Last Modified on Apr 19, 2015
What Is Ehlers-Danlos Syndrome?
The connective tissue in the body is comprised of a mixture of proteins and other substances that provides firmness and resiliency to the body and its structures. Periodically, disease and other conditions affect these tissues and diminish the body’s underlying system. Ehlers-Danlos syndrome is a collection of hereditary disorders that affect the connective tissues, typically the skin, joints and blood vessels. Individuals with Ehlers-Danlos syndrome typically have overly flexible joints and stretchy, thin skin. More severe cases of the syndrome involve the walls of the blood vessels, intestines and uterus and is called vascular Ehlers-Danlos syndrome.
One characteristic symptom of the condition is Ehlers-Danlos syndrome pain. Additional symptoms include overly flexible or loose joints, stretchy skin, thin or fragile skin and fatty lumps located at pressure points. Associated symptoms include abnormal range of motion in the joints and increased susceptibility to wounds, difficulty healing. Additional symptoms include velvety skin, increased susceptibility to bruising, skin folds around the eyes, muscle pain, muscle fatigue and heart valve problems.
Ehlers-Danlos syndrome is generally considered a genetic disorder that is passed or inherited. The cause of Ehlers-Danlos syndrome is generally a defective chromosome that affects the formation of collagen.
Holistic Treatment for Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome pain can be treated effectively using a holistic or naturally-based system of treatment. Several supplements are particularly important for boosting the collagen in the skin and rebuilding elasticity. Vitamin C, MSM, aloe vera, gelatin and hyaluronic acid all help replenish collagen and restore skin firmness. Apple cider vinegar and honey as well as vitamin D are also important for restoring the balance of nutrients in the body. Additional elements of a holistic treatment plan include diet and exercise. Maintaining a healthy diet of whole foods and avoiding sugar can alleviate general pain associated with Ehlers-Danlos syndrome. Yoga and other stretching activities can also tighten and realign the body’s structure and relieve pain.
Can Gelatin Collagen Hydrolysate be helpful to strengthen connective tissue disorder (Ehlers-Danlos Syndrome)?
My son has been diagnosed with a mild case. After studying his condition, I am pretty sure I have it.
Last 2 years, I switched to "cardio only" to 30 minutes of stretching exercises a day which improved greatly.
Now I have been ingesting more homemade broths and Great Lakes. My joints seem better after taking Gelatin Collagen Hydrolysate. I have not been on it long enough to make a an assessment.
Thanks in advance.
I am wondering what things can help a 12 year old boy, I think this, coupled with his puberty, is the cause of severe pain he is currently in. Ortho doctors in the area have no assistance or help. Anyone have knowledge of puberty age Ethers Danlos?
My daughter has Ehlers-Danlos, we went to see a genetic's doctor and counselor last week, they specifically told her not to do yoga, as with being hyper flexible she could hurt herself. As far as exercise, they said low impact like an elliptical machine, as it does not put stress on the joints.
Replied by Katie