Last Modified on Aug 21, 2015
What is Trigeminal Neuralgia?
Trigeminal Neuralgia (TN) is a chronic pain condition of intense pain in the face. Also known as prosopalgia, suicide disease, and fothergill's disease, the pain stems from the trigeminal nerve that sends information from the face to the brain. Mild facial stimulation, from putting on makeup to brushing your teeth, can cause intense pain; it is considered one of the most painful conditions to have. Attacks can start short and mild, but TN can progress to longer and more frequent episodes of pain.
The pain has been described as stabbing electric shocks, burning, pressing, crushing, exploding or shooting pain; and attacks typically affect just one side of the face at a time. The leading theory as to what causes this condition is a compression of the trigeminal nerve by enlarged blood vessels damaging the protective myelin sheath of the nerve. Other causes may be from aneurysms, multiple sclerosis, tumors, or lesions. TN is found more frequently in women over 50.
Cure Trigeminal Nerve Pain
On this page you can find home and folk cures for trigeminal neuralgia and other neuropathy associated pains. Earth Clinic readers have recommended B vitamins, coconut oil, magnesium supplements, and dietary changes to fight trigeminal neuralgia. Let us know if you try any of these remedies; or if you know of a remedy not listed here, feel free to let us know about it.
|B12, Omega 3, Facial Tissue Stimulation||3|
|BETTER BUT NOT CURED (1)||100%|
[BETTER BUT NOT CURED] I have been suffering Trigeminal Neuralgia for the last month, but thinking about it I feel it has been coming on for the last 3-4 months very slowly, with pressure in my ears, eyes and sinus.
I have been having acupuncture in my face neck and head and it has made such a difference. My pain was unbelievable, I wanted to cut off my head. I am also taking Vitamin B5 B1 200mg 4 tablets 2 x daily of each. Also Nervagesic (natural) by Mediherb 4 x 2 daily. The B5 is called Pantothenic Acid these all help to calm your nerve's and ease stress while building back nerve covering.
My natural health care professionals told me to de-stress as much as I can, rest and keep taking vitamins including Magnesium in good quantities.
Use heat packs, that is very soothing, stay out of the heat and direct sunlight on your face. If you are suffering with the pain in your teeth, avoid chewing on that side. Eat soft food or soup that needs little or no chewing. Also use a toothpaste for sensitive teeth and brush your teeth up to 5 times a day. This helped ease my pain.
Hope this has helped. I am still suffering but nowhere near as much as I was. Each day the pain seems to lessen. There is hope just hang in there and never stop asking question of people that know what they are talking about. Especially those who have had the same condition.
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Bay Shore, New York
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Cathedral City, Ca
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There is an interesting scientific paper in "Medical Hypothesis" 2002 Nov, 59 (5): Issue: "Are latent immediate-early genes of herpes-simplex virus-1 essential in causing trigeminal neuralgia. " Source: Biology Department, Medical University Syracuse NY. "Abstract: The etiology and pathogenesis of major trigeminal neuralgia remain largely unknown, but are believed to result from an irritative lesion near the semilunar ganglion. We suggest that its primary cause is a single, active DNA sequence in the persistent but non-integrated genome of latent herpes simplex virus type 1 commonly observed in a few infected A-delta nerve fibers in the cheek. Facial pain occurs as a result of herpes virus reactivation and when supplies of neurotrophins controlling normal transport functions of axolemmal ion chanels become depleted."
The paper gives a theory as to causation althought not a remedy. My suggestion is as follows which will kill viruses of all kinds.
A person who is seeing cases of mono, ear infections, sinus infections, cluster headaches, migraines and Bells Palsy might see this type of TN infection also. I gave my own personal experience in the Earth Clinic Bells Palsy thread. I futher hypothesize that hormonal issues may be a triger to the viral activation which might explain why females are more often effectd than males.
A possible attack on the TN virus is to use a topical application of fifty drops of colloidal silver and add ten drops of DMSO to make it penetrate through the skin into the nerve. Apply as a poltice with a white paper towel and let it sit for fifteen minutes. Press against the paper towel to be sure the liquid absorbs into the skin. Be sure to use a white paper towel and do not have any other substances on your fingers. (The DMSO is a carrier, solvent and penetrant. ) Do this procedure at least six times over a two day period. In theory, the silver will kill the virus. Same procedure for Bells Palsey. Shingles too. God bless.
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Houston, United States
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Fountain Inn, Sc
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Peppermint oil gives you instant relief but you will have to address the cause of trigeminal neuralgia for complete relief. Here the problem lies in the nerves. One will have to decrease their sensitivity and also help them in strengthening and calming. One can try Biogetica essentials kit with HMYLN myelin sheath sarcode formula to relax the nerves and to improve their motility.
Replied by Swati
[YEA] I just began getting the symptoms of TN, and began googling my symptons like crazy. I am so thankful to have come across this site. Since I knew peppermint oil helped with headaches, I decided to rub the oil all over the areas that hurt, and it does relieve the pain! I use Dr. Young Living oils or if you want to pay less you can order them from Mountain Rose Oils. (Try and get their highest grade)
I am so thankful to have come across this site, as I am totally against taking drugs. I am going to order the supplements mentioned here. I am thankful to have done the alkaline diet previously for Chronic Fatigue. But fell somewhat off the wagon for the past 6 years. I want to stop this in its track, before it gets worse, so I am back to eating greens, greens, greens, breakfast, lunch and dinner. The good part is, I will finally lose those stubborn 10 lbs I had put on. The book that helped me cure my CF was THE PH MIRACLE. Dr. Robert Young (different from the OIL Dr Young) teaches all disease comes from an overacid diet. I am hoping I have the same success with this TN that I had with CF. I can't imagine what the pain that some of you experience as mine is still mild, with electric feeling shocks thru mostly the left side. It started with a very sharp shooting pain 4 days ago, and immediately I started alkaline and noticed the pain subsided. But I still have the electrical shock thingies. (I had nerve damage on that side from surgery in 2000, but only now is it starting to act up)! Wish I had never had that face lift, LOL.
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Miami Beach, FL
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[YEA] My daughter has Trigeminal Neuralgia. It's a debilitating facial pain, a condition known as "suicide disease" because it is believed to be the worst pain known to mankind. Almost two years ago when she told me of the excruciating pain she felt in her jaw I began an internet search to find out what this horrible pain was. It didn't take me long to realize that she had TN ( Trigeminal Neuralgia).
She made an appointment with a facial pain medical group, and she was indeed diagnosed with TN. "There is no cure" the doctor told her, so she was prescribed pain medication, and told to return in four weeks. I began my search to cure her TN pain. After 3,24/7, days of searching I stumbled across a cure. It's caused by being B12 deficient, but you can NOT cure it with the B12 injections that the doctors give, they use the cheaper pharmaceutical B12 Cyanocobalamin. You MUST USE the natural B12 Methylocobalamin injection. You begin with a daily injection of the B12 Methylcobalamin, 1cc for 10 days, after that you continue 1cc weekly, supposedly after a time you can cut the dose down even more but after almost two years my daughter is still having to have weekly shots to keep the pain away.
The B12 Methlcobalamin is much more expensive and a lot harder to find on the internet, but it's out there. After a year of using the B12 Methylcobalamin my daughter decided to try the cheaper pharmaceutical B12, within a week and a half her pain returned. It has to be the injection form and it must be the Methylcobalamin, this has been a God send for my daughter, the best of luck to you with your journey! There is a book out there, written by Dr, Oz's father in law, on facial pain that goes into more detail on this subject, but we have found that the B12 injections were all that was needed to keep the pain away.
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Hope, Bc Canada
B12 must be accompanied by B1. European studies showed that B12 injections and mixed with B1 injections (each cc mixed in a injection) help to relieve Trigeminal Neuralgia. It takes a few weeks until all symptoms show a large decline. Don't be fooled; B12 isn't as effective as the total mix.
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Monterey Park, Ca
[YEA] Hi again; this is P from Bothell. I have found that taking Glutamine helped me heal faster from the gluten allergy and the malabsorption problem and also prayer (bigtime) and now I seem to be able to go with just one B12 injection about every 6 days or once a week for maintenanance (of no symptoms. ) this is considered (I believe) a therapeutic injection, on my insurance but would like insurance companies to know that this is for pain control. Still have out of pocket expenses (such as co-insurance, about $10. 50 an injection) but it is worth it if it controls the pain. B12 (hydrocobalamine) is FDA approved and B1 complex given together in one injection is what I have been recieving. All B12 has to convert to methocobalamine to be absorbed by the body. Stay away from cyanacobalamine-it is not the same thing... And has cyanide in it. Few traditional doctors know this it seems.
Hope this news helps someone. I did try the biogetical herbs but after 6 months they didn't help anymore. The B12 seems to be working...... So far... so good.
My advice to T. Smalls is get the B12 and B1 injections (in one injectable)for Trigeminal Neuralgia or go to a certified homeopathic doctor who can prescribe an individual treatment plan for you, if the Biogetical herbs stop working.
Sheila: Hi. I figured that I had a malabsorption problem because it usually accompanies a gluten allergy. My Vitamin D levels were only on the small side of average (after a blood test at the doctor) and that is after taking 5000 mg a day of Vitamin D. I also tested for thyroid antigens of TPO and TGO and they were really off the normal amount. I am not sure if you have Classic Trigeminal Neuralgia or not, but vitamin B12 injections take some time to work; about 8-12 injections over a period of a few weeks-and then they do work for the above disorder. Taking oral vitamin B didn't work for me, as it might for others who do not have my disorder. (classic TN)It is important to be diagnosed with the correct disorder so you know what will be effective or not.
My best advice to you is see if your doctor is willing to give you the B12 (methocarbo--with the B1 complex- 1cc of each) it least twice a week, and don't go off the antiseizure meds until you see a real reduction in symptoms. B12 injections are now covered by my insurance company (Regence of Washington) Some neurologists are also prescribing oral B12 but the oral kind is not potent enough for me. (ho hum.... ) MS patients also are being prescribed B12 injections. It helps the pain and disorder of the nerves.
Another way to help the pain is to try homeopathic remedies. We get a lot of our prescription drugs from India in the US. (such as glenmark mfg. ) I have used their kit for Trigeminal Neuralgia. It can take 1-2 months to work though, but gradually you will see a reduction in symptoms and can get off your anti-seizure meds completely in about 2 months or so.
Hope this helps. I know my neurologist advises surgery for everyone but I will wait as long as I can.
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Johannesburg, South Africa
P.S. To those who suffer from Trigeminal Neuralgia:
I wanted to give you the exact website url to the Biogetica. com Trigeminal Neuralgia products;
I also want to let you know that with this product I bought, it worked. Traditional Medicine balks at it because it doesn't contain really any measurable pharmeutical agent; that is the main reason it is so safe. But it does work; on the principal of physics-the original agents were diluted enought times in purified water, to keep the original vibrations of the agents. Now just the "water pill" works by itself. they have been arguing about this company for ages on the website. I am hear to tell you that Traditiional Medicine only offers us terrible dangerous drugs that lose their effectiveness after a period of time. This Natural way offers you real help without the danger. I am a living witness to this; I would just like to be doing more than just masking my symptoms--so I am trying the Methyl B12 road.
Replied by Christina
Happy thanksgiving, Connie. Happy Thanksgiving Deidre who has given us this opportunity to frankly advise and report to each other about what can help this most horribly painful condition.
I am back on a Homeopathic remedy which does seem to help in about 3-5 days. I am also on 2 injections per week, until I get tests to see why I can't hold or absorb the B vitamins like most people.
I need to find a way to take sublinigual Methyl B12 and the B complex vitamins orally, instead of the expensive injections. I am very terribly afraid of needles and don't seem to be able to do it myself. Even giving it to myself, it would cost about $100 a month from a safe and reputable place I trust. It only costs about $20 for 2 months for the oral Methyl B12.
The doctor can't figure out why this form of B12 )dibenzocide)hurts my nerves more and wonders if it is something else in the product. But 2 different products with the same version of Active B12 hurt my nerves, so I am staying off it.
To report: my nerves are better, much better today. Only feel a little symptoms, nothing worse. When I stop feeling any symptoms, I will get off the homeoathic remedy (which has almost saved my life this past year-but doesn't really heal the problem-just masks the symptoms)
SO I need to find a sublingual B-complex that doesn't have PABA in it. I am allergice to PABA and find alot of people are as well. IT can almost put me in anaphylactic shock, so I have to not buy the same B complex you use. My doctor says to try to get a sublingual form of B complex-yeah, good luck without the PABA.
Any way, also, my doctor says it should be safe to augment my injections with 4000-5000 mcg of the Methyl B orally a day, and a B complex, when I don't get the injections that day. It can't hurt you since your body gets rid of any extra B12 it doesn't need.
I would advise people to try the Methyl B12 who have any nerve, brain, problem to help them, cause it is pretty safe.
It lease I haven't had a full=blown attack since I used the homeopathic remedies. My last full-blown attack was when I was diagnosed with TN almost 2 years ago, (in Feb)A day I will never forget.
Hope this info helps others. If anyone wants to buy homeopathic remedies that help with the pain safely, until you can figure out what med plan works for you best, then others can log into: biogetica.com. Try the $55 kit-it should last about 2-3 months--it is safe and it really takes the pain away.
Have a wonderful holiday,
Replied by Bess
Calgary, Alberta, Canada
Hi Pat ; Thank You! I'm not a professional practitioner, I'm someone who has had many conditions over the years, and has tried a great many substances to alleviate them, like folks here. I came looking here in my searches through the internet a couple of years ago, and found what I consider to be one of the great inventions of this century, really. Deirdre has designed this forum so that people can report their findings, positive, negative, inconclusive, etc. , so that we may better understand their effects. We are specimens in the best of ways, who share this information with each other. This is a very intense theater of the real, and it takes a lot of bravery for us to reveal our conditions to each other, but it can be most healing. ( I admit to feeling a lot of embarrassment after I post). I see these qualities in your posts, and I look forward to reading your results with whatever you find in your ventures.
Even though our posts are anecdotal, we can learn so very much from this. So again, Thank You Deirdre for creating this marvelous forum!
You mentioned you have been taking B12 for Trigeminal Neuralgia. What kind of B12? Is it sublingual and is it methylcobalamin and what is the amount? do you take it orally or thru injections? It sounds good if it can help you back to being pain free in 2 weeks.
I need to buy some of this to have it on hand to take myself. I am also thinking of chiropractic care with the neck, since I have heard that this helps too.
I do not know what words I can say to let you know how much I appreciate your help. My doctor will not be in til Wednesday, and I have been having quite a few short shocks today and worried that they will get worse. I will have to wait for an injection and am not sure if I can keep affording them. They wind up being about $200 a month, so for the short term it is ok, but long term it is hard.
So I went to our natural supplement store. I did not buy what you take, since I am new at this and thought it would be hard to divide and break them apart. (the 5000 mcg) But I did get B12 Methylcobalamin, 1000 mcg that you place under the tongue and it melts pretty fast. I have taken 2 of these and will probably not take more for today.
I also got a peppermint flavored Coenzymate B complex with only B6 with 10 mg only a pill. It also contained folic acid at 400 mcg and also vitamin B12 from dibencozide (co-enzymated) and some other Bs such as ribloflavin, niacin, thiamine. I think I have enough Bs for the day and will see how I feel tomorrow morning.
I have acquired 4 auto-immune diseases since I contracted drug induced lupus a few years ago. So the no-gluten diet is helping to free me from these symptoms, but obviously not the TN. I got the lupus from an allergic reaction to Osteo-Biflex. Can you imagine that? Yes, I also have knee arthritis but have found some naturopathic remedies to heal this as well. I am a work in progress, but have learned alot about health and supplements on my road to a life with less pain. You have helped immeasurably, because lets face it, what is worse than Trigeminal Neuralgia?
Sometimes the B vitamins don't get absorbed as well because of low stomach acid. So supplementing carefully with hydrochloric acid and pepsin can help --and can aid in your body carrying the Bs to places it needs to be. Sometimes citric acid and vinegar is an alternative to the hydrochloric acid route as well.
My doctor feels that one shouldn't have to supplement the rest of their life for Trigem Neuralgia, but with Trigeminal Neuralgia, well, let's face it, vitamin Bs ain't a bad thing such as the drugs that disable your other organs. And you can know that your myelin sheath is healing in the process, which is a good feeling in itself.
I hope these oral Bs help me. I was really needing some help today and I am so thankful to God that I found this website, with someone as knowledgeable as you. Are you a Naturopath or something?
God bless you,
The trigeminal Neuralgia has been coming back since my injections dropped from 2 a week to 1 a week. Trying now to determine if I have a malabsorption problem (I am on a gluten-free diet now-only 2 weeks) and also going to be tested for metals. ) I guess the no. of injections I have had have put most people in remission, except me.
I also found that vitamins that have high amounts of the B12 ((adenosylcobalamin), another active form, seemed to cause me more pain just yesterday. (I couldn't figure out why my pain was so much worse yesterday, until I checked out the B12 ingredients and reread your online info) So I am stopping this now.
If I start the sublingual B12, I will probably need close to as much as you do. (is that about 4000 mcg? daily-what are the mgs dose equivalence?) I wanted to ask you for the brand name of the Subliminal Methyl B12 and the B complex you take. Is the B complex subliminal? Also how long have you been taking these?
Do you have malabsorption issues too? Have you tried a gluten-free diet? Been tested for metals? Or have you tried Milk Thistle, which enhances the body's liver to absorb nutrients? Have you ever tried Homeopathic remedies for the control of symptoms? I have also heard that Ashwagandha (east indian herb for stress) greatly benefits people with this nerve disease. I know it helps me a little. It is an actual ingredient in the formula, Trigical, which I think is from Denmark and marketed that it stops the pain of Trigeminal Neuralgia.
Where did you come across the knowledge to try subliminal B12? Hope some of my comments can help you too. Is there a way we can get each others email privately?
It is good news knowing that there is hope to heal these nerves. Most traditional doctors can't agree on the cause of this most painful horrible condition. Most MRIs don't really show it and only rule out a possibility of it being a brain tumor. Who wants to go for brain surgery with so many risks and little, if any, long term relief?
Looking forward to your comments. They have given us all hope.
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I have been getting the injections and the last 2 have seemed to irritate my nerves a little. they did help with the Trigeminal Neuralgia and I wonder and am so thankful that I came across Connie's entry about B6-be careful that this can irritate the nerves if overdosed.
I am off all shots and meds now and feeling pretty good so far. Time will tell. I don't know if the injections of B12 and the B complex vitamins put people in remission or not. I have had 19 injections so far and probably only needed 17. After the last 2, is when I felt some nerve irritation. I am concerned about it being a slight overdose.
People can go indefinitely without any other meds or shots for Trigeminal Neuralgia or in the case of a few, just need a maintenance dose-only 1/3 of the cases need a maintenance dose of once a week, after 2-8 months from stopping the injections. 2/3 need nothing more indefinately, I am not sure what part I will be.
I go to my Naturopath later to talk about this. I wonder about the subliminal B12 and B6 and if you are supposed to take them everyday forever?