Table of Contents
Remedies for Severe Neuropathy
"Neuropathy is usually short for peripheral neuropathy. Peripheral neuropathy is defined as deranged function and structure of peripheral motor, sensory, and autonomic neurons, involving either the entire neuron or selected levels.
The four cardinal patterns of peripheral neuropathy are polyneuropathy, mononeuropathy, mononeuritis multiplex and autonomic neuropathy. The most common form is (symmetrical) peripheral polyneuropathy, which mainly affects the feet and legs.
A radiculopathy involves spinal nerve roots, but if peripheral nerves are also involved the term radiculoneuropathy is used.
The form of neuropathy may be further broken down by cause, or the size of predominant fiber involvement, i.e. large fiber or small fiber peripheral neuropathy. Frequently the cause of a neuropathy cannot be identified and it is designated idiopathic.
Neuropathy may be associated with varying combinations of weakness, autonomic changes and sensory changes. Loss of muscle bulk or fasciculations, a particular fine twitching of muscle may be seen. Sensory symptoms encompass loss of sensation and "positive" phenomena including pain." (Wikipedia)
DISCLAIMER
Our readers offer information and opinions on Earth Clinic, not as a substitute for professional medical prevention, diagnosis, or treatment. Please consult with your physician, pharmacist, or health care provider before taking any home remedies or supplements or following any treatment suggested by anyone on this site. Only your health care provider, personal physician, or pharmacist can provide you with advice on what is safe and effective for your unique needs or diagnose your particular medical history.
ACETYL- L CARNITINE, ALPHA- LIPOIC ACID
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[YEA] 07/10/2011: Bill from Staten Island, Ny : "HAD STAGE 3 CANCERS IN COLON, RECTUM, PROSTATE CHEMO RADITATION AND HAD TERRIBLE NEUROPATHY AFTER FOR 3 YEARS TRYING NUMEROUS SPECIALISTS AND PAIN KILLERS W NO RESULTS THEN MY BROTHER TOLD ME ABOUT ACTYL-L CARNITINE 1000 MG 2XS A DAY AND ALPHA-LIPOIC ACID 250 MG 2XS A DAY - WITHIN A FEW DAYS AN ABSOLUTE MIRACLE HAPPENED I CAN WALK PAIN FREE AND IN BALANCE MY GOLF GAME HAS GOTTEN MUCH BETTER SHOOTING WAY UNDER PAR ALMOST DAILY - IM A PGA PRO WHO COULDNT FINSH 9 HOLES UNTIL NOW -COULD PLAY 27 IF NEEDED- HOPE IT WORKS 4 U 2."
Replies07/11/2011: Faith from Wantage, Nj, Usa replies: "Like you, I have developed neuropathy from chemo. I am ready to start the supplements that have worked for you and apparently many others. Would you mind telling me what brands you have used. Also do you use any benfotiamine?(B-1)Thanks so much for the hope! Faith"
[YEA] 01/12/2012: Carol from Los Angeles, Ca replies: "I was suffering from continual extreme muscle tightness in my thighs and neuropathy in the top of my foot shortly after I began taking Lipitor. I discontinued the Lipitor after 3 weeks, but was unable to exercise without the pain becoming increasingly worse. I stopped taking the Lipitor but had no improvement in my symptoms whatsoever, so after 6 weeks I broke down and decided to try this combination based on Bill's experience. I began taking 500 mgs of Acetyl-L-Carnitine 1x a day and 100 mgs of R Lipoic Acid 2x a day. (I am a small person, so I take a minimal dose. ) I felt relief within 2 days. Five months later, I am happy to report that I am at 98% of where I was before taking the statin with only the slightest bit of tightness and neuropathy when I exercise hard.You should always check with your doctor and investigate as much as possible before taking a supplement with a prescription drug or other supplements. I believe my original problem with Lipitor was caused by inadvertently combining it with Red Yeast Rice."
04/14/2012: Mark from Mondovi, Wi, Usa replies: "I had colon cancer surgery June 13, 2011. Then had 9 rounds of chemo starting in August and ending on Nov. 30, 2011. I did not have much trouble with neuropathy during chemo but a month later it started in my feet and then a couple weeks after that in my hands.I also could not urinate and was told I wouldn't be able to. So I sought out supplements, accupunture, and chiropractic. I can pee now but the neuropathy is still there.
These are the supplements I'm taking:
- Calcium Magnesium - 1000 mg C, 400 mg C - Take 2 twice a day.
- Taurine - 500 mg - 1 a day.
- Krill Oil (fish oil) - 1000 mg - 2 a day.
- B6 - 100 mg - 1 a day
- B12 - chewable - 1000 mg - 2 a day
- Vitamin D - 5000 IU - 1 a day
- L-Arginine - 500 mg - 2 a day
- Flomax (prescription for urinating) - . 4 mg - 1 a day
- Acetyl L-Carnitine - 500 mg - Take 2 twice a day
- Alpha-Lipoic Acid - 200 mg - 2 a day.
- Methaxyflavone (Vitamin C) - 500 mg - 2 twice a day
Any suggestions or ideas on how I can get rid of this neuropathy.Thanks tons, Mark Nelson - mark(at)marknelsonsblog.com"
04/14/2012: Janet from Kendal, U.k. replies: "My other half also suffered with Neuropathy caused by blood sugar. He found most effective relief came from MSM and Lecithin. If you research both these things it's understable why. He's recently also gone onto Amino Acids. Following someone elses recommendation. 99% of the time he is now pain free. If it flares then he goes straight back onto the above. We just wonder if he should take it all the time? He can go long spells with no problems. A friend of mine also tried the MSM after cancer treatments and got instant relief. I do hope this helps you. Good Luck and a speedy recovery.:)"
04/14/2012: Connie from Slc, Utah, Usa replies: "Hi Mark; This doesn't look easy, but I'll put forth some guesses. Zinc may be needed. It is often times low in people who have become ill with cancer and a large variety of infections. Zinc is active throughout the body, including the nerves. The symptoms of zinc deficiency usually include problems with taste and smell, gastrological disturbance, gonadal disturbance, and growth problems, but there can be many more symptoms. Some types that are easier to find are; zinc gluconate and opti-zinc; I have found these to be effective. Also, a food derived zinc may be gentler on the stomach if sub-divided. There's a zinc-l-carnosine type that may also be easier on the stomach. If taken for long term, a small amount of copper may be needed. ( There are cases of neuropathy that were caused by zinc toxicity that then caused a copper deficiency. These cases were the result of extreme amounts of zinc used, however... in the form of denture adhesives.)Also, some supplements can worsen neuropathy if taken in too high doses for an individual. B1, B6, ALA, Acetyl-L-Carnitine, etc, may cause irritation.
I found B12 to be most effective for my neuropathy, but it took many months to heal... About a year. But I've also found Zinc to be enormously beneficial for nerve healing. It may take a month or so to see results."
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ACETYL-L-CARNITINE
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[BETTER BUT NOT CURED] 02/09/2009: Mike from New York City, New York: "I have been taking Acetyl-L-Carnetine for a couple years to combat my peripheral neuropathy. It has been recommended by a neurologist in New York. My feet are progressively doing worse but I don't know how much worse they would be without it. I also take Alpha Lypoic Acid. I take about 3000mg of Acetyl-L-Carnetine a day. I am looking for whatever works. I have the neuropathy through anti-hiv meds and possible from the virus itself."
Replies02/10/2009: Robert from Manhattan, New York replies: "Hi Mike you may try seeking the help of Qingcai Zhang, M.D. He has a long history in treating chronic viral diseases with modern Chinese herbal medicine and is based (I believe) in NYC. http://www.sinomedresearch.org/drz.htm"
[BETTER BUT NOT CURED] 01/14/2012: Brad from Owensboro, Ky replies: "I am not saying anything conclusive yet, but I have been taking Acetyl-l-carnitine for three days. I had numbness, tingling and sometimes burning in my feet. I have been taking 800mg daily. After three day they feel remarkably better. I will post further as time goes on."
01/14/2012: Courtney from Granite Bay, Ca replies: "Brad - have you tried Alpha Lipoic Acid supplements? It completely cured the neuropathy in my feet. I remain amazed at how well it worked."
01/16/2012: Timh from Louisville, Usa replies: "Brad, Acetyl-l-Carnitine is very similar molecule to Choline and has remarkably similar action on the body; so you might get the same results by supplementing some kind of Choline product (Soy or Sun Lecithin is a favorite). Either will work, but do not use both as they will only compete against each other."
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ALPHA LIPOIC ACID
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[YEA] 06/25/2011: Liz from Boston, Ma: "Months ago, I added Alpha Lipoic Acid (100mg 3x per day) to my daily supplements for its antioxidant properties. After about a month, I noticed that the intense foot burning and pain I'd been experiencing for years was GONE! Yay!!
Just an FYI - the dosage I take is a low one (300mg/day). Those suffering with different types of neuropathy could go as high as 800mg/day."
Replies10/26/2011: Monique from Elllington, Ct replies: "I have extemely severe neuropathy in both feet which is getting worse. I'm scared. I've tried the alpha lipoic acid and acettyl-l-carntine and everthing else too. Nothing, not even pain meds like oxycodone touch the pain. I have a 7 and 8 year old to raise and the pain has become unbearable. Any suggestions from anyone would be greatly appreciated."
10/26/2011: Bess from Calgary, Alberta, Canada replies: "Hi Monique - You may want to increase your Vitamin B12 (Methylcobalamine - take sublingual tablets) and ensure you take a Vitamin B Complex as well. I've read that Vitamin B12 protects the sheathing surrounding nerve cells and can promote regeneration and growth of nerve cells.Also, be tested for Vitamin D deficiency (mercola.com or Vitamin D Council have lots of info on this). If you do an Internet search for "vitamin D deficiency neuropathy" you'll find lots of information suggesting you get your Vitamin D levels up. Good luck!"
10/26/2011: Debbie from Melbourne, Australia replies: "Monique you can try "earthing" for your pain. The most simplest way to do earthing is for you to sit with your feet barefoot on the earth (or grass). You can do some research but I have read it helped someone with neuropathy of the feet.If it helps you can also back earthing sheets for your bed and even the computer. The best shoes to wear are leather soled shoes because they still earth you to the ground.
Lots of info available on earthing.. May be worth a try... Just sit or outside barefoot and see if it helps. Would love to know how it goes."
10/26/2011: Janet from Kendal, U.k replies: "My partner too suffered with neuropathy, that was till we discovered MSM and Lecithin from his first dose he got almost instant relief. And after only a month or so has never had it back. Hope this helps."
10/27/2011: Timh from Louisville, Usa replies: "Monique, I too suffere this condition. Have you tried the prescription Gabapenten? My digestive issues kept me from using it, but it is standard treatment in conventional med. My best relief came as I started using Magnetic insoles for my shoes. The results were immediate and continued to better several days later. Daily use greatly reduces the pain and numbness of this condition."
10/27/2011: Ale from Cardiff, Uk replies: "Hello Monique,A friend of mine had a crippling neuropathy in both feet and couldn't even walk. She went to get osteopathic adjustments just once or twice and now the pain is almost completely gone. You might want to find a good osteopath in your area and give it a try. Good luck!"
10/27/2011: Deb from Wloo, Ia replies: "My ex had severe neuropathy and many more problems. He decided to go on his diet as he found out that he was a celiac at age 55 but didn't bother to follow the diet. :) He finally tried his gluten free diet at 61 and after just two days he felt much better. Now three years later he is 99% better. Doesn't have acid reflux, brain fog, out of breath, tired, pain in feet and legs."
11/15/2011: Shrikant from New York replies: "Hello.... I had feet burning for a long time(2 - 3 years). Earlier to that I found my feet was paining a lot. I am diabetic for the last 30 years. Obviously it should be diabetic neuropathy. Recently I tried Benfontamine (fat soluble Vit B1) 200 mg twice a day alpha lipoic acid 600 mg Methylcobalmin (B12 variety) that aids the process of methylation. I found that the feet burning has been controlled substantially. I used to take alcohol in moderate amount. The day I take alcohol my feet burning erupts and the day I stop it goes away. I think alcohol has something to do with my feet burning and I have now decided to discontinue alcohol altogether! Let us see. I am sharing my experience with all of you and welcome your views by email: shrikantbadve(at)yahoo.comShrikant
New York"
02/13/2012: Ms from Honolulu, Hawaii replies: "I also took the same Bs as Shrikant (the fat soluble B 12 & Metacobalin) and my neuropathy in both feet that I had for a few years got better THE NEXT 24 hours I could tell - a difference for the better. I am now still on the fat soluble Bs and it has been 1 1/2 years now. The tingling, the extreme sensitivity, the sudden jerking jolts of what felt like electric shocks within my feet are all gone. Only thing is lately, I have noticed a tightness appearing and I cannot bend back my toes towards me comfortably. Don't know why..."
02/13/2012: Maria from Gippsland, Australia replies: "Hi Ms (from Honolulu), If it feels like that they might cramp if you move them any further then I would suggest magnesium. Works for me if my toes feel like or do cramp. Even if it is not cramp it would be worth trying some mag."
04/29/2012: David from Westford, Ma replies: "I was diagnosed with peripheral neuropathy in November, 2011. The excrutiating burning on the bottoms of my feet had gotten progressively worse and I really thought my days were numbered. The last thing I would ever want to do would be to go on disability but it seemed like that was where I was headed. I have done everything to help myself. Mind/body 8 week course to learn to live with chronic pain, accupuncture, diet, meditation, yoga and more. Three days after I started ALA I thought my pain had started to reduce.Now 6 weeks later except for minor discomfort now and then I don't think about my feet 24/7 anymore. I actually drove myself to the Museum of Fine Arts and walked around last week for a couple of hours forgetting that a few weeks prior I never could have done that. I feel blessed to have found ALA if this is why I have gotten better. I have also stopped all statins as I tried just about every one of them. I also discontinued amlodipine as the swelling it causes of my feet I was sure was aggravating my pain. I now take 900mg. Per day and wonder if that is too much? I have read many research articles on ALA and they seem to agree that IV ALA does help neuropathy. There don't seem to be any conclusive studies on oral ALA. I am looking to try and find whether ALA can actually cure Neuropathy or if you need to keep taking it?"
04/30/2012: Sandy from Detroit, Mi replies: "Have you looked into taking b-12 also? Many are b-12 deficient and the symptoms are linked to this. B-12 is best taken in methyl form (sublingual for over the counter) and/or shot or nasal prescription. Many reasons why this deficiency is very common."
05/03/2012: Normared from Knoxville, East Tennessee, Us replies: "After a bad two-week long spell of sharp, needle-like pain in my feet I looked at this site for advice. At my next doctors appointment a few days later, I checked with him for his opinion, and based on that added ALA to my treatment (which was metanx pills he gave me last year). Within 24 hours of taking one 600 mg tablet of ALA the pains were down by at least 50% intensity, and now a week later they are almost completely gone. A few days ago, I also added a B complex, and plan on adding a B12 lozenge too.My doctor - a foot doctor who specializes in neuropathy - had no problem with these 'additions', in fact he is the one who suggested B12 in a lozenge form, not a tablet. I'm now a strong believer in taking ALA B vitamins for those pains in my feet!
BTW: Bought my 600mg ALA tabs at GNC - they've got an amazing vanilla flavor and are a pleasure to take! I take 3 per day and a Bcomplex once a day."
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[YEA] 09/22/2009: Ellen from Arlington, Tx: "Alpha Lipoic Acid for Neuropathy
I have a pinched nerve in my back which causes peripheral neuropathy. I have been using ALA for almost 2 weeks now and my symptoms have improved I take 300 mg (time released tablets) twice per day."
Replies09/23/2009: Marie from Philadelphia, Pa replies: "Hi, I have a pinched nerve also in my lower back and I have not been diagnosed with neuropathy, I do have symptoms like neuropathy. I did research on EC and other sites regarding alc and alpha lipoic acid is helping me also. I take 400mg a day."
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[YEA] 12/03/2008: Sharon from Sacramento, CA: "My mom has peripheral neuropathy not caused by diabetes. She complained every day and it had started to cause a persistant burning in her forehead also (a form of pn according to her neuologist) She now takes 300mg of alpha lipoic acid daily and no longer has the forehead sensation and feet are much less painful. She stopped for awhile and within weeks was complaining of the old symptoms. She resumed the supplement and symptoms abated."
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[YEA] 10/31/2007: Trenna from Elyria, Ohio: "I have severe neuropathy and my head shakes. I went to a health food store and got alpha lipoic acid amd have been on it for eight days and it has been wonderful. I no longer have pain and my head doesn't shake. I feel like anew person.I hope this can help someone else. It's nice to go out and not be stared at."
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B-12
08/24/2011: Connie from Slc, Ut: "Hi John P. ; I do hope you're having some improvement by now with the B12. Have your symptoms changed at all? Oftentimes as nerves heal, numbness, tingling, and pain can alternately diminish and return temporarily. Temperature sensitivity can also shift. Although I've tried numerous subtances for neuropathy, the B12 has worked best far and away. But this only means that it worked for my case. (though there are many case studies to support B12's efficacy with neuropathy). Still, the folks here are offering good suggestions as these supplements also have an excellent track record for treating nerve injury. I also welcome suggestions because someone may just pop us the right answer!
I see you are trying transdermal applications. It still surprises me how powerful they are. In fact, I cringe when I recall that I've coated my hands with paints that were loaded with heavy metals. Then I would use nasty solvents to remove them. Now I use gloves. But I do use the solvent, DMSO with some transdermal applications. I've added 4 (20mg) B12 lozenges, crushed with a mortar and pestle, to a 1 oz. Dark glass dropper bottle, mostly filled with DMSO. I shake it vigorously for a few minutes until dissolved. This is an approximate recipe developed by Dr. Gregg. I've used this off and on for several years with good effects. I buy the DMSO and supplies from a chemical shop. The mixture is a bit sticky, and the flavorings make for an unusual scent, but it did help me. I would often use it on my left hand which had become frighteningly stiff and numb. I'm now trying it on the small numb spot on my heel to see if it speeds recovery. Castor oil is also a great medium to use either alone or with added essential oils, some good warming ones could be : Oil of Oregano, Cinnamon Oil, Black Pepper Oil, and Ginger Oil. Cayenne is very warm, but I have only seen it as a powder or extract. There are some ready-made salves, but some are with cooling mints. I do have one that is warm, it is called Badger sore muscle rub. It is mild. Good Wishes."
Replies08/25/2011: John from Plymouth, Ma replies: "Hi Connie, You sure are certainly informed with regard to P.N. And many other things. I cannot thank you enough for your time and support. You are heaven sent. You will indeed get your hit record.Regarding the magic bullet for P.N. I'm going to give benefotiamine a try, if all else fails. I have researched it throughly. It's a man made form of Vitamin B-1 (Thiamine).
Again, NO ONE was put on Earth to suffer. We all are here to thrive.
Bless you."
08/26/2011: Kelly from Cambridge, Ma replies: "John - Have you tried Alpha Lipoic Acid capsules? It's worked wonders for me and scores of others."
08/28/2011: John from Plymouth, Ma replies: "Kelley, Yes I have tried Alpha Lipoic Acid, but for another issue... It did not agree with me... It made my hear race terribly... Don't know why... That was about 10 years ago.. I have recently found out that by eating raw potatoes you can get your Alpha Lipoic Acid... I don't know what the strength would be though... It is something I will certainly consider...Thank you very much for your concern and time posting you recommendation... It is greatly appreciated...
This too will pass.......
Bless you"
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08/20/2011: Connie from Slc, Ut: "Hi John P. ; A few days ago, I asked myself ; What has B12 not done for you? My hair is still 40% gray, and I haven't yet written that " hit song". Each day is a bit better, but it's so slow for me. When the neuropathy was at its worst, I began with a litany of supplements to cure it , but I was using so many at the same time , I couldn't discern what was working. I became confused. My studio became an apothecary. When I look back, I realize that there were so many obvious clues for me, but I was distracted with pain and fear, and I had spent my life on denial of my instincts. I've got a way to go with that. What I'm learning from you is that you are going about your healing process logically and methodically. I appreciate this. Although B12 is not the only one thing , Its pretty dang'd powerful. There have been and there are currently tests being done for people with MS and early ALS to at least improve their status. The amounts being used are 50 mgs. Daily by injection. This means that there could be a wide variance in an individual's needs. I've tried a wide variety of amounts, and I'm still somewhere between 2500 - 5000 mcgs. Daily now.
I've " haunted" some forums, and it appears that other people are trying a wide variety of amounts, but, most seem to be settling in the 1000 - 5000 mcg. Range. Some are lower, and some are extrordinarily higher. I have been influenced by this information, so I need to be mindful of it when making suggestions. Another thing I am noticing about B12 is that it is raising my body temperature and I am feeling warmer. ( I've read this and now I'm seeing it. I'm at 98. 2 degrees now). I believe it will help with cold legs eventually. I also believe that massaging legs and feet with oils can be wonderful. (my skin is dry, so I use castor oil). I've used various salves for pain with good effects. Since you have coldness, I would recommend that warming spices be added to your salve, such as Ginger, and Cayenne. Ginger has been recommended to raise body temperature and improve circulation. ( internally and transdermally) Best to You."
Replies08/23/2011: John P. from Plymouth, Ma replies: "Hi Connie, Thanks for the great suggestions.... I currently rub my legs with magnesium oil fro "Ancient Minerals", however I don't know if it has been working as I have been doing it for only 2 weeks... No results... Yet... Rubbing castor oil may be a good idea as it is highly recommended for hep-c in a pack against ones liver for an hour or so per day via Edgar Casey and many other current people... So transdermally it may help significantly... I will try it on just a small part of one leg and see if I get any kind of reaction with my hep-c.... I am so cautious with adding things as I have had bad reactions to many things... I feel this is because of my liver..Thank you again so very much, John P."
08/24/2011: Janet from Kendal, U.k replies: "Hi, Don, t know if you have tried but my partner got INSTANT relief with MSM. Any twinges and he takes a teaspoon full and within no time GONE!!"
08/24/2011: John P. from Plymouth, Ma replies: "Thank you for the suggestion... I will try it today... I truly believe there is a solution/remedy out there for all the ailments listed... I assume you mean Magnesium powder... Never heard of it, but will try to get it...NO ONE was put here to suffer...
Bless you"
08/24/2011: Janet from Kendal, U.k replies: "MSM:-(Methylsulphonylmethane. ) It's available in tablet or crystal form, the crystals are said to be quicker absorbed. Health food shops sell it or available online. It, s sold usually to supportjoint comfort and mobility. We googled what are the health benefits of MSM for diabetes, and came up with a great page explaining all about it. Usage , dosage, etc...."
08/24/2011: Anna from Toogoolawah , Qld Australia replies: "You should use only Magnesium Chloride for oral use, and it should be Food Grade. You can buy it from Food Ingredient companies in NZ and Australia by the kilo. Costs about $33. Checkout Paddy Melon & The Melbourne Food ingredient Depot. They supply all the Vitimins and minerals to the food manufactors in Australia, and they will post it to you. I buy all my stuff there or in a produce store where I is much cheaper than Natural food stores. Magnesium Chloride is a wonderful mineral for lots of ailments taken orally and as a bath/foot soak.Good luck "
08/25/2011: John from Plymouth, Ma replies: "Thank you for the information...God bless...."
08/25/2011: John from Plymouth, Ma replies: "Hello Anna, At what strength did you use magnesium chloride? How often per day?.. Pill or powder?Thx much..."
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08/19/2011: Connie from Slc, Ut: "Hi John P. ; I truly hoped that you had knocked that neuropathy out of the park right away, but it usually does take time to heal nerve inflammation. It took about 8 mnths. For me , 3 1/2 yrs. Ago. Then, when I stopped taking it daily, and regressed, it took several months to again heal the nerves. Even after restarting B12, I still regressed during the first month. Now in my 6th month, I have a small, shallow numb area on the heal of my left foot, and it is recovering feeling. The area around it is sensitive and tingly. This means that time is necessary. Also, it means that we're going to have to get more technical with your process.
Firstly, I've read that oftentimes with liver trouble, potassium could go low. That can cause some cramping and pain. If you are not taking any potassium sparing meds. , such as some certain diuretics or anti-hypertensives, then consider increasing potassium foods. ( careful with the sweet ones, they can cause pain). Consider getting a copy of blood test and observe electrolytes. ( I find I feel best when K is about 4.5 mEq/L). Fresh vegetable juices are great, carrot, celery, and added greens. Smoothies are also a great option, as are homemade broths with the retained liquid from the veg.
As I see that you have expressed a sensitivity to acids, I agree that reducing them is a good way to alleviate pain. The nerves are exposed, and even beneficial acids can cause pain now. Although citric acid is natural and good, it is added to so many foods as a preservative, that it is easy to get too much. Even ascorbic acid can cause pain. I don't recommend total avoidance, but some reduction. I recommend a food type B-complex. (new chapter). It's expensive, but less is needed. I've found that it doesn't cause pain when taken with meals at 1/2 to 1 tablet. B1 and B6 are good for nerves at lower dosages, ( personal opinion ). Also, the fat soluble vitamins, A and D, can be difficult to metabolize when there is liver trouble, so I recommend getting them from food rather than supplements. Good Wishes."
Replies08/19/2011: John from Plymouth, Ma replies: "Hi Connie,ThanKs for the reply... I'm wondering what amount of B-12 are you currently taking? I have gotten up to 10, 000mcgs... I went very slow for obvious reasons... I have only been on this for less than a month... If it took you 6 months, I guess it will not be overnight with me either... I tried taking lecithin and it thinned my blood out (assumption) and I have gotten very cold as of today... I got a commendation to rub coconut oil on my body... Don't know if you've heard of this... I may try it on a small part of my leg for starters and see what happens...
I am extremely grateful for your advice and your quick response...
God bless, John"
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08/18/2011: John from Plymouth, Ma: "Looking for Connie from Utah...
Hello Connie,
You gave me a remedy for my Periphal Neuropathy... I am now up to 10,000 mcgs of B-12 and still have pins and needles and severe cramps in the middle of the night in my calves... My legs are cold from the knees down and we're in a heat wave in August.... It seemed to subside initially, but the full neuropathy is still there... I have been doing it for about 3 weeks.. Is this something that may take months to resolve? Any feedback will be greatly appreciated... If you recall I believe that hep-c has caused this neuropathy...
Thank you..."
Replies08/19/2011: Janet from Kendal, U.k replies: "My partner also suffered with this due to his diabetes, he was already taking ACV and CO, this seemed to help his blood sugars , but not the pain.However literally after the first dose of MSM he got instant relief, he continues to take it but rather on an if and when need basis. Also we read that LECITHIN can help, which he also takes, daily, due to a relative short shelf life. He is so much better.!!! Oh I hope this helps , any one that suffers this puts up with so much.:(."
08/19/2011: Robert Henry from Ten Mile, Tn Usa replies: "HI U JOHN,My neuropathy is due to diabities and I take Alpha Liopoic Acid intravenously and by pill. A lady who has hep c was the person who got me on this regime. It helps."
08/19/2011: John from Plymouth, Ma replies: "Thank you for the feedback.. this is something I will certainly consider...John"
10/21/2011: Kate from Avon, Ct, Usa replies: "Hi John,I can feel your pain.. Literally. I've been suffering from horrific pain in my feet for almost 3 years now. As of the past few weeks, it's began to spread up my legs and I am experiencing stabbing sensations and cramping as well(grrrrr). I have a long history with Lyme Disease and co-infections so since I test negative for literally everything else the docs can come up with, it seems Lyme is the origin.
I have been on Neurontin for as long as Iv'e had this problem and about 6-7 months ago began a strict regimin of ALA, Benfothiamine (600 a day), Acetyl-Carnatine and more. I seemed to hold for a while but now things are exploding and I have no idea why. I have been taking 25mg B12 injection 3x's a week for about 4 weeks now. To no avail (sigh). About 2 weeks ago I decdied to give up carbohydrates in another desperate attempt to stop this incredible pain.
I hope and pray you find relief asap as so many posting here have. I have learned a lot simply by stumbling on this thread so I thank you for that.
A great sight with a TON of info on supplements, etc for neuropathy is "Neuro-talk. " Find the peripheral neuropathy section.. there is a tremendous amount of information to be had and much like here, a tremendous amount of support.
Be well, Kate"
10/26/2011: Monique from Elllington, Ct replies: "Kate, you are not alone. I've had terrible Neoropathy in both feet for 4 1/2 years. Its a terrible way to live. I'm trying to research cures and came across this site. I even had a Spinal Cord Stimulator trial implanted but it didn't work for me. Supposedly though, it helps lots of people. I haven't read many people on this site who have tried it. Also, I guess there is a nerve root stimulator too which is similar and works for 2 out of three people. I went to the Lahey Clininc in Burlington, MA for my SCS. It's something you cna look into. I'm at a point I don't know what else to try, has anyone had luck with acupuncture? I tried it years ago with no sucess but I'm going to try again. I have a 7 and 8 year old to raise and can't go on feeling like I do. I have a high tolerance for pain but it's even more than I can take now. Good luck yo you. Let me know if you find anything out.Monique"
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BENFOTIAMINE
04/15/2011: Eugene from Portland, Oregon: "Hi Folks:
Benfotiamine appears to work to reverse Neuropathy, such as those who can no longer feel their feet, etc. Please read all about it here:
Although you can purchase it at the above website, I got mine from beyondacenturyonline.com because it is cheaper (bulk powder).
Take Care, Eugene"
Replies08/19/2011: R. from Dallas, Texas replies: "Eugene, Its been 4 months since you started, how is this Benfotiamine working for you? I am interested in trying this out! I have tried everything else and nothing seems to work for very long periods of time! Thanks in advance!"
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BULBINE
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[YEA] 03/11/2012: Jill from Clayton, Ca: "I have been suffering from peripherral neuropathy for over 2. 5 years now. Being tired of not finding relief at night, I came up with a solution that works for me. In my garden, I grow Bulbine (very prolific and similar to aloe vera). Since my feet were burning, I thought it might help putting it on my feet. The burning stopped until the gel dried. So, I place several stems of the bulbine between sulifane wrap and roll a rolling pin over until all the gel is squeezed out. Then I wrap my feet before going to bed. In the middle of the night, I have to take the wrap off, but the burning and tingling is minimized greatly for the entire night."
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EPSOM SALTS
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[BETTER BUT NOT CURED] 11/03/2010: Alice from Oro Valley, Arizona: "I've been successfully taking the vitamin formula to correct peripheral neuropathy in my feet. However as the numbness clears up I found the tingling itch on the ball of my foot driving me up the wall. Finally I tried soaking my feet in warm water with about a quarter cup of epsom salt, and it is bringing relief."
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MULTIPLE CAUSES
09/03/2011: Sue from Phoenix, Az: "Estrogen can morph into neurotransmitters. So on some level you could say it is a neurotransmitter. As hormone levels drop neuropathy can occur. Neuropathy in women can start within a decade of approaching menopause. There are quite a few studies out on estriol and Parkinsons as well.
If you know a senior lady who suddenly developed some neurological condition who is trying to find some answers, a good question to ask is "Did you recently stop taking estrogen?" I know of several women who developed neuropathy after 30 years of estrogen therapy- just stopping. There are some natural safer ways to increase estrogen, I understand.
What helped me was a very small daily dose of natural thyroid (not the synthetic). I tested fine but my body temp was always around 96.8. Subclinical thyroid conditions do exist and if there is neuropahy it is worth researching as well. I did not know it would do this. I was just tired of wearing a winter coat at work and shivering in the desert.
If iron is low neuropathy can occur. My experience is that the homeopathic Carc Carb 6x or blackstrap molasses (huge section in this site) was real helpful. I used to go to a Dr. In Pa who demand that you take blackstrap molasses every day. If you did not he could tell.
Anyway it is worth doing a search on the following: "Estrogen Neuropathy" "Menopause Neuropathy" "Anemia Neuropathy" "Hypothyroidism Neuropathy" "Estriol Parkinsons" Estrogen Neurotransmitter"
Another thing that can help is searching "Dosha Test" If the body type is Vata neuropathy can occur. There are ways to make corrections to diet and sleeping schedule that can bring relief."
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MULTIPLE REMEDIES TRIED
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[NAY] 02/16/2010: R. from Dallas, Texas, Usa: "Does anyone have any suggestions to ease the discomfort or to cure Peripheral Neuropathy? I have been using ACV(twice a day), Baking Soda(once a day), Vitamins B6, E, Selenium, NAC(N-Acetyl-L-Cysteine) and these are not helping yet. I am taking some prescription meds that are suppose to help, Gabapentin, and Amitriptyline and these are not helping either. Any suggestions would be greatly appreciated! Thanks in advance!"
Replies02/16/2010: Rob from Manhattan, New York replies: "This from Dr. Weil...Your first step should be a general medical checkup to determine if an underlying disease or injury is the cause of your symptoms, and if so, to determine its nature. Your doctor should do complete blood work and may refer you to a neurologist who will probably do an EMG (electromyelogram) to assess muscles and nerve conduction. If you have no underlying disease, you can try one or all of the following strategies:Take one B-100 B-complex vitamin daily. The B vitamins are necessary for normal nerve function, and supplementing is a good preventive measure. Do not take more than 200 mg of B-6, as higher daily doses can actually cause symptoms of neuropathy.
Take 100 mg of alpha-lipoic acid daily. This antioxidant protects microcirculation to the nerves. You can gradually increase the dose to 300 mg twice a day over the next month."
02/16/2010: Selena from Chula, Ga replies: "I have raynaud's syndrome where circulation is lost in my fingers and toes sometimes for a few minutes and sometimes for longer. the other day I had an episode with my pointer finger where it was white and cold from half my finger to the tip and I decided to try cayenne pepper. i mixed the cayenne pepper from my spice rack with some vco (any oil would probably have worked). my circulation started back quickly. This is the first time I have tried this. maybe it would help you as well....Be sure not to get it in your eyes and wash your hands good afterwards...because it will burn any cuts or sensitive areas you might have. I have also read that taking any type of blood pressure pills and/or mineral deficiencies cause neurapathies..."
02/16/2010: Saba from Mentor, Oh replies: "Have you tried ALPHA LIPOIC ACID? I read 3 YEAs from people who used that. Good luck."
02/17/2010: R. from Dallas, Texas, Usa replies: "Thanks to Rob, Selena, and Saba for your responses!
Yes I have an underlying disease that causes this, as well as the meds I take for this disease can also cause neuropathy. And yes I have had all the relevant tests. Will go by some B-100 B complex, and some Alpha-lipoic acid. I have taken the Cayenne in capsule form for other problems as well, and it worked for that. So will mix it with oil as well. The neuropathy is mostly from my knees down to my toes. This Neuropathy is very frustrating mentally more that anything else, and after 19 years with this disease, this has been my biggest challenge yet. Will let you know how these new ideas work. And thank you all again!"
[BETTER BUT NOT CURED] 05/16/2010: R. from Dallas, Texas, Usa replies: "Peripheral Neuropathy: Better But Not Cured: If there is a cure? Just wanted to update with the latest from previous post. 3 months ago Rob and some others suggested Alpha Lipoic Acid. I have taken this for the last 3 months, and it has gotten much better! I started out with 1 100mg tablet, three times a day, and have had to add a 100mg tablet twice in 3 months, because the discomfort returns. But as soon as I up my dose, it goes away. I am currently taking 500mg a day. I guess I keep upping my dosage until I reach the maximum, then what? lol.."
05/19/2010: T from Brooklyn, Ny replies: "Hi there. I was reading your post and I wondered to myself: have you ever been tested for heavy metals? I have read plus spoken w/ several holistic practitioners that say heavy metal toxicity may, or even perhaps, be linked to many neuro-degenerative diseases. I raise the issue because about two years ago, I mysteriously "came down" with a neurological disorder that not only affected the quality of my life (I was fairly healthy and happy-go-lucky) but also my ability to walk w/ both a straight or defined gait. That is, my vestibular system suddenly became out of whack and I felt (and still feel) like I am walking on foam all day long. Initially, I was told it was labyrinthitis, then just simply vertigo, then Meniere's, then it was incurable, then specialists didn't know....and so, you get the picture. :0(
After much research (of my own - traditional docs became useless) - I learned I am indeed suffering from heavy metal poisoning (I have six old amalgams one fairly recent - yr old - root canal that may have stirred up some dormant issues or introduced more metals into my system to which my immune system could no longer handle things efficiently).....and so as my body hit a "tipping point" - I was left w/ a laundry list of symptoms that had me suffering from incredible fatigue and pain. One of these symptoms - like u - was nerve pain in my hands, legs and feet. I thought I was developing peripheral neuropathy (but since I didn't want to go to the doctor anymore) I researched some remedies and found improving my diet helped a great deal, alongside doing TRANSDERMAL MAGNESIUM THERAPY.
When I learned that magnesium (a salt) is such an important macro-mineral in the body - and is especially important for the nervous system (both for conduction and relaxation)....I tried the remedy and have never had any more nerve pain symptoms (in my extremities) to date. I still have the gait issue but that I am working on as I still have the metals in my mouth (saving for the dental procedure to remove them by a holistic dentist). [As a sidenote: heavy metals are known for depleting the body of vital minerals.] When dealing w/ prolonged heavy metal exposure (or overall toxicity) our biochemical/electrolyte make-up becomes seriously compromised. Magnesium is one of those minerals that needs to be replenished in the body almost everyday. The remedy I use is in the form of a foot bath. Magnesium oil or magnesium bath flakes are the ideal choice. Allow your feet to soak in warm water (w/ the oil or flakes) for 20-30 mins. The Mgn works almost immediately as it is quickly absorbed through the pores on your soles of your feet. Its a pretty simple treatment but IT WORKS. I did this for a duration of 5-7 days straight....took a break for a wk or two (symptoms were gone at this point)....but if I felt like I was experiencing any other heavy metal related symptom (ie. joint/muscle pain, chest pain, teeth grinding)....I did it again....and the symptoms subsided. In essence, its a staple treatment I use (in conjunction w/ cleaning up my diet) to both manage and sustain my day-to-day functioning.
God Bless You!"
[YEA] 04/08/2011: Michelle from Austin, Tx replies: "I have had peripheral neuropathy for years. I have discovered several things along my journey. The absolute best supplement (but not a cure) for me has been transdermal magnesium oil or gel. One of the symptoms of magnesium deficiency is numbness/tingling. The reason to use the magnesium transdermally is that you can get more absorbed directly into your system without the possible side effect of diarrhea which can occur with oral dosages. I have tried many brands, but Ancient Minerals is hands-down, the best. It is made from condensed sea water. Since it can sting a little if you have sensitive skin, I just rub it on my feet twice a day and then put on socks. You should not use the magnesium if you have kidney problems or low blood pressure. If you do end up trying this, you may want to give it several weeks to a month before determining if it is helping you. Supposedly once magnesium is depleted, it is notoriously difficult to replete.I have also discovered, that the main reason that I am so magnesium deficient is because my body is too acidic. Most people (myself included) consume a Western diet that consists of a of processed foods, meat, dairy, etc. , all of which are acidic. In the body's attempt to neutralize the acidity of the blood, it takes copius amounts of calcium, magnesium and potassium from different places in the body (bones, etc) and uses them to buffer the blood (make it more alkaline). If your problems persist, you may want to try an alkaline diet. You can also drink water with 1/2 tsp of baking soda dissolved in it (on an empty stomach, at least 30 minutes prior to eating), as this greatly helps to alkalinize your body. Hope some of these suggestions help. I know how miserable it can be to experience these symptoms!"
10/26/2011: Monique from Ellington, Ct replies: "Hi, I suffer from extreme neropathy pain in both feet. I'm constanly trying new "cures' but haven't tried the transdermal magnesium therapy. Thanks for the tip, it will be the next thing I try ASAP. I always wish some brillant doctor or person could create some type of "cooling gel" that could be injected into my feet and have the substance cover my nerve endings so that the pain message wouldn't go to my brain. Isn't there any way someone can do research andcome up with a cure. I'd be willing to invest my time with anyone respectable to research cures. I even went and had surgery and had a Spinal Cord Stimulator trial implanted in my spine at the Lehey Clinic but it didn't work for me. Supposedly, it can help a lot of people but it didn't reach my feet (the toughest location to get at) and added a tingling in my back and legs I couldn't stand. Other patients with success swear by the SCS so it may be something others out there can look into, there is also a nerve root stimulator I'm investigating. Best wishes to anyone with this disease. I know first hand how difficult it is to live in constant pain 24/7.Monique"
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REMEDIES NEEDED
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03/01/2012: Elhadj Ben Mohamed from Gouro, Mauritania: "I HAVE SOME PROBLEM IN FOOT NEUROMA."
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09/11/2009: Pauline from Sebring, Florida: "Question to Ted,
My sister has Neuropathy and she's not a diabetic. The doctor said, it was a very rare case for someone to have this disease that's not a diabetic. This doesn't run in our family so, we don't know to much about it.
My sister has this disease in her feet and legs, now it has gone into her hands and arms. this disease damages the nervs in the body. It causes deformity in the toes and fingers, and I think it's progressing faster than what it should.
She can hardly sleep at night because the pain is unbearable, and she can hardly walk. The medicine that the doctor gave her the last time she had some bad side affects from it.The doctor said, that this disease could not be cure and she had to live with it for the rest of her life.
Her toes have already deformed and now she has some big knots on her fingers. She also has Glaucoma. I hope and pray that you know something that will help my sister. I would appreciate it so very much. I'll be waiting to hear from you.
Pauline"
09/12/2009: Bob from Memphis, Tn replies: "I also have neuropathy although mine was caused from excessive alcohol use. I have done a lot of research on the subject and it is suggested this can be caused from a lack of B vitamins. I take a B1 B6 B12 and a Bcomplex and it seems to help quite a bit. You might try this for your sister. Couldn't hurt."
09/12/2009: Pauline from Sebring, Florida replies: "Reply to Bob: I really appreciate the information you have given me for my sister which has Neuropathy. She's willing to try anything because the medicine the doctor has given her doesn't help. The last medicine he gave her she had some bad side affects. I'm going to get these B vitamins right away so she can start taking them. She doesn't drink alcohol or smoke.she's not a diabetic either. You're right if the vitamins doesn't help it won't hurt. When she takes these vitamins for awhile if it helps I will let you know. Thanks again for the information.
Pauline"
04/18/2010: Jan from Belen, Nm replies: "For me, I had been diagnosed with anemia a long time ago (in my 20s) but had then since forgotten to take supplements of B12. Because I am also a vegetarian, lacking this B12 my PA said it might have something to do with it. By adding foods to my diet that were higher in iron as well as B12, (I used a B12 sublingual for better absorption), my neuropathy that was caused by anemia has diminished. (I had tried liquid iron for better absorption and to prevent constipation as a side effect, but the supplement caused tummy irritation so I ate foods high in iron instead of supps.)
My husband got neuropathy as a side effect due to a medication he was taking. When he stopped that med, the neuropathy was also much lessened."
04/28/2010: Fred from Hong Kong, China replies: "Hi Pauline,
30% of people with peripheral neuropathy are diabetics. the rest are not. you need to first determine what is causing the neuropathy. many things can cause it. this is an excellent website for a basic overview.
http://www.ninds.nih.gov/disorders/peripheralneuropathy/detail_peripheralneuropathy.htm
you then need to find a doctor who has some knowledge of this disease. in my case i have seen 20 before i found one who knew what he was talking about, and even then i have had to do much of the research myself.
another great website is emedicine.com. don't trust your doctor.
good luck,
fred"
02/22/2011: Tezi1 from Portland, Or replies: "@Pauline in Florida, Hi.
I have non diabetic neuropathy like your sister and I am desperate to find something to help with the pain as my quality of life has declined so much. I am taking Lyrica that seems to help some but still cannot sleep at night and I cry alot. I already take the b vitamins and have been taking magnesium for a few years now for what doctors diagnosed as tinnitus. That is another issue, could be related tho. I have not found a Dr. in my healthcare system to really take a look at what is going on here. I also had radiation therapy for breast cancer and that could be a cause. Who knows, but I do agree with Fred. Do not trust your doctors. I am doing my own research and I have a list of questions for my doctor. ( I am going to try the magnesium foot soak & Alpha lipoic acid) Good luck!"
03/01/2011: E from Stafford, Va replies: "I have just been diagnosised with neuropathy, I am not diabetic. After too many x-rays, MRIs and blood test. The pain comes and goes in my legs with extreme pain, spasams, cramping in my feet. I wake up from a deep sleep with extreme pain. I am presently taking diclofenac, buspirone, baclofen and gabapentin and I still have pain. After sitting when I try to stand it takes me a few seconds to complete the process. I do believe that taking statin for my 200 level cholestrol started the problem. I have read many of the suggestion and will start B1 and B12 vitamins. Right now I have the oncoming of a cold. All of a sudden I seem to be going down hill. There is a holistic doctor in the area but his first visit is $300. and that is on top on the two specialist you have to see prior to getting an appointment with him at a cost $175. The imformation being shared is greatly appreciated. I pray that I can report back with some positive insight."
[YEA] 06/05/2011: John from Fairfax, Va replies: "hi E, I'm also in VA, tonight looking around for info on neuropathy. I have good news for you (I think). Two women, now my friends, had severe muscle pain in legs they are sure caused by taking statin drug. A book on Vit D3 that I got from my MD, said that D3 was good for pain so I loaned book to my first friend. She was into natural and supplements and was convinced enough to immediately start taking 4000 Units a day for a couple months. That took care of most of the pain, quite amazing. Also she was taking Co-Q 10 and Alpha Lipoic acid but I think it was the Vit D that cured her leg pain, dramatically. Later I met another woman previously strong and athletic though over 80, was almost crippled from muscle deterioration and pain, and had to take care of her husband with Parkinson's and Alzheimer's, so this was a huge crisis for her, she was staggering to keep standing up by that point. So I loaned the book and told her about my other friend who completely recovered from statin damage by taking the 4000 of D per day. She started doing the routine my friend had done, right away. This also worked.One of their neurologists, forget which, she told me, thought this recovery of nerve damage was not possible. If you want more info please contact me at johns138(at)yahoo(dot)com. I understand Magnesium is really good for cramps too, the only one I tried that I felt and could actually walk faster and further on my walks, it has bioperine in it to absorb better, Doctors Best brand of magnesium, outstanding! God bless. Hope this helps, much more to share: I recall reading that statins interfere with the body making Vitamin D, Co-Q 10 (very important for muscles including the heart), and other things the body needs to be healthy. I recall reading Canada tells patients receiving statins to be sure to take Co-Q 10 because statins deplete it. May the God of hope bless you real good now! With love in Jesus name, John and also I read good things about Krill Oil doing same job as statins but better. I felt really good when I tried it, and my friend said within 24 hrs of taking the krill, her severe joint pain was gone! it had hurt like a toothache in her hip which was worn out. God is love."
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[QUESTION] 06/07/2009: PATTI from RICHFIELD SPRINGS, NY: "I have been diagnosed with pheripheral neuropathy along with a blood cancer called Waldenstrom's macroglobinia. Dr has been giving me IV treatments and it has brought the IGm levels down somewhat. They assumed the neuropathy was connected to the Waldenstrom's and as one got better the other would too. But it has been the opposite. As the Waldenstrom's has gotten a bit better the neuroopathy has gotten worse. I just work up from a 8 hr 'nap' in the middle of the day, which is not uncommon. None of the drugs the Dr has given me for this work. I can't be on my feet for longer than 4 hrs at a time as my feet become very painful and I get elec stabs of pain in my thigh. Is there any help for this? The fatigue is ruining my life as I am too tired to do anything.
Thank you for any help."
07/16/2009: Denise from Hopedale, MA replies: "Hello....My sister underwent ovarian cancer treatments complete with the Chemo and all it's side effects. As a result - she has neuropathy from her elbows to her finger tips as well as her knees down to the tips of her toes. She has begun taking Vit B12 for this.She is also following the "Budwig Diet" (Google that !) and has bought a book by the author Bill Henderson who has helped many many people recover from cancer - or just keep it away ! I am not sure how the Vit B12 is working for her - as she just began it. The Vit B12 deficiency is definately worth looking into for chemo induced neuropathy - most neuropathy remedies I've looked for are for diabetic neuropathy. Discuss the Vit B12 theory with a nutritionalist or a holistic health practitioner. Best of Wishes to You...."
08/23/2009: Debbie from Denver, Colorado replies: "Patti, I have severe neuropathy in my feet and legs up to my knees, and now starting to get it in my fingers and wrists. I have been tested for diabetes numerous times over the past five years but I'm not even PRE-diabetic. About seven years ago I got electric shocks in my toes, and stepping on something (even a grain of rice) sent me through the ceiling in pain. I didn't think much of it but within two years my feet ached and were in so much pain 24/7 that I couldn't sleep and I could barely concentrate at my job. I could no longer play softball and volleyball, I couldn't go to fairs and walk around for hours, nor go explore sites on vacation. I used to walk my dog every evening but it is painful so I just go to the corner and back with my dog. I have gained 50 lbs in two years from being inactive. This has changed my life completely. I saw three doctors. The first gave me amitripilyne to get me to sleep. It worked wonderfully for sleeping. But I knew that I would become aware of the pain as soon as I woke up mornings. I was at a point where I didn't want to wake up anymore and if the pain continues to increase, I don't want to imagine what it will be like in 10 years. But, finally the third doctor was a neurologist who asked what my symptoms were and then told me it's neuropathy. I cried because there is no cure. But he said he treats others with this pain and found that if you combine two medications and take them at the same time, it will get rid of the constant aching and some of the stabbing pains. He gave me amitripilyne and neurontin. The first night I took them and woke up with no horrible aching for the first time in two years! I couldn't believe it!! When I went to work everyone was asking me how my feet were feeling all day long. I could concentrate at work and travel a little as required for my job. I still cannot be on my feet for hours and hours because I pay for it that night and all the next day because my feet will feel like all the bones are broken when I walk. It's still hard to live with because it has increased somewhat. But talk to your doctor about taking the two meds together at night, and in the morning take only the neurontin because amitriptilyne is very sedating and should only be taken before bedtime. I'm thinking of attending a support group nearby to see how others deal with it. I hope this helps you. It helps me to know so many people are trying to live with this pain."
08/29/2009: Gail from Goode, Virginia, Usa replies: "This is a response to Debbie who wrote about the drugs that the doctor put her on for neuropathy. I was put on the same drugs for the same problem that Debbie has, which is a peripheral neuropathy in my feet and legs. I've had it for 11 years, and it has not gotten better. These drugs are refered to as psychiatric drugs and they interupt the signal from the brain to inhibit pain from neuropathy; BUT, these drugs cause a multitude of other problems. After being on these same drugs, I stopped them 3 weeks ago, due to them causing two additional problems: overactive bladder and acid reflux (possible ulcer). The overactive bladder problem continued to get worse and worse (and the medication that the doctor gave me would hide the symptoms, but not cure anything). When I stopped the amytriptaline, after 3 weeks my bladder started to heal, I could think more clearly, and my foot pain was the same. Haven't found a natural cure for the foot pain yet; but I also have fibromyalgia (leg muscle cramps) as a result of not getting any cure for the neuropathy. I found a cure for the fibromyalgia, myself. And that is swimming. Swimming is strengthing my muscles and the cramps are very minimal; whereas, cramping pain was much worse when I was on the psychiatric drugs recommended by a medical doctor. If Debbie wants to find out about the drugs that she is taking and the aweful side effects that they can cause, go to the Mayo Clinic site and go through the links to the drug side effects link and look at the long list of medical problems they can cause in the future."
11/16/2010: Paula from Chicago Heights, Il replies: "For the nerve pain try the following tinctures: 1 teaspoon each of St. John Wort, skullcap leaves, fresh oats and licorce root. Add 1 half dropper of ginger rhizome and vervain leaves. For tight muscle spasms try valerian, skullcap and cramp bark. Also high doses of Vit B complex, alpha lipoic acid are very helpful. Look into a 'Tens Unit'. Another new and very promising therapy is prolotherapy - not too many doctors practice it. Look for an MD who practices prolotherapy. There is a Dr. Ross Hauser in Oak Park, IL."
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TURMERIC
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10/04/2010: T Byrd from Milan, Tennessee: "I am a caregiver for my 93 year old mother who has neuropathy. I started giving her turmeric for hip pain (cured it 2 diferent times). I ran out and it was 12 days before I could get anymore. I hadn't noticed before I ran out, but, after it got out of her system, she started complaining about her legs numerous times during the day. It dawned on me that she had not been complaining so much of late. Once I got her back on the turmeric, she stopped having the complaints. She hurts in the morning when she first gets up, then virtually none afterward. I give her 2-500 mg a day. I take 3 a day as it greatly helps my arthritis."
Replies02/10/2012: K from San Antonio, Texas replies: "I belive my neuropathy is caused by a course of Leqavuin 2 years ago. It started with a numb big toe and spread out. I've taken b-12 patches, Alpha Lipoic, Lecithin, MSM, acupuncture, Bach remedies, NAC, but what feels like a cure:This week
5 pieces of Turmeric juiced into my morning carrot juice, along with 2 packets of Liposomal glutathione.
I actually credit the Turmeric more than the gluathione, but the two in combination are alleviating all my numbness and prickling for the last 7 days."
[YEA] 04/28/2012: Janet from Fernvale, Queensland, Australia replies: "I also swear by Turmeric but my understanding is it needs to be heated and taken in conjunction with black pepper for activation. If I have fresh Turmeric I simmer it for approx 10 minutes but if it is powdered making a tea with boiling water is another way to go, I add ginger, black pepper and agave to sweeten and it is a very pleasant drink. I have this drink daily and the pain relief properties are amazing."
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VITAMINS B1 AND B12
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[YEA] 10/15/2009: Richy from Sunland, Ca: "I have found that B1 and B12 works well on neuropathy. There are certain types of B1 that are fat soluable (benfotiamine) so it doesn't just go out of the body, but the body can actually hold onto the B1 and use it to repair the nerves. There is also B12 that can be found that is methylcobalamine or methyl B12.. The body has to convert the B12 to methyl B12 before it can use it, thus getting it already converted means the body can use it. You can find these online, not usually in health food stores."
Replies04/18/2010: Kelli from Sioux Falls, Sd replies: "Definitely try B12 for neuropathy. It must be methylcobalmin and must be sublingual (under your tongue lozenges). It is unfortunate that you can't list brands because there are several brands out there but only two that I have found that are really good. I suspect it is the quality of the methylcobalmin. You must be consistent with taking it everyday but eventually the neuropathy will get better. It takes some time so be patient but it definitely works. B12 is water soluable so you don't have to worry about getting too much, your kidneys will simply remove the excess."
05/12/2010: Lilly from Washington, D.c. replies: "If Kelli could please email me the brands of b12 which you have found most effective, I would appreciate it. Email is lillymargaret302@gmail.com. Thanks"
05/18/2010: Cindy from Buckhannon, West Virginia replies: "I just wanted to comment on the B12. This is my first time on this site. My friend told me about it. I thought I would check it out. I have neuropathy. No doctor will diagnose why though. I do however have a TPO count of over 1000. TPO is the level of thyroid antibodies (which will eventually lead to Hashimotto's disease). Anyway, since my TSH level isn't high yet (which would mean hypothyroidism), they won't diagnose me with it. So, I did some research on my own. I am 29 now but the neuropathy started when I was 20. I didn't go to the doctor about it until I was 27. They put me on B12 shots. I did that weekly x 4 wks. My count went down! Eventually the number came up. Anyway, when my endocrinologist mentioned Hashimotto's, I did some research and found that Hashimotto's causes everything that wrong w/ me--neuropathy, B12 deficiency, Vitamin D deficiency. For some reason, Hashimotto's affects the lining of your stomach and you're just not able to absorb the B12. So, in my case, I can't take supplements--they won't work. I have to just keep taking the B12 shot until some brilliant doctor finds a cure for Hashimotto's disease (which I don't have, even though they didn't check my T4 count to make sure it was jiving w/ my TSH). I have found doing my own research is much cheaper & more beneficial."
05/18/2010: T from Maryland, Usa replies: "Your antibodies are a big red flag for Hashimoto's. How are you so sure you don't have Hashimoto's? What kind of ignorant doctor is trying to diagnose Hashi's by TSH levels?? Your TPO is way higher than mine was. Did you have anti-TG Ab testing as well?
I highly recommend Dr. Datis Kharrazian's thyroid book for those with Hashi's (or suspected Hashi's). That is the one that finally put many pieces of the puzzle into something that makes real sense.
Re: B12 - I take a sublingual B12."
08/17/2010: Cindy from Buckhannon, Wv replies: "To FU on my 5/18/10 post... Well, my mystery hasn't gotten any clearer. I am now getting neuropathy in my hands. I switched doctors and this one isn't much better. In the beginning he was going to run all these tests b/c my previous doctors had "completely missed the boat. " So, for my first test he scheduled a thyroid ultrasound. After that he said he would address any possible circulation problems. The US showed that I have mutliple nodules on both sides of my thyroid. I thought this doctor was really going to be the answer. Boy was I WRONG! I went back for my FU appt last wk. No more tests. All my levels are "stone cold where they're supposed to be. " So, his answer was to increase my Gabapentin. So, now I'm more tired that before (on top of feeling awful normally). I just don't know what else to do. There has to be a reason I feel like this (neuropathy in feet & hands, tired, fatigued, generalized aches & pains throughout my body, and per my previous post TPO >1000, B12 deficiency, Vit D deficiency) and no one seems to care... They just want to give me a pill. The closest holistic doctor is 2 hrs away & costs $190 for the first visit & FU visits cost $60-$190 every visit after that depending on your diagnosises. I live practically in the center of WV. Does anyone have any suggestions? I just don't want it to be something that could have been prevented from getting worse."
08/18/2010: T. from Maryland, Usa replies: "It strongly sounds to me like you have Hashimoto's. Please check out Dr. Datis Kharrazian's thyroid book; it's excellent. Right up front I'll tell you that you'd need to go completely gluten-free. There are tons of resources online to aid you in doing that (seems tough at first but it's certainly manageable - I did it in April because of Hashi's and it has definitely helped me). Check out celiac sites for lots of help and advice on going gluten-free, and do read the book if you can as it's really loaded with detailed information and practical advice. Best of luck, and update us again soon!"
08/18/2010: T. from Maryland, Usa replies: "I should have expanded the thread before I replied... I see I already replied to you back in May ;) Well I just gave you the same advice as I did then, only I'll add that I am even more of the belief that it is Hashimoto's as you've got the nodules now as well. The longer you let this attack your system, the worse off you are going to get. You already have obvious autoimmunity going on and this predisposes you to other autoimmune problems such as rheumatoid arthritis and lupus. Please check out the book; I believe your answers are there but it's down to you to learn and make the changes you need to make."
08/20/2010: Cindy from Buckhannon, West Virginia replies: "Thank you T from Maryland. I just looked up that book. It seems I have already bought it (I probably bought it after you replied in 5/10) but haven't read it yet (my memory isn't that great anymore either). I'll make time this weekend. Thank you for the advise on going gluten free. I'll try anything at this point. Thank you again."
07/07/2011: Jc from New City, New York replies: "You might want to try food grade Hydrogen Peroxide 7%. works excellent with epsom salt. you need 2 cups of 7% peroxide to 1 cup of epsom salt. soak in a hot tub of water 113degree. you can soak for a min. of 25 min will work longer 1 hour if have time. when filling tub they sell flat thermometers in hardware store best also to buy a small round fan and I hung it on th bathroom entrance door blowing towards the tub. it maks it extremely comfortable to relax longer. you best get a ground falt electrical breaker home depot. it adapts between outlet and fan cord for safety, the unit is yellow my lasy go to model buy a swim cap made out of soft material this will prevent your hair from bleaching. good luck, it works excellent."
10/26/2011: Monique from Elllington, Ct replies: "Hi there, I have terrible neuropthy in both feet and the pain has become unbearable. I've tried lots of "cures" and keep searching and researching, It is by no means a cure, but I have been going to the YMCA on Mondays for 1/2 foot massages. It doesn't take away the pain, but there is something about a gentle foot massage that feels good to me. My children, 7 and 8 also massage Mom's feet every night before bedtime. My feet are incredibly sensitive to touch, but just knowing someonone is caring about them helps a tiny bit. I tried to get my insurance to cover the foot massage at the YMCA but of course they wouldn't. Any other suggestions anyone has, would be greatly appreciated. Also, I live in Ellington, CT does anyone know of a support group in my area? I was thinking of starting one myself but don't know the first things and really wonder if I should undetake it with how I feel. I don't want to get together and just complain of our pain but would like it to be a positive forum to exchange helpful hints to one another.Thanks, Monique"
12/09/2011: Juliamary from Johannesburg, South Africa replies: "People who have burning feet - do you realise that it can be caused by too much caffeine? Caffeine prevents the absorption of vitamin B, so that even if you are eating well and having vitamin B supplements, that vitamin B is not being absorbed. The reason why some sufferers are not getting any better when they take various remedies may be because they are drinking eight cups of strong tea or coffee a day! Give it up and see the difference it makes."
03/24/2012: Gatordennis from Bradenton, Fl replies: "I just finished reading the thread on "Remedies for Severe Neuropathy" where I noted the many cure/relief suggestions. My pain started in 1 foot 13 years ago before taking statins, moved to both feet, to both lower legs, to both hands, both forearms, both ears, across my face through my cheeks over the last 13 years. It is like my feet are freezing to death while they are setting in a campfire.I asked doctors if it could come from fire ant bites, walking barefoot on new Berber (contains (formaldehyde), insecticides/herbicides, & every thing else I could think about that may had changed just before the pain started (none of them were accepted as a reason). I often do not feel other pain from cuts, insect bites & etc.
I have been through 3 neurologists & 2 nerve tests - no help. The prescribed meds (each one taken 6 weeks) either kept me awake for days, slept for days while getting no relief from the agonizing pain. I do not use caffeine, have been on meat/cheese/leafy vegetable diet for 2 years (no gluten). I have tried MANY salves, even mixed in cayenne pepper (some for race horses & other old time remedies). I take 5000 mg of daily D3 for 2 years now (started with 50, 000 mg of D-2). I take multi-vitamin, fish oil, sublingualB-12, tried the Co-Q 10 for years, etc etc.
Nothing has worked or given relief. My 120 mg of daily Oxycodone (for neuropathy & 3 year back pain) only make life bearable. I relate with all of you for your suffering. I will give Alpha Lipoic Acid & Lecithin a try. I am at my wits ends & getting desperate for anything to cover over the PAIN."
03/24/2012: Steve from Las Vegas, Nevada replies: "You may want to consider googling energy healers. There are many that may be able to reduce your pain significantly."
03/25/2012: Timh from Louisville, Ky, Usa replies: "Gatordennis, experiment w/ different medicinal oils like Flax, Borage, Black Currant, Evening Primrose because they influence the body in different ways. Also try an homeopathic nerve tonic. The natural alternative to gabapentin is the amino acid GABA (Gamma Amino Butyric Acid) is very benificial for nerves. Since many cases of PN are caused by some type of toxicity, I would definitely try some detox methods like Oil Pulling, Detox Foot Pads for starters."
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