"Amyotrophic Lateral Sclerosis (ALS, sometimes called Lou Gehrig's Disease, or Maladie de Charcot) is a progressive, usually fatal, neurodegenerative disease caused by the degeneration of motor neurons, the nerve cells in the central nervous system that control voluntary muscle movement. As a motor neuron disease, the disorder causes muscle weakness and atrophy throughout the body as both the upper and lower motor neurons degenerate, ceasing to send messages to muscles. Unable to function, the muscles gradually weaken, develop fasciculations (twitches) because of denervation, and eventually atrophy due to that denervation. The patient may ultimately lose the ability to initiate and control all voluntary movement except of the eyes.
Cognitive function is generally spared except in certain situations such as when ALS is associated with frontotemporal dementia. However, there are reports of more subtle cognitive changes of the frontotemporal type in many patients when detailed neuropsychological testing is employed. Sensory nerves and the autonomic nervous system, which controls functions like sweating, generally remain functional." (Wikipedia)
Our readers offer information and opinions on Earth Clinic, not as a substitute for professional medical prevention, diagnosis, or treatment. Please consult with your physician, pharmacist, or health care provider before taking any home remedies or supplements or following any treatment suggested by anyone on this site. Only your health care provider, personal physician, or pharmacist can provide you with advice on what is safe and effective for your unique needs or diagnose your particular medical history.
09/20/2009: Sayer from Bonita Springs, Fl : "Lou Gehrig Disease, also known as Amyotrophic Lateral Sclerosis, or Motor Neuron Disease in the U.K, is generally considered an incurable neurodegenerative disorder. While it may be true that this disease terminates in motor neuron destruction, paralysis and death, the process of degeneration can be slowed through nutritional supplementation.
I have collated research culled from the government biomedical database known as MEDLINE on the following natural substances with potential therapeutic value: 5-htp, Coenzyme Q10, ECGC (a polyphenol found in green tea), antioxidant rich diet high in fruits and vegetables, gingko biloba, a diet rich in glutathione precursors, melatonin, testosterone, vitamin b12, vitamine E, the Chinese herbal formula, wen-pi-tang, and Lipoic acid. I have posted all of the original studies here: http://www.greenmedinfo.com/taxonomy/term/3079"
12/03/2009: Boomerangboy from Los Angeles, California, usa replies: "A drug policy respectful of democratic values would aim to educate people to make informed choices based on their own needs and ideals. Such a simple prescription is necessary and sadly overdue"
12/20/2012: Lloyd from Charlotte, Nc replies: "Dr John Ravits who is a research scientist has written a number of fascinating articles, one of which is Sporadic ALS, A Hypothesis of Persistent Enterovirus Infection which was published in 2005.
The cause of AlS is contradictory and in another article in the same time frame Ravits argues that the virus may be hard to detect especially when looking at frozen spinal fluids and other methods for detection which might not yield the evidence for the existence of the virus that causes ALS, if indeed a virus is the cause.
The undisputed fact says Ravits is that the disease is progressive. I think that fact alone tells us ALS is likely viral. If I read his analysis correctly, he says the "movement" is like polio except the supposed ALS enterovirus is "acute slow motion. " I hope I am not misrepresenting the Ravits papers. Ravits is not affirming the cause but hypothesing why the ALS virus has not been clearly identified like the polio virus.
But let us suppose it is viral. What can be done and in the posts on the Earth Clinic web site some anti viral methods are used. I'll propose consideration of another method for killing the supposed virus.
To be clear, Dr Ravits does not discuss cure at all. He only discussed causation. So what follows is only my own suggestion for possible experimentation:
I believe, and have much anacdotal evidence to support my belief, that colloidal silver will kill virus and bacterial infection... Fungal infection also. But if I were to take the solution of water, containing atoms of silver, and add DMSO, a carrier, solvent and penetrant and saturate the combination of the colloidal silver with 5% DMSO into a white cloth or white paper towel and apply the very wet cloth/paper towel to the spine and let the cloth soak slowly into the skin... Then in theory the silver will be taken into the spine. If there is a virus there the CS will kill it.
I would suggest that the CS be orally consumed as well... A tablespoon daily. That amount for a few months. And if I found a diminishing of my symptoms I would continue the protocol for at least a year. The "poultice" application should be continued for at least two months, every day for two weeks and then every other day for six weeks. If nerves have not been destroyed then one might see an improvement within a month. To help the cells repair, Calcium AEP should be considered also. Dr Robert Adkins in his book, Vita Nutrients gave Ca AEP by IV to his MS patients as the most important part of the MS protocol achieving wonderful results at his Long Island clinic.
I would apply the CS/DMSO solution to the entire spine... base of skull to tail bone."
02/02/2013: Jacques from St-georges, P.Quebec / Canada: "TO MR TED, I am treating a case ALS presently and I found at many sites on the web the coconut oil ( or MCT OIL) are very helpfull with many positives results. You write on your pages to do not us ANY OIL ??
What do you think about theses very good results and are you encouraged to use it ?? Your opinion will be very appreciated.
Also from all informations you put on yours pages in regard with the colitis ulcerous , please be informed I treated 4 cases with 100% success without any recidive. Thank a lot to you.
Waiting yours comments,
Jacques from Canada"
Medication Combination Warning
[WARNING!] 10/22/2009: Heather from Sudbury, Ontario, Canada: "Many people who are on a combination of diabetic medications and cholesterol medication find that they develop symptoms that mimic Lou Gehrig's Disease. I know of at least 5 women in my town who have been mis-diagnosed by their doctors. One had gotten to the point of all her muscles collapsing and her lungs and heart were stopping working. Luckily, a new young surgeon at the hospital's emerg. department realized what was happening and took her off the cholesterol medication. She went from almost comatose to up in a wheelchair in 3 days, and walking by day 5. Apparently diabetic medications or cholesterol medications by themselves are fine, it's the combination that's terrible."Replies
12/02/2009: Meghan from Brooklyn, Ny replies: "My father was recently diagnosed with ALS. I still have that hope that it might not be true. He takes both diabetic medicines and cholesterol meds. Can you by any chance find out what her medications were that she was taking? And how they figured out that the combo of meds were doing it to her body?"
06/19/2012: Magkeep2 from Escondido, Ca, Usa: "My husband is the 3rd person in hismfamilymwith ALS. All FALS tests are negative. I am fighting my hardest to keep him from progressing and trying to get him a little better. His speech is 99% gone, he cannot swallow food and has a feeding tube. Trying to get some weight in him. A year ago he was 160 and since last fat fall (after a flu shot) he is now down to about 114. He is on a liquid feeding tube/pump diet."Replies
06/19/2012: Citygirl27 from Richardson, Tx, Usa replies: "No more vaccines or flu shots. Make sure there is no MSG or aspartate in his feeding tube."
06/19/2012: Linda from New Haven, Ct, United States replies: "I have no personal experience with this but I had just recently read Ted's post regarding ALS. If you haven't yet seen it this is the link.
Good luck & God bless, Linda"
06/23/2012: Curt from Vancouver, Bc replies: "You'll find good information if you google search ALS NaturalNews. Also don't let anyone try to convince you Vaccines are good."
12/24/2011: Susana from Budapest, Hungary: "I asked for advice some month ago from Ted about my father's ALS illness, but until now I haven't got answer. We have already started a therapy but I don't know whether it is possible to take these three amino acids ( glutamine, threonine, lizin) continually for months or not. If not, why?
Please give me some information about how long it is proposed to take these. Maybe is it necessary to have breaks? Is anybody taking omega complex? (as far as I know, it does him good).
Thanks in advance."Replies
01/13/2012: Ted from Bangkok, Thailand replies: "You take these as long as possible, it keeps the ALS from coming up, and keep ALS from further damaging the system.
06/04/2011: Gilda from Charlotte, North Carolina, Usa: "Dear Ted, My husband was recently diagnos with the horrible ALS one of our friend send your website. Can you please let me know what I have to do for the first 48 hours? he still walking short of breath and loss a lot of muscle tone he also develop foot drop please help us. Thanks, Gilda"Replies
06/04/2011: Rob from Manhattan, New York replies: "Gilda, I am sorry to hear about your husbands diagnosis. I recently listened to this interview with Dr. Gabor Mate on the mind body connection and disease. He had some interesting things to say about Lou Gehrig and his disease. I don't know if it can be of any help but perhaps worth a listen...
06/04/2011: Gilda from Charlotte, North Carolina, Usa replies: "Thank you Rob we moved from Long island NY 3 years ago. I agree with you about stress thank you for the info."
06/05/2011: Marty Murray from Rye, New York replies: "Gilda, As partly discussed in the Gabor Mate video, als develops when factors such as stress and patterns such as internalization of emotional issues come together in a certain way to create degeneration of the nervous system.
The good news is that by changing what is going on with these factors and patterns, one can solve als and heal.
I have worked with a number of people and seen them solve als by using this method. The puzzle is a little different in each case. Still, in every case, by solving the puzzle one can solve als.
Some people who have publicly discussed what they have done to solve als include Evy McDonald, Craig Oster, Steven Shackel, David Atkinson, Nelda Buss and Joe Wions. I suggest looking up all of them. In doing so you will find what I am talking about, discussion of factors and patterns that underlie the creation of als and discussion of how, by changing what is going on with those factors and patterns, they solved als. Of these people, Craig and Steven have been the most prolific.
Rest assured, you can solve als. Takes some work. Still, totally doable."
Ted's Remedies for ALS
01/30/2011: Ted from Bangkok, Thailand: "ALS - response to someone who wished their ALS case details to remain private.
The two major supplements that is required to stop further deterioration caused by advancing viruses, and this seems epidemic, is the lysine and threonine. It is taken at 1/2 teaspoon each hourly for four hours for about a month. Thereafter to prevent them, or at least suppress them is to take them, at about four times a day, most for convenience purposes. I haven't perfected a remedy needed to kill them completely, but this is to keep them at bay. It is most important that this is done, otherwise a major respiratory failure is a good possibility. There are other symptoms not stressed in present literature, such as in some cases difficulty swallowing, lack of energy to breathe, or inability to breathe fully, especially exhaling and ability to speak loudly. These major symptoms are not to be ignored, because they are signs of advancing respiratory failure. It is already epidemic here in Thailand, but as governments go, they will only pay attention if everyone knows about it, including the media. I can't afford to wait like this and just last week alone, I have seen one cases of death from respiratory failure from ALS. The condition is not rare, but they are undiagnosed or misdiagnosed. Even if they are diagnosed correctly, they haven't find the remedy needed to stop them.
The other supplements helpful I believe is tryptophan, such as 50 mg a day, vitamin C 1000 mg three times a day. I am also currently looking into tyrosine as ALS seems to destroy the tyrosine by nitrating them causing a severe deficiency leading to in some cases of ALS, premature white hair, as tyrosine are precursors to hair pigmentation and melanin. Hence, the body needs to utilized tyrosine and this is why vitamin C and tyrosine are taken together. The dose appears to be 500 to 1000 mg of tyrosine and vitamin C at least 1000 mg three times a day at least, preferably I prefer five times a day. I don't have that many clients needed to perfect the remedy, but this should generally buy you plenty of time. Remember that nitrating tyrosine, excitotoxins can further accelerate the ALS condition, much like Parkinson's disease. Obviously the use of Splenda, aspartame, diet coke, sugar, fructose, sweet fruits are out, and autoimmunity causing wheat products can worsen the problem. Inhibitory amino acid, such as taurine, or other ones as in glycine and GABA maybe protective. I used taurine, such as 1/2 teaspoon three or four times a day. The inhibitory amino acids are neuroprotective against further damage.
The single most telling symptoms is not really the weakness of the arms and the legs. For some reason it effects the speech (as in speaking loudly) then followed by a gradual weakening of arms, or legs, which ever they attack the motor neurons.
I don't know what these research foundations are doing spending millions and finding no single remedies in sight, but what I do know is the condition mentioned here is the most telling symptoms of the ALS, which is somewhat different from the current literature. I guess they didn't look at field cases, which tells a very different story.
It is currently widespread and for some reason, those who has ALS, has a high probability that their relatives will be also effected, rarely in the same time. It has not exactly to do with the genes per se, but there are certain weaknesses of the nervous system that allows for certain family members to be most vulnverable, especially with surgery in the spinal areas. Most virus of this nature resists common antiseptic procedures that uses alcohol and aldehyde (glutalderhyde). Most virus, however are vulnerable to peroxides, such as hydrogen peroxide, iodine, and acetic acid, but is not generally used in the hospitals as most antiseptic procedures are aimed at killing bacteria, rather then a viruses. Hence, antiseptic procedures has been geared against bacteria ever since Louis Pasteur times, to today, but no major antiseptic procedures are geared against pathogenic viruses and fungus (as in mycobacterium and mycoplasma). Hence, the possibility of infection from surgery from certain viruses can result in those conditions. From the point of view of bioweapons using virulent strains, militarily, the motivation not to find a cure also remains a slight possibility.
I haven't as yet identify how the infection has occurred, but one single factor I can be sure of is that it came from surgery and the viruses are infected via that route to those with a history of operations in the area of the gut and the spinal area. It is the same area that adenoviruses that are infected in majority of the ALS patient, first identified by a neurosurgeon in Montreal Canada about 30 years ago.
10/14/2010: Ted from Bangkok, Thailand: "This motor neuron disease first made its presence sometime in the early 2009 here in Bangkok and can appear as or diagnosed as ALS or a more general term Motor Neuron Disease is now currently a worldwide epidemic. I have delayed such posting until I am sure. One hospital in Bangkok got 400 patients in just one day, and in another about 50% of the hospital bed filled with this condition. The doctors here don't know what it is, but it is a Motor Neuron disease, in another it is called a ALS or Amylotrophic Lateral Sclerosis.
From my point of view, it is just a virus, or possibly an adenovirus. It works similarly like a polio, only that it doesn't show as inflammation but works quietly by loosing control of arm and leg movement. When you allow it to spread, it will prevent you from speaking with a loud voices. This virus can be infected in a couple of ways. One common one I have seen is from surgery. Antiseptic procedures don't kill viruses. The method of treatment I used is clove oil, methylene blue, lysine, glutamine, threonine, and tryptophan as a major remedy. If none of these supplements are available then just the aspirin may do. The dose is 500 mg hourly for 4 hours for three days, at the very least to kill roughly 90% or more of the virus. The aspirin however, requires that 500 mg is dissolved in a cup of warm water, or a half cup, if too much water. This way the aspirin won't cause stomach upset.
As for the more complete remedy, the clove oil is applied lightly to the back neck area as frequently as possible, but at least applied it 3 or 4 times to the area of back neck and arms and feet. This allows transdermal absroption and clove is antiviral. Clove oil maybe taken internally at 5 to 10 drops in a cup of water four times a day at least. As for the amino acid, the amount is roughly 1/2 teaspoon of lysine powder, 1/2 teaspoon of glutamine powder, 1/4 teaspoon of threnonine and 1/8 teaspoon of tryptophan. It's taken at the following newer schedule as follows:
It's not the time to take it that makes the difference, it is the spacing of the supplements to take that matters. Hourly dose is taken hourly for first three doses. Then it is spaced equally apart at 4 hours interval until 10 p.m. Then we repeat this again for the next 2 days. The virus may usually be dead by at least 95% on the third day. A maintenance dose is possible, but is taken only twice a day, such as 9 a.m. and 9 p.m. So this is 12 hours apart.
As for the symptoms of a motor neuron disease or even ALS, the relative infection rates is low from person to person, but accelerates greatly during the "flu season" and during the "vaccination season". So the adenovirus may exist in vaccination as contamination, or the virus that causes this is symbiotic with the H1N1, or other flu strains. The symptoms are straight forward, once it is advanced enough, you loose control of either leg or arms, or both. The condition is restored relatively quick in early stages, such as 5 days of the above supplementation, but most of the virus will go away on the third day, on fourth and fifth are precautionary. Taking it thereafter, is usually maintenance dose of two dose 12 hours apart. The other symptoms is mouth and speech becomes slurred or not clear, mouth muscles cannot stay straight is another possible symptoms. I had one case that could not walk at all after this sort of epidemic came within just 2 weeks, some takes awhile longer up to 2 years, due to very good immune system. So younger people can have a condition longer, while older people it can agressively take over. The one precaution is surgery tends to cause motor neuron disease because sanitation procedures doesn't kill virus. Alcohol gels only kill bacteria, but not viruses. Viruses are weakened or killed in hydrogen peroxide, clove oil, vinegar, and peracetic acid. Aspirin liquifies these viruses, especially their lipid envelopes, it is this aspirin, I believed, that stopped the Spanish flu viruses. It's also what cured my measles when I got it at a young age, but the proper use is in powder form. It works best when taken together with vitamin C, which some drug stores sometimes don't carry, but aspirin nearly every drug stores does. As for the amino acid is the ones I used to get rid of motor neuron disease and ALS, as they are viral in nature, including Parkinson's disease and Alzheimer. If viral, and condition is not serious the chance of recovery is good. I have received reports of motor neuron disease, already in Australia, UK, and other countries, including Thailand. As for the numbers and percentages, it appears to be an epidemic.
01/16/2010: Ted from Bangkok, Thailand: "For the last couple of weeks, I was not able to have time to answer earthclinic questions as I am currently dealing with ALS (Amylotrophic Lateral Sclerosis - or Lou Gehrig's disease), which is typically a virus (usually enterovirus, or adenovirus) that is found in most of the people who died from ALS, which is 15 out of 17 patients. They also have higher percentages of mycoplasma, but not along the spinal column, which typically lowers the immune system.
The viruses of the spinal column works like a polio viruses (I am referring to the ALS case) which effects the motor neurons, which is how they are infected. When I first got the case of a woman at a local Thai hospital, she was already in coma, non responsive to any stimuli. Therefore to get her out of the coma, clove oil was first applied near the lower neck, which is where the cerebellum is located. It's ideal to apply thinly clove oil, at least diluted, to the spinal column as it is antiviral.
As mentioned before BHT was taken at once a day. However, ALS is scary in that the patient has no energy to speak or even breathe, - that's the hard part. It works its way up the spinal column (the virus) and eats away the cerebellum, thus killing the patient by respiratory failure or heart failure.
The one I got had both, interestingly her relatives, who also live in the same house, two of them in fact also had the ALS, which is viral and has a relatively low infection rate, but is very high if the house is very old, musty, near a sewage, high in mycoplasma and fungus which lowers the immune system allowing either the enterovirus or adenovirus to enter the system.
As for the woman I have met, it started entering her system (the virus) through either the nose, or the mouth, and somehow showed up as a cyst on the shoulder or growth, before going into the spinal column, going down to lower back, causing a weakening of the legs the moving up the spinal column, affecting the breathing, heart and the speech (she has no control of the upper lips) and you can't hear her talk, there's not enough energy.
The supplements I used to kill the viruses in addition to those mentioned as she also had a fever, was an hourly dose of 600 mg of lysine for 24 hours, plus in addition L-threonine, which are both antiviral in nature. Methylene blue drops of 0.1% concentration 2 drops was given every four hours to get her out of the coma too. I overshot myself and the woman did wake up but was unable to sleep for the next 48 hours and hence the dose was lowered to just 2 drops twice a day, before increasing further to 2 drops three times a day when the condition did not improve.
The most interesting discoveries out of all this, which could potentially help other people with motor neuron disease such as those found in Stephen Hawkins, cerebral palsy, multiple sclerosis, polio was the powdered humic acid, which I obtained from a certain Chinese supplier that I used as a cure for aspartame poisoning that caused urinary urgency in both men and woman from consumption of Sweet n' Low, Coke zero, pepsi max, and MSG consumption which tends to make ALS deadly.
What's so interesting is that the N Acetyl Cysteine sold in Thailand typically do not label that they added the aspartame in many of the effervescent medicines, but I found out because these products cause extreme urinary acid pH typically at a pH 5.5 or below, which is metabolic acidosis caused by aspartame broken down into methanol poisoning. Typically these virus breaks down the nerves by producing some sort of aspartate or glutamate which kills the neuron cells and for some reason or another the humic acid, which is 1/8 teaspoon of humic acid in 500 cc of water actually improved the conditions dramatically overnight.
Edgar Cayce once mentioned that the long term causes of MS, but this includes viruses along spinal column and ALS, also that certain nutrients, to be lacking due to digestive problems, incomplete, as in autism and ADD and ADHD, poisons the system and the humic acid helps digesting more complete thus neutralizing the aspartame and other excitotoxins via that pathway.
In any case, the client was most helped with humic acid, lysine, clove oil, l-threonine, which quickly improves day by day. The breathing also improves, but currently still need a respiratory whose frequency of breathing was initially 6 breaths per minute, increasing to second day to 8, then 10, 12, then it jumped to 16 with the humic acid. Hence humic acid can be safely used to detoxify but also help digestion more complete and is used relatively safe. I can't say for other sources of humic acid since I never tried, I only tried this particular one because it worked so well against urinary urgency (pee every 15 minutes) for both unknown reason or even from aspartame caused urinary urgency, but it helped tremendously improved ALS, and I am currently testing on Parkinson's disease. Interestingly all these motor neuron disease typically respond well to antiviral remedies such as lysine and l threonine, and both of these are involved in immune system.
One possible supplements to do against viral spinal column of course is the L arginine, but I believe the L citrulline may work better, but I can't obtain that one and currently looking for a complete cure against viral infected spinal column. Hence most amino acid mentioned here are considered natural supplements and I believe it can be safely used during pregnancy. As for magnesium, if it is normal dosage, and proper form this may also be taken safely also.
P.S. I am trying to get the woman out of the ICU right now. Her breathing now is 21 breath per minute. Tomorrow the hospital is going to remove the respirator machine to see if she can breathe on her own. Her two relatives already died of ALS, and I am hoping so far so good, that her ALS will be cured or at least extend her life considerably."
04/10/2013: Sarah from Carlyle, Illinois : "My father-n-law has recently been diagnosed with ALS. We are having a really hard time to figure out what to do to help him. His progression is coming way to fast he is really having a tough time sleeping, problems with saliva, constipation and he is also very depressed. He has doctor appointment this Friday at the ALS clinic in St Louis. Ted, I need your help."Replies
04/11/2013: Timh from Louisville, Ky, USA replies: "Sarah: I'm not Ted and cannot offer any specific recommendations, BUT I just watched an ihealthtube video of Professor Garth Nicholson of the Institute of Molecular Medicine speaking of his successes treating degenerative and chronic diseases with Lipid Replacement Therapy (LRT). He mentioned only recently using LRT in degenerative neurological diseases with success."
04/05/2013: Angela from Modesto, Ca: "Hello all! This question is for Ted
It's been a while since I posted, I have been busy with the care of my dad who is healing from als. He is being called the 'new' miracle man. Ted has been of major and effective assistance in this arena and my family and I continue to be grateful for his contributions. I wanted to ask Ted if he knew of any side effects of branch chained amino acids for someone like my dad who is not on any medications - except for acid reflux and constipation which are both PRN. He breathes room air (never been on oxygen) and continues to seek natural ways to help his muscles repair and rebuld themselves. What is your opinion on BCAA's positive and not-so positive?"
12/22/2012: Carolyn from Simpsonville, South Carolina: "Dear Ted I was diagnosed with als in January 2012, right now all I have is severe weakning of the legs and arms is there anything I can do to help the weakness. And the vitamin D3 for muscle atrophy is it 20, 000 IU a day for a month or 20, 000IU in one month look forward to hearing from you"
10/10/2012: Janice H from Eastaboga, Alabama, Usa: "Ted, I followed your guidelines on the mixture of enzymes for my brother-in-law who was recently diagnosed with ALS after a process of elimination for other causes of MND. He said his kidneys seem to be overactive and after 5 days of treatment he was exhausted from sleep deprivation due to trips to the bathroom all night and day. He was drinking fluids yet still feels dehydrated. Is this normal when starting enzyme-treatment? Other concerns: He was water skiing (on one/two ski) this time last year, and rode his bicycle 500 miles in Jan (2012) when he had lower back pain & knee pain; his doctor recommended a regimine of 3 epidurals beginning in Feb (2012). Immediately after the first epidural he had severe muscle cramps and pain; his doctor recommended potassium and continued with the other 2 epidurals. Soon after he began to stumble and fall; loose strength and use of his hands. He continues to have pain in limbs, and recently fell injuring his shoulder; so he doesn't have paralysis; he just can't control his limbs. He has no problems eating or talking. His doctor refused to connect the epidurals with his sudden loss of control of his limbs. Recently there has been a recall of medication used in epidurals for back pain due to contamination resulting in "fungal miningitis epidemic" in the USA. NO DOCTOR WILL ADDRESS THIS ISSUE WITH MY BROTHER-IN-LAW; he has always felt this sudden onset of MND is related to the epidurals. What would you suggest his next approach in this matter? Thanks so much, I read all you material! Janice H"
08/26/2012: Mahesh Thapa from Kathmandu, Nepal: "Hello Ted, I am Mahesh Thapa from Kathmandu, Nepal. I was diagnosed MND 10 years ago when I was 25. Actually I have 11 years of history. I used Vitamin B complex, Vitamin E & Calcium for few years but there was lots of wounds like bigger pimples came to face because of its side effect & I stopped it. I used other available alternative treatments for 2 years & since then I haven't used any treatment and medicine except using free homeopathic medicine from a government hospital. I haven't checked up for 7 years.
I can stand for few minutes & few steps on my own but need support to walk, can't speak properly (unclear & nasal voice), fasciculation & cramping on muscles in most part of body, muscle loss in hand & shoulder resulting minimal movement in both hands, I use on screen keyboard to type. I need support to use toilet & bathroom but I strongly believe that I can overcome this disease. doctors had given me around three years of prognosis & asked that I will have to use feeding tube within 6 months but it didn't happen.
Now I don't have any problem in respiration, lungs & heart. I can eat normally & use all types of food as normal person & don't have digestive problem. I can sleep well. I can sit & work on computer for hours. I have good memory. I am good player of chess at national level, have got FIDE chess rating 3 months ago.
Please suggest me your remedy in detail. is it MND or I am misdiagnosed? Is there any pathological test needed before using your remedy?
Thanks, Mahesh mthapa9(at)outlook.com"
08/05/2012: Stephen from Sydney, Australia: "Hi Ted, I read your coments and sugestions with interest re. this disease, which my wife suffers from, and we are keen to start trying the suggested treatment, a couple of questions re. some of the products, Firstly, humic acid seems hard to find except for agricultural use, will keep trying to source it. Also I have only found threanine in an amino acid complex, is it ok to use this until I can locate some? Thanks Ted, Stephen."
[WARNING!] 06/09/2012: Chris from Pueblo, Co: "I have been helping a friend with ALS/Lou Gehrig's through the treatment recommended starting with the Lysine and Threonine as foundation. The Threonine dramatically increased mucous production in my friend and her breathing, which was strong before, had suddenly become labored. I did some more research on the Threonine and discovered on the WebMD site's description of Threonine side effects stating:
"Amyotrophic lateral sclerosis (Lou Gehrig's disease): There is some concern that threonine might decrease lung function in patients with ALS. In one study, ALS patients taking 4 grams of threonine per day had significantly reduced lung function compared to patients who did not receive threonine..."
And this is exactly what we saw. With all the symptoms of ALS she showed, the reduced lung function has not yet been one of them. But the introduction of Threonine directly coincided with a dramatic affect on her breathing. She said it felt like an elephant sitting on her chest.
On the positive, she previously had a clenched feeling in her throat that was pinching and really wearing her down. Since taking the Threonine, this has noticably relaxed and made it much easier to bear. But the thick mucous increase and belabored breathing is a bit scary, especially since many ALS sufferers die from this aspect. We are stopping the Threonine in hopes that her breathing will return to normal. If it doesn't I may counteract it with arginine, but I know this supports the possible viral function that we are attacking with Lysine. So I want to be careful and take it one day at a time.
I just felt it important to share this experince in case it is of help to anyone else out there."Replies
06/11/2012: Chris from Pueblo, Co replies: "An update on my friend who stopped Threonine due to a dramatic reduction in breathing capacity. Within 48 hours of stopping the Threonine, her breathing capacity has improved. She said this morning that she is feeling about 90% recovered to the state she was at before starting the Lysine/Threonine. The annoying mucous production has also subsided and she is feeling comfortable.
She has a relative that is a massage therapist and has been using clove oil, as suggested, in working it into the back of her neck and spine. It is helping her be a lot more comfortable, whether its the massage, the oil or both, we don't know, but she has been free of the cramping, spasms and pain she previously struggled with."
03/09/2010: Anonymous from USA: "My father was diagnosed with the worst type of ALS 09/2009. The specialist at Forbes-Norris Clinic in SF, CA gave him less than 3 months to live, he is still living.
He believes he is going to be a part of the ONE PERCENT that heals from this dis-ease and live to blog about it and empower others to heal themselves. We are all a family of great faith, it is how he and my mother raised us. My parents have created many miracles in their lifetime and are strong believers in self-healing. My sister, brother and I have moved home to help with his care. This came on him in May of 2008 and diagnoses as a stroke. By Sept of 2009 it was full blown. Everyone tells us we are a great family and that you can see that my father is well taken care of. We are ready for his next stage in healing. Perhaps you can be of some assistance. All the little hairs on my neck and arms stood up after reading your post.
I read your post dated 1/16/2010 regarding a patient with ALS in a coma and treating yourself as well.
My father went into the hospital 1/27/10 with respiratory distress, never used or needed oxygen and was put on ventilator at night (which he does not use because his breathing is really strong and steady.) A peg tube and trachea were inserted. He has lost most of his muscle in his arms, and torso. Lower body is still strong, but he is not walking nor standing. He can sit up, hold his head up for 15 minutes at a time. Has strong lungs, and strong cough. He is hydrated and receives Alkaline Water (KANGEN) on a daily basis now that he is home. My father has no diabetes, no heart disease, no high blood pressure/cholesterol nor breaking down of skin, outside of ALS he is very healthy. He is alert, full of life and unwavering spirit. He is 58 years young, 6'2 and weighs 145lbs. He spent 6 weeks in the hospital, 1.5 was in ICU, the rest in ACU. Initially he went in for Respiratory Distress. My dad is holding out for a natural remedy because he KNOWS he can heal from this. His motivation for healing is simple: LOVE My parents grew up together, and were high school sweethearts, and have been married for 37 years. Still in love as the day they met.
I want to know what you suggest we give him, in what amounts to assist him in his healing. These are some of the items in your post I found.
He is currently taking
Morphine SUL for pain as needed
Osmolite1.5 Cal 12oz/3x per day
Nystop anti-fungal powder for skin and privates as needed
Levaquin 500mg (antibiotic) 2hrs before eating
Zegerid 20mg-168mg powder packets for (to keep acid in his stomach from going up into his lungs)
Naphcon-A Eye drops as needed
Xopenex 1.25mg/3ml in a nebulizer as needed (currently at least 2x per day)
HE HATES the vent and refuses to use it. His breathing is even and stable and has a nurse (LVN) 16 hrs/day because of trach care & suctioning.
Anything you can share my family and I will be eternally grateful to receive. Blessings to you in ALL that you think say and do Ted"Replies
03/09/2010: Ted from Bangkok, Thailand replies: "The most important remedy to stop advancing ALS usually due to adenovirus, is the lysine and the threonine. ALS will have a low grade fever, and once the virus is killed, beyond detection (no low grade fever), the lysine and the threonine is taken as a maintenance dose. A couple of remedies worth mentioning, that you raised:
Clove Oil - this helps get the person out of the coma when it's applied for about 30 minutes along the lower back neck area, feet, and hands. The clove has antiviral properties and is absorbed transdermally during the clove oil rubbing in those area. However, when in coma methylene blue was taken by tube to get the person out of coma, but also is taken regularly to strengthen nerve transmission. Without this the person would no doubt go back into coma again, just too many dead motor neurons, so the remaining few has to be well taken care of (the mitochondria) as the methylene blue 0.1% support their cellular respiration.
Humic Acid. This stabilizes the heart, breathing, etc. by removing excitotoxins ouf the the system, which are aspartate and glutamate, which kills off the nerves. Another two I used in conjunction is the trimethylglycine and glycine.
Lysine as mentioned is antiviral and kills of the remaining adenovirus (and perhaps enterovirus) along the spinal column, all the way to the brain stem, which controls breathing, heart beat, digestion and muscle control during bowel movement. A vital operation if it is too badly destroyed, the person looses his ability to breathe, besides just no control of the leg. If ALS is identified early the disease progression can be stopped with just lysine and the threonine. Lysine dose initially is given 24 hours for a couple of days, thereafter maintenance dose, perhaps 1000 x 4 hourly is preferred. This is the minimum dose, not an optimum dose.
L-Threonine. Threonine is proven in research studies to help prevent progression ALS and has been shown to improve condition of the patient. Threonine works by raising the body's immune system against the adenovirus, and most other virus and goes across the blood brain barrier. Through observations, lysine also does so, but has to be taken with frequent dose for it to work. Research has looked at the use of BCAA amino acid, but with a disastrous result in a Spain study, and more people with ALS died. I did expect it not to work because the BCAA is not related to immune system in fighting off the virus. Apparently the researchers were looking from a nutritional standpoint instead of using the amino acid as a way to fight off the virus. Dose is same as lysine both amount and frequency.
The most difficult part of ALS, at least for me is not the progression of ALS. That can be stopped in matter of days. For me it is very difficult to reverse them, and regenerate the destroyed motor neurons. However, a good reversal is possible at least for me such as 50% to 100% reversal, in the case of Alzheimer and Parkinson's disease. Apparently motor neuron are harder to regenerate for case of ALS then virus that does not attack motor neurons. The rebuilding of non motor neuron is done through the supplementation 4 day a week hydergine and piracetam, but this work only limited extent in case of ALS.
06/03/2012: Mary from Coosbay, Oregon replies: "I have A question for you Ted regarding a supplement called DMG also known as N, N-Dimethylglycine. My sister was diagnosed with aggressive ALS. Her symptoms started about 11 months ago and she is already to the point that she can not stand, walk, talk (other then a couple words), or move any thing other then her right arm and hand. She is still breathing and eating on her own, however her eating is getting worse and she can not take pill form medication. She is taking prozac, she has a patch to help with excess siliva, she is also taking A liquid form of multi vitamins and minerals with 26 fruits and vegetables, and fish oil as well. She was taking probiotics and co-q10 as well, however she has stopped those 2 for now being that she can not swallow them and was giving her diarrhia. She weighs about 195 lbs. and is 49 years old.
I am very curious to know your opinion on using DMG (an amino acid and A building block for protein) with the supplements you suggest or can this possibly harm some1 with ALS? There is also TMG. Which of the 2 would you suggest trying? (if any). Thanks so much for your time and help."
06/05/2012: Ted from Bangkok, Thailand replies: "Actually I give them both for ALS, to lower the homocysteine to an optimum level of 6-7, especially if homocysteine is high as above 10. Homocysteine is a neurotoxin so anything that optimized their level to 6 actually lengthens the life of the person. I don't actually have patients dying on me of ALS, as a result. because it doesn't cause neurodegeneration. When you get ALS, you can't afford to get any neurotoxins in your body, it just makes it worse!
Because killing the virus in the central nervous system is hard to reach, I also target them by the magnetic pulser, foot detox (the electrodes attached to the arm or other places is what makes it work, not the rust from the ion thing--that's for the show), and I will try ALS frequencies using the Rife device, the BCX ultra (borrowed of course, as they are too expensive). It may in fact kill most of the viruses that caused it.
06/05/2012: Mary from Coosbay, Or. Usa replies: "Thanks for your reply and help. Yes I have read about the electrodes as well through Cayce Atkins, and also massages starting from nerve endings in the feet and all the way up legs, around back spine and up the neck. I have 1 more question I forgot to ask. That is if the supplements you suggest can be taken with prozac or not? Thanks once again."
06/06/2012: Mary from Coosbay, Or. Usa replies: "Correction: I meant to say Edgar Cayce. David Atkinson was a man who used Edgars remedies. He also has some good advise for Als. From all the research I have done thus far, Ted your remedies sound the best. I am by far not to knowledgeable about natural remedies, but I can say I am learning alot now and all thanks to people like you who offer help and hope, Thank you. Mary"