I have had crest for 50yr. And have suffered with raynaud's. I didn't have the help that is out there. I had an old fashioned Dr. who put me on time release niacin, 100 mg up to 5 times a day, vitamin E 1000 and multi B complex. I took this every day (365) as my symptoms decreased after 5 yrs (could be different for others)I only took it in the winter. Now I can go without it. I only start if I get bad in the winter till it stops. But if you need a fast warm up, Just vacuum for a long time I had the cleanest carpet in town.
Dear Shelly: Yes, the possibility exists that CREST can be treated similarly by using the LUPUS treatment but there are differences in the approach due to the fact that the organism residing in CREST are somewhat different from those of LUPUS. However the reason for its similarity in some ways have much to do with raising your immune system in both cases. CREST is a bit more complicated than lupus.
Once difference in CREST and lupus is of academic one, both CREST and LUPUS is due to a tiny pathogenic bug inside your body. While CREST is very much like a nanobacteria, lupus is much more closer to those of the mycoplasma, where it exists similarly closer to fungus and bacteria in its environment.
The reason why I know CREST is due to nanobacteria is the calcium deposits it creates in some specific conditions of CREST, called calcinosis. This is a big clue since nanobacteria tends create calcium as a protective shells leaving the deposits and destroying or hardening of tissues as a way to multiply.
You might ask how to kill the nanobacteria? A nanobacteria exists in greater numbers in presence of heavy metals, especially free radical heavy metals. An easy way to find out is to do a heavy metals testing using Dithizone system. Metals in high amounts have a tendency to cause the destruction of collagen through a maillard reaction in presence of something such as iron, for example as a catalyst to sugar and proteins. The best way out, if this is so is chelation, or oral disodium EDTA mixed in all your drinking water. So my own personal estimate, when the time I was tested for positive heavy metal copper in my urine, was about between 1/4-1/2 teaspoon of disodium EDTA to one liter of water. Taking plenty of chinese parsley will also help chelate out heavy metals. Eating granulated lecithin 2 tablespoon with every meal long with food will also reduce the buildup. Taking baths in white vinegar will also remove the calcium buildup, killing the nanobacteria. In this instance, nanobacteria that is, I think taking apple cider vinegar would help, with added baking soda perhaps to reduce the problems of CREST as acetates, chelation, and alkalzing do have a tendency to dissolve microscopic calcium shells that nanobacteria build up. Most importantly is to take magnesium chloride (or citrate) and zinc acetate (or chloride, or citrate form) to reduce the calcium buildup as magnesium is antagonistic to calcium and zinc to increase immune systems against the stealth nanobacteria. Alkalizing certainly helps such as taking 1/4 teaspoon baking soda 1/4 teaspoon citric acid with 1/2 glass water taken once before sleep and once in morning also. Licorice extract also helps in killing of the nanobacteria also.
This is what I would do different from lupus, but you can still use that, along with this added information to help with CREST.
Can food grade hydrogen peroxide help in crest syndrome?
Niacin, Vitamin E
Suffering several yrs from Crest Disease... Best help I have found.. Niacin and Vit E. They warm your cold extremities but Vit E keeps you from forming blood clots in those small veins
Oil Pulling, Magnesium Oil
I have been diagnosed with this rare disease "CREST". I have been looking for cures for some time now. Reynauds seems to be the worst part of it. I am going to try Oil Pulling and the magnesium I read up the list a few posts before this one! Thanks
Niacin, Vitamin E
Hello, I realize your post is several years old, but I am recently diagnosed with CREST (last January 2016), but I am hoping that this may reach you. I am wondering if there are any other methods/supplements that you would recommend to help with symptoms? I eat organically and non-processed foods and have just begun using essential oils. So, I am hesitant to be engulfed in prescription medications with all of their side effects. I am interested in any holistic methods you may have to share.
Disodium EDTA, Baths in White Vinegar
My question is regarding CREST syndrome which is also an autoimmune disease. Would you treat it the same as Lupus? Thanks! P.S. This website is a GOD send! Thanks for all the time you put into it.
Hello Ted! It was so interesting to read about your theory about the cause of crest, Dr.S have not been very helpful, I have had it for about 14 yrs now, calcinosis is becoming uncomfortable on both elbows, can you give me amounts of epsom salt or white vinegar to be used in baths, also dosages of magnesium chloride, licorice, apple cider vinegar. I am thrilled to know there are treatments out there, that may actually help me. Can crest possibly be cured by using these treatments?
Disodium EDTA, Baths in White Vinegar
Ted, I really enjoyed and appriciate your comments on CREST. I am wondering tho, you say that it is a nanobacteria. Do you have any comments on those out there that say there is no such thing? There are many such as this web site: http://www.drcranton.com/nanobacteria.htm