Help. My teenage daughter was just diagnosed with EOE. She is about to go off to college and I am worried about her being able to eat at school. What supplements would be good for her to take. It seems like everything she eats makes her feel bad. She takes a probiotic and l-glutamine. We have tried an array of different natural supplements but not have been a great help. All the traditional doctors want to do is pump her full of steroids but I want to find the source. Her symptoms are troat pain, burning, stinging, stomach pain, fatigue, nausea. She has waves of being hungry and then nauseous. She is a distance runner and needs to eat alot of calories.
Has he tried taking Claritin? I was very sick two years ago with many of the same things, and to my surprise, a Dr suggested taking Claritin every day for a few months. I never heard that Claritin could help with allergies to food, but it made all the difference! Also stay away from acid-producing foods, tomatoes, caffeine, onions, garlic, gluten (inflammatory) Eat MALANGA (like a potatoe- but very digestive) boil as you would prepare mash potatoes, save some of the water boiled to soften the whip, and make sure it has salt. Very creamy and healing! Drink Bone broth, also very good for healing the tummy. Papaya too. God bless and bring you back your health.
5 year old with EE and multiple allergies. Diagnosed at 18 months. We do steroids for 4-6 months and then stop it for next 18 months, and start again for few months as inflammation slowly comes back. This way we try to minimize steroids intake. We do turmeric honey as well, but not sure if it is actually working or not. Turmeric for sure not fully fixing it as inflammation comes back. But possibly delaying the comeback, as Endoscopy images after 18 months of no steroids dont look bad, but EE count is +ve, needing steroids again for few months. This way I don't blindly rely on natural stuff and also don't blindly give him steroids. Just balancing act, I guess.
I have a 5 year old daughter that is looking at being diagnosed with eosinophilic esophogitis. They are wanting to "try" PPI's and another endoscopy to officially diagnose her, but I am trying to stay away from that. Based on her last endoscopy her doctor is willing to try Budesonide to try and bring her some relief, but I of course would prefer to avoid that if possible too. I would love to hear any update on how things have continued for other kids after trying alternatives to the medications!
Eosinophilic Esophagitis it is not just caused by GERD. New studies in the last couple of years have found that is also caused by food allergies disorder. Unexplained dysphasia and vomit. In < 15 or more per high field test Studies have a correlation with Celiac too. I had dysphagia for years. I stopped eating dairy, lactic acid and gluten. after eating this food I had food impaction in my esophagus. I am happy to see that new studies have found the problem that is not related to GERD Studies and testing are promising in the next 5 years.
Hi Mala! I would like more information about the treatment that you did with your child to treat eoe. My son is 6 now but he's been diagnose with it since 18 month. He is better with the diet, but doctor insist in keep treating him with steroids which we are trying to avoid. Thank you
My daughter is 17 and had Eosinophilic Esophogitis. She was diagnosed at 1.5 yrs. She has had a Mickey g-tube since 1.5 rs old. She's also been on canned medical food for yrs. I recently started blending her fresh foods for her via g-tube. I'm using a homemade vegetable broth that consists of carrots, celery, onion, garlic & ginger. I use a crock pot for about 7 hrs.
I have also looked into Ayurveda. There are 3 spices that they recommend for dietary issues. There are cumin, coriander, fennel, cardamom & ginger. I added 1/4 tsp of each spice, except for ginger which I used fresh. Once the broth is done I use it as a base for her homemade smoothie supplements. In those I use raw & unfiltered honey, hemp powder, ground quinoa, ground flaxseed, ground lentils, super greens powder & hemp milk. She seems to be doing very well but we are due for another upper endoscopy soon. We'll see!
Do you think it would help if I applied it topically?
Do you think there is a reason you were more hungry when you were eating foods you were allergic to? I am curious because I have experienced the same thing.
Same exact symptoms as him and same treatment for last several years. Need annual esophageal dilations to widen passageway and ease eating. Now looking to utilize more homeopathic remedy and lessen reliance on meds.
Dietary Changes, Supplements
My husband has eosinophilic gastroenteritis which is much less studied that EoE, however we are using budesonide. He is on an elimination diet but keeps having reactions without adding foods. We are trying some essential oils now. Research essential oils for allergic reactions and inflammation. I don't know how you would the budesonide or oils for esophagitis but it may be worth looking into. The oils we are currently taking by mouth are lemon, peppermint, lavender, frankinsense, and thieves. He is also taking a probiotic and Ninxia Red.
Hi Marie, Houston,
Can you update how is it is going now? How is your son doing? I am in same situation and you can help.. Please...
I have given toddlers turmeric without giving them capsules. If I need to get a little one to take turmeric, I mix it with some honey (not for children under a year), yogurt, or apple sauce. I don't mix the dose into a large amount of anything in case they don't like it. If it doesn't taste the best, at least it is over with in one spoonful and then they can chase it with something else. You may find it works differently for your child and that is fine.
A capsule of something is about 1/5 of a teaspoon. For my toddlers I would give 1/16th teaspoon each of ginger and turmeric mixed with something, yogurt or whatever, for a dose. If that didn't accomplish what I wanted, I would try 1/8 teaspoon of each as a dose.
With turmeric, always make sure child stays hydrated and is still having normal bowel movements. Some find it to be constipating.
~Mama to Many~
How did you get your 18 month old son to take ginger & turmeric pills my 20 month old son can't swallow pills. What kind of dosage did you give your 18 month old? Thanks.
Dietary Changes, Supplements
Hi Khloe, I know I am responding to an old post, but hoping to get a response from you. I also developed many food allergies after taking several doses of antibiotics. My gallbladder and apendix were also removed a few years before developing these allergies. My son was also diagnosed with Eosinophilic Esophagitis and as you can tell we are dealing with many food allergies. He is allergic to milk, eggs, peanuts, tree nuts, seafood. Its been difficult helping him since so many things have these items. Me on the other hand have a horrible corn allergy and at the same time developed allergy to almonds, soy, wheat, carrots. It has been a night mare for the family. Can you tell me what probiotics you took and dosage for zinc, I glutamine. What is NAC? I am usually the guinea pig before I give things to my son. How are you feeling now? Its been 6 years since your post. Your response would be greatly appreciated.
Hi Kacy, Just wondering if you had any luck in searching how to heal EoE with essential oils. I've been looking into it and haven't found much.
Before I knew what I had, I was using lemongrass, myrtle and myrrh essential oils to treat what I thought was a thyroid problem. I would rub it on my throat and put it on the bottoms of my feet as well. It helped immensely. I could swallow without discomfort within minutes of doing this. Soon after I found out I had eosinophilic esophagitis. I'm now researching oils specific to Eosinophilic Esophagitis. Next week I plan on starting a daily regimen of myrhh, basil, frankincense and cinnamon along with Manuka honey. A great natural remedy but I can't imagine a 3 year old swallowing it willingly and essential oils aren't always recommended for ingestion for children - but oils on his feet or externally on the esophagus could help.
What is this? Can I get more info?
Dietary Changes, Coconut Oil
Hi Jean, if you could please share more about the protocol you followed to overcome the Fibromyalgia that would be very helpful to others. Can you please share the name of the Alternative MD as well? Thank you!
Dietary Changes, Coconut Oil
I was cured of Fibromyalgia by alternative MD. Liver function test showed phase 1 to be extremely functional and phase 2 to be almost completely dysfunctional. I was put on a diet replacement to heal liver function and the FM went away! All the chemicals released by phase 1 were not being carried out of my system by phase 2 so it got stored in interstitial sites between cells! Thus caused chronic nerve aggravation and pain. I used far infrared sauna to help eliminate the poisons in those miriad microscopic sties. It took a year to recover completelty. My liver function had been compromised from being under anesthesia for several hours of an operation.
I am 39 y.o., and also have zero food allergies according to the skin prick test.
I started having daily choking, severe pain, and laryngitis at age 35... which resolved only at age 39 when I went onto an elimination (no alcohol, milk, soy, wheat, egg, nuts, fish, shellfish) diet.
I went from eosinophil count over 100 (eye-popping) to "undetectable" within 2 months. Apparently 5% of EOE sufferers are like me, and don't show allergies on the blood test. If I take 1 sip of alcohol, or 1 bite of sushi & soy sauce, I'm back to severe pain and choking within 12 hours later. Swallowed budesonide really tames the EOE down again... nothing else including fluticasone seems to even touch it.
Hope this helps.
Oops - sorry about that! I did read those. I also forwarded the blog to my cousin so he can familiarize himself with naturopathic medicine and hear/see what people who are using it to contend with EE are experiencing and suggesting.
Simultaneously, I reached out to an ayurvedic practitioner, who suggested contacting KH Khalsa, a master healer in naturopath modalities (in either Oregon or Washington state) for treatment since the case is so severe. Khalsa does on location and also tele-treatment. He has many years experience and credentials are strong. Anyone familiar?
I am not Mala. Hopefully she will see this post and be able to share advice with you.
I am assuming you have read over the posts on this website about EE. I thought Ed, Timh, and Mt all had good ideas. We have used nettles and turmeric for small children with good success.
I don't think I have seen on the EE page anything about kefir, but I would encourage that if possible. Milk kefir is really amazing and healing. If dairy is not tolerated, there is always coconut milk kefir or water kefir.
I am hopeful that your cousin will be able to find a solution for her child. Having to remove the esophagus would be absolutely dreadful.
Please keep us posted.
~Mama to Many~
Mala, My cousin's 2 yr old son has a very severe case of Eosinophilic Esophagitis. Neither acid reflux nor diet nor steroids is working. The boy is in the hospital every other week. Drs are suggesting removing most of his esophagus!! I am familiar with natural medicine but he is not. How did you manage (timeline, pace, etc) the transition from western to natural medicine?
I got them from online at Puritan Pride. I have him on 800mg of turmeric and 550 mg ginger once a day.
Yes, I have been through this for over 3 years. I have switched to gluten and sugar free diet and once a day I drink 1 teaspoon of ACV in a glass of water. I have found a connection with the lymph nodes at the top of my spine and difficulty swallowing. When times are bad it feels like swelling from ear to ear at the bottom of my skull. The ACV has helped this. I am also starting on lymphatic massages. I hope this information helps, it has been a long struggle for me and at last I feel like I have some kind of control.
When my husband and I first started dating, he was 26 years old. He warned me about this thing that happens to him where food gets stuck in his throat and he can't breathe until he makes himself throw up to get it out. Well, I got to witness this happen on several occasions over the next 6 years and became very concerned because every episode got just a little scarier. Finally, one day it happened while on vacation and not from food. He simply took a drink of water and it took 2 minutes for him to stop choking and start breathing again. He is an all-around typical guy who likes sports and no nonsense, so for him to admit how scary it was, was kind of a big deal.
His mother finally informed me that he had very severe acid reflux as an infant and threw up all the time until he turned a year old. After that, he was a perfectly healthy child until his 20's when the choking began.
When we returned home from vacation, we immediately made an appointment with his Dr to be referred to a GI for an endoscopy. The endoscopy revealed he had Eosinophilis Esophagitis and high levels of eosinophils and the "sticky rings". The Dr referred him to get tested for food and environmental allergies (even though he doesn't get allergy symptoms except the occasional sniffle in the spring and fall). She also put him on Omeprozale and a steroid inhaler that is swallowed. He takes the Omeprozale daily and the inhaler every few months. His allergy tests revealed ZERO food allergies and just a few seasonal allergies that weren't that bad.
Taking the medicine daily, along with chewing small bites and slowly and avoiding sticky foods such as breads has really helped. He also tries not to drink beer and that helps as well. He has a few other symptoms that have minimized since then as well including the constant bloody noses he used to get and waking up gasping for air sometimes at night. The snoring has also improved.
Two months ago, his father finally admitted to us that he used to have the same choking issues and eventually grew out of them. THEN his younger brother started having the issues at 30 years old. (husband is now 33). His brother just got an endoscopy and turns out to have EoE as well. However, his brother had severe asthma and allergies growing up, but no food allergies either. All seems to be hereditary in this family with the EoE.
Now we have an 8 month old son who has had terrible reflux since day 1 and has been on Zantac since 2 weeks old. I am terrified he will end up with the same choking issues and EoE.
Has anyone ever experienced this without food allergies? Also, do multiple family members have it?
Mala, My five year old son was diagnosed with Eosinophilic Esophagitis two years ago. He also has a mountain of allergies. I had to take him off of the steroids a year ago due to severe behavior issues. Can you please tell me what kind of ginger and turmeric pills you gave your son?
My son was diagnosed with Eosinophilic Esophagitis at the age of 18 mths, and his GE told me the count of 52 and 33 was the highest he'd ever seen. He referred us to an allergist and the battery of test showed that he was allergic to most things under the sun! With diet elimination and steroids his EE count was doing ok but I wanted him off steroids cause he's on a lot of meds for other things. Then one day someone who I trusted told me that they had had cancer stopped taking doctor's medicine and started taking ginger and turmeric pills. So I thought about it and decided that since my son never had any pain, I'll stop giving him steroids put him on these tablets and scope him within the year. I got the results of his scope yesterday and with the combination of a GF diet and these pills his count was 5!
I should mention that my husband is a physician who clearly does not believe in alternate medicine, but EE is an inflammatory disease and ginger and turmeric are anti inflammatory!
Wow, reading your post is so encouraging! My daughter is 6 and was dx with EE about 10months ago, she is on the top 6 elimination diet. I have found she is deff allergic to soy. I have been researching the GAP diet in hopes of help. Now I think I'll be looking for a chiropractor! Thank you.
Please update us if you son is still doing well?
Eosinophilic Esophagitis Remedies
Hi, try keeping all grains, seed's and nuts out of his diet, and use slippery elm powder. People have had wonderful results for Eosinophilic Esophagitis using this.
And keep sugar out as well as candida can be the cause of it in some people. Also, mold, fungus, and viruses. As a virus will hide in your system for years go quiet and then repeatedly attack you at different times. And the dysphagia, swallowing problems may be caused by many things, but I had it from medications. Love Andrea C xxxx
Eosinophilic Esophagitis Remedies
Diagnosed with EE and H. Pylori
An endoscopy has diagnosed my 13 year old son with EE and the H. Pylori bacteria. As an infant his pediatrician assured me that his condition was due to the fact that he was a "happy spitter." An upper GI was done when he was 5 however results were negative. At 13 he 5' 8" and weighs 138 lbs but he vomits easily and uses the restroom almost immediately after eating.
His Dr. has recommended an elimination diet (no milk, milk-products, wheat, soy, nuts, fish and eggs), Flovent and Protonix for the EE diagnosis. For the H. Pylori bacteria he will be on antibiotics and Doxycyline for 2-weeks.
Thank you for all the posts because we are just starting on this journey and it is helpful to read what others have gone through. I will definitely look up Dr. McBride's youtube and book along with the Osteopath treatment. I will keep you posted.
Hi Elena...I think that your son has candida and possibly other pathogenic infections in his intestinal tract. Esophigitis, stomach problems and allergy symptoms are well known to be associated with candida as the cause. If your son has a white tongue(instead of a healthy pink tongue) this is another positive indication for candida.
To check your son for candida you can also do this simple questionnaire:
Unfortunately, doctor's tests are not very accurate at diagnosing candida imbalance or dominance from just stool or urine tests.
There is an effective child's protocol for candida that Walter Last recommends for getting rid of parasites as well as candida -- here is the link to the protocol:
Also, I would avoid giving your son any antibiotics whatsoever. Antibiotics will make the candida condition much more virulent and your son's condition will just get worse and spread. See this link.
For more explanations concerning Walter Last's approach on how to get rid of candida/parasites -- see this link.
I have been working with a private autism group of parents and they have been using Walter Last's Protocol(including turpentine) on their children with serious ASD disorders with some remarkable physical and mental improvements. Children with autism are always usually heavily infected with parasites, candida and other associated bacteria. It is the waste toxins from these pathogens -- particularly from candida -- that cause these mental and physical problems.
I am sorry your little one is suffering this way!
The first thing that comes to my mind is slippery elm bark. It is nutritious and healing to the digestive tract. If he can swallow capsules, you can give it to him that way. I mix a teaspoon with some water or mix it in oatmeal and sweeten it. My children think this is awful, though. (But they will admit that it helps. :) )
Activated charcoal is also helpful to the digestive tract. It is anti-inflammatory and will draw out toxins, bacteria, etc. He could try tablets (swallow or chew) or put 1/4 teaspoon in some water and drink it. Do not take within 2 hours of medication. One tablet or 1/4 teaspoon once a day. It will make the stool dark.
Kefir would also be good for healing in his gut.
Some kind of detoxifying bath would be good. You could do epsom salt or baking soda bath a few times a week. (1 cup of either in a warm bath for 20 minutes.)
If he would drink some fresh lemon juice in his water, that may be helpful. (You could add a bit of natural sweetener, also, to make it more palatable.) This would be helpful for the ph of the body. You might even check his ph with ph test strips and see if he is acidic. There is a lot of information on this site about that.
Avacados are nutritious and pretty gentle. Also, extra virgin coconut oil would be good in his diet. Some find bananas helpful. (If he doesn't like bananas, you could put them in a kefir smoothie.)
Is gut flora imbalance a possibility? (from antibiotic use.) Are parasites a possibility?
Please keep us posted.
~Mama to Many~
Re son with digestive problems:
Test Papaya. Just a quarter teaspoon on end of spoon to start with. Papaya is magic for digestive problems.
Elena: Colostrum 21oz jar is best.
Hi, my son is 7 he has been struggling all his life with stomach problems as a baby he didn't gain weight and he rejected a lot of foods. He has a scope and other tests. Finally a blood test showed this is what he has. The Dr is gonna another scope to do biopsys. My son was tested for allergies and he has several, cinnamon, turkey, carrots, cantalope. Oranges and orange juice really hurt him. I! Trying to find receipts for him. And other medicines. He won't touch the ginger tea at all. I'm starting to eliminate foods. Any suggestions that may bring to his Dr and see what he says. By the way his Dr is not one to just put him on meds. Any websites you may have to help, or any advice. Thank you
I have been struggling with EE as well. Been following the elimation diet. Easier to swallow now. Have not had a repeated EGD. Gave upeggs, milk-dairy(cheese), nuts/tree nuts/coconuts, soy, fish, and gluten. I had a hard time at first, very hungry loaded up on rice and potatoes. For me the rice milk was the best alternative for someone who loved skim/2% milk. Tried to balance fat with veggies. Tried to supplement with a rice protein powder for amino support. You can mix it with water, applejuice or rice milk. I also added blueberries or strawberries. It's more expensive but very smooth.
Dietary Changes, Supplements
Hello Renna, I second Timh from Ky, Usa recommendations. That is the best approach. Colloidal silver to kill pathogens, zinc to increase immunity, vitamin A to heal. In addition, you can take 1 tsp of Licorice Root Powder mixed with 1 tsp unpasteurized honey. Licorice root powder increases the juices secretion of mucus membranes from the mouth through the rectum. Good Health.
Dietary Changes, Supplements
@Renna: First try and get some kill on the infection by sipping Colloidal Silver water. A few hrs away from C.S. use Zinc Lozenges, and before retiring place a 10,000 iu Vit-A softgel in mouth and burst between teeth; Swallow gently so as to let the vit-a coat the lining of the esophagus.
For esophagus health in general, explore the possibility of gallstones and Primary Bilary Cirrhosis. Herbs to use immediately to improve digestion are Fennel and Ginger.
Dietary Changes, Supplements
Stinging nettle helps with allergies. Calamus root helps with the digestive system. Swedish bitter is also helping with the digestion. Calendula, Sage are anti-inflammatory. Manuka honey and garlic are natural antibiotics.
Dietary Changes, Supplements
My husband now 29 got diagnosed with eosinophilic esophagitis 5 years ago. We tried everything, he was seeing a research doctor that put him on all kinds of meds that just made him feel so sick. He had to quit his job drop off college for a while. This keeps going on and off he is never feeling good and when he is it never lasts. We decided to go a more hollistic approach and tried the eimination diet. He is allergic to most fresh fruits and vegetables which makes it difficult for him to be healthy. His health has suffered greatly and the worst part is that his immune system is compromised and he gets sick all the time. He had an epsidoe last month when he tried to eat bannans and has been so sick since nothing he eats goes well he has gone down from 160lbs to 133 and keeps losing more weight. I am scared and feeling helpless. Currently he is taken supplements and we are trying clay in his drinks. His diet is mostly organic brown rice potatoes almond milk and occasionally other things such as eggs apple sauce yogurt peanut butter and sprouted bread. We tried gluten free but it made him sick for some reason. I am worried mostly now about immediate remedies. It is important for him to put on some weight and recover a little before we try anything else.. Any suggestions? I would really appreciate it
Marie from Houston TX..... I know it's been over 2 years since you've posted about EE/EG issues and because you've been so thorough with your info.... I'm almost embarrassed to even have a question.... But here goes!
My 3 year old grand-son seems to be suffering with EE and again your information is priceless..... but I wanted to know what the immunotherapy drops were?
Also... this is a bit off topic but I wanted to know if you are at all familiar with a wholefood Co-Op in Houston know as (I think) Rawfully Organic.... I follow them and the young lady that runs it Kristina and it seems they are doing wondrous things with fresh organic fruits and veggies..... So please if you have not heard of them.... Check them out!
Eosinophilic Esophagitis Remedies
J, sorry for the short reply but short on time, please refer to my post on my son's leaky gut. It has been hard but similar protocol may help your son. Just use the search box or look up under ailments.
EC: Here is the url to Sadie's thread: https://www.earthclinic.com/cures/leaky-gut-syndrome.html#BP
Eosinophilic Esophagitis Remedies
Hi J_stone from Indy: I agree with Mmsg from Europe.
In the book, Digestive Wellness (Lipski), they found that one-third of children with eosinophilic esophagitis also had asthma (in fact, EE is being called "asthma of the esophagus"). Allergic reactions to foods, mold, dust and pollen appear to play a big role. Even people on medication need to restrict/eliminate allergy-inducing foods or they won't improve, regardless of what drugs they take.
Here is what they recommend:
- Go on an elimination-provocation diet
- Quercetin: This will diminish, relieve and prevent allergy symptoms and protect esophageal tissue. Quercetin is very effective when combined with grape seed extract or pycnogenol.
- Probiotics: This will balance gut ecology and immune system function.
- Digestive enzymes
- DGL licorice: soothes inflammation and stimulates repair.
- Folic acid: Protects mucous membranes.
Can you work with a naturopathic doctor? That way the ND could tailor any supplements to your child's weight and severity of symptoms.
I would highly recommend borrowing Digestive Wellness from your library (or buy it, but if funds are tight, borrowing is a good option). It has instructions on the elimination diet and the various types and dosages of probiotics. Good luck! Bess
Eosinophilic Esophagitis Remedies
J_stone--please be aware that dairy cows could be fed corn in the winter to produce more milk. This would affect the cheese and butter too. Mmsg is right-on with moderation because of what is happening to our food supply. Genetically modified grasses and grains (GMO's) have tainted our food in one way or another.
If food is being engineered to last longer it seems to me the creatures in the food are surviving and when we use anti-bacterial soaps and hand sanitizers we could be killing off the defenses. I JUST DON'T KNOW... But there has to be a reason so many people keep getting sick. The hospitals are no longer safe. People are going in to get fixed and are coming down with worse ailments than they went in with if they don't die. This has been on the news more than once.
Eosinophilic Esophagitis Remedies
When I was allergic to corn, cans all had a corn liner to take the taste of the metal away, I'm not allergic anymore.
Eosinophilic Esophagitis Remedies
J_stone: I've read that once your gut heals, you can tolerate more stuff you were allergic to. This has happened to me. I've been pretty strict (not too strict tho) with eating mostly natural stuff, and I must say, I can now tolerate many more foods IN MODERATION. If I go overboard, I feel it.
So you can try a natural diet, but you should know it's not a life sentence: it's a healing stage.
Eosinophilic Esophagitis Remedies
My son is 6 1/2 years old and was diagnosed with Eosinophilic Esophagitis (EE) 3 years ago. We found that he was allergic to corn (which is in everything!). Turns out its all the processed corns such as hgh fructose corn syrup and maltodextrin. When we cut everything out of his diet that Had any type of corn or corn bi product he got better. We didnt think he had it anymore. For some reason it has came back. He was tested and his eosinophils are high again. They put him on Flovent and it is so expensive! Around $500 for a 3 month supply! I can't afford this medication and there is no generic for it. He has so many allergies, seasonal and non-seasonal that the best thing for us would be to go all natural. I welcome all suggestions and would love to hear what has worked for you or your children. Thank you.
I have been diagnosed with eosinophilic esophagitis 2 years ago but I have been suffering from it for the past 8 years or so. Can anyone help me get better?
I am about to begin the GAPS Protocol from Dr. Campbell-McBride. I suggest you look very seriously into this. The chances are you will find the answer to your problems.
I wanted to follow up on my original comment up top. While I do believe that NAET still helped, I think now as someone else mentioned, that it was just a temporary patch job. My daughters allergies would have been never ending if we hadn't of found a chiropractor who deals with the whole body through the Brimhall method. They are now in every major city and getting very popular. Anyhow, through our chiropracter we were exposed to the thought of building up my daughter's immunity through food too. We read about that book on gut that was mentioned above, and it made perfect sense.
Lately we realized not only the reason why she got the EE in the first place, (a round of antibiotics in her first year... That made her sick a lot that next year... ) but we found the missing puzzle that further agravated it; grains. Actually, after going grain-free for awhile I realized that the grains weren't the problem, as they had been a healthy part of every culture's diet... It is the methods they are prepared with. In particular, the quick toxic yeast we have has only resently been used as a culture. It use to be wild sourdough starter that we soaked flour with. Come to find out that removed phytic acid and gluten, while adding probiotics and vitamins! All cultured foods would heal the gut, not hurt it... So eat up that batch of sourdough starter pancakes, that sourdough pizza, cake or the like, just make sure it has an 8 hr. soak with wild sourdough starter. (You can get it free online!)
please email me I have tons of questions thanks meghan blndmelon(at)hotmail.com
Riboflavin, Folic Acid
My 12yo son had mild EE, but serious abdominal pain just left of and below the navel for a few months. He had some lymphoid nodularity in his terminal ileum on colonoscopy. We have him on zinc l-carnosine (polaprezinc) and soy-free diet. He is amazingly better. Try googling zinc and eosinophils or zinc and gastric mucosa to get a better idea of what zinc does. Best of luck.
I would go with what the chiropractor is saying. Go to youtube and watch Dr. Natasha McBride's videos on the GAP diet. It is all about healing the gut. Also on youtube some good videos by Donna Gates on the Body Ecology diet which is similar. Many people have had great success with both of these protocols.
I have three children with eoe. They have been on Flovent for several yrs. Over the past 9 months they have been on the 6 food elimination diet at their Dr's suggestion. Two of the kids were clear on the last scope and are adding egg back into their diet. My youngest has been on the 6 food elim. Diet and taking flovent. If he is not clear on his next scope Dr. is suggesting ng tube. I need some advice quick. The ng tube for 6 weeks would help determine if his eoe is food driven, but I hesitate to go to that extreme. Our chiropractor had my son take a stool analysis test which showed the following:
Commensal/Bacterial Overgrowth Detected:
Klebsiella/Enterobacter/Serratia Group - moderate
Alpha Hemolytic Streptococcus - Moderate
Klebsiella pneumoniae - moderate
Chiropractor is suggesting 3-6 months to get my son's gut working properly instead of the ng tube. I am very confused and would like some advice.
Dietary Changes, Supplements
I have had a persistent cough for years. Years before that I was diagnosed with leaky gut and then I reduced my Candida problem with Greys formula. I have a degree in human biology and for the cough tried many vitamins and minerals. None helped except a spleen polypeptide product that no longer is made. I did find that Thymuril by integrative therapeutics works too. Spleen or thymus polypeptides are the key. The cough can be very powerful and unrelenting if I do not take the Thymuril. For those who understand embryology the bronchials are getting the referred irritation from my esophagus. Like the gallbladder refers pain to the shoulder. The heart refers pain to the left arm etc. Later I had an endoscopy done to deal with a esophageal ring that had formed. The doctor also diagnosed EE. The only thing that keeps the cough well under control is the Thymuril. Other spleen and thymus extracts do nothing. I do not think it cures but controls so the real problem is with allergies and whatever is still causing that. Perhaps leaky gut is still around. I believe that elimination is fine for quick relief but for some people the list of foods grows and it would be better to find out what is causing the problem so the list can be cut down. I fear that cutting out foods will cause other deficiencies in time.
We are also in Chicago and our daughter was just diagnosed with EE. We would love to speak with you about your experience. Feel free to email us at info(at)carsinpedia.com
Riboflavin, Folic Acid
I am also wondering how the riboflavin is working out? We want to avoid medications for my son and are curious if this is still working for you. Thanks
Riboflavin, Folic Acid
Hi Greg, and how is this 'Riboflavin, folic acid' remedy working out for you? I'm the same - proton pump inhibitors don't work for me, and I'm keen to try anything to get rid of my ee.
Marie from Houston, Tx - I readed what you wrote about your son. I feel the same way. One out of 2 of my drs feel that it could of been the antibiotics. I would love to talk more. Please email me Ngerardi11(at)gmail.com
Hi Marie from Houston.
So nice to hear that all your hard work is starting to pay off for your son. I am just beginning this journey.What is the type of probiotics and amounts that you have been giving your son? I have read The Probiotic Revolution and noticed that different probiotics help different ailments.
Thanks so much. And please keep us posted on your future success.
I MUST recommend to everyone to visit an OSTEOPATH instead of the chiropractor. Osteopath works with the entire body: bones, muscles as well as internal organs. I am not saying that chiropractors are bad, but this is much, much better. It did miracles for me and practicaly everybody that I recommended it too.
Hi Nydad so sorry for not getting back to you sooner. I fired the chinese doctor he made him worse and all I kept hearing was that he was cured. In fact he became worse vomiting 10-15 times a day. So back on the elimination diet, and did not follow it rigidly. Well today we had the endoscopy and results were not good. So I am going back to the very restictive 6 food elimation diet and he will be reviewed in 6 weeks.
My son who is 12, was diagnosed with Eoseonophilic gastroenteritis via endoscopy in 2010, which eventually also manifested into esophagitis as well. It began after he was placed on a heavy round of antibiotics last February for an upper respiratory. My guess from what I have learned through research is this: the antibiotics caused an overgrowth of candida, which perforated the intestine walls, and caused small holes through which food and environmental allergens were passing through.
I believe many children diagnosed with EE or EG, probably all have some sort of fungal issue from past antibiotic use or processed foods-you can check this through a spit ph test or simply look at the tongue for a white coating. By March, he had lost 15 pounds, was anemic, vomited everyday, was only able to eat approximately 5 or 6 different types of food, had a constant body pain, and slept for hours throughout the day, his body had become extremely toxic and seemed to be shutting down-this disease was taking over our lives. He missed all of the Spring school semester, so we eventually withdrew him and began home schooling while searching for a doctor with a cure. We spent countless hours and thousands of dollars on different specialists, doctors, naturopaths, and even an acupuncturist to try and understand how to function day to day. I never was told specifically what caused the sudden eosoniphil increase, but I wanted to give you some insight as to what I discovered worked (and what did not work) for us and how my son has improved over the course of a year. (We too were quickly reaching the point of feeding tube and I was desperate to help him get his life back).
Because his food and environmental allergies grew increasingly worse every single day, we guessed each day as to what foods he could and could not eat. The things the others are saying is true, your child probably has leaky gut syndrome-there are many causes besides just antibiotics-the most prevalent being processed/fast food and high sugary foods. I changed my sons diet to whole organic foods-primarily leafy greens which helped tremendously regulate his digestive system-and in moderate amounts allowed *some* dairy because he is a child and this was very difficult to balance to keep him from being stressed. I completely eliminated bread for several weeks and then when I reintroduced it, I used all gluten free products or made the bread at home, being cautious about the ingredients I used. I also added in 1 cup of Kefir a day-this completely eliminated the constipation issue associated with EG. I then began researching drastically on rebuilding the immune system. He started taking the following supplements: Colostrum (3 per day), Vit. D3, Flax seed oil (2 tbls. Mixed with a 1/2 cup of organic cottage cheese), Zinc, potassium, Selenium, Probiotics (over 10 billion per pill) and a whole food liquid. I gave him digestive enzymes during meals.
Over the course of the year, he very very slowly began improving-very slowly. We continued on this routine faithfully over the course of the year - then in about December began experiencing problems again. We visited with an allergist this time to specifically identify his food allergens-in December, skin testing revealed he was allergic to approximately 64 different food and environmental allergies, while a food allergy test from a Naturopath identified his primary food allergies were milk and eggs. We finally decided on a steroid anti inflammatory in January. He received a prednisone injection which significantly helped, and began taking Singular (but not without either causing side effects), as well as began sublingual immunotherapy aka SLIT. The injection in January helped significantly, however if you read up on the side effects of steroids, they are pretty horrific, however I did find a clinical study from the Mayo clinic showing there was an 86% cure rate from a steroid injection for people with EE and EG. We continued on with the Singular which appeared to be hiding symptoms, but not curing-at this point the disease prevented him from swallowing in the morning. The allergist informed me to give him a salty drink or to have him eat a salty food first thing in the morning and it will reduce the swelling-a nifty little trick that works well. The allergist also surprisingly prescribed Vit. D3, fish oil, probiotics, and pomegranate fruit juice along with his SLIT therapy (the same old vitamin supplementation we had already been doing over the past year)-he said if you keep going, you will see a 90% recovery by the end of the year.
I then found earth clinic by just looking for information on how to help him as it seemed we were not doing enough and was not happy that we were back to Rx's again. I discovered the apple cidar vinegar cure and began drinking it myself first. I then incorporated it into my son's diet for two weeks and all of a sudden his allergies and asthma were diminshing. I would not say he is 100% cured, but it is getting better and better each day. I believe it is working because it is killing off the underlying root of the problem-the candida. We continue to take the supplements mentioned above, especially the colostrum and kefir as they both rebuild the intestinal lining and drink the ACV everyday and he is continuing on his immunotherapy drops. For him, I use 1 tsp. of ACV in 12 oz. of spring water with a small amount of honey. We also oil pull with Extra Virgin Coconut Oil in the mornings and have seen improvement from that as well (he has had a skin rash appearing-a common detox reaction as the candida leaves the body-I just rub coconut oil on the skin where the rash shows up until it goes away). Since the oil pulling and ACV, he has no longer had to take any prescriptions-this is the first time all year, and is actually eating what is considered "normal" food again-the bad stuff, but is not having any adverse effects and has even ate a few nuts the past few days without any problems (I normally carry an epi pen for just in case situations). Because of the supplements, probitiotics, and whole food vitamins, he has not been sick in over a year-not even a low fever or sore throat. I believe his immune system is on its way to being rebuilt.
I believe we are finally on our way-it was a very very long road, there were many days of frustration, but I wanted to encourage you to not give up and keep searching-you are on the right track. I also purchased two books that helped me understand the whole body tremendously- one is written by a very popular nutrionist, Doug Kaufman, called the *Fungus Link* which deals with systemic candida and inflammation and the second one is by Gary Huffngale, Ph. D. Entitled *Probiotics Revolution*. Both will help tremendously. I believe what worked for us was a combination of many things-diet change to all organic, heavy vit. , mineral, and probiotic supplements, the immunotherapy along with traditional medicine under an allergy specialist.
I hope this helps and my heart reaches out to you, this is a terrible terrible disease, but I can assure you if we can bounce back from where we were last year-everyone can. Use every resource you have to throw at it, attack the symptoms with scripts until you can find the root cause, then start identifying the nutritional deficiencies, along with any pathogenic organisms that may be lingering around.
Riboflavin, Folic Acid
MCH 24.7, RDW 18, NEUTROPHIL 45, EOSINOPHIL 18 AND ABS EOSINOPHIL 1. 2. The traditonal metheods of treating Eosinophilic esophagitis with pills and a proton pump inhibitor never worked for me I still had swalloing issues if eosinophilia is the result of defective protein marker in the body. Wouldnt it be necessary to jump start the protein system? Riboflavin is the one vitamin thats the building block for all others in the human body. Taking 100 mg of riboflavin daily ive stabalized the erratic bloodwork a leading sign of active eosinophilia. Then adding 400 to 800 mcg of folic acid to the mix to help the rna in the body. Could you have a cure for eosinophilia? GL
Can you please let me know how your son is doing with Chinese medicine so far? This is the route we want to take for my son who is 5 years old and was diagnosed 1 year ago.
Dietary Changes, Coconut Oil
I have severe Oesophagitis. Am under care of a Specialist. He told me to give up tomatoes and bread. I didn't believe about the bread, but I have tested it, and he was right! . I occasionally indulge in a slice of healthy grain bread, but have found it's not worth it. What I have found remarkable for it is Coconut oil. It has lots of healthful qualities, (don't believe the propaganda about bad fats). It's a good fat, especially for hypothyroidism. Also, I have recently begun symptoms of Fibromyalgia, which I believe from lots of research ( Dr Low) is caused by extremely high oestrogen/very low progesterone. Oestrogen dominance causes hypothyroidism. I can keep the pain under control with a mix of coconut oil and Turmeric/Boswellia tablets, (which I have to buy from America). This combination will keep me far from any cancer threat as well.
I am glad that you are doing so much better. I have found that I am more healthy also by cooking all my on food, bread and not eating any thing made/processed in the store. I do not eat sugar, white flour, white potatoes, no dairy, no animal products. My diet consists of vegetables frozen or fresh cooked, some raw, brown rice, whole flour(nonbromated, non-enriched), chickpea flour, rice flour, flax seed, sea salt, coconut oil, a little olive oil, lots of fruit(not real sweet) Since I am eating healthy I do not take 40 units of insulin every day, maybe 5 units 4 times a week. I do take some vitamins and minerals every day, and I have taken some probiotics for my digestive system. I drink kefir sometimes, and I make my own now. I have made kombucha tea, and have drank some of it also. I feel like a new person now. God is good and full of mercy.
Hi Lavoras.. My son has been diagnosed with EE as well less than a year ago and we are using prevacid and going through alternative route for a while now. We did not see much improvment but still searching for the right option. Can you share your experience with Chinese medicine as we are trying to go that route ourselves. Thank you.
Did he have an infection right before he started having these symptoms? If so, then the infection may have rested in his spleen or pancreas or his liver, causing an "over acid" condition throughout his body that manifests when he eats foods, or breathes in pollen, etc.. Is his stomach refusing to digest food?
He needs to clean out his stomach with distilled water, and Elm water.
Elm water is made by taking a pinch of powdered Elm and putting it into distilled water, with an ice cube in it -let it steep for 3 minutes and then drink it. This will help his acidity. Saffron tea also will coat the stomach - take yellow or American saffron - the non-expensive kind - and boil water - to 16oz of water put 3tsp of saffron - let that steep for 30-45 minutes and have him take this before every meal. Milk of Magnesia - one tsp after every meal would be great also. This is to cleanse and quiet the stomach. To cleanse his colon - there is nothing better than Fletcher's Castoria - look around and find the cheapest place. And for your son, I would suggest using your own intuition. From 1 tsp a day - to the whole bottle taking 1/2 tsp every half hour! This will come from within. I would start him on Castor Oil packs also, 4 days on and 3 days off, every week, until he feels better. After that just do them for maintenance.
When he sees his Chiropractor - ask him about concentrating on his C3, D1 - D9, D11 & D12, Sacral and Coccyx, also ask your chiropractor if there is anything pressing on his Facial cranial nerve. If so, then do what your Chiropractor says to do about that. In the evenings it would be great to massage his area with a mixture of oils - Olive oil (2 ounces), Lanolin (1/2 ounce), Pine Needle Oil (1/2 ounce) - all along his spine - especially D1-D9. Also massage his abdomen area with pure olive oil - very gently and rub in a clock wise motion to get his stomach and intestines moving and to stimulate his lacteal ducts. Let me know if you decide to try this, what your results are!
I am a 33 yo Female diagnosed EE 2 years ago through biopsy. This led me to get skin prick allergy tested and I was shocked to learn that at 31 I had 14 food allergies I had not had in my teens when I was 1st tested. My allergies including wheat, onion, chicken, peanut & green beans comprised about 90% of what I had been eating. My doctor put me on budesinide and the compounding pharmacist made it a suspension liquid that is easier for me than puffing the inhaler and swallowing the medicine. I've been asthmatic so long I totally kept inhaling every time I tried to take it. It was a GOD send!! Dysphagia and nausea was eliminated almost immediately and I only had to take it a week or 2. Now I just take it as needed.
Elimination diet helped with alot of my symptoms- no more headaches (Daily, debilitating stress headaches $thousands of dollars in meds, MRI's and testing only to find no known cause and was on Lortab 10's 2x a day just so I could hold a job), less asthma, less fatigue, less anxiety and also it increased the range of motion in my neck by reducing the inflammation in my neck and shoulders. Before I felt so bad all of the time I didn't realize how inflexible I had gotten. My Dr.s just kept saying exercise more, that I was getting older and was out of shape. :(
I still have insomnia, anxiety, IBS symptoms, occasional dysphagia and I am always bloated with water retention- I mean BAD bloated whether I am taking the steroids or not. It hurts to sit for more than an hour because I'm so bloated with water. After 2 years on elimination diet- my food allergies have mysteriously disappeared as quickly as they came. I only have a slight allergy to peanuts, but still have EE symptoms because I have many inhaled allergies like pollen and dustmites- but I have always had those allergies. My Dr.s don't know what has reversed my allergies (Lord knows it wasn't anything they did).
Last year I started eating only organic foods, much more whole foods- no processed stuff (Mainly because processed foods are all made with wheat and things I am allergic to) I wash my fruits and veggies religously and I try to grow a couple of veggies on my patio when I can. That way I know what's on them. My husband is a hunter so we ate mostly meat he killed which is very organic and untreated with antibiotics. I also started eating yogurt pretty regularly because it was convenient for me to pack for lunch since sandwiches were out of the question. I believe that my diet accidentally becoming more probiotic and less antibiotic and that along with getting away from the allergens has helped my intestines heal. This started me reading about leaky gut syndrome. Intestinal wall is damaged- leaks large protein molecules of food you eat across into bloodstream- white blood cells attack that protein and instantly you have food allergies. Before you are identified EE/ or allergic your Dr. may treat the symptoms with antibiotics, anti-inflammatories and antacids all of which further destroy the flora in your GI tract that is thought to protect your guts from leaking and you have a perpetuatal cycle. Stress, processed food diet and antibiotically treated food are also thought to destroy flora in the tract.
So elimination diet made me better- next I decided to start an actual probiotic regimen. 2 weeks in and I am not bloated AT ALL!! Since I've been sick I gained 30-40 Lbs. I felt hungry all the time, I craved sugar, I was exhausted so I didn't excercise and my body was in anaphylactic shock daily for years before I was diagnosed. The day I started elimination diet I was so sleepy for 3 days all I did was sleep. I hadn't taken a nap in almost 5 years my constant adrenaline rush made me too anxious to rest well. It was hard for me to diet because I would eat chicken and whole wheat when I did which was what I was allergic to. I'm still a big girl but Jeans with no bloating and no muffin top is such a blessing for me!!! I'm eager to learn more about the possible probiotic/ EE link and am currently looking into digestive enzymes, but haven't had time to read much about it. Is the probiotic thing anything you have looked into?
Our son is 14 1/2 years old and has been dealing with EE for over 4 years. The only thing that has completely stopped the reflux was the elimination diet. He could only eat 9 or 10 food items but at least he could go off his 40mg of Nexium. Unfortunately it wasn't enough nutrient to get him through puberty and baseball so we started the meds again and let him eat what he wants. Currently we have been working with a naturopath who said she could cure him. She actually said those words. I was not happy but it gave our son hope. After the Vega Testing she put him on a strict diet to bring down his candida numbers. After 4.5 weeks we retested. His number for candida went from 9 to 4 and it showed that we could reintroduce many of the foods that he had been denying himself. Unfortunately, if he missed his Nexium pill, even for a couple of hours in the morning, he had reflux. The goal was to get him off the pills and if the beginning stages of the diet didn't help what was the point of reintroducing foods?
She has also sent us to a 'chiropractor' that does visceral manipulation. She 'listen's' to my son's stomach (hands on stomach, eyes closed) and does cranial adjustments to put him 'back in sync'. She has recommended that we see a Constitutional Therapist. At this point we've spent several hundreds, if not a few thousand, searching for a cure for EE. I'm not interested in putting out more money because someone thinks my son has a 'sulphuric' constitution and therefore needs some Essence of Sulphur. So.... He has chosen to stop the diet, go back on the Nexium and live his life. Hopefully the Nexium will continue to work and he will continue to eat most of what he wants. (He cannot eat potatoes! )
We are discouraged and I was hoping that this discussion might be able to direct us to a legitimate 'natural' cure for EE. Sherri
Sounds like one of my grandchildren. Come to find out that he was a celiac as was his mother and her dad. All went on a gluten free diet. No one has anymore digestive problems.
Hi my son is 4 and was diagnosed 6 months ago with EE. I am a nurse and I am on the pursuit to find the cure, as physicians dont seem to know too much about this disease. When he was born they told me he had GERD and Colic. After many doctors, they went in did a biopsy and voila we now know what it is. We then did the elimination diet, went back in scoped and no eosinophils, great, however 4 weeks after he was vomiting 10-14 x a day.
Currently I took him off prevacid and I am trying the alternative route (chinese medicine). He is back on all foods due to chinese teas including ginger and we have 1 more week, no vomiting for 2 days and then yesterday only 1x. I must exhaust this avenue before I start pumping him up with steroids, etc. We havent gone down the road of a gtube because he is gaining weight. Let me know if I can help in anyway.
I suffered with Acid Reflux, hiatal hernia, gastritis, etc. for years, which in the past year turned into esophagatis. Many years of prilosec, nexium, prevacid, etc. Apple cider vinegar did nothing for me. I read your post on banana's and tried them, after dinner, and I have not felt so good in years. I have tried numerous natural remedies, including plantains, and cabbage juicing. The bananas are a great help, although I'm not saying they are the "cure" , they have definitely helped a lot. To the point where I can have a sip of coffee, in between green tea, kefir and yogurt. Daily doses of plain yogurt, not the sugared up stuff, have helped alot also. I could go on, but will cease for now.
My son is almost 3. He was diagnosed with EE over a year ago. Since that time, so much allergy testing has followed. He has many positives including anaphylactic and environmental. A few weeks ago, after being on a limited diet omitting all of the things he tested positive to, he had another scope, only to find that his esophagus is still in tough shape. They are trying one last diet, removing all the common allergens, whether testing positive to it or not. After 6 weeks, another scope will follow. If he doesn't look better, the recommendation and next step from Children's Hospital Boston EE clinic, is to insert a feeding tube and doing an elimination diet, after 2 weeks of oral foods. Has anyone gone this route? Is this scarier for me than it really is? I am looking for input either from parents who have gone this route or parents with children who have the same issues but took other measures. Thanks for all of the information posted so far. Angel
Hi, I have a 1.5 year old son who has been struggling with food allergies, vomiting, etc. for the last year. We went to the allergy specialist today and he is pretty certain he has EE. I just wanted to make a note to Krissi above. Read the book Guts and Psychology Syndrome by Natasha Campbell-McBride. My son was developing more and more allergies to food. Basically anything he ate on a regular basis he would develop an allergy to it and start throwing it up every time I tried to give it to him. We were down to about literally 3-4 foods he could eat and I knew it was only a matter of time before he would start reacting to those foods also. Then I found this book and it has been such a blessing to us! We have been following the intro diet (find it on her website) and added the suggested supplements and have seen great progress. His allergies are still very prevalent but so far he has not thrown up in just over a month and I've been able to add some more foods back into his diet. I've read a lot of books and articles on allergies, candida, leaky gut, etc. over the last year and Dr. McBrides has been the most informational and helpful. I do recommend an allergy screening to help you to know what foods to avoid and that could be causing the inflammation. We also tried the NAET route with someone who I felt was a very gifted and qualified practitioner. We did the treatments for about 7 months. However NAET will not take care of the leaky gut and in my son's case he was developing new allergies as we treated the previous ones and then would be okay for a while with a food he was treated for and then start reacting to it all over again. The whole focus of the GAPS diet is healing of the digestive system. It has been the only thing that has helped us in the last year. Also to Kloe above, what were you able to do about your chemical sensitivities? I want to learn more about this as my son also has has MCS. Thanks for all the advice and info!
Hi Krissi, Sorry to hear your little one is going through all that. Has he been tested for food sensitivities? Have you tried an elimination diet?
"How is EE Diagnosed?
The diagnosis of EE is generally made by performing a biopsy of the esophagus, with evidence of eosinophils infiltrating the esophageal tissue. A biopsy is performed via endoscopy (a camera inserted into the esophagus), usually by a gastroenterologist. There are many other diseases that can cause eosinophils in the tissue of the esophagus, including gastroesopheal reflux disease (GERD), parasitic infections, fungal infections, inflammatory bowel disease, certain cancers, recurrent vomiting, and others. These diseases need to be ruled out before EE can be diagnosed."
Did he have that biopsy done? Was he tested for the things noted above?