Table of Contents
- QUESTIONS & ANSWERS
- Acetyl-L Carnitine, Alpha-Lipoic Acid
- Alpha Lipoic Acid
- Apple Cider Vinegar
- Avoid Arginine
- B Vitamins
- Burdock Root
- Calcium AEP
- Calcium and Magnesium Supplements
- Celery Seed
- Epsom Salts
- Essiac Tea
- General Feedback
- Guilliain Barre
- Laser Treatment
- Multiple Causes
- Multiple Remedies
- Neuropathy Remedies
- Oxygen Therapy
- Polyneuropathy Remedies
- R-Lipoic Acid
- Remedies Needed
- Severe Neuropathy Remedies
- Splenda Related
- Vitamin B-1 or Benfotiamine
- Vitamins B1 and B12
- Water Cure
Last Modified on Mar 28, 2014<< Continued from page 3
[SIDE EFFECTS] 05/14/2013: Delores from Kansas City, Mo: "Art/Vancouver/R-lipoic acid: I tried Art's protocol for neuropathy. He recommended 500 mgs 3/day...I got up to 700 mgs once a day and woke up with calf cramps on both legs front and back. From 4:00AM to 6:00AM screaming calf cramps. Maybe I'm using the wrong brand (natrol)? They do seem to differ a bit."
03/23/2014: Larry T. Jackson (tommy) from Olive Branch, Ms.: "I have neuropathy. A lot of control loss in my legs. I'm on disability and the insurance I have is a joke with medicaid. I get very little help from them and I'm looking for something affordable that I can do to help myself. I tried acupuncture but at $70 per visit and they wanted me to come 3 times a week, that was not an option. I'm looking for someone that can give some direction. I'm 50 yrs old and get around like I'm 80. Any help you can give would be greatly appreciated."Replies
03/23/2014: Dave from Fountain Inn, Sc replies: "Hello Larry T Jackson,
Re the neuropathy problem...
I've been a big advocate for the "nutrient" and vitamin like substance called AEP... known as Calcium AEP, but do not be confused....this AEP is not another form of calcium. The nutrient is the AEP.
Just fantastic for neuropathy. I'd take four in the morning and four at night.
There is a good web site...google "nutrition review calcium AEP" and you will see how many problems AEP can help with. LOTS of history to AEP.
Just this morning I'd overdone the sugary pastry (Sunday addiction) and my feet started hurting. Four AEP later... aching gone."
02/05/2014: Tony from Jacksonville, Florida: "My fingertips have been numb for 7 days. Any suggestions?"Replies
02/06/2014: Candy from Fort Madison, Iowa replies: "Go see a chiropractor. Your neck or back might be out of alignment."
02/06/2014: Man from Sojouring America replies: "Question Tony: Do you also have the issue in your toes? The question I would explore is blood sugar. Is yours right? The first thing that comes to my mind is diabetic nerve issue from excessive blood sugar. Just a thought when I saw your statement."
01/26/2014: Geno from Eureka, Ca: "Hello! I have had gradual symptoms of neuropathy since 1998. The latest have been cold like sensations starting in my feet and are now all over my body including my face/head. I've already had the burning sensations in hands feet and legs.Wwhich have went away except leaving a dull achiness. Which is tolerable as long as I stay away from nightshade foods. DO YOU KNOW OF A CURE? are there supplements that can treat this? I appreciate any feedback. Thank you, Geno"Replies
01/26/2014: Prioris from Fl, Usa replies: "Take 5000 mcg sublingual B12 methylcobalamin every day. This is the most popular cure. Lots of success with this alone. Will know within 2-4 weeks whether it is working.
Take 300 mg B1 benfotiamine in morning and 300 mg B1 benfotiamine in evening for two weeks. Then down to 150 mgs B1 benfotiamine in morning and 150 mg B1 in evening for maintenance. I believe you should know within 2-4 weeks whether it is working.
Try Alpha Lipoic Acid but I think this is really for diabetic neuropathy
I'd start with both the methylcobalamin and benfotiamine"
01/27/2014: Mike62 from Denver replies: "Geno: Put 1 cup spring water, 1/4 organic lemon including the peel, 1tsp. expeller pressed coconut oil, and 1 tsp. flax oil into a blender. Grind up and drink. Do this 4 times per day. This must be done properly because the citrus pectin is required to emulsify the oil. Cut the ends off a large organic banana. Cut into 4 sections including the peel and put into the blender with 1 cup spring water, some organic chili, 1 tsp. raw cocoa powder, 1g colostrum, 1g Hawaiian spirulina, and 1/2g chlorella. Grind up and drink. Do this 8 times per day. Put 1tsp. desiccated Argentinian liver, 1tsp. sunflower lecithin, and 1tsp. non denatured whey isolate into 1 cup spring water and drink. Do this 4 times per day. 3 times per day take 1ml skate liver oil."
01/27/2014: Robert Henry from Ten Mile ,tn replies: "HI U GENO, , , , , , , , , , , I learned this from a patient who has neuropathy due to Hepatitis C. She takes Alpha Lipoic Acid daily and also takes It by IV monthly. My problem is due to diabetes and although I take ALC daily, about twice a year I do an I.V. and which keeps my feet free of pain.
=====OLE ROBERT HENRY=========="
01/27/2014: Om from Hope Bc Canada replies: "A couple of years go or more I suffered from neuropathy badly in my left foot. I did research and also came across ALA but decided not to use it as there is eventually a loss of certain vitamins, as well as the cost.
Since then I have taken high amounts of vit C from the Indian goose berry which is AMLA. I take it daily in powder form, soaked in water with some honey. I also use the same regimen with turmeric. But the AMLA has removed that terrible electric pain to this day. By the way, honey is a good conductor rather than DMSO and is good for diabetes regardless of those voices that cry "sugar". Amla keeps the arteries supple and prevents the damage from diabetes, together with turmeric with hemp oil.
01/27/2014: Becca from Abilene, Tx replies: "I have found 900 to 1200 mg of sustained alpha lipoic acid a life saver for some neuropathy that I was experiencing from 4 herniated discs in my neck and back, along with burning mouth syndrome. I also take A C E Selenium, and Zinc supplement and 15,000 IOUu of vitamin D3. I do alkalize with lemon/baking soda each morning."
01/28/2014: Prioris from Fl, Usa replies: "Just a note for Becca. If you still have the herniated discs, refer to my posts on Hyaluronic Acid. As people get older, their synovial fluid can become depleted of HA causing herniated disc. It needs to be highly absorb-able kind."
01/28/2014: Betsy from San Diego replies: "Robert Henry, What do YOU take for neuropathy and have you been successful?"
01/28/2014: Robert Henry from Ten Mile, Tn replies: "HI U BETSEY, , , , , , , , , , , , , What all need to understand is that I am not a guru. I am just an old dog that has been down lots of dusty trails. I am a polly parrot as I just repeat what I have experienced or what I have read. I have no lab which I have done all these grand and glorious experiments. I have neuropathy because I am a diabetic. I take Alpha Lipoic Acid supplements and do the IV's twice a year. It works for me as I have no foot pain. I just tell all what works for me. Others have solutions that you may want to consider.
What makes me want to cry is that I have an MD within 20 miles who does Naturalpathic things that most of you have no access to. Times are changing as more doctors are disgusted with conventional medicine of only treating symptoms. Hope this gives you a trail to follow. Read and read some more.
=======OLE ROBERT HENRY============"
01/28/2014: Becca from Abilene, Tx replies: "Thanks...I will. I do still have the herniated discs but therapy and ALA has made a huge difference. I also had a sudden onset of burning mouth syndrome about 6 months ago when a specialist that I started seeing put me into a hyperthyroid state with a medicinal overdose of thyroid medication and the ALA has been a God send for that as well. I still take a low dose compounded thyroid medication (from a different doctor) but am supplementing thyroid/adrenal builders in hopes of getting off of the prescription meds. I will be ordering blood work in a couple of weeks to check some of my levels to see if my regimen is working. I also have noticed that my blood pressure has dramatically decreased to the point that I only take a BP pill once or twice a week if I feel that I need it and my vision has improved. My hope is that the next time I see my doctor and show her my lab results, I will be medicine free and feeling great! At the moment she has no idea about the regimen that I have researched and put myself on...but she is a great doctor and firmly supports natural healing over prescription when it can be achieved!"
11/28/2013: Grannyguru from Oro Valley, Az: "I tried licorice extract for shingles. It did nothing to help.
I stopped taking L-arginine and that did help a lot, but the shingles still continued.
Spraying calamine lotion also helped.
I tired a ton of things from earth clinic; I can't even remember them all.
I still have shingles, but it IS going away."Replies
11/28/2013: Little Wing from Boston replies: "My mother cured her shingles with massive doses of L-Lysine (1500-3000 mg/day), ACV soaks (soak towel, let sit for 10-15 minutes a few times a day) and this phenomenal gunk called WonderSalve from Durham's Bee Farms. Hope this helps you."
11/28/2013: Dave from Fountain Inn, Sc replies: "Hello Grannyguru,
Here's a salve remedy that has worked amazing well over the years.
Ten caps of cayenne pepper. There are different units of heat, just choose any
Five caps of NATURAL Vitamin E to make sure the cayenne does not burn the skin.
Twenty drops of colloidal silver.
Twenty drops of DMSO to carry the ingredients to the site of the nerve where the virus is raging.
Apply the salve (gooey) to the eruptions. Let dry for two hours. Rinse off and next day you should notice the eruptions have gone from angry red to rust color. Re apply the salve the next day. Let dry for two hours.
Repeat two days later if necessary. I got rid of mine in two applications. If the immune system is impaired then you'll see a longer time for recovery.
Also, drink a tablespoon of the Colloidal Silver daily for a week or so and two caps of cayenne and a 200 iu capsule daily of the natural E (NOT synthetic) daily for two weeks.
The cayenne will cauterize the virus and the CS will also kill it. The DMSO is a carrier/solvent and the E is a healer and will keep skin from being burned by the pepper."
10/31/2012: Joanna from Philadelphia, Pa: "I have terrible peripheral neuropathy. I have tried everything to no avail.. Recently heard about Helichrysum essential oil for neuropathy. Does anyone know anything about this? and how do you take it? Thank you"Replies
10/31/2012: Tina from Houston, Usa replies: "Joanna from Philadelphia, Pa: My mother has seen dramatic improvement in her neuropathy conditions incl Sciatica, pain from Osteoporosis and Arthritis and Scoliosis.
Helichrysum Essential Oil is a wonder oil in her opinion, she uses it diluted 50/50 (with a base oil like almond, jojoba, etc) on the location of the pain, and also on the feet (where the nerve endings of hundreds of nerves are located). And finds relief from pain within 10 mins at best.
It is IMPERATIVE to use therapeutic grade essential oils, because they are absorbed by the skin (the largest organ) and if not the right type, they can do damage to the body. My mom swears by Helichrysum oil and alternates that with a blend of essential oils for neuro related pains.
I hope you get some relief, Tina"
10/18/2012: Wayfinder from Modesto, Ca/ Usa: "Having done some reading on this, have found that early gangrene involves great pain in legs, followed by numbness, then skin turning black. One suggested treatment was a hyperbarric chamber to put oxygen back into body, or use of home-oxygen. Definitely seek doctor's care if skin is turning black! Right away!
And here is a quote:
"Of particular interest at this point is the recent work of Dr. Steinberg (1), of Jewish Memorial Hospital in New York City, in the successful treatment of gangrene of the legs and feet with sodium ascorbate. In five cases of long-standing gangrene, resistant to other forms of treatment and some scheduled for amputation, the administration of up to 5 grams of sodium ascorbate daily, in addition to other treatment brought about improvement and healing in a few weeks."
10/16/2012: Karen from Tampa, Fl: "I have peripheral neuropathy and hepatitis C. I currently have very cold legs (from the knees down) and EXTREMELY cold feet. My toes and the top of my feet are turning black. Don't know what to do. I cannot take cayene as it makes my tinnitus increase too much. Any suggestions would be greatly apppreciated. Thank you for reading."Replies
10/17/2012: Andrea C from Cardiff, Wales replies: "Are you able to prop your legs above your heart?? LAY ON YOUR BACK and prop your legs ABOVE YOUR HEART. If you are able LAY ON YOUR BED AND PUT THEM UP AGAINST A WALL or on any furniture with a wall you can do this xxxxxx Also try magniesium. I am not trying to scare you, but you REALLY need to try to get that circulation going again. Is there any one that can help you?? I live on my own so I crawl, around when no 1 is here in agony, just to do simple things xx But will your self to live!!! It helps also xx Many times I wake up feeling very negative, then argue with MYSELF!!! LOL XXX Wether it be inside my head, or if I can I shout at myself in a mirror as well xxxxxxx hope this helps you sweetie I KNOW how afraid you feel and the pain you are going thru xxx I get days when I think SOD THIS!!! But that's when I shout at myself, and force myself to do what I need to do xx I am not always succsesful, but I KEEP ON TRYING!!!!! NEROPATHIC PAIN IS A BITCH!!!! I know, I have had it for years, but if you can do something to distract your self that will help too. Sitting thinking about the pain makes it a LOT WORSE because you become 'trappped' by that thought xx I am still learning and I am not saying its easy love, but the more you dwell on it or tell youself it's coming the worse it will get. I don't see many people so I have to keep my mind occupied so I do things like 2x2 in my head to give me something to think about and tell the pain to ^%$##@!!!!! I hope this helps love xx I know how bad it gets, even typing, etc. Have you tried CAYENNE in a much smaller dose at all?? J ust a tiny bit on the edge of a teaspoon?? You don't need to take loads of it for it to work xxxxxxxx Hope I have been of some help Love Andrea c xxxxxxxx"
10/17/2012: Mmsg from Somewhere, Europe replies: "Karen, can you try putting cayenne externally? I've heard it helps too."
10/17/2012: Karen from Tampa, Fl replies: "Andrea, I thank you for your great concern and thoughtful suggestion. I am trying to get over the constant pain and numbness and electrical shocks etc. Etc. I will survive although it's a day to day thing...Bless you"
10/17/2012: Karen from Tampa replies: "Mmsg, I'll mix some castor oil with cayenne and put a small amount on one foot and see what happens... Thx for advice.. Bless you"
10/17/2012: Connie from Slc, Utah, Usa replies: "Hi Karen; This sounds like a potential Emergency to me. Blackening of toes and feet may indicate gangrene is occurring. Please Go to the Emergency Room. The infection could spread quickly and threaten your life!
The ER may have to use IV antibiotics, but it may be necessary because of this type of infection.
This infection could be from high blood sugar, diabetes. Take very serious measures to lower blood sugar.
Many people have had success with Alpha Lipoic Acid for lowering blood sugar."
10/17/2012: Bess from Calgary, Alberta, Canada replies: "Andrea - I love your attitude and spirit... You go girl!
For Karen, I was wondering (along with Mmsg) if she couldn't put some cayenne into lotion and massage it in. There are even creams you can buy at the health food store containing capsicum (although it's cheaper to do it yourself - starting with a small amount of cayenne and working up gradually). My Dad has bad leg circulation and he has to sleep with his feet/calves on pillows. If he doesn't, he's in severe pain in the morning. Good luck! Bess"
10/18/2012: Wayseeker from Modesto, Ca/ Usa replies: "Hi Sweetie: I also had creeping numbness, agonizing chronic pain in my legs, and some muscle wasting, and electric shocks and brain sloshing. I was on a popular serotonin re-uptake inhbitor that nearly killed me, and left me bleeding from my eyes and ears: signs of liver shut-down. The doc only wanted to give me more and different. I quickly titrated down and off instead, which saved my life. Had I followed his orders, it would have killed me... And he didn't even recognize the clear signs of liver failure. I ended up with full-blown fibromyalgia due to the stress the drug caused me. People have sued. The stuff is potentially deadly.. And handed out like candy... With very little indication of its neccesity, and super-fast, no-test diagnoses. Of course, docs get a substantial kick-back, and even trips to Tahiti, and own stock in the big pharm that makes the drug, which you then stay on for life, paying residual income to them. That's a conflict of interest if I ever heard one!
Now, solution time. The thing that helped me most of all, was an ancient Native American recipe called Ojibwa, what we call Essiac tea, or Floressence tea. I also researched Guaifenisen thoroughly, and followed the protocol. This removed lactic acid and took away 1/2 of my pain. However, I now believe such stressors and drugs gobble up ravenous amounts of Vit. C, which leads to a downward spiral. Hot baths and keep moving when on your feet. I had a circulation problem somehow, too. An initial diagnosis of peripheral neuropathy was proved incorrect by a mild shock-machine nerve-test by a top neurologist, showing the problem was not with my nerves at all. I have now healed about 3/4 of the way, by natural means. And I surely am fine mentally, and always was. Go for it! --T."
09/27/2012: Silentex54 from San Antonio, Tx: "I had the shingles which really shocked me. I was sitting at work one day when it felt like I had gotten bitten by a bee on my upper ear. I started getting like fever blisters on my bottom lip and inside my mouth. Then I got a big cluster of blisters right above my ear on my scalp, went to the Dr and was told I had the shingles. I started getting the sores on my face & scalp. The pain was bad and the pain medications the doctor gave me was not working.
Then I found this website. I sent my daughter to buy a bottle of L-Lysine, some Vitamin E oil, a bottle of Organic ACV and Subliminal Vitamin B complex. I took one pill of the L-Lysine (1000 mg) and less than 30 minutes the pain was gone. Unbelievable but true. Started applying a mixture of ACV with a couple of drops of Vitamin E oil onto the blisters and sores. Within a couple of days the blisters and sores were almost completely gone. I also drank 1tbs of ACV with water every 4 hrs and took the Vit B complex to help boost my system. Also didn't have any sugar nor sugar substitutes, no sodas, regular nor diet. I found through my research that the shingles virus love to feed off of sugar. So, I stayed away for it and it help me recover so much faster and also help me stop drinking sodas which aren't good for you anyway. I also, now, watch my sugar intake since I am diabetic.
Although, the shingles have gone, I am now left with the Postherpitic Neuropathy on the left side of my face. This is ten times worse pain that I have ever felt in my life. The pain is undescribable. I was given the drug Gabapectin. I currently take 1800mg per day which leaves me very tired. I can no longer work because of the pain & the meds. I have had to file for disability because Drs don't know how long it well last. Dr says it could take months to years or it may never go away. Any suggestions on how to relieve this pain would be greatly appreciated."Replies
09/27/2012: Mr. Ree from Somewhere, Usa replies: "I was also on Gaba and it did NOTHING... I take tumeric 3 times a day and it helps... This along with high dose of vitamin c... 5 grams or more... Exc. pain reliever...
If it comes up again use licorice extract.. COMPLETELY gets rid of shingles in 3 days..."
09/28/2012: Wayseeker from Modesto, Ca/ Usa replies: "DMSO 50%/50% concoction with distilled water, applied with sterile cotton. Keep out of eyes! Stops pain, inflammation, and goes down 7 layers of skin. Make sure face is rinsed clean, and patted dry, as DMSO carries everything with it. Wait five minutes to absorb, then apply small amount of organic coconut oil on top. --T."
09/28/2012: Mr. Ree from Somewhere, Usa replies: "Please don't let a doctor talk you are anyone into getting a shingles vaccination. If you get shingles just put licorice extract on it. In three days it will be gone!!! DEAD gone!"
09/29/2012: Oldriska from Prague, Czech Republic replies: "Dear Silentex54, First off, I am very sorry to read about your neuralgic pain. I have atypical trigeminal neuralgia with pain in my teeth and lower jaw. I took Neurontin, which made me sleepy and depressed, now I am on Lyrica, which I seem to tolerate better (still, there are bad side effects) and I also take anti-depressants. I wish to go off drugs completely, because I think in the long run they can do more damage than good. There is no miracle drug or supplement which would cure neuralgia, but I find that magnesium supplements, reasonable diet and low stress (which is so hard to achieve with this condition) help me the most. Some people have been helped by acupucture, I get mixed results from it. There is an online community of people suffering from this condition and they often recommend lidocaine patches when the pain gets bad, perhaps you may want to try those, although they only treat the symptoms not the cause itself. Good luck and stay strong! Oldriska"
08/04/2012: Daniel from Sparta, Mo.: "Danny has had a burning neuropathy in his feet for the past 3 months now and is in a great deal of pain.. he has an appt to see a neurologist. but to get through each evening is a royal pain. as he is in pain and very restless. his dr. put him on ambitripilene. this kinda gets him through the night..."Replies
08/05/2012: Ken from Perry, Ga replies: "I had something very similar and found out that diabetes was causing mine."
07/15/2012: Richard from Richford, Vermont: "I am in my late 60's weigh 147 lbs. 5' 11". I have no earth shaking diseases - just had my physical. Border diabetic (1st. time ever), prostate normal swelling for my age, and have been on mostly fruit in am./soaked raw nuts and avocado, raw veg. Salad for lunch and meat (grass fed)/ brown rice or sweet potatoes/semi raw veg. For dinner. I cut out white flour and any sugar also for last 2 months.
Can't figure out what would cause the numbing of (primarily left foot) balls of my feet.
If anyone has any thoughts or experiences I would appreciate hearing from you.
Thanks so much - love this site!!!!
07/15/2012: Carly from Seattle, Wa - Usa replies: "Hi Richard. Look at / google Alpha Lipoic Acid... It is a supplement I have read about that helps peripheral neuropathy, opening up the small blood vesels. It is supposed to be excellent for diabetics. I have not used it myself, but have heard so much good about it re your symptoms I was compelled to write in.
Also - take it with / after food, and do not lay down for 30 mins after taking.
Good luck! :-)"
07/16/2012: Louwrence from Rustenburg, North West, South Africa replies: "Hi Richard, Kidney problems can also cause the same symptoms."
07/17/2012: Richard from Richford, Vermont replies: "Thank you Carly and Louwrence for your input. I just had an MRI for my prostate and my results showed some "sludge" in my gall bladder and nothing else - at least visually. I will look up both suggestions however and research it farther. Thanks again for even responding - much appreciated. Richard"
07/19/2012: Tinydancer from Dayton, Ohio replies: "I had the same thing, except my numbness was in both feet and hands. I read the book " Could it be B12 ". I started using the B12 supplements along with a B Complex and my numbness went away. ( fingers on right hand still a little numb) Hope this helps."
06/27/2012: Linda from Alpharetta, Ga: "I have very severe burning, numb and tingling fingers and toes... especially my thumb and index fingers."
09/11/2009: Pauline from Sebring, Florida: "Question to Ted,
My sister has Neuropathy and she's not a diabetic. The doctor said, it was a very rare case for someone to have this disease that's not a diabetic. This doesn't run in our family so, we don't know to much about it.
My sister has this disease in her feet and legs, now it has gone into her hands and arms. this disease damages the nervs in the body. It causes deformity in the toes and fingers, and I think it's progressing faster than what it should.
She can hardly sleep at night because the pain is unbearable, and she can hardly walk. The medicine that the doctor gave her the last time she had some bad side affects from it.The doctor said, that this disease could not be cure and she had to live with it for the rest of her life.
Her toes have already deformed and now she has some big knots on her fingers. She also has Glaucoma. I hope and pray that you know something that will help my sister. I would appreciate it so very much. I'll be waiting to hear from you.
09/12/2009: Bob from Memphis, Tn replies: "I also have neuropathy although mine was caused from excessive alcohol use. I have done a lot of research on the subject and it is suggested this can be caused from a lack of B vitamins. I take a B1 B6 B12 and a Bcomplex and it seems to help quite a bit. You might try this for your sister. Couldn't hurt."
09/12/2009: Pauline from Sebring, Florida replies: "Reply to Bob: I really appreciate the information you have given me for my sister which has Neuropathy. She's willing to try anything because the medicine the doctor has given her doesn't help. The last medicine he gave her she had some bad side affects. I'm going to get these B vitamins right away so she can start taking them. She doesn't drink alcohol or smoke.she's not a diabetic either. You're right if the vitamins doesn't help it won't hurt. When she takes these vitamins for awhile if it helps I will let you know. Thanks again for the information.
04/18/2010: Jan from Belen, Nm replies: "For me, I had been diagnosed with anemia a long time ago (in my 20s) but had then since forgotten to take supplements of B12. Because I am also a vegetarian, lacking this B12 my PA said it might have something to do with it. By adding foods to my diet that were higher in iron as well as B12, (I used a B12 sublingual for better absorption), my neuropathy that was caused by anemia has diminished. (I had tried liquid iron for better absorption and to prevent constipation as a side effect, but the supplement caused tummy irritation so I ate foods high in iron instead of supps.)
My husband got neuropathy as a side effect due to a medication he was taking. When he stopped that med, the neuropathy was also much lessened."
04/28/2010: Fred from Hong Kong, China replies: "Hi Pauline,
30% of people with peripheral neuropathy are diabetics. the rest are not. you need to first determine what is causing the neuropathy. many things can cause it. this is an excellent website for a basic overview.
you then need to find a doctor who has some knowledge of this disease. in my case i have seen 20 before i found one who knew what he was talking about, and even then i have had to do much of the research myself.
another great website is emedicine.com. don't trust your doctor.
02/22/2011: Tezi1 from Portland, Or replies: "@Pauline in Florida, Hi.
I have non diabetic neuropathy like your sister and I am desperate to find something to help with the pain as my quality of life has declined so much. I am taking Lyrica that seems to help some but still cannot sleep at night and I cry alot. I already take the b vitamins and have been taking magnesium for a few years now for what doctors diagnosed as tinnitus. That is another issue, could be related tho. I have not found a Dr. in my healthcare system to really take a look at what is going on here. I also had radiation therapy for breast cancer and that could be a cause. Who knows, but I do agree with Fred. Do not trust your doctors. I am doing my own research and I have a list of questions for my doctor. ( I am going to try the magnesium foot soak & Alpha lipoic acid) Good luck!"
03/01/2011: E from Stafford, Va replies: "I have just been diagnosised with neuropathy, I am not diabetic. After too many x-rays, MRIs and blood test. The pain comes and goes in my legs with extreme pain, spasams, cramping in my feet. I wake up from a deep sleep with extreme pain. I am presently taking diclofenac, buspirone, baclofen and gabapentin and I still have pain. After sitting when I try to stand it takes me a few seconds to complete the process. I do believe that taking statin for my 200 level cholestrol started the problem. I have read many of the suggestion and will start B1 and B12 vitamins. Right now I have the oncoming of a cold. All of a sudden I seem to be going down hill. There is a holistic doctor in the area but his first visit is $300. and that is on top on the two specialist you have to see prior to getting an appointment with him at a cost $175. The imformation being shared is greatly appreciated. I pray that I can report back with some positive insight."
[YEA] 06/05/2011: John from Fairfax, Va replies: "hi E, I'm also in VA, tonight looking around for info on neuropathy. I have good news for you (I think). Two women, now my friends, had severe muscle pain in legs they are sure caused by taking statin drug. A book on Vit D3 that I got from my MD, said that D3 was good for pain so I loaned book to my first friend. She was into natural and supplements and was convinced enough to immediately start taking 4000 Units a day for a couple months. That took care of most of the pain, quite amazing. Also she was taking Co-Q 10 and Alpha Lipoic acid but I think it was the Vit D that cured her leg pain, dramatically. Later I met another woman previously strong and athletic though over 80, was almost crippled from muscle deterioration and pain, and had to take care of her husband with Parkinson's and Alzheimer's, so this was a huge crisis for her, she was staggering to keep standing up by that point. So I loaned the book and told her about my other friend who completely recovered from statin damage by taking the 4000 of D per day. She started doing the routine my friend had done, right away. This also worked.
One of their neurologists, forget which, she told me, thought this recovery of nerve damage was not possible. If you want more info please contact me at johns138(at)yahoo(dot)com. I understand Magnesium is really good for cramps too, the only one I tried that I felt and could actually walk faster and further on my walks, it has bioperine in it to absorb better, Doctors Best brand of magnesium, outstanding! God bless. Hope this helps, much more to share: I recall reading that statins interfere with the body making Vitamin D, Co-Q 10 (very important for muscles including the heart), and other things the body needs to be healthy. I recall reading Canada tells patients receiving statins to be sure to take Co-Q 10 because statins deplete it. May the God of hope bless you real good now! With love in Jesus name, John and also I read good things about Krill Oil doing same job as statins but better. I felt really good when I tried it, and my friend said within 24 hrs of taking the krill, her severe joint pain was gone! it had hurt like a toothache in her hip which was worn out. God is love."
08/18/2012: Jim from Vero Beach, Florida replies: "I have multiple myeloma and have been on chemo for 13 months. The soft chemo ( Revlimid) has created the severe Neuropathy in both feet and my left leg. I have just started ALA... 600mg. I have had no change after three days. It is so painful. I just want to walk on the beach with my wife and can't get that done. HELP"
08/19/2012: Timh from Louisville, Ky, Usa replies: "Jim, make sure you get enough Vit B-12 as it strengthens nerves. A B-12 / Folic Acid combo is best. Your ALA dose seems large enough but you may not be absorbing it well, so it seems appropriate to try the R-Fraction ALA next as it is much more bioavailable (which translates into greater effect).
I have had a rather severe neuropathy in my feet for over a decade and nothing has come near helping like Magnetic Insoles. High-top shoes or ankle-boots have proven much more stabilizing compared to low-cut shoes.
Hope this helps and good luck."
08/19/2012: Janet from Kendal, U.K replies: "I have recently read how Flaxseed, and or Evening Primrose oil are very beneficial to neuropathy, it acts as a building block to the myelin sheath. My partner does suffer with this, caused by his blood sugar spikes. He is diabetic. His approach was to take Lecithin which is rich in omega 3, 6 and 9. So I understand the connection. MSM was his choice of pain relief which gave great results in next to no time at all. Good Luck with this, BTW a funny thing that also gave great relief was to eat a pickled gerkin. ?? Strange but true."
08/12/2013: Kaui from Fullerton, Ca replies: "I am new to all this, I started having tingling in my foot, then the other foot, now its everywhere pratically. I haven't gone to the doctor but from what you all tell me, there is no cure? I cannot believe that. I would try some alternative method. The vibrating sensations are annoying and the electricity senstations is a bit painful. But oddly when I'm active, I feel it a lot less, only when I'm sitting or laying down I feel it most and it's driving me bananas.
I'm going to try to see someone who does Nutrition Response Testing. I am also going to check out as someone else said, "energy healers" like Reiki or Pranic healing, etc. Just google or Yelp "energy healing" and see what comes up. Some do distance healing as well if none is in your area. But seriously, do not give up. See every Naturopathic or Holistic doctor you can find until you see results. I been having my symptoms for over a month and it's not getting any better, only worse. I been doing the B12 but someone said that can take a long time to even work. I'm 5'2, 100 lbs, no diabetes in my family, I eat fairly healthy of everyone in my family, I don't drink much milk at all, I take my probiotics every morning, I rarely eat gluten or bread or sweets, I eat whole foods, fish, fruits, vegetables, so I'm confused as to what is going on. But I would definitely go alternative routes. Sometimes or most times, some believe it's emotional or due to some metaphysical reason. "You can heal your life" and "The Secret" will tell you that you can focus on the positives and things will get better. Although I have been trying with little luck. But I'm not giving up. Hell if I'm living like this forever. I'm going to check out energy healers and also have an appointment with an accupuncturist who does the NRT, Nutrition Respons Testing, or Muscle testing. You can google or YouTube it. You can go to chiropractor who specializes in it and see what they say. Westernized medicine may help with the symptoms but obviously it is no real cure. Hopefully someone gets some real answers. But I'm really into alternative medicine and interested in become an energy healer myself. Can we all pray that someone comes up with solutions and send loving energy to each other and prayers. They say you can heal yourself. Sounds crazy but just look it up. Also "Mind over Medicine" you can YouTube this one physician who really believes that a person can heal themself. YouTube "Self Healing" and see what comes up, they have meditations that help calm your mind and help put you to sleep. Good luck everyone and when I get results, I promise to check back.
PS this one energy healer name andy bojarsk does energy healings at a distance for FREE just google him. I have not gotten one done from him YET, but when I am ready to, I will if I have to but I am going to try other methods first. I suggest looking up "Pranic Healing" as well.
06/07/2009: PATTI from RICHFIELD SPRINGS, NY: "I have been diagnosed with pheripheral neuropathy along with a blood cancer called Waldenstrom's macroglobinia. Dr has been giving me IV treatments and it has brought the IGm levels down somewhat. They assumed the neuropathy was connected to the Waldenstrom's and as one got better the other would too. But it has been the opposite. As the Waldenstrom's has gotten a bit better the neuroopathy has gotten worse. I just work up from a 8 hr 'nap' in the middle of the day, which is not uncommon. None of the drugs the Dr has given me for this work. I can't be on my feet for longer than 4 hrs at a time as my feet become very painful and I get elec stabs of pain in my thigh. Is there any help for this? The fatigue is ruining my life as I am too tired to do anything.
Thank you for any help."
07/16/2009: Denise from Hopedale, MA replies: "Hello....My sister underwent ovarian cancer treatments complete with the Chemo and all it's side effects. As a result - she has neuropathy from her elbows to her finger tips as well as her knees down to the tips of her toes. She has begun taking Vit B12 for this.She is also following the "Budwig Diet" (Google that !) and has bought a book by the author Bill Henderson who has helped many many people recover from cancer - or just keep it away ! I am not sure how the Vit B12 is working for her - as she just began it. The Vit B12 deficiency is definately worth looking into for chemo induced neuropathy - most neuropathy remedies I've looked for are for diabetic neuropathy. Discuss the Vit B12 theory with a nutritionalist or a holistic health practitioner. Best of Wishes to You...."
08/23/2009: Debbie from Denver, Colorado replies: "Patti, I have severe neuropathy in my feet and legs up to my knees, and now starting to get it in my fingers and wrists. I have been tested for diabetes numerous times over the past five years but I'm not even PRE-diabetic. About seven years ago I got electric shocks in my toes, and stepping on something (even a grain of rice) sent me through the ceiling in pain. I didn't think much of it but within two years my feet ached and were in so much pain 24/7 that I couldn't sleep and I could barely concentrate at my job. I could no longer play softball and volleyball, I couldn't go to fairs and walk around for hours, nor go explore sites on vacation. I used to walk my dog every evening but it is painful so I just go to the corner and back with my dog. I have gained 50 lbs in two years from being inactive. This has changed my life completely. I saw three doctors. The first gave me amitripilyne to get me to sleep. It worked wonderfully for sleeping. But I knew that I would become aware of the pain as soon as I woke up mornings. I was at a point where I didn't want to wake up anymore and if the pain continues to increase, I don't want to imagine what it will be like in 10 years. But, finally the third doctor was a neurologist who asked what my symptoms were and then told me it's neuropathy. I cried because there is no cure. But he said he treats others with this pain and found that if you combine two medications and take them at the same time, it will get rid of the constant aching and some of the stabbing pains. He gave me amitripilyne and neurontin. The first night I took them and woke up with no horrible aching for the first time in two years! I couldn't believe it!! When I went to work everyone was asking me how my feet were feeling all day long. I could concentrate at work and travel a little as required for my job. I still cannot be on my feet for hours and hours because I pay for it that night and all the next day because my feet will feel like all the bones are broken when I walk. It's still hard to live with because it has increased somewhat. But talk to your doctor about taking the two meds together at night, and in the morning take only the neurontin because amitriptilyne is very sedating and should only be taken before bedtime. I'm thinking of attending a support group nearby to see how others deal with it. I hope this helps you. It helps me to know so many people are trying to live with this pain."
08/29/2009: Gail from Goode, Virginia, Usa replies: "This is a response to Debbie who wrote about the drugs that the doctor put her on for neuropathy. I was put on the same drugs for the same problem that Debbie has, which is a peripheral neuropathy in my feet and legs. I've had it for 11 years, and it has not gotten better. These drugs are refered to as psychiatric drugs and they interupt the signal from the brain to inhibit pain from neuropathy; BUT, these drugs cause a multitude of other problems. After being on these same drugs, I stopped them 3 weeks ago, due to them causing two additional problems: overactive bladder and acid reflux (possible ulcer). The overactive bladder problem continued to get worse and worse (and the medication that the doctor gave me would hide the symptoms, but not cure anything). When I stopped the amytriptaline, after 3 weeks my bladder started to heal, I could think more clearly, and my foot pain was the same. Haven't found a natural cure for the foot pain yet; but I also have fibromyalgia (leg muscle cramps) as a result of not getting any cure for the neuropathy. I found a cure for the fibromyalgia, myself. And that is swimming. Swimming is strengthing my muscles and the cramps are very minimal; whereas, cramping pain was much worse when I was on the psychiatric drugs recommended by a medical doctor. If Debbie wants to find out about the drugs that she is taking and the aweful side effects that they can cause, go to the Mayo Clinic site and go through the links to the drug side effects link and look at the long list of medical problems they can cause in the future."
11/16/2010: Paula from Chicago Heights, Il replies: "For the nerve pain try the following tinctures: 1 teaspoon each of St. John Wort, skullcap leaves, fresh oats and licorce root. Add 1 half dropper of ginger rhizome and vervain leaves. For tight muscle spasms try valerian, skullcap and cramp bark. Also high doses of Vit B complex, alpha lipoic acid are very helpful. Look into a 'Tens Unit'. Another new and very promising therapy is prolotherapy - not too many doctors practice it. Look for an MD who practices prolotherapy. There is a Dr. Ross Hauser in Oak Park, IL."