"Limited scleroderma/CREST syndrome: The limited form is much milder: it has a slow onset and progression, skin hardening is usually confined to the hands and face, internal organ involvement is less severe, and a much better prognosis is expected.
In typical cases of limited scleroderma, Raynaud's phenomenon may precede scleroderma by several years. Raynaud's phenomenon is due to vasoconstriction of the small arteries of exposed peripheries - particularly the hands and feet - in the cold. It is classically characterised by a triphasic colour change - first white, then blue and finally red on rewarming. The scleroderma may be limited to the fingers - known as sclerodactyly.
The limited form is often referred to as CREST syndrome. "CREST" is an acronym for the five main features:
* Calcinosis * Raynaud's syndrome * Esophageal dysmotility * Sclerodactyly * Telangiectasia
CREST is a limited form associated with antibodies against centromeres and usually spares the lungs and kidneys." (Wikipedia)
Acupuncture and Yoga
[BETTER BUT NOT CURED] 01/15/2011: Cured from Washington, Dc: "I am 38 and have started running low on adrenal horsepower at times; related (I believe related) troubles are Raynauld's in the winter and dry eyes. I work out very vigorously 6 times a week, recently ran a marathon, and work a great deal every day. I got tremendous relief to all my symptoms from a combination of weekly acupunture (esp. focused on qi and kidneys), daily different types of yoga (restorative and vigorous like Bikram), weekly espsom salt baths, and daily meditation and the emotional release and clarity about one's purpose it gives. My circulation is great, Raynauld's almost gone, and energy terrific. I feel 15 years younger, literally. And I am calm and have an entirely new level of self-awareness. Magnesium is very important, as well.
However, hard and/or long workouts 3-4 days in a row sneak up on me and the symptoms return. Also aggravating, I have discovered, is high consumption of tofu, dairy, and daily protein shakes, taking advil, working late on the computer, and Doing what you don't enjoy.
I was reluctant to try yoga for years and never thought about doing acupunture. Now I swear by them. Give them a go and be amazed - and get off that computer by 9pm!"
Disodium EDTA, Baths in White Vinegar
05/27/2011: Kathyr from Blue Point, New York: "Hello Ted! It was so interesting to read about your theory about the cause of crest, Dr.S have not been very helpful, I have had it for about 14 yrs now, calcinosis is becoming uncomfortable on both elbows, can you give me amounts of epsom salt or white vinegar to be used in baths, also dosages of magnesium chloride, licorice, apple cider vinegar. I am thrilled to know there are treatments out there, that may actually help me. Can crest possibly be cured by using these treatments?"
[YEA] 10/09/2006: Shelly from Abilene, TX: "My question is regarding CREST syndrome which is also an autoimmune disease. Would you treat it the same as Lupus? Thanks! P.S. This website is a GOD send! Thanks for all the time you put into it."Replies
Ted from Bangkok, Thailand replies: "Dear Shelly: Yes, the possibility exists that CREST can be treated similarly by using the LUPUS treatment but there are differences in the approach due to the fact that the organism residing in CREST are somewhat different from those of LUPUS. However the reason for its similarity in some ways have much to do with raising your immune system in both cases. CREST is a bit more complicated than lupus.
Once difference in CREST and lupus is of academic one, both CREST and LUPUS is due to a tiny pathogenic bug inside your body. While CREST is very much like a nanobacteria, lupus is much more closer to those of the mycoplasma, where it exists similarly closer to fungus and bacteria in its environment.
The reason why I know CREST is due to nanobacteria is the calcium deposits it creates in some specific conditions of CREST, called calcinosis. This is a big clue since nanobacteria tends create calcium as a protective shells leaving the deposits and destroying or hardening of tissues as a way to multiply.
You might ask how to kill the nanobacteria? A nanobacteria exists in greater numbers in presence of heavy metals, especially free radical heavy metals. An easy way to find out is to do a heavy metals testing using Dithizone system. Metals in high amounts have a tendency to cause the destruction of collagen through a maillard reaction in presence of something such as iron, for example as a catalyst to sugar and proteins. The best way out, if this is so is chelation, or oral disodium EDTA mixed in all your drinking water. So my own personal estimate, when the time I was tested for positive heavy metal copper in my urine, was about between 1/4-1/2 teaspoon of disodium EDTA to one liter of water. Taking plenty of chinese parsley will also help chelate out heavy metals. Eating granulated lecithin 2 tablespoon with every meal long with food will also reduce the buildup. Taking baths in white vinegar will also remove the calcium buildup, killing the nanobacteria. In this instance, nanobacteria that is, I think taking apple cider vinegar would help, with added baking soda perhaps to reduce the problems of CREST as acetates, chelation, and alkalzing do have a tendency to dissolve microscopic calcium shells that nanobacteria build up. Most importantly is to take magnesium chloride (or citrate) and zinc acetate (or chloride, or citrate form) to reduce the calcium buildup as magnesium is antagonistic to calcium and zinc to increase immune systems against the stealth nanobacteria. Alkalizing certainly helps such as taking 1/4 teaspoon baking soda 1/4 teaspoon citric acid with 1/2 glass water taken once before sleep and once in morning also. Licorice extract also helps in killing of the nanobacteria also.
This is what I would do different from lupus, but you can still use that, along with this added information to help with CREST."
09/16/2011: Shelly from Denver, Co replies: "Ted, I really enjoyed and appriciate your comments on CREST. I am wondering tho, you say that it is a nanobacteria. Do you have any comments on those out there that say there is no such thing? There are many such as this web site: http://www.drcranton.com/nanobacteria.htm"
Dry Brush Massage, Coconut Oil
03/13/2011: Jamie from Ethelsville, Al: "I was wondering how much coconut oil you use in cavities and what brand do you recommend. I have raynauds really bad and I am cold when it is under 80 degrees. I have very stagnated blood, it is hard for them to draw blood it is really thick and dark. Also I have huge digestion issues. how do you also heat up oil when cold."
01/05/2009: Aricepatty from Dayton, Ohio, USA: "I have been suffering from Raynauds now for a couple of years. I have been unsuccessful in finding gloves or shoes that keep my fingers/toes warm enough so that I do not loose circulation and they turn blue/black and white. Of course, the only thing that my specialist recommends is to keep warm! Well that's hard in Ohio! So I avoid, if possible, going out in cold weather, swimming and air conditioning. Are there any remedies that I can try that will help relieve or eliminate this problem or the symptoms? So far, I have tested negative for RA and Lupus, so it appears that my Raynauds is just by itself, thankfully."Replies
[YEA] 01/05/2009: Dianna from Austin, Tx replies: "have you tried dry brush massage? you take a natural bristle brush and massage your skin before a bath. brush your whole body - ESPECIALLY your hands and feet. this really helped me when diabetes was giving me numb and cold hands and feet - do it til your hands are red and you can see the blood moving under the surface and they feel warm. after i had done this just a few times the numbness went away. eating virgin coconut oil made the cold hands and feet go away too - when i stop taking the VCO my cold hands and feet come back. the combination is perfect for me. try it - it can't hurt.
01/05/2009: Joyce from Joelton, Tn replies: "Hi Aricepatty, Can't guarantee that it will help your Raynauds, but first things first, if you are a smoker - QUIT as of last year!
But smoker or not, two vitamins that help the circulation are niacin (one of B complex) and vitamin E. If you have never taken niacin before, be aware that it will cause flushing & tingling and be aware that you should not drinkhot coffee, tea, or hot chocolate within 30 minutes to an hour after taking niacin. This is not an allergic reaction, it is an expected result of taking niacin. My thinking is if you're too low on any of the B vitamins, you should be taking a good Bl00 complex because you are probably low on the others also."
09/02/2010: Mary from Hertfordshire , United Kingdom replies: "I have Raynauds desease and I will try dry massage and see if it helps thank- you"
01/12/2009: Anna from Ny, Ny: "I was diagnosed with Raynaud's 3 yrs ago and am currently going through an episode. All the doctors can tell me is to stay warm and take advil or some other anti inflammatory drug. Can someone please offer a natural way to deal with this?"Replies
01/12/2009: Susan from Higganum, CT USA replies: "Hi Anna, Unfortunately the Dr's are right at this time. I have very severe Raynauds (my fingers and hands can turn to a dark blue/purple). Keeping your hands warm is the best advice. Apple Cider Viniger has helped me the most. My hands will still change color but circulation returns faster. There are some supplements like ginger that also help with circulation.
Raynauds is considered an Auto Immune disease, so keep up with your yearly physicals and blood work."
01/17/2010: Ivory Coast from Loco, Ca replies: "By the way para amino benzoic acid (paba) is a vitamin in the b complex wich is used to treat tunnel carpel syndrome. the nerves and blood vessels have to pass through very a very small hole in the wrist. when swelling occurs it consticts these blood vessels and puts pressure on the nerve. the paba removes the swelling.
raynaud's syndrome is usually associated with scleroderma and is believed to becaused by excess production of angiotenison by the kidneys.
the fact that the b vitamins are helping you would suggest this is not raynaud's phenomenon"
01/17/2010: Ivory Coast from Loco, Ca replies: "If you ever have them again, turn on the electric stove burner and hold your wrist over it, being careful not to get to close to the fire of course. the heat will open the blood vessels up again and the hand will heat up and the pain will go away."
[YEA] 02/19/2009: Karen from Asheville, North Carolina: "I have suffered with Raynaud's for the last 10 yrs and have tried many different supplements without any success until this last week. I am so excited to share this with anyone who has to endure Raynaud's since it seems to get worst in most cases as it has in my case.
I love the Earth Clinic website and after reading about magnesium oil used for something else on the EC site I decided to look into magnesium oil and read it helped people with Raynaud's. I have been using it for the last four days faithfully with the temperature ranging from 20 to 45 degree's here and I have only had one tip of one finger turn white or loose blood!! This is amazing since just last week when my husband dropped me at the door of the supermarket so I would only be exposed to the cold 30 seconds and I would loose the blood (go white) in all 4 fingers on both hands and all toes on both feet.
This is a great improvement in just a few days using the magnesium oil so I am very excited and wanted to share. I knew I had symptoms of low magnesium and have tried other magnesium supplements (oral) before without any improvement, however the oil that I am now using is absorbed through the skin so it is obviously utilized better by the body. Hopfully it will be a lasting improvement...I'll post again if there are any changes!
Thanks for all the great info on EC site!! My favorite :)"
02/21/2009: Janice from Coloma, Mi/USA replies: "In using magnesium oil for Raynaud's, did you rub it on your fingers and toes? How much and how often."
04/17/2009: Selena from Chula, GA replies: "I would like to know what form of Magnesium supplement you were taking before using the oil form? I have recently started taking an ionic magnesium citrate form for excessive sweating (with excellent results.) I also suffer from Raynaud's with my first experience about 3 years ago and progressively getting worse. The weather is warming up here in South GA so I may not be able to notice an improvement until winter arrives again. In the winter I usually have multiple episodes throughout the day lasting anywhere from 5 mins. to 30 mins at a time. Mine affects both feet and my fingers. I have not had an episode since starting the ionic magnesium 2 weeks ago. It may be too soon to tell. I will post back on my progress in a few weeks."
[YEA] 01/20/2011: Jessaka from Tahlequah, Ok replies: "I tried taking magnesium capsules internally and have been using them for over two years without success. The oil worked. I don't think it matters what brand it was. I got mine off amazon I think. I put it on my wrists twice a day, and in two weeks I have noticed the difference. It works, but if you don't use it one day it comes back but not as bad. it also helps more if you have just taken a warm shower, so I imagine that is because it opens your pores."
Niacin, Vitamin E
[YEA] 10/24/2012: Deb E from Cedar Rapids, Iowa: "Suffering several yrs... Best help I have found.. Niacin, Vit E. They warm your cold extremities but Vit E keeps you from forming blood clots in those small veins"
[YEA] 07/21/2011: Jessie from Linden, Tennessee Usa: "I have had crest for 50yr. And have suffered with raynods. I didn't have the help that is out there. I had an old fashion Dr. who put me on time relese nicine
100mg up to 5 times a day-viti E 1000-mulity B complex. I took this every day (365) as my symptons decrested after 5 yrs (could be diffrent for others)I only took it in the winter. Now I can go without it. I only start if I get bad in the winter till it stops. But if you need a fast warm up, Just vacume for a long time I had the cleanest carpet in town."
[YEA] 01/15/2010: Bibi from Nashville, Tn: "Anna: I'm not sure this will work for you, or anyone else, but it does for me. I have Raynaud's and my fingers turn white, blue, and purple. I was having this problem daily. Supposedly it is related to Systemic Lupus, but I'm wondering if it isn't related to thyroid issues and the problems of converting T4 to T3.
As soon as I started taking 200mcg selenium and 50 mg zinc with a vitamin E source (usually sunflower seeds) and a stress B complex, I immediately stopped having this problem. I have read on various sites on the internet that Selenium and Zinc deficiencies cause problems with the conversion of T4 to T3. Good luck."
07/25/2011: Bria from Miami, Fl: "Dear Ted: Earlier this year I was diagnosed with a rare disease called CREST Syndrome /Scleroderma. Since this disease is rare I really don't know much about it and what to do to improve my condition. I don't really have much of the symptoms other than my hands and feet are always cold (Raynaud's phenomenon), digestive problems (Gastroesophageal reflux disease), and skin problems.
Is there anything that I can do to stop this condition from worsening before it get bad and effect me in some other way?
BTW, thank you for the wonderful information you provide on EarthClinic."Replies
09/09/2011: Bikergma03 from Sweetwater, Tn replies: "I too have been diagnosed with this rare disease "CREST". I have been looking for cures for some time now. Reynauds seems to be the worst part of it. I am going to try Oil Pulling and the magnesium I read up the list a few posts before this one! Thanks"
12/15/2011: Bruce from Tuscaloosa, Alabama replies: "Raynaud's. try L-Arginine, 1000mg 3xday. This is used if you have high blood pressure to increase blood thru your veins. Should help in all veins."
08/09/2009: Hassan from Arifwala, Pakistan: "my mother whos age 50 has been diagnosed with this disease Scelrderma & reynaud phenomena she has lost her two fingers because of this doctors here are giving her steriods she could nt walk couldn sit even & grwoing weakness day by day are there any natural remedie here skin cracks on the joint of knees & ankels & wound heal slowly or inmpercetly plz if any one read this & have some suggetsion wrirte down to me I'll be thankful"
EC: More information on Scleroderma here: http://en.wikipedia.org/wiki/Scleroderma
[BETTER BUT NOT CURED] 01/10/2011: Jessaka from Tahlequah, Ok, U.s.a. replies: "Thanks so much for the magnesium oil idea. I have suffered with Raynaud's for 20 years. One year I was free from it when taking Ginko. It quit working. I have been using the oil for 3 weeks now, and it took 2 weeks to notice a difference. I put it on twice a day, in the morning and before I got to bed. I rub it on the inside of my arm, from my wrist to my elbow. I am not completely symptom free, but I can go outside in the cold now without my hands turning white. It used to be that I couldn't get to the car without having to go back and put my fingers in hot water. Today in the snow I went to the grocery store and back, and it has been like that. I don't wear gloves because they never work. So you can imagine. I couldn't even sit in my computer room due to how cold it is, and I am now. Thank you so much. I also take magnesium tablets at night, but have been doing so for a year or more, but they did nothing for this condition."