Apple Cider Vinegar, Baking Soda
★★★★★
God Bless you Ted.
Thank you so much for your help.
Davey D.
(Saskatoon, Saskatchewan)
11/27/2012
(Vancouver Bc., Canada.)
11/27/2012
Hi there Brandon from Saskatoon. The remedy I am using for ACV is 2 tablespoons of Apple Cider Vinegar or a little more because I no longer measure it in a glass. I then add 1/4 teaspoon of baking soda and let it fizz off. I then add a 1/4 glass of flavoued water as I hate the taste of it. I chug it down and that's it. It doesn't matter if it's before or after meals and time of day. It works just the same. My wife likes the fizz so she adds the flavoured water before the baking soda. As I said before do it 5 days a week and then rest for 2 days. I think I was on it for 1 month and then I noticed my pain and depression started to lift. I then discovered that omega 3-6-9 also helps. I wish you well my friend.
(Pakistan.Punjab.Attock.)
08/20/2016
My son is suffring from BMD (Becker Muscular Dystrophy). He is age of 9 years.studying in class 4 th. I have visited all possible hospital in Pakistan for said diease. but Docter said sory' no treatment of this diease at present. Now I found ur clinic, & I do request to you that kindly advise me any suitable medicen for my son. plz note, at present he walks himself & does not use any stick. but not like my other kids. he feels problem in sitting and standing. can't run samoothly. weak in deit. plz help me as soon as possible. regard. Father.
Edgar Cayce Remedies
As everyone who reads my posts on this knows, I am a big believer in Edgar Cayce's remedies, I have been since before I was born, as my mother use to read about him in the 50's and 60's. If I had a child that was born with this unfortunate disease, then I would move to Virginia Beach and be closer to the A. R. E. So that I could research the readings more and talk with their Dr's and hopefully some relief if not a total healing could be had. I know that this is not possible though for most people. However, Cayce did mention in most of his readings - if not in all (I haven't read them all!! ) - that the use of the Wet Cell with some solutions would help almost all afflicted with this disease.
Also he says that the person afflicted should get manipulations along the spine and coccyx area and oil rubs with a lot of different instructions for the types of oils. Peanut oil and Olive oil rubs along the spine and the coccyx area was to be given every night. If you have a handy man then you can make the Wet Cell yourself. Just call the A. R. E. and ask them for the paper that gives instructions for making it. The diet is also important, it should include a well balanced alkaline forming diet.
(VA)
06/21/2024
I was diagnosed with myotonic dystrophy (adult onset) and was going downhill quickly. However after meeting David Atkinson who had been diagnosed with something similar to ALS and hearing his story using the wet cell battery, I did too. Afterwards I switched to the radiac and that has sustained me. I could post the article I wrote about my experience if you'd like.
Also after healing and using the remedies for epilepsy on my daughter I worked for more than 20 years at the Edgar Cayce Library sharing his remedies. I now volunteer at the call center. Hope others think about this opportunity.
06/23/2024
Thank you for your post. Yes, please post the article!
(Cedar Rapids)
11/21/2025
(Kentucky)
01/14/2026
I know this may be a long shot since this was posted a while ago but I'd like more information from Linda about her experience. I too have Myotonic Dystrophy and have been working diligently to find ways to slow or stop the progression. If not for me, for any of my 5 children that may end up with this. I'd also appreciate any and all information others have gathered with experiences of things that helped. Thank you
(San Diego)
11/22/2025
Hi Carla,
A Dr. Coimbra in Brazil has developed a protocol for MS using high dose Vit. D that has helped thousands. Do a search for Coimbro Protocol for details. Good luck!
Hi Chad,
I'm sure you are well aware that there is no cure for Myotonic Dystrophy and studies are limited. This is what the Myotonic Dystrophy Foundation (MDF) says about the disease :
- No Cure, Focus on Management: DM is progressive, but managing symptoms is crucial for well-being.
- Symptomatic Treatments: These help manage issues like muscle weakness, heart problems, and breathing difficulties.
- Proactive Care: Early intervention and consistent care (cardiology, respiratory, physical therapy) can prevent or lessen severe complications.
- Quality of Life: The goal of current care is to maintain function, improve daily living, and support the community.
- Research & Advocacy: MDF actively supports research for future cures and advocates for better access to care and therapies.
So, as you can see treatment is fairly limited.
Six supplements you can look into for Myotonic Dystrophy are :
1. Vitamin D - Often deficient with a broad spectrum of useful activities while having synergy with melatonin. Muscle protective effects.
2. Astaxanthin - Muscle supportive and potent anti inflammatory. Mitochondria antioxidant and promotes mitochondrial biogenesis as does melatonin. Muscle protective effects.
3. Inulin - For gut dysbiosis typically seen in this disease and increases short chain fatty acids (SCFAs) which are decreased in this disease. Anti inflammatory effects as well as muscle protective effects.
4. Melatonin - In topical and oral forms. Good for muscle and gut integrity and for antifibrotic effects. Muscle protective effects. I describe how to make melatonin lotion here :
https://www.earthclinic.com/supplements/melatonin-lotion.html
5. Glycine - Promotes muscle regeneration and like melatonin, has antifibrotic effects while working against muscle wasting. Muscle protective effects.
6. Berberine - Work's against insulin resistance which is commonly seen in myotonic dystrophy, anti inflammatory and antifibrotic. Potent antioxidant. Muscle protective effects.
This group of supplements have direct and indirect uses as well as synergy for Myotonic Dystrophy and may be beneficial for potentially slowing progression and reducing disease severity.
Art
(Kentucky)
04/14/2026
Art,
Thank you very much. I forgot I posted this last winter and didn't see your response. I have recently added many of the supplements that you suggested. I actually took a list of highly recommended supplements from Dr. Mercola(for overall general health), and combined it with a list from recommended supplements from Life Extension(who has a good article about muscular dystrophy and supplements specific for this disease), and lastly I added a few things suggested by DoctorYourself.com. I bought everything I could in powder form and mixed them together for a daily dose. It's still a little early but I did feel better overall. I use to have issues with taking supplements but months ago I began taking triphala nightly and that has helped to keep the bowels moving on a regular basis which in tern allowed me to detox better and more regularly. So I've been able to tolerate more supplements.
I did add melatonin initially at a fairly high dose. It did help with sleep. I took it for several weeks but got worried as some say you shouldn't take ti daily like that. Surprisingly I'm still sleeping well. If it was legal, I'd love to be able to buy and microdose GHB as I think it would help. What advantage is the cream you mentioned?
I'll try better to keep in touch here and check back regularly. I'd love to hear from others with muscular dystrophy or similar conditions and here how you are dealing with it.
Thanks
Hi Chad,
Wow, that was 3 months ago, so I had to go back and read the thread again to get back up to speed.
First, one of the supplements I had mentioned, Glycine is useful, but magnesium is also useful. So the best choice would be to use magnesium glycinate because it has both a bioavailable form of magnesium + a good dose of glycine if you take it at the RDA for elemental magnesium at a minimum. For a man, because various products have different amounts of magnesium, this will generally require 4 to 5 capsules or tablets. I generally recommend NOW brand Magnesium Glycinate because testing has confirmed that it has at least the amount of magnesium listed on the label. Here is what AI has to say about Magnesium Glycinate for muscles :
' Magnesium glycinate can support dystrophic muscles by promoting muscle relaxation, reducing cramping, and enhancing recovery. It works by regulating calcium levels to alleviate tension and potentially improving regeneration in damaged muscle fibers. It may assist in alleviating cramps and mitigating cellular energy issues related to muscular fatigue. '
Here is a link to the product :
Further if you are experiencing muscle cramping which is quite common in myotonic dystrophy (MD), you can also consider mag oil spray which can very quickly offer muscle cramping relief when sprayed on and rubbed in. Here is a typical mag oil spray product :
As regards melatonin I have taken it daily at over 100 mg for three years. I'm not suggesting anyone else do that, but that is what I have done with no problem.
There are a couple of reason's for melatonin lotion. Oral melatonin is essentially done in the body within 5 hours. Melatonin lotion or gel, on the other hand is slowly absorbed into the stratum corneum layers and slowly released into the blood over a period of 24 hours which extends the time that melatonin can be active in your system. Applying melatonin lotion topically can also offer some pain relief and applying it topically also allows you to reach much higher tissue levels of melatonin at the site of application. Application to sore MD muscles may offer some modest pain relief while allowing relatively high local melatonin levels to be reached at the muscle in question. This what AI briefly has to say about melatonin and muscle tissue :
' Melatonin shows promise in mitigating dystrophic muscle pathology by reducing oxidative stress, lowering inflammation and improving muscle function. Studies in dystrophic mice (mdx) and models of muscle injury show it reduces necrosis, improves contractile function, and enhances regeneration. '
Keep us posted on how you make out.
Art
(South Central KY)
04/20/2026
Appreciate hearing from you again Art! I notice you write very well and I was worried that your first post might be AI generated, But I think you're real now, lol. I've had a lot of this recently on FB and have seen articles that up to 50% of everything seen on social media is fake. So it can be difficult to navigate sometimes.
I reread your initial list of suggestions and realized that there were several that I am not familiar with and will be looking into and studying those soon. Really appreciate that. I spend sometimes several hours a day reading and studying such things and enjoy new things to look into.
I really like glycine. It's my favorite out of the list of nearly 20 things I'm currently taking. I take it both in the morning with all the powders I mixed together(see my earlier post) and again at night right before bed as it both sweetens my triphala I take at night and helps relax the muscles and so helps with sleep.
NOW has always been my brand of choice and aside from the powders I still take pills from them but I was recently informed that they were bought out by a big company and are no longer family owned. Not much has changed with their products but some worry that quality may slip.
I'll continue to post on here with updates from time to time. I was kicked off of two myotonic dystrophy groups on FB for asking questions and having that audacity to make even the most slightest suggestions of things that might help. I was even careful to keep it within what I thought were the acceptable norms like diet, nutrition, and mentioned a few vitamins. My first strike against me was when I mentioned to someone to look into fiber as they also were having issues with constipation(common with this disease). They took that comment down. And later when I first learned that these group of diseases are called dystrophies because it was from a lack of nutrition and mentioned in a post to the group I again was silenced for talking about "old science". What? You mean to tell me that every health professional and scientist that first studied the disease for years had no idea what they were talking about? I understood that things could have advanced since then and maybe their initial understanding has evolved but to not even be allowed to mention that made it obvious I was going to get no where posting ideas on those groups.
I'd like to encourage everyone on here to consider that the modern medicine often offers no hope. This is particularly true when it comes to myotonic dystrophy and muscular dystrophy in general since they don't hide the fact that they have nothing to offer. They flat out will tell you there is nothing you can do but slowly get worse and die and they are happy to stand by and help you through that scenario and take your money as they do so. When I first was confronted with this when my mom was first diagnosed it boggled my mind how anyone would go to someone for help and be told there is no cure, nothing they can offer them, and nothing that they themselves can do but just accept it and we keep going back to that person rather than look elsewhere? That's what my mom did. She believed them so much that she lost her fighting spirit and did nothing to see what might help and I watched her get worse and eventually die as I did two of my uncles. So when I was diagnosed I figured that it's possible that they may be right but I'll try anyhow since I have nothing to loose and everything to gain. And I slowly saw that I could at least make myself feel better even if I keep getting worse. Started with diet change(no white flour, white sugar, seed oils, and ate lots of meats and only organic produce(farmers markets and then grew ourselves), a couple of fasts and cleanses(chlorine dioxide/MMS gave me the biggest boost and renewed hope), and started walking and very light(like embarrassing easy) exercises. And low and behold I felt better! Then I wondered why the doctors didn't mention this very obvious thing would at the very least help. Later when I asked them they had the deer in the headlight look and couldn't comment(because they no nothing about the basic beginnings of health; your diet. And later when I sought a nutritionist at the local hospital which the doctor only set it up after a lot of pressure on my part and arrived to find a 300lb "professional"(albeit sweet) who literally wobbled out to see me do to swelling in her legs from diabetes(true story).
So start slow. And realize it took you years to get in poor health and it might take you the same amount of time to get you out of it. You may initially feel stagnant, like your're not getting any worse but now better either. Keep going. And then you may feel ever so slightly better and maybe just for a few hours or maybe a day. Keep going. Then you may feel that the last few weeks have been pretty good. Keep going and be warned that as you move forward there will be hills to cross and not every body is the same and what works for some may not work for you. Keep going. Try everything if it's within your means and overall is considered safe. Try things outside the norm just for fun like infrared sauna(used for centuries and many gyms still have them and blankets can be bought online), red light therapy, drink tons of water(reverse osmosis, consider zeta water), etc. Whatever you hear think about adding it to the things you're already doing because it's not going to be just one pill or one change but each will add something that you can't feel or perceive at first but in combination will eventually lead to feeling better. I often don't know which supplement or added device has helped but after adding them altogether I feel better and as much as I'd like to take things in and out to see what it is that's working the best(and I wasted a lot of time trying that) I found the best I could do is just, keep going!
Sorry long winded here and if you're still with me Art any suggestions along the way would be great. I'm assuming you are a learned man in much of this. May I ask how you have come to understand so much and why you are so gracious to take time to volunteer that information? Just want you to know that it's appreciated and will long help anyone that comes here.
Chad
Thank you for saying so, Chad.
I read a lot of studies and seem to retain certain information that helps me to research in a better way than I was able to in years gone by. I also try to put ideas together to help choose appropriate supplements for specific health issues. I have been working on something I refer to as the Positive Health Loop (PHL) for over 5 years now and it seems to be starting to come together in a meaningful way for health in general, but I still have a ways to go with it and hope to write about it on EC sooner than later.
Why I do it is because I think I was meant to do it, but that is a very subjective question for me to answer and probably not a very clear answer.
Since you like glycine, you might consider using magnesium glycinate at a dose that at least reaches the RDA for men of elemental magnesium because a bioavailable form of magnesium, such as magnesium glycinate, contains both magnesium and glycine at a fairly high dose if you are getting at least the RDA of elemental magnesium. Magnesium Glycinate has a large amount of glycine, but a much lesser magnesium content. So for most products it will require 4 to 5 capsules or pills per day. Here is a link to one that I like:
Note that each tablet only contains 100 mg of elemental magnesium and the RDA for men is 420 mg. So 4 tablets will get you to 400 mg of elemental magnesium and you will have to get the remainder from your food intake. Here is what Google AI has to say about Myotonic Dystrophy and Magnesium Glycinate :
- Reduced Muscle Spasms & Cramps: Magnesium glycinate acts as a natural muscle relaxant by competing with calcium at the neuromuscular junction, which may help "quiet" involuntary muscle contractions.
- Improved Muscle Relaxation: Studies have shown that extracellular magnesium can help reduce myotonia in certain muscle models.
- Better Energy Utilization: By stabilizing the Mg-ATP complex, magnesium supports mitochondrial function, which may help with cellular fatigue.
- Gentle Absorption: Magnesium glycinate is often preferred over other forms (like magnesium oxide) because it is highly bioavailable and less likely to cause digestive issues like diarrhea.
On a somewhat related note, mag oil spray is very good for rapid relief from muscle cramping or stiff or tight muscles. Here is a link to a typical product :
This is what Google AI has to briefly say about NOW brand being sold by the family :
:::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::
' NOW Foods, the well-known manufacturer of natural products and supplements founded in 1968, has never been sold and remains a family-owned and operated company. Despite receiving frequent offers to purchase the company, the Richard family maintains its independence.
Art
(South Central KY)
04/21/2026
Wow, perhaps I was wrong that NOW was sold. I got that information recently from a supplement nutrition store we deliver organic produce to. The manager recently told me that his distributor mentioned it. Thanks for the information!
