Muscular Dystrophy Remedies

God Bless you Ted.
Thank you so much for your help.
Davey D.

Also after healing and using the remedies for epilepsy on my daughter I worked for more than 20 years at the Edgar Cayce Library sharing his remedies. I now volunteer at the call center. Hope others think about this opportunity.

I'm sure you are well aware that there is no cure for Myotonic Dystrophy and studies are limited. This is what the Myotonic Dystrophy Foundation (MDF) says about the disease :

• No Cure, Focus on Management: DM is progressive, but managing symptoms is crucial for well-being.
• Symptomatic Treatments: These help manage issues like muscle weakness, heart problems, and breathing difficulties.
• Proactive Care: Early intervention and consistent care (cardiology, respiratory, physical therapy) can prevent or lessen severe complications.
• Quality of Life: The goal of current care is to maintain function, improve daily living, and support the community.
• Research & Advocacy: MDF actively supports research for future cures and advocates for better access to care and therapies.

So, as you can see treatment is fairly limited.

Six supplements you can look into for Myotonic Dystrophy are :

1. Vitamin D - Often deficient with a broad spectrum of useful activities while having synergy with melatonin. Muscle protective effects.

2. Astaxanthin - Muscle supportive and potent anti inflammatory. Mitochondria antioxidant and promotes mitochondrial biogenesis as does melatonin. Muscle protective effects.

3. Inulin - For gut dysbiosis typically seen in this disease and increases short chain fatty acids (SCFAs) which are decreased in this disease. Anti inflammatory effects as well as muscle protective effects.

4. Melatonin - In topical and oral forms. Good for muscle and gut integrity and for antifibrotic effects. Muscle protective effects. I describe how to make melatonin lotion here :

https://www.earthclinic.com/supplements/melatonin-lotion.html

5. Glycine - Promotes muscle regeneration and like melatonin, has antifibrotic effects while working against muscle wasting. Muscle protective effects.

6. Berberine - Work's against insulin resistance which is commonly seen in myotonic dystrophy, anti inflammatory and antifibrotic. Potent antioxidant. Muscle protective effects.

This group of supplements have direct and indirect uses as well as synergy for Myotonic Dystrophy and may be beneficial for potentially slowing progression and reducing disease severity.

Art

A Dr. Coimbra in Brazil has developed a protocol for MS using high dose Vit. D that has helped thousands. Do a search for Coimbro Protocol for details. Good luck!

Thank you very much. I forgot I posted this last winter and didn't see your response. I have recently added many of the supplements that you suggested. I actually took a list of highly recommended supplements from Dr. Mercola(for overall general health), and combined it with a list from recommended supplements from Life Extension(who has a good article about muscular dystrophy and supplements specific for this disease), and lastly I added a few things suggested by DoctorYourself.com. I bought everything I could in powder form and mixed them together for a daily dose. It's still a little early but I did feel better overall. I use to have issues with taking supplements but months ago I began taking triphala nightly and that has helped to keep the bowels moving on a regular basis which in tern allowed me to detox better and more regularly. So I've been able to tolerate more supplements.

I did add melatonin initially at a fairly high dose. It did help with sleep. I took it for several weeks but got worried as some say you shouldn't take ti daily like that. Surprisingly I'm still sleeping well. If it was legal, I'd love to be able to buy and microdose GHB as I think it would help. What advantage is the cream you mentioned?

I'll try better to keep in touch here and check back regularly. I'd love to hear from others with muscular dystrophy or similar conditions and here how you are dealing with it.

Thanks

As everyone who reads my posts on this knows, I am a big believer in Edgar Cayce's remedies, I have been since before I was born, as my mother use to read about him in the 50's and 60's. If I had a child that was born with this unfortunate disease, then I would move to Virginia Beach and be closer to the A. R. E. So that I could research the readings more and talk with their Dr's and hopefully some relief if not a total healing could be had. I know that this is not possible though for most people. However, Cayce did mention in most of his readings - if not in all (I haven't read them all!! ) - that the use of the Wet Cell with some solutions would help almost all afflicted with this disease.

Also he says that the person afflicted should get manipulations along the spine and coccyx area and oil rubs with a lot of different instructions for the types of oils. Peanut oil and Olive oil rubs along the spine and the coccyx area was to be given every night. If you have a handy man then you can make the Wet Cell yourself. Just call the A. R. E. and ask them for the paper that gives instructions for making it. The diet is also important, it should include a well balanced alkaline forming diet.

Thank you~

carla

I reread your initial list of suggestions and realized that there were several that I am not familiar with and will be looking into and studying those soon. Really appreciate that. I spend sometimes several hours a day reading and studying such things and enjoy new things to look into.

I really like glycine. It's my favorite out of the list of nearly 20 things I'm currently taking. I take it both in the morning with all the powders I mixed together(see my earlier post) and again at night right before bed as it both sweetens my triphala I take at night and helps relax the muscles and so helps with sleep.

NOW has always been my brand of choice and aside from the powders I still take pills from them but I was recently informed that they were bought out by a big company and are no longer family owned. Not much has changed with their products but some worry that quality may slip.

I'll continue to post on here with updates from time to time. I was kicked off of two myotonic dystrophy groups on FB for asking questions and having that audacity to make even the most slightest suggestions of things that might help. I was even careful to keep it within what I thought were the acceptable norms like diet, nutrition, and mentioned a few vitamins. My first strike against me was when I mentioned to someone to look into fiber as they also were having issues with constipation(common with this disease). They took that comment down. And later when I first learned that these group of diseases are called dystrophies because it was from a lack of nutrition and mentioned in a post to the group I again was silenced for talking about "old science". What? You mean to tell me that every health professional and scientist that first studied the disease for years had no idea what they were talking about? I understood that things could have advanced since then and maybe their initial understanding has evolved but to not even be allowed to mention that made it obvious I was going to get no where posting ideas on those groups.

I'd like to encourage everyone on here to consider that the modern medicine often offers no hope. This is particularly true when it comes to myotonic dystrophy and muscular dystrophy in general since they don't hide the fact that they have nothing to offer. They flat out will tell you there is nothing you can do but slowly get worse and die and they are happy to stand by and help you through that scenario and take your money as they do so. When I first was confronted with this when my mom was first diagnosed it boggled my mind how anyone would go to someone for help and be told there is no cure, nothing they can offer them, and nothing that they themselves can do but just accept it and we keep going back to that person rather than look elsewhere? That's what my mom did. She believed them so much that she lost her fighting spirit and did nothing to see what might help and I watched her get worse and eventually die as I did two of my uncles. So when I was diagnosed I figured that it's possible that they may be right but I'll try anyhow since I have nothing to loose and everything to gain. And I slowly saw that I could at least make myself feel better even if I keep getting worse. Started with diet change(no white flour, white sugar, seed oils, and ate lots of meats and only organic produce(farmers markets and then grew ourselves), a couple of fasts and cleanses(chlorine dioxide/MMS gave me the biggest boost and renewed hope), and started walking and very light(like embarrassing easy) exercises. And low and behold I felt better! Then I wondered why the doctors didn't mention this very obvious thing would at the very least help. Later when I asked them they had the deer in the headlight look and couldn't comment(because they no nothing about the basic beginnings of health; your diet. And later when I sought a nutritionist at the local hospital which the doctor only set it up after a lot of pressure on my part and arrived to find a 300lb "professional"(albeit sweet) who literally wobbled out to see me do to swelling in her legs from diabetes(true story).

So start slow. And realize it took you years to get in poor health and it might take you the same amount of time to get you out of it. You may initially feel stagnant, like your're not getting any worse but now better either. Keep going. And then you may feel ever so slightly better and maybe just for a few hours or maybe a day. Keep going. Then you may feel that the last few weeks have been pretty good. Keep going and be warned that as you move forward there will be hills to cross and not every body is the same and what works for some may not work for you. Keep going. Try everything if it's within your means and overall is considered safe. Try things outside the norm just for fun like infrared sauna(used for centuries and many gyms still have them and blankets can be bought online), red light therapy, drink tons of water(reverse osmosis, consider zeta water), etc. Whatever you hear think about adding it to the things you're already doing because it's not going to be just one pill or one change but each will add something that you can't feel or perceive at first but in combination will eventually lead to feeling better. I often don't know which supplement or added device has helped but after adding them altogether I feel better and as much as I'd like to take things in and out to see what it is that's working the best(and I wasted a lot of time trying that) I found the best I could do is just, keep going!

Sorry long winded here and if you're still with me Art any suggestions along the way would be great. I'm assuming you are a learned man in much of this. May I ask how you have come to understand so much and why you are so gracious to take time to volunteer that information? Just want you to know that it's appreciated and will long help anyone that comes here.

Chad