★★★★☆
Baking Soda Douche
★★★★★
After two years of suffering, this has been such a huge relief. I do have some residual pain with sex, probably from a learned 'guarding' response of the pelvic floor muscles, and I am getting physical therapy for that and I apply lidocaine jelly before sex. Things continue to improve.
Vulvodynia and Allergy Connection
Amino Acid Nac, Vitamin C, Spirulina
★★★★★
For all those suffering from this painful condition, try this combination. If it doesn't work, you might have a vitamin deficiency. Ask your doctor to perform blood work to see where you are deficient and try taking those vitamins.
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Coconut Oil
★★★★☆
★★★★★
Once I realized that what was going on down there wasn't a yeast infection I started to do research, I had no discharge, just redness, swelling. For the most part I only felt pain and itching when I touched down there. Dynia means pain. Doctors don't know what it is and they don't know how to treat it, even prescribing antidepressants for it when that isn't going to help at all.
Ok now for what you came for: What I found through my research is that trauma to the muscles of my hoo hah caused my vulvodynia. This was caused by forcing the aha moment by locking up all my muscles during my uh alone time if you will. One thing that I have tried is a cranberry supplement, mine is the once a day one that can be bought at the Mart we all know of.
According to my research a UTI infection affects the same or similar muscles or something that Vulvodynia does, so I take a cranberry supplement every day because that helps so much with UTI's. I also take a calcium citrate supplement to help with oxalates, you can also get it from the Mart and the one I get includes Vitamin D and Magnesium for better absorption, it's a name brand.
I also have Bacterial Vaginosis so I take extra amounts of Folic Acid and an Acidopholus supplement every day and extra if I feel the itch start. This has been the only thing that has worked for my BV and it works very well. Funny how doctors don't think vitamins and immune boosters will fix the body's problems.
The coconut oil didn't work for me. But what has made the most significant difference and has for the most part cured my Vulvodynia has been the pelvic floor stretches that I do. If muscles are traumatized in some way they stay tensed and contracted, just like they would if you were in a car accident, so they must be relaxed and this is accomplished through stretching. The one that has worked best for me is a perineum massage where I take the thumb of my dominant hand and press it against the bottom of my hoo hah towards my rear hole as hard as I can without hurting myself but so I can feel the strings or muscles down there pull and stretch. I count slowly to 30 or 45 and release. I do this every time I go to the bathroom or at least 3 times a day when it hurts, which for me only seems to occur after sex now. After sex and the next day of doing this along with some other stretches and I can totally avoid any discomfort I also do a stretch where I lay on my back, the soles of my feet pressed together with my toes up against something solid so the heels of my feet are as close to my butt as possible. I then let my knees fall to the sides and hold this position for as long as is comfortable. This stretches the top or front muscles of my hoo hah. Another is piling pillows under my butt while letting my legs dangle off the bed as another person suggested. I try to do this for at least 15 minutes at a time to get a really good stretch. This stretches similar muscles as the previous exercise. This isn't as easy to get out of and makes my back hurt some so I don't do this unless I'm hurting. I have started putting ankle weights on to assist in extra pull. I don't recommend starting out doing this. Adding more pillows should be gradual as well. One thing that has also helped me is masturbation, believe it or not. My little friend doesn't penetrate me. One thing I do differently now is I make sure the soles of my feet are touching just like the exercise I mentioned above except I'm on a bed, and I don't force the aha moment. Doing this pulls the muscles in a different way and for me seems to relax them. One more exercise I do is called the pigeon pose, I feel it stretches the pelvic floor from different angles and helps some. My Vulvodynia has gotten so much better doing these stretches that I now only have to do it after sex and if I'm feeling any discomfort, which I really don't. It is such a relief cause I was going out of my mind. I hope this helps somebody. The info I found was sparse on this topic so I want to be as detailed as possible which is why this post is so long. One thing I recommend is people look up pelvic floor STRETCHES online to find more exercises. DO NOT do the exercises that make you clench your pelvic floor muscles this will only make the pain worse! It must be a stretch. You can slowly add those other exercises, also called kegel exercises once the pain is gone, but not till then. It may take some time but I found ones that work for me and didn't have to pay for lots of doctors that don't work and have no clue. I think having a regular stretching or yoga program will keep those muscles more supple in general, along with a regular exercise program.
One final thing: I have found that reducing the amount of sugar in my diet helps immensely with how often I get yeast infections and the general health of my lady parts. Also becoming gluten free has helped immensely as well.
If anyone has questions email me at cbscientist(at)gmail.com
★★★★★
Coconut Oil
Peppermint Lip Balm
★★★★★
Baking Soda, Perineal Massage
★★★★★
Well, its been 2 weeks since I've been off the pill and I already notice a decrease in the burning feeling on my tissues, but noticed my vaginal muscles just feel tight. The doctor told me sometimes vulvodynia occurs because of the body having pain for so long, I subliminally tightened my vaginal muscles in anticipation of every day pain. I have been finding this to be true, and have been doing the perenium massage I've read about, inserting a finger vaginally and pressing down on the pelvic floor muscles, it hurt at first, but got better with time, and its only been 4 days. I also plan to visit the physical therapist to see if there are more stretches I can do to loosen my muscles.
I hope this post helps anyone out there suffering from vulvar or vaginal pain that may have similiar problems. I was feeling quite hopeless being in daily pain for 10 months, but am hoping its finally passing. Keep trying new things, try doctors, accupuncture is wonderful, don't give up, it WILL get better.
It started last year in November and hasn't gone away since, and with various levels of pain. I've tried several different things for it but only the Lysine has lessened my suffering.
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Also, certain birth control pills will bring it on and a switch to another pill (different progestin, estrogen) helps. Notably the YAZ brand has been causing problems for some young people and it's used for Acne as well as for birth control.
Just some things to check out if you haven't already found a diagnosis or treatment.
Amino Acid Nac, Vitamin C, Spirulina
Multiple Remedies
In July of 2011, I began to notice the pain. As the months progressed it became worse. Most of my life I have been susceptible to Yeast Infections and Bacterial Infections. They were so common that I didn't even need to go to the Doctor to get them diagnosed anymore. I would just call in and they would send the prescription to my Pharmacy. Well, I thought I had one or the other multiple times during the past 6 months, but the medication never seemed make the pain go away or make me feel better like it had always done in the past. The symptoms were still there. Urinating was painful and I often thought I had a UTI. But I have had UTI's before and this didn't feel exactly the same. Urinating was just painful, burning, irritating; I never really cramped up like I had all the times I actually had a UTI. And sex was just PAINFUL. I had a boyfriend at the time and I never wanted to have sex because of the pain, but many times I would just suck it up and endure the pain because I did not feel comfortable talking to him about my ailment and I didn't want him to suspect anything else or feel like things were weird. At first it was only painful when he inserted himself and then pulled out. It burned. Maybe I wasn't aroused enough, but after a while I realized that wasn't the case because I could tell that I was. After a while the pain was with each stroke, and it would get worse and worse. Because I was anticipating the pain, during intercourse I would tense up the hold time. I could never relax. I would just close my eyes and hope that it would be over soon. Till this day I am upset that I didn't speak up and let him know the pain I was feeling because the more I think about it and the more research I do on Vulvodynia, I realize that my tense muscles "down there" during intercourse may have been the cause of this. There are so many accusations and "possible" reasons why women get Vulvodynia, all of which I will not list because I am sure you already know them, but for me, I think I found my answer as to how I got it.
I was diagnosed with Vulvodynia in early December 2011. Like many women, I became depressed and felt helpless. I mean, when your Doctor tells you that there is no known cure and that they do not know what causes it, you become hopeless. I began to do research EVERYDAY, trying to find ways to cure this and get rid of it. The thought of not being able to have sex again or have a "normal" relationship (Normal in the sense of a healthy sexual relationship with someone) made me even more depressed, but I knew I had to do something. I found a few articles and blogs where women talked about their Vulvodynia and how they controlled it, had it for years, or still have it and can't get rid of it.
Then I came across Earth Clinic and had some glimmer of hope. After reading a few of the posts on Earth Clinic, I decided to try some of them out. I tried the Coconut Oil. That did not work for me, BUT I now take the coconut oil capsules because they have other benefits. It just did nothing for me down there. I started taking Calcium Citrate plus Magnesium plus Vitamin D3 (all in one capsule). I also began taking Cranberry Supplements (this helps with the bladder muscles - it helped to relax me which has eased the pain a bit). I also take Probiotics to help regulate the flora in my body. I tried to be on a Low Oxalate Diet, which was SO HARD, but I tried it. I was willing to do whatever it takes. Overall, I was feeling a little better, but it still was not helping.
After trying all of this, I had sex for the first time a month after being diagnosed. The pain was still there, but I told myself to keep relaxing, don't tense up, try not to think about it, etc. But we all know that is easier said than done. Sex was still painful. I decided to do more research and realized I never fully tried some of the exercises people were talking about. I began to look into Pelvic Floor Muscle exercises and Perineum Massage. I started to realize that during sex I would tense up a lot. My partner liked to put me in positions that weren't really comfortable for me and I would tense up because it would hurt sometimes. With some positions I thought that was normal because it wasn't a burning pain, just a pain many women say they have when they are in certain positions, an uncomfortable pain. But it was uncomfortable the whole time. Well one of the possible causes of Vulvodynia is Sexual Abuse. Now, I was never sexually abused nor am I trying to compare my situation to a sexual abuse victim, but I am saying that tensing up and "bracing yourself" you might say, have some similarities. Could I have possibly traumatized my muscles? Did the penetration make me have nerve damage due to tensing up during intercourse? Sex with my partner wasn't that painful UNLESS he put me in positions that I was uncomfortable in (I am not flexible, so he would put my legs and hips in positions my body was not use to which in turn tensed me up). I began to really think about it and thought, maybe my Vulvodynia is caused by my tense muscles and overtime I have traumatized them.
I read one post about a woman who did a Perineum Massage where she would insert her thumb into her vagina and push on her perineum as hard as she could for 30-45 seconds. I began to do this every day, 4-5 times a day. At first it was painful, it burned, it felt uncomfortable and I thought I would not be able to tolerate it. But the key is to relax your muscles while you do this. The first few days it will be painful and hurt, but after a while, you will begin to feel better and the pain will minimize, if not just minimize but actually go away completely. I also began doing the Pigeon Pose stretch to help open my hips. Another stretch I do daily is lay on my back with my feet on the ground and knees up. I then open my legs and let them fall to the side, keeping feet together. You will feel a tremendous stretch in your groin. It has been 3 weeks and I feel 95% better. I do not have the burning or itching sensation that I had those previous 6 months. I could sit at my desk and work without having pain. I can pee without the burning sensation. I have taken up Yoga as well, to help me relax. I feel that has something to do with it too. Relaxation is key. I was stressed out and when you stress, your muscles feel it. For me, the supplements and the Perineum Massage have helped. I have not had sex yet, that's why I say I feel 95%, so I am not sure if this has been my total cure, but I definitely notice a difference in my day to day. I feel normal again.
Just to clarify, this is what I have done to try and curb my Vulvodynia (which seems to have worked) and I do all of this DAILY:
Again, I have not had intercourse yet, so I cant say it is completely gone, but I feel so much better, I am much more positive and I know that I am closer to recovery. I hope this post helped someone at least. It may not help everyone, but it has helped me. Good luck , stay positive, and RELAX.
find your vaginal PH.. if its low, say 3-4 then this is why the baking soda helps because it raises the PH to what it should be -about 4.5. This made me think its my own secretions that are causing the burn -because they are basically too acidic. So, I am going to try alkaline drops in water to slightly increase my body's PH.
In the meantime, other things that def help are:
Sluice with water or bicarb soda/water after peeing so no pee is left on you.
The chapstick works as a barrier -so I think anything like vaseline or sudocreme would work. This links to me thinking its acidic vag juice that starts the burn! If you put barrier against it, your skin is protected. Just a theory.
For me its always post ovulation it starts, so be prepared for a flare then and start the baking soda wash or baths. I don't douche but thats personal pref.
Also another thread with the acid thesis - I tried pre-seed personal lubricant because its ph 7 or so to be sperm friendly and although it stung a bit at first it really helped a lot.
Estrace cream I dab on a little each day to try and toughen up that skin.
So, wash after peeing, use baking soda & water for this and soak in it every day of needed. Use the preseed and maybe try alkaline drops. I am also trying citracal for anti-oxalate. Finally, one site I saw said that from its data, pelvic floor therapy was the No 1 most effective treatment for this, because often the pain is referred from elsewhere. I have an overly tight pelvis floor so I am booked to see a specialist women's pelvic floor therapist. GOOD LUCK EVERYONE!!
Dietary Changes
In any case, thank you again for all the great information. I hope many women will see it and benefit from it.
Baking Soda Baths for Cytolytic Vaginosis
Peppermint Lip Balm
Pelvic Floor Muscle Stretch
Baking Soda, Perineal Massage
Baking Soda, Perineal Massage
We all can heal the root of our disease, we just need to take out health into our own hands, research (Thank you Earth Clinic) and be prepared to try and fail until you find a solution. Staying open minded, optimistic, and empowered is key. We have the power to heal entirely, but we must get to the root of the disease. Our bodies are amazing . Look to diet and start by avoiding sugar, gluten, and starch. Edgar Casey and Sally Fallon have brilliant readings
Vitamins in pure powder form with ZERO additives.
NO TABLETS / NO PILLS : , vitamins C - push the limit, some is the same as non- you must cross the threshold for it to have an effect. I take 2,000M G daily and push to consume more. start with 1,000 MG daily
ZINC!!!, and all your B's, Magnesium Citrate, IODINE Lugols (I'm on three drops daily 3x's a week)
Amino Acids
Aluminum FREE sodium bicarbonate drink in water and topical solution
Take Fulvic Minerals
detox the liver with borax
Baking Soda Douche
I don't know if the baking soda douches will help, but I will try them, and I will stop taking probiotics until the issue is resolved. I read on another health board that a woman used a pH balanced lubricant every night and treated her CV. You can find it by searching for the postings by mamacitas on a thread titled "Yeast, Lactobacillosis or Cytolytic Vaginosis???"
Anyway, good luck to everyone in their search for an answer. Sometimes I think some of us know more than our doctors - let's keep sharing what we know!
Baking Soda Douche
Mix 1-2 tablespoons of baking soda with 4 cups of warm water. A douche bag, which can be purchased at most pharmacies, is then used to infiltrate the vagina with the solution. Or, you can purchase baking soda douches over the counter at most pharmacies. Douche twice weekly for two weeks.
Alternatively, if douching would be difficult, fill empty gelatin capsules with baking soda and insert one capsule intravaginally, twice weekly for two weeks.
Baking Soda Douche
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Bluesky, I think it's really wonderful to hear it worked for you I know two other's on the other forum I used to post on, said it worked for them also. I think many don't try it because they think its a weird combo. I dont' think it's a total cure but I think at least it seems to stop the itching and then burning and like you said if your starting to feel bad it seems to work pretty quickly. That's interesting what your doctor told you about vitamin C I will look into that. Like I said I was given it for getting rid of heavy metals so remember to take a good multi mineral while you're on it. Again, I think it's so wonderful to hear that it helps as I know this condition is hell, take care, Anna
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
★☆☆☆☆
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
when I have sexual intercourse it is very painful around the back entrance of my vulva, like nerve endings are burning/
I am loooking for natural cures... homeopathic or ayurveda .
Amino Acid Nac, Vitamin C, Spirulina
Borax Douche
Coconut Oil
Coconut Oil
Multiple Remedies
Pelvic Floor Muscle Stretches, Multiple Remedies
★★★★★
Colloidal Oatmeal
★★★★★
But the key to stopping and treating the pain is Colloidal oatmeal! I had some luck with coconut oil, but it never "treated" it fully, at least for me. I buy Aveeno baby bath oatmeal powder. I mix it with a bit of water to form paste then apply it to the red/painful areas of my vulva. Let it sit for about 15 minutes, then soak in a bathtub with the rest of the packet of oatmeal. I apply the past in the morning and night and do the bath at night. In about 3-4 days I'm all healed! I still get flare-ups but atleast it doesn't have to ruin my whole life.
Pelvic Floor Muscle Stretch
I just realized while reading about your stretches...
since I got my inversion table it has helped a lot! It is basically the same concept. Hanging upside down for 5-10 ins a day has lengthened all of the same muscles. (It is also great for the back, which is why I got it in the first place). If you have the room and the money, I highly recommend it!
Thanks again, that was great info.
Best to you and anyone else who has this affliction!
Pelvic Floor Muscle Stretch
Pelvic Floor Muscle Stretch
Coconut Oil
GOOD LUCK, you CAN beat this :)
Coconut Oil
Castor Oil, Baking Soda
Vitamin C
★☆☆☆☆
Desitin, Tea Tree Oil
Baking Soda Douche
Baking Soda Douche
Baking Soda Douche
Baking Soda Douche
Cool Water
★★★★★
Calcium Citrate
★★★★☆
Peppermint Lip Balm Peppermint Lip Balm
Peppermint Lip Balm
Peppermint Lip Balm
Peppermint Lip Balm
Pelvic Floor Muscle Stretch
Baking Soda, Perineal Massage
Baking Soda Douche
Baking Soda Douche
Baking Soda Douche
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
Amino Acid Nac, Vitamin C, Spirulina
★★☆☆☆
Borax Douche
★★★★☆
So I'll see how it goes. The borax is mostly a quick fix for severe irritation and burning. I'm going to try with the coconut oil to see if that helps for a more long term solution. Thanks so much for all the feedback here! I love this site :).
wear cotton or NO underwear
when you wash use your fingertips and not a wash cloth
perhaps swab with a diluted betadyn solution once or twice a day to keep infection down
I used to get many vag infections and I know this is diff than the staff you get but douching with yogurt helped
Herpes Caused
Botox
★★★★★
Multiple Remedies
Multiple Remedies
For me, just the peace of mind knowing what it was has helped me to heal a little bit, but I'm only about 50% better from before the bladder infection. (I also may have IC, being tested in another two weeks)... I've started going to therapy but it costs an absolute FORTUNE and I only work three days a week right now, so I can't really afford it. To know that you can do this stuff on your own, without having to pay thousands of dollars, is giving me a lot of hope!
About three weeks ago, I was in Jamaica, and I found swimming in the ocean worked wonders for the vulvodynia. I was in almost NO pain the whole week we were away, the first time I'd had near total relief in a year! There's no ocean in Toronto, but my boyfriend bought me some bath salts that he read were recommended for women with vulvodynia. I'm going to give that a try.
Multiple Remedies
Pelvic Floor Muscle Stretch
Is it so? I usually recommend my clients to do it on the edge of the arm of the sofa...
Pelvic Floor Muscle Stretch
Pelvic Floor Muscle Stretch
★★★★★
Pelvic Floor Muscle Stretch
Pelvic Floor Muscle Stretch
Pelvic Floor Muscle Stretch
i understand this may be too old of a comment to respond to. Trying nonetheless. Thank you.
Coconut Oil
Coconut Oil
Tems
