About 20 years ago, a soft mass tissue grew on the septum of my nose. It was surgically removed not once, but three times. The last time my took my septum out since that was the area it attached itself to. I have been diagnosed with Epstein Barr Virus and doing everything I can to keep it in check. Last October, the mass reactivated in my trachea. I had it removed and was given a cortisolsteroid shot afterwards. Presently the mass has returned and having to decide to do the surgery or take sirlolimus which is an immune suppressant drug use with transplant patients or do both. Some research is being done on this disease because of it being rare. Chemo drugs are use to treat this disease which I do not want in my body. I have read that a virus causes this disease to flare up which produces an overgrowth of white blood cells. I want to do the surgery or the drugs, but if I want to breathe normal again I have to do something.
