Hi ladies, Reading all your stories and suggested remedies has given me some hope.
Since going off the pill just over 1 year ago I have been suffering from constant vaginal pain and discomfort. My symptoms were initially dismissed as chronic thrush, and I took a very long course of anti-fungal meds which did not help. The pain varied from internal (like the stinging you feel when you get soap in your eye) to external where I felt so red and raw aS if all my nerve endings were located on the external part of my vagina.
Pap tests, swabs, full blood and STI checks have all come back negative. I have gone from GP to GYNO to Vaginal Dermatologist. After my own research I prompted the Dermo to consider Vulvodynia and then I was reluctantly prescribed an Antidepressant (Amitriptyline) and a steroid cream to use on the outside when it was bad. Dermo also said it could be a hormone thing since it seems to peak mid cycle, when I'd be ovulating, and suggested trying to have a baby to fix the problem. I left her office feeling very frustrated.
Within days of taking the Antis my symptoms cleared up about 90% and it was only a few days of the month that I would still have minimal discomfort. I thought I was in the clear then I had another flare up. Not wanting to go back to the Dermo I went back to my GYNO. He said its unfortunate that I was misdiagnosed with Chronic Thrush but that Vulvodyniais very common and continued use of the Antis is also common. But I am not depressed and I don't want to be continually taking these meds.
I suggested getting a biopsy to rule out anything else as I am so worried it could be cancer! He said no, that the Dermo would have ordered me to have one if she thought it was necessary.
So I have had a good few months but once again a flare up externally. I am so red and raw and one side of my labia is very swollen and irritated alll around, even near my bottom. I doubt I will be able to get a medical appointment in the next few days but I will try. It does not, and never has through all this, hurt when I have sex, or afterwards. But when I am feeling sore I don't want to have sex and it is affecting me. It is also affecting my lifestyle. I am so conscious not to wear tight pants, or exercise for long as I am easily irritated.
I can't believe from all the web sites and forums that I have read, how common this issue is and how many specialists mis-diagnose it!