Dysautonomia is a label, an umbrella for many syndromes. One won't find remedies for dysautonomia here. Dysautonomia international is the source for all your questions. True POTS, a type of dysautonomia, is an elevated heart rate upon standing that won't go back to normal while blood pressure remains normal. Blood pools into your legs when you stand. This is classic pots. Hypovolemia is often present, but it is not accepted by doctors since they don't measure the volume of blood, they say that based on your blood work you have no hypovolemia. Which is not a fact, but an assumption. Measuring blood volume could not be done at every clinic or hospital. Hypovolemia is probably secondary to autonomic dysfunction, but it could lead to a syncope..
If blood pressure drops, it is not POTS. POTS comes with many other debilitating symptoms. Not only teenagers get it. Cervical cancer vaccine causes POTS. Managing pots is very difficult. There is no one size fits all.
I have tried everything there's to try in alternative medicine field, from supplements to modalities, nothing worked for me. I have it for 10 years. Only atenolol allows me to semi function, but it only addresses heart rate elevation, not the other 50 symptoms that come with POTS.
Dysautonomia: Learning about this illness from Lyme disease:
- feet are numb tingle
- neck and head pain
- mornings are hell with palpitations shortness of breath body ache.
- Excessive urination at night, 1.5 liter or more
- - exercise intolerance
- colld and heat Intolerance
- disturbed sleep
- brutal pain. after sittting more than an hour
taking many supplements, eating clean
b vitamins nerve support
After leaky gut from Lyme
Loooking into plasma exchange and hyperbaric oxygen treatments
Desperate for help and feedback and support and ideas on anything
P.O.T.S.Fluctuating blood pressure.... here is a great post from Ted that I found while researching A Fib and related heart issues Dysautonomia