lashes. (The oil may blur your vision, but it will not harm your eyes) the thickness may take some time to get used to just keep it on all night. Apply a thin coat in the morning and whenever eyes are irritated.
I have used this for about 2 months or so and it relieves the dryness and lately have noticed a huge improvement in a lessening of grit which is more easily remover without scratching or tearing to my lower lids. I'm still working on the dry mouth I'm increasing my fluids to 12-14 cups daily, small amounts of coconut oil for dryness as needed and xylimelts. I'm just starting borage oil, as directed on bottle.
(Faithville , Us)
A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!
I have been taking Collagen/Keratin capsules for 2 weeks. I started taking these as a possible cure for neck pain which i have suffered from for years. I developed Sjogrens syndrome 2 years ago as a result of a nasty virus I had. I have had the dry mouth which has affected the linings of my mouth and caused bad breath. In the last year I also had dry gritty eyes, and dry vagina. After two weeks on the collagen/keratin
capsules I now have saliva in my mouth! My eyes and vagina are improving with moisture too. And yes my Neck pain has practically dissappeared. Hope someone else might find this cure works for them too!!
(Wellington, New Zealand)
(Nelson New Zealand)
(Melbourne Beach, Fl)
I found that eating wheat caused my saliva glands to dry up. When I don't eat wheat I have almost normal saliva. Perhaps it would work for others with Sjogrens.
Raw milk. A high fat (high quality Ghee, butter, lard, tallow) diet. Digestives such as kraut, kvass, acv, enzymes to enable you to digest proteins. Pesticide free food.
My Sjorgens Syndrome was cured from some combination of these.
Everyone's comments have been incredibly helpful!
I'm a very active, lean, 56-year-old who was experiencing several Sjogren's symptoms for months and they were significantly debilitating -- dry mouth, dry eyes, lung soreness plus heart palpitations. I refuse to seek out the help of traditional doctors because of their reliance on chemical cures. I did, however, engage a Sports Nutritionist that came highly recommended by an active, lean colleague of mine, who is 57 years old. I'm mentioning my age and my colleague's age so women who are of the same "vintage" realize that there is post menopause hope as one's body changes. When I shared my symptoms with the Sports Nutritionalist he said "Have you been tested for Sjogren's?" He also said, "At a minimum, you should be consuming 3000 mg of high grade fish oil per day." I was consuming 1000 mg per day. Interesting.
I next went online, read your comments, and did the following: increased my fish oil soft gels consumption to 3000 mg per day (Carlson Norwegian Salmon Oil), started taking 2 Solgar Flaxseed Oil 1250 mg soft gels per day and started taking 2 Solgar Super GLA Borage Oil 300 mg soft gels per day. The next day, my dry eyes and dry mouth significantly improved! The day after, my eyes and mouth felt normal again. I am still experiencing lung soreness plus heart palpitations, but I have noticed slight improvement there as well. My thought is that it may take longer for the rest of my body to get "fully lubricated" once again. I truly believe that I'm on the right path, so I wanted to share my experiences in case it may help others. As a side note, my Sports Nutritionalist also told me to switch multi-vitamins -- moving from a tablet to soft gels because they are absorbed into your system whereas tablets can pass right through you. One of his clients was being x-rayed for some type of condition, and the doctor saw the multi-vitamin in the gentlemen's intestinal tract, e.g., it hadn't been absorbed into his system. I am going to make this change as well.
I would recommend that if you increase your oil intake, you make sure that you're not over-doing it by eating fatty foods. Too much fat could cause other problems. Eat healthy!
(Albuquerque NM, USA)
I have Sjogrens syndrome, a mild version, but what has really helped me is taking a lot of EPA & vitamin E fishoil as well as Nodic Cod liver oil, I can feel the difference when I don't take it, as my symptoms worsen.
I also feel that getting a neck massage helps my symptoms, I have a feeling that the neck seems to be linked to the sjogrens somehow , I have always had a sore neck too, but have been doing stretches that help. anyway give the fish oil pills a go- I take 12 a day + 3 nordic cod liver oil pills. I have been doing that for years and it seems to keep it under control.
I was diagnosed in 2008 with sjogrens. After 9 liver flushes (Andrea Moritz style) I did 6 in 08 and 3 here in 2015.) I had blood redrawn last month and my blood work came back NEGATIVE. The DR said he "could not medically explain this". I tried to explain the liver flushes... but just got a blank stare.
Fyi, I was also able to go off of my meds for hashimotos and am hoping one day to also rid my body of scleraderma morphea. I do not do any speacial diet or supplements, I go gluten free temporaraly if it starts bothering my stomach. But no other restrictions.
I have also done a parasite detox through hummaworm.
I HOPE THIS FINDS YOU WELL AND BRINGS YOU HOPE. SJOGRENS IS CURABLE!
(Ten Mile, Tn.)
(Mt. Juliet, Tn)
(Ten Mile, Tn)
(Denver City Tx)
Has anyone has any success healing Sjogren's doing liver flushes? I have been hearing about this remedy from youtube vidoes from Andreas Moritz.
For fatigue, mine went almost completely away when I switched to drinking ONLY mineral water (not the sparkling kind). I get it delivered now. It's expensive, but I no longer have the horrible fatigue where I couldn't even stand to wash dishes or make it up the hill to where I park my car. After only 2 days of drinking only mineral water, it was all gone. My hip, shoulder, and foot pain also have no reappeared. it's been over 7 months now.
(Nelson, New Zealand)
(Hamilton, On Canada)
(Ten Mile , Tn)
(Auckland, New Zealand)
Hello Everyone! Thank you all for your comments, they are helpful and encouraging. I am a 61 YY female, and was diagnosed with Sjogrens last year after many years of suffering from fatigue and dryness in the eyes and mouth. But with this diagnoses I was at least pleased to know that these symptoms are related, and REAL (and not something in my head to be demised by doctors).
Anyway, I would like to share some of the things that I am doing that have given me some relief. I have been taking (daily) fish oil, potassium, and vitamins C and D.
I have also been drinking organic unfiltered apple cider vinegar mixed with raw unfiltered local honey (about a tablespoon of each mixed with 12 oz of water). I have noticed a difference in my energy level, as well as some relief from my dry mouth. (And, I am no longer on high blood pressure medication. But that's for another post.)
For the past 2 months I have used something that my ophthalmologist recommended: serum tears. These have been a real blessing. I had started off using OTC replacement tears, with dismal results - no relief. Nothing seemed to provide lubrication in my eyes, and each time I applied the artificial tears, my eyes were left burned and painful; I tried every brand on the shelves; nothing helped. (On a scale of 1-10, my tear production was tested to be a "1", so... hmm, my eyes are very dry).
Anyway, serum tears could be a natural alternative for someone with severe dry eyes. They are made from your own blood, so they are unique to each person. Several units of your blood are drawn, and the red blood cells are separated out, and then the clear (white) cells are mixed with a saline solution, and put into small eye droppers. The solution must be kept frozen until ready to use, and then when thawed it lasts only 30 days under refrigeration. But, I can honestly say, these have given me my life back. I still have dry eyes, but the serum tears give soothing relief, where nothing else did. The serum puts back MY OWN cells in to my eyes, where they are needed. Serum tears are not offered by every eye doctor... you may have to check around. They can be expensive - and they are not always covered by insurance (mine aren't). The science behind these drops is a couple decades old, but it may help some of you who have severe dry eyes as I do.
At night, I am use a simple, pure, organic coconut oil. This has been far better for me than any chemical gel or ointment for night relief. I scoop (with a sterile knife) a small amount of solid oil, and put it in to an empty dropper. Before bed, I run the base of the dropper under hot water for a minute, and then put a couple drops of the barely warmed oil directly into my eyes. Bliss. Coconut oil is naturally antibacterial and anti fungal, which seems more safe than some synthetic chemical based gels or ointments.
Blessing to you all - I hope that that my experience helps someone. There is hope out there.
One time, I did put my Sjogren's into "remission" for 6 years, actually... I started going back to the things which got me "into the mess" to begin w/...
First of all, mine came from having a toxemia as a child as well as a genetic predisposition... I had been food combining and vegan for years but I didn't find help until I got OFF the Prednisone eye drops I'd been doing for years for my Uveitis (I guess, I should tell others to work caution and check w/ a Naturpoath, uveitis is a serious condion, as well)... I actually tapered off of them as well as (diluted w/ distilled water and more over a period of a month), I had found the ultimately, Eyebright in the eye (would recommend, now, checking Weleda or a homeopath as the way I did it caused infection), but infection or not, the body was then able to heal... Also, around that time, I did a liver cleanse using only milk thistle tea with a juice fast over a period of time. I would also recommend that anyone with Sjogren's take out any nightshades from their diet or regime, sincerely, my uveitis would flare and I also didn't realize that tomatoes were a culprit, I knew I reacted to all other nightshades... I know that I have been successful w/ potatoes, but don't remember doing them around the time I got rid of it.
I got in a less clean environment and the Uveitis crept in some and began use in the eye of the Pred drops again (should've stuck w/ the eyebright, really)... But, thought I was "normal"... Many eye surgeries later, more Pred and not keeping up w/ the natural diet, doing more man made things (it's hard, you need the right nutrients when you have both these conditions, if vegan, you really need to supplement w/ a quality D3 and B12 supplement as well as having a great source of calcium)... and the Sjogren's came back... I'm going to try my former regimine and see how it goes, if that doesn't work, I'm moving where the air is cleaner. Hope this helps someone else! :)
I'm grateful for these posts where people can look at possible solutions. The Auto-Immune disorders don't have to be a Life Sentence! I am being tested for Sjogren's. I have minimal dry eye, dry mouth only at night, but I am a mouth breather due to congested nose.
The thing that made me consider all the moisture issues is that I almost have never sweated except for peri-menopause that was severe sweating most of day/night and lasted for about 5-7 years ending in 2004. Could some people just not be "Sweaters" or are "Low Secreters" due to a single FUT 2 defect and don't have Sjogren's? One with 2 defects would be a total "Non-Secreter" and have serious lack of mucous if the gene expressed. Could they be connected? Or FUT2 may be the cause for someone without Sjogrens who still has moisture issues. Regarding Detoxing. If one can't open up the channels of the Lymphatic System, it seems dangerous to attempt detox. Maybe Liver or Colon Cleanses might be safe, but some other Detoxing seems risky.
Any thoughts? Is there a connection of Mercury to lack of sweating? If it gets released and doesn't exit, it can really wreck havoc.
(Independence, La, Usa)
(Newport Beach, Ca)