I have been helping a friend with ALS/Lou Gehrig's through the treatment recommended starting with the Lysine and Threonine as foundation. The Threonine dramatically increased mucous production in my friend and her breathing, which was strong before, had suddenly become labored. I did some more research on the Threonine and discovered on the WebMD site's description of Threonine side effects stating:
"Amyotrophic lateral sclerosis (Lou Gehrig's disease): There is some concern that threonine might decrease lung function in patients with ALS. In one study, ALS patients taking 4 grams of threonine per day had significantly reduced lung function compared to patients who did not receive threonine..."
And this is exactly what we saw. With all the symptoms of ALS she showed, the reduced lung function has not yet been one of them. But the introduction of Threonine directly coincided with a dramatic effect on her breathing. She said it felt like an elephant sitting on her chest.
On the positive, she previously had a clenched feeling in her throat that was pinching and really wearing her down. Since taking the Threonine, this has noticably relaxed and made it much easier to bear. But the thick mucous increase and belabored breathing is a bit scary, especially since many ALS sufferers die from this aspect. We are stopping the Threonine in hopes that her breathing will return to normal. If it doesn't I may counteract it with arginine, but I know this supports the possible viral function that we are attacking with Lysine. So I want to be careful and take it one day at a time.
I just felt it important to share this experience in case it is of help to anyone else out there.
I was just watching Eric Berg on youtube teach help for RA and he was talking about how low potassium is behind it and then he said low potassium can cause cortisol issues. So that is interesting. I read years ago on some graph that low potassium was noted in ALS and another crippling disease. It stuck in my brain. Not sure what that site was it was so many years ago, it was a graph of minerals in different diseases. I was circling trying to solve my own health issues, the graph was made from using hair analysis.
This cortisol link with potassium is huge. Most people are cortisol resistant due to too much trauma overload and insulin resistant due to too much sugar but also can be caused by stress and not diet. I read in one site that a diet with no refined sugar but loads of stress made teeth rot out below the gum line from cortisol/
Cortisol production drains the whole body of minerals and hormones and nutrients. I guess that is why the bible says fear is a sin. I hope this opens a window for you for some fresh air.
TO MR TED, I am treating a case ALS presently and I found at many sites on the web that the coconut oil ( or MCT OIL) is very helpful with many positive results. You write on your pages to do not use ANY OIL ?? What do you think about these very good results and are you encouraged to use it ?? Your opinion will be very appreciated.
Also from all information, you put on your pages in regard to the colitis ulcerous, please be informed I treated 4 cases with 100% success without any recidive. Thank a lot to you.
Waiting yours comments,
Jacques from Canada
Mr.Ted, Als, diagnosed 2012. On coconut oil and L-Lysine. Still declining. Sleep with C-Pap ventilato. Please help me. William
My brother was diagnosed with ALS in June. What r some of the treatments that u make and how to use them, ie colloidal Silver and what is DMSO, if any other. I have been told about the coconut oil.. How does that work, do u drink it or put it on your skin. Thank u anything to help him PLEASE
(San Fernando, Philippines)
Consider Antiviral Remedies
In reply to:
Posted by Mr Don (Gold Coast Australia) on 01/14/2014: My 70 year old wife has ALS for at least 8 months she is finding it hard to talk now and has trouble eating and sometimes breathing She is also losing strength in her arms She has herpes virus for many years. What can you suggest as a treatment I have been told that rhinacanthus root powder can reduce the amount of glutamate your body produces. Is this correct? Where can I purchase this product? It is widely used in the Bangkok uni. Regards Mr Don
If you google search "ALS herpes simplex" you'll find a number of articles on the possible connection. "Pub Med" has one such article. That article has connect with a specific type of ALS. You said that your wife did indeed have the virus long prior to the ALS onset.
The point is, if I were suffering from ALS I'd consider the possibility of a virus as either a trigger or the underlying cause of the ALS and would at least try to rid the body of the infection. I use a number of anti viruses, my favorite being Colloidal Silver; also Echinacea, tea tree oil... lots of "go to virus killers."
On the CS, I'd take orally three tablespoons daily for three months. I'd also do the CS as a nasal irrigation.
I know your wife must be very frightened. Encourage her never, never to lose hope. Same for you, "Mr Don." This is a terrifying disease to combat and I'll be praying for you to have wisdom and strength through it all.
Your friend here in America,
(Fountain Inn, Sc)
(Fountain Inn, Sc)
(Fountaiin Inn, Sc)
Hi Ted, I'm hoping you can help me out by getting back to me on your regime/treatment you have been on for the past year and how you are doing on that. My mom, who has ALS, has been on Deanna Protocol since Feb and Rilutek since April. Her arms are consistently getting weaker, she has foot drop and walking with a limp now, along with problems projecting her voice. Any input for me would be greatly appreciated.
Thank you, Sara
My father was diagnosed with Bulbar Onset ALS.
He has been having great results with a combination of a strict gluten-free diet, no sugar, and supplements.
We did our own hair toxicology test from test country labs. His results showed he had 3 heavy metals in his system and also a deficiency of iodine and potassium. He is now using a feeding tube formula called, 'Liquid Hope' made of organic food. We have been doing green juices, ingesting 8 oz of coconut oil per day, msm powder, vit c water (bought powder form), and added filters to all our water sources.
Please test for heavy metals and test for proper liver function.
One friend has stopped his ALS symptoms by adhering to a strict sugar-free, gluten free diet and detoxing his system. We are seeing results as well.
My father was diagnosed by Mayo who promoted the Deanna Protocol..no significant changes or slowing of the disease. It seemed like a profit maker as anywhere the Deanna Protocol name was, it was followed by a trademark symbol. Our doctor had no clue what half of the supplements were and there was way too much creatine involved. Most of the DP supplements were synthetic.
Some naturopathic drs have been able to provide liver flush type treatments.
Please test for toxicity and liver function. If doctors won't do it, tests are easily purchased on amazon or directly from the website.
We had instructions and did ours at home. Don't wait for these experimental tests...because half of the people are given a placebo. It's such a waste. Diet and exercise. Keep moving and never give up!!!
Surround yourselves with supportive people, not victim-minded ill people who have already given up mentally.
Dietary Changes, Supplements
I treated a person that came to me several years ago.
He complained that he is progressively losing control over his legs making it difficult to walk, and that he has lots of muscle twitching in his left shoulder.
Since I believe that most of the CNS diseases are caused by funguses, I treated him for candida:
Mainly - no sweet beverages or drinks of any sort ( including fruit juices) at any time.
Large amount of probiotics. Very little sugars including fruits.
Diet: as much as he wanted vegetable salad with olive oil.
Semi hard yellow cheese or camembert (made with rennet and bacteria). Green drinks (green vegetables with one carrot only). Rice (small portion). Meat that was cooked or grilled for about two hours (moderate amounts). Eggs - two to four a week. Almonds soaked in water over night. Miso soup with wakame. Nuts and seeds
Supplements: (5-6 days a week all supplements) multivitamin and minerals. + zinc picolinate 10 mg + fish oil (3 times more EPA then DHA) 300 to 500 mg + vitamin E 200 mg mix tocopherols +1000 mg lecithin + B12 (4000 microgram a week) + vitamin C 500 mg + probiotics several strains, 2 capsules 4 times a day.
(He was instructed to wear copper bracelet, but today I will replace it by using on top of the one mg of copper in the multi, 3 mg of copper twice a week separated from any other supplement).
Exercises - at least 20 minutes a day, whatever he wanted to do in order to burn up calories, preferably before going to sleep.
In few months all his symptoms disappeared and all functions became normal.
I am unable to say for sure that it was the beginning of ALS but it is definitely worth the try.
This recent case report (January, 2023) Involves a woman with Amyotrophic Lateral Sclerosis (ALS) / Lou Gehrig's Disease. It is just one case report, but I wanted to mention it because of the treatment used, Fecal Microbiota Transplantation (FMT) and the results gotten from FMT.
Here is a link to the report :
It is worth mentioning that they used the newest form of FMT, Washed Microbiota Transplantation (WMT) in this woman and the results were fairly impressive compared to just about anything else that might be used for ALS.
The woman suffered an accidental trauma to her scalp after starting WMT, which her doctors treated with antibiotics, unfortunately the antibiotics caused the ALS to deteriorate significantly again. WMTs were deployed again after the antibiotic regimen as a rescue treatment which quickly reduced the worsened symptoms again and stopped the progression of the disease again. She received a new WMT every two to three months and this stopped the progression of the ALS as long as she continued with the regular application of WMT, though they weren't very clear on that point.
During the course of WMT, symptoms would reverse and then plateau in a sequence during the course of WMTs. The report reached the following conclusion based on this single case report :
' The stool and blood samples from the first WMT to the last were collected for dynamic microbial and metabolomic analysis. We observed the microbial and metabolomic changing trend consistent with the disease status. This case report for the first time shows the direct clinical evidence on using WMTs for treating ALS, indicating that WMT may be the novel treatment strategy for controlling this so-called incurable disease. '
I felt that this case study illustrates the potential of FMT/WMT as a viable treatment for ALS and possibly other diseases. Currently, FMT in the US is used almost exclusively for Clostridia Difficile (C-diff) infection that does not respond to standard antibiotic therapy and in such cases, can be fatal, so FMT is more of a last ditch effort.
With this new form of FMT, referred to as WMT, the transplants are filtered and cleaned or washed to make them safer than ever before. It isn't mainstream yet, but with future studies, WMT appears likely to become the new standard for FMT.
There are currently no known treatments that can stop the progression of ALS, but this case report is showing the potential of FMT/WMT to do just that. Given that ALS patients have an average life expectancy of just 3 to 5 years, this is huge and important news for people with ALS, but this case report received little if any news coverage.
My impression from this case report of an ALS patient using WMT as a treatment is that starting treatment immediately after diagnosis is important because while WMT may have stopped the disease progression and significantly improved symptoms, it did not completely reverse symptoms, so starting before there are very significant symptoms may offer the best chance for the best quality of life and outcomes for ALS patients.
For Neurological diseases, ALS, MS, etc... try Plumbum homeopathic 30 or 200, Causticum is a huge central nervous system remedy, Calcarea Carb, Arsenicum in some cases... Bryonia is another... Main ones to try though are the first two... Search "homeopathy +als or ms and read the descriptions of each remedy and find the one that fits your symptoms... I got great assist from plumbum & causticum... Calc Carb also helped.. Try to be happy because mood can affect these diseases as well.
Coconut oil is fine. What you want is an overall healthy diet of real foods. No processed, no farmed fish. As wholesome and close to the land as possible. It should be a lifestyle.
The biggest contributor to mucus is dairy. Eliminating dairy from the diet would be my first go-to.
Run with this iodine and vitamin C (and take a multi for safe measure).
You need to detox. Iodine will detox heavy metals and help get systems back online. Vitamin C acts as like a shuttle service for the iodine going in as well as the toxins going out.
My father died of ALS years ago and suffice it to say - you'll get nowhere with the standard medical procedure. Rilutek is a joke.
ALS is caused by toxicity, stress, and degradation of the systems. All of which can be brought back to working order, I believe.
Dosage wise take 1-2 grams of vitamin C every 1-2 hours. Maybe stop closer to bed time as it can keep you up at night and rest is important.
Iodine you'll want to aim for around 1000 mcg. Gauge yourself at maybe half that or less. Iodine will produce detox effects that are flu like and depression.
If you're getting heavy detox symtoms just dial it back a while or take a day off.
Iodine is about the long game, it can take a year for it to do its work fully.
I like kelp as a source, because it's in its natural form with other companion nutrients that will help absorbtion. Sea weeds also have addictional detoxifying elements in them ontop of iodine.
But that's the gist of it. Health is a natural, organic process. It doesn't happen overnight and won't come from a pharmaceutical drug.
We come from nature and our road to wellness is a natural one.
Iodine tablets have improved my energy levels, lifted body temperature which runs low, helped my tired eyes and overall well being. I would add it to the list of 'musts' for ALS since I have been diagnosed with that 3.5 years ago. Also, Iodine is great for a natural heavy metal cleanse which goes hand in hand with so many health issues including candida, cancer.
The biggest thing with ALS is to stay away from medications like Baclofen. No medication will help ALS but rather will cause quicker deterioration of physical, mental, and financial health!
Baking soda taken as prescribed on the box is excellent for skin issues that won't heal and are cancerous looking. Research electrolytes and you will see what essentials are needed for our body to function.
I am 54 and going strong!
In reply to:
Posted by Sarah (Carlyle, Illinois ) on 04/10/2013: My father-n-law has recently been diagnosed with ALS. We are having a really hard time to figure out what to do to help him. His progression is coming way to fast he is really having a tough time sleeping, problems with saliva, constipation and he is also very depressed. He has doctor appointment this Friday at the ALS clinic in St Louis. Ted, I need your help.
Sarah: I'm not Ted and cannot offer any specific recommendations, BUT I just watched an ihealthtube video of Professor Garth Nicholson of the Institute of Molecular Medicine speaking of his successes treating degenerative and chronic diseases with Lipid Replacement Therapy (LRT). He mentioned only recently using LRT in degenerative neurological diseases with success.
Butch Machlan talks about solving als, runs in his family, using magnesium chloride, along with coconut oil.