Natural Treatment for Dysautonomia

| Modified on Feb 14, 2021

Atenolol
Posted by Sam (Miami) on 06/28/2020
4 out of 5 stars

Dysautonomia is a label, an umbrella for many syndromes. One won't find remedies for dysautonomia here. Dysautonomia international is the source for all your questions. True POTS, a type of dysautonomia, is an elevated heart rate upon standing that won't go back to normal while blood pressure remains normal. Blood pools into your legs when you stand. This is classic pots. Hypovolemia is often present, but it is not accepted by doctors since they don't measure the volume of blood, they say that based on your blood work you have no hypovolemia. Which is not a fact, but an assumption. Measuring blood volume could not be done at every clinic or hospital. Hypovolemia is probably secondary to autonomic dysfunction, but it could lead to a syncope..

If blood pressure drops, it is not POTS. POTS comes with many other debilitating symptoms. Not only teenagers get it. Cervical cancer vaccine causes POTS. Managing pots is very difficult. There is no one size fits all.

I have tried everything there's to try in alternative medicine field, from supplements to modalities, nothing worked for me. I have it for 10 years. Only atenolol allows me to semi function, but it only addresses heart rate elevation, not the other 50 symptoms that come with POTS.

Atenolol
Posted by msmaia (usa east coast) on 02/14/2021

I want to make sure that the misinformation posted here is corrected. POTS is not for teenagers only. See article from NIH. "Anyone at any age can develop POTS, but the majority of individuals affected (between 75 and 80 percent) are women between the ages of 15 to 50 years of age. Some women report an increase in episodes of POTS right before their menstrual periods." - NIH

I developed POTS at age 44, I am now 47 and still have it. I also did a pole in a large pots group and was surprised to see a surprising amount of potsies 40-60. It's important that people are aware because I went 2 years not knowing what was wrong with me.

Postural Tachycardia Syndrome Information Page | National ...www.ninds.nih.gov › Disorders › All-Disorders › Postural...


Multiple Remedies
Posted by Heyjamieboy (New York ) on 12/22/2017
3 out of 5 stars

Dysautonomia: Learning about this illness from Lyme disease:

  • feet are numb tingle
  • neck and head pain
  • mornings are hell with palpitations shortness of breath body ache.
  • Excessive urination at night, 1.5 liter or more
  • - exercise intolerance
  • colld and heat Intolerance
  • disturbed sleep
  • brutal pain. after sittting more than an hour

taking many supplements, eating clean

b vitamins nerve support

After leaky gut from Lyme

Loooking into plasma exchange and hyperbaric oxygen treatments

Desperate for help and feedback and support and ideas on anything

Multiple Remedies
Posted by Becky (Mi) on 05/12/2018

I also have dysautonomia. I have had 16 times of going to the hospital in 6 years.I first get vasovagal syncope, followed by excessive heat. I used to then have trouble breathing from AFIB followed by blood pressure dropping very very low, dehydration, low potassium and magnesium, then so many different things happen like ischemic colitis, hypothermia needing a bear blanket to bring myself back from 93 degrees. Last year I had a slight stoke. I eventually got a cardiac ablation and do not have AFIB anymore. But I am now very sensitive to things like midodrine, nitroglycerin, epinephrine, and 5HTP. My heart spasms and I actually died in the ambulance last year. No one wants to spend the time treating this and want to refer me to someone else. I have actually been referred to Mayo Clinic but even they refused me. If anyone has any ideas, I would greatly appreciate it. Thanks


POTS
Posted by Janet (Indiana) on 02/09/2016

P.O.T.S.Fluctuating blood pressure.... here is a great post from Ted that I found while researching A Fib and related heart issues Dysautonomia

Janet

POTS
Posted by msmaia (usa east coast) on 02/14/2021

Thanks for mentioning Ted's post. It is very interesting, but I am curious. Is sodium nitrate safe? Is Ted saying to ingest it? I know nothing about chemistry but online it says it's poisonous. Has anyone Ted's remedy? if so, where to buy it?