Corticobasal Degeneration
"Corticobasal degeneration (CBD) or Corticobasal Ganglionic Degeneration (CBGD) is a rare progressive neurodegenerative disease involving the cerebral cortex and the basal ganglia. It is characterized by marked disorders in movement and cognitive dysfunction."
Source: http://en.wikipedia.org/wiki/Corticobasal_degeneration
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REMEDIES NEEDED
06/30/2011: Sandgirl from Lawsonville, Nc, Usa: "I have an uncle who has been diagnosed with Corticobasal Degeneration.
"It is a progressive neurological disorder characterized by nerve cell loss and atrophy (shrinkage) of multiple areas of the brain including the cerebral cortex and the basal ganglia. Corticobasal degeneration progresses gradually. Initial symptoms, which typically begin at or around age 60, may first appear on one side of the body (unilateral), but eventually affect both sides as the disease progresses. Symptoms are similar to those found in Parkinson disease, such as poor coordination, akinesia (an absence of movements), rigidity (a resistance to imposed movement), disequilibrium (impaired balance); and limb dystonia (abnormal muscle postures). Other symptoms such as cognitive and visual-spatial impairments, apraxia (loss of the ability to make familiar, purposeful movements), hesitant and halting speech, myoclonus (muscular jerks), and dysphagia (difficulty swallowing) may also occur. An individual with corticobasal degeneration eventually becomes unable to walk."
http://www.ninds.nih.gov/disorders/corticobasal_degeneration/corticobasal_degeneration.htm
There is really no treatment. It first started out with one toe twitching and progressed to his whole foot. Within the last 6 months he has gone from walking to having to walk with a walker and that is getting very hard for him now. The foot that it is affecting now his toes are trying to curl under his foot and that is one thing that is affecting his walking. He is having gait freezing also in that leg. Does anyone have any suggestions for anything that may help him or even slow the progression of this disease?"
Replies06/30/2011: Rob from Manhattan, New York replies: "you may want to look into LDN, low dose naltrexone... Though it doesn't list corticobasal deg. As having a therapeutic effect... It does list a benefit to other degenerative neuroligic diseases such as Alzheimer's.. It is very interesting patient driven drug taken in small dose before bedtime(it is out of patent so the big med companies have little interest in it)... Here is the homepage.. http://www.lowdosenaltrexone.org/index.htm#What_diseases_has_it_been_useful_foralso do a search on youtube... there are some interesting testimonials...
also, you might look into some of the anti-oxidants that pass the blood brain barrier.. Like Alpha Lipoic Acid and Pycnogenol... see here...
http://healthheaven.myblog.sg/2008/07/05/antioxidants-that-cross-the-blood-brain-barrier/"
07/01/2011: Rob from Manhattan, New York replies: "in addition, take your antioxidants.. Like Alpha Lipoic Acid or Pycnogenol with an Omega 3 oil.. I prefer a good quality molecularly distilled oil to remove impurities... It should be refrigerated as well. Taking the antioxidant with oil will boost it therapeutic effect on the brain.. I prefer taking it before bedtime as it aids in better quality sleep and waking. Here is some good info. On omega 3 from Dr. Mercola.http://krilloil.mercola.com/krill-oil.html?gclid=COLn-baJ4KkCFUMUKgodxWXFZw"
07/01/2011: Bess from Calgary, Alberta, Canada replies: "Along with Rob from Manhattan's advice, here is an interesting Web site that has a protocol for control (no cure yet but there is always hope): http://www.perpetualcommotion.com/a/Patricias_Protocol.html - it is an alternative treatment protocol to arrest the progression of tauopathies (such as corticobasal degeneration, alzheimer's, frontotemporal dementia, etc.). There is also a tauopathy discussion forum (http://health.groups.yahoo.com/group/tauopathies/messages) so you may be able to glean some more information. Best of luck to you and your uncle. Take care, Bess"
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