What is Eosinophilic Esophagitis?
Eosinophilic esophagitis is an inflammation of the esophagus due to a build-up of white blood cells - specifically, eosinophils - in the esophageal tissue. Since eosinophilic esophagitis is often caused by exposure to stomach acid (along with allergies, infection, and as a side effect of certain medications), this digestive health condition can be related to acid reflux or GERD.
The cause of the inflammation related to eosinophilic esophagitis seems closely related to allergic reactions, but at this point the condition is poorly understood. Symptoms of eosinophilic esophagitis include extreme pain and difficulty in swallowing, but may also include nausea, stomach pain, and a feeling of having food stuck in your throat.
Alternative medicine offers a few options for treating eosinophilic esophagitis, starting with an elimination diet to discover and eliminate food allergens that may be triggering the allergic reaction in your esophagus and/or acid reflux symptoms. Supplementation with amino acids1 or more specifically adherence to a so-called "elemental diet"2 has likewise been shown to offer dramatic improvements for those with eosinophilic esophagitis.
[YEA] 05/01/2010: Ed from Heber City, Ut: "When the esophagus is irritated nothing feels good and at night the problem worsens. I tried eating bananas every hour at night it is the only thing that worked. after few days I feel better. I tried all the remedies for four weeks and nothing worked as good as the bananas."Replies
[BETTER BUT NOT CURED] 10/28/2010: Gitmogrunt from Houston, Tx replies: "I suffered with Acid Reflux, hiatal hernia, gastritis, etc. for years, which in the past year turned into esophagatis. Many years of prilosec, nexium, prevacid, etc. Apple cider vinegar did nothing for me. I read your post on banana's and tried them, after dinner, and I have not felt so good in years. I have tried numerous natural remedies, including plantains, and cabbage juicing. The bananas are a great help, although I'm not saying they are the "cure" , they have definitely helped a lot. To the point where I can have a sip of coffee, in between green tea, kefir and yogurt. Daily doses of plain yogurt, not the sugared up stuff, have helped alot also. I could go on, but will cease for now."
Dietary Changes, Coconut Oil
[YEA] 12/20/2010: Jazzdanca59 from Highett, Melbourne, Australia: "I have severe Oesophagitis. Am under care of a Specialist. He told me to give up tomatoes and bread. I didn't believe about the bread, but I have tested it, and he was right! . I occasionally indulge in a slice of healthy grain bread, but have found it's not worth it. What I have found remarkable for it is Coconut oil. It has lots of healthful qualities, (don't believe the propaganda about bad fats). It's a good fat, especially for hypothyroidism. Also, I have recently begun symptoms of Fibromyalgia, which I believe from lots of research ( Dr Low) is caused by extremely high oestrogen/very low progesterone. Oestrogen dominance causes hypothyroidism. I can keep the pain under control with a mix of coconut oil and Turmeric/Boswellia tablets, (which I have to buy from America). This combination will keep me far from any cancer threat as well."
Dietary Changes, Supplements
[NAY] 08/19/2013: Renna from Sacramento, Ca: "My husband now 29 got diagnosed with eosinophilic esophagitis 5 years ago. We tried everything, he was seeing a research doctor that put him on all kinds of meds that just made him feel so sick. He had to quit his job drop off college for a while. This keeps going on and off he is never feeling good and when he is it never lasts. We decided to go a more hollistic approach and tried the eimination diet. He is allergic to most fresh fruits and vegetables which makes it difficult for him to be healthy. His health has suffered greatly and the worst part is that his immune system is compromised and he gets sick all the time. He had an epsidoe last month when he tried to eat bannans and has been so sick since nothing he eats goes well he has gone down from 160lbs to 133 and keeps losing more weight. I am scared and feeling helpless. Currently he is taken supplements and we are trying clay in his drinks. His diet is mostly organic brown rice potatoes almond milk and occasionally other things such as eggs apple sauce yogurt peanut butter and sprouted bread. We tried gluten free but it made him sick for some reason. I am worried mostly now about immediate remedies. It is important for him to put on some weight and recover a little before we try anything else.. Any suggestions? I would really appreciate it"Replies
08/19/2013: Mt from Ottawa, On, Canada replies: "Start looking over this site: www.mariatrebenherbs.com. Stinging nettle helps with allergies. Calamus root helps with the digestive system. Swedish bitter is also helping with the digestion. Calendula, Sage are anti-inflammatory. Manuka honey and garlic are natural antibiotics."
08/20/2013: Timh from Ky, Usa replies: "@Renna: First try and get some kill on the infection by sipping Colloidal Silver water. A few hrs away from C.S. use Zinc Lozenges, and before retiring place a 10,000 iu Vit-A softgel in mouth and burst between teeth; Swallow gently so as to let the vit-a coat the lining of the esophagus.
For esophagus health in general, explore the possibility of gallstones and Primary Bilary Cirrhosis. Herbs to use immediately to improve digestion are Fennel and Ginger."
08/20/2013: Ed2010 from Canada replies: "Hello Renna, I second Timh from Ky, Usa recommendations. That is the best approach. Colloidal silver to kill pathogens, zinc to increase immunity, vitamin A to heal. In addition, you can take 1 tsp of Licorice Root Powder mixed with 1 tsp unpasteurized honey. Licorice root powder increases the juices secretion of mucus membranes from the mouth through the rectum. Good Health."
[YEA] 11/09/2009: Khloe from Fresno, Ca: "EOSINOPHILIC ESOPHAGITIS
Try reading about leaky gut. I was diagnosed with EE several years ago after I had a gallbladder surgery, and they overdosed me on antibiotics. Several weeks later, I ended up developing leaky gut syndrome, which I believe is the altrenative medicine's name for the same condition. I could not eat anything without having an allergic reaction, and was down to just lettuce and brown rice and cooked vegetables. The only raw items I was able to eat was lettuce. I also ended up not only being allergic to mostly all food, but became severely chemically sensitive as well. It took me over a year and a half being on probiotics and supplements, mainly Zinc,digestive enzymes, NAC, and l-glutamine to help rebuild my intestines. I also did plenty of colonics and sauna treatments to help detoxify my body. Finding a good naturopath is extremely important. Especially someone who can test you for deficiencies.
When you take antibiotics, it destroys all bacteria, whether good or bad. The good bacteria never have a chance to colonize in the gut unless you replenish by taking probiotics. The bad bacteria end up creating tiny holes in your intestines. When you consume certain foods, the undigested proteins cross the blood barrier through these holes, and cause an allergic reaction.
I currently am on several vitamins and supplements daily, but I am now able to have a wider range of choices to eat from. I recommend also getting an ALCAT test to figure out what foods you may be intolerant to. These foods can be trigger foods, and set you up with a whole host of immune reactions from other seemingly safe foods.
Currently I try to avoid all gluten containing products as well as corn, soy and especially sugar. Try limiting your fruit to only two pieces, and make sure that they are not too sweet. Green apples work well. Get plenty of vitamin D (sunshine, fresh air, and spiritual time, and try to relieve stress through exercise. Stress makes it much worse.
12/14/2011: Fm from Crystal Lake, Il replies: "I have had a persistent cough for years. Years before that I was diagnosed with leaky gut and then I reduced my Candida problem with Greys formula. I have a degree in human biology and for the cough tried many vitamins and minerals. None helped except a spleen polypeptide product that no longer is made. I did find that Thymuril by integrative therapeutics works too. Spleen or thymus polypeptides are the key. The cough can be very powerful and unrelenting if I do not take the Thymuril. For those who understand embryology the bronchials are getting the referred irritation from my esophagus. Like the gallbladder refers pain to the shoulder. The heart refers pain to the left arm etc. Later I had an endoscopy done to deal with a esophageal ring that had formed. The doctor also diagnosed EE. The only thing that keeps the cough well under control is the Thymuril. Other spleen and thymus extracts do nothing. I do not think it cures but controls so the real problem is with allergies and whatever is still causing that. Perhaps leaky gut is still around. I believe that elimination is fine for quick relief but for some people the list of foods grows and it would be better to find out what is causing the problem so the list can be cut down. I fear that cutting out foods will cause other deficiencies in time."
[YEA] 11/06/2013: Lorraine from Mississippi: "I have been struggling with EE as well. Been following the elimation diet. Easier to swallow now. Have not had a repeated EGD. Gave upeggs, milk-dairy(cheese), nuts/tree nuts/coconuts, soy, fish, and gluten. I had a hard time at first, very hungry loaded up on rice and potatoes. For me the rice milk was the best alternative for someone who loved skim/2% milk. Tried to balance fat with veggies. Tried to supplement with a rice protein powder for amino support. You can mix it with water, applejuice or rice milk. I also added blueberries or strawberries. It's more expensive but very smooth."
[BETTER BUT NOT CURED] 12/09/2010: Kpack from Ruston, La: "I am a 33 yo Female diagnosed EE 2 years ago through biopsy. This led me to get skin prick allergy tested and I was shocked to learn that at 31 I had 14 food allergies I had not had in my teens when I was 1st tested. My allergies including wheat, onion, chicken, peanut & green beans comprised about 90% of what I had been eating. My doctor put me on budesinide and the compounding pharmacist made it a suspension liquid that is easier for me than puffing the inhaler and swallowing the medicine. I've been asthmatic so long I totally kept inhaling every time I tried to take it. It was a GOD send!! Dysphagia and nausea was eliminated almost immediately and I only had to take it a week or 2. Now I just take it as needed.
Elimination diet helped with alot of my symptoms- no more headaches (Daily, debilitating stress headaches $thousands of dollars in meds, MRI's and testing only to find no known cause and was on Lortab 10's 2x a day just so I could hold a job), less asthma, less fatigue, less anxiety and also it increased the range of motion in my neck by reducing the inflammation in my neck and shoulders. Before I felt so bad all of the time I didn't realize how inflexible I had gotten. My Dr.s just kept saying exercise more, that I was getting older and was out of shape. :(
I still have insomnia, anxiety, IBS symptoms, occasional dysphagia and I am always bloated with water retention- I mean BAD bloated whether I am taking the steroids or not. It hurts to sit for more than an hour because I'm so bloated with water. After 2 years on elimination diet- my food allergies have mysteriously disappeared as quickly as they came. I only have a slight allergy to peanuts, but still have EE symptoms because I have many inhaled allergies like pollen and dustmites- but I have always had those allergies. My Dr.s don't know what has reversed my allergies (Lord knows it wasn't anything they did).
Last year I started eating only organic foods, much more whole foods- no processed stuff (Mainly because processed foods are all made with wheat and things I am allergic to) I wash my fruits and veggies religously and I try to grow a couple of veggies on my patio when I can. That way I know what's on them. My husband is a hunter so we ate mostly meat he killed which is very organic and untreated with antibiotics. I also started eating yogurt pretty regularly because it was convenient for me to pack for lunch since sandwiches were out of the question. I believe that my diet accidentally becoming more probiotic and less antibiotic and that along with getting away from the allergens has helped my intestines heal. This started me reading about leaky gut syndrome. Intestinal wall is damaged- leaks large protein molecules of food you eat across into bloodstream- white blood cells attack that protein and instantly you have food allergies. Before you are identified EE/ or allergic your Dr. may treat the symptoms with antibiotics, anti-inflammatories and antacids all of which further destroy the flora in your GI tract that is thought to protect your guts from leaking and you have a perpetuatal cycle. Stress, processed food diet and antibiotically treated food are also thought to destroy flora in the tract.
So elimination diet made me better- next I decided to start an actual probiotic regimen. 2 weeks in and I am not bloated AT ALL!! Since I've been sick I gained 30-40 Lbs. I felt hungry all the time, I craved sugar, I was exhausted so I didn't excercise and my body was in anaphylactic shock daily for years before I was diagnosed. The day I started elimination diet I was so sleepy for 3 days all I did was sleep. I hadn't taken a nap in almost 5 years my constant adrenaline rush made me too anxious to rest well. It was hard for me to diet because I would eat chicken and whole wheat when I did which was what I was allergic to. I'm still a big girl but Jeans with no bloating and no muffin top is such a blessing for me!!! I'm eager to learn more about the possible probiotic/ EE link and am currently looking into digestive enzymes, but haven't had time to read much about it. Is the probiotic thing anything you have looked into?"
12/06/2010: Lavoras from Chicago, Il: "Hi my son is 4 and was diagnosed 6 months ago with EE. I am a nurse and I am on the pursuit to find the cure, as physicians dont seem to know too much about this disease. When he was born they told me he had GERD and Colic. After many doctors, they went in did a biopsy and voila we now know what it is. We then did the elimination diet, went back in scoped and no eosinophils, great, however 4 weeks after he was vomiting 10-14 x a day.
Currently I took him off prevacid and I am trying the alternative route (chinese medicine). He is back on all foods due to chinese teas including ginger and we have 1 more week, no vomiting for 2 days and then yesterday only 1x. I must exhaust this avenue before I start pumping him up with steroids, etc. We havent gone down the road of a gtube because he is gaining weight. Let me know if I can help in anyway."Replies
12/10/2010: Nydad from Deer Park, New York replies: "Hi Lavoras.. My son has been diagnosed with EE as well less than a year ago and we are using prevacid and going through alternative route for a while now. We did not see much improvment but still searching for the right option. Can you share your experience with Chinese medicine as we are trying to go that route ourselves. Thank you."
06/10/2011: Lavoras from Chicago, Il replies: "Hi Nydad so sorry for not getting back to you sooner. I fired the chinese doctor he made him worse and all I kept hearing was that he was cured. In fact he became worse vomiting 10-15 times a day. So back on the elimination diet, and did not follow it rigidly. Well today we had the endoscopy and results were not good. So I am going back to the very restictive 6 food elimation diet and he will be reviewed in 6 weeks."
12/14/2011: Dean from Chicago, Il, Us replies: "Lavoras,
We are also in Chicago and our daughter was just diagnosed with EE. We would love to speak with you about your experience. Feel free to email us at info(at)carsinpedia.com
10/17/2010: Angel from Concord, Nh: "My son is almost 3. He was diagnosed with EE over a year ago. Since that time, so much allergy testing has followed. He has many positives including anaphylactic and environmental. A few weeks ago, after being on a limited diet omitting all of the things he tested positive to, he had another scope, only to find that his esophagus is still in tough shape. They are trying one last diet, removing all the common allergens, whether testing positive to it or not. After 6 weeks, another scope will follow. If he doesn't look better, the recommendation and next step from Children's Hospital Boston EE clinic, is to insert a feeding tube and doing an elimination diet, after 2 weeks of oral foods. Has anyone gone this route? Is this scarier for me than it really is? I am looking for input either from parents who have gone this route or parents with children who have the same issues but took other measures. Thanks for all of the information posted so far. Angel"Replies
12/06/2010: Deb from City In, Iowa replies: "Hi,
Sounds like one of my grandchildren. Come to find out that he was a celiac as was his mother and her dad. All went on a gluten free diet. No one has anymore digestive problems."
12/11/2010: Merryanne from Orange City, Florida, Usa replies: "I am glad that you are doing so much better. I have found that I am more healthy also by cooking all my on food, bread and not eating any thing made/processed in the store. I do not eat sugar, white flour, white potatoes, no dairy, no animal products. My diet consists of vegetables frozen or fresh cooked, some raw, brown rice, whole flour(nonbromated, non-enriched), chickpea flour, rice flour, flax seed, sea salt, coconut oil, a little olive oil, lots of fruit(not real sweet) Since I am eating healthy I do not take 40 units of insulin every day, maybe 5 units 4 times a week. I do take some vitamins and minerals every day, and I have taken some probiotics for my digestive system. I drink kefir sometimes, and I make my own now. I have made kombucha tea, and have drank some of it also. I feel like a new person now. God is good and full of mercy."
01/29/2011: Nydad from Deer Park, New York replies: "Hi Lavoras,
Can you please let me know how your son is doing with Chinese medicine so far? This is the route we want to take for my son who is 5 years old and was diagnosed 1 year ago."
[BETTER BUT NOT CURED] 04/25/2011: Marie from Houston, Tx replies: "Hi Nydad:
My son who is 12, was diagnosed with Eoseonophilic gastroenteritis via endoscopy in 2010, which eventually also manifested into esophagitis as well. It began after he was placed on a heavy round of antibiotics last February for an upper respiratory. My guess from what I have learned through research is this: the antibiotics caused an overgrowth of candida, which perforated the intestine walls, and caused small holes through which food and environmental allergens were passing through.
I believe many children diagnosed with EE or EG, probably all have some sort of fungal issue from past antibiotic use or processed foods-you can check this through a spit ph test or simply look at the tongue for a white coating. By March, he had lost 15 pounds, was anemic, vomited everyday, was only able to eat approximately 5 or 6 different types of food, had a constant body pain, and slept for hours throughout the day, his body had become extremely toxic and seemed to be shutting down-this disease was taking over our lives. He missed all of the Spring school semester, so we eventually withdrew him and began home schooling while searching for a doctor with a cure. We spent countless hours and thousands of dollars on different specialists, doctors, naturopaths, and even an acupuncturist to try and understand how to function day to day. I never was told specifically what caused the sudden eosoniphil increase, but I wanted to give you some insight as to what I discovered worked (and what did not work) for us and how my son has improved over the course of a year. (We too were quickly reaching the point of feeding tube and I was desperate to help him get his life back).
Because his food and environmental allergies grew increasingly worse every single day, we guessed each day as to what foods he could and could not eat. The things the others are saying is true, your child probably has leaky gut syndrome-there are many causes besides just antibiotics-the most prevalent being processed/fast food and high sugary foods. I changed my sons diet to whole organic foods-primarily leafy greens which helped tremendously regulate his digestive system-and in moderate amounts allowed *some* dairy because he is a child and this was very difficult to balance to keep him from being stressed. I completely eliminated bread for several weeks and then when I reintroduced it, I used all gluten free products or made the bread at home, being cautious about the ingredients I used. I also added in 1 cup of Kefir a day-this completely eliminated the constipation issue associated with EG. I then began researching drastically on rebuilding the immune system. He started taking the following supplements: Colostrum (3 per day), Vit. D3, Flax seed oil (2 tbls. Mixed with a 1/2 cup of organic cottage cheese), Zinc, potassium, Selenium, Probiotics (over 10 billion per pill) and a whole food liquid. I gave him digestive enzymes during meals.
Over the course of the year, he very very slowly began improving-very slowly. We continued on this routine faithfully over the course of the year - then in about December began experiencing problems again. We visited with an allergist this time to specifically identify his food allergens-in December, skin testing revealed he was allergic to approximately 64 different food and environmental allergies, while a food allergy test from a Naturopath identified his primary food allergies were milk and eggs. We finally decided on a steroid anti inflammatory in January. He received a prednisone injection which significantly helped, and began taking Singular (but not without either causing side effects), as well as began sublingual immunotherapy aka SLIT. The injection in January helped significantly, however if you read up on the side effects of steroids, they are pretty horrific, however I did find a clinical study from the Mayo clinic showing there was an 86% cure rate from a steroid injection for people with EE and EG. We continued on with the Singular which appeared to be hiding symptoms, but not curing-at this point the disease prevented him from swallowing in the morning. The allergist informed me to give him a salty drink or to have him eat a salty food first thing in the morning and it will reduce the swelling-a nifty little trick that works well. The allergist also surprisingly prescribed Vit. D3, fish oil, probiotics, and pomegranate fruit juice along with his SLIT therapy (the same old vitamin supplementation we had already been doing over the past year)-he said if you keep going, you will see a 90% recovery by the end of the year.
I then found earth clinic by just looking for information on how to help him as it seemed we were not doing enough and was not happy that we were back to Rx's again. I discovered the apple cidar vinegar cure and began drinking it myself first. I then incorporated it into my son's diet for two weeks and all of a sudden his allergies and asthma were diminshing. I would not say he is 100% cured, but it is getting better and better each day. I believe it is working because it is killing off the underlying root of the problem-the candida. We continue to take the supplements mentioned above, especially the colostrum and kefir as they both rebuild the intestinal lining and drink the ACV everyday and he is continuing on his immunotherapy drops. For him, I use 1 tsp. of ACV in 12 oz. of spring water with a small amount of honey. We also oil pull with Extra Virgin Coconut Oil in the mornings and have seen improvement from that as well (he has had a skin rash appearing-a common detox reaction as the candida leaves the body-I just rub coconut oil on the skin where the rash shows up until it goes away). Since the oil pulling and ACV, he has no longer had to take any prescriptions-this is the first time all year, and is actually eating what is considered "normal" food again-the bad stuff, but is not having any adverse effects and has even ate a few nuts the past few days without any problems (I normally carry an epi pen for just in case situations). Because of the supplements, probitiotics, and whole food vitamins, he has not been sick in over a year-not even a low fever or sore throat. I believe his immune system is on its way to being rebuilt.
I believe we are finally on our way-it was a very very long road, there were many days of frustration, but I wanted to encourage you to not give up and keep searching-you are on the right track. I also purchased two books that helped me understand the whole body tremendously- one is written by a very popular nutrionist, Doug Kaufman, called the *Fungus Link* which deals with systemic candida and inflammation and the second one is by Gary Huffngale, Ph. D. Entitled *Probiotics Revolution*. Both will help tremendously. I believe what worked for us was a combination of many things-diet change to all organic, heavy vit. , mineral, and probiotic supplements, the immunotherapy along with traditional medicine under an allergy specialist.
I hope this helps and my heart reaches out to you, this is a terrible terrible disease, but I can assure you if we can bounce back from where we were last year-everyone can. Use every resource you have to throw at it, attack the symptoms with scripts until you can find the root cause, then start identifying the nutritional deficiencies, along with any pathogenic organisms that may be lingering around."
09/16/2011: Noelle from Waterford, Mi replies: "Hi Marie from Houston.
So nice to hear that all your hard work is starting to pay off for your son. I am just beginning this journey.What is the type of probiotics and amounts that you have been giving your son? I have read The Probiotic Revolution and noticed that different probiotics help different ailments.
Thanks so much. And please keep us posted on your future success."
09/21/2011: Nicole from Staten Island, Ny replies: "Marie from Houston, Tx - I readed what you wrote about your son. I feel the same way. One out of 2 of my drs feel that it could of been the antibiotics. I would love to talk more. Please email me Ngerardi11(at)gmail.com"
03/09/2012: Marks from Glen Allen, Va, Usa replies: "I have three children with eoe. They have been on Flovent for several yrs. Over the past 9 months they have been on the 6 food elimination diet at their Dr's suggestion. Two of the kids were clear on the last scope and are adding egg back into their diet. My youngest has been on the 6 food elim. Diet and taking flovent. If he is not clear on his next scope Dr. is suggesting ng tube. I need some advice quick. The ng tube for 6 weeks would help determine if his eoe is food driven, but I hesitate to go to that extreme. Our chiropractor had my son take a stool analysis test which showed the following:
Commensal/Bacterial Overgrowth Detected:
Klebsiella/Enterobacter/Serratia Group - moderate
Alpha Hemolytic Streptococcus - Moderate
Klebsiella pneumoniae - moderate
Chiropractor is suggesting 3-6 months to get my son's gut working properly instead of the ng tube. I am very confused and would like some advice.
03/09/2012: Debbie from Melbourne, Australia replies: "I would go with what the chiropractor is saying. Go to youtube and watch Dr. Natasha McBride's videos on the GAP diet. It is all about healing the gut. Also on youtube some good videos by Donna Gates on the Body Ecology diet which is similar. Many people have had great success with both of these protocols."
[YEA] 08/16/2012: Meg from Cedar Rapids, Iowa replies: "please email me I have tons of questions thanks meghan blndmelon(at)hotmail.com"
01/07/2013: Rosy from Anglesey, Uk replies: "I am about to begin the GAPS Protocol from Dr. Campbell-McBride. I suggest you look very seriously into this. The chances are you will find the answer to your problems."
06/02/2013: Juanita from Orlando, Fl replies: "Marie from Houston TX..... I know it's been over 2 years since you've posted about EE/EG issues and because you've been so thorough with your info.... I'm almost embarrassed to even have a question.... But here goes!
My 3 year old grand-son seems to be suffering with EE and again your information is priceless..... but I wanted to know what the immunotherapy drops were?
Also... this is a bit off topic but I wanted to know if you are at all familiar with a wholefood Co-Op in Houston know as (I think) Rawfully Organic.... I follow them and the young lady that runs it Kristina and it seems they are doing wondrous things with fresh organic fruits and veggies..... So please if you have not heard of them.... Check them out!"
Eosinophilic Esophagitis Remedies
05/13/2013: J_stone from Indy, Indiana : "My son is 6 1/2 years old and was diagnosed with Eosinophilic Esophagitis (EE) 3 years ago. We found that he was allergic to corn (which is in everything!). Turns out its all the processed corns such as hgh fructose corn syrup and maltodextrin. When we cut everything out of his diet that Had any type of corn or corn bi product he got better. We didnt think he had it anymore. For some reason it has came back. He was tested and his eosinophils are high again. They put him on Flovent and it is so expensive! Around $500 for a 3 month supply! I can't afford this medication and there is no generic for it. He has so many allergies, seasonal and non-seasonal that the best thing for us would be to go all natural. I welcome all suggestions and would love to hear what has worked for you or your children. Thank you."Replies
05/14/2013: Mmsg from Somewhere, Europe replies: "J_stone: I've read that once your gut heals, you can tolerate more stuff you were allergic to. This has happened to me. I've been pretty strict (not too strict tho) with eating mostly natural stuff, and I must say, I can now tolerate many more foods IN MODERATION. If I go overboard, I feel it.
So you can try a natural diet, but you should know it's not a life sentence: it's a healing stage."
05/14/2013: Joy from Battleground, Wash replies: "When I was allergic to corn, cans all had a corn liner to take the taste of the metal away, I'm not allergic anymore."
05/14/2013: Kt from the USA replies: "J_stone--please be aware that dairy cows could be fed corn in the winter to produce more milk. This would affect the cheese and butter too. Mmsg is right-on with moderation because of what is happening to our food supply. Genetically modified grasses and grains (GMO's) have tainted our food in one way or another.
If food is being engineered to last longer it seems to me the creatures in the food are surviving and when we use anti-bacterial soaps and hand sanitizers we could be killing off the defenses. I JUST DON'T KNOW... But there has to be a reason so many people keep getting sick. The hospitals are no longer safe. People are going in to get fixed and are coming down with worse ailments than they went in with if they don't die. This has been on the news more than once."
05/14/2013: Bess from Calgary, Alberta, Canada replies: "Hi J_stone from Indy: I agree with Mmsg from Europe.
In the book, Digestive Wellness (Lipski), they found that one-third of children with eosinophilic esophagitis also had asthma (in fact, EE is being called "asthma of the esophagus"). Allergic reactions to foods, mold, dust and pollen appear to play a big role. Even people on medication need to restrict/eliminate allergy-inducing foods or they won't improve, regardless of what drugs they take.
Here is what they recommend:
- Go on an elimination-provocation diet
- Quercetin: This will diminish, relieve and prevent allergy symptoms and protect esophageal tissue. Quercetin is very effective when combined with grape seed extract or pycnogenol.
- Probiotics: This will balance gut ecology and immune system function.
- Digestive enzymes
- DGL licorice: soothes inflammation and stimulates repair.
- Folic acid: Protects mucous membranes.
Can you work with a naturopathic doctor? That way the ND could tailor any supplements to your child's weight and severity of symptoms.
I would highly recommend borrowing Digestive Wellness from your library (or buy it, but if funds are tight, borrowing is a good option). It has instructions on the elimination diet and the various types and dosages of probiotics. Good luck! Bess"
05/15/2013: Sadie from Manchester replies: "J, sorry for the short reply but short on time, please refer to my post on my son's leaky gut. It has been hard but similar protocol may help your son. Just use the search box or look up under ailments."
EC: Here is the url to Sadie's thread: http://www.earthclinic.com/CURES/leaky-gut-syndrome.html#BP
02/28/2013: Ushasree from Chicago, Illinois: "I have been diagnosed with eosinophilic esophagitis 2 years ago but I have been suffering from it for the past 8 years or so. Can anyone help me get better?"
12/09/2010: Sherri In Bc from Surrey, Bc, Canada: "Our son is 14 1/2 years old and has been dealing with EE for over 4 years. The only thing that has completely stopped the reflux was the elimination diet. He could only eat 9 or 10 food items but at least he could go off his 40mg of Nexium. Unfortunately it wasn't enough nutrient to get him through puberty and baseball so we started the meds again and let him eat what he wants. Currently we have been working with a naturopath who said she could cure him. She actually said those words. I was not happy but it gave our son hope. After the Vega Testing she put him on a strict diet to bring down his candida numbers. After 4.5 weeks we retested. His number for candida went from 9 to 4 and it showed that we could reintroduce many of the foods that he had been denying himself. Unfortunately, if he missed his Nexium pill, even for a couple of hours in the morning, he had reflux. The goal was to get him off the pills and if the beginning stages of the diet didn't help what was the point of reintroducing foods?
She has also sent us to a 'chiropractor' that does visceral manipulation. She 'listen's' to my son's stomach (hands on stomach, eyes closed) and does cranial adjustments to put him 'back in sync'. She has recommended that we see a Constitutional Therapist. At this point we've spent several hundreds, if not a few thousand, searching for a cure for EE. I'm not interested in putting out more money because someone thinks my son has a 'sulphuric' constitution and therefore needs some Essence of Sulphur. So.... He has chosen to stop the diet, go back on the Nexium and live his life. Hopefully the Nexium will continue to work and he will continue to eat most of what he wants. (He cannot eat potatoes! )
We are discouraged and I was hoping that this discussion might be able to direct us to a legitimate 'natural' cure for EE. Sherri"
12/10/2010: Brooke from Montgomery, Tx, Usa replies: "Did he have an infection right before he started having these symptoms? If so, then the infection may have rested in his spleen or pancreas or his liver, causing an "over acid" condition throughout his body that manifests when he eats foods, or breathes in pollen, etc.. Is his stomach refusing to digest food?
He needs to clean out his stomach with distilled water, and Elm water.
Elm water is made by taking a pinch of powdered Elm and putting it into distilled water, with an ice cube in it -let it steep for 3 minutes and then drink it. This will help his acidity. Saffron tea also will coat the stomach - take yellow or American saffron - the non-expensive kind - and boil water - to 16oz of water put 3tsp of saffron - let that steep for 30-45 minutes and have him take this before every meal. Milk of Magnesia - one tsp after every meal would be great also. This is to cleanse and quiet the stomach. To cleanse his colon - there is nothing better than Fletcher's Castoria - look around and find the cheapest place. And for your son, I would suggest using your own intuition. From 1 tsp a day - to the whole bottle taking 1/2 tsp every half hour! This will come from within. I would start him on Castor Oil packs also, 4 days on and 3 days off, every week, until he feels better. After that just do them for maintenance.
When he sees his Chiropractor - ask him about concentrating on his C3, D1 - D9, D11 & D12, Sacral and Coccyx, also ask your chiropractor if there is anything pressing on his Facial cranial nerve. If so, then do what your Chiropractor says to do about that. In the evenings it would be great to massage his area with a mixture of oils - Olive oil (2 ounces), Lanolin (1/2 ounce), Pine Needle Oil (1/2 ounce) - all along his spine - especially D1-D9. Also massage his abdomen area with pure olive oil - very gently and rub in a clock wise motion to get his stomach and intestines moving and to stimulate his lacteal ducts. Let me know if you decide to try this, what your results are!"
05/21/2010: Krissi M from Washington, Pa: "My son's been diagnosed with this condition after about a year of throwing up and gagging. He does appear to have acid reflux because I observe him closely right before an "episode". We still have no idea what causes it in him, aside from the reflux. They've put him on Pulmicort which is a steriod he swallows. I sure do not like this and want something natural as well. Unfortunately, the common cures for acid reflux are things like cayenne pepper and ACV, and he's not quite old enough to take capsules. I'm afraid also that the course of treatment makes one worse before making them better. My son is three so I feel I cannot do this. Hoping someone else has found something."Replies
05/22/2010: T from Maryland, Usa replies: "Hi Krissi, Sorry to hear your little one is going through all that. Has he been tested for food sensitivities? Have you tried an elimination diet?
"How is EE Diagnosed?
The diagnosis of EE is generally made by performing a biopsy of the esophagus, with evidence of eosinophils infiltrating the esophageal tissue. A biopsy is performed via endoscopy (a camera inserted into the esophagus), usually by a gastroenterologist. There are many other diseases that can cause eosinophils in the tissue of the esophagus, including gastroesopheal reflux disease (GERD), parasitic infections, fungal infections, inflammatory bowel disease, certain cancers, recurrent vomiting, and others. These diseases need to be ruled out before EE can be diagnosed."
Did he have that biopsy done? Was he tested for the things noted above?"
08/17/2010: Anelec from Indianapolis, In replies: "Hi, I have a 1.5 year old son who has been struggling with food allergies, vomiting, etc. for the last year. We went to the allergy specialist today and he is pretty certain he has EE. I just wanted to make a note to Krissi above. Read the book Guts and Psychology Syndrome by Natasha Campbell-McBride. My son was developing more and more allergies to food. Basically anything he ate on a regular basis he would develop an allergy to it and start throwing it up every time I tried to give it to him. We were down to about literally 3-4 foods he could eat and I knew it was only a matter of time before he would start reacting to those foods also. Then I found this book and it has been such a blessing to us! We have been following the intro diet (find it on her website) and added the suggested supplements and have seen great progress. His allergies are still very prevalent but so far he has not thrown up in just over a month and I've been able to add some more foods back into his diet. I've read a lot of books and articles on allergies, candida, leaky gut, etc. over the last year and Dr. McBrides has been the most informational and helpful. I do recommend an allergy screening to help you to know what foods to avoid and that could be causing the inflammation. We also tried the NAET route with someone who I felt was a very gifted and qualified practitioner. We did the treatments for about 7 months. However NAET will not take care of the leaky gut and in my son's case he was developing new allergies as we treated the previous ones and then would be okay for a while with a food he was treated for and then start reacting to it all over again. The whole focus of the GAPS diet is healing of the digestive system. It has been the only thing that has helped us in the last year. Also to Kloe above, what were you able to do about your chemical sensitivities? I want to learn more about this as my son also has has MCS. Thanks for all the advice and info!"
[YEA] 08/13/2008: Angela from Tonasket, WA.: "An eating disorder only recognized since about 30 years ago is called EE for short. It is way under diagnosed, and often mistaken for acid reflux, and even celiac disease. A simple blood test can diagnose celiac disease, but when that comes back negative, you may need to do a scope of the esophagus to do a eosiniphil count. A lot of doctors don't even watch for an elegated count, or know what it means, but that's EE if it is. Basically it means your body is attacking itself bacause of an allergy causing inflamation. The result is coughing, throwing up some or all foods around the time of ingesting an allergen. When there are many allergens, it can cause malnutrition and even death if they can't figure out what to avoid. Not being a skin allergy, the doctor way of diagnosing is faulty at best. The only way I've found to help and we believe now cure it, is a muscle test to know what the allergy is, and then using a proceedure called NAET to permanently cure the allergy. It could be done at home yourself, but as it's not as likely to succeed without a trained professional. Some are better than others too. We found a chiropractor who has been curing people of allergies and allergy related diseases for 15 years. It's not exactly a home cure, but it's so helped us! With people everywhere still saying that EE is incurable, I just want to get it out there that this has been a life saver. Please pass it on."Replies
12/12/2008: Chad from Atlanta, GA replies: "I have recently been diagnosed with EE and would like to find a more holistic treatment than what my Gastroenterologist is prescribing since he seems incapable of answering my questions satisfactorily. He has told me to stop eating fish, eggs, milk, soy, nuts, and wheat. Since i'm mostly vegan i asked him what i should eat and he replied, "i don't know just do what you can" He has prescribed Flovent HFA 220mcg which is an steroid asthma inhaler 2 puffs on my tongue 2x a day. Hoping that the steroid will be then swallowed down to my esophagus. Because one of the side effects of this action is yeast infections i'm supposed to mouthwash with baking soda several times a day. After every 5 or 6 months he wants me to come in for endoscopes. This just isn't really acceptable in my opinion so i'm here looking for some better options. I have done some muscle testing for my allergies but not 100% sure on my results. Seems that I should reduce my soy intake. Would love to hear more detail on how you and others (if there are others) have dealt with this. My Dr said that they have only very recently diagnosed this problem in adults. Thanks!"
10/28/2012: Angela from Rustburg, Virginia replies: "I wanted to follow up on my original comment up top. While I do believe that NAET still helped, I think now as someone else mentioned, that it was just a temporary patch job. My daughters allergies would have been never ending if we hadn't of found a chiropractor who deals with the whole body through the Brimhall method. They are now in every major city and getting very popular. Anyhow, through our chiropracter we were exposed to the thought of building up my daughter's immunity through food too. We read about that book on gut that was mentioned above, and it made perfect sense.
Lately we realized not only the reason why she got the EE in the first place, (a round of antibiotics in her first year... That made her sick a lot that next year... ) but we found the missing puzzle that further agravated it; grains. Actually, after going grain-free for awhile I realized that the grains weren't the problem, as they had been a healthy part of every culture's diet... It is the methods they are prepared with. In particular, the quick toxic yeast we have has only resently been used as a culture. It use to be wild sourdough starter that we soaked flour with. Come to find out that removed phytic acid and gluten, while adding probiotics and vitamins! All cultured foods would heal the gut, not hurt it... So eat up that batch of sourdough starter pancakes, that sourdough pizza, cake or the like, just make sure it has an 8 hr. soak with wild sourdough starter. (You can get it free online!)"
09/08/2011: Elvira from Barrie, Canada: "I MUST recommend to everyone to visit an OSTEOPATH instead of the chiropractor. Osteopath works with the entire body: bones, muscles as well as internal organs. I am not saying that chiropractors are bad, but this is much, much better. It did miracles for me and practicaly everybody that I recommended it too."
09/11/2012: Paul from Muskegon, Michigan: "Hi im a 20 year old male who has this disease and honestly I am very scared they are doing so many tests but without friends and family I couldn't have done it and thats what will help out the most is there support. I haven't tried the banana's thing yet but it seems every time I eat I feel sick and tired and weak I hope they find a more permanent cure for this disease. I already choked on several things with the hard swallowing factor in this disease and I almost died from it my life is too short to sit around but in order for me to live it I came here to find different rememdies to cure this dang disease and I hope some of your ideas will work because I am tired of getting sick all the time."Replies
10/07/2012: Teresa from Frederick, Md replies: "Hi Paul, I have suffered from EE and EG for many years, but did not know what is was until the past year. My 23 year old daughter was diagnosed this past year as well with EE.
I'm not sure what treatment you have done, but if you are interested in a non-prescription holistic approach that has helped us, then you may consider this natural whole food and supplement treatment.
We went on a moderate protein, high fat (good fats like coconut oil, real butter, extra virgin olive oil), and low carbohydrate diet using organic meats, oils and vegetables as much as possible. We also took theraputic levels of vitamins and minerals such as Vitamin A, B complex, extra B1 & B3, C, D, E, Calcium Citrate, Magnesium citrate, as well as cod liver oil and fish oil supplements.
Many of these supplements are anti-inflammatory and reduced the inflammation in the esophagus which helped with swallowing. We tried to take as many of these in liquid or powder form as possible. Those we couldn't, we tried to find the smallest capsules possible and/or crushed them and added them to food.
Since we have made these changes, neither of us have had any more choking spells and/or vomiting. I haven't had the stomach pain and severe diahrrea either. It has been about seven months since I have had a choking spell and vomiting. My energy has increased, seasonal allergy attacks have decreased, and my immune system has improved greatly. Other health problems with high blood pressure, low blood sugar, headaches, etc improved significantly as well. Hope this is helpful.
Well wishes, Teresa"
04/15/2013: Dudeoflife from Chicago, Il, Usa replies: "If you haven't giving up alcohol completely, I urge you to try. I was diagnosed with a mild case of Eosinophilic Esophagitis. Every couple months, I would have an episode where I was unable to swallow foods and would have to try to regurgitate or have someone give me the heimlich.
Then one day I was making a left hand turn and car trying to run red light tboned me going to 60 mph. I had postconcussion symptoms which left me unable to tolerate any alcohol. After my car accident, I haven't had a single episode of choking on food. Everything else about my diet remained the same so I attribute this solely to the elimination alcohol from my diet. Best of luck."