B1 - Thiamine
★★★★★
I feel like a different person now. Still far from who I was before PD but now I can do my daily activities slowly and no longer suffer anxiety, off the Xanax I took for 3 1/2 years, and minimal depression. I get the blues on occasion. I only take Selegiline 5mg twice a day as a prescribed medication. I was prescribed 7 medications previously.
I started high dose B1, Thiamine, June 2018, taking 1/4 teaspoon in water, twice a day. I did not notice any change in my symptoms. I increased it to 1/2 teaspoon in water, twice a day, still no change. I continued taking it anyway. I then purchased capsules, 500mg. I take two, twice a day. I started noticing that I was using my right hand for things I could not do before. The changes have been subtle but to me significant, giving me hope. I have more energy and feel more alive. My movements are more fluid.
I must add that I also changed my diet. I have been vegetarian since I was 16 but now I am, or try to be, gluten free, dairy free, plant based diet. I suffer chronic pain and wanting to decrease inflammation. I also added the use of low level red light therapy. Not sure what is working but I feel I have turned a corner and instead of declining I feel I'm improving, very slowly.
Thank you.
B1 - Thiamine
★★★★★
The vitamin comes in 100 mg tablets from a common supplier (so 2 at a time) and is available from any chemist here. No 'special' brands appear to be necessary. My husband worked out the dose from looking at the research and did not consider her status - he just reviewed the trials. It was understood at the time that the dose could be variable so we may have just been lucky to gain improvement at the first attempt. It was clear after a few weeks that she was brighter and happier. We have suggested to the partners of friends similarly affected that it might be worth a try even sending copies of the research. While the specialist we deal with is open to science, it seems some are not. In our case, I think my husband's grasp of the jargon and brain research helped. He attends every appointment with his mother so there was also a shared endeavour in looking for ways to improve. We had previously found that if she painted, the repetitive movement cancelled out the tremor for a while so there was already credibility and trust with the specialist. Keeping written diaries of symptoms also assists.
I sincerely hope that others reading this will investigate this information themselves and take action with medical help.
I have watched members of my family die and suffer from de-generative brain diseases. There is more information available now and we and our doctors should all take note.
Thank you to Earth Clinic for providing this invaluable resource.
