[YEA]  01/24/2013: Jean from Oklahoma City, Ok: "I was recently diagnosed with LYMPHOCYTIC COLITIS. Pepto Bismol worked fairly well, but I've read its effectiveness lessens with time. I have received much relief from coconut and virgin coconut oil. I buy unsweetened coconut chips and the oil and eat about two or three tablespoons coconut each day, use the oil on oatmeal and other foods. It relieves cramping, stomach pain and watery diarrhea."

11/02/2012: Fed Up from Ypsilanti, Mi: "I am on codiene sulfate and take chloestyramine for collagenous. Now the doctor also has just put me on alendronate, folic acid, and methotrexate for arthritis. Also just had colonoscopy and they removed a polyp that was precancerous. Is it really safe to take all these every week? so worried but I know they are tired of me doubting them at times."

11/04/2012: Fed Up from Ypsilanti, Mi replies: "Hi everyone, thought I give a more detailed account for others to understand better. I decided I would try the new meds but sure didn't get far with it. The folic acid 1mg daily and after 3 days it made me so ill, dizzy, exhausted and had terrible diahrea. Those were the lighter reactions I had. Could not begin to imagine what the mtx would do and it is not worth the risk or side effects for me to take. It is the first time I had been seen by this rhumatologist but he knew I took 30mg codiene sulfate 1to 2x daily along with chloestymine for collegnous colitis. I am so hurt that when I tried to explain I have allergies and my body is very sensitive to many drugs and I do end up getting most side effects I was told that is not what I asked you. He then asked what the other rhummy tried for me and like I fool I said nothing much and I didn't like the rhummy. Just a cortizode injection in arm that only lasted a few days. When it came to all the med I tried in past for ra I honestly don't remember after I discontinue something 1-4 years past. He felt my throat at the visit felt a mass and said get to your doc asap for referal testing it is (just a goiter) results. Went upstairs to my doc they are in same building said why I was there I explained and said rhummy told me thyroid gland (it was what I kept in my head).. I am sort of new to him also and he got irritated when I couldnt remember exact and he actually had to call rhummy (too bad) I was really ready to cry over both of them treating me the way they did so I said I am sorry I can't remember and he won't call you even though I asked him too ahead of time When he hung up from other rhummy he was very snippy to me and said you gave him misleading info of ra drugs you had in past that's why the old rhummy didnt do more for you he thought you still took a med from the doc before your last old rhummy... Then he snapped my med history pages in file and started saying very snappy to me each and every one of them I had tried and even the reasons I gave the old rhummy for not going to appoint. (to be honest I was just putting that old rhummy off till I found a new one in case I did need a cortizone shot again for pain) Here is the funny part of it all. How was I to know that the old rhummy, new one, and my reg doc were all friends of sorts. To think there was me and my big mouth at my yakiest from codiene sulfate kicking in saying how lousy that rhummy was in the past. Learned my lesson on that guess I will be looking for new docs soon again especially when I send rhummy his e-mail from me saying no I will not take these meds. Anyones opinion or advice greatly appreciated"

04/01/2012: Star from Austin, Tx: "Any thoughts about a natural cure for Lymphocytic Colitis? Right now I'm on three prescription drugs for it and would like to learn about a more natural cure.

Thanks in advance for your help!

Star"

04/23/2012: Ann from Healdsburg, Ca replies: "I was just diagnosed with Collegnous Colitis. My Dr. placed me on one Priolsec daily for stomach ulcerations and the 8 Pepto Bismol tablets throughout the day. After two days on them I've slowed down and feel in more control. However, when I feel pressure I still need to be close enough to a restroom even though the Diahrrea has stopped. He wants me on it for 6-8 weeks, then we'll see. But I'm all for natural if possible. My test also seemed to show Diverticuloisis not Diverticulitis."

04/23/2009: Billa from Vancouver, BC, Canada: "I have been suffering from Collagenous Colitis - the symptoms are severe diariahea for the last 6 years. I have been on Asacol, Prednisone but to no avail, the symptoms just got severe. So after spending $$$ on Acupuncturists, Naturopaths - I am still not doing very well. Reading the site - there are a lot of remedies just don't know which ones to use - Baking Soda/Magnesium or Blackstrap Molasses or Miracle Mineral Solutions - does anyone have any further ideas."

04/24/2009: D from Oz, KS, US replies: "would msm, collostrum, or noni juice help heal you? just google and read. wishing you well!"

07/05/2009: Genevieve from Welch, West Virginia replies: "Hi, I have collagenous collitis my Doctor put me on Lialda it seems to be working for me. I will know in 6 to 8 weeks. I hope this is a medication I will not have to take the rest of my life."

11/16/2009: John from Cerritos, Ca replies: "for collogenous colitus: for immediate relief p.b. pink pills two twice or three times a day. Also a very good probiotic once a day (for the rest of your life.The p.b. should work in two or three days and you may taper off when the diarhea either stops or really slows down"

EC: Ahh, Pepto Bismol pills. We thought for a moment there you were referring to pyridostigmine bromide pills (aka PB pills), which have been linked to Gulf War Syndrome!

03/22/2010: Jeanne from Zephyrhills, Fl replies: "I used the pepto bismol and I have to say for collaginous colitis it really does work. Thought I would share that it works."

08/09/2010: Lucy from Louisville, Ky replies: "I was diagnosed with collagenous colitis 6/12/10. Have tried Entocort and Azacol with no success. Then three weeks of Prednizone which almost killed me. Changed to new Dr. who prescribed Pepto Bismol 2 tablets;8/day. Hasn't helped yet. Dr. Said it might take up to 8 weeks; how long has this treatment taken others?"

10/28/2010: Zizzy from Washington, Dc replies: "Collagenous and Lymphocitic Colitis are greatly improved by first dealing with food intolerances. Most sufferers must follow a gluten-free/dairy-free diet. Sometimes soy and yeast-free too. Hundreds of people have gotten help from a group known as The Potty People. Most members go drug-free after they eliminate their food intolerances. MC is often found in celiac disease, so you should request testing.

Stool and gene testing from is extremely helpful, especially if celiac blood antibodies are inconclusive. During flares, Pepto Bismol tablets and Immodium (lactose-free varieties) are helpful."

08/31/2012: Joyce from Bellevue, Wa replies: "Hi! I've been diagnosed with CC since 2007, just reconfirmed with a colonoscopy. Best routine for me is to stay strictly ON DIET: NO dairy, NO raw fruits or veggies, low fiber and low fat. I use Asacol, a probiotic, and a little Creon (not sure that matters); for flare-ups, Pepto-Bismol and Imodium A/D (the latter only if I'm flying or the case is really bad). I tried a no-gluten diet but, for me, it did not help. I'd suggest you write down everything you eat (with quantities), every day. Write down all bowel movements. It's a bother, but the best way to locate your food triggers. BEST OF LUCK!"