Stiff person syndrome (SPS) (or stiff-man syndrome outside the USA; also known more rarely as Stiffperson's Syndrome or Moersch-Woltman Condition) is a rare neurologic disorder of unknown etiology characterized by progressive rigidity....
Those with the illness experience progressive, fluctuating tonic muscle contractions, particularly the axial musculature. Depression and anxiety are often noted although this may be a result of discomfort due to stiffness, rather than underlying neurochemical abnormalities. MRI detection of GABA in the brain have demonstrated reduced levels in stiff-person syndrome."
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[QUESTION] 07/11/2010: Maria from Lumberton, Ms, Usa: "My husband has a very rare illness called stiff person plus syndrome. He suffers with excruciating neuropathic pain all over his body, all the time, but worse in his feet and legs. Moderate painkillers do not help, and he refuses to take the prescribed narcotics. Along with the pain and other physical problems, this disease also causes depression, which makes the pain even harder to deal with. Any suggestions would be greatly appreciated."Replies
02/10/2011: Tjf_psl from Port St. Lucie, Fl replies: "My boyfriend has also been diagnosed with this disease (oddly enough he started having severe symptoms about a week before your post). Have you had any luck with finding anything that helps? "
02/19/2011: Sabita from Florida, Usa replies: "I am reading a book called "Back to Eden" by Jethro Kloss in which is described different water therapies. Please check this out."
10/27/2011: John from Regina, Sk Can replies: "Maria, I have had this condition since the eary 90's. Was part of a 2 year NIH study overseen by Dr. Dalakas. Make sure your husband finds a good neurologist. I manage well, drive, travel etc. started on 2 mg valium 3 times a day now am on 5 mg valium 4 times a day only had one bad seizure over last 2 years I sympathize with your husband and you. Life's a Bitch, but can be managed."