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I should mention that my husband is a physician who clearly does not believe in alternate medicine, but EE is an inflammatory disease and ginger and turmeric are anti inflammatory!
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Out is all the foods I'm allergic to SOY has to be the worst. It is in absolutely Everything! It's in ice cream, chocolate, crackers, oils for bread at sandwich fast food places, the entire menu at steak-n-shake, almost all gum, etc. This poison has no real nutritional value and is used as a binding agent and/or filler for many products. You must read the ingredients in Everything!
So I hope this helps somebody out there that is struggling with the same problems I have experienced. I'm hoping to avoid ever having another throat dialation by simply avoid the problem foods. I used to drink “ensures” and other protein drinks to supplement my poor ability to eat only to find out years later that the ensures contain soy and other ingredients that were part of the problem.
By the way, if you love chocolate and can't find any that doesn't contain soy lecithin, Kroger sells a brand called “Green & Blacks” dark chocolate that is soy free!
Also, a teaspoon of baking soda and a glass of water works better than the antacid medication they prescribe you and is better for you. (Although I'm not a doctor just a guy of whom has had real-life experiences with these problems for years and am winning the battle! )
Good luck to all!
Ginger, Turmeric
★★★★★
I have also looked into Ayurveda. There are 3 spices that they recommend for dietary issues. There are cumin, coriander, fennel, cardamom & ginger. I added 1/4 tsp of each spice, except for ginger which I used fresh. Once the broth is done I use it as a base for her homemade smoothie supplements. In those I use raw & unfiltered honey, hemp powder, ground quinoa, ground flaxseed, ground lentils, super greens powder & hemp milk. She seems to be doing very well but we are due for another upper endoscopy soon. We'll see!
Dietary Changes, Coconut Oil
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Elimination Diet
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Currently I took him off prevacid and I am trying the alternative route (chinese medicine). He is back on all foods due to chinese teas including ginger and we have 1 more week, no vomiting for 2 days and then yesterday only 1x. I must exhaust this avenue before I start pumping him up with steroids, etc. We havent gone down the road of a gtube because he is gaining weight. Let me know if I can help in anyway.
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Try reading about leaky gut. I was diagnosed with EE several years ago after I had a gallbladder surgery, and they overdosed me on antibiotics. Several weeks later, I ended up developing leaky gut syndrome, which I believe is the altrenative medicine's name for the same condition. I could not eat anything without having an allergic reaction, and was down to just lettuce and brown rice and cooked vegetables. The only raw items I was able to eat was lettuce. I also ended up not only being allergic to mostly all food, but became severely chemically sensitive as well. It took me over a year and a half being on probiotics and supplements, mainly Zinc,digestive enzymes, NAC, and l-glutamine to help rebuild my intestines. I also did plenty of colonics and sauna treatments to help detoxify my body. Finding a good naturopath is extremely important. Especially someone who can test you for deficiencies.
When you take antibiotics, it destroys all bacteria, whether good or bad. The good bacteria never have a chance to colonize in the gut unless you replenish by taking probiotics. The bad bacteria end up creating tiny holes in your intestines. When you consume certain foods, the undigested proteins cross the blood barrier through these holes, and cause an allergic reaction.
I currently am on several vitamins and supplements daily, but I am now able to have a wider range of choices to eat from. I recommend also getting an ALCAT test to figure out what foods you may be intolerant to. These foods can be trigger foods, and set you up with a whole host of immune reactions from other seemingly safe foods.
Currently I try to avoid all gluten containing products as well as corn, soy and especially sugar. Try limiting your fruit to only two pieces, and make sure that they are not too sweet. Green apples work well. Get plenty of vitamin D (sunshine, fresh air, and spiritual time, and try to relieve stress through exercise. Stress makes it much worse.
Good Luck.
Eosinophilic Esophagitis it is not just caused by GERD. New studies in the last couple of years have found that is also caused by food allergies disorder. Unexplained dysphasia and vomit. In < 15 or more per high field test Studies have a correlation with Celiac too. I had dysphagia for years. I stopped eating dairy, lactic acid and gluten. after eating this food I had food impaction in my esophagus. I am happy to see that new studies have found the problem that is not related to GERD Studies and testing are promising in the next 5 years.
Elimination Diet
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Dietary Changes, Supplements
Eosinophilic Esophagitis Remedies
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So you can try a natural diet, but you should know it's not a life sentence: it's a healing stage.
Elimination Diet
Bananas
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★☆☆☆☆
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We contacted Tony Pantellaresco on youtube as an effort to solve her undiagnosed unresolved health problems.
He told her to blend every bit of food she ate. We used a 20 dollar oster blender. To help it work we added bone broth or mct oil or butter or coconut milk.
She made our version of bulletproof coffee. 1 cup of coffee in a blender 1 tsp mct oil a heaping teaspoon of kerrygold 1 scoop of collagen. Blend 10 to 15 seconds. Drink
All the different meds and supplements never did a thing. This worked and she went to work for the first time in 5 years.
She can now be normal. You might find this to be the answer to the mystery. Simple and safe. Janet
Essential Oils
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I have given toddlers turmeric without giving them capsules. If I need to get a little one to take turmeric, I mix it with some honey (not for children under a year), yogurt, or apple sauce. I don't mix the dose into a large amount of anything in case they don't like it. If it doesn't taste the best, at least it is over with in one spoonful and then they can chase it with something else. You may find it works differently for your child and that is fine.
A capsule of something is about 1/5 of a teaspoon. For my toddlers I would give 1/16th teaspoon each of ginger and turmeric mixed with something, yogurt or whatever, for a dose. If that didn't accomplish what I wanted, I would try 1/8 teaspoon of each as a dose.
With turmeric, always make sure child stays hydrated and is still having normal bowel movements. Some find it to be constipating.
~Mama to Many~
Dietary Changes, Supplements
For esophagus health in general, explore the possibility of gallstones and Primary Bilary Cirrhosis. Herbs to use immediately to improve digestion are Fennel and Ginger.
Dietary Changes, Supplements
Dietary Changes, Supplements
Dietary Changes, Supplements
Why would he be eating all the foods you can't when you have EOE. You aren't supposed to eat wheat, gluten, nuts or dairy.
Those are the worst foods possible.
they are also the some of the 7 most allergic foods that are known.
he need to be on the 7 food elmination diet and get on steroids B4 he gets esophagus cancer.
Dietary Changes, Supplements
I did see online that you can use slippery elm capsules or powder or marshmallow root capsules or powder. I have been using the slippery elm, and I do not drink dairy or eat any dairy products. It said online to avoid wheat, soy dairy, nuts, seeds shellfish or (any fish). I hope this helps in some way and I will pray for your husband, and hope he feels better soon. Please pray for me, I do appreciate it.
Eosinophilic Esophagitis Remedies
In the book, Digestive Wellness (Lipski), they found that one-third of children with eosinophilic esophagitis also had asthma (in fact, EE is being called "asthma of the esophagus"). Allergic reactions to foods, mold, dust and pollen appear to play a big role. Even people on medication need to restrict/eliminate allergy-inducing foods or they won't improve, regardless of what drugs they take.
Here is what they recommend:
- Go on an elimination-provocation diet
- Quercetin: This will diminish, relieve and prevent allergy symptoms and protect esophageal tissue. Quercetin is very effective when combined with grape seed extract or pycnogenol.
- Probiotics: This will balance gut ecology and immune system function.
- Digestive enzymes
- DGL licorice: soothes inflammation and stimulates repair.
- Folic acid: Protects mucous membranes.
Can you work with a naturopathic doctor? That way the ND could tailor any supplements to your child's weight and severity of symptoms.
I would highly recommend borrowing Digestive Wellness from your library (or buy it, but if funds are tight, borrowing is a good option). It has instructions on the elimination diet and the various types and dosages of probiotics. Good luck! Bess
Zinc, Soy-Free Diet
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Elimination Diet
Sounds like one of my grandchildren. Come to find out that he was a celiac as was his mother and her dad. All went on a gluten free diet. No one has anymore digestive problems.
Bananas
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NAET
Lately we realized not only the reason why she got the EE in the first place, (a round of antibiotics in her first year... That made her sick a lot that next year... ) but we found the missing puzzle that further agravated it; grains. Actually, after going grain-free for awhile I realized that the grains weren't the problem, as they had been a healthy part of every culture's diet... It is the methods they are prepared with. In particular, the quick toxic yeast we have has only resently been used as a culture. It use to be wild sourdough starter that we soaked flour with. Come to find out that removed phytic acid and gluten, while adding probiotics and vitamins! All cultured foods would heal the gut, not hurt it... So eat up that batch of sourdough starter pancakes, that sourdough pizza, cake or the like, just make sure it has an 8 hr. soak with wild sourdough starter. (You can get it free online!)
Ginger, Turmeric
★★★★★
I got them from online at Puritan Pride. I have him on 800mg of turmeric and 550 mg ginger once a day.
Ginger, Turmeric
Simultaneously, I reached out to an ayurvedic practitioner, who suggested contacting KH Khalsa, a master healer in naturopath modalities (in either Oregon or Washington state) for treatment since the case is so severe. Khalsa does on location and also tele-treatment. He has many years experience and credentials are strong. Anyone familiar?
Dietary Changes, Supplements
Eosinophilic Esophagitis Remedies
And keep sugar out as well as candida can be the cause of it in some people. Also, mold, fungus, and viruses. As a virus will hide in your system for years go quiet and then repeatedly attack you at different times. And the dysphagia, swallowing problems may be caused by many things, but I had it from medications. Love Andrea C xxxx
Riboflavin, Folic Acid
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Elimination diet helped with alot of my symptoms- no more headaches (Daily, debilitating stress headaches $thousands of dollars in meds, MRI's and testing only to find no known cause and was on Lortab 10's 2x a day just so I could hold a job), less asthma, less fatigue, less anxiety and also it increased the range of motion in my neck by reducing the inflammation in my neck and shoulders. Before I felt so bad all of the time I didn't realize how inflexible I had gotten. My Dr.s just kept saying exercise more, that I was getting older and was out of shape. :(
I still have insomnia, anxiety, IBS symptoms, occasional dysphagia and I am always bloated with water retention- I mean BAD bloated whether I am taking the steroids or not. It hurts to sit for more than an hour because I'm so bloated with water. After 2 years on elimination diet- my food allergies have mysteriously disappeared as quickly as they came. I only have a slight allergy to peanuts, but still have EE symptoms because I have many inhaled allergies like pollen and dustmites- but I have always had those allergies. My Dr.s don't know what has reversed my allergies (Lord knows it wasn't anything they did).
Last year I started eating only organic foods, much more whole foods- no processed stuff (Mainly because processed foods are all made with wheat and things I am allergic to) I wash my fruits and veggies religously and I try to grow a couple of veggies on my patio when I can. That way I know what's on them. My husband is a hunter so we ate mostly meat he killed which is very organic and untreated with antibiotics. I also started eating yogurt pretty regularly because it was convenient for me to pack for lunch since sandwiches were out of the question. I believe that my diet accidentally becoming more probiotic and less antibiotic and that along with getting away from the allergens has helped my intestines heal. This started me reading about leaky gut syndrome. Intestinal wall is damaged- leaks large protein molecules of food you eat across into bloodstream- white blood cells attack that protein and instantly you have food allergies. Before you are identified EE/ or allergic your Dr. may treat the symptoms with antibiotics, anti-inflammatories and antacids all of which further destroy the flora in your GI tract that is thought to protect your guts from leaking and you have a perpetuatal cycle. Stress, processed food diet and antibiotically treated food are also thought to destroy flora in the tract.
So elimination diet made me better- next I decided to start an actual probiotic regimen. 2 weeks in and I am not bloated AT ALL!! Since I've been sick I gained 30-40 Lbs. I felt hungry all the time, I craved sugar, I was exhausted so I didn't excercise and my body was in anaphylactic shock daily for years before I was diagnosed. The day I started elimination diet I was so sleepy for 3 days all I did was sleep. I hadn't taken a nap in almost 5 years my constant adrenaline rush made me too anxious to rest well. It was hard for me to diet because I would eat chicken and whole wheat when I did which was what I was allergic to. I'm still a big girl but Jeans with no bloating and no muffin top is such a blessing for me!!! I'm eager to learn more about the possible probiotic/ EE link and am currently looking into digestive enzymes, but haven't had time to read much about it. Is the probiotic thing anything you have looked into?
I am sorry your little one is suffering this way!
The first thing that comes to my mind is slippery elm bark. It is nutritious and healing to the digestive tract. If he can swallow capsules, you can give it to him that way. I mix a teaspoon with some water or mix it in oatmeal and sweeten it. My children think this is awful, though. (But they will admit that it helps. :) )
Activated charcoal is also helpful to the digestive tract. It is anti-inflammatory and will draw out toxins, bacteria, etc. He could try tablets (swallow or chew) or put 1/4 teaspoon in some water and drink it. Do not take within 2 hours of medication. One tablet or 1/4 teaspoon once a day. It will make the stool dark.
Kefir would also be good for healing in his gut.
Some kind of detoxifying bath would be good. You could do epsom salt or baking soda bath a few times a week. (1 cup of either in a warm bath for 20 minutes.)
If he would drink some fresh lemon juice in his water, that may be helpful. (You could add a bit of natural sweetener, also, to make it more palatable.) This would be helpful for the ph of the body. You might even check his ph with ph test strips and see if he is acidic. There is a lot of information on this site about that.
Avacados are nutritious and pretty gentle. Also, extra virgin coconut oil would be good in his diet. Some find bananas helpful. (If he doesn't like bananas, you could put them in a kefir smoothie.)
Is gut flora imbalance a possibility? (from antibiotic use.) Are parasites a possibility?
Please keep us posted.
~Mama to Many~
Elimination Diet
To check your son for candida you can also do this simple questionnaire:
Unfortunately, doctor's tests are not very accurate at diagnosing candida imbalance or dominance from just stool or urine tests.
There is an effective child's protocol for candida that Walter Last recommends for getting rid of parasites as well as candida -- here is the link to the protocol:
Walter Last's Child Candida Protocol
Also, I would avoid giving your son any antibiotics whatsoever. Antibiotics will make the candida condition much more virulent and your son's condition will just get worse and spread. See this link.
For more explanations concerning Walter Last's approach on how to get rid of candida/parasites -- see this link.
I have been working with a private autism group of parents and they have been using Walter Last's Protocol(including turpentine) on their children with serious ASD disorders with some remarkable physical and mental improvements. Children with autism are always usually heavily infected with parasites, candida and other associated bacteria. It is the waste toxins from these pathogens -- particularly from candida -- that cause these mental and physical problems.
