Crohns with Fistula: Please help me with regard to how to get rid of an anal fistula assoc. w/ Crohns. I take high concentrations of an intracellular aloe vera product which seems to help but I don't want to live with this "pain in the butt" fistula forever! Only once a month does it flare up and abcess. Have had it asperated once, take sitz baths occassionally but.....Argh!! Thank you! Mrs. CR
I've had 3 and I can tell you that surgery is really the only thing that will help. If you don't escalate the situation, you could end up even sicker and in the hospital. I'm 33 and like I said, had 2 minor surgeries, and one major. I haven't felt relief like this in a long time. I was terrified, but they can be deadly. Not something you want to mess around with.
Barley Grass and Pau D'Arco
Was at the Health Food Store picking up more Barley Grass for my boyfriend's Crohn's disease when I overheard a man looking for Pau D' Arco tea for his Crohn's. Apparently after many years of suffering from this disease, he only had 18" of his intestine left and after that was going to have to wear a bag. But he discovered this tea and has been drinking it every day and hasn't had any problems since. My boyfriend doesn't drink tea but I found capsules for him and he takes two a day along with the Green Barley Grass (two a day 500 mg each) and he swears this changed his life. He hasn't been sick since December of '13. We do not run out of the Pau D' Arco or Green Barley Grass anymore.
Are you sure this is safe? I also took barley pills after reading your comment. At first I felt relief from my symptoms for the whole month. I can take any food I want. But then when I increased the dosage to 4 pills every meal I developed urticaria and keratosis pilaris. I'm also taking some blackstrap molasses, baking soda, chlorella, and Apple Cider Vinegar pills. I started to take Blackstrap Molasses and Apple Cider Vinegar pills almost 2 weeks ago. I don't know what's happening. Kindly enlighten me. I read somewhere that barley is gluten but the pills I'm taking are gluten free. The brand I'm taking is pines barley grass. USDA organic and gluten free. When I also take some Apple Cider Vinegar pills, my body starts to itch. I can't get any relief from antihistamines. The only thing that helped me lessen my hives is vitamin a. I'm also now taking flaxseed oil. I stopped taking Apple Cider Vinegar pills, blackstrap molasses and barley. I don't know if I'm going to stop taking chlorella. I'm taking chlorella because of my problem with my hormones and hyperthyroidism for one year on and off. I can testify that chlorella made my thyroid back to normal. It is almost a week since I developed urticaria. It's rainy season in our country I don't know if it has connections. There are a lot of small insects too and mosquitos. Maybe it's an infection in the blood or hexheimer's?
I have been using just the Pau D'Arco for 3 months now and my Crohn's is all but gone. Thank you for the advise. I did not try the barley after looking up the side effects.
Be careful with barley. It made my condition much worse. Now I have totally intolerance in every food I eat. I'll try pau d' arco
What are the side effects you found out about barley? Would you share it with us?
I would like to know how much of the Pau D Arco tea have you been drinking daily. What strength? I started taking it today.
(Ten Mile , Tn.)
HI U EMROL, , , , , , , , , , , ,
My only contribution to this thread is that I take 20 Barley Leaf pills a day as part of Bill Henderson's modification to the Budwig cancer protocol. Supposedly the Barley leaf contains some 3000 enzymes, more than any other plant.
I want to encourage all that have cancer to watch Ty Bollinger's natural cancer cures starting Tuesday night. The URL is as follows.
For most, it will be mind boggling. You will learn that cancer has been naturally cured for some 70 years in many ways , and just how corrupt our medical folks are.
I have two reasons I raise my own food. First it is more heathy than what I can buy in the stores. Second, soon it will be my only source of food.
Life is just fixing to get about as interesting as we can stand. You fill in the blanks.
Hi!! I bought Pau D'arco capsules. The ones that are really dark green. I have Crohns. Can you tell me when and how does he take them? With food? I read it can increase bleeding, so I'm kind of scared. Do you know how does the Pau D'arco work? I've had Crohns since I was 7 and when I was 17 I had part of my distal ileum and part of my descending colon resected :(. I'm using humira and its kind of not working anymore
I am not sure that Pau D'arco capsules will work. That herb needs a good bit of heat and time to draw out the healing properties from the bark. When I have used it, I have steeped the bark on low heat for about an hour.
You mentioned curcumin in another post. Personally, I think regular turmeric is better. Curcumin is only part of what is in turmeric.
Have you tried slippery elm bark? It is very gentle and healing to the digestive tract. Milk Kefir would be another thing to look into for healing.
Also, have you read, "The Maker's Diet?" The author cured himself of Chrohn's with diet.
I hope you fine some solutions to give you relief!
~Mama to Many~
In regard to Pao d Arco; it is an amazing herb and has healed my daughter's irritated eyes when she places a warm tea bag on her eye externally and lets it soak. It has helped me with my lupus as well as immune support. Another herbal combination that could help Chrone's is the Anti-bio or Immune Support put out by Crystal Star. It has helped my fibromyaglia and lupus, which has affected joints, nerves, muscles in my body along with my bowels being affected. It has relieved my symptoms.
All in know is that my dog had this huge tumor on his neck. I could not afford to have it seen about. I read up on tumors & after a month of one capsule a day that tumor shrunk & disappeared & never came back.
If it cures a tumor I think it would help heal crohns. It has many uses.
Every one is different, so use your discretion.
Are you talking about Pau d'arco or the barley grass? What exactly did you give to your dog? Thank you
Hi Kelly! When do you take Pau, before or after meal? Thanks so much!
Barley Grass, Slippery Elm
I had Crohn's Disease 20 years and could not get well. The last flare up I was going to the Dr twice a day to get predisone in my veins and it was not working. This flare up lasted about 4 months. I learned about Barley Grass(capsules) so I took it and the bleeding stopped soon after. I continued to take barley grass and vitamins and later learned about Slippery Elm (herb) also.These herbs and vitamins healed me of this horrible flare up and I have not had another flare up since then. That was 12 years ago. Before this I flared up every year. I stopped drinking milk and caffeine (I drink soy milk). I am sharing this so people suffering with Crohns can read about these herbs. I give God the glory for this. I had prayed so earnestly for help with this horrible disease.
While you were taking the barley grass and slippery elm, were you on any other medications that you took at the same time? If so what were they? Thank you
(New Iberia, La)
I had been on meds for flare ups of Crohn'sfor many years. I had bad side effects from the meds so when I started taking the Barley Grass I was not on any prescriptions. I haven't taken any meds since 1997 and do not have any problems with my colon. I avoid caffeine and cows milk. I also took acidophilus. Please read about the benefits of barley grass. I took capsules instead of powder I pray you get well. Thank you. Macky
I also took barley but made my condition worse. At first I felt relief but after a month, I feel bloated. I had itches and hives. I also had blepharitis and eczema. I only took barley and Apple Cider Vinegar so I think I got this from barley.
Hi your article was really helpful my husband is also suffering from crohn and I know flare ups are so horrible. In this disease he is also on some steroids - its part of treatment. Just wanted to know could you please tell me when and how much barley capsule you take in day with slippery elm herb thank you.
At the time, I think I took 6 barley grass by Natures Way. I also took acidophilus then added zinc. I didn't learn about Slippery Elm til later.
I pray your husband gets well from this. I drink Almond milk now instead of soy.
Crohn's can be cured with colloidal silver. It worked for my friend. Go to notmilk.org and see the article on Crohn's and milk. Studies prove that Crohn's is caused by the tuberculosis virus from cows that have it. If you drink milk from cows that have TB it can cause Crohn's. Studies also show that it is curable with an antibiotic. Colloidal silver is a natural antibiotic available at any health food store and it won't give you a yeast infection since it only kills the bad bacteria, not the good.
Hi...I have been using Colloidal Silver for about 20 years . I am not a medical doctor, but have read it destroys both good and bad bacteria. That said, it can leave the intestinal lining open to attack from bad bacteria without enough good bacteria to help. Another source recommended using Kefir to rebuild good bacteria and protect the lining of the intestine. It makes sense and I have found it helps reduce diarrhea. I make my own from the Kefir grains. Maybe a thought for some to try?
Dangers of Bacteria in Milk
How many times have we heard it said "drink your milk, it's good for you ". Our mothers said it, our doctors said it, television commercials said it even our schools said it. we fill our children's bellies at nearly every meal and insist that they drink up. you need the calcium to grow strong bones we tell them. but what we don't tell our children is the hidden danger that may be lying in every drop of the milk we so highly trust.
Cattle have an infectious disease called Johnes that produces horrible bloody lesions in the intestines. These lesions swell shut and frequently interfere with passage of stools. The pain is agonizing. The diarrhea never ending. Well, that pretty much sounds like Crohn's disease in humans.
After extensive scientific analysis researchers have found the organism mycobacterium avium paratuburculosis causes the same bloody lesions in cattle as it does in humans. Http://www.Crohn's.org/ see also notmilk.com/dr greger/Crohn's
So what it the problem? Milk gets pasteurized right? Well, consider this before you drink another drop. The USDA standards for milk pasteurization require the milk to be warmed to 165 degrees for a mere 15 seconds. Researchers working with the map bacteria have found that mycobacterium avium paratuburculosis can easily withstand 194 degrees for one minute. It is one of the highest heat tolerant organisms known. In other words, it goes right through the pasteurization process unscathed to be poured out intact right on top of your cereal.
There is a dramatic rise in intestinal disorders worldwide including Crohn's in most countries where they accept USDA guidelines for milk pasteurization. However, in India they drink huge amounts of milk but have low incidence of Crohn's. What could be the difference? They boil their milk for more than 1 minute, we don't.
So if we are being exposed to a dangerous mycobacterium why don'/t we all get sick? The answer to that would be the strength of our immune system and the presence of good bacteria continually fighting against it.
The scientific community treats Crohn's disease by giving antibiotics like candy and trying to reduce inflammation with steroidal anti-inflammatory. This avenue of approach is like putting gasoline on a fire. Map bacteria are intracellular organisms (mycoplasma) that feed off of preformed sterols. They actually get a break when you take ineffective antibiotics which serve to kill off their enemies the good beneficial bacteria in the intestines.
So what do you do with this bug to get rid of it? You work with the immune system not against it. And you take specific forms of bacteria that once were commonly found in the soil. You kill off the map with friendly bacteria of rare species.
A young man named Jordan Rubin once was a very healthy young man in the prime of life. After developing Crohn's disease at age 19, he lost more than half his body weight. He became bed ridden suffering excruciating agony from bloody intestines, excreting diarrhea so frequently he could seldom ever sleep. He looked like a walking skeleton and grew close to death actually praying to god to take him home or help him find the answer.
That was his moment of discovery. he found a scientific article about a research group working with rare types of soil organisms that once had been present in crop soils but now are long gone. These bacteria when tested exhibited types of antibacterial compounds lethal to map.
Today Jordan Rubin has fully recovered from Crohn's and become a doctor. He has developed his recipe of soil organisms into a probiotic freely available at any health food store. You can read about his journey from disease back to wellness in his book "patient, heal thyself".
Sorry, I won't mention the name of the probiotic as it might be considered spam. But realize soil organisms are indeed our primal defensive system
Now, one more bit of advice on healing Crohn's disease. A chemical exists which has an affinity for killing mycoplasma intracellular organisms, such as map and mycoplasma fermentans, both extremely hard to kill. It's not actually an antibiotic drug, It's gallium nitrate, a solution of gallium metal. Look up George Eby research/Crohn's disease. This is a new method of dealing with Crohn's you might not see for many years in the future.
(St Lazare, Quebec)
Do you have any experience with soil based organisms? Or gallium nitrate?
Stopping GMO foods will do wonders for Crohn's Disease. The gmo foods are treated as foriegn bodies and our body starts the immune response. Milk Kefir is the best for any type of Auto Immune disease. Good Health
My wife has IBS/Crohn's and after book after book and days on the internet and a doctor that wanted to put her on a prescription we finally came to find the chief culprits in her case. After reading a book published by a doctor who suffered from Crohn's we eliminated several things from her diet and added some items. Anything with high fructose corn syrup was out, citrus fruits were reduced, sugar consumption was reduced , herbal teas for the tummy are used and an on the shelf digestive product with dicalcium phosphate and magnesium sterate are used. This so far has been working. But the corn syrup is a major player, it's in everything in America. We try to buy European when possible they at least use sugarn their cookies, jam, etc.
Try reading the book "Reversing the vicious cycle" by Elaine Gottschall. I follow a vegan version of the diet mentioned in this book. Although not in remission at the moment, turmeric, mineral drops, probiotics and the most magical thing, boiled cabbage (about 7 minutes) in a vegan broth and eat before I go to bed. The boiled cabbage makes most (95%) of my pain go away!!
Personally, I drink broth, but he says that he eats it, so I surmise he means to eat the cooked cabbage leaves. IDK whether there's any reason to pour out the broth, or if it's better to drink it. He doesn't say.
Crohn's - DMSO gel & Manuka Honey
Hi: Try applying DMSO gel on your lower tummy (colon area) 2x a day. It helps to rid of inflammation, and restore healthier bowels. It helps with reduction of pain after 1 hour. Manuka honey also helps heal wounds in the bowels and definitely helped me with reducing acute pain. I take 1/2 tspn on empty stomach 2x a day.
Lastly, do not over look proper food combining. It is very important.
Crohn's Disease relief/cure. A lady I know had Crohn's in the past and I asked her about it because I was having stomach problems and my father had died from Crohn's. She said she had suffered and tried many different medicines with no success. She read about this remedy and it worked... Take 4 quality fish oil tablets before bed and 4 after waking up in the morning. She said she stopped taking them about 8 months later.
A couple of years ago, I was diagnosed with colitis. I went to the doctor constantly with diarherra, pus and bleeding. I was having pain after every meal and at one point, was losing a pound a day. My doctor told me that I would have to stay on a diet of soft foods. I found a book on the internet called "Crohns and Colitis". The author talked about eating a strict fruit diet. I starting doing it and the symptoms that I had been suffering from for over a year left me. The enzymes in the fruit made all of the difference.
(Stanton, Ca, USA)
Fruit smoothies works as good as prednisone, though the prednisone has to be tapered of gradually. Without fruit smoothies, flare ups occurred even with prednisone and asacol. Not a cure, but a great help. Lets put it this way, I am NOT on prednisone (praise the Almighty), which is really MORE than I can ask for. One cup; made from all fresh fruit with 1/2 tsp of soy protein (from the powder mix). BTW, I also gave up black tea, except if constipated, and reduced all sweets except when I go on a binge. Also, DARK Chocolate in VERY SMALL quantities (an ounce?) helps shut off any symptoms of GERD.
My husband has Crohn's, and has had surgery once already.. All his pain and diarrhea has come back. Food does not digest comes straight out.. If anyone can please help!
There are some stories of success with herbs like slippery elm, barley and turmeric here.
Activated Charcoal Powder may be of help also. There is a story on the charcoalremedies.com website of a man drinking charcoal water daily for his Crohn's Disease with great success.
I hope you find a good solution for him soon.
~Mama to Many~
Jordan Rubin has a book that helps! He's the creator of the Garden of Life products. Please check it out... You'll thank yourself later. I suffered with it for a few years. I applied the principles in his book. It took months to see results, but the doctor dropped the diagnosis from Crohn's to IBS. I no longer need my medication. There are many other testimonials. Give it a try! "Restoring Your Digestive Health" (I think that's the name of it..)
I posted in the past as I was diagnosed with Ulcerative Colitis. About a year later it was discovered I had Crohn's. I did the low residue diet with a tablespoon of Black Strap Molasses, and it brought me out in the past. I have been going on two months now and have lost a job (thanks Immodium with the "narcotic like effects") as a call center representative, and could not hold my head together.
This particular flare up I have tried turmeric with black pepper and oregano infusions to get rid of bacteria, coconut water famous for stopping the runs, pomegranate juice which is supposed to stop the "D", Pentasa, Asacol, glorious diet foods from Whole Foods "whole paycheck" that were supposed to bring remission (SCD), pepto bismol tablet and liquid, the famous anomaly coconut macaroons, blackberry brandy (the real stuff, not flavored), black tea, the bratt diet, caltrate, and finally, bentonite clay.
I was a wreck when I was on Immodium AD extra strength (my mind was not where my body was on the phones) as I found out when I had told a potential client wrong information on a call that was audited, and about a third into my shift, something was urging pretty severely to get out and it was not gas. I took my break a little early and ran to the nearest restroom which felt about a mile away in my dress shoes. I prepared some black tea because that might help calm things down a bit and had a cigarette. No avail. For lunch I had strange stares because who brings in gatorade and a couple of bouillon cubes? My mother died amidst all of this, and I still managed to catch a flight, play violin at her memorial service with the aid of goodnights. This is just not the way to live.
I on the good side of things dropped about 25 pounds (sexy... Lol). All of this brought me to an idea that I had when I was 15 (28 years ago) when I had a flu bug and the urgency was terrible. I had an herbalist tell me to go home, and take 1/4 teaspoon (and no more) of nutmeg with 4 oz of warm water, and don't eat for an hour and a half. That cleaned up the problem, and no worries after that.
All these years later I have this flare up, and 2 months after the start 1/2 a teaspoon of nutmeg, and later that evening I had a Jamba juice Pomegranate pick me up with their yogurt (which is not good as well as a test), and a 12 inch steak and cheese with spinach, black olives, and chipolte sauce (gentle test) on Italian Herbs and cheese from subway; things are normal this morning (so far). I found that for whatever reason nutmeg is a cleanser of the digestive tract, and an effective astringent as well it will bind your intestinal tract. You DO NOT want to take more than 4 tablespoons in a day however as it will make you very ill, and usually has bad effects on your body such as possible hallucinations (not likely but has been documented as a possible side effect), and possibly death (most likely not, but possible). If you are sensitive to nutmeg or have reactions to apple pie, or other common recipes that contain nutmeg, sorry this course is not for you.
I had also looked in to coconut oil for a few days after things are back into swing and you need to normalize the bowel, and have come up with a decent brand of coconut oil on amazon from Jarrow (it really tastes like coconut, and very fragrant).
In my research, experience with doctors, and self experience have found that I have been my best barometer of success with this ailment. It matters not necessarily what you eat because if you are going to have a resection, surgery, or other procedure, it will happen anyway. I had Solu-Medrol followed by a taper Rx of Prednisone which I forced myself off of sooner than prescribed because walking a parking lot felt like walking a football field, and the jitters and palpitations were terrible, and when I ran out of Pentasa and tried to get assistance from Shirecares.com they were like dealing with the jaws of Satan. All I can say is I am grateful I have no adverse reactions to nutmeg, and it works.
Another thing of note is that Crohn's sufferers are commonly deficient in vitamins b-12, and d3, and some cases iron. It is important in addition to your multivitamins you supplement them with either b-12 or b complex, d3, and if you have a lot of bleeding or are anemic; iron. If for some reason you are unable to consume iron supplements, liver (usually beef) is a good starting point. Also if you are iron deficient Do NOT take pomegranate supplements or juice.
I am not a doctor, though I have visited many. I ask a lot of questions, and make sure I don't leave until I get answers. Also I have found that if you are gluten intolerant, you may have celiac disease. Other topics of interest to explore are Colitis (any form), c-diff, and h-pylori. If the diagnosis is Crohn's, make sure you review cat scans, x-rays or biopsies with your physician thoroughly, and write down the questions you intend on asking before your visit. Do not leave until you have all of your questions answered.
(Fort Lauderdale, Fl)
This has been trying and so far the flare ups have pretty much stopped. Through all of this I have remained pretty well off; last 4 days symptom free. My method of cure is 10,000 iu vitamin d3 daily with 1,000 mg vitamin c, 1200 mg fish oil, a good multivitamin such as men's health one a day, 2 caps of cayenne pepper 450 mg (do not take if you are allergic to capsicum and if you are uncomfortable with the idea) with a vitamin b complex taken every other day (the b is the one every other day). The cayenne was added after taking 2 500 mg black walnut hull capsules twice a day for 22 days to detox the intestines. After the black walnut caps were completed I felt a lot less desire to imbibe alcohol... no physical pain or anything, just less desire. After adding cayenne I have noticed my circulation getting better, my appetite better controlled, and a lot more active.
I am the closest I have ever been to feeling like I beat this thing without having to restrict my diet. Things are coming out normal, and I am happy again. Another treat I found that is very good for you along the way is mulberry juice (no specific quantity required... I could drink a liter of the stuff and not bat an eye). A good source for this is vitacost; they are inexpensive and have a good reputation. As far as the supplements you can pretty much get them at the dollar store and not spend a ton. I order cayenne on line through Walmart. I have not had a resection or surgery for the Crohn's as of yet.
Kombucha and probiotics for Crohn's Disease. I had to have my colon, and anus removed with emergency surgery due to untreated chronic diarrhea(mutating fungus in the colon). After surgery, it started to attack my small intestine. It could have been prevented by consuming Kombucha. I make my Kombucha with apple juice (frozen purified water) no extra sugar, plus add 1 probiotic capsule the first 2 batches. It is very acidic, so I mix 1fl. oz. with 15 oz. water. Drink 3 times a day forever, and say goodbye to medical doctor!
Hi all! I wanted to write in with a discovery of mine; Kratom for diarrhea symptoms.
I am 24 years old, was diagnosed at 8 and have been in "remission" since a small bowel resection since I was 17. I haven't had any flare-ups since then, but I have had to deal with constant diarrhea and the occasional bout of weirdness that my doctors don't know how to deal with. (for example, over the course of several months last year somehow I lost 2/3 of my total blood volume, zero pain, zero injuries, zero idea how it happened*. Isn't this disease full of wonderful surprises?)
I stumbled across Kratom while looking for natural cures for depression. Kratom is a plant from Southeast Asia that has been used as a medicine for centuries.
After a little trial and error with different varieties, I eventually discovered that taking 2 tablespoons a day of kratom powder COMPLETELY CURED my diarrhea. I think it's helped with my depression as well, though that might just be because now I can actually function like a real person. I usually take it in the mornings with fruit juice (f you get powder don't try and take it with water, it tastes disgusting and seems much harder to swallow). I also take it with breakfast, but haven't noticed anything bad taking it on an empty stomach.
From what I've read, dosage can vary a lot from person to person taking into account the strength of the variety you're using and body weight (I'm 120 lbs), things like that. I did take too much once, though I only experienced some nausea that cleared up after a few hours.
I will add that if you search for Kratom on the web, you're likely to come across a few scare articles about it. From what I've read and experienced, this is complete bunk.
*Also, I don't know if kratom had anything to do with this, but the three months I started taking it were also the three months after my weird blood volume incident. I had received a transfusion at the hospital, which raised my number from a 4 to an 8 (I don't know what they call this scale, but normal blood volume is between 16 and 12). Three months after the transfusion, I got some labs to measure it again, and my lab work came back great (at a 12). My Hematologist was ecstatic, she was expecting my numbers to be dropping again. Kratom was the only supplement I added.
(Greensboro, North Carolina)
Blood volume came back great again, this time at a 13.4!