Natural Remedies for ALS

| Modified on Feb 07, 2022
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A particularly progressive and debilitating condition, amyotrophic lateral sclerosis or ALS is a particularly aggressive condition. While doctors normally don’t give very positive prognoses to individuals diagnosed with the disease, natural treatments can sometimes improve the quality of life for individuals with the condition.

Vitamins and supplements including vitamin C, vitamin B complex, and vitamin E are a few natural remedies that people often add as an adjunct treatment to a traditional approach.

What Is ALS?

ALS also called Lou Gehrig’s disease, is a disease that targets the central nerve cells in the brain and spinal cord. The condition causes the slow demise of these cells which typically leads to diminished physical and mental functioning as the specific cells involved in the condition are the motor neurons.

While the progression of the condition varies slightly for different individuals, ALS causes the gradual disabling of anyone affected. Over time, common tasks including walking, speaking, eating, swallowing, and even breathing become difficult for individuals.

How is Lou Gehrig’s Disease Usually Treated?

An ALS diagnosis can be very scary for anyone, but the good news is there are often a variety of treatment options provided. While some of the “typical” treatments for the disease are more invasive, many involve holistic practices.

Physical and occupational therapy are common, as is speech therapy. Additionally, many individuals are provided with supportive devices and equipment to help them cope with everyday tasks more easily. Other more aggressive treatments include medication, feeding tubes, and breathing devices; however, these options are generally for more developed cases of the condition.

Natural Remedies for ALS

A balanced approach can sometimes be helpful – one that utilizes traditional treatments paired with natural supplements to support overall health. That being said, a few of the most effective natural treatment supports include vitamin C, vitamin B complex, and vitamin E.

1. Vitamin C

As ALS affects the functioning of the entire body, vitamin C is a particularly important treatment support. Vitamin C helps strengthen the immune system as well as the connective tissue in the body to prevent deterioration.

2. B Complex

Vitamin B complex is a combination of the essential B vitamins. This complex helps support energy levels as well as muscle and nerve function.

3. Vitamin E

Vitamin E is another important supplement as it helps support muscle and nerve function as well. Taken as a daily supplement, vitamin E also helps prevent deterioration of muscle function.

While nutritional supplements are an important support to ALS treatment, a variety of other natural treatments help as well.

Ted's Remedies for ALS

The genius health contributor Ted from Bangkok used to write extensively about various remedies ALS before his stroke in 2015. Here are a number of them, excerpted from our site ted.earthclinic.com.

06/22/2011:  "Most people with ALS have some sort of virus and it is the virus and its treatment of virus that I have seen helped the most, some are already living a normal life. The best thing is to look at the viral cause in particular adenovirus, echovirus, enterovirus as the cause, it often occurs in case of your mother, a sinus condition, or a tooth infection or a throat to effect a front temporal cognitive impairment, But I think is more related to Herpes Simplex virus. My patients it has more to do with surgery where surgical equipment is infected with virus and genetic susceptibility. There is no literature on the treatment and researchers disagree on the cause and its treatment, but mine is rather simple and usually works, at the very least is to contain the virus. There is literature available on its treatment using just threonine, but they are missing the lysine. There is literature on treatment is BCAA, and the number of death is increased because again they are missing lysine.

It is best to begin research in this area on adenovirus, echovirus and Herpes simplex virus and other viruses in relation to ALS or Lou Gehrig's disease. You can find this rather easily on Google if you know what you are looking for, but you will never find it by typing just ALS. Why are researchers always bark on the wrong tree is rather simple: to get funding you have to please the investors. And investors is to make money not getting the cure. It I have one pill that can cure kidney disease but one pill you have to take for the rest of your life to contain the kidney disease, rest assure the investors will take a look at the second options because it brings steady income. So as a researcher (I was a researcher myself) you have to options 1) Get the funding that pleases the investor and get yourself on news or 2) be very poor and find the truth on your own money and get no publicity. Most people would choose 1) very few will go 2), but I do. Think of it this way: what happens if YOU get it then what will happen?" Source

6/11/2011: "The basic remedy for ALS is 1/2 teaspoon of lysine, 1/2 teaspoon of threonine, 1/4 teaspoon of glutamine. It is taken every hour for four hours, and in evening you do that for at least 3-4 days. Thereafter, you shall concentrate one getting the immune system, such as beta glucan to the remedy taken twice a day 1/4 teaspoon and vitamin C 1/4 teaspoon ascorbic acid. The development of neural growth is the use centella asiatica. There are several remedies posted on ALS, in greater detail on Earth Clinic. But try to concentrate on the basic remedy for first few days to self contained the virus. Thereafter you can continue with the remedy for 4 doses plus one to three at night for the lysine, etc. That depends on your budget mostly. There is a long list of supplements I give to my clients, each with differing needs but this is the basic protocol. For example I might add some more antiviral remedy, such as andrographis paniculta, or perhaps test for possible mycoplasma infections such as doxycycline for a couple of days, are some of the examples. Then there is rebuilding of neural growth such as hydergine and piracetam, 2 mig and 800 mg, respectively. There is a possibility that you can use snake grass (clinacanthus nutans lindau) also incorporated in the remedy. Do the basic remedy first and you can continue thereafter with some other additions depending on his needs." Source

12/27/2014: "Unknown to most doctors the body can regain the ability to breathe if NAC and taurine are given consistently for at least 3 weeks to one month. But this is needed for the long term for most ALS patients. The amount to take is usually 1,000 mg 4 times a day for both NAC and taurine. Lithium to prevent the adenovirus from growing maybe 2.5 mg before sleep. Will extend lifespan. Should strengthen immune system with beta glucan."

10/07/2014: "There is a lot of things you can do. The most important is the mucus and toxins. N acetyl cysteine 4000 mg 6 times a day and taurine 1000 mg 4 times a day. This will remove toxins. Methylene blue 0.1% 20 drops morning lunch and dinner. Adenovirus can be protected with poly lysine 1000 mg 3 times a day to kill it. Ted" Source

10/25/2014: Apple cider vinegar or distilled vinegar is applied topically to the lower neck area or lower base of the skull. This is fast acting antiviral to kill adenovirus in the nervous system and zinc gluconate. For his muscles the needs BCAA or branched chain amino acid in addition to NAC or N acetyl cysteine and taurine. At 1/2 teaspoon each twice a day and BCAA and lysine at 1/2 teaspoon each 3 time a day. Ted" Source

06/16/2014:  Everyone with breathing problems has mucus issue whether on the amino acid or not. I always give two things NAC 1000 mg four times a day and drink a small amount of hyaluronic acid .5 grams to 500 cc water mix with sea salt 5 grams also. The small amount tsken each time is 50 to 100 cc of this to help loosen up mucus. Lithium and potassium iodide are two additional ones essential. At 1 to 2.5 mg lithium chloride and maybe some potassium iodide to prevent a deficiency ftom lithium use. I went much further in developing a protocol for ALS but because clamp down by authorities on me and attacked by local newspaper I decided to contribute less to earthclinic. Mucin or mucus is important for gut health and is important for protection of intestinal barrier or you get constipated and further deterioration of ALS. So you must address the mucus with NAC and hyaluronic acid to help breakdown in lung as a result of thiocyanite deficiency that kill pathogens in the lung." Source

05/13/2013:  "You forgot the two most important supplements to control virus-caused ALS: zinc and lithium. The zinc is ideally zinc acetate or zinc chloride, given in frequent doses: 5 mg x 6. Lithium is 5 mg given at night in the form of lithium carbonate. I know more than I mentioned in the post as there are things that are specific to four different types of ALS, but this is the general ALS treatment. Lugol's Iodine has also been proven helpful." Source

12/5/2012:  "A simple remedy includes two steps, we need to get rid of the virus first, otherwise the ALS will spread. So keep his blood sugar below 90 mg/dL, as a simple virus requires simple sugar, by trying to maintain a blood sugar below 90 mg/dL, the virus is starved of sugar. The mean for blood sugar in ALS situation is 75 to 90 mg/dL, to prevent the spread, just like forest fire, you have to limit their spread by starving them of the fuel they need. The lysine will lower the blood sugar so I would take 1/2 teaspoon of lysine every hour for 4 hours at least. The threonine is the other one that can be mixed, too. More men are afflicted with Lou Gehrig's Disease than women because the male needs zinc for their sperm and is found typically deficient in men. That's why the ratio is a bit more on the male side and that's why zinc acetate is needed to prevent the overgrowth of ALS.

In my treatment of ALS, getting them to live as long as they want is no problem, they can live as long as they want, my problem is trying to reverse the ALS symptoms, which is a big problem. The one thing that has helped the most is always pregnenolone 50 mg, DHEA (12.5 mg women 25 mg for men), and melatonin (at night 5 mg is the average dose I see that works fine). Keep it simple first, then you can add the other things later after you have contained the fire." Source

12/10/2012: Ted from Bangkok, Thailand replies: "You take lysine as long as possible, for one month or more to limit the virus. Under no circumstances should he be allowed to take any sweets, as simple viruses and bacteria require simple sugars. Fructose, glucose, sucrose (sugar), but also fruits, honey and wheat are forbidden. It is commonly caused by an adenovirus, but it could be other viruses. Pregnenolone and progesterone help neural recovery."

11/30/2011: "The remedy would significantly delay the progression of Lou Gehrig's Disease. As far as remedies are concerned, you won't generally die from it.

The sources of Lou Gehrig's disease I found were mostly from the hospital. So people often get it in the hospital mostly via invasive surgery and other medical procedures. I had a client of mine stabilized and recovering until he needed a minor surgery for an unrelated condition and it got terribly worse once out of hospital and he had to be stabilized again. No hospitals today use any UV light bulbs, which kill viruses. They were replaced with alcohol gels, which kill bacteria but never viruses. That is the major change and is resulting in deaths from virus related diseases such as Lou Gehrig's. Now I don't have the equipment as do hospitals but these can be easily eradicated, but politics is what is preventing the hospitals and administrators from doing the right thing.

The key remedies initially are lysine and threonine, then later glutamine, and zinc is really to stop the progression more than anything else. But that won't work with eventual recovery or reversal, that needs a lot more work.

If you can afford what's mentioned, then the schedule will be:

  • 1000 mg lysine every hour for 4 hours in the morning and evening
  • 500 or 750 mg of Threonine every hour for four hours in the morning and evening

The above is usually done for three days, in order to reduce cost (cost is a major consideration in my clients), it is given at every hour for 4 hours in the morning and maybe, every hour for 3 hours in the evening.

The above will stop the progression, but piracetam and hydergine are not major parts of the remedy, they are just to help neural growth somewhat, but mostly certain types of neural growth, and it may not be motor neurons that is needed, The above remedy is to kill the adenovirus, but these are tough to kill and you may need other remedies, zinc acetate is one, but their eventual accumulation will lead to vomiting if given in excess of 1 month. And glutamine must be given, to help muscle recovery, and that can be given in the 4th day or 5th day, at 1000 mg x 4. And for further recovery is BCAA (branched chain amino acid) is needed after the second week, which is needed 1000 x 4. The homocysteine is critical to maintain blood homocysteine near optimum such as 6 or 7, most people have higher, and may be lowered quite easily with TMG or Trimethylglycine (the regular kind without the HCl). It is taken at 1/2 teaspoon twice a day.

Now Lou Gehrig's sufferers may have breathing problems and lowered lung capacity if you measure it, and this may be increased to twice the amount by vitamin D2 20,000 iu taken every other day, with magnesium chloride usually 8 drops before meals twice a day.

These are the most important ones I know of initially anyway, but there are problems you need to be aware of, such as mucus issue is serious for Lou Gehrig's which get clogged. We must give more than the required, as it has also antiviral properties, such as 1/8 teaspoon every hour for 4 hours, in the evening, and morning maybe just one dose. These developed around the lungs, but also appear in the intestines as soft form mucus or hard form (mucoid plaque you hear about in detox clinics). The cause is not detox per se, it is a lack of cysteine, the preferred form is N acetylcysteine. This will prevent obstruction of breathing passages. The zinc is ideally between 10 mg to 50 mg for only a month, thereafter just maybe once a week.

For cancer, you must be also aware that blood sugar is the issue, and the three important supplements to really get the sugar levels down are vanadium, chromium and lecithin, and MSM. Vanadium, maybe vanadium sulfate 10 mg, chromium polynicotinate 1 to 2 mg, and lecithin granulated (never softgel) 1000 mg, and MSM, maybe 1000 x 4. Once blood sugar is between 80 to 90 mg/dL, then the Lou Gehrig disease and cancer won't spread. That's a 97% probability (within) one year, so that's a good one. No sugar, no sweet fruits is the major theme in treating cancer. The vitamins necessary for weakness are vitamin B 50 and vitamin C, and maybe vitamin E 200 iu. minimum." Source 

09/28/2011: "Muscle twitches are alleviated with magnesium chloride 60 to 70% and the rest water, and given 10 drops x 3 times a day before meals or on an empty stomach. Potassium citrate is given once a day at 1/4 teaspoon 30 minutes after meals, and taurine is given at 1/2 teaspoon once a day. B complex B50 is given once a day for 5 days. This should be enough to help absorption. The ALS itself I believe is adenoviruses, and they appear in a majority of ALS cases. These need to be killed with zinc acetate 15 mg once a day, Lysine monohydrate hydrochloride, given hourly in morning for 4 hours and the same in the evening for at least 3 days. Thereafter, (to save money), is given 4 doses in morning and one dose in the evening before sleep, threonine is given the same as the lysine and is responsible for your immune system.

ALS people are very sensitive to high homocysteine, as it is a neurotoxin, so any addition of any neurotoxin is deadly, e.g. monosodium glutamate, excitotoxins aspartame, etc. Therefore we might give trimethylglycine (betaine) depending on conditions, there are two forms betaine and betaine hydrochloride. The regular betaine is not acidic, so I usually give that, but if his mouth is watery and cannot swallow saliva, it is a sign of low stomach acid, and we give betaine hydrochloride, the usual remedy is given before eating (so they can digest the food with sufficient acid) at 1/8 to 1/4 teaspoon three times a day before meals. Selenium may be low in most ALS patients and therefore is given at 200 mcg x 2 times a day." Source

Read more posts from Ted here.


Continue reading below for additional information from Earth Clinic readers.


Be Careful With Threonine

2 User Reviews
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Posted by Chris (Pueblo, Co) on 06/09/2012
5 out of 5 stars

Warning

I have been helping a friend with ALS/Lou Gehrig's through the treatment recommended starting with the Lysine and Threonine as foundation. The Threonine dramatically increased mucous production in my friend and her breathing, which was strong before, had suddenly become labored. I did some more research on the Threonine and discovered on the WebMD site's description of Threonine side effects stating:

"Amyotrophic lateral sclerosis (Lou Gehrig's disease): There is some concern that threonine might decrease lung function in patients with ALS. In one study, ALS patients taking 4 grams of threonine per day had significantly reduced lung function compared to patients who did not receive threonine..."

And this is exactly what we saw. With all the symptoms of ALS she showed, the reduced lung function has not yet been one of them. But the introduction of Threonine directly coincided with a dramatic effect on her breathing. She said it felt like an elephant sitting on her chest.

On the positive, she previously had a clenched feeling in her throat that was pinching and really wearing her down. Since taking the Threonine, this has noticably relaxed and made it much easier to bear. But the thick mucous increase and belabored breathing is a bit scary, especially since many ALS sufferers die from this aspect. We are stopping the Threonine in hopes that her breathing will return to normal. If it doesn't I may counteract it with arginine, but I know this supports the possible viral function that we are attacking with Lysine. So I want to be careful and take it one day at a time.

I just felt it important to share this experience in case it is of help to anyone else out there.

Replied by Chris
(Pueblo, Co)
06/11/2012
5 out of 5 stars

An update on my friend who stopped Threonine due to a dramatic reduction in breathing capacity. Within 48 hours of stopping the Threonine, her breathing capacity has improved. She said this morning that she is feeling about 90% recovered to the state she was at before starting the Lysine/Threonine. The annoying mucous production has also subsided and she is feeling comfortable.

She has a relative that is a massage therapist and has been using clove oil, as suggested, in working it into the back of her neck and spine. It is helping her be a lot more comfortable, whether its the massage, the oil or both, we don't know, but she has been free of the cramping, spasms and pain she previously struggled with.


Check for Low Potassium

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Posted by Charity (Faithville, Us) on 10/27/2020
5 out of 5 stars

I was just watching Eric Berg on youtube teach help for RA and he was talking about how low potassium is behind it and then he said low potassium can cause cortisol issues. So that is interesting. I read years ago on some graph that low potassium was noted in ALS and another crippling disease. It stuck in my brain. Not sure what that site was it was so many years ago, it was a graph of minerals in different diseases. I was circling trying to solve my own health issues, the graph was made from using hair analysis.

This cortisol link with potassium is huge. Most people are cortisol resistant due to too much trauma overload and insulin resistant due to too much sugar but also can be caused by stress and not diet. I read in one site that a diet with no refined sugar but loads of stress made teeth rot out below the gum line from cortisol/

Cortisol production drains the whole body of minerals and hormones and nutrients. I guess that is why the bible says fear is a sin. I hope this opens a window for you for some fresh air.

Blessings, Charity


Coconut Oil

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Posted by Jacques (St-georges, P.Quebec / Canada) on 02/02/2013
5 out of 5 stars

TO MR TED, I am treating a case ALS presently and I found at many sites on the web that the coconut oil ( or MCT OIL) is very helpful with many positive results. You write on your pages to do not use ANY OIL ?? What do you think about these very good results and are you encouraged to use it ?? Your opinion will be very appreciated.

Also from all information, you put on your pages in regard to the colitis ulcerous, please be informed I treated 4 cases with 100% success without any recidive. Thank a lot to you.

Waiting yours comments,

Jacques from Canada

Replied by Free Of All
(Edmonton, Alberta)
10/13/2013

For ALS has anyone considered raising their pH to a Alkaline state using Baking Soda and mixing it with Coconut oil as Coconut oil has the ability to pass the blood Brain Barrier (Brain Food)


Coconut Oil, L-Lysine

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Posted by William (Texas) on 02/09/2017
3 out of 5 stars

Mr.Ted, Als, diagnosed 2012. On coconut oil and L-Lysine. Still declining. Sleep with C-Pap ventilato. Please help me. William


Consider Antiviral Remedies

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Posted by Roger (Charleston, Wv) on 10/06/2015

My brother was diagnosed with ALS in June. What r some of the treatments that u make and how to use them, ie colloidal Silver and what is DMSO, if any other. I have been told about the coconut oil.. How does that work, do u drink it or put it on your skin. Thank u anything to help him PLEASE

Replied by Bill
(San Fernando, Philippines)
10/06/2015
5 out of 5 stars

Hi Roger...Here is Ted from Bangkok's protocol for late stage ALS. ALS, according to Ted, appears to be caused by adenovirus. Here is the remedy that he used:

"There is a lot of things you can do. The most important is the mucus and toxins. N acetyl cysteine 4000 mg 6 times a day and taurine 1000 mg 4 times a day. This will remove toxins. Methylene blue 0.1% 20 drops morning lunch and dinner. Adenovirus can be protected with poly lysine 1000 mg 3 times a day to kill it.

Ted"

The child was in late stage ALS and in coma when he was put on Ted's regimen. When the parents took him out of hospital the doctors gave the boy 24 hrs to live. but the boy came out of coma and improved.

You can read all about his treatment here:

http://ted.earthclinic.com/cures/als-natural-treatment-supplements2.html

So, for adults, Ted's protocol would be thus:

N-Acetyl Cysteine -- 4000 mgs 6 times a day

0.1% Methylene Blue -- 20 drops mixed with 1000 mgs vitamin C in a half glass of water -- take this morning, lunch and dinner.

Taurine and Lysine each at 1000 mgs 4 times a day. Take them together dissolved in or with water.

Other useful remedies from Ted wrt ALS:

Rubbing ACV or vinegar directly on the back of the neck with help to kill the virus in the neck and brain regions.

Use 2% Lugol's Iodine mixed 50%-50% with DMSO. Apply this topically once a day along the whole length of the backbone and neck. DMSO will help the iodine to penetrate the bone to help kill ALS virus hiding in the synovial fluids there. Povidone Iodine is well known to kill adenovirus through research so lugol's iodine will do the same. Povidone Iodine cannot be ingested or used internally -- which is why you must only use the lugols iodine form(which can be ingested or used internally). Colloidal silver + DMSO could also perhaps be used like this with similar beneficial effects.

Rubbing drops of clove oil + aloe vera oil along the whole length of the backbone and neck area will also help to chase out the virus from the synovial fluids in the bone into the blood where the immune system can more easily kill it.

Take Lithium Carbonate 1.5 to 5 mgs per day.

You can buy most of the above nutrients from the health shop or internet vendors. You can purchase Methylene Blue at any aqua-culture shop that deals with fish tanks and fish for display. Methylene Blue is used in aqua-culture to help kill bacteria and fungus on the fish. MB is normally sold at 2.3% strength so you may have to dilute it down to 0.1% strength for use as Ted advises.


Consider Antiviral Remedies
Posted by Dave (Fountain Inn, Sc) on 01/14/2014
5 out of 5 stars

In reply to:

Posted by Mr Don (Gold Coast Australia) on 01/14/2014: My 70 year old wife has ALS for at least 8 months she is finding it hard to talk now and has trouble eating and sometimes breathing She is also losing strength in her arms She has herpes virus for many years. What can you suggest as a treatment I have been told that rhinacanthus root powder can reduce the amount of glutamate your body produces. Is this correct? Where can I purchase this product? It is widely used in the Bangkok uni. Regards Mr Don

If you google search "ALS herpes simplex" you'll find a number of articles on the possible connection. "Pub Med" has one such article. That article has connect with a specific type of ALS. You said that your wife did indeed have the virus long prior to the ALS onset.

The point is, if I were suffering from ALS I'd consider the possibility of a virus as either a trigger or the underlying cause of the ALS and would at least try to rid the body of the infection. I use a number of anti viruses, my favorite being Colloidal Silver; also Echinacea, tea tree oil... lots of "go to virus killers."

On the CS, I'd take orally three tablespoons daily for three months. I'd also do the CS as a nasal irrigation.

I know your wife must be very frightened. Encourage her never, never to lose hope. Same for you, "Mr Don." This is a terrifying disease to combat and I'll be praying for you to have wisdom and strength through it all.

Your friend here in America,

Dave

Replied by Anupam
(Poland)
03/01/2014

Dear Ted, my father is diagnosis ALS. He is 68 lives in India .now he is unable to walk and talk. Doctors says there is no treatment of ALS. Pls help us

Replied by Dave
(Fountain Inn, Sc)
03/01/2014

Hello Anupam,

I see you ask Ted about ALS and I'm not Ted nor even close to his expertise but if you will allow me, I'll give you my own approach to ALS.

I believe there is evidence that ALS has at its root a viral infection in the spine, cousins to the Polio virus. The Polio virus is a "specialty" virus and in theory so is ALS. Cadaver studies were performed on ALS corpses and (as I can recall) about 80 percent of those had the virus in the horns of the spinal vertebra.

In theory, then if I suspected a spinal infection, I would use a 50/50 mix of DMSO (see Earth Clinic under Remedies) and Colloidal Silver (see Earth Clinic again under Remedies). I'd apply with a white cloth as a poultice to spinal column for thirty minutes three times a week. After a month if I'd improved at all, I'd continue for six months. I'd also drink CS daily, three tablespoons on empty stomach daily for six months to kill the virus in the rest of the body. The DMSO will carry the Silver atoms into the skin and DMSO is also an anti viral so it too will help.

This combo has worked for me for numerous "below skin" infections and, yes, it will penetrate bone. If the combo is applied to base of skull it will penetrate into the brain. If I thought I had any infection in brain I would try this combination three times a week for at least a month and judge results.

Your father is very far advanced; you said he could not walk or talk; so the approach is a long shot....but if this were me...I'd try anything at this time.

Replied by Musibul
(Maharashtra)
08/25/2015

Hi Dave,

You mention you have apply white cloth as a poultice to spinal column. Please tell me the quantity for one time and you mention drink cs daily it means Colloidal Silver ?

Can you little elaborate how to apply?

Replied by Dave
(Fountain Inn, Sc)
08/25/2015

Hello Musibul,

I hope I spelled your name correctly....

but you ask a few questions on how I apply colloidal silver to myself. If I want to get CS into my spinal area I use a 50/50 mix of CS plus DMSO. The DMSO is a solvent and carrier. So the DMSO will penetrate my skin and spinal column carrying the CS with it.

I also will drink two tablespoons of CS daily to kill infections in the body.

Replied by Dave
(Fountaiin Inn, Sc)
08/25/2015

Hello Musibul,

And you also asked how to apply....a poultice is just the wet cloth laid onto the skin and let absorb for twenty minutes.

Use about two cups with a light white cloth for poultices. Enough to have the cloth very wet without being too drippy.


Deanna Protocol

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Posted by Sara (Wisconsin) on 06/06/2015
2 out of 5 stars

Hi Ted, I'm hoping you can help me out by getting back to me on your regime/treatment you have been on for the past year and how you are doing on that. My mom, who has ALS, has been on Deanna Protocol since Feb and Rilutek since April. Her arms are consistently getting weaker, she has foot drop and walking with a limp now, along with problems projecting her voice. Any input for me would be greatly appreciated.

Thank you, Sara


Dietary Changes, Supplements

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Posted by K (Florida) on 06/03/2016
5 out of 5 stars

My father was diagnosed with Bulbar Onset ALS.

He has been having great results with a combination of a strict gluten-free diet, no sugar, and supplements.

We did our own hair toxicology test from test country labs. His results showed he had 3 heavy metals in his system and also a deficiency of iodine and potassium. He is now using a feeding tube formula called, 'Liquid Hope' made of organic food. We have been doing green juices, ingesting 8 oz of coconut oil per day, msm powder, vit c water (bought powder form), and added filters to all our water sources.

Please test for heavy metals and test for proper liver function.

One friend has stopped his ALS symptoms by adhering to a strict sugar-free, gluten free diet and detoxing his system. We are seeing results as well.

My father was diagnosed by Mayo who promoted the Deanna Protocol..no significant changes or slowing of the disease. It seemed like a profit maker as anywhere the Deanna Protocol name was, it was followed by a trademark symbol. Our doctor had no clue what half of the supplements were and there was way too much creatine involved. Most of the DP supplements were synthetic.

Some naturopathic drs have been able to provide liver flush type treatments.

Please test for toxicity and liver function. If doctors won't do it, tests are easily purchased on amazon or directly from the website.

We had instructions and did ours at home. Don't wait for these experimental tests...because half of the people are given a placebo. It's such a waste. Diet and exercise. Keep moving and never give up!!!

Surround yourselves with supportive people, not victim-minded ill people who have already given up mentally.

Replied by Gigi
(California)
03/07/2017

How is your father doing? When was he diagnosed with Bulbar onset? Did you do the hair toxicology test when he was first diagnosed? I'm caring for someone who was just diagnosed.

Replied by roro2527
(Paris)
01/01/2022

Hi K,

Thank you for your story which gives me a hope, cause doctors only prescribe Riluzole knowing that it doesn't cure the disease but hurting badly the liver.

I hope you feel better now.

Replied by Charles
(CA)
02/07/2022
5 out of 5 stars

I make a liposomal formula at home using bulk supplements, and a powerful sonic cleaner.

I cured my cold using this.

1. Blend

  • 7 teaspoons Vitamin C powder,
  • 2.5 teaspoons zinc gluconate ppwder,
  • 3/4 teaspoon vitamin D3 powder,
  • 12 tablespoons sunflower lecithin powder,
  • 4 cups distilled water.

2. Blend for 4 minute in a high speed blender.

3. Pour mixture into a 1000 ml pyrex beaker

4. Suspend beaker in a sonic cleaner with these specifications which you can buy on Amazon: (I made a wooden jig to suspend the beaker without touching any metal) VEVOR Commercial Ultrasonic Cleaner 6L Professional Ultrasonic Cleaner 40kHz with Digital Timer&Heater 110V Excellent Cleaning Machine for Watch Instruments Industrial Parts Excellent Cleaner Solution

5. Add cold tap water to the sonic cleaner almost all the way up to the top of the beaker and turn on the cleaner.

6. The sonic energy will go from the water into the beaker and from the beaker into the mixture. I buzzed the mixture for a couple of hours, changing the water once to keep the water in the tank cold.

7. I drank one tablespoon of the mixture every hour for four hours. After that, since the cold was much better, I drank one tablspoon full about 4 times per day.

OK, I'm not sure this will work for ALS, but it sure kills the cold virus. This could be one part of a more advanced ALS regimine.


Dietary Changes, Supplements
Posted by Alon Shomer B.sc. N.d. (Jerusalem, Israel) on 02/02/2015
5 out of 5 stars

I treated a person that came to me several years ago.

He complained that he is progressively losing control over his legs making it difficult to walk, and that he has lots of muscle twitching in his left shoulder.

Since I believe that most of the CNS diseases are caused by funguses, I treated him for candida:

Mainly - no sweet beverages or drinks of any sort ( including fruit juices) at any time.
Large amount of probiotics. Very little sugars including fruits.

Diet: as much as he wanted vegetable salad with olive oil.
Semi hard yellow cheese or camembert (made with rennet and bacteria). Green drinks (green vegetables with one carrot only). Rice (small portion). Meat that was cooked or grilled for about two hours (moderate amounts). Eggs - two to four a week. Almonds soaked in water over night. Miso soup with wakame. Nuts and seeds

Supplements: (5-6 days a week all supplements) multivitamin and minerals. + zinc picolinate 10 mg + fish oil (3 times more EPA then DHA) 300 to 500 mg + vitamin E 200 mg mix tocopherols +1000 mg lecithin + B12 (4000 microgram a week) + vitamin C 500 mg + probiotics several strains, 2 capsules 4 times a day.

(He was instructed to wear copper bracelet, but today I will replace it by using on top of the one mg of copper in the multi, 3 mg of copper twice a week separated from any other supplement).

Exercises - at least 20 minutes a day, whatever he wanted to do in order to burn up calories, preferably before going to sleep.

In few months all his symptoms disappeared and all functions became normal.

I am unable to say for sure that it was the beginning of ALS but it is definitely worth the try.

Replied by Karen
(Florida)
03/07/2017

Hello. I was just checking in your dad's progress and hopeful success?? I have a dear friend recently diagnosed with same type of onset


Homeopathy

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Posted by Nm (Usa) on 10/30/2014
5 out of 5 stars

For Neurological diseases, ALS, MS, etc... try Plumbum homeopathic 30 or 200, Causticum is a huge central nervous system remedy, Calcarea Carb, Arsenicum in some cases... Bryonia is another... Main ones to try though are the first two... Search "homeopathy +als or ms and read the descriptions of each remedy and find the one that fits your symptoms... I got great assist from plumbum & causticum... Calc Carb also helped.. Try to be happy because mood can affect these diseases as well.

Replied by Nmx
(Midwest)
06/28/2015

Along with Plumbum or Causticum homeopathic - The Carnicom Institute who is working on Morgellons which I think might be involved in ALS - has found that Vit C and N Acetyl Cysteine (which helps create Glutathione - the chief antioxidant of all) are halting growth of Morgellons in the body - Morgs leaches iron and amino acids - which could cause your muscle weakness.., try these


Iodine

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Posted by Medicineman (Harrisburg, PA) on 09/01/2014
5 out of 5 stars

Treating ALS:

Coconut oil is fine. What you want is an overall healthy diet of real foods. No processed, no farmed fish. As wholesome and close to the land as possible. It should be a lifestyle.

The biggest contributor to mucus is dairy. Eliminating dairy from the diet would be my first go-to.

Run with this iodine and vitamin C (and take a multi for safe measure).

You need to detox. Iodine will detox heavy metals and help get systems back online. Vitamin C acts as like a shuttle service for the iodine going in as well as the toxins going out.

My father died of ALS years ago and suffice it to say - you'll get nowhere with the standard medical procedure. Rilutek is a joke.

ALS is caused by toxicity, stress, and degradation of the systems. All of which can be brought back to working order, I believe.

Dosage wise take 1-2 grams of vitamin C every 1-2 hours. Maybe stop closer to bed time as it can keep you up at night and rest is important.

Iodine you'll want to aim for around 1000 mcg. Gauge yourself at maybe half that or less. Iodine will produce detox effects that are flu like and depression.

If you're getting heavy detox symtoms just dial it back a while or take a day off.

Iodine is about the long game, it can take a year for it to do its work fully.

I like kelp as a source, because it's in its natural form with other companion nutrients that will help absorbtion. Sea weeds also have addictional detoxifying elements in them ontop of iodine.

But that's the gist of it. Health is a natural, organic process. It doesn't happen overnight and won't come from a pharmaceutical drug.

We come from nature and our road to wellness is a natural one.

Namaste', C


Iodine
Posted by Crystal (Centerville, IA) on 12/13/2008
5 out of 5 stars

ALS

Iodine tablets have improved my energy levels, lifted body temperature which runs low, helped my tired eyes and overall well being. I would add it to the list of 'musts' for ALS since I have been diagnosed with that 3.5 years ago. Also, Iodine is great for a natural heavy metal cleanse which goes hand in hand with so many health issues including candida, cancer.

The biggest thing with ALS is to stay away from medications like Baclofen. No medication will help ALS but rather will cause quicker deterioration of physical, mental, and financial health!

Baking soda taken as prescribed on the box is excellent for skin issues that won't heal and are cancerous looking. Research electrolytes and you will see what essentials are needed for our body to function.

I am 54 and going strong!


Lipid Replacement Therapy

1 User Review
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Posted by Timh (Louisville, Ky, USA) on 04/11/2013 2080 posts
5 out of 5 stars

In reply to:

Posted by Sarah (Carlyle, Illinois ) on 04/10/2013: My father-n-law has recently been diagnosed with ALS. We are having a really hard time to figure out what to do to help him. His progression is coming way to fast he is really having a tough time sleeping, problems with saliva, constipation and he is also very depressed. He has doctor appointment this Friday at the ALS clinic in St Louis. Ted, I need your help.

Sarah: I'm not Ted and cannot offer any specific recommendations, BUT I just watched an ihealthtube video of Professor Garth Nicholson of the Institute of Molecular Medicine speaking of his successes treating degenerative and chronic diseases with Lipid Replacement Therapy (LRT). He mentioned only recently using LRT in degenerative neurological diseases with success.


Magnesium Oil, Coconut Oil

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Posted by Marty (Rye, NY) on 08/25/2014
5 out of 5 stars

Butch Machlan talks about solving als, runs in his family, using magnesium chloride, along with coconut oil.


Medication Combinations Can Mimic ALS Symptoms

4 User Reviews
5 star (3) 
  75%
(1) 
  25%


Posted by Heather (Sudbury, Ontario, Canada) on 10/22/2009
5 out of 5 stars

Warning

Many people who are on a combination of diabetic medications and cholesterol medication find that they develop symptoms that mimic Lou Gehrig's Disease.

I know of at least 5 women in my town who have been mis-diagnosed by their doctors. One had gotten to the point of all her muscles collapsing and her lungs and heart were stopping working. Luckily, a new young surgeon at the hospital's emerg. department realized what was happening and took her off the cholesterol medication. She went from almost comatose to up in a wheelchair in 3 days, and walking by day 5. Apparently diabetic medications or cholesterol medications by themselves are fine, it's the combination that's terrible.

Replied by Meghan
(Brooklyn, Ny)
12/02/2009
5 out of 5 stars

My father was recently diagnosed with ALS. I still have that hope that it might not be true. He takes both diabetic medicines and cholesterol meds. Can you by any chance find out what her medications were that she was taking? And how they figured out that the combo of meds were doing it to her body?

Replied by Syed
(Ontario, Canada)
10/04/2015
5 out of 5 stars

ALS -I lost my right hand movements ( called motor skills). I was taking 40mg of Lipitor for quite some time.

Replied by Rsw
(Oh)
10/05/2015

Hi Syed,

I am sorry to hear of your probably unreported "adverse reaction" to statin drugs. For up to date information on the newest findings about how statins affect the human body, see Dr. Duane Graveline's Facebook page here:

https://www.facebook.com/Spacedoc-373791966069660/timeline/

There is also a Yahoo "Stopped Our Statin Group" you can join to feel some connectiveness, research data and awareness of the thousands of statin victims out there.

Dr. Graveline is currently doing a study on Dolichols that are blocked along the mevalonate pathway along with CoQ10 and other pathways and functions essential to repairing DNA. Cholesterol is needed by every part of our bodies, especially the heart and brain. It is inflammation that we don't want.

We would like to see the statin drug companies use some of those enormous profits to fund research to help the thousands of people like you, in fact about 25% of people taking statins, to regain functions that were lost, sometimes permanently and progressively even after statins have been discontinued, after short-term/long term statin drug use. You are not alone and every person's experience and thoughts are important in finding a solution. Take care.

Replied by Linda
(Carmarthenshire.)
09/22/2016
0 out of 5 stars

My Mother was a strong woman with hardly any sugar or junk. As soon as the G.P. 's put her on Statins, her health went down hill . At age 69, she died when her Mother and Father both lived well and happy into their 80's and 90's ..... my Mum was on both Statins and Avandia and other drugs, which she probably never needed because she never needed Statins in the first place .



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