Table of Contents
- QUESTIONS & ANSWERS
- Chronic Bacterial Infections
- Diatomaceous Earth
- Excerpt From Karyn Seroussi's Book
- Fish Oil and Evening Primrose Oil
- Gluten-Free and Casein-Free Diet
- Hyperbaric Oxygen Therapy
- Multiple Remedies
- Remedies Needed
- Supplements and Indian Herbs
- Ted's Protocol
- The Mercury Autism Connection
- Tips for Raising Autistic Children
"Autism is a brain development disorder that impairs social interaction and communication, and causes restricted and repetitive behavior, all starting before a child is three years old. This set of signs distinguishes autism from milder autism spectrum disorders (ASD) such as Asperger syndrome." (Wikipedia)
Our readers offer information and opinions on Earth Clinic, not as a substitute for professional medical prevention, diagnosis, or treatment. Please consult with your physician, pharmacist, or health care provider before taking any home remedies or supplements or following any treatment suggested by anyone on this site. Only your health care provider, personal physician, or pharmacist can provide you with advice on what is safe and effective for your unique needs or diagnose your particular medical history.
Chronic Bacterial Infections
09/23/2011: Connie from Slc, Ut: "Hi Warjov ; In addition to the brilliant suggestions made here to you, I hope to add another. There is a Dr. Neubrander, drneubrander. Com, who has been working with kids along the spectrum for decades. He uses a wide variety of therapies, and if you go to the website, you can choose from 150 videos of parents that describe their results, with an achingly poignant honesty. Dr. Neubrander reports that 94% of his patients respond in a positive way, some dramatically, to subcutaneous injections of methylcobalamin, a type of vitamin B12, at approx. 1mg. Given every 3 days. (some children need it more often.) He's written very specific directions about this protocol that may be followed by other doctors, should they be curious. It may be worth a search."Replies
09/23/2011: Debbie from Melbourne, Australia replies: "Hi Warjov, also chlorella and spirulina that I am giving to my son also detox the body from heavy metals. There is much info on that. They also contain most minerals and vitamins and are regarded as a "food". They also help the body digest fats.
I am going to also start the B12 regimen. There is much info on that. I had started with and will start again. Thanks for the reminder Connie.
Yesterday afternoon I also put some iodine on my son's arm to see how deficient he was in it. This morning it was completely gone, no trace so obviously there is a problem there. Funny though he woke up around midnight and seemed more alert than usual and even said things he never says before (not sure if related to the iodine or not). Iodine levels can raise a child's IQ level and low levels will also lower IQ so I am thinking that may be an issue with my son. Maybe you could look at that as well. I will have to check where I can get iodine levels checked.
I am putting more iodine on him today and see if it also vanishes quickly. It is meant to stay on the skin for 48 hours if you don't have a deficiency. His vanished within 9 hours."
02/08/2011: Tommy from North York, On, Canada: "I was reading through Metametrix labs and I found that the lab found often a protozoa of unknown taxonomy called PPTU by the lab ( Protozoa present Taxonomy unavailable) in children with autsim. According to Dr Ustman, a world leading doctor of autism, some chronic bacterial infections also are responsible for the disease ( Mycobacteria, L bacteria).
Her protocol is to disturb the bacterial biofilms first using Nattokinase with EDTA then introducing an antimicrobial. The die-off is quite high so she recomanded to use activated charcoal to reduce the toxins.
I believe that autismtic kids were infected by their parents unintentionally because their parents harbor the infection also or they were infected right after being born.
I hope in the future that some research will be pointed toward the cause of Austim ( infection) and not just the symptoms to help this kids who are the victims of pharmaceutical conspiracies.
[BETTER BUT NOT CURED] 04/21/2011: Angie Fenton from Mount Juliet, Tn, Usa replies: "Has anyone else heard of Donna Gates? She found some interesting conclusions similar to what you were talking about. She is the founder of the Body Ecology diet. I have been following her for about a year now. I tried young coconut kefir and cold pressed flax seed oil on my son for about 2 weeks and saw tremendous results! It's expensive so if you can find the instructions on her site to make the coconut kefir, then I recomend doing that. If anyone else has any information on Autism cures please post!"
04/22/2011: Debbie from Melbourne, Australia replies: "Angie, my son is 4, has developmental delays including speech. I had great success with Vitamin C. It can chelate the heavy metals including flouride from the body. He went from singing one or two words in a song to singing the whole song (trying anyway) after about 2-3 weeks of having Vitamin C every day... About 3-4 grams per day). His speech also seems improved.
Also cilantro (corriander), garlic, tumeric all chelate heavy metals from the body so all our food has them in it.
I am also trying Evening Primrose Oil & Cod Liver Oil both have had great results in getting EFA into them... good speech results good concentration.
He also has a probiotics and digestive enzymes every day which helps digestion.
We went GFCF as from yesterday to see if that helps him. He has always had digestive issues and I think it is related. I have heard of Donna Gates.... We are looking at her diet and the GAPS diets from Dr. Natasha McBride as well.
He had a blood test recently which showed high folate and high B12 levels .... anyone know what that means? I did read it may mean high level of bacteria in stomach but need to investigate further."
07/06/2011: Angie Fenton from Mount Juliet, Tn, Usa replies: "Debbie-
The GAPS diet sounds amazing. I went to Natasha Campbell-McBride's web site and spent a good couple of hours reading and taking notes. We're introducing the diet to our son right now.
Thank you for your comments and for listing the things you've tried. I'll be asking his Dr. If we can do some tests to check vitamin B levels and high peptide levels. A friend told me the same thing so I'm really wanting to do this.
I don't understand the science behind it all. I am searching for more information on why bad bacteria causes such an imbalance. I do understand that foods that are low on the glycemic index are the best since bad carbohydrates convert into sugar and sugar is bad for autism.
I have so much to learn and would love to hear any other ideas or information anyone has to offer.
Looking forward to hearing how your sons progress is going."
08/17/2011: Brittney from Hermitage, Tn replies: "Hi Angie, my son is 6 years old (PPD-NOS, ADHD diagnosis along with developmental delay and speech delay). We just started the GFCF diet and supplementation. We are going to have heavy metal test and yeast test in October. We are seeing a new DAN! Doctor in Cool Springs. Very excited and praying for recovery as so many people have had success with the biomedical approach. Thanks for the info regarding Vitamin C and coconut kefir. I will definitely look into those as well."
09/22/2011: Warvoj from Lexington, Ky, Usa replies: "Hello Debbie from Melbourne:
I saw where you are using garlic, turmeric and cilantro. I'm using that with my son. He's 9 with aspergers. I'm also adding raw cheese (both cow & goat). I can't buy raw milk in my state because it's illegal, so I'm settling for the cheese. I have notice some changes for the better, which makes me think that he may have some heavy metals in his blood.
I would like to get a blood test for him, but most doctors really don't know what to look for and will order a regular blood test, which won't tell me anything. Does anyone know what I need to tell them to look for in the blood test?
In Yeshua's arms,
09/23/2011: Debbie from Melbourne, Australia replies: "Hi Warvoj, have you read the book Gut & Psychology Syndrome by Dr. Natasha McBride. She cured her son of autism by following a special diet. I have still to read it but it may be worthwhile for you to read it to see what she says about blood tests. She is also a neurologist.
Also I am reading "Excitotoxins, the Taste that Kills" by Dr. Russell Blaylock who says that MSG and Aspartame are responsible for many disorders and learning problems (they cause cell death). There are some foods you can take that are "glutamate blockers" and tumeric is one of them. Also people are in danger if their magnesium levels are low. Everyone should read this book. I first few pages are enough to scare the daylights out of you.
Vitamin C also chelates heavy metals. Also there are some good youtube videos if you google "gaps diet" or Natasha McBride where there are some real cases of kids totally turning around and they have some valuable information.
I am still having problems with my son, his speech is still very delayed. He is a bit better but way below what it should be for a 4 1/2 year old. I am going to take him to the mineral baths to get some minerals into his body and I have just bought some iodine (important for IQ) and magnesium chloride to put in the bath water to get his magnesium levels up."
10/20/2011: Annmarie from Chicago, Il replies: "I notice that wholistic doctors are able to test for such metals and toxins. You would need to google and find one in your area."
11/07/2011: Angie from Mount Juliet, Tn replies: "That's so awesome, I'm checking it out right now! Thanks so much Susan.
11/07/2011: Susan from San Antonio, Texas replies: "I ran across this website thanks to my father and it is such a wonderful resource! I just wanted to reach out to all of you asking questions about autism. I host a weekly Internet radio talk show about autism called The Mother Cub Show where I interview many of the experts (including people like Donna Gates). I am also the mother to an 8 year old son with autism who is making tremendous progress every day! GAPs diet, flax oil, coconut kefir, probiotics & enzymes are key! Please check out website (www.mothercub.com) for blogs and archived shows. Best of luck to all"
11/07/2011: Debbie from Melbourne, Australia replies: "I have also added iodine and magnesium to my son's protocol as I read that no autism protocol should be without them. Of course do your own research.
Iodine will take heavy metals, flouride & bromide out of the body. It will also kill off bad bacteria/candida/yeast. It is good for IQ if given early enough.
Magnesium is also needed by the brain for learning and many other body systems. Many autistic kids are magnesium deficient. It also is very calming if your child is anxious. "The Magnesium Miracle" is a very good book."
11/09/2011: Susan from San Antonio, Texas replies: "Debbie - how do you give the iodine? Do you use Lugol's in a drink or do you put it on topically? I've been reading a lot about it lately and am very curious. Thanks, Susan"
11/09/2011: Debbie from Melbourne, Australia replies: "Hi Susan, I put the lugols in my son's milk (1-2 drops) - you can't really taste it. You also need to supplement with vitamin c (taken separately) and selenium (I crush brazil nuts). I also sometimes put it on his skin. His speech is definitely improving.
My son was on a lot of antibiotics when he was young. Antibiotics unless taken with probiotics can cause an outbreak of candida/yeast in the body. Dr. Orian Truss (google him) found that his candida therapy helped many diseases including autism.
He was also given Prednisone a lot for croup like symptoms. I have since discovered that Prednisone drastically depletes the body of magnesium and also ventolin does the same. So a deficiency of magnesium was treated with something that would deplete more magnesium in the body.
Read Dr. Brownstein's book on iodine.. It is worth reading. Your whole family should be on both iodine and magnesium."
11/10/2011: Debbie from Melbourne, Australia replies: "Here is an excellent article on autism and magnesium. I give my son magnesium chloride baths as well as epsom salt baths regularly. This is called transdermal magnesium (through the skin) and is better absorbed than in supplement form. I have also just ordered magnesium citrate in powder form as well to give him (and myself). That type of magnesium was recommended in a book I was reading on magnesium.
My son definitely had lots of antibiotics in his first year (being a 26 week prem) and other medications which would have caused the gut problems.
A good website on transdermal magnesium is magnesiumforlife.com
Also a good way to get magnesium into you transdermally is to swim in the ocean. If you live near the ocean swim/paddle in the water at least 30 minutes each time."
04/08/2012: Llfiles from Portland, Or: "Has anyone used DE to treat heavy metal poisoning in autistic children?"Replies
04/08/2012: Debbie from Melbourne, Australia replies: "Vitamin C (abscorbate acid) and iodine (lugols) are excellent to remove heavy metals from the body. Iodine will also remove flouride and murcury."
04/13/2012: Stacy from Fernandina Beach, Fl replies: "Dear Llfiles, I just ordered DE for my son to detox heavy metals. Will let you know if I see any results... please do the same if you try it."
02/11/2013: Bruce from St. Louis, Mo replies: "Those of you mentioning detoxing heavy metals are on the right track. Chelating metals is very important to do, but many of the supplements being promoted for chelation are not safe. Warn anyone against dabbling with heavy metal chelation as, when done improperly causes redistribution of the metals and more problems for your child.
You can safely chelate your child for heavy metals. Encourage you to check into the Andy Cutler protocol (aka AC Protocol), which uses a very low oral dose of DMSA and/or ALA. You can do this protocol on your own, without a doctor and is quite cheap
For more information, you should join the Autism-Mercury Yahoo Group and/or Fight Autism and Win Yahoo Group or Google the book Fight Autism and Win.
Also recommend methyl B12 shots which you can learn about in an ebook Autism the Road to Recovery or watch the author's Youtube videos.
Also suggest any parents check out diatamaceous earth and cleansing for parasites."
04/14/2011: Maggie from Portland, Oregon Us: "I work with autistic and aspergers children and adults and have for years. I think diet is the cure. The results are amazing. Dairy, gluten and sugar free. I've seen nothing but good results even with just good effort. These things are not in a 'doctor's' repretoire at all so it's up to you to do it yourself. The only problem I've seen is most autistic children have a parent in the spectrum, and are too set in their ways to do things differently, they would rather accept that there is no treatment than change their diets. I really commend both the parents and adults with AS here that are willing to try do something about it."Replies
[BETTER BUT NOT CURED] 05/17/2012: Michele from Tampa, Fl, Us replies: "I agree, dietary changes have made a difference for my daughter, even at the age of 20, when she began the gluten free/casein free diet. She is also corn free. Parents might think their child is too old to benefit. I wish we had started younger. A gluten free diet is not very hard anymore."
Excerpt From Karyn Seroussi's Book
Anonymous : "This following is an excerpt from "Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery" by Karyn Seroussi. This book is highly recommended!
We Cured Our Son's Autism
By Karyn Seroussi
Copyright © 2000 Karyn Seroussi
"When the doctors said our son would be severely disabled for life, we setout to prove them wrong.
When the psychologist examining our 18-month-old son told me that she thought Miles had autism, my heart began to pound. I didn't know exactly what the word meant, but I knew it was bad. Wasn't autism some type of mental illness -- perhaps juvenile schizophrenia? Even worse, I vaguely remembered hearing that this disorder was caused by emotional trauma during childhood. In an instant, every illusion of safety in my world seemed to vanish.
Our pediatrician had referred us to the psychologist in August 1995 because Miles didn't seem to understand anything we said. He'd developed perfectly normally until he was 15 months old, but then he stopped saying the words he'd learned -- cow, cat, dance -- and started disappearing into himself. We figured his chronic ear infections were responsible for his silence, but within three months, he was truly in his own world.
Suddenly, our happy little boy hardly seemed to recognize us or his 3-year-old sister. Miles wouldn't make eye contact or even try to communicate by pointing or gesturing. His behavior became increasingly strange: He'd drag his head across the floor, walk on his toes (very common in autistic children), make odd gurgling sounds, and spend long periods of time repeating an action, such as opening and closing doors or filling and emptying a cup of sand in the sandbox. He often screamed inconsolably, refusing to be held or comforted. And he developed chronic diarrhea.
As I later learned, autism -- or autistic spectrum disorder, as doctors now call it -- is not a mental illness. It is a developmental disability thought to be caused by an anomaly in the brain. The National Institutes of Health estimates that as many as 1 in 500 children are affected. But according to several recent studies, the incidence is rapidly rising: In Florida, for example, the number of autistic children has increased nearly 600 percent in the last ten years. Nevertheless, even though it is more common than Down syndrome, autism remains one of the least understood developmental disorders.
We were told that Miles would almost definitely grow up to be severely impaired. He would never be able to make friends, have a meaningful conversation, learn in a regular classroom without special help, or live independently. We could only hope that with behavioral therapy, we might be able to teach him some of the social skills he'd never grasp on his own. I had always thought that the worst thing that could happen to anyone was to lose a child. Now it was happening to me but in a perverse, inexplicable way. Instead of condolences, I got uncomfortable glances, inappropriately cheerful reassurances, and the sense that some of my friends didn't want to return my calls.
After Miles' initial diagnosis, I spent hours in the library, searching for the reason he'd changed so dramatically. Then I came across a book that mentioned an autistic child whose mother believed that his symptoms had been caused by a "cerebral allergy" to milk. I'd never heard of this, but the thought lingered in my mind because Miles drank an inordinate amount of milk -- at least half a gallon a day.
I also remembered that a few months earlier, my mother had read that many kids with chronic ear infections are allergic to milk and wheat. "You should take Miles off those foods and see if his ears clear up," she said. "Milk, cheese, pasta, and Cheerios are the only foods he'll eat," I insisted. "If I took them away, he'd starve."
Then I realized that Miles' ear infections had begun when he was 11 months old, just after we had switched him from soy formula to cow's milk. He'd been on soy formula because my family was prone to allergies, and I'd read that soy might be better for him. I had breast-fed until he was 3 months old, but he didn't tolerate breast milk very well -- possibly because I was drinking lots of milk. There was nothing to lose, so I decided to eliminate all the dairy products from his diet. What happened next was nothing short of miraculous. Miles stopped screaming, he didn't spend as much time repeating actions, and by the end of the first week, he pulled on my hand when he wanted to go downstairs. For the first time in months, he let his sister hold his hands to sing.
Two weeks later, a month after we'd seen the psychologist, my husband and I kept our appointment with a well-known developmental pediatrician to confirm the diagnosis of autism. Dr. Susan Hyman gave Miles a variety of tests and asked a lot of questions. We described the changes in his behavior since he'd stopped eating dairy products. Finally, Dr. Hyman looked at us sadly. "I'm sorry," the specialist said. "Your son is autistic. I admit the milk allergy issue is interesting, but I just don't think it could be responsible for Miles' autism or his recent improvement."
We were terribly disheartened, but as each day passed, Miles continued to get better. A week later, when I pulled him up to sit on my lap, we made eye contact and he smiled. I started to cry -- at last he seemed to know who I was. He had been oblivious to his sister, but now he watched her play and even got angry when she took things away from him. Miles slept more soundly, but his diarrhea persisted. Although he wasn't even 2 yet, we put him in a special-ed nursery school three mornings a week and started an intensive one-on-one behavioral and language program that Dr. Hyman approved of. I'm a natural skeptic and my husband is a research scientist, so we decided to test the hypothesis that milk affected Miles' behavior. We gave him a couple of glasses one morning, and by the end of the day, he was walking on his toes, dragging his forehead across the floor, making strange sounds, and exhibiting the other bizarre behaviors we had almost forgotten. A few weeks later, the behaviors briefly returned, and we found out that Miles had eaten some cheese at nursery school. We became completely convinced that dairy products were somehow related to his autism.
I wanted Dr. Hyman to see how well Miles was doing, so I sent her a video of him playing with his father and sister. She called right away. "I'm simply floored," she told me. "Miles has improved remarkably. Karyn, if I hadn't diagnosed him myself, I wouldn't have believed that he was the same child."
I had to find out whether other kids had had similar experiences. I bought a modem for my computer -- not standard in 1995 -- and discovered an autism support group on the Internet. A bit embarrassed, I asked, "Could my child's autism be related to milk?"
The response was overwhelming. Where had I been? Didn't I know about Karl Reichelt in Norway? Didn't I know about Paul Shattock in England? These researchers had preliminary evidence to validate what parents had been reporting for almost 20 years: Dairy products exacerbated the symptoms of autism.
My husband, who has a Ph.D. in chemistry, got copies of the journal articles that the parents had mentioned on-line and went through them all carefully. As he explained it to me, it was theorized that a subtype of children with autism break down milk protein (casein) into peptides that affect the brain in the same way that hallucinogenic drugs do. A handful of scientists, some of whom were parents of kids with autism, had discovered compounds containing opiates -- a class of substances including opium and heroin -- in the urine of autistic children. The researchers theorized that either these children were missing an enzyme that normally breaks down the peptides into a digestible form, or the peptides were somehow leaking into the bloodstream before they could be digested.
In a burst of excitement, I realized how much sense this made. It explained why Miles developed normally for his first year, when he drank only soy formula. It would also explain why he had later craved milk: Opiates are highly addictive. What's more, the odd behavior of autistic children has often been compared to that of someone hallucinating on LSD. My husband also told me that the other type of protein being broken down into a toxic form was gluten -- found in wheat, oats, rye, and barley, and commonly added to thousands of packaged foods. The theory would have sounded farfetched to my scientific husband if he hadn't seen the dramatic changes in Miles himself and remembered how Miles had self-limited his diet to foods containing wheat and dairy. As far as I was concerned, there was no question that the gluten in his diet would have to go. Busy as I was, I would learn to cook gluten-free meals. People with celiac disease are also gluten-intolerant, and I spent hours on-line gathering information.
Within 48 hours of being gluten-free, 22-month-old Miles had his first solid stool, and his balance and coordination noticeably improved. A month or two later, he started speaking -- "zawaff" for giraffe, for example, and "ayashoo" for elephant. He still didn't call me Mommy, but he had a special smile for me when I picked him up from nursery school. However, Miles' local doctors -- his pediatrician, neurologist, geneticist, and gastroenterologist -- still scoffed at the connection between autism and diet. Even though dietary intervention was a safe, noninvasive approach to treating autism, until large controlled studies could prove that it worked, most of the medical community would have nothing to do with it.
So my husband and I decided to become experts ourselves. We began attending autism conferences and phoning and e-mailing the European researchers. I also organized a support group for other parents of autistic children in my community. Although some parents weren't interested in exploring dietary intervention at first, they often changed their mind after they met Miles.
Not every child with autism responded to the diet, but eventually there were about 50 local families whose children were gluten- and casein-free with exciting results. And judging by the number of people on Internet support lists, there were thousands of children around the world responding well to this diet.
Fortunately, we found a new local pediatrician who was very supportive, and Miles was doing so well that I nearly sprang out of bed each morning to see the changes in him. One day, when Miles was 2 1/2, he held up a toy dinosaur for me to see. "Wook, Mommy, issa Tywannosauwus Wex!" Astonished, I held out my trembling hands. "You called me Mommy!" I said. He smiled and gave me a long hug.
By the time Miles turned 3, all his doctors agreed that his autism had been completely cured. He tested at eight months above his age level in social, language, self-help, and motor skills, and he entered a regular preschool with no special-ed supports. His teacher told me that he was one of the most delightful, verbal, participatory children in the class. Today, at almost 6, Miles is among the most popular children in his first-grade class. He's reading at a fourth-grade level, has good friends, and recently acted out his part in the class play with flair. He is deeply attached to his older sister, and they spend hours engaged in the type of imaginative play that is never seen in kids with autism. My worst fears were never realized. We are terribly lucky.
But I imagined all the other parents who might not be fortunate enough to learn about the diet. So in 1997, I started a newsletter and international support organization called Autism Network for Dietary Intervention (ANDI), along with another parent, Lisa Lewis, author of Special Diets for Special Kids (Future Horizons, 1998). We've gotten hundreds of letters and e-mails from parents worldwide whose kids use the diet successfully. Although it's best to have professional guidance when implementing the diet, sadly, most doctors are still skeptical.
As I continue to study the emerging research, it has become increasingly clear to me that autism is a disorder related to the immune system. Most autistic children I know have several food allergies in addition to milk and wheat, and nearly all the parents in our group have or had at least one immune-related problem: thyroid disease, Crohn's disease, celiac disease, rheumatoid arthritis, chronic fatigue syndrome, fibromyalgia, or allergies. Autistic children are probably genetically predisposed to immune-system abnormalities, but what triggers the actual disease?
Many of the parents swore that their child's autistic behavior began at 15 months, shortly after the child received the MMR (measles, mumps, rubella) vaccine. When I examined such evidence as photos and videotapes to see exactly when Miles started to lose his language and social skills, I had to admit that it had coincided with his MMR -- after which he had gone to the emergency room with a temperature of 106°F and febrile seizures. Recently, a small study was published by British researcher Andrew Wakefield, M.D., linking the measles portion of the vaccine to damage in the small intestine -- which might help explain the mechanism by which the hallucinogenic peptides leak into the bloodstream. If the MMR vaccine is indeed found to play a role in triggering autism, we must find out whether some children are at higher risk and therefore should not be vaccinated or should be vaccinated at a later age.
Another new development is giving us hope: Researchers at Johnson and Johnson's Ortho Clinical Diagnostics division -- my husband among them -- are now studying the abnormal presence of peptides in the urine of autistic children. My hope is that eventually a routine diagnostic test will be developed to identify children with autism at a young age and that when some types of autism are recognized as a metabolic disorder, the gluten and dairy-free diet will move from the realm of alternative medicine into the mainstream.
The word autism, which once meant so little to me, has changed my life profoundly. It came to my house like a monstrous, uninvited guest but eventually brought its own gifts. I've felt twice blessed -- once by the amazing good fortune of reclaiming my child and again by being able to help other autistic children who had been written off by their doctors and mourned by their parents."
Adapted from the book, "Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery" by Karyn Seroussi."Replies
12/06/2007: Salma from Birmingham, UK replies: "Dear Karyn Seroussi I am very excited to read all about your son's progress. I am starting my son's dairy & gluten free diet from today. I will let you know if hopfully I see any progress. I would be thankful to my sister who told about your letter & you for describing us your experience"
05/11/2009: Sarah from Baltimore, Md replies: "Karyn, and anyone else out there. i wasn't able to breastfeed my daughter for more than 2 months, and frustrated by the ingredients in infant formula (even the organic ones) i discovered that RAW GOAT'S MILK was the closest milk to mother's milk. My then 5 months old daughter stopped spitting up the day i switched her to raw goat's milk! She is 8 mths now and doing wonderful. This is what Dr. Paavo Airola says about pasteurized milk in his book (What every woman should know):
"Homogenization and/or pasteurization breaks up the cream globules into tiny particules which then permits an enzyme in the cream, xanthine oxidase (XO) to enter the blood stream though the intestinal wall instead of being excreted from the body. XO damages the tissues of the arteries and heart, and the body reacts by raising the cholesterol level in the blood. Pasteurization damages the quality of proteins, fat, and minerals in milk and destroys vitamins."
What is your opinion on raw milk for children that are allergic to past. milk? Are allergies to milk strictly due to the pasteurization process? (which all milks are nowadays - raw milk is illegal in the state where i live...but there are still ways to get it) What if children were fed RAW milk exclusively...? Pasteurized milk and RAW milk and technically speaking completely different... i'd be interested to hear anyone's imput/research/finds on the subject."
05/12/2009: Rosy from Orlando, Fl replies: "Raw milk is the best! My tummy feels so much better when I drink that! I also find that I don't get that lost feeling as often either."
02/04/2010: Rondi from White Lake, Michigan replies: "Have you ever heard of Edgar Casey, the sleeping prophet? He had some very interesting thoughts on seizures and autism. He believed that they were not neurological but intestinal issues he talked about the lactic ducts having lesions and that using castor oil compresses along with diet and spinal adjustments actually could cure the seizures. He died before Autism had surfaced, but mentioned patients with very similar symptoms and this same approach had worked for them also. If anything it is a very interesting read and worth looking into. RONDI"
04/13/2010: Thegreatlakes189 from Aurora, In replies: "We read your article, but yrs ago read an article from the library about children being on antibiotics, and for long term, destroys the natural flora. Every time we tried the chewable pro-biotics (refrigerated), he improved, so much so...we would forget...and he would quit taking them, and the symptoms always returned, each time getting greater in intensity. Well... after things got progressively worse...we read your article. We knew our son had asthma and was already on goat's milk. He had tried soy, rice milk, etc., but didn't care for them. We decided to take our son off goat milk, as it contains trace amounts of casein, and also took him off gluten in wheat. He is back on chewable pro-biotics (acidophilis) 2x day. His symptoms have improved greatly. After speaking with a person at a health food store out of state, we were told once the body restores itself back to health, our son would be able to get off the gluten and casein free diet. (Perhaps not the casein, because of the asthma). We found a health food store that carries gluten free casein free pizza, muffins, soups, cookies, crackers, pretzels, and has mixes to make cakes, cookies, etc. We are thankful for your post and wanted you to know about the pro-biotic replacement therapy, that is working for us, as we see improvements. We did, even before he was on the gluten and casein free diet. It only makes sense...because the antibiotics destroy the flora...and it will take time to prelace. Our son had no ear infections the first year of his life...then had almost constant infections from year 1-2 of his life. So...he may need to be on probiotics for a year or longer...we don't know...but just know he is feeling better...can study better, stay focused better...so we give the Glory to God. :) May God be with and bless you and yours for your sharing your knowledge over the internet. Blessings, the Lakes."
11/16/2010: Michelle from Anchorage, Alaska, Usa replies: "I am convinced that autism begins in the gut. My own struggles with candida overgrowth and leaky gut syndrome led me to believe that even while I was pregnant with my 3rd child, a son born 02/02/09, that he would have health and possibly mental issues. While in my belly he was extremely hyper and although I tried my best to restrict my diet I could feel that something would be different with my baby. He has been breast feed from the beginning and still breast feeds, but it has not prevented signs of autism.
Because I knew of my own health conditions I opted from the start not to give my son any vaccinations. I noticed about 3 weeks after he was born that his tongue was white like mine, which means I passed my own compromised immune system to my son. I was determined to breast feed because I wanted him to have the best chance possible to help build his immune system, but still the autistic signs emerged early on. When he was 5 months old I took myself to a natural path who explained that I must strictly restrict gluten and milk in my diet so as to not harm my baby. Although, my son seemed to nurse around the clock he never gained weight properly and seemed always hungry. His pediatrician advised I introduce cereal into his diet and although I knew of my own allergy to gluten I gave my son cereal mixed in Similac to stave off his hunger and help him gain weight. This was a huge mistake as he immediately, broke out in hives and diarrhea. I believed if I avoided the vaccinations and watched my diet carefully while nursing I could help strengthen his immune system and avoid autism.
I have since learned that it is possibly the mercury in vaccinations that damage the immune system. I have also learned that wheat products today are full of mercury. When introducing wheat to a child born with an already weakened immune system it reeks havoc on the body. I have found through trial and error that not only keeping my son from wheat and dairy are important, but also peanuts due to the high amount of fungus they carry. We avoid giving him sugar and corn products because they effect the gut flora and cause hyper behavior in most children, but especially those that are on the autistic spectrum.
I have recently introduced fivelac probiotics and he has shown much improvement in his eating habits and weight gain. We are not out of the woods yet, but hopefully as we push towards his 2nd birthday his speech will improve. He has excellent motor skills and makes eye contact and interacts well with people, but we still have speech delay."
11/18/2010: Livia from The Woodlands, Tx replies: "It is really difficult to get rid of candida/leaky gut if the toxic metal problem isn't addressed. Zeolite products, chlorella, spirulina, cilantro, fermented foods - these should probably be in your arsenal. The other thing I've noticed, in general, is that the toxic metal/candida/leaky gut trio also leads to more than the usual number of allergies. This is probably why one acquaintance has successfully resolved all of her son's autistic tendencies with extreme diet observation/monitoring/controlling. Any mistakes lead to a slide back to autistic symptoms. NAET practitioners have done a study that showed that energetic elimination of allergies in autistic children leads to increasingly normal function, too.
I really appreciate the benefits of both elimination diets and NAET, but for long-term health I think it is important to remove the toxins, prevent further introduction of toxins, balance the gut as you mention doing with probiotics, and healing the gut with proper nutrition. Thanks for bringing up this important topic. Not enough people realize the link between leaky gut and autism, nor the important info on vaccinations."
[YEA] 01/09/2011: Shannon from South Park, Pa replies: "Gut and Psychology Syndrome (GAPS) by Dr. Natasha Campbell-McBride is a MUST READ for any parent of a child with autism..... She explains in great depth what exactly happens to make one have a sick gut and how to heal it..... She explains why a gluten and casein free diet works well for many children with autism, but not for all. There is more to it.... The gut can be healed completely so the peptides no longer leak through the gut and she explains in great detail how to do so through the GAPS diet. Allergies, asthma, eczema, etc. are all early signs of a sick gut. A MUST READ!"
01/10/2011: Annie from New York, Ny replies: "Your post seems to be more of an advertisement for the book. It would have been more credible if it was a testimony or anecdote."
[YEA] 02/02/2011: Christie from Charlotte, Nc, Usa replies: "My daughter, Ava, was diagnosed with autism in 2008. Since then, I've implemented the gluten-free casein free diet and it has made a remarkable difference in her life. I know that several autism parents shy away from this lifestyle because it seems like such a tremendous undertaking. The truth, however, is that it's not that hard to do! You learn to read the labels carefully, you learn what your child loves and hates and most of all, you see the difference. Ava and I, together, have made some of the most inedible cake you could imagine but we've also made some amazing chocolate chip cookies using tapioca and sorghum flours.
Regardless of how immediate or immense your child's results may be, I think the most important thing about this diet is the lesson that it teaches these children. I have read and spoken with so many adults on the spectrum who report the difference in how they feel after half a serving of dairy or wheat. This has struck me so profoundly because food choices are SO important for these children. One day, they will be making choices for themselves, so arming them with knowledge of why soda might make them feel funny, for example, is such a powerful gift to me. It's possible that gluten and casein may not be their sensitivities or may not be their ONLY sensitivity, but that opens the door to observe the effects of eggs, soy, etc. My daughter is now 5 and when someone offers her pizza (her FAVORITE!! ) she will politely hold her hand up and say, "No thank you. That is yucky for Ava! " :-)
The other lifesaver in our life has been cod liver oil. Not only does it serve as an excellent booster in her immune system (so many of these kids have such weak immunities), but it keeps her SO focused. I remember the first day I gave cod liver oil to Ava, I cried uncontrollably because she made willing eye contact with me! And I didn't even have to ask for it. It's pretty amazing stuff. "
02/08/2011: Bj from Killeen, Tx replies: "@Christie from Charlotte, NC. Do you put the cod liver oil in her food or just in a spoon?"
02/22/2011: Christie from Charlotte, Nc, Usa replies: "@BJ... I compose three juices for her per day with all of her supplements. I include the cod liver oil in that, but I also include liquid spectrum support vitamins and minerals (much more bioavailable and easier for her system to process), liquid zinc and colostrum. I also use MB-12 spray, probiotics and digestive enzymes. "
Fish Oil and Evening Primrose Oil
[YEA] 12/09/2007: Roxanne from Perth, Western Australia: "High Potency Fish Oil w/ Virgin Evening Primrose Oil Has Made My Little Boy "Normal" I have two children aged 3.5yrs and 21 months. My eldest was diagnosed with Autistic Spectrum Disorder at the start of the year (Jan 2007). Because my eldest son is classed as Autistic, the health professional seem to think that my youngest may have a problem. Okay, my youngest is very hyperactive, used to run into things (like the kitchen table) and not feel any pain and he had a serious biting problem that went waaaayyy beyond teething. After geting sick and tired of hearing "your youngest maybe suspected Autistic/ADD" I decided to see a homeopath and ask (beg) for help. The lady there was wonderful and recommended that I try a mixture of high potency fish oil that also contained virgin evening primrose oil that was recommended for children and adults of all ages. Well, after a week of giving him 5ml a day (mixed with food), our little boy is all cool. calm and collected. He stills runs around but he has stopped running into walls and tables. The biting was gone and he interacts well with his autistic brother. He has also started talking again. And to think, only 2 weeks have passed now and he will only improve. Just wanted to share this with you. Thanks"Replies
08/10/2011: Debbie from Perth, Western Australia replies: "I am also in Perth Western Australia and was wondering if "Roxanne" wanted to get in contact to discuss biomed treatments for autism. I have a four and a half year old boy with autism."
05/08/2012: Sunnie from Beaconsfield, Wa, Australia replies: "Hi, My name is Sunnie, my son has Autism and I would like to know what type of Fish oil and evening primrose do you recomend.
Many thanks, Sunnie"
Gluten-Free and Casein-Free Diet
[YEA] 12/19/2007: Jim from Dallas, ga: "We started the gluten / casien free diet about a month and a half ag. I have noticed that my 4yr lod daughter's constipation has all but gone. We have started seeing a natruropathic dr. found that she had fungal yeast overgrowth in both the large and small intestines, mercury, and vaccines in her body. Since seeing the new dr. she has started getting some of her words back and being alot more affectionate towards everybody especially her older sister of 5yrs. old. Not to say it is a cure but GOD has opened doors for me and after 4yrs. of battlling seizure after seizure, and now autism, I think our tunnel is getting brighter."
Hyperbaric Oxygen Therapy
[YEA] 04/27/2009: Nicolle from Port Orange, Florida USA: "I am writing in to tell of the benefits of Hyperbaric Oxygen Therapy. My 5 year old son has Autism and one of the therapies we have tried is HBOT. After his first two hours in the chamber he made sentences. Before we went in he only had words. We recieved two 2 hour treatments twice a week until we reached 40hours total. He continued to improve throughtout the year even though he was no longer getting the treatments. We are now on our second round of treatments and the results have been amazing once again! I am hoping that more people will post their successes with the treatment. Thank you for this wonderful site!!!"Replies
12/15/2011: Alfred from Perth, Western Australie, Australie replies: "My son aged 7 was diagnosed with autism at age 5. One of the side effects of his autism is that he eats a very limited selection of food. He eats no meat, potatoes for vegetables, apples, bananas, watermelon, strawberries, avaovados and pears for fruit. Cheese once a month, a small amount of yoghurt, no milk and chocolate everything. When he has a lack of appetite he only eats chocolate or starves. He has to be given a tonic every day to encourage him to eat just one small meal a day. For this reason it is very difficult to put him on an elimination diet. We have tried the failsafe diet, but he starved himself for 3 weeks. In the end he was screaming from hunger, but would still only eat his preferences. Does anyone have some advice as to how to break through this problem? The most nutritious food he ever gets in is avocado toast (not every day) or potato chips (hot) not every day either. Does anyone know whether there is a Hyperbaric Oxygen therapy centre in Perth, Australia.
12/16/2011: Jen from Bozeman, Mt, Us replies: "Alfred, I used to babysit an autistic child and I remember the difficulties of trying to get him to eat anything healthy. 7 Year olds are usually finicky anyways but being autistic just makes it more difficult to get them to understand the improtance of healthy eating.
There is a hazel nut chocolate butter in the US called Nutella that tastes just like chocolate but has a little protein too. It isn't exactly "health food" since it has lots of sugar but since your son is already eating chocolate most days it might help a little. I put it on pancakes, toast, sandwiches, crackers, apples, pears, etc... Though you might want to stear clear of gluten since there is evidence that it is bad for autism. It's worth a try.
It's wonderful that he eats avocado's though. They are very healthy. If he eats mashed potatoes you might try to sneak some blended steamed cauliflower into his taters. Also add some plain yogurt instead of milk and butter. If he likes anything mashed or blended you can try to add things that won't really change the taste but will enhance the nutritional value. There is a great cook book called "Deceptively Delicious" by Jessica Seinfeld. In this book she shows how you can sneak healthy veggies and fruits into foods kids love. It might help you out. I know my kids don't have a clue that I add avocados to thier brownies or broccoli to thier spaghetti sauce:) I love it and have come up with many great recipe's of my own using the same idea."
12/17/2011: Debbie from Melbourne, Australia replies: "Alfred, a great book to get is the "Gut and Psychology Syndrome" by Dr. Natasha McBride. She had an autistic child and actually cured him. She is a neurosurgeon. She devised a diet which starts out with the kids just eating home made chicken broth (high in calcium). Foods are added in after the "intro diet" and amazingly the kids do start to eat the foods. A lot of autistic kids have gut and digestive issues. She also recommends probiotics, digestive enzymes, fermented cod liver oil and others in the book. She has some great videos on youtube as well which are worth watching.
A lot of these kids are gluten/casein intolerant so the diet does not have these. They may be added in later once the child can tolerate them. "
12/17/2011: Timh from Louisville, Usa replies: "Alfred, A Multi B-Vitamin alone at least once a day creates powerful hunger drive. But it is kinda stupid to use only vitamins when they need minerals as cofactors for enzyme production (which may be a major problem with this boy). Enzymes create and maintain the body's energy or metabolism, so any vit/min deficiency will reduce E. Find a good High potency with foods plus. At least 2 daily. If he is uncomfortable with pills, try some VitaminWater or any other nutritional "drink" or "fortified" foods or drink. When I was an adolescent, I got good lasting energy from the fortified cereal Total.
Also the vitamin-like nutrient DimethylGlycine (DMG) boost energy production as well as immunity and has been used successfully in the treatment of Autism for many decades. It may be necessary to have a health care professional monitor the DMG for dosage purposes but otherwise DMG is quite safe with anything under 2 grms daily; I traditionally use 500 mg daily.
Hope this helps and good luck."
01/23/2012: Lucia from Coral Gables, Fl replies: "To Alfred from Perth, here is a chocolate flavored smoothie that your child may like. It's much better than chocolate and packs much needed nutrients:
honey to taste
1/2 cup of chocolate soymilk (I use Silk brand) & 1/2 cup of unsweetened regular soymilk
Blend everything with a little bit of ice. It tastes just like a chocolate ice cream smoothy!! Hope he likes!"
05/08/2012: Sunnie from Beaconsfield, Wa, Austrlalia replies: "Hi, Sunnie here again, could you please let me know where there is a Hyperbaric oxygen therapist clinic in Perth, Western Australia. I would like to try it for my son. I look forward to your reply.
Many thanks, Sunnie"
02/18/2010: Earth Clinic : "Great article entitled Magnesium and Autism in Dr. Mark Sircus' latest newsletter:
[BETTER BUT NOT CURED] 03/08/2013: Nil from Potomac, Maryland, United States: "Hello, my autistic son dropped his ATEC scores from more than a 100 to 3 in less than a year using MMS. Autism/ASD recovery is possible at any age, my son is almost 16. It is never too late.
Free ATEC score at: autism.com and MMS Protocol info at: mmsAutism.com"
02/14/2013: Simone from Houston, Usa: "Autism: Brain inflammation due to nutritional problems
Autism can be cured by nutrition and detoxification! As described by Dr Mark Hyman in his book:
... "This is what we did with Sam:
- Cleaned up his diet of all allergens, sugar, empty calories and refined processed foods.
- Got rid of yeast with antifungals
- Removed toxic intestinal bacteria with a special antibiotic called xifaxin.
- Added healthy bacteria with probiotics
- Helped him digest his food with enzymes
- Added zinc, magnesium, folate, B12, B6, vitamins A and D, omega-3 fats
- Added coenzyme Q10 to help his mitochondria return to normal
- Helped him detoxify and reduce oxidative stress
- Added high dose B12 (with a special form called methyl B12) to boost his detox system.
- Gave him chelation medication DMSA and detoxifying nutrients to help him get rid of the heavy metals.
After 3 weeks on this program Sam showed dramatic and remarkable improvements...""Replies
02/15/2013: Timh from Louisville, Ky, Usa replies: "Further evidence that Autism and Autism Related Disorders have a direct correlation with The Modern Lifestyle (Environment). As opposed to a "genetic" cause, that "has no cure" and the patient must take prescribed medication "for the rest of his/her life"."
01/14/2012: Lilian from Nairobi: "Hello Ted, I have a 4year old son who was just diagnosed with autism 6 months ago his very hyper and non verbal have tried everything from Vitamin supplement to omega 3 and nothing seems to work.
The speech comes and goes and very worried and would just want him to go back to his normal self."Replies
01/15/2012: Angel from Dubai, Uae replies: "Hi Lilian, I am not a specialist but from what I have read Dr. Natasha Campbell has written an excellent book on how to heal the gut: Gut and psychology syndrome (GAPS)after she cured her autistic son. Please look into it. Many people have got benefited from it. Also the GAPS Diet seems to be helpful in case of constipation, eczema.. And many more. http://gaps.me/preview/"
03/21/2011: Sanjoy Mazumdar from Kolkata, India: "I have a 11 years old cousin, now we came to know that he is autism, and 6 years ago he lost his mother, he is staying with his father, grandmother and grandfather and with uncle, he loves his uncle a lot, but most of the time he wants to play alone or try to speak out the movie dialogs, so can u plz suggest me how can we make all this normal, but he is very tallented, he can remember anything if he loves that. thanks, Sanjoy"Replies
03/21/2011: Bess from Calgary, Alberta, Canada replies: "Hi Sanjoy - The Vitamin D council (www.vitamindcouncil.org/health/autism/) has been doing research on the lack of Vitamin D in autistic people and what happens when their Vitamin D levels are raised. If you do a search using the key words Vitamin D and autism, you should find some interesting articles from quite a few different sources. Good luck - I hope everything works out for your cousin."
03/21/2011: Wendy from Ontario, Canada replies: "may I suggest you watch the youtube videos that Donna Gates and Dr. Campbell have. I think they are the Bedrock and Gaps lifestyle. Children are recovering from autism, in fact Dr. Campbell says her son was diagnosed at 3 with severe autism and he is 11 or 12 and funtioning normally.... Just going by memory here, but something to explore. I know my girlfriend made MAJOR headway with probiotics (which is interesting now that I read Donna Gates stuff)."
[QUESTION] 04/27/2009: Kristen from Denver, CO: "Adult Autism, ASP, Dysemmia:
Question- Does anyone have any remedies to help with Adult Autism, Aspergers Syndrom and especially Dysemmia (social emotional processing disorder)? Would you follow the same protocol Ted describes for children with autism?"Replies
11/02/2011: Diane from Prince George, B.c. Canada replies: "Have you heard of EmpowerPlus? Amazing story of the father of 10 children whose wife committed suicide and children attempting suicide, who helped develop an excellent vitamin. His kids are off their allopathic medications and are "normal". Our daughter who had severe behavior and learning difficulties when a child, has been on these vitamins for 2 years now and is so happy and sweet, I can hardly believe it is the same person who was constantly angry and raging. She is 28 years old.
Castor oil packs to the abdomen often, seems to be a promising method of healing the bowel - where the trouble seems to be stemming from."
04/01/2012: Mn from Bellevue, Wa replies: "Has anyone checked out hypothyroidism caused partly by fluoride, chlorine and bromine poisoning? These halides displace iodine needed for proper thyroid function. Look up "Iodine, Why You Need it, Why You Can't Live Without It, 3rd Edition by David Brownstein, MD. Also look up Optimox Research and medicate with Lugols drops or Iodoral 12. 5 mg tablets. Stop drinking/using fluoridized water, toothpaste, sweeteners, medications & pesticides. What do you think?"
11/19/2012: Kate59 from Kingston, Ny, United States replies: "Mn from Bellevue, I totally agree!"
[YEA] 07/24/2009: Fittinpieces from Hernando, Ms: "My son was diagnosed with Pdd-nos or asperger's syndrome which are both on the autism spectrum about 2 1/2 years ago. This came after a long battle with special needs school district, pyschiatrists, pyschologists, therapists, and his regular pediatrician all misdiagnosing him for about 3-4 years. From everything of ADHD to Bi-polar disorder, we have finally come to rest on this with all of the testing that was done. I have tried so many different prescription medications to control his anger and rage, most basically putting him in a fog through the day just so he would not hurt himself or anyone else. I know this story is long but bear with me it is important to know everything i have tried to get to here.
With appointments to 2 different DAN ( defeat autism now) doctors(with tons of bloodwork and no results or help) and a weight gain of around 80 lbs from depression on my side, I finally stumbled onto an interesting website or personal blog for ADHD. A lady was documenting her journey with her son and his struggle to remain normal (whatever that means anymore). She spoke of this herb and how it helped him. I instantly started research on the herb, nervous to give it to my 9 year old son. Well he has been taking it for 2 1/2 weeks now, and i have him completely off his medication for aggression. He only takes vitamin supplements and this herb, which is a miracle. He actually acts like a normal child now, and works things through in his mind instead of instantly attacking or throwing a temper tantrum. He no longer attacks his sisters or hurts himself if he does not get his way. He actually laughs a lot more, and he gets further in his video games without my assistance or trying to break the video game console. Amazing?!?! I think so, but i also upped his amount fish oil which i think might be a little help, but there is no way it can take all of the credit! He is taking ____ rhodiola____ ____ once a day in the morning. And i cannot wait for school to start, Maybe this year instead of being a whiz at just math he will learn to read and hopefully ride a bike and tie his shoes! Wonder herb this is!"Replies
06/29/2010: Cobb from Anderson, Sc replies: "Where do I get this herb?"
EC: Most health food stores will carry rhodiola. Online, check google shopping: http://www.google.com/products?q=rhodiola&hl=en&aq=f
02/02/2011: Christie from Charlotte, Nc, Usa replies: "I just want to tell you that I so apprecite your post. I cried when I read it. My daughter is 5 now and was diagnosed with autism when she was 3. My journey with autism sounds remarkably similar to yours... I also gained 65 lbs in depression weight, or perhaps it's frustration weight. I have battled with her teachers, consulted with three different DAN! Doctors, and cried myself to sleep so many times. I am curious to give rhodiola a try. Bless you and your son. All will be well. :-)"