What is Cystic Fibrosis?
Cystic fibrosis, otherwise known as mucoviscidosis or CF, is a hereditary disease of the mucous glands that critically affects the lungs, as well as the pancreas, liver, and intestines. Due to an overproduction of mucus, CF can cause frequent chest infections, coughing, and shortness of breath. Other symptoms of Cystic fibrosis are salty tasting skin, poor growth or weight gain due to poor nutrient absorption through the intestines, and bowel obstruction in newborns.
Cystic fibrosis worsens over time, and management of CF is centered around controlling and limiting lung damage and the decline of other organs. Though people suffering from CF can live much better lives now than in comparison to thirty years ago, oftentimes organ transplantation (usually double lung, but sometimes pancreas or liver as well) can become necessary to their survival. Cystic fibrosis can cause infertility in both men and women; in men there is a congenital absence of the vas deferens, while in women pregnancy is made difficult due to thickened cervical mucus or disrupted ovulation due to malnutrition.
Natural Treatment for Cystic Fibrosis
The purpose of this page is to allow users to share their experience with natural treatments for CF, and we are currently open to learning more about what people are using to cope with cystic fibrosis symptoms. Currently, users have reported positive results with hydrogen peroxide and Himalayan Salt. Research also suggests that vitamin E supplements can help moderate cystic fibrosis symptoms.1 If you have a home remedy you use for cystic fibrosis, or have tried a remedy on this page, please let us know about your experience.
Apple Cider Vinegar
07/27/2010: Michael from Wilder, Ky: "Has anyone tried using Apple Cider Vinegar for helping some of the problems associated with cystic fibrosis?"Replies
05/15/2011: Stacy from Antioch, Ca replies: "i just found this site seeking info for my husbands kidney stones and when I saw your headline treatment and cure for cf as a mother of a cf child my heart sank. I plan on getting my son started on a mild Apple Cider Vinegar regimin due to fear of kidney stones he has excesive vit a and deficient in d. Lungs are surprisingly awsome but digestive is bad many many pills to digest food must be taken. it is incredibly hard to believe he is overweight thanks to an appetite enhancer called megace which saved his life very young. He had a food tube placed but it made him very ill and by the grace of god we found a dr to remove it and that dr gave him megace after that we have been sailing very well he is not required to take it anymore due to his weight gain and we are very pleased with his lungs. I wish anyone well whom suffers or knows someone whom suffers with cf. I hope this info may help someone."
01/20/2012: Holly from Calgary, Alberta, Canada replies: "Stacy, I just read your post, as I am an avid EarthClinic reader and a Mom to a beautiful child with CF. I had started an ACV reginem with my Daughter earlier in the year (2011), however, we noticed her digestive enzymes were becoming less effective. As it turns out, the vinegar was helping the enzymes release in her stomach (too early) instead of in her intestines, where they work to their full potential.
I do hope you are having no ill effect of using ACV, I thought it may be helpful to share what had happened to us. My four other healthy children take ACV with no known problems."
11/23/2013: Lawmd from Atlanta, Ga: "I am an allopathic medical student doing a fellowship in integrative medicine. I thought I would share that research into treatment for cystic fibrosis has shown curcumin (found in turmeric) to help with the most common genetic mutation (deltaF508). Curcumin inhibits a calcium pump in the endoplasmic reticulum, which impairs the ability of the mutated deltaF508 protein by the calcium-dependent chaperone which would normally allow for proper folding. Experimental animal studies have shown that animals treated had a normalization of chloride transport in the gut and nasal epithelium and dramatically increased rates of survival. (pg 402, Genetics in Medicine).
I don't know what if any human research has been done and I suspect that curcumin isn't profitable enough for much additional research. I'm not recommending any dosages or that anyone try curcumin, but I think people searching for help with cystic fibrosis should have this information to do with as they see fit. I personally take tumeric daily, and if I had CF, I would definitely give it a try.
I hope this helps!
-J. Law, Atlanta, GA (MD candidate)
**Thanks to the folks who love to sue and those who hate alternative medicine, I am inclined to pass on the following advice to cover my rear.**
"Physicians should counsel patients with cystic fibrosis to refrain from rushing to the health food store to buy curcumin."- New England Journal of Medicine
My sources are cited below. There are quite a few articles that have been done on this, these are just a few.
Zeitlin, P. (2004). Can curcumin cure cystic fibrosis?. New England Journal of Medicine, 351, 606-608.
Egan, M. E., Pearson, M., Weiner, S. A., Rajendran, V., Rubin, D., Gl?ckner-Pagel, J., ... & Caplan, M. J. (2004). Curcumin, a major constituent of turmeric, corrects cystic fibrosis defects. Science, 304(5670), 600-602.
Berger, A. L., Randak, C. O., Ostedgaard, L. S., Karp, P. H., Vermeer, D. W., & Welsh, M. J. (2005). Curcumin stimulates cystic fibrosis transmembrane conductance regulator Cl–channel activity. Journal of Biological Chemistry, 280(7), 5221-5226."
Cystic Fibrosis Remedies
04/29/2013: Robert from Huntington, Indiana: "Will you help me find a natural cure for cystic fibrosis?"Replies
04/29/2013: Joy from Battleground, Wash replies: "Dr. Batmanghelidj wrote two things about it in his book ABC OF ASTHMA ALLEGIES & LUPUS and if you have CF, ... I encourage you to read all his books for improved overall health."
04/29/2013: Joy from Battleground, Wash replies: "Adding to my post, I wondered about magnesium for CF and they warn them not to use mag and I wondered why and Carolyn Dean has some info on magnesium and Cystic Fibrosis on her magnesium site. Salt, mag and calcium and potassium all need each other to do what they do in the body.
Dr. Batman was talking about salt retention and mag association and that seems to be an important connection because salt thins out muscus secretions and CF is thick mucus I think....
I really don't know much at all , and did terrible in science and biology in school I have just been sick and looking for answers.
I wonder if someone with CF could take the epson salt and baking soda in bath 1/2 cup of each and feel some relief ? Or would it hurt them?
Hope you find every answer you need.... Love, Joy"
04/30/2013: Sparlow from Cardiff, Uk replies: "I'd recommend investigating the gluten link with CF. Giving up all grains can have a miraculous effect.. read Breaking the Vicious Cycle by Elaine Gottschall for the why's, wherefores and recipes."
[YEA] 05/06/2012: Anon from Hanover, Pa: "Himalayan Salt Brine. I am a 31yr old female with CF. I've been drinking Himalayan salt brine for 6 months now and my PFT's have improved and overall feel very good. Also I have Himalayan salt lamps placed throughout my house and use Himalayan salt on my food, not table salt. Also there is a Himalayan salt cave close to my house that I visit approx 2 times per month. Hopefully this helps someone out there."Replies
05/07/2012: Usmcwannabe from Chicago, Il replies: "Hi Anon from Hanover, Pa, I have read about Himalayan salt brine working for people with all lung ailments. I'm wondering where you get Himalayan salt brine from organic health food store, regular grocery store. Also what you do with it how much you use. Also how long it took for improvements. Because I need to "pass" a pft for the military. I'm at low 80% and the doctor said I may have borderline obstructive lung diease. I'm desperate for help.
Also have you tried Oil pulling or ACV? Thanks!"
05/07/2012: Jennifer from Sunrise, Fl, Usa replies: "Trader Joe's used to sell (not sure if they still do) Himalayan Pink Salt in a grinder. I'm sure you could also find some online. - Jen"
05/10/2012: "Hello. I buy my Himalayan salt online, either from san franciso salt company or himalayan salt cart.
I make the brine myself. Using a glass jelly jar put 1 inch of himalayan salt in the bottom and fill the rest of the jar (about 3-4 inches) up with spring water, I use deer park. Let it sit for 24hrs and if there's still salt in the bottom of the jar it's ready to drink. U always want salt left in the bottom of the jar, then when your water runs low just refill the jar 1 inch of salt on the bottom and fill the rest w/ water. If you google himalayan salt brine all this info will come up.
I started out using 1 tsp a day w/ 8 oz of water. I did that for 2 wks then I bumped in up to 2 tsp w/ 8oz of spring water. I've been doing that now for almost 5 months.
U do this 1st thing in the morning before u eat or drink anything. Drink your brine w/ spring water and wait 10 minutes before eating or drinking anything else.
I noticed a difference in my breathing in about 4 wks. Now 5 months later I feel a big difference. Normally my FEV1 runs in the mid 40's% but this past winter was basically cold after cold for me so my FEV1 went down to the upper 30's%. I was around 38% for about 4 or 5 months and I couldn't get back to the 40's. So my Dr wanted me back in a month to recheck. During that month I started the salt brine, went back in 5 wks and my FEV1 was 50% my doc couldn't believe it. Up 13% in 5 wks without any antibiotics or other drugs. I actually just went back for another PFt Wednesday (2.5 months from 50%) and it went up to 51%. So I'm still higher than my usual 40's%.
Hopefully this helps. Good luck!
I've never tried the other things you've mentioned."
11/27/2012: Kathy from Wyoming, Pa replies: "Hi Anon, I live nearby in Wyoming, Pa. I too use and my daugher (who has 2 girls with CF) Himalayan salt lamps. Im intrigued by where is there a salt cave nearby. Im also interested in your salt water mixture for drinking. Thank you"
[WARNING!] 06/12/2013: Mary from Ny replies: "I am a critical care (certified) RN with 24 years experience. During that time I have seen several patients admitted for a high alkalosis condition brought on by regular (daily) ingestion of Himalayan mineral salt or baking soda. The mineral salts have a pH around 8.4. These patients required immediate placement of a breathing tube and mechanical breathing support. The normal pH of the blood is a very narrow 7.35 to 7.45. This balance is necessary for the proper functioning of all organs (think heart! , brain!), furthermore this balance is delicately managed by the lungs and kidneys and it takes the body far longer to respond to and correct high alkolosis than it does high acidosis. Proper pH testing and monitoring should be performed while using this type of therapy."
[YEA] "03/12/2012: Tf4624 from Usa, Wi, Usa writes: "Causes of cystic fibrosis (low O2 pressure in cells of the body leading to malfunction of ionic pumps that transport ions and water across epithelial layers)
Causes of low body oxygenation (ineffective breathing patterns) confirmed by numerous studies
Crucial lifestyle factors that leads to ineffective breathing.
What is the cause of cystic fibrosis? The cause of cystic fibrosis on a cell level is simple and clear: tissue hypoxia or low oxygen levels in body cells. This makes complete sense since ionic pumps require oxygen, and it has been known for decades that chloride and other pumps are ineffective in conditions of tissue hypoxia even in normal people (Clerici & Matthay, 2000; Karle et al, 2004; Mairbaurl et al, 1997; Mairbaurl et al, 2002).
However, there are even more specific findings. It was recently discovered that CFTR mutation gene (cystic fibrosis transmembrane conductance regulator) is controlled by levels of oxygen in body cells in a dose dependent manner (BebÃ¶k et al, 2001; Guimbellot et al, 2008; Yeger et al, 2001; Zheng et al, 2009).
These revolutionary discoveries force us to reconsider the real causes of cystic fibrosis. It is not just a genetic disease. Advance of cystic fibrosis requires low oxygen levels. Normal oxygen levels do not allow development of main symptoms of cystic fibrosis related to thick mucus and respiratory infections. What is the cause of low body oxygenation in people with cystic fibrosis?
All available medical evidence have shown presence of chronic hyperventilation in CF patients, while medical research confirmed injurious effects of alveolar hypocapnia on lung tissue. Furthermore, medical doctors from the Department of Medicine, University of Texas Health Science Center in Houston in their publication "Importance of respiratory rate as an indicator of respiratory dysfunction in patients with cystic fibrosis" observed that "Respiratory frequency was increased in the patients with cystic fibrosis compared with a group of healthy control subjects, as was minute ventilation and mean inspiratory flow. Respiratory frequency was a sensitive predictor of respiratory dysfunction" (Browning et al, 1990).
Food grade 35% H2O2 Can and is the answer to disease including your issue.
H202 kills the virus/bacteria/microbe by blocking its portein, in which it need to survive.. By closing in on it it suffocates to death. Once in contact of the diseased cell it will kill it within 6 min but reverts the cell back to normal, leaving no side effects to the cell itself, based on years of experience, myself and reports from thousands of users. The program is not carved in stone and keep in mind that it can be adapted to fit individual needs. Individuals who have had transplants should not undertake an H202 program. H202 stimulates the immune system and could possibly cause a rejection of the organ.
Must keep refrigerated. Must be FOOD grade 35% H202.. Keep out of sunlight. Must be mixed in GLASS. Not plastic Recommend that you chug it at once.. Max life in glass is about 15 minutes.. After such time it will be useless once you drink it. (must Dilute.. Do NOT drink straight Min. 6 ounces or more of Distilled water MUST BE used
Day # -Number of Drops/ Times P
Day # -Number of Drops/ Times Per Day (bye a dropper bottle to keep it in.. Must be the dark Glass version)
- 1 - 3 / 3
- 2 - 4 / 3
- 3 - 5 / 3
- 4 - 6 / 3
- 5 - 7 / 3
- 6 - 8 / 3
- 7 - 9 / 3
- 8 - 10 / 3
- 9 - 12 / 3
- 10 - 14 / 3
- 11 - 16 / 3
- 12 - 18 / 3
- 13 - 20 / 3
- 14 - 22 / 3
- 15 - 24 / 3
- 16 - 25 / 3
Reverse the above starting at 25 drops 3 times a day till you get back to 3 drops 3 times a day.. This is your normal maintenance dosage.
This can then be reduced to between 5 and 15 drops per week based on how one feels. Those with more serious problems will often benefit from staying on 25 drops three times a day for one to three weeks, then tapering down to 25 drops two times daily until the problem is resolved (possibly as long as six months, depending on what your treating, everthing is different). Those with chronic systemic Candidiasis may need to start with 1 drop three times a day, then 2 drops three times a day before starting the above schedule. It is important that H202 be taken on an empty stomach. This is best accomplished by taking it either one hour before meals or three hours after meals. If there is food in the stomach, the reaction of H202 on any bacteria present may cause excess foaming, indigestion, and possibly even vomiting. Additionally, some animal research indicates that when H202 given orally combines with iron and small amounts of vitamin C in the stomach, hydroxyl radicals are created (J Inorg Biochem 89;35(1):55-69). The bleach-like aftertaste of H202 can be lessened by chewing one of the sugar-free cinnamon gums. Some individuals taking H202 immediately before bedtime have a difficult time getting to sleep. This is probably due to a sense of alertness triggered by an increase of oxygen at the cellular level. The oral dosage schedule is basically the same for all conditions. There are several points to keep in mind, however.
Some individuals may experience upset stomach. If this occurs it is recommended that one not stop the program, but rather remain at the current dosage level or reduce it to the previous level until the problem stops. (Some patients have been able to solve the nausea problem by taking three or four lecithin capsules at the same time they take the H202. ) During the program it's not uncommon to experience what is known as a healing crisis. As dead bacteria and toxins are released from your body it may temporarily exceed your capacity to eliminate them quickly enough. In some individuals this overload may cause fatigue, diarrhea, headaches, skin eruptions, cold or flu-like symptoms, and/or nausea. One should not discontinue using the peroxide to stop this cleansing. By continuing the program, toxins will clear the body sooner and this healing crisis will pass rather quickly.
If you are not already taking vitamin E and an acidophilus product, I recommend starting them before going on H202. Vitamin E can make more efficient use of any oxygen available and acidophilus will help re-establish the beneficial bacterial flora in the lower bowel and also help in the internal production of hydrogen peroxide.""
H2O2 USE FOR CYSTIC FIBROSIS "
05/29/2013: Michelle from Canada replies: "I have cystic fibrosis & have started ingesting 35% food grade HP as indicated. I am curious to know if I should also do the inhalation method & if its safe to do both at the same time? How do I dilute the 35% FGHP to 3% for inhalation? Is it recommended to use store bought 3% HP? Once diluted (35% FGHP) it is only effective for 15 mins - does this also refer to the inhalation method?"
06/04/2013: Jean from New Park, Nh replies: "Michelle from Canada: There's lots of info right here on Earth Clinic about the inhalation method.
Mix 1 Tablespoon of 3.5% diluted hydrogen peroxide solution with 8 oz (1 C) of distilled water for use as a nasal spray. Use 2-3 squirts of this nasal spray throughout the day when you start experiencing signs of congestion. Better yet, try it daily and see if it helps ward off congestion during the cold and flu season.
07/05/2013: Allison from Seattle, Wa, Usa replies: "This is in repsonse to Michelle from Canada. I also have Cystic Fibrosis and I would like to know how FGHP has helped you. Have you tried it in your nebulizer yet or still taking it orally? I just got my bottle of FGHP today and I can't wait to start tomorrow!! I'm so tired of the constant antibiotics. I have an enlarged liver and I believe its from all the antibiotics that I've been on throughout the years. Just curious to hear from someone with cf."
07/06/2013: Allison from Seattle, Wa, Usa replies: "I just got my blood work back from the hospital and it states that I'm positive for MRSA. I have cystic fibrosis. this is not the first time I've had it and I believe I got it from the hospital a couple years ago) I just got off 2 weeks iv meropenom (3x/day) and Tobramycin (1x/day). The blood test was BEFORE my course of antibiotics. I'm wondering if the iv meds killed the mrsa or not. I have an appt in 2 days where I can discuss this with my doctor. But what I'd like to know is if FGHP inhalation therapy kills MRSA. I just started my therapy today and have had great results. I plan on doing it and will write in to let everyone know how it's worked once a couple weeks has past."
[NAY] 01/23/2008: DeltaF508 from Northern California: "THE HERB LOBELIA. I heard about this herb on this website. I have been experiencing "cystic fibrosis" ever since i was born, and this herb called "lobelia" is a bunch of bullshit. It was not cured. Apparently cystic fibrosis is a genetic disorder, and cannot be cured with somehting as simple as an herb no matter how magical anyone makes it sound. 3 spoonfuls every 8 hours and you won't be cured in any time at all. No matter what amount i took, nothing changed. My pseudomonis didn't go away, i still have weight gain issues, i still have to take enzymes whenever i eat, i still have to do 5 breathing treatments a day, and i still have to take daily antibiotics. The list goes on about what hasn't changed. It was a waste of money and time. Thanks for posting this, I hope to help other people out from my experience."
02/25/2007: Jack from Toledo, OH: "An elderly lady at the natural food (herb store ) told me about a little boy who was diagnosed with "cystic-fibrosis" and was cured simply using liquid "Lobelia", 1 to 2 tsp a day, "no way to confirm".........GOD BLESS.."Replies
09/23/2009: Julieddf508 from Southern Ontario, Canada replies: "Lobelia
This would NOT cure some one of Cystic Fibrosis. CF is a genetic and as of yet uncurabe disease. I am aware of your disclaimers but statements such as this:
[YEA] 02/25/2007: Jack (firstname.lastname@example.org) from Toledo, OH writes: "An elderly lady at the natural food (herb store ) told me about a little boy who was diagnosed with "cystic-fibrosis" and was cured simply using liquid "Lobelia", 1 to 2 tsp a day, "no way to confirm".........GOD BLESS.."
are dangerous. I have had CF since I was 8 weeks old and am now 28, if this could "cure" people than there wouldn't be people dying from it."
EC: Thanks for pointing out the post. People hearing about remedy success typically don't get yea/nay ratings. Will remove the YEA.
12/14/2012: Ali from Esfahan, Iran: "Hi I'm Ali from Iran, a boy is in my family who has cistic fibrosis he is 7 yrs old. Do you know any cure or drug? let me plz thanks alot for your help"
04/19/2012: Jolanta from Kelowna, Bc, Canada: "My nephew is almost 20, dignosed with CF when he was 3 months old. I am looking for any remedies to improve his lung function, to loosen up secretions, etc. He is doing rather well and always willing to try new remedies."Replies
05/01/2012: Amanda from New York, Ny replies: "Please have your nephew try Inhaled Glutathione treatments. Google about it for cystic fibrosis and you should find plenty of info about children using it and having much success!!! You need a doctor's prescription for it, so make sure to see a holistic doctor who already works with inhaled/nebulized Glutathione at his/her clinic. You can also try him on Glutathione capsules and MSM powder (make sure the brands are reputable - both can be bought at health food stores, but from what I've heard, the most astounding treatment is the nebulized Glutathione. Good luck to your nephew!!"
06/09/2013: Mary from NY replies: "An alkaline diet with items like lemons and wheat grass are drying to the body and can help lessen mucus."